Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Patty, that is the million dollar question, I wish I had an answer, but I don't. I fear that many more women will get sick and even die, as a result of idiots like Rob Oliver. Can you tell I can't stand him? I don't know how we can make a difference, to make them listen, when there are such powerful lobbies slanting studies, and spreading misinformation. Through this whole implant debacle, my opinion of the medical community has hit the sub-basement. It is one reason why we need good regulation, and I fear we don't have it. > > > > Since the mid 80's at least ... the myth that the capsule would melt > > away or 'resolve' has been proven to be untrue ... > > > > This is an important piece to share with your doctor ... > > > > Anyone who is going to be explanted ~ please read and pass on to > > your doctor! > > > > > > Residual Capsule and Intercapsular Debris As Long Term Risk > > Factors > > > > > > Contamination of the space between the capsule and the implants > > by > > micro-organisms, silicone oils, degradation products and gel > > impurities > > constitutes a major problem which potentiates the risk of implants. > > Such > > problems include inflammation, infection, deposition of mineral > > debris, as > > well as certain auto-immune phenomena. These problems can be > > present when > > implants are in situ (in the body) and are often attributable to the > > implant. The logical expectation is that, upon removal of the > > implants, > > adverse effects will cease. This is an unjustifiably optimistic > > view. It > > is well documented from case histories that removal and or > > replacement of > > implants without exhaustive debridement of the prosthetic site leads > > to > > failure and post surgical complications. > > > > > > Plastic surgery procedures tend to favor speed and immediate > > cosmetic > > results. For these reasons, leaving or „reusing¾ tissue from an > > existing > > capsule may seem more „gratifying¾. However, adverse effects > > resulting > > from the practice are widespread but have not been well documented. > > Typically, patients who require removal of faulty implants and > > undergo > > immediate re-implantation in the same prosthetic site habitually > > relapse > > with the same problem which motivated the previous surgery; the > > most > > common example is exchange of implants and/or sectorizing or > > bisecting the > > capsule without removing it completely. > > > > > > Such patients rarely achieve a significant capsular correction > > and > > habitually return for more similar surgery. A more illustrative > > situation > > is that where patients do not receive replacement implants. They > > form the > > basis of knowledge for evaluating the risks that arise from > > remaining > > capsules. An example is described in a paper published in 1993 > > (Copeland, > > M., Kessel, A., Spiera, H., Hermann, G., Bleiweiss, I. J.; Systemic > > Inflammatory Disorder Related To Fibrous Breast Capsules After > > Silicone > > Implant Removal; Plastic and Reconstructive Surgery: 92 (6), 1179- > > 1181, > > 1993): reported problems derived primarily from immune phenomena > > and > > inflammatory syndromes with pain, swelling, serologic abnormaladies > > and > > alarming radiologic presentation. > > > > > > Numerous similar cases have been noted amongst implant patients > > but > > have not been the object of publications. Some are cited in FDA > > Reaction > > Reports. Others appear in the U.S. Pharmacopoeia Reporting > > Programs. > > > > > > A residual capsule is not a stable entity. It may collapse upon > > completion of surgery and remain asymptomatic for some time, > > however, it > > will fill with extracellular fluid and remain as a fluid-filled > > space with > > added blood and prosthetic debris. As the wall matures and the > > breast > > remodels to accommodate the loss of the prostheses, the capsular > > tissue > > shrinks. Water as well as electrolytes are expelled gradually from > > the > > pocket or else the mixture is concentrated from leakage of water > > from the > > semi-permeable capsular membrane wall. In most cases, calcium salts > > precipitate during that stage and may render the capsule visible as > > a > > radiodense and speckled zone in radiographic projections. > > Prosthetic > > debris is also radiodense and may be imaged to further complicate > > the > > presentation. The average size of the residual capsules after 6-12 > > months > > is in the 2-7 cm range: most are compact, comparatively small and > > dense. > > Surgical removal should present no difficulty for most patients if > > adequate radiographic information is available. > > > > > > Later stages of maturation include the thickening of the capsule > > wall, > > sometimes reaching 