I saw Liver transplant coor. today(UCSF)

[Guest guest]

Today I took all my records and films in to the transplant

coordinator. While I was there I met a young mother of two year old

twins who had gotton Hep C from a blood transfusion she received

during a very hard labor. I cryed and she cryed and we talked. Then a

woman who had gotten her transplant came in. It was almost more than

I could handle in one day. She looked very strong/very much in tune

with her faith. She told me to hang in there. Her sister gave me a

hug and once again I thought I was going start bawling like a baby

there in the waiting room.

I was told that I would not need a liver transplant for some time. I

mentioned the pain I still had from my last liver biopsy. He told me

that some people have pain for several months after a liver biopsy

because some of the nerves in the area have been irritated. I do not

have any liver deterioration at this time. Only my large ducts are

involved. He said I would not be listed. Iam still in the early

stages of PSC.

My love goes out to those of you who are suffering and in pain right

now.

Andi