Guest guest Posted February 3, 2010 Report Share Posted February 3, 2010 Debbie, I never did have alot of liver pain so I couldn't answer that one. I just have the occasional spasm. > I read earlier about an enlarged spleen and I think that's > definitely causing the pain in my left side right along with the > shoulder pain and I'm pretty sure I have an ulcer which I know they > can give medication for but does the asitities (sic) press on the > liver and make it hurt more?...Debbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Hi Debbie, Â Yes, it can. When my husband's ascites got really bad and before he began taking his diuretics, he would hold his hand over his liver and kind of push it a bit - most of the time without realizing he was doing it - because he was in pain. Â And yes, if you are having pains on your left side, chances are it is an enlarged spleen. My hsband has this as well. However, when his ascites is under control with his meds, he doesn't hurt but occasionally (both his spleen and liver...). Â Kerri --Independent legal, business, and medical transciptionist kerriaz@... Subject: Does the asities make your liver hurt more? To: livercirrhosissupport Date: Wednesday, February 3, 2010, 11:29 AM Â I read earlier about an enlarged spleen and I think that's definitely causing the pain in my left side right along with the shoulder pain and I'm pretty sure I have an ulcer which I know they can give medication for but does the asitities (sic) press on the liver and make it hurt more?...Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Thanks Kerri. From what I've read and from what everyone has said I do believe this is what's going on. I have trouble breathing as well and it always feels as if I've just eaten a huge meal when in fact about the only thing I can handle is a piece of toast. The trouble is trying to get the gastro that I see to do anything. I can't seem to make him understand how sick I feel. I think really that he wrote me off the very first time I saw him and told him that I'd never be doing tx. I hope your husband is feeling better. What meds are they giving him?...Debbie > > > > Subject: Does the asities make your liver hurt more? > To: livercirrhosissupport > Date: Wednesday, February 3, 2010, 11:29 AM > > > Â > > > > I read earlier about an enlarged spleen and I think that's definitely causing the pain in my left side right along with the shoulder pain and I'm pretty sure I have an ulcer which I know they can give medication for but does the asitities (sic) press on the liver and make it hurt more?...Debbie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Debbie,  You're welcome. Yes, that sounds exactly right. It truly is like being very pregnant with the ascites. The liquid pushes your organs around causing less room making it hard to breath and hard to eat more than just a little bit at a time. My husband went through all of this before he got on his meds. He takes 2 diuretics - Lasix (80 mg) and Aldactone (200 mg). How bloated are you? Are your feet and legs swollen? I say go make an appointment and just have him check you out. Is there any way you can get a new doctor? One that will help a bit more?  Kerri --Independent legal, business, and medical transciptionistkerriaz@... Subject: Re: Does the asities make your liver hurt more? To: livercirrhosissupport Date: Thursday, February 4, 2010, 10:30 AM  Thanks Kerri. From what I've read and from what everyone has said I do believe this is what's going on. I have trouble breathing as well and it always feels as if I've just eaten a huge meal when in fact about the only thing I can handle is a piece of toast. The trouble is trying to get the gastro that I see to do anything. I can't seem to make him understand how sick I feel. I think really that he wrote me off the very first time I saw him and told him that I'd never be doing tx. I hope your husband is feeling better. What meds are they giving him?...Debbie > > > From: drgonflyblue <pita54me@.. .> > Subject: Does the asities make your liver hurt more? > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Wednesday, February 3, 2010, 11:29 AM > > >  > > > > I read earlier about an enlarged spleen and I think that's definitely causing the pain in my left side right along with the shoulder pain and I'm pretty sure I have an ulcer which I know they can give medication for but does the asitities (sic) press on the liver and make it hurt more?...Debbie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Debbie, Your nutrition is sooooo important with this disease. Be sure your getting adequate nutrients....I'd be talking to your doctor about this too. Maybe try some of that Ensure? Don't mean to sound like your mother but I think part of the reason I blew up was also from malnutrition because I wasn't eating much. My appetite isn't that great some days but I know I have to eat something good for