0.5-1cm. Compression of the debris into a > > cluster of > > nodules which actually become calcified follows for some patients. > > A few > > mimic malignancies. Others appear as small „prostheses¾ during > > mammographic studies. They are alarming to onocologists and are > > habitually signalled for further studies or biopsies by oncologic > > radiologists. > > > > > > In light of the present knowledge and considering the probable > > content > > of the residual closed capsules, an open or needle biopsy is not > > advisable. The risks of releasing significant amounts of hazardous > > contamination and possibly spreading infective entities outweighs > > the > > advantage of the diagnostic. At any rate, such a capsule requires > > removal > > for mitigation of symptoms and a more direct surgical approach > > appears > > more economical and less risky. > > > > > > In summary, a capsule with a dense fibro-collagenous wall > > behaves as a > > bioreactor. Worse yet, it is fitted with a semi-permeable wall that > > may > > periodically open to release its content to the breast. The > > probability > > of finding the space colonized with atypical microorganisms is > > elevated > > and the control of infective processes by classic pharmacologic > > approaches > > is difficult if not impossible. > > > > > > Such closed capsular spaces may be comparable to „artificial > > organs¾ of > > unpredictable functions. Their behavior will depend on the content > > and > > the age of the structure, its maturity and the history of the > > patient. > > There is a high probability that these capsules will continue to > > evolve > > for many years, adding more layers of fibro-collagenous tissue and > > possibly granulomatous material. If bacterial entities are present > > within > > the capsule space, they can culminate in large breast abscesses with > > will > > resist conservative treatments. > > > > > > Even with less active capsules containing mostly oily and > > calcitic > > debris, the thickening of the wall leads eventually to solid „tumor- > > like > > structures¾ and are, by themselves, alarming on auscultation and > > self > > examination. At best, such structures are unique environments for > > protein > > denaturation and aberrant biochemical reactions with unknown long > > term > > consequences. > > > > > > Pierre Blais, PhD > > Innoval > > 496 Westminster Ave. > > Ottawa, Ontario > > Canada KeA 2V1 > > 613. 728-8688 > > 613. 728-0687 Fax > > > > > > Pierre Blais, PhD received his undergraduate and graduate degrees in > > physical-organic polymer chemistry from McGill University in > > Montreal, > > Canada, and a Post-doctorate Fellowship in biomaterials engineering > > at > > Case Western University in Cleveland, Ohio. In 1976 he became one > > of the > > first scientists to join the medical devices and radiological health > > program of the Department of Health and Welfare in Canada. He left > > the > > department in 1989 as Senior Scientific Advisor and formed Innoval > > Consultants, a firm engaged in the design, testing and failure > > analysis of > > high risk medical systems. He has authored over 250 publications on > > medical materials and their interactions with living tissues. > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 I agree. All we can do is try. There are too many plastic surgeons out there removing implants -even silicone - in 45 minutes, and you know that means they don't remove the capsules. I see many op reports where surgeons did a capsulotomy - cutting into but not removing - the capsules. > > Since the mid 80's at least ... the myth that the capsule would melt > away or 'resolve' has been proven to be untrue ... > > This is an important piece to share with your doctor ... > > Anyone who is going to be explanted ~ please read and pass on to > your doctor! > > > Residual Capsule and Intercapsular Debris As Long Term Risk > Factors > > > Contamination of the space between the capsule and the implants > by > micro-organisms, silicone oils, degradation products and gel > impurities > constitutes a major problem which potentiates the risk of implants. > Such > problems include inflammation, infection, deposition of mineral > debris, as > well as certain auto-immune phenomena. These problems can be > present when > implants are in situ (in the body) and are often attributable to the > implant. The logical expectation is that, upon removal of the > implants, > adverse effects will cease. This is an unjustifiably optimistic > view. It > is well documented from case histories that removal and or > replacement of > implants without exhaustive debridement of the prosthetic site leads > to > failure and post surgical complications. > > > Plastic surgery procedures tend to favor speed and immediate > cosmetic > results. For