Guest guest Posted November 4, 2011 Report Share Posted November 4, 2011 Hi, i should be posting this to another post but my pc is so slow so i will post it here, have you heard of a kpl machine, i found a site on it. but i was wondering what you thought or knew anything about this technology. thanks.damariseTo: Lyme_and_Rife From: jimjax2@...Date: Thu, 3 Nov 2011 21:28:07 -0400Subject: Re: OT: Headaches Hi Jim T,Well I get good relief from Excedrin Extra Strength, but a good Lyme friend and MD says I am better off taking plain ole aspirin, so I am now using it, but am using far more daily than the EES and it only controls them just enough, not completely.. These started about 7 months ago and they are there 24/7.. I get seasonal migraines, usually starting in November and ending in April, so I usually have a break from headaches, but not this year.. Good you stayed away from Celebrex, I've heard some bad things about it.. Actually a good NSAID is Naproxen... I read a report on NSAIDs and it was the safest... I've bought them at Sams and WalMart, think they come in 330 mgs tabs, I take 2 when I use them which is seldom. Okay, so now the supps I am also taking that are supposed to help with headaches... Same as yours!! But I have to ask you, what it the dose of your feverfew and is it plain Feverfew or Feverfew Extract? I take just one daily, 380 mg and I fear this is too little.. I do take 4 grams of fish oil and at least 2000 mg of magnesium, most taken as mag oil (best kind of magnesium). Headaches BTW are a symptom of Lyme, they are generally believed caused by too many toxins.. I also take the C, D and E daily... Well if you can let me know the mgs per capsule on the Feverfew and whether it is regular or Extract (I actually use both on alternating days), maybe that may make a difference.. Thanks,Jim OT: Headaches Message List Reply | Delete Message #28347 of 28382 < Prev | Next > JimJax2, Sorry, forgot to answer your question on supps for headache. A few years back I started getting pressure headaches (what a coincidence - about the time I remember the 'Lyme' symptoms coming on). These were so bad that I took 4 advil, sometimes 3 times a day, just to get the edge off, but it never eliminated them. I had to work in computers (software), so thinking is how I make my living. I eventually learned about the BAD side effects of advil and looked for other things to get around them. In the mean time, I picked up a leaky gut that I'm still healing from. And that is what actually turned me so much towards alternative medicine. I went to a neurologist for the headaches and he prescribed me Celebrex if I remember correctly. I asked him if there were any side-effects I should concern myself with. He said no side-effects. Well, I knew better. I've never seen a pharmaceutical with on side-effects. So I researched that. We all know now the Celebrex can be very nasty when it comes to side-effects. Something I don't ever want to take. So, off to alternative medicine I went. I tried many things, and found about the only thing that helped the headache was taking up to a dozen or so feverfew every day. When I first took them, it took several days for them to 'kick in' so to speak. Never totally eliminated the headache, but did make it to where I could work somewhat. That along with 6 grams of fish oil (high DHA) and plenty of magnesium daily seemed to do best. But, even with that, the pressure has remained to this day. I've only had 1 or 2 days of relief since I started the Tindamax. That was only on my 2nd & 3rd week of taking them. Eventually though, I quit traveling and found that if I totally stayed away from processed foods, that I could drop the feverfew. So, I haven't taken those for months now, though I will pop about 8 of them if I mistakenly eat some MSG laden food (wife insists I take her out once in a while). Much more careful now, but even my wife unknowingly slips in some MSG laden food or one of it's cousins without realizing it. My last major episode just about had me bed-ridden for 3 days, so we are all a bit more careful now. I try not to teat anything with more than 4 ingredients, unless I make it myself. There are just so many bad chemicals out there disguising themselves as 'good things'. With the feverfew, some other things that I take are Calm that at least helps take the edge off. If I believe it's an MSG thing, I've found if I catch it in time, I can take Vit-D, Vit-C, Vit-E, and plenty of magnesium and it usually keeps it from getting too bad. Once the headache progresses too much though, I'm sunk. But, i really just try to avoid anything that has ANY chemicals in it. Just 'real' food. While I'm not 100% better, I'm much better than I was 3 years ago. At least I was able to keep my job. I've also found if I eat a lot of wheat, or a lot of certain preservatives/nitrites can also cause my headaches. Again, just eating 'real' food avoids the whole mess. But, I sure do miss a lot of the 'junk' food I used to eat, so once in a while........ Hope that helps, JimT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2011 Report Share Posted November 4, 2011 Jim, I was taking Natures Way Feverfew Leaves. Green bottle cap. 380mg. Because the're not organic, managed to get away from them. Otherwise, I took 6-8, or even more a day, every day for a couple of years. And, like I said, if my headache got bad because of something I ate, I'd pop 5, 10, even more over a few hours. They seemed to help. And once I had a fair amount in my system (6/day), I could take an extra 4, 6, or 8 and they did seem to help within about an hour of getting that nasty headache. And, I never had any stomach issues with it either. I went to it because it helped, and is one of THE safest remedies - been in use for hundreds, if not thousands of years with no real known side-effects, other than some minor stomach irritation, which I never did get. And many times I popped them on an empty stomach. I realize that 1 cap is the recommended dose, but after doing some research, I felt it was very safe to take even large amounts of it. At some point I did try aspirin, and at the higher doses (2-325mg tabs) I found I started getting tinnitus. I even switched to organic white willow bark for a while, that helped somewhat, but still got the tinnitus as time went on. I did try aleve, and found it worked well, but if I'm not mistaken there is an elevated risk of heart attack with those. Problem with acetaminophen, that is rough on the kidneys & liver. Basically I've come to believe ANY pharmaceutical is a poison. What tends to make them so bad is that when they are manufactured, the 'other' ingredients that were included when they are found in nature (ie: white willow bark gives aspirin) are removed. Not to mention the chemicals & solvents they use to manufacture them. A lot of times those 'other' ingredients are what help buffer them with your system. So, I'll have no problem popping 10 or more feverfew during the day, but I have a problem with popping more than a couple of aspirin a day. Although, I do consider aspirin one of the safest with exception to the tinnitus & stomach irritation/bleeding. Of course, that's just my personal beliefs and preferences. But for that reason, I only take drugs (even over the counter) if absolutely nothing else works, and luckily that tends to be quite rare since I dropped the processed foods. That's when I saw the biggest improvement. On the other hand, maybe I'm just becoming 'numb' to the pain because I do ALWAYS feel the pressure, and at least a mild headache. I forgot to mention that I'm also taking LDN (the ONLY pharmaceutical beside abx that I take), have you tried that? It definitely helped me in many ways, more energy, reduced brain fog, better cognitive function, although it never got rid of the problems all the way. But hey, I'll take whatever improvement I can get. After a few months of it, I credit it with saving my job, it made that much of a difference. At that time I thought the MS had broken me. Now, I think that I was dealing with the Lyme instead because it was so much like what I felt earlier this week with that new tick bite & herx combined. I also break up my own (4mg dose from 50mg tablets). So, I pay $10 for the script once a year, use a bag of organic corn meal (trying to find something better now), and single "0" caps. About $20=$25/year. Vs. having the pharmacy make then for $30/month. After being on that for the last 3 years, I just had my liver & kidneys tested - no problems. And, since I'm taking 1/12th the dose, should be fairly easy on the body. On the fish-oil. I've learned that the ratio of DHA to EPA can make a difference. I used to take standard spectrum or Barlean's fish oil when one of my ND's pointed out to me that high EPA can actually cause some inflammation of the brain. He prescribed me some high-DHA oil from Nordic Naturals (professional). I quit those however because I found that they would go rancid by the time I took them. So now I take Carlsons super DHA. I keep 'em in the fridge, take after a meal, never get any 'fishy' aftertaste like I did with the Nordics. Also I've noticed when I cut that back that my whole body starts aching, and the pressure in my head tends to increase, not a lot, but still noticeable. My son, who also has brain fog & cognitive issues, I found does much better when I give him the high-DHA fish oil too. All this stuff, and more I worked out approaching it as if it was MS, and may still be, but I now know that Lyme may have triggered that, contributed to that, or even caused that. I'm hopeful that the MS really is just Lyme though so it will be a temporary thing. I've heard so many people say after 6 months or so of treatment that they break out of the brain fog & headaches. I'm anxious for that day as I did get a glimpse of how clear the head can be during my 2nd & 3rd weeks of Tindamax - even if only for a day. I'm also very strict on all my supps, organic where I can, nothing synthetic (except the LDN of course). Recently too, I've started taking 'off' weekends and skip the supps to give my body a chance to rest as it feels like I eat more supps than food sometimes. But, after about the 3rd day, I definitely start to miss them with all my symptoms going up quickly. Anyway, hope some of this helps. JimT ---------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------- Hi Jim T, Well I get good relief from Excedrin Extra Strength, but a good Lyme friend and MD says I am