me plus I get really shaky if I don't. Keep fresh fruit around and be sure and take vitamins. Just a pot of soup is great when you can't eat much. I hope you get to feeling better soon and let us know what the doctor says. Roni > Thanks Kerri. From what I've read and from what everyone has said I > do believe this is what's going on. I have trouble breathing as well > and it always feels as if I've just eaten a huge meal when in fact > about the only thing I can handle is a piece of toast. The trouble > is trying to get the gastro that I see to do anything. I can't seem > to make him understand how sick I feel. I think really that he wrote > me off the very first time I saw him and told him that I'd never be > doing tx. I hope your husband is feeling better. What meds are they > giving him?...Debbie > > > > > > > > > > Subject: Does the asities make your > liver hurt more? > > To: livercirrhosissupport > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > Â > > > > > > > > I read earlier about an enlarged spleen and I think that's > definitely causing the pain in my left side right along with the > shoulder pain and I'm pretty sure I have an ulcer which I know they > can give medication for but does the asitities (sic) press on the > liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 I know Roni. I once read " let your food be your medicine and your medicine be your food " and I think that's true to a large extent. For the past month my appetite has just vanished and yet I don't lose any weight. The soup sounds good and in fact I found a liver healthy soup recipe the other day on WEBMD that I'm going to make. I got a break today for a change. In Florida there is some kind of program called Healthier Florida. Apparently it's funded by Medicaid insurance that I have and is for people who have serious , chronic illness. I received the packet today in the mail. They work with you in educating and advocating for you. There is a number where I can call and talk to a Registered Nurse 24/7 ! I called right after getting it and the nurse triaged me over the phone and told me to call my gastro and tell him that based on their decision that he should see me in his office within the next 3 hrs. and if not for me to call her back and they would make record of it and she would advise me from there. I called the gastro and his office tried to deny that I had called on Mon. & Wed. practically begging for help and that they said the doctor said he would ok the CT scan without having to drink the chalk but that he DIDN'T say that was all he could do for me. It was definitly not the truth and that's exactly what they told me. Ended up that he supposedly won't be back in the office till next Tues. but that if I felt that bad to go to the ER. It's not as bad as it's been so I'm going to hold out till tomorrow. I have to see my PCP each month to get my prescription of Xanax and that's all he's good for because he's almost a total idiot and doesn't have hospital priveledges ANYWHERE which to me speaks volumes about him in itself. Thanks for letting me ramble...Take care, Debbie > > > > > > > > > From: drgonflyblue <pita54me@> > > > Subject: Does the asities make your > > liver hurt more? > > > To: livercirrhosissupport > > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > > > > Â > > > > > > > > > > > > I read earlier about an enlarged spleen and I think that's > > definitely causing the pain in my left side right along with the > > shoulder pain and I'm pretty sure I have an ulcer which I know they > > can give medication for but does the asitities (sic) press on the > > liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Debbie, I just can't believe these doctors! I really like my PCP and my gastro.....last time I went I didn't have to pay my pcp because I was laid off and don't have insurance anymore. He gave me numbers to call to help with my labs....etc. I've applied for disability so I'm waiting to hear on that. I really hope you find some better doctors that care about you. Sometimes asking nurses for referals helps because they know the good ones. Roni > I know Roni. I once read " let your food be your medicine and your > medicine be your food " and I think that's true to a large extent. > For the past month my appetite has just vanished and yet I don't > lose any weight. The soup sounds good and in fact I found a liver > healthy soup recipe the other day on WEBMD that I'm going to make. I > got a break today for a change. In Florida there is some kind of > program called Healthier Florida. Apparently it's funded by Medicaid > insurance that I have and is for people who have serious , chronic > illness. I received the packet today in the mail. They work with you > in educating and advocating for you. There is a number where I can > call and talk to a Registered Nurse 24/7 ! I called right after > getting it and the nurse triaged me over