Guest guest Posted September 18, 2000 Report Share Posted September 18, 2000 Judy, what you describe for symptoms sound quite like what I experienced when I went on heparin. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2000 Report Share Posted September 18, 2000 In a message dated 9/18/00 12:41:03 PM Mountain Daylight Time, baumelj@... writes: > I cant tell how how worried I am, in fact I am really scared about this > business, I'm 41 and was told that as a woman it's a 50:50 possibility that > it will be MS...so my doctor said. Do any of you have this with CFS and it's > NOT MS? What about any of you with MS? I need info please and some support. > Many thanks. > Judy Dear Judy, I have no helpful info, but happy to offer support. It is hard not to be afraid as long as you have something to lose. My fear didn't stop till I felt I had lost all. " All " to me was the ability to support myself. Actually, from what I have learned since that point, things could be worse than that! Once I realized I really and truly could not meet my own needs, things, in a way, got better. But that is because I believe in God. I don't want to push my beliefs on you or anyone, but I am just sharing what worked for me. I won't go further unless you are interested. I hope it turns out not to be M.S. Meanwhile, try not to look ahead, but do what you can to both cope and enjoy in the present moment. Someone told me fear means Future Events Appearing Real! Blessings, Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2000 Report Share Posted September 18, 2000 Sorry board, That was supposed to go backchannel to Judy.Oops! Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2000 Report Share Posted September 18, 2000 These symptoms are very typical of CFS. I also had trouble getting a diagnosis. After 18 months I was finally able to diagnose myself and went to a CFS specialist for confirmation. Prior to this I had 2 MRI's one year apart to check for MS-like lesions. You could have MS but it is more likely CFS. I often get pins and needles feelings in my extremities. I would quickly have your blood PH levels tested, both venous and arterial. Most CFS patients have blood that is too alkaline; this impairs the ability of the blood to carry oxygen and can cause spasms in the arteries resulting in stroke(s). Oxygen therapy with a re-breather mask can quickly resolve alkalosis if that is the problem. I would take some potassium chloride in the meantime as that is also helpful in restoring normal blood PH. You may also have dyautonomia, a condition that sometimes accompanies CFS. I treat this with a bounce-back chair avaialble at Sun Ray Supply. It is a proven method of lessening the symptoms of dysautonomia and was developed by NASA to treat astronauts who have temporary dysautonimia upon returning from space. Good luck, Steve Bullock. Re: Ms like symptoms > > Hi Everyone, > I thought that I was finally getting better when I started getting strange > symptoms a few days ago, pins and needles all over my body and then a > feeling of like electricity flowing through my arms and legs. this came with > a relapse of hightened fever (still lowgrade but more bothersome) exhaustion > etc. after a few weeks of having much much more energy and even two days > when my fever seemed to be tapering off to normal. > Now the doctors want me to have an MRI to see whether it isnt actually > MS...I had one episode of " pins and needles " during my last relapse in April > but it went away after two days, I remember haivng something like this ten > years ago but it also went away and that was 9 years plus before CFS > symptoms. > I cant tell how how worried I am, in fact I am really scared about this > business, I'm 41 and was told that as a woman it's a 50:50 possibility that > it will be MS...so my doctor said. Do any of you have this with CFS and it's > NOT MS? What about any of you with MS? I need info please and some support. > Many thanks. > Judy > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2000 Report Share Posted September 18, 2000 Hi Everyone, I thought that I was finally getting better when I started getting strange symptoms a few days ago, pins and needles all over my body and then a feeling of like electricity flowing through my arms and legs. this came with a relapse of hightened fever (still lowgrade but more bothersome) exhaustion etc. after a few weeks of having much much more energy and even two days when my fever seemed to be tapering off to normal. Now the doctors want me to have an MRI to see whether it isnt actually MS...I had one episode of " pins and needles " during my last relapse in April but it went away after two days, I remember haivng something like this ten years ago but it also went away and that was 9 years plus before CFS symptoms. I cant tell how how worried I am, in fact I am really scared about this business, I'm 41 and was told that as a woman it's a 50:50 possibility that it will be MS...so my doctor said. Do any of you have this with CFS and it's NOT MS? What about any of you with MS? I need info please and some support. Many thanks. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2000 Report Share Posted September 18, 2000 Dear Judy, You asked about " MS type symptoms " particularly pins and needles and electric sensations. I have experienced this off and on from the entire length of my ME illness. Like yourself my old doctor originally thought that I may have MS. However, that was a long time ago before proper scanning tests were available. I have pins and needles frequently, also strange electric feelings. Sometimes I lose the feeling in my hands or legs. Sometimes burning or cutting myself. More recently I am having difficulty lifting and positioning my feet to get into cars, buses or over small obstacles. The bruises are building up. However, the main part of my illness is of viral-type symptoms, sore throats, glands etc. I have met many other people with ME who also have a mixture of different symptoms that could fit a number of different specific illnesses. MS symptoms seem common. However, as I am reliant on the UK NHS system and my doctor treats me as a hypochondriac or an annoying woman who keeps coming back, it's unlikely that I will receive any more investigations of the " MS " type symptoms now they are available. IMHO I am not terribly worried if I do really have MS. I have met many MS people who are far, far better off health-wise than I am. One advantage is that my Doctor may treat me with a little more respect if I had a " real " illness. Good luck. I hope that the tests will determine which camp you fall in and you can get the support that you need. Regards, Annette __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 Dear Annette, Thanks so much for the post - here too in Israel we have a health care system which is styled on the British, not always as good however, I am using private doctors most of the time and hope for the best, will keep you posted. Best,Judy Re: Re: Ms like symptoms > > Dear Judy, > > You asked about " MS type symptoms " particularly pins > and needles and electric sensations. > > I have experienced this off and on from the entire > length of my ME illness. Like yourself my old doctor > originally thought that I may have MS. However, that > was a long time ago before proper scanning tests were > available. > > I have pins and needles frequently, also strange > electric feelings. Sometimes I lose the feeling in my > hands or legs. Sometimes burning or cutting myself. > More recently I am having difficulty lifting and > positioning my feet to get into cars, buses or over > small obstacles. The bruises are building up. > > However, the main part of my illness is of viral-type > symptoms, sore throats, glands etc. I have met many > other people with ME who also have a mixture of > different symptoms that could fit a number of > different specific illnesses. MS symptoms seem common. > > However, as I am reliant on the UK NHS system and my > doctor treats me as a hypochondriac or an annoying > woman who keeps coming back, it's unlikely that I will > receive any more investigations of the " MS " type > symptoms now they are available. > > IMHO I am not terribly worried if I do really have MS. > I have met many MS people who are far, far better off > health-wise than I am. One advantage is that my Doctor > may treat me with a little more respect if I had a > " real " illness. > > Good luck. I hope that the tests will determine which > camp you fall in and you can get the support that you > need. > > Regards, > Annette > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 Dear Steve, i definitely have disautonomia and was diagnosed as such. Will take all your suggestions very seriously. Hopefully my MRI will point us to a direction. Be in touch and many thanks Judy Re: Ms like symptoms > > > > > > Hi Everyone, > > I thought that I was finally getting better when I started getting strange > > symptoms a few days ago, pins and needles all over my body and then a > > feeling of like electricity flowing through my arms and legs. this came > with > > a relapse of hightened fever (still lowgrade but more bothersome) > exhaustion > > etc. after a few weeks of having much much more energy and even two days > > when my fever seemed to be tapering off to normal. > > Now the doctors want me to have an MRI to see whether it isnt actually > > MS...I had one episode of " pins and needles " during my last relapse in > April > > but it went away after two days, I remember haivng something like this ten > > years ago but it also went away and that was 9 years plus before CFS > > symptoms. > > I cant tell how how worried I am, in fact I am really scared about this > > business, I'm 41 and was told that as a woman it's a 50:50 possibility > that > > it will be MS...so my doctor said. Do any of you have this with CFS and > it's > > NOT MS? What about any of you with MS? I need info please and some > support. > > Many thanks. > > Judy > > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 thanks Ruth, will keep in mind, judy Re: Re: Ms like symptoms > > Judy, > what you describe for symptoms sound quite like what I experienced when I > went on heparin. > Ruth > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 Pins and needles is a very common symptom of CFS. I've had them on and