Re: Caring about those we love

[Guest guest]

When I was in the hospital for my transplant, my husband was with me 24 hours a

day, with the exception of a few hours here and there so he could go home and

feed the cats and clean their litter boxes. My little dog stayed at my parent's

house. I missed her so much! My husband slept next to my bed in a recliner and

showered in my room every day. My parents, my brother, sister, and nephew came

to visit me quite a bit, as well as two of my cousins. My oldest and dearest

friend wanted to visit me, but it was during a time of terrible snow storms, so

she didn't. She lives a lot farther away than we do from the hospital. During

the few hours when nobody was with me, I was so lonely. I was in the hospital

for a total of 27 days. There were many visitors on the transplant floor all

the time. After visiting hours when we would go for a walk, there would be

other visitors walking with their loved ones too.

It's really sad that people don't have visitors. I would have been crying my

eyes out if I didn't have visitors. Of course, I cried a lot of the time

anyway. Having a transplant is a very emotional event.

Penny

>

> When my husband was in the hospital...the nurses were telling

> me about how many patients there were on the transplant floor

> that did not have anyone to visit them. Either most of their

> relatives lived too far away, or they were all alone.

> Some of them were going to be sent to nursing homes for care,

> since they could not quite understand how they were to take

> their medications and they had no one at home to help them.

>

> Remember, that these people had Encephalopathy and even though

> they received a transplant, it takes a little time for this

> to reverse itself, once the transplanted liver starts

> functioning well.

>

> It seems, that on weekends, the entire Transplant Center...

> where my husband was at, had very few people there to visit

> anyone. I could walk downstairs and maybe only pass one other

> person who was there. I would of loved to take a survey of

> how many visitor were there that day, either Saturday or

> Sunday.

>

> It is easy to care and go out of our way for the ones we

> love so much...I hope we can do this for others who have

> no one to comfort them and feel like no one cares.

>

[Guest guest]

I had my laptop while in the hospital.

Penny

> >

> > When my husband was in the hospital...the nurses were telling

> > me about how many patients there were on the transplant floor

> > that did not have anyone to visit them. Either most of their

> > relatives lived too far away, or they were all alone.

> > Some of them were going to be sent to nursing homes for care,

> > since they could not quite understand how they were to take

> > their medications and they had no one at home to help them.

> >

> > Remember, that these people had Encephalopathy and even though

> > they received a transplant, it takes a little time for this

> > to reverse itself, once the transplanted liver starts

> > functioning well.

> >

> > It seems, that on weekends, the entire Transplant Center...

> > where my husband was at, had very few people there to visit

> > anyone. I could walk downstairs and maybe only pass one other

> > person who was there. I would of loved to take a survey of

> > how many visitor were there that day, either Saturday or

> > Sunday.

> >

> > It is easy to care and go out of our way for the ones we

> > love so much...I hope we can do this for others who have

> > no one to comfort them and feel like no one cares.

> >

>

[Guest guest]

Unfortunately, I can not travel to Dallas, Texas. The medical insurance that I

would have to purchase would already be away over my budget.

However, I do have to go again to Vancouver, BC next month and I'm going to make

an attempt to find out more about these lonely people waiting for transplants.

Plus, I will be picking the brain of the Hep C nurses about their clientele that

perhaps need support.

Gloria

________________________________

Can you travel to Dallas, Texas? You would be apprediated by me.

Thanks for this day and for our tomorrows

Love, Lyncia

From: Gloria <gadamscanyahoo (DOT) ca>

Subject: Re: Caring about those we love

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Friday, December 18, 2009, 10:52 PM

That is just so sad to think about!!!

Here, I was whining about my husband's family being so judgemental or even a

friend or two that did not want to hear about it from me anymore. But, I would

never be alone in a Transplant Centre!! Between my parents, my husband, my son

and all of my aunts and uncles and cousins - I probably wouldn't get any peace.

Oh, how blessed could one silly old recovering alcoholic get when I think about

something that sad.

If there was a transplant centre anywhere near me - I would go as a volunteer

visitor just because of what you have said.

