Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Jennie I am so sorry that you are having such a time with the school! I have been in your shoes when all they heard was Down syndrome and didn't " hear " mosaic. In first grade Tim was evaluated by our Special Education diagnostition. After the evaluation, she told me that Tim had OUTGROWN his Down syndrome!!!!!! Some people just don't listen at all! LOL We have several papers on our site that may help you to print out. The IQ score is noted as 12 points higher (although that is a mean number. My son's IQ is 110 so you can never say for sure that the average is always the case) Here are some links that may help you. This paper talks about the IQ, development, and explains what MDS is. http://www.imdsa.com/Mosaic_Down_Syndrome_Len_Leshin.pdf This is the MDS study done by VCU. In order to get the complete book you have to call them to request it. I will say that I think they are out of books at this time, so you can call to request one, but don't hold your breath waiting for it. http://www.imdsa.com/VCU.htm These are general facts on MDS. It does talk about development and delays http://www.imdsa.com/Mosaic_Down_Syndrome_Facts.pdf Here is the link to our brochure. http://www.imdsa.com/IMDSA_Brochure.pdf Jennie wrote: I think I remember reading somewhere or hearing about it on this chat board, that MDS children have an average IQ score that is 20 points higher than DS children. Is that true? Can anyone direct me to a site or book for research proof? I'm supposed to be meeting with the assistant principal at 's school (after a frustrated phone call to the board of education superintendent yesterday afternoon). The Assistant Superintendent is also telling me (as did the special ed lead teacher) that 's IQ is too high for DS and I keep telling them, " it's MDS " but that seems to escape them or something. So if I can meet the assistant principal with some research/proof/hard evidence that can have MDS and a higher IQ and still need assistance in the classroom, it would be better than just saying, " well, the people on imdsa said... or I think I read it somewhere... " Meanwhile, 's neuropsychologist who did his testing (which the school is telling me is insufficient) is going to the school tomorrow and has promised she will address my sons's case with the school psychologist to " straighten this mess out " Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 well.... my only girl is 10 too, so we haven't reached that milestone yet...but I was 12 when I started mine. I hear many girls are starting younger and younger these days though... but, I guess that's no indication of when our girls might start!! hmph... I got my daughter a book on puberty, by, I think its called, " American Girl " ....they have all kinds of neat girl stuff...books on self esteem, puberty, just plain girly stuff like journals, etc...and I think they even have a magazine you could subscribe to... The book on puberty I got my daughter...it's written for kids....so, all cartoony, and the language is easier for them to understand... not a long drawn out book of paragraphs type of book. I think they have a website.... Angel mom to ...who has turned 14 now!!!! :::gulp::: MDS/HD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 In a message dated 1/30/2007 2:00:01 P.M. Mountain Standard Time, Caregar@... writes: We've read the American Girl book, " The Care and Keeping of You. " It is well illustrated, easy for her to understand, and it covers a lot. Thank you Sue....that's exactly the book I meant!! Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Hi, My got her first period shortly after she turned 12. She's handled it well, except that every time she gets it, she asks if the baby is in her uterus yet. I always tell her no, that women don't usually have babies until they are in their 30's (like me) and that some women decide not to have babies at all. I figure we can leave it like that for now. We've read the American Girl book, " The Care and Keeping of You. " It is well illustrated, easy for her to understand, and it covers a lot. The hardest thing for us has been her severe PMS mood swings on top of her other behavior challenges. Sue (Norah 18, 13 mds & adhd) Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 I am finding that she is starting the mood swings now which gives me the indication that her period might follow. Did start mood swings a while before she got her period? I found the book on Amazon and it's only $10 so I think I'll start with that since I've heard two good stories. I did ask her special ed teacher but she has two boys. = ) Oh, the joys of motherhood! = ) Thanks for the title of the book. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Katy was about 13 when she started hers. She had severe cramping the first few times and it was very heavy. I took her to my GYN dr. and they did an ultra sound only just to make sure everything looked good and then he put her on Progesterone and that seemed to help lighten up her period. I told me I could consider the pill, but I didn't want to do anything unless absolutely necessary. Anyway, after only about 3 months on the progesterone, her next period seemed normal and she was fine after that. She handles it just fine and is able to change her pad independently. One day when we were shopping my stomach was cramping because of something I had eaten - we had just gotten in the van, and I said, " Oh, my stomach is cramping " . Katy looked right at me and said, " Mom, do you need a tampon? " I fell out laughing - it seemed so funny coming from her and she doesn't even know what a tampon is. She had picked up that line from " Miss Congeniality II " - the Bullock movie. Charlotte Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 That was classic! Kids are great! I