off for years. About 7 years ago (13 years into CFS) my nose and lips went numb, my muscles started spasming in my legs, and my left foot and left hand went numb (on and off). For a very brief period I even experienced some double vision. I was sure I had MS and was sent to a specialist - who didn't think I had it - but had an MRI done anyway - and I didn't. Weird neurological symptoms are very common, often very disturbing as well but after having them on and off for so many years I try to just bear with them. They seem most prevalent during times of stress but have also occurred after energy 'highs' - after treatments which are successful in that they increase my energy level - but which also somehow disturb my system so much they have to be stopped. What an ugly disease. That may or may not apply to you but I would try not to worry to much. MS and CFS share alot of neurological and other aspects. >From: " judy " <baumelj@...> >Reply-egroups ><egroups> >Subject: Re: Re: Ms like symptoms >Date: Tue, 19 Sep 2000 21:13:33 +0200 > >Dear Steve, >i definitely have disautonomia and was diagnosed as such. Will take all >your >suggestions very seriously. Hopefully my MRI will point us to a direction. >Be in touch and many thanks >Judy > Re: Ms like symptoms > > > > > > > > > > Hi Everyone, > > > I thought that I was finally getting better when I started getting >strange > > > symptoms a few days ago, pins and needles all over my body and then a > > > feeling of like electricity flowing through my arms and legs. this >came > > with > > > a relapse of hightened fever (still lowgrade but more bothersome) > > exhaustion > > > etc. after a few weeks of having much much more energy and even two >days > > > when my fever seemed to be tapering off to normal. > > > Now the doctors want me to have an MRI to see whether it isnt actually > > > MS...I had one episode of " pins and needles " during my last relapse in > > April > > > but it went away after two days, I remember haivng something like this >ten > > > years ago but it also went away and that was 9 years plus before CFS > > > symptoms. > > > I cant tell how how worried I am, in fact I am really scared about >this > > > business, I'm 41 and was told that as a woman it's a 50:50 possibility > > that > > > it will be MS...so my doctor said. Do any of you have this with CFS >and > > it's > > > NOT MS? What about any of you with MS? I need info please and some > > support. > > > Many thanks. > > > Judy > > > > > > > > > This list is intended for patients to share personal experiences with >each > > other, not to give medical advice. If you are interested in any >treatment > > discussed here, please consult your doctor. > > > > > > > > > This list is intended for patients to share personal experiences with >each >other, not to give medical advice. If you are interested in any treatment >discussed here, please consult your doctor. > > > > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2000 Report Share Posted September 20, 2000 Cort, I had very similar neurological symptoms. Much of my face became numb for a while. We probably fit into the same subset of CFS patients. Please let me know if you have been tested for HHV6, epstein-barr or CMV. I am trying to find out if there are any special tests for the EB and CMV that Dr. Lerner used to see if one of these viruses have infected the heart. If any of us test positive based on his criteria it may be worth giving his oral Valcyclovir or IV ganciclovir treatment. Steve Bullock Re: Ms like symptoms > > > > > > > > > > > > > > Hi Everyone, > > > > I thought that I was finally getting better when I started getting > >strange > > > > symptoms a few days ago, pins and needles all over my body and then a > > > > feeling of like electricity flowing through my arms and legs. this > >came > > > with > > > > a relapse of hightened fever (still lowgrade but more bothersome) > > > exhaustion > > > > etc. after a few weeks of having much much more energy and even two > >days > > > > when my fever seemed to be tapering off to normal. > > > > Now the doctors want me to have an MRI to see whether it isnt actually > > > > MS...I had one episode of " pins and needles " during my last relapse in > > > April > > > > but it went away after two days, I remember haivng something like this > >ten > > > > years ago but it also went away and that was 9 years plus before CFS > > > > symptoms. > > > > I cant tell how how worried I am, in fact I am really scared about > >this > > > > business, I'm 41 and was told that as a woman it's a 50:50 possibility > > > that > > > > it will be MS...so my doctor said. Do any of you have this with CFS > >and > > > it's > > > > NOT MS? What about any of you with MS? I need info please and some > > > support. > > > > Many thanks. > > > > Judy > > > > > > > > > > > > This list is intended for patients to share personal experiences with > >each > > > other, not to give medical advice. If you are interested in any > >treatment > > > discussed here, please consult your doctor. > > > > > > > > > > > > > This list is intended for patients to share personal experiences with > >each > >other, not to give medical advice. If you are interested in any treatment > >discussed here, please consult your doctor. > > > > > > > > > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2000 Report Share Posted September 20, 2000 In a message dated 9/20/2000 10:44:57 AM Central Daylight Time, baumelj@... writes: > I only hope that the prognosis for CFS is better, even though they > now have good drugs for MS I am told Judy, I have a friend with MS. She takes shots every day and has gone back to work full time. Before the new med. she was house-bound and frequently on IV treatment at home. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2000 Report Share Posted September 20, 2000 Hi, Thanks for the reassurance. I will feel better when I get my MRI done and have negative results. However the fact that MS and CFS share aspects makes sense, I only hope that the prognosis for CFS is better, even though they now have good drugs for MS I am told. Judy Re: Ms like symptoms > > > > > > > > > > > > > > Hi Everyone, > > > > I thought that I was finally getting better when I started getting > >strange > > > > symptoms a few days ago, pins and needles all over my body and then a > > > > feeling of like electricity flowing through my arms and legs. this > >came > > > with > > > > a relapse of hightened fever (still lowgrade but more bothersome) > > > exhaustion > > > > etc. after a few weeks of having much much more energy and even two > >days > > > > when my fever seemed to be tapering off to normal. > > > > Now the doctors want me to have an MRI to see whether it isnt actually > > > > MS...I had one episode of " pins and needles " during my last relapse in > > > April > > > > but it went away after two days, I remember haivng something like this > >ten > > > > years ago but it also went away and that was 9 years plus before CFS > > > > symptoms. > > > > I cant tell how how worried I am, in fact I am really scared about > >this > > > > business, I'm 41 and was told that as a woman it's a 50:50 possibility > > > that > > > > it will be MS...so my doctor said. Do any of you have this with CFS > >and > > > it's > > > > NOT MS? What about any of you with MS? I need info please and some > > > support. > > > > Many thanks. > > > > Judy > > > > > > > > > > > > This list is intended for patients to share personal experiences with > >each > > > other, not to give medical advice. If you are interested in any > >treatment > > > discussed here, please consult your doctor. > > > > > > > > > > > > > This list is intended for patients to share personal experiences with > >each > >other, not to give medical advice. If you are interested in any treatment > >discussed here, please consult your doctor. > > > > > > > > > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2000 Report Share Posted September 21, 2000 Dear Ruth, How old is she? How long has she had MS? I know about the shots and they are supposed to be marvelous. Thanks Judy Re: Re: Ms like symptoms > > In a message dated 9/20/2000 10:44:57 AM Central Daylight Time, > baumelj@... writes: > > > I only hope that the prognosis for CFS is better, even though they > > now have good drugs for MS I am told > Judy, > I have a friend with MS. She takes shots every day and has gone back to work > full time. Before the new med. she was house-bound and frequently on IV > treatment at home. > Ruth > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2000 Report Share Posted September 21, 2000 Judy, She's about 38 years old now and has had diagnosed MS for the past 5 years. I believe she's been on the shots for about 2 1/2 to three years... don't know specifically. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2000 Report Share Posted September 21, 2000 Ruth, thanks, J. Re: Re: Ms like symptoms > > Judy, > She's about 38 years old now and has had diagnosed MS for the past 5 years. > I believe she's been on the shots for about 2 1/2 to three years... don't > know specifically. > Ruth > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hi Liz, Your symptoms sound typical. Where are you? Lynda At 10:48 AM 5/8/2006, you wrote: >Hi everyone! > >My name is Liz and I am new to the group. Wondering if anyone has any >advice out there. Here is my story. I have had my saline implants for >almost 5 years now. I have never had problems with them. I had my first >baby in Dec. and breast fed him for 3 months. The same week I stopped >the breast feeding, I experienced numbness and tingling in my arms. >This has been occuring since the begining of March. 2 weeks ago, I >started experiencing muscle twitching and muscle weakness. I went to >the hospital and had several blood tests and MRI's done. Nothing is >showing up! I am now starting to wonder if this could all be related to >my implants?? Any thoughts??? I go for a lumbar puncture on Thurs.