Gloria

____________ _________ _________ __

When my husband was in the hospital...the nurses were telling

me about how many patients there were on the transplant floor

that did not have anyone to visit them. Either most of their

relatives lived too far away, or they were all alone.

Some of them were going to be sent to nursing homes for care,

since they could not quite understand how they were to take

their medications and they had no one at home to help them.

Remember, that these people had Encephalopathy and even though

they received a transplant, it takes a little time for this

to reverse itself, once the transplanted liver starts

functioning well.

It seems, that on weekends, the entire Transplant Center...

where my husband was at, had very few people there to visit

anyone. I could walk downstairs and maybe only pass one other

person who was there. I would of loved to take a survey of

how many visitor were there that day, either Saturday or

Sunday.

It is easy to care and go out of our way for the ones we

love so much...I hope we can do this for others who have

no one to comfort them and feel like no one cares.

____________ _________ _________ _________ _________ _________ _

Get a sneak peak at messages with a handy reading pane with All new Yahoo! Mail:

http://ca.promos. yahoo.com/ newmail/overview 2/

[Guest guest]

Our little Laso Apso / Shitzu cross died last fall (2008) and we'd had him

almost 16 yrs. Needless to say, we have missed him something awful!!

However, we have cousins that raise and bread Poodles, both the standards and

the mini standards. To tell you the truth, I have never had a great affinity

for poodles. But, she needed to farm her first mini (9 yrs old now) out of the

house because, although she is debarked, she barks at everything over there. So

it's an annoying sound to say the least.

Well, she has fit right in here!! Both of my cats have given up trying to

intimated her for the most part now. I honestly think that the power structure

was discussed between all three and so it's acceptable now.

Anyway, she has become my bed buddy with no doubt. Then, it seems that I can't

get too many feet away and she's right there at my feet. The hallway in this

place tends to be too dark and so I can't see her or one of the cats, if they

decide to sit still. Well, the poodle has been very well trained and can't

bring herself to walk in front of me - she walks behind me in that case.

By the way, she seldom ever barks here because she doesn't have so many other

dogs to compete with.

Gloria

________________________________

What kind of puppy do you have? If it is a chihuahua, you probably wouldn't

get to take it home with you. Ed had one he had to put down a few years

ago. He keeps wanting to get another one, but I know if he did, I would be

the one who had to take care of it except to feed it, and I am allergic to

dogs and cats, so not too interested in getting another one. He has three

" guard " dogs at work which he spoils rotten. And the only way they would

ever scare someone off would be by jumping on them since he doesn't teach

them any manners. They are big ones too. He came home one day and said

there was a new one, still just a puppy, but big. He had named her

phine. I said no way, that was my grandmother' s name, and my daughter's

middle name. He described her and I said she sounded like a bear cub, and

so she became bear. His chihuahua was named Killer when he got it.

Sounds like you should invite some people in for a musical evening.

I am a blessed woman, but not necessarily in the male company in this

house. Jan H

On Fri, Dec 18, 2009 at 11:26 PM, Lyncia <lmlangdonyahoo (DOT) com> wrote:

> Ps I read music also.

>

>

>

> Thanks for this day and for our tomorrows

>

> Love, Lyncia

>

>

>

>

> >>

> >> > When my husband was in the hospital...the nurses were telling

> >> > me about how many patients there were on the transplant floor

> >> > that did not have anyone to visit them. Either most of their

> >> > relatives lived too far away, or they were all alone.

> >> > Some of them were going to be sent to nursing homes for care,

> >> > since they could not quite understand how they were to take

> >> > their medications and they had no one at home to help them.

> >> >

> >> > Remember, that these people had Encephalopathy and even though

> >> > they received a transplant, it takes a little time for this

> >> > to reverse itself, once the transplanted liver starts

> >> > functioning well.

> >> >

> >> > It seems, that on weekends, the entire Transplant Center...

> >> > where my husband was at, had very few people there to visit

> >> > anyone. I could walk downstairs and maybe only pass one other

> >> > person who was there. I would of loved to take a survey of

> >> > how many visitor were there that day, either Saturday or

> >> > Sunday.

> >> >

> >> > It is easy to care and go out of our way for the ones we

> >> > love so much...I hope we can do this for others who have

> >> > no one to comfort them and feel like no one cares.

