Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Hello. Its been awhile since I posted. I have been busy with the home office preparation and end of summer stuff. I have one more week to go before I am completly home. I can't wait. I told the office manager Thursday her time was up. I allowed her to stay for 3 extra weeks while she was still looking for another job, or so she claimed she was looking. She exploded into a rage like I haven't seen in about 2 years. She got right up in my face and told me I was going to get mine, that I screwed her over and ruined her life. She told me I needed a head doctor the I was nuts and yelled numerous swear words at me at the top of her voice. It was a lovely site???? She was the last disfunctional left in my life. NO MORE!!! That door is closed and I will do my best to monitor anyone entering my life. Funny thing is I do not miss anyone that I have cut out of my life. I grieved the lose of them, more for what should have been and was not, but the reality of they way the are is to much to take and I do not miss a single one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Wow! That's really dramatic from someone outside the FOO. How did your react? I'm very glad that nut job is out of your life. That's kind of scary if you ask me. Kerrie > > > > Hello. Its been awhile since I posted. I have been busy with the home > office preparation and end of summer stuff. I have one more week to go > before I am completly home. I can't wait. > > I told the office manager Thursday her time was up. I allowed her to > stay for 3 extra weeks while she was still looking for another job, or > so she claimed she was looking. She exploded into a rage like I > haven't seen in about 2 years. She got right up in my face and told me > I was going to get mine, that I screwed her over and ruined her life. > She told me I needed a head doctor the I was nuts and yelled numerous > swear words at me at the top of her voice. It was a lovely site???? > She was the last disfunctional left in my life. NO MORE!!! > That door is closed and I will do my best to monitor anyone entering > my life. Funny thing is I do not miss anyone that I have cut out of my > life. I grieved the lose of them, more for what should have been and > was not, but the reality of they way the are is to much to take and I > do not miss a single one. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Hi Peggy, You just did start communication. Jump in with and whenever you like. There are many caring, supportive and knowledable ( uhhgg I hate forgetting how to spell ) people here. We are dealing with liver disease in every shape, form, and fashion. Someone of us with having liver disease, some as caretakers, some as family and friends. I don't have that much knowledge and am not sure what the A stands for in A.L.D...oh, unless it's for advanced? Anyway, welcome to you and your hubby...Debbie > > How do I start to communicate with the group? It is my husband Tom that has A.L.D. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Each of these emails is doing so. Every one here can read what you have said. I am replying to your earlier post right after I catch up.. Love, Bobby (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Wed, February 10, 2010 4:06:54 PM Subject: Hello How do I start to communicate with the group? It is my husband Tom that has A.L.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Hi Peggy...sorry I'm a little late chiming in...Welcome!!!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Wed, February 10, 2010 6:06:54 PM Subject: Hello  How do I start to communicate with the group? It is my husband Tom that has A.L.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Oh, Darla. I am so sorry you had to join this group under these conditions. You dad is very very sick. Is the encephalopathy from cirrhosis? Have you asked about hospice for him? Have they ruled out a transplant for him? Forgive me, I am not clear about age limit for transplants. My post of a few days ago adressed encephalopathy, here is thwe link to that post just click here http://health.groups.yahoo.com/group/livercirrhosissupport/message/24784 It seems like hospice care might be appropriate for you dad. They do a whole different kind of treatment. It focuses on palliative care, which is comfort care rather than trying to keep a patient alive, even when the odds of survival are low. Please keep us informed how it goes. Our hearts and prayers go out to you tonight. Love, Bobby (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Sun, February 14, 2010 2:20:08 PM Subject: hello my name is darla and my dad is 76 yrs. diagnosed with moderat hepatic encelophathy. he can't move or talk and has a trach in the ICU where he has to use a breathing machine at night. lots of fevers and has been this way for a month with infections. coded blue twice. very weak and