know another DS child that was put on the depo shot to stop her periods because she wasn't handling the responsibility. She gained a lot of weight with that so they stopped. I was also wondering, did you show her the use of a pad before she got her period? I'm not sure if I want to, but I am pregnant, due in May. I figured after the baby comes and I have to use pads, I might show her what they are for and how to change them. Not sure if that is something that would work or not. Any suggestions? Bobbie Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 In addition to MDS has a mood disorder so mood swings have always been an issue. However, I did notice an increase in the severity about 9 months before she got her first period. She doesn't get them regularly yet, but I can always tell when it's coming. good luck, Sue (Norah 18, 13 mds & adhd) Re: I am finding that she is starting the mood swings now which gives me the indication that her period might follow. Did start mood swings a while before she got her period? I found the book on Amazon and it's only $10 so I think I'll start with that since I've heard two good stories. I did ask her special ed teacher but she has two boys. = ) Oh, the joys of motherhood! = ) Thanks for the title of the book. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 In a message dated 1/30/2007 5:31:08 P.M. Eastern Standard Time, bmayfield@... writes: I was also wondering, did you show her the use of a pad before she got her period? I'm not sure if I want to, but I am pregnant, due in May. I figured after the baby comes and I have to use pads, I might show her what they are for and how to change them. Not sure if that is something that would work or not. Any suggestions? Bobbie Bobbie: My daughter got her period when she was 11 yrs old, about 3 months before she turned 12. I had shown her pads and how to use them long before she ever got her period, this way it wasn't something totally new to her. She handled it just fine. In fact, this past summer she learned how to use a very small tampon for swimming in the pool, although she doesn't like to use them all the time. Her periods were very irregular for the first 9 or 10 months, getting 2 in a month or skipping months and they seem to last a long time. After about a year it did regulate itself. I give her motrin for cramps and she doesn't seem to have any problems. If you haven't already, I would definitely start talking to her about it, in very simple terms, that way when it happens it won't scare her. For some reason, couldn't wait to get her period. Now that she has it, I think she is less than thrilled! Good luck. ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 I have had the same questions about Mahrya who is also 10 right now. So far she is not showing sins of developing, and her sister was 13. I am hoping it holds off till we get the bed wetting issue resolved! Thanks for bring the topic up Bobbie! Luanne Bobbie Mayfield wrote: I am finding that she is starting the mood swings now which gives me the indication that her period might follow. Did start mood swings a while before she got her period? I found the book on Amazon and it's only $10 so I think I'll start with that since I've heard two good stories. I did ask her special ed teacher but she has two boys. = ) Oh, the joys of motherhood! = ) Thanks for the title of the book. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Shyanna recently stopped wearing pull ups at night time. I would say after the first of the year we decided when she sleeps in her bed (since it has a cover) she won't wear a pull up. If she sleeps on the couch or at someone else's house, she will wear one. So far she hasn't had any accidents. We limit the amount of liquids she has after supper time, and make sure she goes potty before bed. She potty trained when she was 5 because her sister was. Now we have another baby coming in May and I told her I don't want to buy pulls and diapers if I don't have to. I guess must have given her the initiative to work hard at it. She'll be 11 in April so I'm hoping she won't have any accidents and be good to go! I did have the same thought though about getting the bed wetting resolved before the periods come. I was in fifth grade when I got mine, if Shyanna wouldn't have done two years of kindergarten, she would be in fifth grade now. Bobbie Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 I did not show her the use of the pad before hand. Not sure if it would have made a difference. I was hoping that because she delayed in everything else, maybe her period would also be delayed. NOT! One doctor had said that when they start to get hair under their arms, that is when their periods usually start. Well, Katy had no hair under her arms and still doesn't. At least we won't ever have to worry about shaving under her arms. However, I think that hair is growing around her ankles - it seems that hair around her ankle area is darker and the rest of the hair on her legs is blonde. Odd. I did tell her when it happened that it was something personal and that she shouldn't talk about it at school or to other people. She did great with that and hasn't brought it up in public. Charlotte Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 I'm not sure if Shyanna will be that good about keeping it a secret. She is starting to get pubic hair and has been itching it. I tell her not to do that because it's not polite. Last weekend my cousin and her son were over and she had to show Zach her bra. She pulled her shirt down and said, " See! " I told her that is private and she shouldn't show boys or anyone else her private parts. I haven't heard of her showing anyone at school. I'm hoping that the period holds off though. Thanks for the conversation. Bobbie Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 