Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 That is the problem with doing anything to do with pain....that is what my groups here have problems with. We need people who are not layed up all the time in pain. I am so glad that you were able to get progress with the med situation there. That was a big deal for many people. Good for you, girl. I don't even understand that whole concept--their concept. You know that all it is is $$$$$$$$$$$$$$$$$$$$$$$$$$$$--not people's health. That is so messed up. Jodie > > Jodie, > > It is awesome what you did 2 yrs ago. I've never done anything like what you did, but I did rally the State of Oklahoma once via the news when they cut us back from having unlimited prescription coverage to only getting 3 per month covered. How dare them cut us off like that. I take in excess of 20 different meds per month and they cut me back to ONLY 3 that were covered. OMGosh I panicked. The reporters came to my home and did an interview which was on the news all week long. A year later, they gave our meds back, but only to cover 11 of them. Which was much better than 3. Somehow I never ran out of meds. I got samples and got on the Patient Assistant Programs that many of the Drug Companies offer. But I never went without thank God! > > I don't know if I could do what you did without any help, but I'd love to try. Since my health is so much worse and way beyond just chronic pain now, I don't know how I'd hold up, but it's sure worth a try. It could take me till next September to get something together, but I'd rally for awareness to be in the same month as you did. We need this Nation wide. Perhaps this isn't out of reach and some of us from each State could do something like this a year from now. Give us time to get things in order. There is no way I could get it done by this September. > > Just a thought. > > Hugs > BIG THOUGHTS > > > To all, > > I am sitting here thinking real big--again--usually bigger than I can > handle. Last year, I wrote my governor, mayor and congressman. I > asked for them to dedicate September as Pain Awareness Month. They > did and it was pretty cool. I set up an information station with many > pain providers information and many pain groups came, we gave out free > items from different pain places, etc. Anyway, I contacted the media > and they sent a reporter to interview some docs and some chronic pain > patients. It really was cool. I did this for awareness. I think > that the awareness is not there, especially for invisible disabled. > > It would be cool if we could do something on this note if the book > gets published. Maybe a news program or a morning show could do a bit > piece on it. I got our local station to do a 7 pc story on it. > > I guess it was 2 years ago now that I did that. I'm not sure once I > filed for the proclamation it is in effect every year or just for that > year. I should check on that. The politicians wrote some very neat > things to me. I think that promoting awareness everywhere, inc. > politicians would help all of us. The more that people understand > chronic pain (or try), the more maybe we can accomplish. > > I don't know, maybe I am just thinking big. Maybe I am trying to give > ideas for your community to help you. I'm not sure. All I know is > that chronic pain has been around forever and nowhere is where we have > all gotten with it. It would be cool to make a difference, even if it > is just a bit. > > Hugs to you all, Jodie > > > > > > Quote Link to comment Share on other sites More sharing options...
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