tired. help, darla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 thank you soooo much for your reply Bobby. i visited him tonight in the ICU and they said he is somewhat breathing room air in his trachea during the day and night but his pulse ox is low, pb high and he still has a temp. he was very active tonight, his eyes bloodshot, and he is in a dreamstate. he moved his arms and his feet somewhat but i felt like he wasn't communicating with me. the whole week PT's and ST's discharged him b/c they didn't think he was responding properly. i think they need to do a psyche consult to see if we are even dealing with my dad. he's not the nicest drunk but he is a MEAN sober and hates hospitals. i just don't think i am dealing with him 100%. i believe a hospice is the best way to go once we get more feedback from the dr.s i know my dad is waaaaay too weak for a transplant. he couldn't even get the vascular or neurosurgery he needed a yr. ago after his stroke. he's been thru a quadruple bypass, prostate cancer, bleeding from esophogus, numerous blood transfusions and a stroke. he couldn't walk on his own before he got to the hospital. his blood was 3 times the TX limit in alcohol level in law. it's amazing he wasn't dead then when i brought him in. i need all the advice i can get based on this info. he was unpredictable all my life and now his sicknesses definitely are no different. thanks, darla ________________________________ To: livercirrhosissupport Sent: Sun, February 14, 2010 9:16:36 PM Subject: Re: hello Oh, Darla. I am so sorry you had to join this group under these conditions. You dad is very very sick. Is the encephalopathy from cirrhosis? Have you asked about hospice for him? Have they ruled out a transplant for him? Forgive me, I am not clear about age limit for transplants. My post of a few days ago adressed encephalopathy, here is thwe link to that post just click here http://health. groups.yahoo. com/group/ livercirrhosissu pport/message/ 24784 It seems like hospice care might be appropriate for you dad. They do a whole different kind of treatment. It focuses on palliative care, which is comfort care rather than trying to keep a patient alive, even when the odds of survival are low. Please keep us informed how it goes. Our hearts and prayers go out to you tonight. Love, Bobby (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Darla Tolliver <darlatolliver@ sbcglobal. net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sun, February 14, 2010 2:20:08 PM Subject: hello my name is darla and my dad is 76 yrs. diagnosed with moderat hepatic encelophathy. he can't move or talk and has a trach in the ICU where he has to use a breathing machine at night. lots of fevers and has been this way for a month with infections. coded blue twice. very weak and tired. help, darla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I read your post this morning, and understand to a large degree where you stand and where your dad is medically speaking. I am a recovering alcoholic with end stage liver disease, and in 2006, the catalyst for me to seek help and get sober was watching my best friend and loved one die from alcoholic liver disease. Her name is Ardis, and she want to heaven on August 3rd 2006, in a comfortable hospice, holding my hand. Your dad is at the end of a very long road, and you seem to understand this quite well. The saddest thing is to watch folks who cannot accept this and founder and flub up what I always say is " one chance to get it right " . It is not different than any other major milestone in life- A wedding hall is no place for a heart transplant, a bar no place for the birth of a baby, and a hospital is no place for a man to die with dignity, peace and comfort. Hospitals do not like it when people die, they fight it with all their strength, and it's a good thing, because it is what we want them to do...the death of a patient, no matter how mean they have been, or nice is devastating for a floor staff... A hospice on the other hand, well, they have a corner on how to do it right. You are in the right place for support. The group is a little quiet this morning, probably hung over on valentines chocolate, which is no good for liver disease-ers. I hope some will chime in here, but I think you are on the right track. I am again sorry about your dad. I hope this can come together for you. I am posting a link to my story of Ardis, I hope it can help you in any small way. Love, Bobby http://onethreezeroonethree.blogspot.com/ (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Sun, February 14, 2010 11:43:36 PM Subject: Re: hello thank you soooo much for your reply Bobby. i visited him tonight in the ICU and they said he is somewhat breathing room air in his trachea during the day and night but his pulse ox is low, pb high and he still has a temp. he was very active tonight, his eyes bloodshot, and he is