(yet >another test!) I am seriously thinking about getting them removed. Does >anyone know if insurance will pay for this? If anyone else has >experienced these symtoms, did you feel better after they were removed? >I am getting so discouraged with this whole deal. I don't even have the >strength to hold my new baby! Thanks! > >Liz > > > > > >Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world. " - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace) > >See our photos website! Enter " implants " for access at this link: ><http://.shutterfly.com/action/>http://.shutterfly.co\ m/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hi Liz Yes, those symptoms sound like they could be related to your implants. Mnay of us have experienced those and several more to boot. I definitely experienced the tingling and numbness and the muscle twitching. I would definitely get those implants out. If you leave them in, you will probably experience a fairly rapid progression of symptoms. Once most women start noticing some symptoms, it is only a matter of time before the symptoms increase in both frequency and intensity. When I started getting sick five years ago, at first it was an occasiional thing not right. Then all of a sudden, in a period of a few weeks, I developed twenty or more new symptoms. I had them out a few months later had relief from several symptoms almost immediately. Others have taken longer to fade. The best part was that I had developed some kind of weird brain fog or dysfunction where I would feel drunklike, my heart would race, and I couldn't concentrate on anything, not even watching a tv show. These symptoms disappeared within a week of explant. There is alot of information on our site and feel free to ask any questions you might have. Hugs, Kathy --- In , " loaderrn " <loaderrn@...> wrote: > > Hi everyone! > > My name is Liz and I am new to the group. Wondering if anyone has any > advice out there. Here is my story. I have had my saline implants for > almost 5 years now. I have never had problems with them. I had my first > baby in Dec. and breast fed him for 3 months. The same week I stopped > the breast feeding, I experienced numbness and tingling in my arms. > This has been occuring since the begining of March. 2 weeks ago, I > started experiencing muscle twitching and muscle weakness. I went to > the hospital and had several blood tests and MRI's done. Nothing is > showing up! I am now starting to wonder if this could all be related to > my implants?? Any thoughts??? I go for a lumbar puncture on Thurs. (yet > another test!) I am seriously thinking about getting them removed. Does > anyone know if insurance will pay for this? If anyone else has > experienced these symtoms, did you feel better after they were removed? > I am getting so discouraged with this whole deal. I don't even have the > strength to hold my new baby! Thanks! > > Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Dear Liz My dear, your symptoms are the same as mine. The only difference in your story and mine is I didn't have a new baby. During my 5th year of implants I started having MS like symptoms. During the "searching faze" I saw many doctors and had many tests, including MRI's. One neurologist told me I needed a psychiatrist, because I had nothing wrong with me. These doctors did all these tests and not one pointed to anything out of the ordinary. They even refused the idea that it could be my implants. The MS idea was bounced around back and forth, till a spinal tap ruled it out. My symptoms increased greatly as each week passes. I eventually lost my ability to work or attend school. I didn't get my implants out till I was in my 6th year. I am three months post and maybe about 35% better. My mental confusion is better, the foggyness is better, but the muscle weakness and pain is still the same. Dr. Feng did my explant and told me to give it a year to make it to 90%. This waiting is the hardest, but the ladies here makes it easier to understand the process. This site is definately my saving grace. loaderrn <loaderrn@...> wrote: Hi everyone!My name is Liz and I am new to the group. Wondering if anyone has any advice out there. Here is my story. I have had my saline implants for almost 5 years now. I have never had problems with them. I had my first baby in Dec. and breast fed him for 3 months. The same week I stopped the breast feeding, I experienced numbness and tingling in my arms. This has been occuring since the begining of March. 2 weeks ago, I started experiencing muscle twitching and muscle weakness. I went to the hospital and had several blood tests and MRI's done. Nothing is showing up! I am now starting to wonder if this could all be related to my implants?? Any thoughts??? I go for a lumbar puncture on Thurs.(yet another test!) I am seriously thinking about getting them removed. Does anyone know if insurance will pay for this? If anyone else has experienced these symtoms, did you feel better after they were removed? I am getting so discouraged with this whole deal. I don't even have the strength to hold my new baby! Thanks!Liz Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Lynda I live in Kansas City. Liz- -- In , Lynda <coss@...> wrote: > > Hi Liz, > Your symptoms sound typical. > > Where are you? > > Lynda > > > At 10:48 AM 5/8/2006, you wrote: > >Hi everyone! > > > >My name is Liz and I am new to the group. Wondering if anyone has any > >advice out there. Here is my story. I have had my saline implants for > >almost 5 years now. I have never had problems with them. I had my first > >baby in Dec. and breast fed him for 3 months. The same week I stopped > >the breast feeding, I experienced numbness and tingling in my arms. > >This has been occuring since the begining of March. 