these reasons, leaving or „reusing¾ tissue from an > existing > capsule may seem more „gratifying¾. However, adverse effects > resulting > from the practice are widespread but have not been well documented. > Typically, patients who require removal of faulty implants and > undergo > immediate re-implantation in the same prosthetic site habitually > relapse > with the same problem which motivated the previous surgery; the > most > common example is exchange of implants and/or sectorizing or > bisecting the > capsule without removing it completely. > > > Such patients rarely achieve a significant capsular correction > and > habitually return for more similar surgery. A more illustrative > situation > is that where patients do not receive replacement implants. They > form the > basis of knowledge for evaluating the risks that arise from > remaining > capsules. An example is described in a paper published in 1993 > (Copeland, > M., Kessel, A., Spiera, H., Hermann, G., Bleiweiss, I. J.; Systemic > Inflammatory Disorder Related To Fibrous Breast Capsules After > Silicone > Implant Removal; Plastic and Reconstructive Surgery: 92 (6), 1179- > 1181, > 1993): reported problems derived primarily from immune phenomena > and > inflammatory syndromes with pain, swelling, serologic abnormaladies > and > alarming radiologic presentation. > > > Numerous similar cases have been noted amongst implant patients > but > have not been the object of publications. Some are cited in FDA > Reaction > Reports. Others appear in the U.S. Pharmacopoeia Reporting > Programs. > > > A residual capsule is not a stable entity. It may collapse upon > completion of surgery and remain asymptomatic for some time, > however, it > will fill with extracellular fluid and remain as a fluid-filled > space with > added blood and prosthetic debris. As the wall matures and the > breast > remodels to accommodate the loss of the prostheses, the capsular > tissue > shrinks. Water as well as electrolytes are expelled gradually from > the > pocket or else the mixture is concentrated from leakage of water > from the > semi-permeable capsular membrane wall. In most cases, calcium salts > precipitate during that stage and may render the capsule visible as > a > radiodense and speckled zone in radiographic projections. > Prosthetic > debris is also radiodense and may be imaged to further complicate > the > presentation. The average size of the residual capsules after 6-12 > months > is in the 2-7 cm range: most are compact, comparatively small and > dense. > Surgical removal should present no difficulty for most patients if > adequate radiographic information is available. > > > Later stages of maturation include the thickening of the capsule > wall, > sometimes reaching 0.5-1cm. Compression of the debris into a > cluster of > nodules which actually become calcified follows for some patients. > A few > mimic malignancies. Others appear as small „prostheses¾ during > mammographic studies. They are alarming to onocologists and are > habitually signalled for further studies or biopsies by oncologic > radiologists. > > > In light of the present knowledge and considering the probable > content > of the residual closed capsules, an open or needle biopsy is not > advisable. The risks of releasing significant amounts of hazardous > contamination and possibly spreading infective entities outweighs > the > advantage of the diagnostic. At any rate, such a capsule requires > removal > for mitigation of symptoms and a more direct surgical approach > appears > more economical and less risky. > > > In summary, a capsule with a dense fibro-collagenous wall > behaves as a > bioreactor. Worse yet, it is fitted with a semi-permeable wall that > may > periodically open to release its content to the breast. The > probability > of finding the space colonized with atypical microorganisms is > elevated > and the control of infective processes by classic pharmacologic > approaches > is difficult if not impossible. > > > Such closed capsular spaces may be comparable to „artificial > organs¾ of > unpredictable functions. Their behavior will depend on the content > and > the age of the structure, its maturity and the history of the > patient. > There is a high probability that these capsules will continue to > evolve > for many years, adding more layers of fibro-collagenous tissue and > possibly granulomatous material. If bacterial entities are present > within > the capsule space, they can culminate in large breast abscesses with > will > resist conservative treatments. > > > Even with less active capsules containing mostly oily and > calcitic > debris, the thickening of the wall leads eventually to solid „tumor- > like > structures¾ and are, by themselves, alarming on auscultation and > self > examination. At best, such structures are unique environments for > protein > denaturation and aberrant biochemical reactions with unknown long > term > consequences. > > > Pierre Blais, PhD > Innoval > 496 Westminster Ave. > Ottawa, Ontario > Canada KeA 2V1 > 613. 