in a dreamstate. he moved his arms and his feet somewhat but i felt like he wasn't communicating with me. the whole week PT's and ST's discharged him b/c they didn't think he was responding properly. i think they need to do a psyche consult to see if we are even dealing with my dad. he's not the nicest drunk but he is a MEAN sober and hates hospitals. i just don't think i am dealing with him 100%. i believe a hospice is the best way to go once we get more feedback from the dr.s i know my dad is waaaaay too weak for a transplant. he couldn't even get the vascular or neurosurgery he needed a yr. ago after his stroke. he's been thru a quadruple bypass, prostate cancer, bleeding from esophogus, numerous blood transfusions and a stroke. he couldn't walk on his own before he got to the hospital. his blood was 3 times the TX limit in alcohol level in law. it's amazing he wasn't dead then when i brought him in. i need all the advice i can get based on this info. he was unpredictable all my life and now his sicknesses definitely are no different. thanks, darla ____________ _________ _________ __ From: Bob Aragon <robwalkingeagle@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sun, February 14, 2010 9:16:36 PM Subject: Re: hello Oh, Darla. I am so sorry you had to join this group under these conditions. You dad is very very sick. Is the encephalopathy from cirrhosis? Have you asked about hospice for him? Have they ruled out a transplant for him? Forgive me, I am not clear about age limit for transplants. My post of a few days ago adressed encephalopathy, here is thwe link to that post just click here http://health. groups.yahoo. com/group/ livercirrhosissu pport/message/ 24784 It seems like hospice care might be appropriate for you dad. They do a whole different kind of treatment. It focuses on palliative care, which is comfort care rather than trying to keep a patient alive, even when the odds of survival are low. Please keep us informed how it goes. Our hearts and prayers go out to you tonight. Love, Bobby (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Darla Tolliver <darlatolliver@ sbcglobal. net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sun, February 14, 2010 2:20:08 PM Subject: hello my name is darla and my dad is 76 yrs. diagnosed with moderat hepatic encelophathy. he can't move or talk and has a trach in the ICU where he has to use a breathing machine at night. lots of fevers and has been this way for a month with infections. coded blue twice. very weak and tired. help, darla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 wow! that was a lot to read but i couldn't stop reading. i relate sooo much to the story in so many different ways. my family has always put unhealthy expectations on me and themselves to get him to stop drinking. i had my peace with him 2 years ago. 'dad? if you don't quit drinking... you will continue to deteriorate.' he said, ' time for you to go.' the rest of my family still believes he can be rehabilitated b/c " this is their chance. " i said 'classic signs of the child of an alcoholic.' i've realized through many years of therapy that you can only manage, not control your life. and that is how you handle an alcoholic. i have dealt with major anxiety before this time but am now managing it. it has been very frustrating b/c I look like a huge pro-death person to the dr.s and some of my " optimistic " family. i said it was my way of protecting myself. my Christian friends say have hope. i said, ' i don't want hope in this situation. all i want is God's will and my dad to go to heaven.' this is b/c everytime he has left the hospital for surgery or such he has gone right back to heavy drinking and no eating. i think hospice is the right answer for him at this point. he wrote DNR on all of the advanced directives but the dr.s don't pay attention to it. they revive and ask questions later. he coded blue twice and they intubated him and i cried when they suctioned him b/c it looks so uncomfortable and terrible feeling. thank you so much for listening and guiding thru your tragic experience. i am so sorry that you are having to go thru this but i am so happy you are choosing life and your loved ones over alcohol. that means A LOT to people like me!!! you are an awesome man! luv, dar ________________________________ To: livercirrhosissupport Sent: Mon, February 15, 2010 5:40:42 PM Subject: Re: hello I read your post this morning, and understand to a large degree where you stand and where your dad is medically speaking. I am a recovering alcoholic with end stage liver disease, and in 2006, the catalyst for me to seek help and get sober was watching my best friend and loved one die from alcoholic liver disease. Her name is Ardis, and she want to heaven on August 3rd 2006, in a comfortable hospice, holding my hand. Your dad is at the end of a very long road, and you seem to understand this quite