Guest guest Posted October 10, 2009 Report Share Posted October 10, 2009 Is anyone out there in liverland tonight? Anyone hear from Diane? Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 Gloria,  I don't have any answers for you. But I do want you to know that I am here in your corner and care very much! Lyncia Thanks for this day and for our tomorrows  Love, Lyncia   Subject: Hello To: livercirrhosissupport Date: Tuesday, December 1, 2009, 11:02 PM  Hey again Group!! I popped back around and lurked here for awhile!! Now I have a question and a bit of catch up. I've been on the Clinical Trial for the new Trio coming down the pipe soon and only have 6 weeks left!! It appears that at least at the DNA level I am negative for the virus. However, I was also told in late October, that there is a good possibility that I have developed HCC. I've tried very hard not to think about it much and just get through to SVR with the virus. Then, today, I was called to confirm another Cat Scan in January regarding the tumors that have been seen. It's just starting to make it all to real!! If this indeed comes to confirmation that the tumors are growing, are they going to want to do yet another biopsy in those two areas or actually cut to my liver to confirm?? Also, this time (2nd) on treatment, I had an extremely difficult time with my emotions. Sure, we can blame it on the Riba Rage; but, it doesn't make it any easier to live with. I was already on Celexa as an anti-depressant, then had that upped to taking a 20mg and a 40 mg each day. Still, I came very near having a break down!! Finally my Dr. put me on a Happy Pill (Wellbutrin) . I hate all of this; however, I know of no other way to get through the days... I'm not generally a depressed person; however, between the meds and the rejection by some family members, I was definitely at the end of my rope. Would just seem to me that I would rather they didn't have to cut me to test the tumors, since we all hear such horror stories about the air getting to cancer. Then again, I don't know if it's even possible to do a guided biopsy to those two spots. Thanks for any help - Gloria ____________ _________ _________ _________ _________ _________ _ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr. com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Hi Gloria: My husband has HCC. He has 3 tumors, the largest one being 5.4 x 4.8 cm. The other 2 are very small and don't seem to be an issue with the transplant team. They did do a needle guided biopsy and I asked the dr about the horror stories about air hitting cancer. The dr. told me that that isn't true. Sometimes a few cancer cells leak out when they are doing surgery to remove the cancer. That's when cancer shows up eventually somewhere else, but it doesn't spread when the air hits it. My husband had treatment to shrink his tumor and we are hoping it worked. They need to get the tumor down to 3 cm for him to meet the criteria for the transplant list. Please keep me posted and let me know how you are doing. I'm interested to know since we are going thru this same thing with my husband. Jackie Subject: Hello To: livercirrhosissupport Date: Wednesday, December 2, 2009, 12:02 AM  Hey again Group!! I popped back around and lurked here for awhile!! Now I have a question and a bit of catch up. I've been on the Clinical Trial for the new Trio coming down the pipe soon and only have 6 weeks left!! It appears that at least at the DNA level I am negative for the virus. However, I was also told in late October, that there is a good possibility that I have developed HCC. I've tried very hard not to think about it much and just get through to SVR with the virus. Then, today, I was called to confirm another Cat Scan in January regarding the tumors that have been seen. It's just starting to make it all to real!! If this indeed comes to confirmation that the tumors are growing, are they going to want to do yet another biopsy in those two areas or actually cut to my liver to confirm?? Also, this time (2nd) on treatment, I had an extremely difficult time with my emotions. Sure, we can blame it on the Riba Rage; but, it doesn't make it any easier to live with. I was already on Celexa as an anti-depressant, then had that upped to taking a 20mg and a 40 mg each day. Still, I came very near having a break down!! Finally my Dr. put me on a Happy Pill (Wellbutrin) . I hate all of this; however, I know of no other way to get through the days... I'm not generally a depressed person; however, between the meds and the rejection by some family members, I was definitely at the end of my rope. Would just seem to me that I would rather they didn't have to cut me to test the tumors, since we all hear such horror stories about the air getting to cancer. Then again, I don't know if it's even possible to do a guided biopsy to those two spots. Thanks for any help - Gloria ____________ _________ _________ _________ _________ _________ _ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr. com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Thanks Jackie I'm really hoping that if indeed these 2 tumors prove to be HCC, that they are still small enough to be bombed or something. Now you've got me curious and I'll have to find the Cat Scan report from October. I'm pretty sure it noted on there already how big these tumors are. Gloria ________________________________ Hi Gloria: My husband has HCC. He has 3 tumors, the largest one being 5.4 x 4.8 cm. The other 2 are very small and don't seem to be an issue with the transplant team. They did do a needle guided biopsy and I asked the dr about the horror stories about air hitting cancer. The dr. told me that that isn't true. Sometimes a few cancer cells leak out when they are doing surgery to remove the cancer. That's when cancer shows up eventually somewhere else, but it doesn't spread when the air hits it. My husband had treatment to shrink his tumor and we are hoping it worked. They need to get the tumor down to 3 cm for him to meet the criteria for the transplant list. Please keep me posted and let me know how you are doing. I'm interested to know since we are going thru this same thing with my husband. Jackie From: Gloria <gadamscanyahoo (DOT) ca> Subject: Hello To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, December 2, 2009, 12:02 AM Hey again Group!! I popped back around and lurked here for awhile!! Now I have a question and a bit of catch up. I've been on the Clinical Trial for the new Trio coming down the pipe soon and only have 6 weeks left!! It appears that at least at the DNA level I am negative for the virus. However, I was also told in late October, that there is a good possibility that I have developed HCC. I've tried very hard not to think about it much and just get through to SVR with the virus. Then, today, I was called to confirm another Cat Scan in January regarding the tumors that have been seen. It's just starting to make it all to real!! If this indeed comes to