728-8688 > 613. 728-0687 Fax > > > Pierre Blais, PhD received his undergraduate and graduate degrees in > physical-organic polymer chemistry from McGill University in > Montreal, > Canada, and a Post-doctorate Fellowship in biomaterials engineering > at > Case Western University in Cleveland, Ohio. In 1976 he became one > of the > first scientists to join the medical devices and radiological health > program of the Department of Health and Welfare in Canada. He left > the > department in 1989 as Senior Scientific Advisor and formed Innoval > Consultants, a firm engaged in the design, testing and failure > analysis of > high risk medical systems. He has authored over 250 publications on > medical materials and their interactions with living tissues. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Rogene, I think this is a good idea....the one thing I think needs clarification is under what agency would this packet be distributed? It has to have a name that has clout. Or maybe a bunch of names. Maybe Dr. Zuckerman's Washington DC based organization can help us, along with Ilena's Humantics Foundation for Women. Is there any other organization out there that can put their name on it? How about Dr. Kolb's Human Adjuvant Disease Corp? If we can tie all of these entities together and any others that have the same goals, perhaps we can get something going that will be effective. There's also the Hollywood group, " In the Know " that actress McDonough started after her horrific implant experience. And then there is Sally Kirkland's Institute, too.... Any others, anyone? And then we need somebody to head this up and get the ball moving! Molly?????? Patty > > Ladies . . . And Thanks Patty! > > I've often wondered if we could put a packet together > to cover all aspects, with a cover letter that gives a > quick review and arouses curiosity. . . If each of us > would make copies and HAND deliver the packet to all > the doctors in our area, PLUS the local news media, if > it would get the ball rolling. . . . Giving it to the > doctors who haven't been able to help our women is > especially important. It certainly couldn't hurt! > > I'm sure that, if the information got in the hands of > the right people things would start changing. Most of > them know women and children who have been affected > but don't understand the implant connection yet. > > We could put a complete packet in the archives so > newcomers could take the information to their doctors. > We could also distribute the packet to various women's > groups, schools and organizations. > > If we could get other groups to participate, we could > reach thousands of doctors! > > I would offer to do it, but my organizational skills > aren't that great - and my plate is very full right > now. I would be happy to distribute copies though! > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Patty I know four people (including my Mom) who have had the eye surgery - some sort of eye implants - and have noticed declining health in all four. I thought, wow, this surgery is getting so popular among the elderly, and non one could ever prove that these implants were the cause of their decline in health - it would just be blamed it on age. In the meantime, I am sure whoever makes the implants is getting very rich. I am sure the people who have the surgery are relieved to have their eye problems fixed, and don't even associate the decline in health in other areas to be related. I sure do wish that more doctors would open their eyes to see that implants of any kind cause illness. Cherie > > > > > > > > > > Ladies . . . And Thanks Patty! > > > > > > > > > > I've often wondered if we could put a packet together > > > > > to cover all aspects, with a cover letter that gives a > > > > > quick review and arouses curiosity. . . If each of us > > > > > would make copies and HAND deliver the packet to all > > > > > the doctors in our area, PLUS the local news media, if > > > > > it would get the ball rolling. . . . Giving it to the > > > > > doctors who haven't been able to help our women is > > > > > especially important. It certainly couldn't hurt! > > > > > > > > > > I'm sure that, if the information got in the hands of > > > > > the right people things would start changing. Most of > > > > > them know women and children who have been affected > > > > > but don't understand the implant connection yet. > > > > > > > > > > We could put a complete packet in the archives so > > > > > newcomers could take the information to their doctors. > > > > > We could