Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Wow... all these families here in LA county all of the sudden! My son was born in Redondo Beach...but we moved up to Lancaster about 9 years ago. You're email doesn't sound like rant at all to me... just sounds like a dad coming to terms with all the craziness that's been going on around him!! Look forward to getting to know you all better.... ~ANGEL~ Mom to 13, Mosaic Down Syndrome/Hirschsprung's Disease Lance 18, Tyler 14, 11 Jaeda 10 and Shayne 4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hi Thank you so much for sharing your family pictures with us! Logan is such a beautiful baby boy! I have to say that I also enjoyed looking at your vacation photos. We went to the Grand Canyon last year and we didn't capture the beauty the way that you did in these pictures. I can only imagine how difficult it was to get the diagnosis and n's pregnancy news on the same day. It is hard to get the diagnosis at first, and then to get the news of a new baby...I am sure you and n had so many mixed emotions you didn't know where to turn! From hearing your words here and seeing your family pictures I have to say that you are an awesome dad! Logan is so lucky to have you and n as parents! I know that he (and the new baby) will become wonderful people because of the way they will be raised by you and n! Remember that it is ok to ask questions along the road of Logan's life. You may wonder if something he is doing is " typical " or you may just have one of those days where you really wish he didn't have MDS. And, that is ok! That is why we have this family here! Because I think we have all felt that way at one time or another. I know I have. Please keep us updated and let us know when the new baby comes! When is he/she due?? Kristy Lee wrote: Hi all, It's been about a couple of weeks or so since we joined this group. I've been lurking around for that time being, trying to gather information and to make sense of everything that's been happening to us the past few weeks (we found out about Logan's MDS, and n's pregnancy the same day). After going through a rainbow of emotions, we've decided that we have all the answers we need, which is NONE. The same as any other couple would have about their babies, MDS or no MDS. Obviously we're still getting lab results for the usual tests performed for children with MDS, and I've settled with just knowing those answers. Everything else I will leave it to Logan to decide. As you can tell for what I've written so far, I've already made peace with myself. Since it seems that Logan wasn't the one with a problem, but me. He's an unusually happy baby and I won't take that away from him just to satisfy my paternal selfishness. I do forsee some challenges that other parents won't go through, so I see that we can get that lacking support from this group I feel like this posting feels more like a rant than anything else, but I needed to let it our of my chest. I'd also like to share our family pictures (mostly Logan's): http://www.netlee.com Thank you all for the support, and for being a great inspiration. , n & Logan Lee (17 mos. MDS) Redondo Beach, CA --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Kristy, Thank you for your kind words. Little Anne Marie (we're hoping for a girl ) is due in mid March next year. The Lee Family Kristy Colvin wrote: Hi Thank you so much for sharing your family pictures with us! Logan is such a beautiful baby boy! I have to say that I also enjoyed looking at your vacation photos. We went to the Grand Canyon last year and we didn't capture the beauty the way that you did in these pictures. I can only imagine how difficult it was to get the diagnosis and n's pregnancy news on the same day. It is hard to get the diagnosis at first, and then to get the news of a new baby...I am sure you and n had so many mixed emotions you didn't know where to turn! From hearing your words here and seeing your family pictures I have to say that you are an awesome dad! Logan is so lucky to have you and n as parents! I know that he (and the new baby) will become wonderful people because of the way they will be raised by you and n! Remember that it is ok to ask questions along the road of Logan's life. You may wonder if something he is doing is " typical " or you may just have one of those days where you really wish he didn't have MDS. And, that is ok! That is why we have this family here! Because I think we have all felt that way at one time or another. I know I have. Please keep us updated and let us know when the new baby comes! When is he/she due?? Kristy Lee wrote: Hi all, It's been about a couple of weeks or so since we joined this group. I've been lurking around for that time being, trying to gather information and to make sense of everything that's been happening to us the past few weeks (we found out about Logan's MDS, and n's pregnancy the same day). After going through a rainbow of emotions, we've decided that we have all the answers we need, which is NONE. The same as any other couple would have about their babies, MDS or no MDS. Obviously we're still getting lab results for the usual tests performed for children with MDS, and I've settled with just knowing those answers. Everything else I will leave it to Logan to decide. As you can tell for what I've written so far, I've already made peace with myself. Since it seems that Logan wasn't the one with a problem, but me. He's an unusually happy baby and I won't take that away from him just to satisfy my paternal selfishness. I do forsee some challenges that other parents won't go through, so I see that we can get that lacking support from this group I feel like this posting feels more like a rant than anything else, but I needed to let it our of my chest. I'd also like to share our family pictures (mostly Logan's): http://www.netlee.com Thank you all for the support, and for being a great inspiration. , n & Logan Lee (17 mos. MDS) Redondo Beach, CA --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 I love the name Anne Marie! I hope you get your girl so you can use the name! Kristy Lee wrote: Kristy, Thank you for your kind words. Little Anne Marie (we're hoping for a girl ) is due in mid March next year. The Lee Family Kristy Colvin wrote: Hi Thank you so much for sharing your family pictures with us! Logan is such a beautiful baby boy! I have to say that I also enjoyed looking at your vacation photos. We went to the Grand Canyon last year and we didn't capture the beauty the way that you did in these pictures. I can only imagine how difficult it was to get the diagnosis and n's pregnancy news on the same day. It is hard to get the diagnosis at first, and then to get the news of a new baby...I am sure you and n had so many mixed emotions you didn't know where to turn! From hearing your words here and seeing your family pictures I have to say that you are an awesome dad! Logan is so lucky to have you and n as parents! I know that he (and the new baby) will become wonderful people because of the way they will be raised by you and n! Remember that it is ok to ask questions along the road of Logan's life. You may wonder if something he is doing is " typical " or you may