Re: [Liver Cirrhosis Support]debbie

[Guest guest]

I did have a distended stomach. They removed 5 liters of fluid from my abdomen

the end of Dec. Prior to that I had trouble breathing and could not walk much!

What a difference removing it made.

I did have bleeding that is why they put me in the hospital just before

Christmas for a week, My blood count was so low that I was literally running on

empty. they gave me 4 pints of blood, 2 of platelets and 2 of plasma. they did a

colonoscopy at the time. I would love to get the guy who named the liquid you

drink " Go lightly " -- he had a sick sense of humor!

I am tested out for sure! I am looking forward to a break from it all

PrismPom

Proudly Owned by BISS/BISA Starfire's Here Comes Trouble HOF, GC

Member American Pomeranian Club

Subject: Re: Bobby &

To: livercirrhosissupport

Date: Saturday, January 30, 2010, 8:11 PM

 

I sure hope you are feeling better. It sounds like we are experiencing

the same things. No matter what I eat it makes my stomach feel like it's full of

glass it hurts so bad. Now it hurts from my liver across my stomach into the

left side. Last weekend felt like my whole abdomen was going to EXPLODE. I

started to call 911 but then didn't want to feel like an idiot. I'm scheduled

for a CT scan on my abdomen and pelvis. What I had no idea of is that the pain

I'm having could even REMOTELY be from ascites or varices!!! I thought a

person's abdomen would have to be hugely distended and be vomiting blood if

there were varices...So this is new knowledge to me. My gastro is going to do

another endoscopy and colonoscopy in a month. He gave me REGLAN for the " acid

reflux " and I pretty much knew he was an idiot and after reading about the

Reglan it confirmed it. Can I ask what your doc gave you?...Best wishes~~~Debbie

BOBBY...I know you have a lot of liver pain constantly. Does it hurt across your

stomach into the left side??

>

>

> From: Bob Aragon <robwalkingeagle@ ...>

> Subject: Re:

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Saturday, January 30, 2010, 6:31 PM

>

>

>  

>

>

>

> Hi to all the newcomers. I am a moderator here. My experience is that films

are highly subjective. My last CT scan shows an 18x12 mm subcapsular lesion in

the right lobe of my liver and a hypodensity in the left lobe of my liver, my

spleen went from mild to moderate in size again( on paper anyway), but the point

I am making is that the film except for the lesions never changes. The lesions

are new, but there is disagreement within the hepatology deps as to weather they

are any thing to worry about or not. One doctor says follow up with another MRI

in 3 months and my own hepatologist believes that a CT scheduled for spring will

sufice. I think these films are very very hard to read, and some doctors see

things that arent there, and others miss obvious things that are. I have a

decidedly enlarged spleen, which measures around 16 cm, but the very first CT

scan I ever had was read as completely normal. I often wonder how many tumors

that particular doctor

> has missed which cost someone his or her life?...

> Sobering thought. Radiologist has got to be an unnerving job for sure. When

you go in after a car crash and have a lacerated liver, the ct can pretty much

show the doctor this, but cirrhosis, and other disease have really got to be

maddening for them. Love, Bobby

>

> (saadn'leelt- da ya day- n'zho)

> long life, old age, everything good-Apache prayer

>

> ____________ _________ _________ __

> From: vickij777 <no_reply@yahoogrou p s.com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sat, January 30, 2010 5:54:28 PM

> Subject:

>

> I'm new at this also and was wondering what kind of " tons of tests " are you

undergoing? After a liver biopsy, they have done an MRI and am scheduled for an

endoscopy in a couple weeks. I am not opposed to being preventative but don't

really know when to say no. The liver biopsy showed " bordering on early

cirrhosis " and the MRI showed " no signs of cirrhosis " . I believe they are

treating me for cirrhosis but do I need to do all this so soon? They also told

me I needed an MRI every six months to test for liver cancer.

>

>

[Guest guest]

, I've had trouble breathing off and on for months. I have cardiac

issues but they aren't sure what yet. I keep thinking the shortness of breath is

from that but this Hep C screws with everything else so who knows? My eyesight

is getting bad at a rapid rate and the eye doc { who had Hep C and cleared it

years ago } said it's the HC and nothing to be done. Yes the " go lightly " is

about like their flavored liquid chalk " milk shakes " My stomach is rolling just

thinking of it!...It definitely sounds like you've been ran through the wringer

that's for sure ! I hope you get to feeling better and get good news...Best

wishes~~~Debbie

> >

> >

> > From: Bob Aragon <robwalkingeagle@ ...>

> > Subject: Re:

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Date: Saturday, January 30, 2010, 6:31 PM

