Re: RE: Hello from a long, lost friend!

[Guest guest]

So glad to hear you are home and doing fair. Love, your friend, Bobby

long life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Wednesday, August 5, 2009 8:23:35 PM

Subject: Re: RE: Hello from a long, lost friend!

Diane - I am not exactly sure what you mean by branched, etc, but I have a

stent in right iliac artery which crosses over the aorta. So, I have no

access to my heart from the left groin area. I didn't aske him how this

last stent was placed. He came to my room this morning when I was half

sleepint, talked for a litte and then he said I should go home and come back

to see him in a month. Will have to make a list of questions to ask him

then.

Jan H

On Wed, Aug 5, 2009 at 5:38 PM, diane chandler <dianechandler@ att.net>wrote:

> Jan, I am so thankful you are home and doing well! That is good news that

> they only had to do one angioplasty. I had to get a stent with two angios

> in the fall of 2007 and still have one block in the branch of an artery.

> Can't angio cause it's too closed off and can't stent cause it's in the

> branch. Just hanging on and praying we won't have to do surgery for a long

> time to come! So happy you got good news. Continuing to pray for you!

>

> Warm Hugs........ ...

>

> Diane

> http://auntdisexper imentallife. blogspot. com/

>

>

>

>

> ____________ _________ _________ __

> From: Jan Holman <janholmangmail (DOT) com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Wednesday, August 5, 2009 6:45:39 PM

> Subject: Re: RE: Hello from a long, lost friend!

>

>

> I am back, they found they only had to do one angioplasty, other wasn't

> that

> blocked, not expected to grow any more. Stayed in the hospital last night,

> just got home a couple of hours ago. Going out to eat to save my energy.

> Jan H

>

> On Tue, Aug 4, 2009 at 5:25 AM, diane chandler <dianechandler@ att.net

> >wrote:

>

> > Praying for you Jan and thanks!

> >

> > Warm Hugs........ ...

> >

> > Diane

> > http://auntdisexper imentallife. blogspot. com/

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Jan Holman <janholmangmail (DOT) com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Tuesday, August 4, 2009 5:43:01 AM

> > Subject: Re: RE: Hello from a long, lost

> friend!

> >

> >

> > Diane - you were as much an inspiration to the group as the help you got.

> > Just closing out my computer before I go for my angioplasty. Might be

> gone

> > until Thursday, so everybody- don't start worrying. Jan H

> >

> > On Tue, Aug 4, 2009 at 1:52 AM, diane chandler <dianechandler@ att.net

> > >wrote:

> >

> > > Jan,

> > >

> > > Thanks so much for your warm greeting. I appreciate it more than I will

> > > ever be able to adequately express to you. I am so thankful to this

> group

> > > to help me along. You all were such a great support system while I was

> > > taking care of Terry. I learned so much here; information that made it

> so

> > > much easier to give him the care he needed.

> > >

> > > I have an appointment with my GI on Friday morning. Let the games

> > > begin.......

> > >

> > >

> > > Warm Hugs........ ...

> > >

> > > Diane

> > > http://auntdisexper imentallife. blogspot. com/

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Jan Holman <janholmangmail (DOT) com>

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Sent: Monday, August 3, 2009 9:22:42 PM

> > > Subject: Re: RE: Hello from a long, lost

> > friend!

> > >

> > >

> > > Diane - you don't have to ask if you will be allowed back in. You have

> > > never left us. Just took a little vacation. I understand what you are

> > > feeling about having this disease and what it will do to the ones left

> > > behind. I am surprised you haven't mentioned a transplant. Have they

> > > already ruled it out, or have you? I wouldn't wish this disease on my

> > worst

> > > enemy and certainly not a great person like you. It is my hope, looking

> > at

> > > the same things you have mentioned, that I die of something other than

> > the

> > > cirrhosis before the cirrhosis gets to its worst. I can't understand

> what

> > > it must feel like to have just lost your husband to it and then find

> out

> > > you

> > > have it yourself. Love you. Jan H

> > >

> > > On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net

> > > >wrote:

> > >

> > > > I'm almost ashamed to even come here and post anymore! I have been so

> > > > negligent of all of you and there are so many newbies since I was

> > posting

> > > > regularly. I apologize to each of you for neglecting you. Losing

> Terry

> > > > threw my life into a tail spin there for a while. Going on without

> him

> > > has

> > > > been the most difficult thing I have ever had to do. However, God is

> > good

> > > > and faithful and has been always right by my side throughout the

> entire

> > > > struggle. I will never get over loving or missing Terry, but I am

> > > learning

> > > > to go on living without him. It is not easy, but I have learned life

> > can

> > > be

> > > > good again.