better off taking plain ole aspirin, so I am now using it, but am using far more daily than the EES and it only controls them just enough, not completely.. These started about 7 months ago and they are there 24/7.. I get seasonal migraines, usually starting in November and ending in April, so I usually have a break from headaches, but not this year.. Good you stayed away from Celebrex, I've heard some bad things about it.. Actually a good NSAID is Naproxen... I read a report on NSAIDs and it was the safest... I've bought them at Sams and WalMart, think they come in 330 mgs tabs, I take 2 when I use them which is seldom. Okay, so now the supps I am also taking that are supposed to help with headaches... Same as yours!! But I have to ask you, what it the dose of your feverfew and is it plain Feverfew or Feverfew Extract? I take just one daily, 380 mg and I fear this is too little.. I do take 4 grams of fish oil and at least 2000 mg of magnesium, most taken as mag oil (best kind of magnesium). Headaches BTW are a symptom of Lyme, they are generally believed caused by too many toxins.. I also take the C, D and E daily... Well if you can let me know the mgs per capsule on the Feverfew and whether it is regular or Extract (I actually use both on alternating days), maybe that may make a difference.. Thanks, Jim OT: Headaches Message List Reply | Delete Message #28347 of 28382 < Prev | Next > JimJax2, Sorry, forgot to answer your question on supps for headache. A few years back I started getting pressure headaches (what a coincidence - about the time I remember the 'Lyme' symptoms coming on). These were so bad that I took 4 advil, sometimes 3 times a day, just to get the edge off, but it never eliminated them. I had to work in computers (software), so thinking is how I make my living. I eventually learned about the BAD side effects of advil and looked for other things to get around them. In the mean time, I picked up a leaky gut that I'm still healing from. And that is what actually turned me so much towards alternative medicine. I went to a neurologist for the headaches and he prescribed me Celebrex if I remember correctly. I asked him if there were any side-effects I should concern myself with. He said no side-effects. Well, I knew better. I've never seen a pharmaceutical with on side-effects. So I researched that. We all know now the Celebrex can be very nasty when it comes to side-effects. Something I don't ever want to take. So, off to alternative medicine I went. I tried many things, and found about the only thing that helped the headache was taking up to a dozen or so feverfew every day. When I first took them, it took several days for them to 'kick in' so to speak. Never totally eliminated the headache, but did make it to where I could work somewhat. That along with 6 grams of fish oil (high DHA) and plenty of magnesium daily seemed to do best. But, even with that, the pressure has remained to this day. I've only had 1 or 2 days of relief since I started the Tindamax. That was only on my 2nd & 3rd week of taking them. Eventually though, I quit traveling and found that if I totally stayed away from processed foods, that I could drop the feverfew. So, I haven't taken those for months now, though I will pop about 8 of them if I mistakenly eat some MSG laden food (wife insists I take her out once in a while). Much more careful now, but even my wife unknowingly slips in some MSG laden food or one of it's cousins without realizing it. My last major episode just about had me bed-ridden for 3 days, so we are all a bit more careful now. I try not to teat anything with more than 4 ingredients, unless I make it myself. There are just so many bad chemicals out there disguising themselves as 'good things'. With the feverfew, some other things that I take are Calm that at least helps take the edge off. If I believe it's an MSG thing, I've found if I catch it in time, I can take Vit-D, Vit-C, Vit-E, and plenty of magnesium and it usually keeps it from getting too bad. Once the headache progresses too much though, I'm sunk. But, i really just try to avoid anything that has ANY chemicals in it. Just 'real' food. While I'm not 100% better, I'm much better than I was 3 years ago. At least I was able to keep my job. I've also found if I eat a lot of wheat, or a lot of certain preservatives/nitrites can also cause my headaches. Again, just eating 'real' food avoids the whole mess. But, I sure do miss a lot of the 'junk' food I used to eat, so once in a while........ Hope that helps, JimT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 HiI found the link that i was reading. It has a protocal of a lyme s doctor and he mentions this machine on his report.The depth of the protocal is interesting, and give lots of information. and he also mentions this machine, i found the machine on line the other daytoday i cant find it. i will keep searching for the site that sells these machines. i think he mentions the the company that sells them in his artical.the link is as followshttp://www.natmedtalk.com/other-diseases/4352-lyme-disease-dr-klinghardts-treatment.html I read about his protocal and the machine here on this linkI wouldn t buy anything i didn t know anything about or at least got some information on people that might know something about it, and yes i agree its best to use things that have been used and proven, buying something new with little information or reporting can be a financial risk.DamariseTo: Lyme_and_Rife From: jimjax2@...Date: Fri, 4 Nov 2011 22:09:00 +0000Subject: Re: OT: Headaches Hi Damarise, I looked for a KPL machine Googling it, but could find nothing.. It would help if you post links! However, I've never heard of this protocol for Lyme and thus I would tend to stay away from it... Many have spent a lot of money on things that don't work, I like to stick with things others are having good successes with for Lyme... Take care, Jim > > > Hi, i should be posting this to another post but my pc is so slow so i will post it here, have you heard of a kpl machine, i found a site on it. but i was wondering what you thought or knew anything about this technology. thanks. > damarise > > > > > To: Lyme_and_Rife > From: jimjax2@... > Date: Thu, 3 Nov 2011 21:28:07 -0400 > Subject: Re: OT: Headaches > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi Jim T, > Well I get good relief from Excedrin Extra Strength, but a good Lyme friend and MD says I am better off taking plain ole aspirin, so I am now using it, but am using far more daily than the EES and it only controls them just enough, not completely.. These started about 7 months ago and they are there 24/7.. I get seasonal migraines, usually starting in November and ending in April, so I usually have a break from headaches, but not this year.. Good you stayed away from Celebrex, I've heard some bad things about it.. Actually a good NSAID is Naproxen... I read a report on NSAIDs and it was the safest... I've bought them at Sams and WalMart, think they come in 330 mgs tabs, I take 2 when I use them which is seldom. > > > Okay, so now the supps I am also taking that are supposed to help with headaches... Same as yours!! But I have to ask you, what it the dose of your feverfew and is it plain Feverfew or Feverfew Extract? I take just one daily, 380 mg and I fear this is too little.. I do take 4 grams of fish oil and at least 2000 mg of magnesium, most taken as mag oil (best kind of magnesium). Headaches BTW are a symptom of Lyme, they are generally believed caused by too many toxins.. I also take the C, D and E daily... > > > Well if you can let me know the mgs per capsule on the Feverfew and whether it is regular or Extract (I actually use both on alternating days), maybe that may make a difference.. > > > Thanks, > Jim > > > > > > > > OT: Headaches > > Message List > > > > > > Reply | Delete > > > > Message #28347 of 28382 < Prev | Next > > > > > > > JimJax2, Sorry, forgot to answer your question on supps for headache. A few years back I started getting pressure headaches (what a coincidence - about the time I remember the 'Lyme' symptoms coming on). These were so bad that I took 4 advil, sometimes 3 times a day, just to get the edge off, but it never eliminated them. I had to work in computers (software), so thinking is how I make my living. I eventually learned about the BAD side effects of advil and looked for other things to get around them. In the mean time, I picked up a leaky gut that I'm still healing from. And that is what actually turned me so much towards alternative medicine. I went to a neurologist for the headaches and he prescribed me Celebrex if I remember correctly. I asked him if there were any side-effects I should concern myself with. He said no side-effects. Well, I knew better. I've never seen a pharmaceutical with on side-effects. So I researched that. We all know now the Celebrex can be very nasty when it comes to side-effects. Something I don't ever want to take. So, off to alternative medicine I went. > > I tried many things, and found about the only thing that helped the headache was taking up to a dozen or so feverfew every day. When I first took them, it took several days for them to 'kick in' so to speak. Never totally eliminated the headache, but did make it to where I could work somewhat. That along with 6 grams of fish oil (high DHA) and plenty of magnesium daily seemed to do best. But, even with that, the pressure has remained to this day. I've only had 1 or 2 days of relief since I started the Tindamax. That was only on my 2nd & 3rd week of taking them. > > Eventually though, I quit traveling and found that if I totally stayed away from processed foods, that I could drop the feverfew. So, I haven't taken those for months now, though I will pop about 8 of them if I mistakenly eat some MSG laden food (wife insists I take her out once in a while). Much more careful now, but even my wife unknowingly slips in some MSG laden food or one of it's cousins without realizing it. My last major episode just about had me bed-ridden for 3 days, so we are all a bit more careful now. I try not to teat anything with more than 4 ingredients, unless I make it myself. There are just so many bad chemicals out there disguising themselves as 'good things'. > > With the feverfew, some other things that I take are Calm that at least helps take the edge off. If I believe it's an MSG thing, I've found if I catch it in time, I can take Vit-D, Vit-C, Vit-E, and plenty of magnesium and it usually keeps it from getting too bad. Once the headache progresses too much though, I'm sunk. But, i really just try to avoid anything that has ANY chemicals in it. Just 'real' food. While I'm not 100% better, I'm much better than I was 3 years ago. At least I was able to keep my job. > > I've also found if I eat a lot of wheat, or a lot of certain preservatives/nitrites can also cause my headaches. Again, just eating 'real' food avoids the whole mess. > > But, I sure do miss a lot of the 'junk' food I used to eat, so once in a while........ > > Hope that helps, JimT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 Jim, Thanks for that great info. I had heard that you could take some things to stave off the damages caused by acetaminophen, but didn't know exactly what they are. You are a wealth of great information. My body/joint/head aches, I'm guessing from the tick I picked off Wednesday, is just about as bad as the worst herx I've had, so I will probably try some aspirin today, just won't do it long-term if I can help it. Fortunately I can live with what I'm dealing with as they are manageable, just VERY uncomfortable. While I'm guessing you have more supps than I do, my wife might argue with you on who's got more. I've got a closet full of supps too, and still getting more all the time. Had a whole set when I thought I was fighting MS, now acquiring a whole new set for the Lyme, even though there is a lot of crossover - arrrgh! In all of my searches, never heard about or thought about skullcap. Let me know how that works for you. I also saw where it can be tough on the liver - but always wonder about that negative info for supps - was it posted by a proponent of big Pharma? Not that their stuff is safe by any means. You know, sometimes our intuition just amazes me. A year or so ago I bought some NAC, not sure why, but one of my ventures into the store, just picked it up. Never took it though, but I see it every time I bag up my supps. I have several of those like you I guess, sitting there waiting for when I feel I'll need it. After researching, I guess I should probably be taking it as long as sulphur isn't a problem, and for me it is not. Sheeze! Another dang pill to add to the already huge bag of supps every day. Sometimes I feel like I can quit eating real food and just live off the supps. Yea, sorry that you require opiates for your pain - yep, LDN not good in those situations. On the other hand, while I don't exactly take LDN for pain, I've heard it can moderate that considerably, as you probably already know. But, when there is severe pain, hard to try anything else that forces you to use something that is already working for you. That I understand. As for the MS/Lyme dx mixup, I'm hoping I'm in that group too. Guess I will find that out quick enough - though it is excruciatingly slow for this treatment. I am amazed at how many of the symptoms of the Lyme, MS, and mercury toxicity are so much alike. When I had my silver fillings removed, it was by a supposed 'biological' dentist. And he did follow proper 'mouth dam' protocol, with constant suction of the air from my mouth while working. But, I also remember swallowing (the reflex) while they were working, and I remember some 'chunks' going down too. Unfortunately, I had not properly researched it as to what I should have done while doing this, so I went through pretty severe mercury toxicity symptoms for several weeks. Luckily I had timed it with a 2 week vacation. Not that the symptoms are identical, but still, there is some familiarity of symptoms there between all 3. I was a total dummy for weeks (not sure that's improved much), but really took a year or so to get full relief of the acute symptoms. Not that I don't still have cognitive/brain fog issues, that's been a constant over the last few years with ups and downs depending on what is going on, diet, supps, etc. For my breaks from my supps, I usually try to not take them for Saturday & Sunday's except under extenuating circumstances - like now, fighting a new infection. I also sometimes, when very busy, just forget to take them for a few days. But, if I go beyond 3 days, I really start feeling crappy, so it 'reminds' me that I really do need this stuff. Which has been really hard here. My wife was brought up in the allopathic world. Her mother is a nurse, father was a psychologist, all have pretty much bought off into the conventional med system with symptom suppression. So, she accuses me all the time of 'self-medicating' or even 'self-diagnosing'. I can't seem to get her to understand that in trying to make the body strong enough to heal itself, most, if not all of these supps are required, and that alternative medicine works through different mechanisms - it's generally not about symptom suppression, unless you are talking pain. Though, I'm hoping that most of them will eventually go away as I start becoming stronger. And I have from time-to-time re-evaluated how they make me feel, and adjust my 'mix' accordingly. Yesterday too, my Lyme doc believes in muscle testing. Not that she totally relies upon the answers, especially if they don't seem logical or make sense. But, she uses them as confirmation and sometimes as initial guidance. She indicated