Re: Carl/KC: toxin role in CFS

[Guest guest]

Jane Ann,

First let me start off by stating that I am not a doctor, I have

spoken to many and this is some of their opinions. No, it won't. I

have heard of very few cases where they have recovered to a point of

living a normal life. I would say in the 90% range. There are many

organs involved or easier said full body, we can lessen our toxic

load by several means of detoxification and avoidance, but will

always stay sensitized. If we can overcome the sensitization this

would help tremendously. From what I have been told mycotoxin

exposure is immediately affecting even new cells, how do we stop

this process. My opinion, first and foremost is try to remove these

toxins with the CSM, but there has to be other means. This is only

part of the solution. These others in my opinion is oxygen

treatment, diet, saunas, whirlpools, vitamins, continuing the full

course of your doctors treatment. What makes this so difficult and

we've heard it a thousand times, what works for one may not work for

another. For what reason, it's hard to say. Your exposure, the

length of time you were exposed, levels of mycotoxins, which kind,

age, sex, previous condition of your immune system, your genotype,

organ damage, all play a factor. To add to the puzzle, other toxins

that we have possibly been exposed to: bacteria, pesticides and

other chemicals and other natural toxins.

There really is no single, simple answer. Either which way it's life

altering. I just wish our standard physicians would realize this.

KC

environental toxins overload

> <http://www.immunesupport.com/library/cfstreatment.cfm/ID/3404>

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[Guest guest]

KC: It is as I thought--sauna, etc. will not restore. The damage has been done.

I can not take CSM due to other meds so I am left with oxygen, diet,

supplements, etc. I am also considering IVIG. I think the xolair is finally

helping as I said in an earlier post. I firmly believe the biotechs will come

up with something someday for us and I suspect it will be an off label use for a

cure for something so drastic as AIDS. Note: Xolair is supposed to help with

aspergillus lung conditions but I believe that is an off label use for it, My

doctor took part in the trials so I trusted him to do the right thing for me.

He told my insurance company that I needed xolair on an emergency basis and it

helped me to get approval because they had never seen that before. Thank you.

Maybe if I start to feel better, I can contribute more to this board and in a

positive way. Jane Ann

tigerpaw2c <tigerpaw2c@...> wrote: Jane Ann,

First let me start off by stating that I am not a doctor, I have

spoken to many and this is some of their opinions. No, it won't. I

have heard of very few cases where they have recovered to a point of

living a normal life. I would say in the 90% range. There are many

organs involved or easier said full body, we can lessen our toxic

load by several means of detoxification and avoidance, but will

always stay sensitized. If we can overcome the sensitization this

would help tremendously. From what I have been told mycotoxin

exposure is immediately affecting even new cells, how do we stop

this process. My opinion, first and foremost is try to remove these

toxins with the CSM, but there has to be other means. This is only

part of the solution. These others in my opinion is oxygen

treatment, diet, saunas, whirlpools, vitamins, continuing the full

course of your doctors treatment. What makes this so difficult and

we've heard it a thousand times, what works for one may not work for

another. For what reason, it's hard to say. Your exposure, the

length of time you were exposed, levels of mycotoxins, which kind,

age, sex, previous condition of your immune system, your genotype,

organ damage, all play a factor. To add to the puzzle, other toxins

that we have possibly been exposed to: bacteria, pesticides and

other chemicals and other natural toxins.

There really is no single, simple answer. Either which way it's life

altering. I just wish our standard physicians would realize this.

KC

environental toxins overload

> <http://www.immunesupport.com/library/cfstreatment.cfm/ID/3404>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Jane,

I'll second and third eveything KC said. I don't know if it is

cellular (as in permanant?) but it certainly affects my functioning

(less often but still there).

My personal experience is that even though I've " recovered "

significantly from 24 years ago and lead a very active and demanding

life, I am still sensitive to the same chemicals as before. And I

have other limits as well. What's the difference between then and

now?

I'm not positive about all of it (hormonal changes with aging is

part) but what I do know is I needed years and years (10-12 at least)

to learn what to avoid and attempting total avoidance but being

satisfied with a reasonable reduction. But at the same time allowing

small, manageable challenges. It took 10+ years before I could work

full-time again. But it had to be according to my erratic schedule as

dictated by my body. I couldn't work on demand as is required when

working for someone else. It had to be my own time. I'm still

challanged by that and usually schedule my day so I don't have

demands during the more problematic times and have blocks scheduled

for rest and recovery.

That's one of the keys for me. When the problematic times were all

but half a day a month - if I was lucky - I couldn't function. Now

the problematic times are a few hours a couple times a month.

I'd compare my experience to the past this way: It now takes a higher

exposure over a longer period of time but it doesn't affect me as

severely and my body recovers faster. That's an improvement, a major

one, but is definitely not a cure. If I went back to allowing all the

old exposures all the time I'm certain I'd be right back to where I

was 20+ years ago.

Carl Grimes

Healthy Habitats LLC

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> To Carl and KC--If there is actual cellular damage involved with toxic

exposures, just getting away from the toxin and detoxing won't cure the

condition, will it? What do you guys think? Jane Ann

>

[Guest guest]

Carl,

How did you survive during that time?

I mean prevent yourself from becoming homeless, etc. (Because you couldn't

work.)