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,

had tubes placed earlier than . We did however see a major

improvement in her vocalizations. It was a big deal to hear her voice.

She had trouble with consonants, though. She just recently got hearing

aides. She wears the left one all the time. This was another milestone.

She has experimented with different pitches in her voice and she is

actually saying words...albeit a consonant may still be left out. The

big thing is she is interested in talking!!

The tubes worked for and we are glad she has them. The hearing

aides were an adjustment, more for us!! may not need them,

hopefully. But what a difference even just the tubes made.

Colleen

wife to Phil, mom to , 20 mos,ChARGE

Ardsley, PA

pc1feather@...

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Colleen,

Thanks for your reply, did you ever attempt to introduce sign language to

it's something that has been on my mind but I don't really know where to

begin.

, Wife to , Mom to (4), Kaitlynn(21/2), & (17 months)

Winnipeg, Manitoba

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,

We did start signing to because she was delayed in her expressive

communication. We just started with three books I picked up from

AMAZON.com, through the link on Casey's web page. The address is on my

bookmark so I don't have it on hand - Casey? They are:

Simple Signs by Wheeler

More Simple Signs by Wheeler

Signing For Kids by Mickey Flodin

The first two books are written for children. The last one includes

words kids may want/need to know. We started by doing the sign as we

said the word we wanted her to learn. Repetition was/is key. Sometimes

we did hand over hand to show her how to do it. Consistency is

important. has moved into a phase where she copies what we do so

it's getting easier. She will learn a bunch of signs then hit a spell

where she won't learn any. The cycle then repeats! :)

We started with more, please and thank you. now has a small

vocabulary of about 25 words. She definitely makes her signs as a 20

month old would but we understand her. It has actually helped her

communication skills and we are glad we did it. Her PT has a deaf

daughter who we met with once already who is going to help us learn more

signing.

I would start now with . Some people questioned us because they

believed we would hinder her speech. We disagree. Her therapists do

too. We all believe she is doing better because of it.

I have an extra Simple Signs book. I could mail it to you if you e-mail

me your address or bring it to Houston if you are going. Let me know.

Colleen

wife to Phil, mom to , 20 mos,ChARGE

Ardsley, PA

pc1feather@...

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-

We have also taught Aubrie sign even tho she is not deaf. She can say

" mama " and " dada " but she doesn't babble all the consonant sounds yet.

She signs about 10 words. I agree with Colleen that it makes sense to

start as soon as possible. If Aubrie couldn't sign, she'd have no

expressive communication -- except crying, whining, tantrums, etc. We

don't have much of that because she can tell us most of what she needs

and wants.

I have used several sign books and videos. I got most of them thru our

state's School for the Deaf. We also have a therapist from there who

has taught me a lot and I've taken classes at the school. If you need

ideas on specific books and videos, let me know.

It's fun to learn but it has been slow-going and frustrating at times.

Just when I thought I was at a plateau in my learning of ASL, I went

back thru my flashcards and realized that I know many, many words. I

just have to work at putting them into use on a regular basis.

I knew for a long time that it made sense to sign with Aubrie and I had

great intentions... but I put it off for months. Then when I finally

put my mind to it, it wasn't that hard to learn. If you decide to do

it, just relax, get started, and go at a pace that is comfortable for

you. I found out that it's just not something to stress-out about.

Once you find the resources available to you and get started, it'll all

just fall into place.

Oh, and there are atleast 2 ASL on-line dictionaries that I have found.

They're kind of fun, too!

Michele

mom to Aubrie (18 mos) CHaRgE and (7 yrs), wife to DJ, in IL

westml@...

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Thank you for your encouragement in pursuing sing language, I haven't had

much encouragement from 's medical staff. I certainly feel it's important

she's 17 mo. and I can tell she's frustated at not communicating with us. These

past 3 days have been extremely hard she wouldn't stop crying and just wanted to

cuddle wiyh me all day, so I finaly took her in yesterday and it turns out she

has both ear and chest infections.I have to say sing language overwhelms me but

if you could tell me out of all the books if I were to go buy one wich would be

the best to start with?

Colleen thank you for your offer on the book, unfortunatly we can't go to

Huston, it would be great to meet all of you...oh well maybe next time. If you

wanted to mail it to me, that would be great, if it would be cheapper to

purchace it here I don't mind, do you have to go to a special store for these

books or can you find them in a regular book, it may be different here in Canada

I'm getting the feeling we don't have as much varioty, I've been looking for a

long time for sun glasses that would work for ...Anyway I will have to

get back to you regarding my address because we are moving at the end of this

month and weare still in limbo as to where we will go, but that's another

storie.... Have a good day everyone,

, Wife to , Mom to ... & (17mo.)

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I found a whole shelf of ASL books at & Noble. Do you have a

store like that in Canada? There is one book I've been considering

buying but wasn't sure I wanted to spend the money on. So I got it thru

our library system. Do you have an interlibrary loan system there?