also distribute the packet to various women's > > > > > groups, schools and organizations. > > > > > > > > > > If we could get other groups to participate, we could > > > > > reach thousands of doctors! > > > > > > > > > > I would offer to do it, but my organizational skills > > > > > aren't that great - and my plate is very full right > > > > > now. I would be happy to distribute copies though! > > > > > > > > > > Hugs and prayers, > > > > > > > > > > Rogene > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Opinions expressed are NOT meant to take the place of advice given by > >licensed health care professionals. Consult your physician or licensed > >health care professional before commencing any medical treatment. > > > > > > > > " Do not let either the medical authorities or the politicians mislead you. > >Find out what the facts are, and make your own decisions about how to live > >a happy life and how to work for a better world. " - Linus ing, two-time > >Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > > > > > > >See our photos website! Enter " implants " for access at this link: > > > >http://.shutterfly.com/action/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Eye plugs for dry eyes are made of silicone. Amazing, isn't it? > Patty > I know four people (including my Mom) who have had the eye surgery - > some sort of eye implants - and have noticed declining health in all > four. I thought, wow, this surgery is getting so popular among the > elderly, and non one could ever prove that these implants were the > cause of their decline in health - it would just be blamed it on > age. In the meantime, I am sure whoever makes the implants is > getting very rich. I am sure the people who have the surgery are > relieved to have their eye problems fixed, and don't even associate > the decline in health in other areas to be related. I sure do wish > that more doctors would open their eyes to see that implants of any > kind cause illness. > Cherie > > > --------------------------------- > Messenger with Voice. PC-to-Phone calls for ridiculously low rates. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 I think some do know - you are right. But many don't. They believe that silicone is perfectly okay - after all, it is in so many medical products. I have dry eyes, and when my opthamologist suggested eye plugs, I said NOT ON YOUR LIFE. > > > Patty > > > I know four people (including my Mom) who have had the eye surgery - > > > some sort of eye implants - and have noticed declining health in all > > > four. I thought, wow, this surgery is getting so popular among the > > > elderly, and non one could ever prove that these implants were the > > > cause of their decline in health - it would just be blamed it on > > > age. In the meantime, I am sure whoever makes the implants is > > > getting very rich. I am sure the people who have the surgery are > > > relieved to have their eye problems fixed, and don't even associate > > > the decline in health in other areas to be related. I sure do wish > > > that more doctors would open their eyes to see that implants of any > > > kind cause illness. > > > Cherie > > > > > > > > > --------------------------------- > > > Messenger with Voice. PC-to-Phone calls for ridiculously low rates. > > > > > > > > > > > > > > > > >Opinions expressed are NOT meant to take the place of advice given > >by licensed health care professionals. Consult your physician or > >licensed health care professional before commencing any medical treatment. > > > > " Do not let either the medical authorities or the politicians > >mislead you. Find out what the facts are, and make your own > >decisions about how to live a happy life and how to work for a > >better world. " - Linus ing, two-time Nobel Prize Winner (1954, > >Chemistry; 1963, Peace) > > > >See our photos website! Enter " implants " for access at this link: > ><http://.shutterfly.com/action/>http://.shutterfly.co\ m/ action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 You will probably all think me so weird, but my dog's vet asked if I wanted to have a device implanted in my dog (in case he gets lost), I said NO WAY. Cherie > > > > Patty > > > > I know four people (including my Mom) who have had the eye surgery - > > > > some sort of eye implants - and have noticed declining health in all > > > > four. I thought, wow, this surgery is getting so popular among the > > > > elderly, and non one could ever prove that these implants were the > > > > cause of their decline in health - it would just be blamed it on > > > > age. In the meantime, I am sure whoever makes the implants is > > > > getting very rich. I am sure the people who have the surgery are > > > > relieved to have their eye problems fixed, and don't even associate > > > > the decline