> > > >

> > > > As some of you are aware, I recently had surgery to replace my

> gastric

> > > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > > healing very nicely and the stimulator is already making such a

> > > difference

> > > > in the way I feel and my ability to eat and keep food down. I have

> only

> > > had

> > > > one day of vomiting since surgery. I still have a lot of nausea, but

> I

> > > have

> > > > Zofran for that and am doing well.

> > > >

> > > > Since 1993, I have known that I have non alcoholic fatty liver

> disease

> > > > (NAFLD). Over the years, I have had biopses every few years just to

> > make

> > > > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > > > stimulator replacement prior to this one. It showed some fibrosis but

> > > > nothing of great concern. My surgeon performed another biopsy during

> > this

> > > > last surgery. I got the results last Thursday.

> > > >

> > > > In the 2 1/2 years since the last biopsy, my liver disease has

> advanced

> > > > significantly. The pathology reports shows me now to have grade 2,

> > stage

> > > > 3-4 liver disease by Brunt criteria, with significant bridging

> fibrosis

> > > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > > pathologist who did this exam thinks I have been mis-diagnosed for

> > years

> > > and

> > > > have actually had non alcoholic steatohepatitis (NASH). The

> > inflammatory

> > > > infiltrate extends into the lobular compartment with the presence of

> > > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > > transitioning from stage 3 to stage 4 and should have immediate

> follow

> > up

> > > > care.

> > > >

> > > > I cannot tell you how shocked I was to receive this report! To have

> > just

> > > > six months ago been through losing Terry to this very disease and now

> > be

> > > > receiving this report has really knocked me down. I have scheduled an

> > > > appointment with my local GI on this coming Friday. My surgeon has

> > > > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > > > spinning right now. I haven't told my Daddy or my MIL yet. I have had

> > to

> > > > have a few days just to digesst the information on my own. My

> sisters,

> > > > niece and nephews know and have been so supportive and are of course

> > > > praying. I have to talk to Daddy and my MIL before Friday. It is just

> > so

> > > > soon after losing Terry and I know it is going to be so hard on them.

> > > >

> > > > Please pray for me and for my family. Daddy has my sisters and he

> will

> > do

> > > > okay once the initial shock wears off. My MIL has no one but me;

> Terry

> > > was

> > > > her only child and we have no children. My FIL died in 2002. When we

> > > first

> > > > told her about Terry's ESLD, she was in denial for many months and

> > really

> > > > did not begin to accept the fact that he was terminal until just

> weeks

> > > > before he died. I am concerned about what this news is going to do to

> > > her.

> > > >

> > > > I am not afraid of death; I know where I am going the minute I

> breathe

> > my

> > > > last breath here. I will be with my Jesus and with Terry and Momma

> and

> > my

> > > > babies. I cannot be sad about that. Of course, I am sad about not

> > getting

> > > > to see my niece and nephews children grow up. However, I prayed and

> > asked

> > > > the Lord for life and strength to care for Terry because I knew he

> > needed

> > > > me. The Lord answered my prayer and gave me my heart's desire.

> Whatever

> > > > the outcome of this is, I am okay with it.

> > > >

> > > > Dying of liver disease does however scare me spitless! I witnessed

> > first

> > > > hand what it did to Terry. I saw how he suffered; always very quietly

> > and

> > > > never wanting to be a burden on me. He suffered untold agony that I'm

> > > quite

> > > > sure I never knew about. He did it with dignity and died with peace

> and

> > > > dignity. I don't know if I have the courage to do that and that

> scares

> > > me.

> > > > More than anything, I want to be a blessing and not a burden to my

> > > family.

> > > > I want to bring honor and dignity to the name of the Lord with

> whatever

> > I

> > > > do.

> > > >

> > > > This is the beginning of what I know will be a long and chaotic ride.

> > If

> > > > you guys would allow me to come back and be a part of your group, it

> > > would

> > > > mean so much to me. I haven't been around and I don't deserve to be

> > taken

> > > > in, but I sure am praying you will say yes! I have never forgotten

> > about

> > > > all of you and I pray every day for all of you, even those whom I

> have

> > > not

> > > > 'met' yet. God bless you all!

> > > >

> > > >

> > > >

> > > > Warm Hugs........ ...

> > > >

> > > > Diane C. from TN

> > > > http://auntdisexper imentallife. blogspot. com/

> > > >

> > > >