We've done the limiting drinks thing, and the making sure she goes right before bed, all to no avail, I think she has only had like one or two dry nights in her life....but we have not tried going without the pull up, she knows she has that security, and I am not a huge laundry fan either. Maybe when the weather gets warmer again I will brave the trying without pull ups. Mahrya will be 11 in Oct. and so far the Dr. just says give her more time.... Luanne Bobbie Mayfield wrote: Shyanna recently stopped wearing pull ups at night time. I would say after the first of the year we decided when she sleeps in her bed (since it has a cover) she won't wear a pull up. If she sleeps on the couch or at someone else's house, she will wear one. So far she hasn't had any accidents. We limit the amount of liquids she has after supper time, and make sure she goes potty before bed. She potty trained when she was 5 because her sister was. Now we have another baby coming in May and I told her I don't want to buy pulls and diapers if I don't have to. I guess must have given her the initiative to work hard at it. She'll be 11 in April so I'm hoping she won't have any accidents and be good to go! I did have the same thought though about getting the bed wetting resolved before the periods come. I was in fifth grade when I got mine, if Shyanna wouldn't have done two years of kindergarten, she would be in fifth grade now. Bobbie Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 I know we tried it a few months before this time around. She had an accident every other night, so I hear ya about the laundry! Also, one night she woke up and walked halfway down the stairs, must have forgot what she was doing, and peed all over our carpeted steps. That was a mess. I quit after that for a few months and now we're back at it. I guess once it gets warm, you could do a trial to see if it will be worth it, if not, just give it a couple months and try again. Just out of curiosity, does she have accidents throughout the day? I would say Shyanna has either a wet or bowel accident about every 3 months, nothing regular. The bowel accidents are just minor, almost as if she's on her way but can't wait. Bobbie Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Shyanna sounds a lot like Mahrya. Mahrya does have an accident every few months, not usually bowel. She did have a problem with a urinary tract infection and that caused a few accidents. After she was on the antibiotic it cleared up. Sometimes Mahrya will wait too long if she is playing outside and not make it in, so I try and remind her to go right before she goes outside. I think she gets so engrossed in her play that she blocks out early feelings of needing to go...either that or she just doesn't want to stop playing... It is nice to hear you are having success, it makes me hopeful that we will too. Luanne Bobbie Mayfield wrote: I know we tried it a few months before this time around. She had an accident every other night, so I hear ya about the laundry! Also, one night she woke up and walked halfway down the stairs, must have forgot what she was doing, and peed all over our carpeted steps. That was a mess. I quit after that for a few months and now we're back at it. I guess once it gets warm, you could do a trial to see if it will be worth it, if not, just give it a couple months and try again. Just out of curiosity, does she have accidents throughout the day? I would say Shyanna has either a wet or bowel accident about every 3 months, nothing regular. The bowel accidents are just minor, almost as if she's on her way but can't wait. Bobbie Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 We never practiced with the pads, but did see them and knew what they would be for. Of course, once she got her period, she thought the pads should be hers to play with. On the way home from camp last year she emptied her duffle and plastered pads all over her doll. Also, at first, we did have to explain to her that pads were not pull-ups (which she had just finished with two months before she got her period.) She would have accidents and think if was okay because she had a pad on. She doesn't do that anymore. Sue Re: I did not show her the use of the pad before hand. Not sure if it would have made a difference. I was hoping that because she delayed in everything else, maybe her period would also be delayed. NOT! One doctor had said that when they start to get hair under their arms, that is when their periods usually start. Well, Katy had no hair under her arms and still doesn't. At least we won't ever have to worry about shaving under her arms. However, I think that hair is growing around her ankles - it seems that hair around her ankle area is darker and the rest of the hair on her legs is blonde. Odd. I did tell her when it happened that it was something personal and that she shouldn't talk about it at school or to other people. She did great with that and hasn't brought it up in public. Charlotte Good Afternoon: I am looking for some advice on puberty. My daughter is 10 and is starting to develop and was wondering if anyone has any suggestions for good books to read associated with the subject? I was also wondering what the average age your daughters got their periods for the first time. I know a girl with DS in Shyanna's dance class got hers last year and she was 12. At this point, I'm not sure how Shyanna will deal with the responsibilty. Any advice would be appreciated. Bobbie, mom to Shyanna (10-mds) and Shayla (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Karlee is certainly not to the puberty point, but I have a friend (locally) who has a daughter with ds and she recently started her period. She is doing well, but she read the AMERICAN GIRL BOOK, THE KEEPING OF YOU, its a book about your body and how to take care of it when