the phone and told me to > call my gastro and tell him that based on their decision that he > should see me in his office within the next 3 hrs. and if not for me > to call her back and they would make record of it and she would > advise me from there. I called the gastro and his office tried to > deny that I had called on Mon. & Wed. practically begging for help > and that they said the doctor said he would ok the CT scan without > having to drink the chalk but that he DIDN'T say that was all he > could do for me. It was definitly not the truth and that's exactly > what they told me. Ended up that he supposedly won't be back in the > office till next Tues. but that if I felt that bad to go to the ER. > It's not as bad as it's been so I'm going to hold out till tomorrow. > I have to see my PCP each month to get my prescription of Xanax and > that's all he's good for because he's almost a total idiot and > doesn't have hospital priveledges ANYWHERE which to me speaks > volumes about him in itself. Thanks for letting me ramble...Take > care, Debbie > > > > > > > > > > > > > > From: drgonflyblue <pita54me@> > > > > Subject: Does the asities make your > > > liver hurt more? > > > > To: livercirrhosissupport > > > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > > > > > > > Â > > > > > > > > > > > > > > > > I read earlier about an enlarged spleen and I think that's > > > definitely causing the pain in my left side right along with the > > > shoulder pain and I'm pretty sure I have an ulcer which I know > they > > > can give medication for but does the asitities (sic) press on the > > > liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Debbie I asked my GP about 1-1/2 years ago when she thought I'd finally deliver this baby (my belly was soooo extended). However, I don't eat very much either and don't have ascites. You know, there is really no purpose to seeing a Gastro if you flatly refuse treatment. Your regular Dr. can read your blood work just as well as an expensive Gastro. There is very very little that the Gastro can do for you after refusing treatment. Gloria ________________________________ Thanks Kerri. From what I've read and from what everyone has said I do believe this is what's going on. I have trouble breathing as well and it always feels as if I've just eaten a huge meal when in fact about the only thing I can handle is a piece of toast. The trouble is trying to get the gastro that I see to do anything. I can't seem to make him understand how sick I feel. I think really that he wrote me off the very first time I saw him and told him that I'd never be doing tx. I hope your husband is feeling better. What meds are they giving him?...Debbie > > > From: drgonflyblue <pita54me@.. .> > Subject: Does the asities make your liver hurt more? > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Wednesday, February 3, 2010, 11:29 AM > > > Â > > > > I read earlier about an enlarged spleen and I think that's definitely causing the pain in my left side right along with the shoulder pain and I'm pretty sure I have an ulcer which I know they can give medication for but does the asitities (sic) press on the liver and make it hurt more?...Debbie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Roni I've heard of all these people that juice their veggies etc. and it looked like work to me. Then a gal friend was juicing when I was there for a couple of nights. I was able to see how extremely easy it really is!! Now with the cancer diagnosis, I'm planning to buy one tomorrow and get right into it.... With both veggies and fruit!! I had quit taking vitamins and supplements back when I did my first treatment, as I could stand the thought of any more pills. Still can't!! So, I'm sure hoping this juicing will make it a whole lot easier to get all those nutrients etc. right from the veggie. Gloria ________________________________ Debbie, Your nutrition is sooooo important with this disease. Be sure your getting adequate nutrients....I'd be talking to your doctor about this too. Maybe try some of that Ensure? Don't mean to sound like your mother but I think part of the reason I blew up was also from malnutrition because I wasn't eating much. My appetite isn't that great some days but I know I have to eat something good for me plus I get really shaky if I don't. Keep fresh fruit around and be sure and take vitamins. Just a pot of soup is great when you can't eat much. I hope you get to feeling better soon and let us know what the doctor says. Roni > Thanks Kerri. From what I've read and from what everyone has said I > do believe this is what's going on. I have trouble breathing as well > and it always feels as if I've just eaten a huge meal when in fact > about the only thing I can handle is a piece of toast. The trouble > is trying to get the gastro that I see to do anything. I can't seem > to make him understand how sick I feel. I