Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 I say make her comfortable. I am not that knowledgagble but I want comfort when my time comes. Thanks for this day and for our tomorrows  Love, Lyncia   Subject: Mom on morphine To: livercirrhosissupport Date: Thursday, December 17, 2009, 10:43 PM  Hello everyone. Need help pls. My mom had 7 liters removed 3 weeks ago and has gone downhill fm there. She has advanced cirrhosis and apparently now has a metastasized cancer fm ovaries to abdomen and lung. Has left pleural effusion. Doctors kept telling us my mom is to sick an terminal and we should do hospice. So we all agreed for home hospice as painful as it was. My question is on morphine and restoril? Will they make her get encephalopathy or make her worse? Please, appreciate facts, i dont want to freak out not knowing. Thx so much. We r still at hospital until Monday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 rosana, i am keeping you and you mother and family in my prayers honey,much love barby > > Dear na, hi. my name is Bobby Aragon. I am a 46 year old man with end stage liver disease from alcoholism. I was also a caretaker to me best friend of 9 years, Ardis, and she died of the same disease from the same underlying cause. > > http://onethreezeroonethree.blogspot.com/ > > I got Ardis admitted to a hospice, and needless to say, it was the single best soloution. She was terminal, and in the end stages for a whole summer and I did get a last minute liver transplant evealuation for her, and only after being told that she could not get a transplant, did I give up hope and by then I was as ready as a person could be, after watching her suffer terribly for 4 years. There is a great file here about how morphine works. actually there are two. I am putting a link here > http://health.groups.yahoo.com/group/livercirrhosissupport/files/ > > these will be easier to download with a browser like firefox. Internet explorer will block you from downloading them. > > To give a short answer, yes, pain relievers like morphine can increase mental status changes and encephalopathy. Be forewarned, though, I was very scared to see Ardis suffer, but I was also scared to lose the ability to communicate with my kindred spirit. The hospice nurses were kind and caring but made it clear that they would not take that concern over concern for her pain. In the end, it was me who begged them for more morphine. I take morphine every day for severe liver and spleen pain. After a person gets used to it, the only two symptoms which remain are dilated pupils and potential constipation. I take colace and I take lactulose for encephalopathy myself, and I avoid constipation. I also eat dried fruit, like mango, and apples and strawberries, and eat Kashi and granola. > Every thing that would normally give a person the runs, I eat. I drink plenty of water. At least because of the cancer, your mom will be given pain meds as she needs them. Not every one who has non cancer pain can obtain them Some are left to totally suffer in constant pain. > > The Restoril is a benzodiazipine used for sleeplessness, and to calm a patient, and this is likely to increase or cause hepatic encephalopathy as well. The attitude in a hospice is night and day from the attitude in a hospital though. They may be concerned about encephalopathy, but they will be far far more interested to see that you mom is comfortable and not in pain or agitated. I was very very suprised when Ardis was in there. Her dying wish was a cold bottle of beer, and the hospice doctor wrote a prescription for her, and she got to have one. They wanted to give here any thing possible that they could to make her last time special and it was. > They kept her on lactulose, but on her last day, when she couldnt really take it, the nurse just wrote it down and dumped it out. > > > > We have a good PDF or power point on " End of life care " , and I urge you to read that one most of all. As it says in there, there is only one chance to do this right. I know that may come across wrong, but trust me. We are born and every one who welcomes us in to this world has made special preparations long in advance. It should be the same for our loved ones at the end of thier lives. May God bless you and your mom, and family and we shall be with you through this difficult time. > > Love, Bobby > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, December 17, 2009 9:43:09 PM > Subject: Mom on morphine > > > Hello everyone. Need help pls. My mom had 7 liters removed 3 weeks ago and has gone downhill fm there. She has advanced cirrhosis and apparently now has a metastasized cancer fm ovaries to abdomen and lung. Has left pleural effusion. Doctors kept telling us my mom is to sick an terminal and we should do hospice. So we all agreed for home hospice as painful as it was. My question is on morphine and restoril? Will they make her get encephalopathy or make her worse? Please, appreciate facts, i dont want to freak out not knowing. Thx so much. We r still at hospital until Monday. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Hi na, My mom went into a non home hospice last friday. A week ago. She arrived about 5pm. They started giving her morphine right away. She would awake every 20 mins for a couple mins. 4am she would start to mumble. She passed away a little after noon time. We had her funeral yesterday. it was beautiful. We were very happy with the hospice. Chris > Dear na, hi. my name is Bobby Aragon. I am a 46 year old man > with end stage liver disease from alcoholism. I was also a caretaker > to me best friend of 9 years, Ardis, and she died of the same > disease from the same underlying cause. > > http://onethreezeroonethree.blogspot.com/ > > I got Ardis admitted to a hospice, and needless to say, it was the > single best soloution. She was terminal, and in the end stages for a > whole summer and I did get a last minute liver transplant > evealuation for her, and only after being told that she could not > get a transplant, did I give up hope and by then I was as ready as a > person could be, after watching her suffer terribly for 4 years. > There is a great file here about how morphine works. actually there > are two. I am putting a link here > http://health.groups.yahoo.com/group/livercirrhosissupport/files/ > > these will be easier to download with a browser like firefox. > Internet explorer will block you from downloading them. > > To give a short answer, yes, pain relievers like morphine can > increase mental status changes and encephalopathy. Be forewarned, > though, I was very scared to see Ardis suffer, but I was also scared > to lose the ability to communicate with my kindred spirit. The > hospice nurses were kind and caring but made it clear that they > would not take that concern over concern for her pain. In the end, > it was me who begged them for more morphine. I take morphine every > day for severe liver and spleen pain. After a person gets used to > it, the only two symptoms which remain are dilated pupils and > potential constipation. I take colace and I take lactulose for > encephalopathy myself, and I avoid constipation. I also eat dried > fruit, like mango, and apples and strawberries, and eat Kashi and > granola. > Every thing that would normally give a person the runs, I eat. I > drink plenty of water. At least because of the cancer, your mom will > be given pain meds as she needs them. Not every one who has non > cancer pain can obtain them Some are left to totally suffer in > constant pain. > > The Restoril is a benzodiazipine used for sleeplessness, and to calm > a patient, and this is likely to increase or cause hepatic > encephalopathy as well. The attitude in a hospice is night and day > from the attitude in a hospital though. They may be concerned about > encephalopathy, but they will be far far more interested to see that > you mom is comfortable and not in pain or agitated. I was very very > suprised when Ardis was in there. Her dying wish was a cold bottle > of beer, and the hospice doctor wrote a prescription for her, and > she got to have one. They wanted to give here any thing possible > that they could to make her last time special and it was. > They kept her on lactulose, but on her last day, when she couldnt > really take it, the nurse just wrote it down and dumped it out. > > We have a good PDF or power point on " End of life care " , and I urge > you to read that one most of all. As it says in there, there is only > one chance to do this right. I know that may come across wrong, but > trust me. We are born and every one who welcomes us in to this world > has made special preparations long in advance. It should be the same > for our loved ones at the end of thier lives. May God bless you and > your mom, and family and we shall be with you through this difficult > time. > > Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Thu, December 17, 2009 9:43:09 PM > Subject: Mom on morphine > > Hello everyone. Need help pls. My mom had 7 liters removed 3 weeks > ago and has gone downhill fm there. She has advanced cirrhosis and > apparently now has a metastasized cancer fm ovaries to abdomen and > lung. Has left pleural effusion. Doctors kept telling us my mom is > to sick an terminal and we should do hospice. So we all agreed for > home hospice as painful as it was. My question is on morphine and > restoril? Will they make her get encephalopathy or make her worse? > Please, appreciate facts, i dont want to freak out not knowing. Thx > so much. We r still at hospital until Monday. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 I agree with Lyncia!! I have absolutely no medical knowledge; but, know that I do not want to be suffering the pain that your mother probably has now. My family all knows that if I ever get there - I just want somebody to turn up the morphine and let me go. My condolences to your whole family.. Your mom must be a very loving human being if her kids are there at the last. Gloria ________________________________ I say make her comfortable. I am not that knowledgagble but I want comfort when my time comes. Thanks for this day and for our tomorrows Love, Lyncia From: na Reytan <lovelylady0209@ yahoo.com> Subject: Mom on morphine To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Thursday, December 17, 2009, 10:43 PM Hello everyone. Need help pls. My mom had 7 liters removed 3 weeks ago and has gone downhill fm there. She has advanced cirrhosis and apparently now has a metastasized cancer fm ovaries to abdomen and lung. Has left pleural effusion. Doctors kept telling us my mom is to sick an terminal and we should do hospice. So we all agreed for home hospice as painful as it was. My question is on morphine and restoril? Will they make her get encephalopathy or make her worse? Please, appreciate facts, i dont want to freak out not knowing. Thx so much. We r still at hospital until Monday. Quote Link to comment Share on other sites More sharing options...
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