in health in other areas to be related. I sure do wish > > > > that more doctors would open their eyes to see that implants of any > > > > kind cause illness. > > > > Cherie > > > > > > > > > > > > --------------------------------- > > > > Messenger with Voice. PC-to-Phone calls for ridiculously low rates. > > > > > > > > > > > > > > > > > > > > > > > > >Opinions expressed are NOT meant to take the place of advice given > > >by licensed health care professionals. Consult your physician or > > >licensed health care professional before commencing any medical treatment. > > > > > > " Do not let either the medical authorities or the politicians > > >mislead you. Find out what the facts are, and make your own > > >decisions about how to live a happy life and how to work for a > > >better world. " - Linus ing, two-time Nobel Prize Winner (1954, > > >Chemistry; 1963, Peace) > > > > > >See our photos website! Enter " implants " for access at this link: > > ><http://.shutterfly.com/action/>http://.sh utterfly.com/ > action/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 silicone testicles - ugh!!! what next? > > > > > > Patty > > > > > > I know four people (including my Mom) who > > have had the eye > > surgery - > > > > > > some sort of eye implants - and have noticed > > declining > > health in all > > > > > > four. I thought, wow, this surgery is > > getting so popular > > among the > > > > > > elderly, and non one could ever prove that > > these implants > > were the > > > > > > cause of their decline in health - it would > > just be blamed > > it on > > > > > > age. In the meantime, I am sure whoever > > makes the implants > > is > > > > > > getting very rich. I am sure the people who > > have the > > surgery are > > > > > > relieved to have their eye problems fixed, > > and don't even > > associate > > > > > > the decline in health in other areas to be > > related. I sure > > do wish > > > > > > that more doctors would open their eyes to > > see that implants > > of any > > > > > > kind cause illness. > > > > > > Cherie > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > > Messenger with Voice. PC-to-Phone > > calls for > > ridiculously low rates. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Opinions expressed are NOT meant to take the > > place of advice > > given > > > > >by licensed health care professionals. Consult > > your physician > > or > > > > >licensed health care professional before > > commencing any medical > > treatment. > > > > > > > > > > " Do not let either the medical authorities or > > the politicians > > > > >mislead you. Find out what the facts are, and > > make your own > > > > >decisions about how to live a happy life and > > how to work for a > > > > >better world. " - Linus ing, two-time Nobel > > Prize Winner > > (1954, > > > > >Chemistry; 1963, Peace) > > > > > > > > > >See our photos website! Enter " implants " for > > access at this > > link: > > > > > > > ><http://.shutterfly.com/action/>http://.sh > > utterfly.com/ > > > action/ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 ---YES! I'm in TOTAL agreement about speaking out! Education is the key to choices, I say! Love to you all, Sunny In , Rogene S <saxony01@...> wrote: > > Margie, > > For myself, I see activism as a good outlet for the > stress I feel over breast implants! . . . I hope you > will too. . . . I'm just one person, but I KNOW I've > reached thousands of women! . . . Attitudes about > implants are changing, and I pray I'm part of that > change! . . . > > We don't have the big bucks to pay for advertising, > but we do have friends and family who understand and > will help spread the truth! . . . We just have to keep > on keeping on until plastic surgeons feel ashamed IF > they offer breast implants - and the medical > professionals know about implant illnesses and treat > their patients properly! > > God Bless, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Margie Hang in there. I know it doesn't seem like it right now, but you will get through this. And we are here for you anytime you need a listening ear. It is very hard for some people --especially men--to deal with emotions. Your husband is being selfish, withdrawn and totally nonsupportive. He probably doesn't have a clue as to how to deal with you and your problems, and is perhaps depressed himself too. Also, if you are anywhere in your forties or fifties, your hormonal system may well be out of balance contributing to feelings of depression, hopelessness, sadness, irritability, anger, etc. I am fifty one and am in the midst of dealing with perimenopause and it has wreaked not only emotional havoc (I am always a split second from tears) but physical havoc as well. Hormone fluctuations increase symptoms of autoimmune illness. For me, it is like night and day