> >

> >

> >  

> >

> >

> >

> > Hi to all the newcomers. I am a moderator here. My experience is that films

are highly subjective. My last CT scan shows an 18x12 mm subcapsular lesion in

the right lobe of my liver and a hypodensity in the left lobe of my liver, my

spleen went from mild to moderate in size again( on paper anyway), but the point

I am making is that the film except for the lesions never changes. The lesions

are new, but there is disagreement within the hepatology deps as to weather they

are any thing to worry about or not. One doctor says follow up with another MRI

in 3 months and my own hepatologist believes that a CT scheduled for spring will

sufice. I think these films are very very hard to read, and some doctors see

things that arent there, and others miss obvious things that are. I have a

decidedly enlarged spleen, which measures around 16 cm, but the very first CT

scan I ever had was read as completely normal. I often wonder how many tumors

that particular doctor

> > has missed which cost someone his or her life?...

> > Sobering thought. Radiologist has got to be an unnerving job for sure. When

you go in after a car crash and have a lacerated liver, the ct can pretty much

show the doctor this, but cirrhosis, and other disease have really got to be

maddening for them. Love, Bobby

> >

> > (saadn'leelt- da ya day- n'zho)

> > long life, old age, everything good-Apache prayer

> >

> > ____________ _________ _________ __

> > From: vickij777 <no_reply@yahoogrou p s.com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Sat, January 30, 2010 5:54:28 PM

> > Subject:

> >

> > I'm new at this also and was wondering what kind of " tons of tests " are you

undergoing? After a liver biopsy, they have done an MRI and am scheduled for an

endoscopy in a couple weeks. I am not opposed to being preventative but don't

really know when to say no. The liver biopsy showed " bordering on early

cirrhosis " and the MRI showed " no signs of cirrhosis " . I believe they are

treating me for cirrhosis but do I need to do all this so soon? They also told

me I needed an MRI every six months to test for liver cancer.

> >

> >

[Guest guest]

Debbie - have you had your thyroid checked lately. My eyes when from not

needing glasses to needing very strong reading glasses in just a couple of

years. Eye doctor said it showed I had thryoid problem. Was already on

thyroid meds, but talked to dr.. about it, he said I was fine, A year

later, all of a sudden, they decide that they need to double my medication

and eye deterioration and double vision at night disappeared. Jan H

> , I've had trouble breathing off and on for months. I have cardiac

> issues but they aren't sure what yet. I keep thinking the shortness of

> breath is from that but this Hep C screws with everything else so who knows?

> My eyesight is getting bad at a rapid rate and the eye doc { who had Hep C

> and cleared it years ago } said it's the HC and nothing to be done. Yes the

> " go lightly " is about like their flavored liquid chalk " milk shakes " My

> stomach is rolling just thinking of it!...It definitely sounds like you've

> been ran through the wringer that's for sure ! I hope you get to feeling

> better and get good news...Best wishes~~~Debbie

>

>

> > >

> > >

> > > From: Bob Aragon <robwalkingeagle@ ...>

> > > Subject: Re:

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Date: Saturday, January 30, 2010, 6:31 PM

> > >

> > >

> > > ÂÂ

> > >

> > >

> > >

> > > Hi to all the newcomers. I am a moderator here. My experience is that

> films are highly subjective. My last CT scan shows an 18x12 mm subcapsular

> lesion in the right lobe of my liver and a hypodensity in the left lobe of

> my liver, my spleen went from mild to moderate in size again( on paper

> anyway), but the point I am making is that the film except for the lesions

> never changes. The lesions are new, but there is disagreement within the

> hepatology deps as to weather they are any thing to worry about or not. One

> doctor says follow up with another MRI in 3 months and my own hepatologist

> believes that a CT scheduled for spring will sufice. I think these films are

> very very hard to read, and some doctors see things that arent there, and

> others miss obvious things that are. I have a decidedly enlarged spleen,

> which measures around 16 cm, but the very first CT scan I ever had was read

> as completely normal. I often wonder how many tumors that particular doctor

> > > has missed which cost someone his or her life?...

> > > Sobering thought. Radiologist has got to be an unnerving job for sure.

