Re: Sad news about one of our group members

[Guest guest]

Hi Jim,Thanks for the kind words. Now I just have to muster the courage to go over to the corner store he runs and take him aside and ask him when a good time to talk would be. Whatever condition he has, hit him right after he reopened the store, and on top of restoring a business, he then had to take care of an ailing father; his life got really complicated. I know his time is stretched and precious, but he is precious to our community and I feel morally obligated to speak, just as someone felt morally obligated to speak to me of Lyme (thank God).I think I'll piece together a couple posts that frame n's situation and have it handy to show him, (no names mentioned) and hope the right words come.I'm feeling very sad right now. Whatever I do, I'll do it in n's name.Be well,Léna Hi Lena, Many believe ALS is end stage Lyme... Sadly, n was not dxd early on, but only after his illness was well along. Certainly the medical community in Oz is no better than our own at dxing and treating Lyme, but they do seem to understand ALS much better, but unfortunately the disease is well along by then... You are very good at communicating, talk to your friend and share your knowledge. Those of us in the know are better equipped to help others compared to doctors who still don't seem to understand what Lyme is all about. Jim > > > THank you very much Jim to tell us , > > I tryed everything I could to help him . Look slike he did not try > anything I tmakes me so sad . He had the same diagnose than my husband > who died also . > I had the same symptoms than myhusband except I went out of main > stream medecien right away . And here I ma still struggling very much > but with all my mobility back . > > I was hoping to do something for him , each time I am wondering how to > bring a message and fails to mak eit goe throught unfortunatly . the > same protocol worked fo rmy new husband who has also th elyme who was > begenning to get paralysis in the throat it was begining bad and in 4 > weeks he was out of it . i emailed him and said again and again . > Unfortunatly I could not get it crossed to him . > > I am very sad . > If only I would know how to bring a message adequatly , > I know bu tno one listen to me and they die. > h ei sin heaven now. > > THank you Jim > > Marie > > From: "Lyme_and_Rife-owner " <Lyme_and_Rife-owner > > > To: Lyme_and_Rife > Sent: Tuesday, August 23, 2011 3:35 PM > Subject: Sad news about one of our group members > > > > Hi group, > > A while ago I received information from one of my Aussie friends that > n, our group member has died. > > He had ALS and was very ill, but he was also hopeful... > > I personally will miss n, he was a good contributer > and helped me understand something in my time of need... > > Jim >

[Guest guest]

Hi all, I am very sorry to hear of his loss! I don't think I ever got to speak

to him. I may have read a post a while ago. May I ask how old he was? Was he

treating with alternatives or going to a main stream doc. It is so

sad.........I have been thinking about it a lot the past few days. Jodie

> >

> >

> > THank you very much Jim to tell us ,

> >

> > I tryed everything I could to help him . Look slike he did not try

> > anything I tmakes me so sad . He had the same diagnose than my

> husband

> > who died also .

> > I had the same symptoms than myhusband except I went out of main

> > stream medecien right away . And here I ma still struggling very much

> > but with all my mobility back .

> >

> > I was hoping to do something for him , each time I am wondering how

> to

> > bring a message and fails to mak eit goe throught unfortunatly . the

> > same protocol worked fo rmy new husband who has also th elyme who was

> > begenning to get paralysis in the throat it was begining bad and in 4

> > weeks he was out of it . i emailed him and said again and again .

> > Unfortunatly I could not get it crossed to him .

> >

> > I am very sad .

> > If only I would know how to bring a message adequatly ,

> > I know bu tno one listen to me and they die.

> > h ei sin heaven now.

> >

> > THank you Jim

> >

> > Marie

> >

> > From: " Lyme_and_Rife-owner "

<Lyme_and_Rife-owner

> > >

> > To: Lyme_and_Rife

> > Sent: Tuesday, August 23, 2011 3:35 PM

> > Subject: Sad news about one of our group members

> >

> >

> >

> > Hi group,

> >

> > A while ago I received information from one of my Aussie friends that

> > n, our group member has died.

> >

> > He had ALS and was very ill, but he was also hopeful...

> >

> > I personally will miss n, he was a good contributer

> > and helped me understand something in my time of need...

> >

> > Jim

> >

>

[Guest guest]

Lena,

I am with all my heart and my prayers with you and your friend ,

Kindly Marie

To: Lyme_and_Rife Sent: Wednesday, August 24, 2011 2:50 PMSubject: Re: Re: Sad news about one of our group members

Hi Jim,

Thanks for the kind words. Now I just have to muster the courage to go over to the corner store he runs and take him aside and ask him when a good time to talk would be. Whatever condition he has, hit him right after he reopened the store, and on top of restoring a business, he then had to take care of an ailing father; his life got really complicated. I know his time is stretched and precious, but he is precious to our community and I feel morally obligated to speak, just as someone felt morally obligated to speak to me of Lyme (thank God).

I think I'll piece together a couple posts that frame n's situation and have it handy to show him, (no names mentioned) and hope the right words come.