that I could start using it to test my supps as well since I frequently am not sure that a particular supp is better or worse for me. Have you ever used muscle testing to check the validity of your supps? I've always been concerned, am I taking the right dosages on my supps? Are there any negative interactions? Do I need to take certain ones, or can I drop them? Unfortunately, I have been pretty much on my own since my MS diagnosis when I elected to NOT go the conventional route as it is hard to find a good alternative med doc in my area. I didn't like the odds, and quite frankly heard a lot of horror stories on the 'standard' MS drugs. With all that though, one thing comes to mind. Here we are fighting this infection, which for a vast majority of us, will make us better with proper treatment(s). Why are the insurance companies so hard on this disease? I mean, for my MS they wanted to put me on avonex - approximately $1100/month with no real stigma on that. And that would've continued until the day I die. No real hesitation there from the establishment's side. Why, are they so against the cost of a 2-5 year course of antibiotics when it costs (monthly) roughly the same knowing that you will eventually get off of that and NOT be a continuous expense? JimT ---------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------- Hi Jim T, Thanks for the Feverfew info.. I will try scaling up and see what happens... I am taking them because they have a history of helping with migraines, but they need to be in me for 4 months, so I missed last years migraine season, but I have faithfully keep taking one daily, so hoping this year they will help.. Too much aspirin will cause tinnitus, I am fortunate they don't seem to bother me.. Thanks for mentioning white willow bark of course I have this! Sometimes I concern myself as someone says "try this" and I always seem to have it in stock!! Biggest stock of supps in FL! I also have Skullcap, I think I will also add that in to see if it helps.. You can make acetaminaphen a lot safer by taking it with fruit juice high in antioxidants, I use grape juice, also use with Vitamin C, 1000 mg and also use with NAC as it protects the liver, but only take one capsule daily... I would never take acetaminaphen without taking it this way... http://www.swansonvitamins.com/SW854/ItemDetail http://www.swansonvitamins.com/JR031/ItemDetail Yes, LDN is a good protocol... I researched this extensively and I was planning on using it, but I must use opiate medication, thus I am not a candidate... But I do believe others on group are using it.. Good you had such a good outcome with LDN... It is mixed on group, but those it helps, well it helps! Not every protocol works for everyone, so we try things and keep those that work for us.. We've had others here join the group who've been dxd with MS but now feel their symptoms are more like Lyme... Lyme and MS are very close, some believe Lyme causes MS.. For sure, many have claimed over the years a wrongful dx of MS and should have been Lyme... Once they start treating for Lyme and herx, there is no doubt at least they do have Lyme, not sure about the MS.. I take one week per month holiday from my supps... I also do the same for Essiac tea (highly recommended), so now I just stop both at the same time... It is actually good to take a break, if you see something improves, then you know you may have a supp you should not be using... I still take a few "must have" supps that are specific to an ailment that worsens without them... Thanks for the info, I will try a few of your suggestions! Jim OT: Headaches Message List Reply | Delete Message #28391 of 28429 < Prev | Next > Re: Re: OT: Headaches Jim, I was taking Natures Way Feverfew Leaves. Green bottle cap. 380mg. Because the're not organic, managed to get away from them. Otherwise, I took 6-8, or even more a day, every day for a couple of years. And, like I said, if my headache got bad because of something I ate, I'd pop 5, 10, even more over a few hours. They seemed to help. And once I had a fair amount in my system (6/day), I could take an extra 4, 6, or 8 and they did seem to help within about an hour of getting that nasty headache. And, I never had any stomach issues with it either. I went to it because it helped, and is one of THE safest remedies - been in use for hundreds, if not thousands of years with no real known side-effects, other than some minor stomach irritation, which I never did get. And many times I popped them on an empty stomach. I realize that 1 cap is the recommended dose, but after doing some research, I felt it was very safe to take even large amounts of it. At some point I did try aspirin, and at the higher doses (2-325mg tabs) I found I started getting tinnitus. I even switched to organic white willow bark for a while, that helped somewhat, but still got the tinnitus as time went on. I did try aleve, and found it worked well, but if I'm not mistaken there is an elevated risk of heart attack with those. Problem with acetaminophen, that is rough on the kidneys & liver. Basically I've come to believe ANY pharmaceutical is a poison. What tends to make them so bad is that when they are manufactured, the 'other' ingredients that were included when