> When you go in after a car crash and have a lacerated liver, the ct can

> pretty much show the doctor this, but cirrhosis, and other disease have

> really got to be maddening for them. Love, Bobby

> > >

> > > (saadn'leelt- da ya day- n'zho)

> > > long life, old age, everything good-Apache prayer

> > >

> > > ____________ _________ _________ __

> > > From: vickij777 <no_reply@yahoogrou p s.com>

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Sent: Sat, January 30, 2010 5:54:28 PM

> > > Subject:

> > >

> > > I'm new at this also and was wondering what kind of " tons of tests " are

> you undergoing? After a liver biopsy, they have done an MRI and am scheduled

> for an endoscopy in a couple weeks. I am not opposed to being preventative

> but don't really know when to say no. The liver biopsy showed " bordering on

> early cirrhosis " and the MRI showed " no signs of cirrhosis " . I believe they

> are treating me for cirrhosis but do I need to do all this so soon? They

> also told me I needed an MRI every six months to test for liver cancer.

> > >

> > >

[Guest guest]

OH my gosh....that  " Go Lightly "  is AWFUL!!! 

 

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

________________________________

To: livercirrhosissupport

Sent: Sat, January 30, 2010 10:49:34 PM

Subject: Re: debbie

 

I did have a distended stomach. They removed 5 liters of fluid from my abdomen

the end of Dec. Prior to that I had trouble breathing and could not walk much!

What a difference removing it made.

I did have bleeding that is why they put me in the hospital just before

Christmas for a week, My blood count was so low that I was literally running on

empty. they gave me 4 pints of blood, 2 of platelets and 2 of plasma. they did a

colonoscopy at the time. I would love to get the guy who named the liquid you

drink " Go lightly " -- he had a sick sense of humor!

I am tested out for sure! I am looking forward to a break from it all

PrismPom

Proudly Owned by BISS/BISA Starfire's Here Comes Trouble HOF, GC

Member American Pomeranian Club

From: drgonflyblue <pita54meyahoo (DOT) com>

Subject: Re: Bobby &

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Saturday, January 30, 2010, 8:11 PM

 

I sure hope you are feeling better. It sounds like we are experiencing

the same things. No matter what I eat it makes my stomach feel like it's full of

glass it hurts so bad. Now it hurts from my liver across my stomach into the

left side. Last weekend felt like my whole abdomen was going to EXPLODE. I

started to call 911 but then didn't want to feel like an idiot. I'm scheduled

for a CT scan on my abdomen and pelvis. What I had no idea of is that the pain

I'm having could even REMOTELY be from ascites or varices!!! I thought a

person's abdomen would have to be hugely distended and be vomiting blood if

there were varices...So this is new knowledge to me. My gastro is going to do

another endoscopy and colonoscopy in a month. He gave me REGLAN for the " acid

reflux " and I pretty much knew he was an idiot and after reading about the

Reglan it confirmed it. Can I ask what your doc gave you?...Best wishes~~~Debbie

BOBBY...I know you have a lot of liver pain constantly. Does it hurt across your

stomach into the left side??

>

>

> From: Bob Aragon <robwalkingeagle@ ...>

> Subject: Re:

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Date: Saturday, January 30, 2010, 6:31 PM

>

>

>  

>

>

>

> Hi to all the newcomers. I am a moderator here. My experience is that films

are highly subjective. My last CT scan shows an 18x12 mm subcapsular lesion in

the right lobe of my liver and a hypodensity in the left lobe of my liver, my

spleen went from mild to moderate in size again( on paper anyway), but the point

I am making is that the film except for the lesions never changes. The lesions

are new, but there is disagreement within the hepatology deps as to weather they

are any thing to worry about or not. One doctor says follow up with another MRI

in 3 months and my own hepatologist believes that a CT scheduled for spring will

sufice. I think these films are very very hard to read, and some doctors see

things that arent there, and others miss obvious things that are. I have a

decidedly enlarged spleen, which measures around 16 cm, but the very first CT

scan I ever had was read as completely normal. I often wonder how many tumors

that particular doctor

> has missed which cost someone his or her life?...

> Sobering thought. Radiologist has got to be an unnerving job for sure. When

you go in after a car crash and have a lacerated liver, the ct can pretty much

show the doctor this, but cirrhosis, and other disease have really got to be

maddening for them. Love, Bobby

>

> (saadn'leelt- da ya day- n'zho)

> long life, old age, everything good-Apache prayer

>

> ____________ _________ _________ __

> From: vickij777 <no_reply@yahoogrou p s.com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Sat, January 30, 2010 5:54:28 PM

> Subject:

>

> I'm new at this also and was wondering what kind of " tons of tests " are you

undergoing? After a liver biopsy, they have done an MRI and am scheduled for an

endoscopy in a couple weeks. I am not opposed to being preventative but don't

really know when to say no. The liver biopsy showed " bordering on early

cirrhosis " and the MRI showed " no signs of cirrhosis " . I believe they are

treating me for cirrhosis but do I need to do all this so soon? They also told

me I needed an MRI every six months to test for liver cancer.

>

>