RE: Digest Number 1154

[Guest guest]

>

>

>Jerry,

>

> does some of her most incredibly difficult work on the phone

>with NT people.

>

>She has said that communication of any sort is a struggle for her, I

>think it is on some level a struggle for all of us, but I for one am

>one of the more glib and able...though I really don't think I could

>speak coherently to a large audience.

Well, if you ever do, use powerpoint. I really makes it easier. And

just remember that in most cases, the audience wants you to do well. People

don't pay to see people fall apart.

>

>At any rate, in spite of being a sort of natural target for hatred,

>partly because of her evident self injurious behavior scars, that make

>people very angry for some reason...she also goes to really serious

>autism research conferences.

As have I. I have also been called a fraud by one of the founders of

NAAR because I was " too high functioning " for him to accept.

>

>While I was at the IMFAR conference this year as a sort of dopey

>amateur and voyeur. was part of the research being

>presented, and not as Guinea Pig exhibit #1...she participated in the

>research.

>

>I heard Dr. Mottron refer to her to a room of maybe 100 clinicians and

>scientistists as someone on his team (probably used different actual

>terminology but he spoke of her collaboration with him with pride.)

Good for her. New information.

>

>Even jypsy and I, we don't just sit at home and do flimsy " internet

>advocacy " , which in fact is not flimsy.

Not flimsy but relatively risk-free.

...but I put my future on the

>line by making myself a bee in the bustle of the MIND institute.

>

>I have never owned a home. NEVER owned a piece of property. NEVER

>had a chunk of money like Jerry and his got for the movie.

That, except for the movie, is your choice. I make no apology for

earning what I own.

The movie is dumb luck but I would be foolish not to be involved and try to

make sure it is good for the community, too.

If I keep

>up my pushing against the status quo I may never have such a thing to

>lose.

You mean to say, I got everything I have by selling out? WRONG.

It's a whole lot different in this world to be a single woman

>alone without a degree to use to get employment that suits an AS

>person...You will always be ahead of me in status because of being a

>male, and you'll be ahead of lots of other men because you are white.

Oh, don't forget I am Christian too and everything evil is our

fault. Spare me the lame excuses. The grass is always greener for all of us

but if you use what you have, your lawn will be green enough.

> >

>I guess it's my admiration of that blinds me, but I can't

>find what she has written that is so strident.

You may share her style. We can agree to disagree.

>

>What? Reporting that a nurse asked her what is the worst thing about

>being autistic, and 's answer, " Being hated. "

AGREED, so let's not do it to each other.

>

>Was she not supposed to share that interchange?

I don't know. I do know that there is a limit to what you can

share, at any one time. Otherwise, it comes across more like indoctrination

and less like education.

>

>Her papers are full of documentation, which mine are not. I am not

>beyond saying something fairly bluntly and not backing it up, though I

>know that I have seen the stuff to back it up " somewhere " . So it

>looks like I'm blustering.

>

> never looks like she's blustering.

You have met her, I guess. I have not. Hope you are right.

>

>As for her persona...(responding to gprobs) she seems powerful if you

>are a few feet from her, and she is someone you admire (my

>experience). Her voice is pretty quiet or was when I was there. She

>speaks French which impresses me.

I eat French fries.

>

>But I don't know if she can do " charisma " , I doubt it. I can do

> " charming " so long as I'm not angry and am making them laugh. Get me

>mad and the " charming " fades rather quickly. I'm a lot bigger than

> is, too. Big and angry is scary.

>

>I don't think any autistic person is going to be a charismatic leader

>in person.

>

Hah. I have heard that adjective used to describe several of

our leaders, including Jim Sinclair, Donna and Liane Holliday

Willey.

>

> has presented, if I remember at a scientific conference, and

>perhaps she will again.

Good.

>

>Jerry, I still think you were out of line for saying that 's

>way is " offensive " or whatever you called it. And as for your

>vitriolic attack on her humility, calling it " phoney " and calling her

>work " propaganda " ...you got a lot of nerve, buster.

True, I do have a lot of nerve, well-earned.

A whole stinking

>cartload of nerve. Exactly how is it that she can be a " well

>intentioned " but phoney, propaganda-spreading ,self-appointed heroine

>figure?

Ask her how she apparently does it.

>

>You may just find yourself alone twisting in the wind when your movie

>comes out if you keep this up.

Keep the cards and letters coming.

>

>Let's see you wear a button or a tshirt that says, " Lovaas belongs in

>the hall of shame " to your Hollywood events, the ones that will get

>you photographed. Let's see you put it in your " upcoming book " based

>on the upcoming " smash movie " " Mozart and the Whale " . Let's see you

>write some letters to editors as I have and as has. (no they

>were not internet newspapers)

I have written letters all over the place. As for what I will

wear or say when my movie comes out ( if it ever does ) I have been involved

with that for nine years and will make my own decisions. I will not take

orders from you or any other self-appointed loose cannon who has contributed

nothing to that effort.

>

> " My wife and I didn't write a book on sexuality in order to gain

>popularity. There is no way you can win when you write about subjects

>like that. We did it because somebody needed to do it. "

>

>

>Oh, the publisher didn't pay you? Just wondering.

>

Just because you get paid doesn't mean that you are fully

compensated for all of the repercussiions of what you write. That is also

true about the movie.

I am not sure if it was you who asked me, " Why are you here? "

I am on 's list because I have a right to be. I am here

because in comparison to other lists, it is tolerant and civil.

As for my " irritating " you for anyone else, what really irritates

me is the attitude that I have to apologize for what I have earned. That is

the main reason why I am no longer on some other lists.

I make no apology for working, paying my own bills, writing books, doing

paid speechs or anything else economicallly productive. I also don't expect

anyone who doesn't do such things to apologize to me.

I make no apology for not wasting any of my limited time left

either. I make no apology for using my remaining years to make sure that

when I am gone, my animals and wife will have security.

Walk a mile in my shoes and see how you would feel. I have a medical

condition; a form of leukemia, that could end my life in 2-3 years, maybe

5-8, maybe not at all. Until I get more tests done, I don't know.

It is not a total surprise. I lost my spleen when I was fourteen and

the doctor warned me that someday, a blood disease was more possible. I

tried to ignore it when it took forever to recover from Mono in college. I

just made believe it would never happen but when I went in for a routine

blood exam eventually, there it was. My doctor hasn't yet figured out how

serious it is but it does motivate me to make sure that I am not going to

get sued for something I say and lose what I want to leave to my family.

I get to go shopping now; for term life insurance, funeral

insurance.... life is such a picnic out here in movie and book royalty

land!!!!!

I have never said anything about my medical situation publicly

before and assume it will stay on this list. But your insensitivity pushed

me to share it. I don't like wearing my troubles on my sleeve so after you

let this sink in and perhaps understand some of my motivation a little

better, I would appreciate this being kept private.

Have a nice day,

Jerry Newport