> >> >

> >> >

> >> >

> >> >

> >> >

> >> > ------------ --------- --------- ------

> >> >

> >> > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com

> >> > web address:

> >> > http://groups. yahoo.com/ group/livercirrh osissupport/

> >> >

[Guest guest]

Gloria,

 

That is a great idea.  I think I will call my coordinato and see what I can

do.  I am visiting with a new minister on Wednesday, so maybe this will help me

and I can help someone.

 

Thanks everyone for your encouragement.

Thanks for this day and for our tomorrows

 

Love, Lyncia 

 

 

From: Gloria <gadamscanyahoo (DOT) ca>

Subject: Re: Caring about those we love

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Friday, December 18, 2009, 10:52 PM

That is just so sad to think about!!!

Here, I was whining about my husband's family being so judgemental or even a

friend or two that did not want to hear about it from me anymore. But, I would

never be alone in a Transplant Centre!! Between my parents, my husband, my son

and all of my aunts and uncles and cousins - I probably wouldn't get any peace.

Oh, how blessed could one silly old recovering alcoholic get when I think about

something that sad.

If there was a transplant centre anywhere near me - I would go as a volunteer

visitor just because of what you have said.

Gloria

____________ _________ _________ __

When my husband was in the hospital...the nurses were telling

me about how many patients there were on the transplant floor

that did not have anyone to visit them. Either most of their

relatives lived too far away, or they were all alone.

Some of them were going to be sent to nursing homes for care,

since they could not quite understand how they were to take

their medications and they had no one at home to help them.

Remember, that these people had Encephalopathy and even though

they received a transplant, it takes a little time for this

to reverse itself, once the transplanted liver starts

functioning well.

It seems, that on weekends, the entire Transplant Center...

where my husband was at, had very few people there to visit

anyone. I could walk downstairs and maybe only pass one other

person who was there. I would of loved to take a survey of

how many visitor were there that day, either Saturday or

Sunday.

It is easy to care and go out of our way for the ones we

love so much...I hope we can do this for others who have

no one to comfort them and feel like no one cares.

____________ _________ _________ _________ _________ _________ _

Get a sneak peak at messages with a handy reading pane with All new Yahoo! Mail:

http://ca.promos. yahoo.com/ newmail/overview 2/

[Guest guest]

That's a great idea. I'd like to visit people who just had a transplant to

encourage them.

I've been rather depressed lately. I know it takes 6 months for the meds of the

Hep C treatment to leave the body, but I keep wanting to pop right back to

feeling really good, but it isn't happening. After the first 6 days of headache

after I finished, I felt really good with energy and ambition for about three

days, and since then I'm back feeling like I'm still on treatment. I know it

takes time, but I want to have my energy, and ambition back.

Sorry for whining. I should be thankful for my new liver, and the Hep C being

gone, which I am very thankful for, but I can't help being impatient.

Penny

>

> > When my husband was in the hospital...the nurses were telling

> > me about how many patients there were on the transplant floor

> > that did not have anyone to visit them. Either most of their

> > relatives lived too far away, or they were all alone.

> > Some of them were going to be sent to nursing homes for care,

> > since they could not quite understand how they were to take

> > their medications and they had no one at home to help them.

> >

> > Remember, that these people had Encephalopathy and even though

> > they received a transplant, it takes a little time for this

> > to reverse itself, once the transplanted liver starts

> > functioning well.

> >

> > It seems, that on weekends, the entire Transplant Center...

> > where my husband was at, had very few people there to visit

> > anyone. I could walk downstairs and maybe only pass one other

> > person who was there. I would of loved to take a survey of

> > how many visitor were there that day, either Saturday or

> > Sunday.

> >

> > It is easy to care and go out of our way for the ones we

> > love so much...I hope we can do this for others who have

> > no one to comfort them and feel like no one cares.

> >

> >

> >

> >

> >

> > ------------------------------------

> >

> > Group Email: livercirrhosissupport

> > web address:

> > http://groups.yahoo.com/group/livercirrhosissupport/

> >

[Guest guest]

Penny

 

You are my person I look up to........you complain less than anyone I know to

have gone through everything that you have....!!!!!!!!!!   Hugs and

hugs........Puppy is sleeping under the covers with me......My Florida puppy in

cold Texas.

