Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 Kristy, No fair making me cry at lunch! Darlene > > Seth is a Perfect Child > H. Boehm, MD > Boehm is Professor of Obstetrics and Gynecology at Vanderbilt University > Medical Center,where he is former Chairman of the Ethics Committe as well as > former Directorof Maternal/Fetal Medicne. He is author of " Doctors Cry, Too: > Essays fromthe Heart of a Physican. " Contact Dr. Boehm at FHBoehm@...<FHBoehm%40aol.com> > > Over the past 38 years, I have participated in the care of thousands > ofpregnant women and have attempted to answer the many questions that > eachpatient invariably wants answered. > > While these questions are often specific to each patient's pregnancy, > onecommon question usually surfaces at some point in our discussion, " Is > mybaby OK? " Because it is so difficult for me to define " OK, " thisquestion > has always been a tough one for me to answer. > > At the heart of this question lies a pregnant patient's desire to know if > herunborn child will be perfect (normal and healthy), a very reasonable > concern.Once again, however, defining perfect is not an easy task. > > Most pregnant women do not realize that approximately 2% of the 4 > millionbirths each year in this country involve the delivery of a child with > asignificant congenital defect. That translates to one out of 50 births! > Thesebirth defects include hundreds of different types of anomalies such as > spinabifida, heart abnormalities, limb deformities, metabolic disorders > andchromosomal abnormalities such as Down syndrome. > > When you consider that each of us begins with the union of sperm and egg, > whichcreates one cell and this one cell continuously divides to create the > billionsof cells that result in a living child, it is truly a miracle that > any of usare born, much less that we are born perfect. > > It is with this in mind that I explain to patients that each birth is a > miracleand that the uniqueness of each of us is what makes us perfect. I > also attemptto explain that normal is in the eye of the beholder. The gift > of life can be " perfect " even in the presence of serious problems. One year > ago, mynewly born grandson, Seth, was to help me understand this from a > differentperspective. Seth was born with Down syndrome. > > Down syndrome was first described by Dr. Langdon Down in 1866 as > acondition in which a child is short in stature with mild to moderate > mentalretardation, as well as often being associated with other physical > problemssuch as heart defects. The risk of having a child with Down syndrome > increasesas women age. At 20 years of age, the risk is one in 2,000 births > and at 35 itis one in 365. At age 40, the risk of delivering a child with > Down syndrome isone in 100. > > I have spent my entire career counseling patients on the risk of > delivering achild with Down syndrome. But until the birth of Seth, I had > never beenconfronted on a personal level. > > My son Tommy and his wife were expecting twins - a girl and a boy. > Ivividly remember the excitement as and I waited during the delivery > and cried with joy as we each held a child inour arms in the recovery room. > Marly and Seth were perfect. What dreams andexpectations we held for these > two precious bundles of joy! > > Several hours later, however, we were confronted with the fact that > Sethcarried a diagnosis of Down syndrome while his sister Marly did not. Our > familywas filled with emotions, from the high that came with the birth of > the twinsto a low at learning of Seth's disability and knowing that he would > bedifferent with possible life-long problems. > > Later that evening, holding Seth in my arms and gazing into his angelic > face, Iwas overcome with unconditional love for my grandson. As the tears > rolled downmy cheek, I understood that despite his diagnosis, to me and > those who lovehim, Seth is a perfect child, to be loved and nurtured, the > same as his sisterMarly. Our dreams and expectations for him may now be > different from those forhis sister, yet they are dreams and expectations > nonetheless. > > To me, Seth is perfect. His 1-year-old smile lights up a room and his > laughterbrings warmth to all who are near. He loves to cuddle and gaze into > the eyes ofthose who hold him and he embraces his sister with what can only > be describedas pure affection and love. > > Seth is one of many children who are born with birth defects and > complications,yet, like so many others, Seth has embarked on a journey we > call life. Thatlife will be filled with challenges for him and his family, > yet that is alsotrue of each of us as we embrace life with its ups and > downs. > > As we enter a world in which more genetic information will be available > for usto consider in selecting a perfect child, I hope we have room in our > world andhearts for those like Seth who are challenged and different, > because challengedand different can still be perfect. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2006 Report Share Posted June 19, 2006 lol sorry about that! I didn't give that warning! Darlene Benoit wrote: Kristy, No fair making me cry at lunch! Darlene > > Seth is a Perfect Child > H. Boehm, MD > Boehm is Professor of Obstetrics and Gynecology at Vanderbilt University > Medical Center,where he is former Chairman of the Ethics Committe as well as > former Directorof Maternal/Fetal Medicne. He is author of " Doctors Cry, Too: > Essays fromthe Heart of a Physican. " Contact Dr. Boehm at FHBoehm@...<FHBoehm%40aol.com> > > Over the past 38 years, I have participated in the care of thousands > ofpregnant women and have attempted to answer the many questions that > eachpatient invariably wants answered. > > While these questions are often specific to each patient's pregnancy, > onecommon question usually surfaces at some point in our discussion, " Is > mybaby OK? " Because it is so difficult for me to define " OK, " thisquestion > has always been a tough one for me to answer. > > At the heart of this question lies a pregnant patient's desire to know if > herunborn child will be perfect (normal and healthy), a very reasonable > concern.Once again, however, defining perfect is not an easy task. > > Most pregnant women do not realize that approximately 2% of the 4 > millionbirths each year in this country involve the delivery of a child with > asignificant congenital defect. That translates to one out of 50 births! > Thesebirth defects include hundreds of different types of anomalies such as > spinabifida, heart abnormalities, limb deformities, metabolic disorders > andchromosomal abnormalities such as Down syndrome. > > When you consider that each of us begins with the union of sperm and egg, > whichcreates one cell and this one cell continuously divides to create the > billionsof cells that result in a living child, it is truly a miracle that > any of usare born, much less that we are born perfect. > > It is with this in mind that I explain to patients that each birth is a > miracleand that the uniqueness of each of us is what makes us perfect. I > also attemptto explain that normal is in the eye of the beholder. The gift > of life can be " perfect " even in the presence of serious problems. One year > ago, mynewly born grandson, Seth, was to help me understand this from a > differentperspective. Seth was born with Down syndrome. > > Down syndrome was first described by Dr. Langdon Down in 1866 as > acondition in which a child is short in stature with mild to moderate > mentalretardation, as well as often being associated with other physical > problemssuch as heart defects. The risk of having a child with Down syndrome > increasesas women age. At 20 years of age, the risk is one in 2,000 births > and at 35 itis one in 365. At age 40, the risk of delivering a child with > Down syndrome isone in 100. > > I have spent my entire career counseling patients on the risk of > delivering achild with Down syndrome. But until the birth of Seth, I had > never beenconfronted on a personal level. > > My son Tommy and his wife were expecting twins - a girl and a boy. > Ivividly remember the excitement as and I waited during the delivery > and cried with joy as we each held a child inour arms in the recovery room. > Marly and Seth were perfect. What dreams andexpectations we held for these > two precious bundles of joy! > > Several hours later, however, we were confronted with the fact that > Sethcarried a diagnosis of Down syndrome while his sister Marly did not. Our > familywas filled with emotions, from the high that came with the birth of > the twinsto a low at learning of Seth's disability and knowing that he would > bedifferent with possible life-long problems. > > Later that evening, holding Seth in my arms and gazing into his angelic > face, Iwas overcome with unconditional love for my grandson. As the tears > rolled downmy cheek, I understood that despite his diagnosis, to me and > those who lovehim, Seth is a perfect child, to be loved and nurtured, the > same as his sisterMarly. Our dreams and expectations for him may now be > different from those forhis sister, yet they are dreams and expectations > nonetheless. > > To me, Seth is perfect. His 1-year-old smile lights up a room and his > laughterbrings warmth to all who are near. He loves to cuddle and gaze into > the eyes ofthose who hold him and he embraces his sister with what can only > be describedas pure affection and love. > > Seth is one of many children who are born with birth defects and > complications,yet, like so many others, Seth has embarked on a journey we > call life. Thatlife will be filled with challenges for him and his family, > yet that is alsotrue of each of us as we embrace life with its ups and > downs. > > As we enter a world in which more genetic information will be available > for usto consider in selecting a perfect child, I hope we have room in our > world andhearts for those like Seth who are challenged and different, > because challengedand different can still be perfect. