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am I a psc'er or not??

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Hi everyone,

Well I went back to my hepatologist last Friday. I had seen him once before,

a month ago, following the biopsy report of " consistent with psc " .That's

when I joined the group you might remember.

It seems the biopsies they took during my cholecystectomy were the " wrong "

biopsies !!!! Apparently some sort of long standing " argument " where the

surgeons persistently do their own thing, despite repeated requests from the

hepatologists and pathologists. Sameol sameol " god complex " thinking it

seems to me.

A " wedge " biopsy instead of an " oblique, full thickness, bore " biopsy was

taken, which showed " non-specific " focal fibroses. My blood workup was also

" non-specific " although I have a very raised gammaGT, ALAT and ESR.

The hep said 2+2 probably = 4, and that I do have psc, but he cannot be

definite. He would recommend another ERCP usually. He did my one and only

ERCP, which damned nearly killed me, and a repeat is not an option for

either of us. I will NEVER have an ERCP again.

I'm now on a waiting list for an MRCP, to see if we can achieve some

clarification. I hope the MRCP will eventually be " sophisticated " enough to

replace ERCP - especially in the light of its pretty substantial risks. At

the ERCP I had no strictures but a dilated choledochus and some dilated

ducts. I believs psc can sometimes manifest this way, and of course, I have

always to date, presented with atypical symptoms of whatever I've had.

I don't know what to think now !

I'll keep you informed.

Bye for now,

DutchPat.

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