confirmation that the tumors are growing, are they going to want to do yet another biopsy in those two areas or actually cut to my liver to confirm?? Also, this time (2nd) on treatment, I had an extremely difficult time with my emotions. Sure, we can blame it on the Riba Rage; but, it doesn't make it any easier to live with. I was already on Celexa as an anti-depressant, then had that upped to taking a 20mg and a 40 mg each day. Still, I came very near having a break down!! Finally my Dr. put me on a Happy Pill (Wellbutrin) . I hate all of this; however, I know of no other way to get through the days... I'm not generally a depressed person; however, between the meds and the rejection by some family members, I was definitely at the end of my rope. Would just seem to me that I would rather they didn't have to cut me to test the tumors, since we all hear such horror stories about the air getting to cancer. Then again, I don't know if it's even possible to do a guided biopsy to those two spots. Thanks for any help - Gloria ____________ _________ _________ _________ _________ _________ _ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr. com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Thanx Jackie and my very best prayers for your husband!!! I left this site for awhile when the treatment was making me super sensitive to everything. Now, I'm back just hoping that someone here can gain a little hope, about the new Trio that is due out very soon. I should have good news soon that it has worked for me. This was my second treatment too. However, I will need all the help and support I can get, if I find out, in about February what is going on with these tumors!! Here's something funny - exactly one month after my treatment is done and just when they have to do the next blood work - the Olympics will be celebrating their Grand Opening!! Guess where I have to go for this clinical work?? Up here in Vancouver!!! Already told them at the clinic that I will not be travelling anywhere near Vancouver and not even on a ferry to get there, during the Olympics. So, they are going to do my blood work 3 days early in February. Driving in Vancouver proper is risky business at the best of times; but, that many more visitors in the area will just make it insane. Gloria ________________________________ Hi Gloria: Keep me posted on the story with your tumors, and I will let you know all the latest about my husband's too. When we meet with the transplant team Monday I guess we will discuss what to do next. Jackie From: Gloria <gadamscanyahoo (DOT) ca> Subject: Hello To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, December 2, 2009, 12:02 AM Hey again Group!! I popped back around and lurked here for awhile!! Now I have a question and a bit of catch up. I've been on the Clinical Trial for the new Trio coming down the pipe soon and only have 6 weeks left!! It appears that at least at the DNA level I am negative for the virus. However, I was also told in late October, that there is a good possibility that I have developed HCC. I've tried very hard not to think about it much and just get through to SVR with the virus. Then, today, I was called to confirm another Cat Scan in January regarding the tumors that have been seen. It's just starting to make it all to real!! If this indeed comes to confirmation that the tumors are growing, are they going to want to do yet another biopsy in those two areas or actually cut to my liver to confirm?? Also, this time (2nd) on treatment, I had an extremely difficult time with my emotions. Sure, we can blame it on the Riba Rage; but, it doesn't make it any easier to live with. I was already on Celexa as an anti-depressant, then had that upped to taking a 20mg and a 40 mg each day. Still, I came very near having a break down!! Finally my Dr. put me on a Happy Pill (Wellbutrin) . I hate all of this; however, I know of no other way to get through the days... I'm not generally a depressed person; however, between the meds and the rejection by some family members, I was definitely at the end of my rope. Would just seem to me that I would rather they didn't have to cut me to test the tumors, since we all hear such horror stories about the air getting to cancer. Then again, I don't know if it's even possible to do a guided biopsy to those two spots. Thanks for any help - Gloria ____________ _________ _________ _________ _________ _________ _ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr. com/gift/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 I'm glad you have somebody with you. My husband gets tired so I have been doing all the driving. This past summer my car started burning oil so I traded it in for a " new " used. I now have a pt cruiser and I love it. It is a very comfortable car for my husband to ride in. I used to have a neon. Great on gas but the bucket seats were a little uncomfortable for him. Jackie From: Gloria <gadamscanyahoo (DOT) ca> Subject: Hello To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, December 2, 2009, 12:02 AM Hey again Group!! I popped back around and lurked here for awhile!! Now I have a question and a bit of catch up. I've been on the Clinical Trial for the new Trio coming down the pipe soon and only have 6 weeks left!! It appears that at least at the DNA level I am negative for the virus. However, I was also told in late October, that there is a good possibility that I have developed HCC. I've tried very hard not to think about it much and just get through to SVR with the virus. Then, today, I was called to confirm another Cat Scan in January regarding the tumors that have been seen. It's just starting to make it all to real!! If this indeed comes to confirmation that the tumors are growing, are they going to want to do yet another biopsy in those two areas or actually cut to my liver to confirm?? Also, this time (2nd) on treatment, I had an extremely difficult time with my emotions. Sure, we can blame it on the Riba Rage; but, it doesn't make it any easier to live with. I was already on Celexa as an anti-depressant, then had that upped to taking a 20mg and a 40 mg each day. Still, I came very near having a break down!! Finally my Dr. put me on a Happy Pill (Wellbutrin) . I hate all of this; however, I know of no other way to get through the days... I'm not generally a depressed person; however, between the meds and the rejection by some family members, I was definitely at the end of my rope. Would just seem to me that I would rather they didn't have to cut me to test the tumors, since we all hear such horror stories about the air getting to cancer. Then again, I don't know if it's even possible to do a guided biopsy to those two spots. Thanks for any help - Gloria ____________ _________ _________ _________ _________ _________ _ Looking for the perfect gift? Give the gift of Flickr! http://www.flickr. com/gift/ Quote Link to comment Share on other sites More sharing options...
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