they are found in nature (ie: white willow bark gives aspirin) are removed. Not to mention the chemicals & solvents they use to manufacture them. A lot of times those 'other' ingredients are what help buffer them with your system. So, I'll have no problem popping 10 or more feverfew during the day, but I have a problem with popping more than a couple of aspirin a day. Although, I do consider aspirin one of the safest with exception to the tinnitus & stomach irritation/bleeding. Of course, that's just my personal beliefs and preferences. But for that reason, I only take drugs (even over the counter) if absolutely nothing else works, and luckily that tends to be quite rare since I dropped the processed foods. That's when I saw the biggest improvement. On the other hand, maybe I'm just becoming 'numb' to the pain because I do ALWAYS feel the pressure, and at least a mild headache. I forgot to mention that I'm also taking LDN (the ONLY pharmaceutical beside abx that I take), have you tried that? It definitely helped me in many ways, more energy, reduced brain fog, better cognitive function, although it never got rid of the problems all the way. But hey, I'll take whatever improvement I can get. After a few months of it, I credit it with saving my job, it made that much of a difference. At that time I thought the MS had broken me. Now, I think that I was dealing with the Lyme instead because it was so much like what I felt earlier this week with that new tick bite & herx combined. I also break up my own (4mg dose from 50mg tablets). So, I pay $10 for the script once a year, use a bag of organic corn meal (trying to find something better now), and single "0" caps. About $20=$25/year. Vs. having the pharmacy make then for $30/month. After being on that for the last 3 years, I just had my liver & kidneys tested - no problems. And, since I'm taking 1/12th the dose, should be fairly easy on the body. On the fish-oil. I've learned that the ratio of DHA to EPA can make a difference. I used to take standard spectrum or Barlean's fish oil when one of my ND's pointed out to me that high EPA can actually cause some inflammation of the brain. He prescribed me some high-DHA oil from Nordic Naturals (professional). I quit those however because I found that they would go rancid by the time I took them. So now I take Carlsons super DHA. I keep 'em in the fridge, take after a meal, never get any 'fishy' aftertaste like I did with the Nordics. Also I've noticed when I cut that back that my whole body starts aching, and the pressure in my head tends to increase, not a lot, but still noticeable. My son, who also has brain fog & cognitive issues, I found does much better when I give him the high-DHA fish oil too. All this stuff, and more I worked out approaching it as if it was MS, and may still be, but I now know that Lyme may have triggered that, contributed to that, or even caused that. I'm hopeful that the MS really is just Lyme though so it will be a temporary thing. I've heard so many people say after 6 months or so of treatment that they break out of the brain fog & headaches. I'm anxious for that day as I did get a glimpse of how clear the head can be during my 2nd & 3rd weeks of Tindamax - even if only for a day. I'm also very strict on all my supps, organic where I can, nothing synthetic (except the LDN of course). Recently too, I've started taking 'off' weekends and skip the supps to give my body a chance to rest as it feels like I eat more supps than food sometimes. But, after about the 3rd day, I definitely start to miss them with all my symptoms going up quickly. Anyway, hope some of this helps. JimT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2011 Report Share Posted November 6, 2011 Hi This is part of the protocal i highlighted it mentions KMT frequencies, i did see a site that old the machines but i couldn t find it the other day, il try again. The protocal i found on this site is the link i sent. Most of the information is there, but i have to re read it. I thought it mentioned where to find the frequency machine i could be wronge, the link is http://www.natmedtalk.com/other-diseases/4352-lyme-disease-dr-klinghardts-treatment.html Immune modulationUse the CD 57 test (Labcorp – Stricker panel) to monitor immune statusEnderlein remedies: treat immune responses to mold: Pleo Nig, Not, Muc, Fort, Pef, Ut and UT-S, LatAuto-hemotherapy or auto-urine therapy (2 ml biw)Buhner herbs (Quintessence from BioPure) 8-10 dropperfull in 1 liter waterAdjunctive physics based immune modulation tools:KMT frequency-based biofield treatmentHealth Light super LED treatment of focal areasValkion: singlet oxygen energy delivery via inhaled air or drinking waterPhoton Wave or Jae Laser immune modulLet me know if you read it and what you think.DamariseTo: Lyme_and_Rife From: jimjax2@...Date: Sun, 6 Nov 2011 23:21:46 +0000Subject: Re: OT: Headaches Hi Damarise, I looked through this link, I still could not find anything about KPL! Jim > > > > > > > > > Hi, i should be posting this to another post but my pc is so slow so i will post it here, have you heard of a kpl machine, i found a site on it. but i was wondering what you thought or knew anything about this technology. thanks. > > > damarise > > > > > > > > > > > > > > > To: Lyme_and_Rife > > > From: jimjax2@ > > > Date: Thu, 3 Nov 2011 21:28:07 -0400 > > > Subject: Re: OT: Headaches > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi Jim T, > > > Well I get good relief from Excedrin Extra Strength, but a good Lyme friend and MD says I am better off taking plain ole aspirin, so I am now using it, but am using far more daily than the EES and it only controls them just enough, not completely.. These started about 7 months ago and they are there 24/7.. I get seasonal migraines, usually starting in November and ending in April, so I usually have a break from headaches, but not this year.. Good you stayed away from Celebrex, I've heard some bad things about it.. Actually a good NSAID is Naproxen... I read a report on NSAIDs and it was the safest... I've bought them at Sams and WalMart, think they come in 330 mgs tabs, I take 2 when I use them which is seldom. > > > > > > > > > Okay, so now the supps I am also taking that are supposed to help with headaches... Same as yours!! But I have to ask you, what it the dose of your feverfew and is it plain Feverfew or Feverfew Extract? I take just one daily, 380 mg and I fear this is too little.. I do take 4 grams of fish oil and at least 2000 mg of magnesium, most taken as mag oil (best kind of magnesium). Headaches BTW are a symptom of Lyme, they are generally believed caused by too many toxins.. I also take the C, D and E daily... > > > > > > > > > Well if you can let me know the mgs per capsule on the Feverfew and whether it is regular or Extract (I actually use both on alternating days), maybe that may make a difference.. > > > > > > > > > Thanks, > > > Jim > > > > > > > > > > > > > > > > > > > > > > > > OT: Headaches > > > > > > Message List > > > > > > > > > > > > > > > > > > Reply | Delete > > > > > > > > > > > > Message #28347 of 28382 < Prev | Next > > > > > > > > > > > > > > > > > > > JimJax2, Sorry, forgot to answer your question on supps for headache. A few years back I started getting pressure headaches (what a coincidence - about the time I remember the 'Lyme' symptoms coming on). These were so bad that I took 4 advil, sometimes 3 times a day, just to get the edge off, but it never eliminated them. I had to work in computers (software), so thinking is how I make my living. I eventually learned about the BAD side effects of advil and looked for other things to get around them. In the mean time, I picked up a leaky gut that I'm still healing from. And that is what actually turned me so much towards alternative medicine. I went to a neurologist for the headaches and he prescribed me Celebrex if I remember correctly. I asked him if there were any side-effects I should concern myself with. He said no side-effects. Well, I knew better. I've never seen a pharmaceutical with on side-effects. So I researched that. We all know now the Celebrex can be very nasty when it comes to side-effects. Something I don't ever want to take. So, off to alternative medicine I went. > > > > > > I tried many things, and found about the only thing that helped the headache was taking up to a dozen or so feverfew every day. When I first took them, it took several days for them to 'kick in' so to speak. Never totally eliminated the headache, but did make it to where I could work somewhat. That along with 6 grams of fish oil (high DHA) and plenty of magnesium daily seemed to do best. But, even with that, the pressure has remained to this day. I've only had 1 or 2 days of relief since I started the Tindamax. That was only on my 2nd & 3rd week of taking them. > > > > > > Eventually though, I quit traveling and found that if I totally stayed away from processed foods, that I could drop the feverfew. So, I haven't taken those for months now, though I will pop about 8 of them if I mistakenly eat some MSG laden food (wife insists I take her out once in a while). Much more careful now, but even my wife unknowingly slips in some MSG laden food or one of it's cousins without realizing it. My last major episode just about had me bed-ridden for 3 days, so we are all a bit more careful now. I try not to teat anything with more than 4 ingredients, unless I make it myself. There are just so many bad chemicals out there disguising themselves as 'good things'. > > > > > > With the feverfew, some other things that I take are Calm that at least helps take the edge off. If I believe it's an MSG thing, I've found if I catch it in time, I can take Vit-D, Vit-C, Vit-E, and plenty of magnesium and it usually keeps it from getting too bad. Once the headache progresses too much though, I'm sunk. But, i really just try to avoid anything that has ANY chemicals in it. Just 'real' food. While I'm not 100% better, I'm much better than I was 3 years ago. At least I was able to keep my job. > > > > > > I've also found if I eat a lot of wheat, or a lot of certain preservatives/nitrites can also cause my headaches. Again, just eating 'real' food avoids the whole mess. > > > > > > But, I sure do miss a lot of the 'junk' food I used to eat, so once in a while........ > > > > > > Hope that helps, JimT > > > > Quote Link to comment Share on other sites More sharing options...
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