Even tho our little local library didn't have it, they got it from a

bigger library somewhere else in the state. If you're internet

connected, you'll have to try the online dictionaries. They are 3-D and

in motion like the CD-rom Colleen mentioned. Is there anyone in your

community who knows sign and could spend just a few hours helping you

get started? It made a big difference to me to have someone give me

ways to remember the signs and show me in person. Starting just from

the books would be harder -- altho it's certainly do-able! I don't want

to discourage you. It is overwhelming, but just start slow and you'll

do fine.

I think the best starting place is a book with signs for kids. We used

Signs for Me. It's grouped by category and has all sorts of words kids

use. But it doesn't give any instruction on signing. Most sign

dictionaries have some instructional info at the beginning.

Michele

mom to Aubrie (18 mos) CHaRgE and (7 yrs), wife to DJ, in IL

westml@...

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Colleen:

Great news about and signing! It starts slowly, then...LOOK OUT! We

started signing when was only 6-9 months old (and we were not fluent

since we were learning as well!), and now I can't even begin to tell you how

many words she knows. That's because we are into sentences, descriptions,

instructions, etc.!

>I would start now with . Some people questioned us because they

>believed we would hinder her speech. We disagree. Her therapists do

>too. We all believe she is doing better because of it.

I agree with you. Even though will probably never have speech; if

she were capable of it I'm certain because of all the delays we would have

still signed with her early on. Nice to see a therapist who actually agrees

with signing.

One of our local school districts even has been using ASL in their standard

curriculum for their schools. They have found that signing reinforces

vocabulary in the earlier grades (1, 2, and 3 particularly) and helps with

spelling. These are very visual/hands-on ages for learning. Sign language

reinforces that learning style.

Keep up the good work.

Friends in CHARGE,

Marilyn Ogan

Mom of Ken (9) and (6 - CHARGE), Wife of Rick

Indianapolis, IN

oganm@...

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Michele,

I will gladly bring the sign books I have to Houston however you are far

more up to speed then me!! :) I haven't checked out any online ASL

sites/dictionaries. We also have not taken any classes yet. It is part

of our plan. Where did you find flash cards? Or did you put them

together yourself?

,

I found the books on line at AMAZON.com. I went onto Casey's web page

and the link for AMAZON is on there. It was cheaper there. The drawback

is you use your credit card on line. If that is not an issue for you,

you may want to check it out. I have also found them at and

Noble. Let me know your new address and I'll send the one I have.

Colleen

wife to Phil, mom to , 20 mos,ChARGE - Eye Surgery on Wed.

Ardsley, PA

pc1feather@...

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Colleen-

I am borrowing the ASL flash cards from my ST. They are better than a

book for learning because you can't see the sign while you're looking at

the word. I can give you the info on them if you're interested in

finding them somewhere.

Michele

mom to Aubrie (18 mos) CHaRgE and (7 yrs), wife to DJ, in IL

westml@...

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  • 1 month later...

Hi all,

I have a question for you. My daughter, Ali, has fairly good receptive

language skills. She does have difficulties with the expressive language.

Her words tend to evolve. It isn't easy for her verbally. I understand

most of what she says, but other people may not. They are having

difficulties understanding her verbally at school. The question is -

Could there be a neurological reason for this problem. Are there any tests

to find out??? Does anyone know..... I would appreciate any imput or

thoughts on this.

Thank you

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RE: Hearing

Hi Michele:

I am under the assumption that her audiological tests for hearing were all

normal?

When you say her " words tend to evolve " I'm not clear in what you mean.

Does she demonstrate clear meaning in her responses but the speech sounds

are unclear? Cranial nerve involvement (twelve pairs of nerves arise

directly from the undersurface of the brain to supply head and neck) may

include nerves that supply info. to the muscles of the tongue, also facial

muscles. This would affect speech. Hearing may be affected by the nerves

that supply info. to the brain (vestibular and coclear nerve of hearing run

side by side). I believe an MRI can test for nerve function?

Therapies include the cranial-sacral therapy mentioned available by

the Handel method. (from Seattle) She is running workshops throughout the

States, and teaching others to carry on her methods. ( The nerve tapping she

demonstrated at the conference is so simple, maybe we could scan our copy

for others? Not sure if this is ok to do)

Other therapies may include those of " applied kinesiologist " who are

trained chiropractors who study further to use the nerve system mapped out

by the ancient Chinese. Speech may also be affected by extra tissue under

the tongue or not joined properly which can be clipped if needed. Speach

therapy is also valuable which I assume she is getting? OT therapy can help

working muscles of face, lips and tongue and an OT can assess the proper use

or effectiveness of these small muscles.

Ann Gloyn, D. B. Specialist, Canada

> From: bass@...

>

> Hi all,

> I have a question for you. My daughter, Ali, has fairly good receptive

> language skills. She does have difficulties with the expressive

language.

> Her words tend to evolve. It isn't easy for her verbally. I

understand

> most of what she says, but other people may not. They are having

> difficulties understanding her verbally at school. The question is -

> Could there be a neurological reason for this problem. Are there any

tests

> to find out??? Does anyone know..... I would appreciate any imput or

> thoughts on this.

>

> Thank you

>

>

>

> ---------------------------

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