Re: Welcome to diabetes_int@onelist.com

[Guest guest]

WELCOME BARB!!!! I know you will love this list. --Robin

[Guest guest]

Thank you, . I appreciate your concern and look forward to an

interesting list experience.

Cheers,

Barb

----------

From: diabetes_int-owneronelist

To: RainbowFarm@...

Subject: Welcome to diabetes_intonelist

Date: Thursday, March 04, 1999 4:55 PM

Hello,

Welcome to the list. Please take a moment to review this message.

This mailing list has been created for people that wish to debate diabetics

in a

positive spirit. It has been created for you in the hope that it will be an

uplifting forum, where you can seek support, advice and comfort, as well as

give

it to others.

The list is restricted. It doesn't mean that some people aren't allowed to

participate. It, however, means that the discussions going on is being

followed

by the moderator.

Please note that this is a support group for people that are affected by

diabetes. Questions, answers and discussions related to diabetes are

allowed.

Jokes and other uplifting stuff are also allowed.

If your message is not of general interest for the group, then please copy

and

paste the e-mail addres, so your message doesn't go out to the entire list.

Personal correspondence that are of no value or interest to any member of

the

group, and that are not related to diabetics, should be avoided.

Be tolerant. There are lots of different diabetes regimens, used

successfully

by people suffering from diabetes, so it's okay to disagree. However,

personal

wars and attacks on members personally, should be avoided, and may, after

some

warnings, result in exclusion from the list.

The only purpose with these restrictions are to protect the list members

from

having their mail-box flooded with correspondence of no interest to them,

and to

maintain a good spirit in the group.

Please tell your diabetic friends about the list. They can join the

list at this URL:

http://www.onelist.com/subscribe.cgi/diabetes_int

To send email to the list, send to: diabetes_intonelist.

Diabetic_int is only a few weeks old and as of this date (Jan, 14th) we are

85

members. There are about 25 - 30 messages each day. In the week-end though,

only

few messages are send to the list.

[Guest guest]

Thank you

I am 52 have been type II diabetic for 2 years prior to being at the other end

of the spectrum for 35 years (low blood sugar). I have a family history of

diabetes on my fathers side and have a sister who is type I since she was 7

years old. I take oral medication and was under reasonable control until

recently. I suddenly started a pattern of extremely high readings and the doctor

is of no help. I get more support from the nurse practitioner as diabetes is her

speciality. If I try to use aspartame I get dizzy and naucous. My sister seems

to think that low hormones could be part of the problem. I think I am loosing my

mind!

---

Carolyn D. Kaminski

--

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[Guest guest]

Carolyn Kaminski writes:

<< I am 52 have been type II diabetic for 2 years prior to being at the

other end of the spectrum for 35 years (low blood sugar). I have a family

history of diabetes on my fathers side and have a sister who is type I since

she was 7 years old. I take oral medication and was under reasonable control

until recently. I suddenly started a pattern of extremely high readings and

the doctor is of no help. I get more support from the nurse practitioner as

diabetes is her speciality. If I try to use aspartame I get dizzy and

naucous. My sister seems to think that low hormones could be part of the

problem. I think I am loosing my mind! >>

Carolyn, you just answered the question I just had asked! Some researchers

claims that hypoglycemia is just an early form of diabetes. What type of

oral medication? Is it a sulfonylurea? If you think of your third of a

century with hypoglycemia as early diabetes, your pancreas is probably about

worn out, and so you are extremely reactive to carbohydrate intake. Then, if

the pill that you have been taking is a sulfonylurea, it may have hastened

the demise of whatever remaining beta cells you had that were struggling

along.

In short, it may be time for you to consider moving on to insulin -

particularly if the pill you have been taking is a sulfonylurea.

Susie

[Guest guest]

Ok first she put me on glucophage then a year later she adds glynase and pepcid

cause I was having digestive problem now she has me on propulsid for the

digestive problems and it isn't helping much and the fasting readings are still

well over 200 most of the time I could starve for 2 days and they will still be

high

---

Carolyn D. Kaminski

--

Visit http://www.ivillage.com for your FREE iVillage.com email account.

iVillage.com: The #1 Women's Network -- Real Solutions for Real Women.

[Guest guest]

Hi Carolyn.

If you can starve for two days, and still have high BG-readings (or even maybe

increasing BG-readings???)

you might need insulin. Have you talked with your doc on this, besides/and your

fasting readings of well over 200 mg/dl are CERTAINLY TOO HIGH!!! Is your doc

satisfied with that? Are you?

Oluf

>

>

>Ok first she put me on glucophage then a year later she adds glynase and pepcid

cause I was having digestive problem now she has me on propulsid for the

digestive problems and it isn't helping much and the fasting readings are still

well over 200 most of the time I could starve for 2 days and they will still be

high

>---

>Carolyn D. Kaminski

[Guest guest]

there in lies the problem. The Doctor?! she only hears half of what I say and

constantly wants to run expensive blood test which usually have to be done at

the hospital because " I HAVE NO BLOOD " it usually take half a dozen or more

stabs over an hour period before they can find any blood by then if my blood

pressure isn't jumping up and down my sugar is probably from the stress. The

nurse practitioner is better at listening but she proceeds slowely with changes.