well. The saddest thing is to watch folks who cannot accept this and founder and flub up what I always say is " one chance to get it right " . It is not different than any other major milestone in life- A wedding hall is no place for a heart transplant, a bar no place for the birth of a baby, and a hospital is no place for a man to die with dignity, peace and comfort. Hospitals do not like it when people die, they fight it with all their strength, and it's a good thing, because it is what we want them to do...the death of a patient, no matter how mean they have been, or nice is devastating for a floor staff... A hospice on the other hand, well, they have a corner on how to do it right. You are in the right place for support. The group is a little quiet this morning, probably hung over on valentines chocolate, which is no good for liver disease-ers. I hope some will chime in here, but I think you are on the right track. I am again sorry about your dad. I hope this can come together for you. I am posting a link to my story of Ardis, I hope it can help you in any small way. Love, Bobby http://onethreezero onethree. blogspot. com/ (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Darla Tolliver <darlatolliver@ sbcglobal. net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sun, February 14, 2010 11:43:36 PM Subject: Re: hello thank you soooo much for your reply Bobby. i visited him tonight in the ICU and they said he is somewhat breathing room air in his trachea during the day and night but his pulse ox is low, pb high and he still has a temp. he was very active tonight, his eyes bloodshot, and he is in a dreamstate. he moved his arms and his feet somewhat but i felt like he wasn't communicating with me. the whole week PT's and ST's discharged him b/c they didn't think he was responding properly. i think they need to do a psyche consult to see if we are even dealing with my dad. he's not the nicest drunk but he is a MEAN sober and hates hospitals. i just don't think i am dealing with him 100%. i believe a hospice is the best way to go once we get more feedback from the dr.s i know my dad is waaaaay too weak for a transplant. he couldn't even get the vascular or neurosurgery he needed a yr. ago after his stroke. he's been thru a quadruple bypass, prostate cancer, bleeding from esophogus, numerous blood transfusions and a stroke. he couldn't walk on his own before he got to the hospital. his blood was 3 times the TX limit in alcohol level in law. it's amazing he wasn't dead then when i brought him in. i need all the advice i can get based on this info. he was unpredictable all my life and now his sicknesses definitely are no different. thanks, darla ____________ _________ _________ __ From: Bob Aragon <robwalkingeagle@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sun, February 14, 2010 9:16:36 PM Subject: Re: hello Oh, Darla. I am so sorry you had to join this group under these conditions. You dad is very very sick. Is the encephalopathy from cirrhosis? Have you asked about hospice for him? Have they ruled out a transplant for him? Forgive me, I am not clear about age limit for transplants. My post of a few days ago adressed encephalopathy, here is thwe link to that post just click here http://health. groups.yahoo. com/group/ livercirrhosissu pport/message/ 24784 It seems like hospice care might be appropriate for you dad. They do a whole different kind of treatment. It focuses on palliative care, which is comfort care rather than trying to keep a patient alive, even when the odds of survival are low. Please keep us informed how it goes. Our hearts and prayers go out to you tonight. Love, Bobby (saadn'leelt- da ya day- n'zho) long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Darla Tolliver <darlatolliver@ sbcglobal. net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sun, February 14, 2010 2:20:08 PM Subject: hello my name is darla and my dad is 76 yrs. diagnosed with moderat hepatic encelophathy. he can't move or talk and has a trach in the ICU where he has to use a breathing machine at night. lots of fevers and has been this way for a month with infections. coded blue twice. very weak and tired. help, darla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 welcome darla, i am barby caregiver for my husband,he has esld due to hep c. i dont have much ino to offer you about your dad, but i am here to talk and support you and your family and i will keep you all in my prayers, others here will have more knowledge you are seeking. much love barby > > my name is darla and my dad is 76 yrs. diagnosed with moderat hepatic encelophathy. > he can't move or talk and has a trach in the ICU where he has to use a breathing machine at night. > lots of fevers and has been this way for a month with infections. coded blue twice. very weak and tired. > > help, > darla > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.