think really that he wrote > me off the very first time I saw him and told him that I'd never be > doing tx. I hope your husband is feeling better. What meds are they > giving him?...Debbie > > > > > > > > > > Subject: Does the asities make your > liver hurt more? > > To: livercirrhosissupport > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > Â > > > > > > > > I read earlier about an enlarged spleen and I think that's > definitely causing the pain in my left side right along with the > shoulder pain and I'm pretty sure I have an ulcer which I know they > can give medication for but does the asitities (sic) press on the > liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Gloria, I'm sure that is much better for you than taking a vitamin! That's a good idea......I should do that too. Roni > Roni > > I've heard of all these people that juice their veggies etc. and it > looked like work to me. Then a gal friend was juicing when I was > there for a couple of nights. I was able to see how extremely easy > it really is!! > Now with the cancer diagnosis, I'm planning to buy one tomorrow and > get right into it.... With both veggies and fruit!! I had quit > taking vitamins and supplements back when I did my first treatment, > as I could stand the thought of any more pills. Still can't!! So, > I'm sure hoping this juicing will make it a whole lot easier to get > all those nutrients etc. right from the veggie. > > Gloria > > ________________________________ > > Debbie, > Your nutrition is sooooo important with this disease. Be sure your > getting adequate nutrients....I'd be talking to your doctor about this > too. Maybe try some of that Ensure? Don't mean to sound like your > mother but I think part of the reason I blew up was also from > malnutrition because I wasn't eating much. My appetite isn't that > great some days but I know I have to eat something good for me plus I > get really shaky if I don't. Keep fresh fruit around and be sure and > take vitamins. Just a pot of soup is great when you can't eat much. > I hope you get to feeling better soon and let us know what the doctor > says. > > Roni > > > > > Thanks Kerri. From what I've read and from what everyone has said I > > do believe this is what's going on. I have trouble breathing as well > > and it always feels as if I've just eaten a huge meal when in fact > > about the only thing I can handle is a piece of toast. The trouble > > is trying to get the gastro that I see to do anything. I can't seem > > to make him understand how sick I feel. I think really that he wrote > > me off the very first time I saw him and told him that I'd never be > > doing tx. I hope your husband is feeling better. What meds are they > > giving him?...Debbie > > > > > > > > > > > > > > > > Subject: Does the asities make your > > liver hurt more? > > > To: livercirrhosissupport > > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > > > > Â > > > > > > > > > > > > I read earlier about an enlarged spleen and I think that's > > definitely causing the pain in my left side right along with the > > shoulder pain and I'm pretty sure I have an ulcer which I know they > > can give medication for but does the asitities (sic) press on the > > liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Gloria, I strongly disagree with you about that. The gastroenterologist is there to treat and support the complications of Hep C regardless of whether a person is on tx or not. The gastro is there to educate me about what is good for my liver and what is not. He is there to treat the digestive problems that accompany the Hep C. He is the one who should have greater knowledge on what lab tests and procedures that can be done. He treats people with digestion trouble who don't have Hepatitis and who don't have cirrhosis so why should I be any different because I CHOOSE not to do treatment? CHOOSING not to do conventional tx that has too low a success rate to satisfy me and that has the capacity and almost the certainty of making me feel way worse than I already do and that has the ability to cause permanent health issues and tx for which there are reasons that don't make me a good candidate for tx shouldn't mean that I don't have the right to have as good of care as anyone else. I know that you didn't intend to be hurtful but that's how this felt.It's almost like the stigmitisim that Hep C sometimes carries...Thanks, Debbie > > > > > > From: drgonflyblue <pita54me@ .