Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Penny, How solid is the diagnosis of your PSC? Might it be possible that the fungal attack had been going on for a while before it really flared? Then the Sclerosing Cholangitis would be secondary, caused be the fungus, not primary. With the fungus gone recovery might then be possible. (I don't want you to get well and leave - I enjoy your postings too much - maybe you could just get well). Tim R --- PR Weller wrote: > The third part of my celebration is the fact that I was > " listed " four years ago this week. I was in dire straits and > clearly not doing well. It was thought that I would be > transplanted by August 1997. Here I am with my own liver and > normal numbers (with no loss of functioning liver to give false > readings). The tx team asked ME what I was doing. They didn't > know about SAM-e at all. > As smart as they are, this disease and its course is > unpredictable and they simply have no idea why I'm doing so > well at this moment. With all of the happy family news right > now, I'll take every good day and enjoy it. > > Penny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 Hi Penny.... My brother who is allergic to bees has that med..."Epipen"....I have seen him stung and start the reaction...but it has never been to the point where we thought we were going to have to call the ambulance.... Ty goes so quick...and he says the amount of pain...traveling thru his body...feeling that his head is litterly going to blow up...and then the tightness of his chest...I know he looks terrible and very frightened during the whole thing...I can't even imagine how horribly painful and frightening it is to him.... Luckily not many people experience this....but then I feel that they do not realize how terrible this is....for him... I so want people to understand what he goes thru...not to pitty...definately not that...but to just understand..... Sorry that you were one of the unlucky ones to have to go thru this....and hopefully it will never happen again...to either of you.... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2001 Report Share Posted May 20, 2001 Good signs from a guy who has been through so much. Barb in Texas One thing for sure, he is a fighter. He has fought through so much to stay alive. What a miracle. Barb, did you ever get to the website? Love & Prayers, Ginger Today is a Gift www.TheHandcraft.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2001 Report Share Posted May 20, 2001 Eeeeeeeeeeeeeuuuuwwwwww. Can I quote you on that? Sounds like Q is doing ok. I love to hear he is mad and upset about tubes, means he's aware & fighting mad. Good signs from a guy who has been through so much. Barb in Texas. Quote Link to comment Share on other sites More sharing options...
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