the way I feel physically (and mentally) depending on the day of the month. I have found that other people react to my increased emotionality in a nonunderstanding way. Especially my 18 year old daughter! I have felt much more vulnerable emotionally this last couple of years and find myself avoiding situations on days when I know that I could easily get upset with someone. We all react differently to crisis, and your husband isn't reacting in the compassionate way that he should. But it may not even be for the reasons that you might think. He could be angry that your illness has changed you, afraid that you won't get better, afraid of how things are changing, or so many other things. Whatever he is feeling, he has decided that shutting out the problem works better than dealing with it. For me, when I felt let down by other people, I turned closer to God. The more I sought Him out, the more peace and hope I found that I would get better. I found that I didn't need other people as much, and I have been blessed and He has brought me through many dark times. There is light on the other side, and I am walking in it now! Not only have I gotten signficantly better, but even though I still struggle with rapidly changing moods from hormones, I now know that I can trust that I will make it through hard times. Going through hard times does make us stronger, and certainly makes us more compassionate. Please know that we care and will help you get through the tough times! Blessings, Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Margie I can understand your fear. But nothing is written in stone regardless of what the medical establishment says. I believe we can get better from almost anything. So please don't accept these diagnosis as the final word. Where there is a will, there is a way. Getting out the implants, and then detoxing the body and killing off pathogens, and supporting the immune system can make a huge difference. The body given the right chance, intuitively works toward healing itself. Sometimes it can be a very long road, but we must remain firm in our belief that we are healing. And fear is a very damaging stressor to the immune system. So are deadly emotions. I have had many very emotional confrontations with my daughter over the past six months--due to her obsession with her boyfriend--and each time I literally put my health back several steps. I belong to other websites for autoimmune disease and they all say the same thing. People can virtually be pulled out of a remission and into an active state of disease again by stress or an accident of some sort. I like to watch TBN--shows with Joyce Meyer and Creflo Dollar --just really fill me with hope and joy. Also, watching funny movies or shows is really good for your immune system. People have actually laughed their way to better health. Have you read Jordan Rubin's books? His book The Maker's Diet is full of hope that for improving your health and immune system. I highly recommend it. I know it is easy to despair--especially during perimenopause. Five years ago I thought I was dying. I was diagnosed with mctd with lupus and scleroderma symptoms. When I read that scleroderma (systemic) had a 60% ten year mortality rate, I was sure I would leave my children orphans. Their dad had died 2 years before. I was in a state of panic for months. But I found the antibiotic therapy and this group and got explanted. THough the Scleroderma foundation was busy telling people that scleroderma couldn't be cured, people on the antibiotic site were going into remission. That is why I don't ever take for gospel what doctors tell you will happen or even their diagnosis which is often wrong. Please know we are supporting you and that we care. Many Hugs, Kathy > > > Kathy, Thank you for you support. Yes, I am 44 and also in the midddle of > perimenopause, it stinks. It just has been a very difficult couple of months > with the diagnoses of mgus and acquired von willenbrand. I been very scared, > I know how I feel, and it not good. I am suppuse to have $500 more blood > work next month, this is suppose to been tested every 3 months. My husband > just refused to probably think that this can even be serious at all. I know > I am suppose to move on as the onclogy doc said, but I feel Ill everyday. It > was a good weekend, so i continue to work on the communitcation problems. I > am sure it will get better, its like you said, take one day at a time. > Thanks Margie > > >From: " mikat828 " <mikat828@...