it changes. She loved it and said it was truly on point. She did say that her period has been extremely light, so she just puts two pantiliners in each pocket and she changes them herself throughout the day and does a great job with it. So, that's all the puberty knowledge I have. Beets Re: well.... my only girl is 10 too, so we haven't reached that milestone yet...but I was 12 when I started mine. I hear many girls are starting younger and younger these days though... but, I guess that's no indication of when our girls might start!! hmph... I got my daughter a book on puberty, by, I think its called, " American Girl " ....they have all kinds of neat girl stuff...books on self esteem, puberty, just plain girly stuff like journals, etc...and I think they even have a magazine you could subscribe to... The book on puberty I got my daughter...it's written for kids....so, all cartoony, and the language is easier for them to understand... not a long drawn out book of paragraphs type of book. I think they have a website.... Angel mom to ...who has turned 14 now!!!! :::gulp::: MDS/HD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 Thanks! This is the first real subject that I've needed advice on since I've joined. I wish I would've been in the group since it started. Thanks for all the advice everyone! Sounds like the book is a must. Bobbie Re: well.... my only girl is 10 too, so we haven't reached that milestone yet...but I was 12 when I started mine. I hear many girls are starting younger and younger these days though... but, I guess that's no indication of when our girls might start!! hmph... I got my daughter a book on puberty, by, I think its called, " American Girl " ....they have all kinds of neat girl stuff...books on self esteem, puberty, just plain girly stuff like journals, etc...and I think they even have a magazine you could subscribe to... The book on puberty I got my daughter...it's written for kids....so, all cartoony, and the language is easier for them to understand... not a long drawn out book of paragraphs type of book. I think they have a website.... Angel mom to ...who has turned 14 now!!!! :::gulp::: MDS/HD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Hi Bobbie Enjoy your maternity leave while you can! Go to: http://health.groups.yahoo.com/group/MosaicDS/ Then, at the top, under your screen name where it says " Welcome " you will see a link that says " My Account " Click that and there is where you can change your email for the group. When is the baby due to arrive? Kristy Bobbie Mayfield wrote: Good Morning Kristy: Today is my last day of work, I finally get to start my maternity leave. I was wondering how I go about changing the email address that these emails are sent to. Thanks! Bobbie Mayfield Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 Maureen, I'm so sorry about your husband! It sounds like you're being strong for your boys...they seem to have such a hard time sometimes expressing emotions... I have a stepson who internalized every trauma he went thru as a child, and I wish I'd seen it then and worked on it. Sounds like Andy is able to vocalize how he's feeling, that's good, and I hope Tyler's well too!! ~ANGEL~ Mom to 14 Mosaic Down's/Hirschsprung's Disease Tyler 15, 12, Jaeda 11 & Shayne 5 ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2007 Report Share Posted July 19, 2007 Maureen I am so glad that Andy (boy, that is going to be hard to get used to!) did so well in school! I am proud of him too! On your other note, I am so deeply sorry. I can not imagine the depth of your loss. I will be praying for you, Tyler and Andy. I imagine that it is difficult for you and for the boys. Please know that if you ever need to talk I am just a phone call away! Kristy maureen ferris wrote: I've been having trouble sending messages to this group lately so I registered again with yahoo groups so hopefully I'm all set. I just wanted to tell everyone how proud I am of (who now likes to be called Andy)! He just finished third grade at our local elementary school. Halfway through the year, the Moderate Special Needs teacher told me Andy didn't want to be pulled from the classroom and would I be open to trying full inclusion. He was doing well and the Teacher was agreeable so, of course, I said yes. And he did so well it's now in is IEP that he be full inclusion for 4th Grade! If he needs extra help in any area, he can still be pulled for that but it's on an as needed basis. This is what I wanted for him but, honestly, wasn't sure it would happen in elementary school. Sometimes I just love being wrong! On a sad note, my husband passed away unexpectedly this past March. Tyler, who's now 13, seems to be doing well but doesn't want to talk about it. It's seems to be hitting Andy now. He told his Speech Therapist yesterday that he just wants things to go back to the way they're suppose to be. Part of it could be I just got rid of the bed, Steve's clothes and some furniture in the bedroom. The EMTs broke the bed but even if they hadn't, it's where he died and I couldn't bring myself to sleep in it anyway. Andy hates change and maybe this is too soon to make changes but I really need a bed and a friend came over with his truck so it was a chance to remove everything at once. I asked Andy to help me fix up my room a little and he seemed to like that. I just need to make the room look different. Maybe if he died somewhere else I'd feel differently. I just hate being in that room right now. Maybe as we go along, I can explain to Andy why I need to change it so he'll understand but I don't want to throw too much at him all at once either. Well, that's it for now. Maureen, mother to Tyler, 13 and Andy, 9 (MDS) Quote Link to comment Share on other sites More sharing options...
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