2 weeks ago, I > >started experiencing muscle twitching and muscle weakness. I went to > >the hospital and had several blood tests and MRI's done. Nothing is > >showing up! I am now starting to wonder if this could all be related to > >my implants?? Any thoughts??? I go for a lumbar puncture on Thurs. (yet > >another test!) I am seriously thinking about getting them removed. Does > >anyone know if insurance will pay for this? If anyone else has > >experienced these symtoms, did you feel better after they were removed? > >I am getting so discouraged with this whole deal. I don't even have the > >strength to hold my new baby! Thanks! > > > >Liz > > > > > > > > > > > >Opinions expressed are NOT meant to take the place of advice given > >by licensed health care professionals. Consult your physician or > >licensed health care professional before commencing any medical treatment. > > > > " Do not let either the medical authorities or the politicians > >mislead you. Find out what the facts are, and make your own > >decisions about how to live a happy life and how to work for a > >better world. " - Linus ing, two-time Nobel Prize Winner (1954, > >Chemistry; 1963, Peace) > > > >See our photos website! Enter " implants " for access at this link: > ><http://.shutterfly.com/action/>http://.sh utterfly.com/action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Liz, Welcome to the group . . . I wish you didn't need us, but you've found the right place. Patty and the others have been giving you some very good advice . . . I won't elaborate on that. My concern is for your baby. Some of the children born after breast implants are having problems. Is you baby OK? . . . No unexplained rashes, digestive problems, unexplained pain? It's insane because they are telling women it's safe to have babies and nurse with breast implants - yet they've never tested the children - after 40 years! Why? . . . The only thing that comes to mind is $$$$$$$ in their pockets! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 ---Welcome, Liz. You definitely have found the right place for support. These ladies have been invaluable to me. Keep on connecting and taking care of yourself! Love 'n Peace, Sunny In , " loaderrn " <loaderrn@...> wrote: > > Hi everyone! > > My name is Liz and I am new to the group. Wondering if anyone has any > advice out there. Here is my story. I have had my saline implants for > almost 5 years now. I have never had problems with them. I had my first > baby in Dec. and breast fed him for 3 months. The same week I stopped > the breast feeding, I experienced numbness and tingling in my arms. > This has been occuring since the begining of March. 2 weeks ago, I > started experiencing muscle twitching and muscle weakness. I went to > the hospital and had several blood tests and MRI's done. Nothing is > showing up! I am now starting to wonder if this could all be related to > my implants?? Any thoughts??? I go for a lumbar puncture on Thurs. (yet > another test!) I am seriously thinking about getting them removed. Does > anyone know if insurance will pay for this? If anyone else has > experienced these symtoms, did you feel better after they were removed? > I am getting so discouraged with this whole deal. I don't even have the > strength to hold my new baby! Thanks! > > Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Rogene, Yes, the baby has been doing fine so far. I hope and pray that nothing happens to him as a result of these implants! I was reading a prior message from you in regards to lab results appearing normal. Is this true? When I asked my doctor if my symptoms could be a result of my implants she said surely not because all my lab work was normal. LizRogene S <saxony01@...> wrote: Liz,Welcome to the group . . . I wish you didn't need us,but you've found the right place.Patty and the others have been giving you some verygood advice . . . I won't elaborate on that.My concern is for your baby. Some of the children bornafter breast implants are having problems. Is you babyOK? . . . No unexplained rashes, digestive problems,unexplained pain? It's insane because they are telling women it's safeto have babies and nurse with breast implants - yetthey've never tested the children - after 40 years!Why? . . . The only thing that comes to mind is$$$$$$$ in their pockets!Hugs and prayers,Rogene How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 , I hope you start feeling better soon. 1 whole year to feel 90 percent better is sad! I go for my spinal tap on Thurs. I hope and pray that its not MS! I am getting these implants out as soon as I can. What vanity will do to a person! Liz Lamse <wannabe_proverbs31@...