I'm feeling very sad right now. Whatever I do, I'll do it in n's name.

Be well,

Léna

Hi Lena,Many believe ALS is end stage Lyme... Sadly, n was not dxd early on,but only after his illness was well along. Certainly the medical communityin Oz is no better than our own at dxing and treating Lyme, but they do seemto understand ALS much better, but unfortunately the disease is well alongby then...You are very good at communicating, talk to your friend and share your knowledge. Those of us in the know are better equipped to help otherscompared to doctors who still don't seem to understand what Lyme is all about.Jim> > > THank you very much Jim to tell us ,> > I tryed everything I could to help him . Look slike he did not try > anything I tmakes me so sad . He had the same diagnose than my husband > who died also .> I

had the same symptoms than myhusband except I went out of main > stream medecien right away . And here I ma still struggling very much > but with all my mobility back .> > I was hoping to do something for him , each time I am wondering how to > bring a message and fails to mak eit goe throught unfortunatly . the > same protocol worked fo rmy new husband who has also th elyme who was > begenning to get paralysis in the throat it was begining bad and in 4 > weeks he was out of it . i emailed him and said again and again .> Unfortunatly I could not get it crossed to him .> > I am very sad .> If only I would know how to bring a message adequatly ,> I know bu tno one listen to me and they die.> h ei sin heaven now.> > THank you Jim> > Marie> > From: "Lyme_and_Rife-owner " <Lyme_and_Rife-owner > >> To: Lyme_and_Rife > Sent: Tuesday, August 23, 2011 3:35 PM> Subject: Sad news about one of our group members> > > > Hi group,> > A while ago I received information from one of my Aussie friends that> n, our group member has died.> > He had ALS and was very ill, but he was also hopeful...> > I personally will miss n, he was a good contributer> and helped me understand something in

my time of need...> > Jim>

[Guest guest]

Yes Jodie it is very sad ,

I do not know how old he was .

KIndly Marie

To: Lyme_and_Rife Sent: Wednesday, August 24, 2011 3:06 PMSubject: Re: Sad news about one of our group members

Hi all, I am very sorry to hear of his loss! I don't think I ever got to speak to him. I may have read a post a while ago. May I ask how old he was? Was he treating with alternatives or going to a main stream doc. It is so sad.........I have been thinking about it a lot the past few days. Jodie> >> >> > THank you very much Jim to tell us ,> >> > I tryed everything I could to help him . Look slike he did not try> > anything I tmakes me so sad . He had the same diagnose than my > husband> > who died also .> > I had the same symptoms than myhusband except I went out of main> > stream medecien right away . And here I

ma still struggling very much> > but with all my mobility back .> >> > I was hoping to do something for him , each time I am wondering how > to> > bring a message and fails to mak eit goe throught unfortunatly . the> > same protocol worked fo rmy new husband who has also th elyme who was> > begenning to get paralysis in the throat it was begining bad and in 4> > weeks he was out of it . i emailed him and said again and again .> > Unfortunatly I could not get it crossed to him .> >> > I am very sad .> > If only I would know how to bring a message adequatly ,> > I know bu tno one listen to me and they die.> > h ei sin heaven now.> >> > THank you Jim> >> > Marie> >> > From: "Lyme_and_Rife-owner " <Lyme_and_Rife-owner > > >> > To: Lyme_and_Rife > > Sent: Tuesday, August 23, 2011 3:35 PM> > Subject: Sad news about one of our group members> >> >> >> > Hi group,> >> > A while ago I received information from one of my Aussie friends that> > n, our group member has died.> >> > He had ALS and was very ill, but he was also hopeful...> >> > I personally will miss n, he was a good

contributer> > and helped me understand something in my time of need...> >> > Jim> >>

[Guest guest]

Sorry to hear about the loss of n, and Lena, I'm praying for you

and your friend to find healing. You're a wonderful friend!

Everyone on here is so supportive and

I wish you all continued health on this journey.

From:

Marie Benoit

To:

" Lyme_and_Rife "

<Lyme_and_Rife >

Date:

08/24/2011 04:06 PM

Subject:

Re: Re: Sad news about

one of our group members

Sent by:

Lyme_and_Rife

Lena,

I am with all my heart and my prayers with

you and your friend ,

Kindly Marie

To: Lyme_and_Rife

Sent: Wednesday, August 24, 2011 2:50 PM

Subject: Re: Re: Sad news about one of our group members

Hi Jim,

Thanks for the kind words.

Now I just have to muster the courage to go over to the corner store he

runs and take him aside and ask him when a good time to talk would be.

Whatever condition he has, hit him right after he reopened the store,

and on top of restoring a business, he then had to take care of an ailing

father; his life got really complicated. I know his time is stretched and

precious, but he is precious to our community and I feel morally obligated

to speak, just as someone felt morally obligated to speak to me of Lyme

(thank God).

I think I'll piece together

a couple posts that frame n's situation and have it handy to show

him, (no names mentioned) and hope the right words come.

I'm feeling very sad right

now. Whatever I do, I'll do it in n's name.