She is the one who said that the stomach problems were probably directly related

to the pancreas doing a suicide leap. I'm not big on needles always left the

room when any other family members got their stuff out so even though I know

what to do I would like to prolong that route as long as possible

---

Carolyn D. Kaminski

>From: Metaforum-sson@... (OLUF JOHNSSON)

>

>Hi Carolyn.

>If you can starve for two days, and still have high BG-readings (or even maybe

increasing BG-readings???)

>you might need insulin. Have you talked with your doc on this, besides/and

your fasting readings of well over 200 mg/dl are CERTAINLY TOO HIGH!!! Is your

doc satisfied with that? Are you?

>Oluf

>

>>

>>

>>Ok first she put me on glucophage then a year later she adds glynase and

pepcid cause I was having digestive problem now she has me on propulsid for the

digestive problems and it isn't helping much and the fasting readings are still

well over 200 most of the time I could starve for 2 days and they will still be

high

>>---

>>Carolyn D. Kaminski

>

>

>------------------------------------------------------------------------

>What was YOUR favorite part?!

>http://www.onelist.com

>Tell other Star Wars fans at ONElist!

>

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Visit http://www.ivillage.com for your FREE iVillage.com email account.

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[Guest guest]

Carolyn Kaminski writes:

<< ... cause I was having digestive problem now she has me on propulsid for

the digestive problems and it isn't helping much and the fasting readings

are still well over 200 most of the time I could starve for 2 days and they

will still be high >>

Oh boy ... those pokey digestive systems can really play havoc with your

control. I believe Dr. Bernstein goes into great detail in his book " Dr.

Bernstein's Diabetes Solution " on gastroparesis. There is also wonderful

information about gastroparesis by J. K. Drummond at:

http://www.cis.ohio-state.edu/hypertext/faq/usenet-faqs/html/diabetes/faq/pa

rt3/faq-doc-23.html

Susie

[Guest guest]

Carolyn Kaminski wrote:

<< there in lies the problem. The Doctor?! she only hears half of what I say

and constantly wants to run expensive blood test which usually have to be

done at the hospital because " I HAVE NO BLOOD " it usually take half a dozen

or more stabs over an hour period before they can find any blood by then if

my blood pressure isn't jumping up and down my sugar is probably from the

stress. >>

Carolyn, diabetics are very subject to " sticky platelets, " and this

condition is probably one of the reasons we are at such high risk for heart

problems. Are you on aspirin therapy? I began on regular 325 mg

enbteric-coated aspirin daily after the first of my two heart attacks and

was amazed at the difference. Alas, for me it was " too much of a good thing "

.... serious bleeding over every little nick, widespread bruising, and

disabiling gut pain. I backed off to 1/4 dose enteric-coated pills (81 mg)

and the blood is still thinner - although I may experiment with 1/2 doses

soon (162 mg). The last time I had bloodwork I was just so amazed and

pleased at the difference! Whereas for years before, the nurse would get all

frowny-faced and keep poking here and there before she could finally fill a

few tubes with my " chocolate syrup, " it now just shoots into the tubes

The best " cure " for gastroparesis is normalizing blood glucose levels. But

how the heck do you accomplish that when the delayed stomach emptying is

playing havoc with your control? It is a tricky business, but you sound like

you have the determination to do it. You can do your own web search by going

to your favorite search engine (I use http://www.altavista.com) and typing

in the following:

*diabet* +gastroparesis +treatment

Susie

[Guest guest]

Carolyn.

Please don’t ”fool around” with this ”sneeking thing”, Diabetes Mellitus, for

your own sake and for that of your loved ones! You have to take it seriously.

This can be done – and still having a good life, you know.

You may have a problem with your doc, but … are you sure, she doesn’t have a

problem with you also?

You say, that your doc ”constantly” wants to run some blood-test on you. I take

it for granted that this is not just for fun or just to burden you with

expenses. There must be a way to cover these costs for you, if you cannot

afford them / have no insurance. Maybe someone here in the list can give you

advice on that.

If you cannot solve your communication-problem with you doc by yourself, maybe a

talk with that nurse practitioner migth help you on the way.

But sure, you have blood, about 1½ gallon or so. I know in some people it might

be tricky to find a usable veine, but as you point out yourself, you stress at

blood-tests may make it difficult, if they, who do them, are not very smart at

taking them.

It seems to me that you might have had your DM (type-2, yes?) for quite a while.

It would be very wise to get rid of superfluous pounds, if I may be so frank.

This alone might help you pancreas in coping a bit better. An often overseen or

neglected problem is delayed emptying of the stomach and reduced motility of the

bowl. In a diabetic this may be due to neuropathia, so its very important that

you do something about it … what your doc suggests! Usually Propulsid is an

efficient drug. Is the dose OK?

Though reluctant, I think you know that its ”about insulin time”. Don’t be

afraid of it. Its not that bad, and you will have to cope with it, if your

pancreas cannot produce enough to cover your body’s needs, says one, who is a DM

Type-1, - 5 shots a-day, and allergic to all insulins exept one: Humalog, which

I’m probably going to have in a pump in some days.

Face up, Carolyn, we’ll support you the best we can, as I’m sure many people

around you will also! Even your doc!

Cheers!

Oluf