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Beautify said! Re: A good Article you will all enjoy > lol sorry about that! I didn't give that warning! > > Darlene Benoit wrote: Kristy, > > No fair making me cry at lunch! > > Darlene > > >> >> Seth is a Perfect Child >> H. Boehm, MD >> Boehm is Professor of Obstetrics and Gynecology at Vanderbilt University >> Medical Center,where he is former Chairman of the Ethics Committe as well >> as >> former Directorof Maternal/Fetal Medicne. He is author of " Doctors Cry, >> Too: >> Essays fromthe Heart of a Physican. " Contact Dr. Boehm at >> FHBoehm@...<FHBoehm%40aol.com> >> >> Over the past 38 years, I have participated in the care of thousands >> ofpregnant women and have attempted to answer the many questions that >> eachpatient invariably wants answered. >> >> While these questions are often specific to each patient's pregnancy, >> onecommon question usually surfaces at some point in our discussion, " Is >> mybaby OK? " Because it is so difficult for me to define " OK, " >> thisquestion >> has always been a tough one for me to answer. >> >> At the heart of this question lies a pregnant patient's desire to know if >> herunborn child will be perfect (normal and healthy), a very reasonable >> concern.Once again, however, defining perfect is not an easy task. >> >> Most pregnant women do not realize that approximately 2% of the 4 >> millionbirths each year in this country involve the delivery of a child >> with >> asignificant congenital defect. That translates to one out of 50 births! >> Thesebirth defects include hundreds of different types of anomalies such >> as >> spinabifida, heart abnormalities, limb deformities, metabolic disorders >> andchromosomal abnormalities such as Down syndrome. >> >> When you consider that each of us begins with the union of sperm and egg, >> whichcreates one cell and this one cell continuously divides to create >> the >> billionsof cells that result in a living child, it is truly a miracle >> that >> any of usare born, much less that we are born perfect. >> >> It is with this in mind that I explain to patients that each birth is a >> miracleand that the uniqueness of each of us is what makes us perfect. I >> also attemptto explain that normal is in the eye of the beholder. The >> gift >> of life can be " perfect " even in the presence of serious problems. One >> year >> ago, mynewly born grandson, Seth, was to help me understand this from a >> differentperspective. Seth was born with Down syndrome. >> >> Down syndrome was first described by Dr. Langdon Down in 1866 as >> acondition in which a child is short in stature with mild to moderate >> mentalretardation, as well as often being associated with other physical >> problemssuch as heart defects. The risk of having a child with Down >> syndrome >> increasesas women age. At 20 years of age, the risk is one in 2,000 >> births >> and at 35 itis one in 365. At age 40, the risk of delivering a child with >> Down syndrome isone in 100. >> >> I have spent my entire career counseling patients on the risk of >> delivering achild with Down syndrome. But until the birth of Seth, I had >> never beenconfronted on a personal level. >> >> My son Tommy and his wife were expecting twins - a girl and a boy. >> Ivividly remember the excitement as and I waited during the delivery >> and cried with joy as we each held a child inour arms in the recovery >> room. >> Marly and Seth were perfect. What dreams andexpectations we held for >> these >> two precious bundles of joy! >> >> Several hours later, however, we were confronted with the fact that >> Sethcarried a diagnosis of Down syndrome while his sister Marly did not. >> Our >> familywas filled with emotions, from the high that came with the birth of >> the twinsto a low at learning of Seth's disability and knowing that he >> would >> bedifferent with possible life-long problems. >> >> Later that evening, holding Seth in my arms and gazing into his angelic >> face, Iwas overcome with unconditional love for my grandson. As the tears >> rolled downmy cheek, I understood that despite his diagnosis, to me and >> those who lovehim, Seth is a perfect child, to be loved and nurtured, the >> same as his sisterMarly. Our dreams and expectations for him may now be >> different from those forhis sister, yet they are dreams and expectations >> nonetheless. >> >> To me, Seth is perfect. His 1-year-old smile lights up a room and his >> laughterbrings warmth to all who are near. He loves to cuddle and gaze >> into >> the eyes ofthose who hold him and he embraces his sister with what can >> only >> be describedas pure affection and love. >> >> Seth is one of many children who are born with birth defects and >> complications,yet, like so many others, Seth has embarked on a journey we >> call life. Thatlife will be filled with challenges for him and his >> family, >> yet that is alsotrue of each of us as we embrace life with its ups and >> downs. >> >> As we enter a world in which more genetic information will be available >> for usto consider in selecting a perfect child, I hope we have room in >> our >> world andhearts for those like Seth who are challenged and different, >> because challengedand different can still be perfect. >> >> >> Quote Link to comment Share on other sites More sharing options...
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