Be well,

Léna

Hi Lena,

Many believe ALS is end stage Lyme... Sadly, n was not dxd early

on,

but only after his illness was well along. Certainly the medical community

in Oz is no better than our own at dxing and treating Lyme, but they do

seem

to understand ALS much better, but unfortunately the disease is well along

by then...

You are very good at communicating, talk to your friend and share your

knowledge. Those of us in the know are better equipped to help others

compared to doctors who still don't seem to understand what Lyme is all

about.

Jim

>

>

> THank you very much Jim to tell us ,

>

> I tryed everything I could to help him . Look slike he did not try

> anything I tmakes me so sad . He had the same diagnose than my husband

> who died also .

> I had the same symptoms than myhusband except I went out of main

> stream medecien right away . And here I ma still struggling very much

> but with all my mobility back .

>

> I was hoping to do something for him , each time I am wondering how

to

> bring a message and fails to mak eit goe throught unfortunatly . the

> same protocol worked fo rmy new husband who has also th elyme who

was

> begenning to get paralysis in the throat it was begining bad and in

4

> weeks he was out of it . i emailed him and said again and again .

> Unfortunatly I could not get it crossed to him .

>

> I am very sad .

> If only I would know how to bring a message adequatly ,

> I know bu tno one listen to me and they die.

> h ei sin heaven now.

>

> THank you Jim

>

> Marie

>

> From: " Lyme_and_Rife-owner "

<Lyme_and_Rife-owner

> >

> To: Lyme_and_Rife

> Sent: Tuesday, August 23, 2011 3:35 PM

> Subject: Sad news about one of our group members

>

>

>

> Hi group,

>

> A while ago I received information from one of my Aussie friends that

> n, our group member has died.

>

> He had ALS and was very ill, but he was also hopeful...

>

> I personally will miss n, he was a good contributer

> and helped me understand something in my time of need...

>

> Jim

>

Any U.S. tax advice contained in the body of this e-mail was not intended or written to be used, and cannot be used, by the recipient for the purpose of avoiding penalties that may be imposed under the Internal Revenue Code or applicable state or local tax law provisions.

________________________________________________________________________

The information contained in this message may be privileged and confidential and protected from disclosure. If the reader of this message is not the intended recipient, or an employee or agent responsible for delivering this message to the intended recipient, you are hereby notified that any dissemination, distribution or copying of this communication is strictly prohibited. If you have received this communication in error, please notify us immediately by replying to the message and deleting it from your computer.

Notice required by law: This e-mail may constitute an advertisement or solicitation under U.S. law, if its primary purpose is to advertise or promote a commercial product or service. You may choose not to receive advertising and promotional messages from Ernst & Young LLP (except for Ernst & Young Online and the ey.com website, which track e-mail preferences through a separate process) at this e-mail address by forwarding this message to no-more-mail@.... If you do so, the sender of this message will be notified promptly. Our principal postal address is 5 Times Square, New York, NY 10036. Thank you. Ernst & Young LLP

[Guest guest]

Hi Aimee,

Thanks for posting this.. I think some of us knew bits and pieces about

n's story,

but this makes it very clear..

Everyone says he was a great contributor, he was... As ill as he was, he did his

best to

help others by providing information he knew about. When I was rebitten in

March,

about a month later I posted terrible fatigue, that I had somehow lowered it

before, but

was confused about what I did... n posted and remined me it was MMS...

That was

such a small thing for him to post, but it helped me immensely... I then knew

what I had to do..

I sure do miss him...

Again, thanks for posting this...

Jim

> >

> > THank you very much Jim to tell us ,

> >  

> > I tryed everything I could to help him . Look slike he did not try anything

I tmakes me so sad . He had the same diagnose than my husband who died also .

> > I had the same symptoms than myhusband except I went out of main stream

medecien right away . And here I ma still struggling very much but with all my

mobility back .

> >  

> > I was hoping to do something for him , each time I am wondering how to bring

a message and fails to mak eit goe throught unfortunatly . the same protocol

worked fo rmy new husband who has also th elyme who was begenning to get

paralysis in the throat it was begining bad and in 4 weeks he was out of it . i

emailed him and said again and again .

> > Unfortunatly I could not get it crossed to him .

> >  

> > I am very sad .

> > If only I would know how to bring a message adequatly ,

> > I know bu tno one listen to me and they die.

> > h ei sin heaven now.

> >  

> > THank you Jim

> >  

> > Marie

> >

> > From: " Lyme_and_Rife-owner "

<Lyme_and_Rife-owner >

> > To: Lyme_and_Rife

> > Sent: Tuesday, August 23, 2011 3:35 PM

> > Subject: Sad news about one of our group members

> >

> >

> >  

> >

> > Hi group,

> >

> > A while ago I received information from one of my Aussie friends that

> > n, our group member has died.

> >

> > He had ALS and was very ill, but he was also hopeful...

> >

> > I personally will miss n, he was a good contributer

> > and helped me understand something in my time of need...

> >

> > Jim

> >

>