Thanks for this day and for our tomorrows

 

Love, Lyncia 

 

 

Subject: Re: Caring about those we love

To: livercirrhosissupport

Date: Saturday, December 19, 2009, 11:08 PM

 

That's a great idea. I'd like to visit people who just had a transplant to

encourage them.

I've been rather depressed lately. I know it takes 6 months for the meds of the

Hep C treatment to leave the body, but I keep wanting to pop right back to

feeling really good, but it isn't happening. After the first 6 days of headache

after I finished, I felt really good with energy and ambition for about three

days, and since then I'm back feeling like I'm still on treatment. I know it

takes time, but I want to have my energy, and ambition back.

Sorry for whining. I should be thankful for my new liver, and the Hep C being

gone, which I am very thankful for, but I can't help being impatient.

Penny

>

> > When my husband was in the hospital...the nurses were telling

> > me about how many patients there were on the transplant floor

> > that did not have anyone to visit them. Either most of their

> > relatives lived too far away, or they were all alone.

> > Some of them were going to be sent to nursing homes for care,

> > since they could not quite understand how they were to take

> > their medications and they had no one at home to help them.

> >

> > Remember, that these people had Encephalopathy and even though

> > they received a transplant, it takes a little time for this

> > to reverse itself, once the transplanted liver starts

> > functioning well.

> >

> > It seems, that on weekends, the entire Transplant Center...

> > where my husband was at, had very few people there to visit

> > anyone. I could walk downstairs and maybe only pass one other

> > person who was there. I would of loved to take a survey of

> > how many visitor were there that day, either Saturday or

> > Sunday.

> >

> > It is easy to care and go out of our way for the ones we

> > love so much...I hope we can do this for others who have

> > no one to comfort them and feel like no one cares.

> >

> >

> >

> >

> >

> > ------------ --------- --------- ------

> >

> > Group Email: livercirrhosissuppo rtyahoogroups (DOT) com

> > web address:

> > http://groups. yahoo.com/ group/livercirrh osissupport/

> >

[Guest guest]

hi penny, sorry your not feeling so well honey. i know bobby is just about back

to looking like him again and at times acting like him,hes so handsome i could

just stare at him all day he looks so good! and he didnt do the treatment but

for 6 weeks but my friend it ate him up even afterwards, i will spare posting

the picture or his rearend, all blisered and rashy,i truely believe he was

allergic to something in it.but by god he looks good now!!!! sorry i cant help

it girl,when i look at photos a few weeks ago and now ,it was apparant something

was terrably wrong, oh well hes not treatable yetso be it.but you girl

woooooo-whooooo ,i know once all that treatment is outta ya you will be the same

old penny,cant wait for that day for you my friend,till then try to keep on

keeping on girl, you've kicked that dragons ass and i am so very proud of you

and so very happy for you!!!! all my love barby

> >

> > > When my husband was in the hospital...the nurses were telling

> > > me about how many patients there were on the transplant floor

> > > that did not have anyone to visit them. Either most of their

> > > relatives lived too far away, or they were all alone.

> > > Some of them were going to be sent to nursing homes for care,

> > > since they could not quite understand how they were to take

> > > their medications and they had no one at home to help them.

> > >

> > > Remember, that these people had Encephalopathy and even though

> > > they received a transplant, it takes a little time for this

> > > to reverse itself, once the transplanted liver starts

> > > functioning well.

> > >

> > > It seems, that on weekends, the entire Transplant Center...

> > > where my husband was at, had very few people there to visit

> > > anyone. I could walk downstairs and maybe only pass one other

> > > person who was there. I would of loved to take a survey of

> > > how many visitor were there that day, either Saturday or

> > > Sunday.

> > >

> > > It is easy to care and go out of our way for the ones we

> > > love so much...I hope we can do this for others who have

> > > no one to comfort them and feel like no one cares.

> > >

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > Group Email: livercirrhosissupport

> > > web address:

> > > http://groups.yahoo.com/group/livercirrhosissupport/

> > >