> > > Subject: Does the asities make your liver hurt more? > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > Â > > > > > > > > I read earlier about an enlarged spleen and I think that's definitely causing the pain in my left side right along with the shoulder pain and I'm pretty sure I have an ulcer which I know they can give medication for but does the asitities (sic) press on the liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Debbie I sincerely apologize for my words!!! As I reread them, I am truly embarrassed I said such a thing. You are absolutely right - I was judging something that I have no right whatsoever to judge. Please forgive me!! I had chosen treatment for my Hep C and can not honestly tell you of any permanent health issue from it. Then, of course, I have just finished the trial with the Telaprivir and it was looking as though I was getting out after 48 weeks as SVR and a new outlook on life. However, this second treatment was not any picnic in the park and not something that I would not wish to repeat any day soon. Then again, I have no idea yet of what plans are going to be put to me, regarding the Liver Cancer now. Gloria ________________________________ Gloria, I strongly disagree with you about that. The gastroenterologist is there to treat and support the complications of Hep C regardless of whether a person is on tx or not. The gastro is there to educate me about what is good for my liver and what is not. He is there to treat the digestive problems that accompany the Hep C. He is the one who should have greater knowledge on what lab tests and procedures that can be done. He treats people with digestion trouble who don't have Hepatitis and who don't have cirrhosis so why should I be any different because I CHOOSE not to do treatment? CHOOSING not to do conventional tx that has too low a success rate to satisfy me and that has the capacity and almost the certainty of making me feel way worse than I already do and that has the ability to cause permanent health issues and tx for which there are reasons that don't make me a good candidate for tx shouldn't mean that I don't have the right to have as good of care as anyone else. I know that you didn't intend to be hurtful but that's how this felt.It's almost like the stigmitisim that Hep C sometimes carries...Thanks, Debbie > > > > > > From: drgonflyblue <pita54me@ .> > > Subject: Does the asities make your liver hurt more? > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > Â > > > > > > > > I read earlier about an enlarged spleen and I think that's definitely causing the pain in my left side right along with the shoulder pain and I'm pretty sure I have an ulcer which I know they can give medication for but does the asitities (sic) press on the liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2010 Report Share Posted February 7, 2010 Gloria, I'm the one that's truely sorry that I even admitted that I was hurt. I know you would in no way intentionally hurt anyone's feelings so I'm sorry that I ended up making you feel bad. I'm either angry or crying. I know I read that you and someone else in the group said that they don't know who they are anymore. I feel the same way. We none of us know what is in store for us. You are a fighter and I think you're gonna kick this cancer just like you kicked the Dragon !...Best wishes, Debbie > > > > > > > > > From: drgonflyblue <pita54me@ .> > > > Subject: Does the asities make your liver hurt more? > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > > > > Â > > > > > > > > > > > > I read earlier about an enlarged spleen and I think that's definitely causing the pain in my left side right along with the shoulder pain and I'm pretty sure I have an ulcer which I know they can give medication for but does the asitities (sic) press on the liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Debbie Please - do not give this any more thought, except be there for me at those times when I'm either angry, crying or just plain old sick and tired. I sure don't get very much of that out in the real world and so wouldn't want to ever offend anyone in these rooms; because you are all my life lines. Gloria ________________________________ Gloria, I'm the one that's truely sorry that I even admitted that I was hurt. I know you would in no way intentionally hurt anyone's feelings so I'm sorry that I ended up making you feel bad. I'm either angry or crying. I know I read that you and someone else in the group said that they don't know who they are anymore. I feel the same way. We none of us know what is in store for us. You are a fighter and I think you're gonna kick this cancer just like you kicked the Dragon !...Best wishes, Debbie > > > > > > > > > From: drgonflyblue <pita54me@ .> > > > Subject: Does the asities make your liver hurt more? > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Date: Wednesday, February 3, 2010, 11:29 AM > > > > > > > > > Â > > > > > > > > > > > > I read earlier about an enlarged spleen and I think that's definitely causing the pain in my left side right along with the shoulder pain and I'm pretty sure I have an ulcer which I know they can give medication for but does the asitities (sic) press on the liver and make it hurt more?...Debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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