just have one of those days where you really wish he didn't have MDS. And, that is ok! That is why we have this family here! Because I think we have all felt that way at one time or another. I know I have. Please keep us updated and let us know when the new baby comes! When is he/she due?? Kristy Lee wrote: Hi all, It's been about a couple of weeks or so since we joined this group. I've been lurking around for that time being, trying to gather information and to make sense of everything that's been happening to us the past few weeks (we found out about Logan's MDS, and n's pregnancy the same day). After going through a rainbow of emotions, we've decided that we have all the answers we need, which is NONE. The same as any other couple would have about their babies, MDS or no MDS. Obviously we're still getting lab results for the usual tests performed for children with MDS, and I've settled with just knowing those answers. Everything else I will leave it to Logan to decide. As you can tell for what I've written so far, I've already made peace with myself. Since it seems that Logan wasn't the one with a problem, but me. He's an unusually happy baby and I won't take that away from him just to satisfy my paternal selfishness. I do forsee some challenges that other parents won't go through, so I see that we can get that lacking support from this group I feel like this posting feels more like a rant than anything else, but I needed to let it our of my chest. I'd also like to share our family pictures (mostly Logan's): http://www.netlee.com Thank you all for the support, and for being a great inspiration. , n & Logan Lee (17 mos. MDS) Redondo Beach, CA --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Good morning, I was wondering how I can share photos on the list too? Do I add them to my emails or to the website? Thanks a bunch Patty -- Kristy Colvin wrote: Hi Thank you so much for sharing your family pictures with us! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 We are getting alot of families in the SoCal region finally!! We're from Riverside but my brother-in-law lives in Redondo Beach. Welcome to the group! Krysten mom to 23 months (mds) and 3-1/2 Logan Hi all, It's been about a couple of weeks or so since we joined this group. I've been lurking around for that time being, trying to gather information and to make sense of everything that's been happening to us the past few weeks (we found out about Logan's MDS, and n's pregnancy the same day). After going through a rainbow of emotions, we've decided that we have all the answers we need, which is NONE. The same as any other couple would have about their babies, MDS or no MDS. Obviously we're still getting lab results for the usual tests performed for children with MDS, and I've settled with just knowing those answers. Everything else I will leave it to Logan to decide. As you can tell for what I've written so far, I've already made peace with myself. Since it seems that Logan wasn't the one with a problem, but me. He's an unusually happy baby and I won't take that away from him just to satisfy my paternal selfishness. I do forsee some challenges that other parents won't go through, so I see that we can get that lacking support from this group I feel like this posting feels more like a rant than anything else, but I needed to let it our of my chest. I'd also like to share our family pictures (mostly Logan's): http://www.netlee. <http://www.netlee.com> com Thank you all for the support, and for being a great inspiration. , n & Logan Lee (17 mos. MDS) Redondo Beach, CA --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 , i think I can speak for my husband (who reads our posts but doesn't chat) that it is harder for dads in a way. Moms just pick up the pieces and forge ahead full steam and as women, we're so good at building relationships and seeking help. But it's harder for dads, especially dads of sons. So I'll tell you what I tell my hubby: just breathe. one day at a time. Play with your son, get involved, meet other dads, meet kids with MDS that are older and have " worked out the bugs " Take time to be angry and grieve, support your wife, focus on your family's immediate needs, even if that means sacrificing a few other things for the here and now with the promise to yourself that you'll get back to it later. Cherish the special, small moments and precious little things. Give yourself room to be imperfect. I wish you the best as you embark on both an exciting (the pregnancy) and challenging (the MDS diagnosis) time in your family's life. Jennie Jessie (6), (5 - MDS?), Maren (2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 Hi! Welcome to the group. I have a 4 year old daughter with MDS. I have to say that your little boy Logan is SOOO cute! Adorable. Logan is a great name! Congrats on the new baby on the way, hope you get your girl! Thanks for sharing your pictures! You did not rant. It is many emotions you go thru.... sometimes all in one day. (smile) I am thankful for this group. It helps to know that everyone here can understand. My daughter has a speech delay which we have been working on pretty much all along. She has always been ahead physically. (We believe she was a stunt woman in another life!) Nothing she says is taken for granted and we enjoy her successes with such joy with her. We are better parents and people because she came into our lives. I feel she has already taught me more than I have taught her. Your son is very blessed to have a Daddy that is reaching out. You and your wife will be so enriched by him and your new baby too, whether it's a girl:) or a boy:). Donna:) ********************************************************************* > > Hi all, > > It's been about a couple of weeks or so since we joined this group. I've been lurking around for that time being, trying to gather information and to make sense of everything that's been happening to us the past few weeks (we found out about Logan's MDS, and n's pregnancy the same day). > > After going through a rainbow of emotions, we've decided that we have all the answers we need, which is NONE. The same as any other couple would have about their babies, MDS or no MDS. > > Obviously we're still getting lab results for the usual tests performed for children with MDS, and I've settled with just knowing those answers. Everything else I will leave it to Logan to decide. > > As you can tell for what I've written so far, I've already made peace with myself. Since it seems that Logan wasn't the one with a problem, but me. He's an unusually happy baby and I won't take that away from him just to satisfy my paternal selfishness. > > I do forsee some challenges that other parents won't go through, so I see that we can get that lacking support from this group > > I feel like this posting feels more like a rant than anything else, but I needed to let it our of my chest. > > I'd also like to share our family pictures (mostly Logan's): > http://www.netlee.com > > Thank you all for the support, and for being a great inspiration. > > , n & Logan Lee (17 mos. MDS) > Redondo Beach, CA > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
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