> > >Reply- > > > >Subject: Re: plastic surgeon > >Date: Sat, 20 May 2006 03:31:11 -0000 > > > > > > > > > >Margie > > > >Hang in there. I know it doesn't seem like it right now, but you > > > >will get through this. And we are here for you anytime you need a > > > >listening ear. It is very hard for some people --especially men-- to > > > >deal with emotions. Your husband is being selfish, withdrawn and > > > >totally nonsupportive. He probably doesn't have a clue as to how to > > > >deal with you and your problems, and is perhaps depressed himself > > > >too. Also, if you are anywhere in your forties or fifties, your > > > >hormonal system may well be out of balance contributing to feelings > > > >of depression, hopelessness, sadness, irritability, anger, etc. I > > > >am fifty one and am in the midst of dealing with perimenopause and > > > >it has wreaked not only emotional havoc (I am always a split second > > > >from tears) but physical havoc as well. Hormone fluctuations > > > >increase symptoms of autoimmune illness. For me, it is like night > > > >and day the way I feel physically (and mentally) depending on the > > > >day of the month. I have found that other people react to my > > > >increased emotionality in a nonunderstanding way. Especially my 18 > > > >year old daughter! I have felt much more vulnerable emotionally > > > >this last couple of years and find myself avoiding situations on > > > >days when I know that I could easily get upset with someone. > > > >We all react differently to crisis, and your husband isn't reacting > > > >in the compassionate way that he should. But it may not even be for > > > >the reasons that you might think. He could be angry that your > > > >illness has changed you, afraid that you won't get better, afraid of > > > >how things are changing, or so many other things. Whatever he is > > > >feeling, he has decided that shutting out the problem works better > > > >than dealing with it. For me, when I felt let down by other people, > > > >I turned closer to God. The more I sought Him out, the more peace > > > >and hope I found that I would get better. I found that I didn't > > > >need other people as much, and I have been blessed and He has > > > >brought me through many dark times. There is light on the other > > > >side, and I am walking in it now! Not only have I gotten > > > >signficantly better, but even though I still struggle with rapidly > > > >changing moods from hormones, I now know that I can trust that I > > > >will make it through hard times. Going through hard times does make > > > >us stronger, and certainly makes us more compassionate. Please know > > > >that we care and will help you get through the tough times! > > > >Blessings, > > > >Kathy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Opinions expressed are NOT meant to take the place of advice given by > >licensed health care professionals. Consult your physician or licensed > >health care professional before commencing any medical treatment. > > > > > > > > " Do not let either the medical authorities or the politicians mislead you. > >Find out what the facts are, and make your own decisions about how to live > >a happy life and how to work for a better world. " - Linus ing, two-time > >Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > > > > > > >See our photos website! Enter " implants " for access at this link: > > > >http://.shutterfly.com/action/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2009 Report Share Posted April 12, 2009 In San Diego, Dr Heimer is well known and highly respected. He has offices in Hillcrest and La Jolla. He does plastic surgery as well as lipoatrophy treatment, and he is openly gay. Contact me if you want his phone number.From: antonio massa di galugnano <massadigalugnano@...>Subject: Plastic surgeon Date: Saturday, April 11, 2009, 2:41 PM Hello there, I have always found useful references from members in this site. I am now asking if anyone can refer to a good plastic surgeon who is gay friendly. I am looking for plastic surgeon who are known in the entertaining world. Probably Los Angeles or San Francisco since I live in California but consider other surgeons in other States. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2009 Report Share Posted April 12, 2009 In San Diego, Dr Heimer is well known and highly respected. He has offices in Hillcrest and La Jolla. He does plastic surgery as well as lipoatrophy treatment, and he is openly gay. Contact me if you want his phone number.From: antonio massa di galugnano <massadigalugnano@...>Subject: Plastic surgeon Date: Saturday, April 11, 2009, 2:41 PM Hello there, I have always found useful references from members in this site. I am now asking if anyone can refer to a good plastic surgeon who is gay friendly. I am looking for plastic surgeon who are known in the entertaining world. Probably Los Angeles or San Francisco since I live in California but consider other surgeons in other States. Thank you Quote Link to comment Share on other sites More sharing options...
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