> wrote: Dear Liz My dear, your symptoms are the same as mine. The only difference in your story and mine is I didn't have a new baby. During my 5th year of implants I started having MS like symptoms. During the "searching faze" I saw many doctors and had many tests, including MRI's. One neurologist told me I needed a psychiatrist, because I had nothing wrong with me. These doctors did all these tests and not one pointed to anything out of the ordinary. They even refused the idea that it could be my implants. The MS idea was bounced around back and forth, till a spinal tap ruled it out. My symptoms increased greatly as each week passes. I eventually lost my ability to work or attend school. I didn't get my implants out till I was in my 6th year. I am three months post and maybe about 35% better. My mental confusion is better, the foggyness is better, but the muscle weakness and pain is still the same. Dr. Feng did my explant and told me to give it a year to make it to 90%. This waiting is the hardest, but the ladies here makes it easier to understand the process. This site is definately my saving grace. loaderrn <loaderrn@...> wrote: Hi everyone!My name is Liz and I am new to the group. Wondering if anyone has any advice out there. Here is my story. I have had my saline implants for almost 5 years now. I have never had problems with them. I had my first baby in Dec. and breast fed him for 3 months. The same week I stopped the breast feeding, I experienced numbness and tingling in my arms. This has been occuring since the begining of March. 2 weeks ago, I started experiencing muscle twitching and muscle weakness. I went to the hospital and had several blood tests and MRI's done. Nothing is showing up! I am now starting to wonder if this could all be related to my implants?? Any thoughts??? I go for a lumbar puncture on Thurs.(yet another test!) I am seriously thinking about getting them removed. Does anyone know if insurance will pay for this? If anyone else has experienced these symtoms, did you feel better after they were removed? I am getting so discouraged with this whole deal. I don't even have the strength to hold my new baby! Thanks!Liz Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Liz, I hope and pray you dont have MS either. If your test shows you do, your implants may make your symptoms worse. So your plan to get them out will only help you manage your symptoms. One year does seem like a lifetime especially because I delt with the symptoms for almost a year before I found my cause. So, I am giving up two years. But, if I really think about it, it took the whole 6 years I had them to build up the toxins. I will be happy if I don't have to have a year of healing for each year I had those toxic bags in. I will think of you on Thursday, let us know how the appointment goes. Loader <loaderrn@...> wrote: , I hope you start feeling better soon. 1 whole year to feel 90 percent better is sad! I go for my spinal tap on Thurs. I hope and pray that its not MS! I am getting these implants out as soon as I can. What vanity will do to a person! Liz Lamse <wannabe_proverbs31@...> wrote: Dear Liz My dear, your symptoms are the same as mine. The only difference in your story and mine is I didn't have a new baby. During my 5th year of implants I started having MS like symptoms. During the "searching faze" I saw many doctors and had many tests, including MRI's. One neurologist told me I needed a psychiatrist, because I had nothing wrong with me. These doctors did all these tests and not one pointed to anything out of the ordinary. They even refused the idea that it could be my implants. The MS idea was bounced around back and forth, till a spinal tap ruled it out. My symptoms increased greatly as each week passes. I eventually lost my ability to work or attend school. I didn't get my implants out till I was in my 6th year. I am three months post and maybe about 35% better. My mental confusion is better, the foggyness is better, but the muscle weakness and pain is still the same. Dr. Feng did my explant and told me to give it a year to make it to 90%. This waiting is the hardest, but the ladies here makes it easier to understand the process. This site is definately my saving grace. loaderrn <loaderrn@...> wrote: Hi everyone!My name is Liz and I am new to the group. Wondering if anyone has any advice out there. Here is my story. I have had my saline implants for almost 5 years now. I have never had problems with them. I had my first baby in Dec. and breast fed him for 3 months. The same week I stopped the breast feeding, I experienced numbness and tingling in my arms. This has been occuring since the begining of March. 2 weeks ago, I started experiencing muscle twitching and muscle weakness. I went to the hospital and had several blood tests and MRI's done. Nothing is showing up! I am now starting to wonder if this could all be related to my implants?? Any thoughts??? I go for a lumbar puncture on Thurs.(yet another test!) I am seriously thinking about getting them removed. Does anyone know if insurance will pay for this? If anyone else has experienced these symtoms, did you feel better after they were removed? I am getting so discouraged with this whole deal. I don't even have the strength to hold my new baby! Thanks!Liz Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. How low will we go? Check out Messenger’s low PC-to-Phone call rates. Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.