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Posted

Diane - you don't have to ask if you will be allowed back in. You have

never left us. Just took a little vacation. I understand what you are

feeling about having this disease and what it will do to the ones left

behind. I am surprised you haven't mentioned a transplant. Have they

already ruled it out, or have you? I wouldn't wish this disease on my worst

enemy and certainly not a great person like you. It is my hope, looking at

the same things you have mentioned, that I die of something other than the

cirrhosis before the cirrhosis gets to its worst. I can't understand what

it must feel like to have just lost your husband to it and then find out you

have it yourself. Love you. Jan H

On Mon, Aug 3, 2009 at 6:24 PM, diane chandler wrote:

> I'm almost ashamed to even come here and post anymore! I have been so

> negligent of all of you and there are so many newbies since I was posting

> regularly. I apologize to each of you for neglecting you. Losing Terry

> threw my life into a tail spin there for a while. Going on without him has

> been the most difficult thing I have ever had to do. However, God is good

> and faithful and has been always right by my side throughout the entire

> struggle. I will never get over loving or missing Terry, but I am learning

> to go on living without him. It is not easy, but I have learned life can be

> good again.

>

> As some of you are aware, I recently had surgery to replace my gastric

> stimulator. I went back for my 3 week follow up last Thursday. I am

> healing very nicely and the stimulator is already making such a difference

> in the way I feel and my ability to eat and keep food down. I have only had

> one day of vomiting since surgery. I still have a lot of nausea, but I have

> Zofran for that and am doing well.

>

> Since 1993, I have known that I have non alcoholic fatty liver disease

> (NAFLD). Over the years, I have had biopses every few years just to make

> sure everything is okay. I had one in Dec. of 2006 when I had my last

> stimulator replacement prior to this one. It showed some fibrosis but

> nothing of great concern. My surgeon performed another biopsy during this

> last surgery. I got the results last Thursday.

>

> In the 2 1/2 years since the last biopsy, my liver disease has advanced

> significantly. The pathology reports shows me now to have grade 2, stage

> 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> pan-zonally and inflammatory infiltration into my portal vein. The

> pathologist who did this exam thinks I have been mis-diagnosed for years and

> have actually had non alcoholic steatohepatitis (NASH). The inflammatory

> infiltrate extends into the lobular compartment with the presence of

> ballooning degeneration of hepatocytes. It is his opinion that I am

> transitioning from stage 3 to stage 4 and should have immediate follow up

> care.

>

> I cannot tell you how shocked I was to receive this report! To have just

> six months ago been through losing Terry to this very disease and now be

> receiving this report has really knocked me down. I have scheduled an

> appointment with my local GI on this coming Friday. My surgeon has

> suggested that I ask for a referral to a hepatologist ASAP. I am just

> spinning right now. I haven't told my Daddy or my MIL yet. I have had to

> have a few days just to digesst the information on my own. My sisters,

> niece and nephews know and have been so supportive and are of course

> praying. I have to talk to Daddy and my MIL before Friday. It is just so

> soon after losing Terry and I know it is going to be so hard on them.

>

> Please pray for me and for my family. Daddy has my sisters and he will do

> okay once the initial shock wears off. My MIL has no one but me; Terry was

> her only child and we have no children. My FIL died in 2002. When we first

> told her about Terry's ESLD, she was in denial for many months and really

> did not begin to accept the fact that he was terminal until just weeks

> before he died. I am concerned about what this news is going to do to her.

>

> I am not afraid of death; I know where I am going the minute I breathe my

> last breath here. I will be with my Jesus and with Terry and Momma and my

> babies. I cannot be sad about that. Of course, I am sad about not getting

> to see my niece and nephews children grow up. However, I prayed and asked

> the Lord for life and strength to care for Terry because I knew he needed

> me. The Lord answered my prayer and gave me my heart's desire. Whatever

> the outcome of this is, I am okay with it.

>

> Dying of liver disease does however scare me spitless! I witnessed first

> hand what it did to Terry. I saw how he suffered; always very quietly and

> never wanting to be a burden on me. He suffered untold agony that I'm quite

> sure I never knew about. He did it with dignity and died with peace and

> dignity. I don't know if I have the courage to do that and that scares me.

> More than anything, I want to be a blessing and not a burden to my family.

> I want to bring honor and dignity to the name of the Lord with whatever I

> do.

>

> This is the beginning of what I know will be a long and chaotic ride. If

> you guys would allow me to come back and be a part of your group, it would

> mean so much to me. I haven't been around and I don't deserve to be taken

> in, but I sure am praying you will say yes! I have never forgotten about

> all of you and I pray every day for all of you, even those whom I have not

> 'met' yet. God bless you all!

>

>

>

> Warm Hugs...........

>

> Diane C. from TN

> http://auntdisexperimentallife.blogspot.com/

>

>

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Posted
Posted

I am one of those newcomers, Diane but no matter what - you are absolutely

welcome here.

I am already into Stage 4, early cirrhosis. However, I'm also battling back

again on a Clinical Trial with the combo. I had done treatment in 2004/2005 but

ended up being a Non-Responder.

So sorry to hear of the death of your beloved husband... That sucks! Right now

I don't know what I would do without my hubby. He's the only one that keeps me

going...

________________________________

I'm almost ashamed to even come here and post anymore! I have been so negligent

of all of you and there are so many newbies since I was posting regularly. I

apologize to each of you for neglecting you. Losing Terry threw my life into a

tail spin there for a while. Going on without him has been the most difficult

thing I have ever had to do. However, God is good and faithful and has been

always right by my side throughout the entire struggle. I will never get over

loving or missing Terry, but I am learning to go on living without him. It is

not easy, but I have learned life can be good again.

As some of you are aware, I recently had surgery to replace my gastric

stimulator. I went back for my 3 week follow up last Thursday. I am healing

very nicely and the stimulator is already making such a difference in the way I

feel and my ability to eat and keep food down. I have only had one day of

vomiting since surgery. I still have a lot of nausea, but I have Zofran for

that and am doing well.

Since 1993, I have known that I have non alcoholic fatty liver disease (NAFLD).

Over the years, I have had biopses every few years just to make sure everything

is okay. I had one in Dec. of 2006 when I had my last stimulator replacement

prior to this one. It showed some fibrosis but nothing of great concern. My

surgeon performed another biopsy during this last surgery. I got the results

last Thursday.

In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly. The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein. The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH). The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of hepatocytes.

It is his opinion that I am transitioning from stage 3 to stage 4 and should

have immediate follow up care.

I cannot tell you how shocked I was to receive this report! To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down. I have scheduled an appointment with my

local GI on this coming Friday. My surgeon has suggested that I ask for a

referral to a hepatologist ASAP. I am just spinning right now. I haven't told

my Daddy or my MIL yet. I have had to have a few days just to digesst the

information on my own. My sisters, niece and nephews know and have been so

supportive and are of course praying. I have to talk to Daddy and my MIL before

Friday. It is just so soon after losing Terry and I know it is going to be so

hard on them.

Please pray for me and for my family. Daddy has my sisters and he will do okay

once the initial shock wears off. My MIL has no one but me; Terry was her only

child and we have no children. My FIL died in 2002. When we first told her

about Terry's ESLD, she was in denial for many months and really did not begin

to accept the fact that he was terminal until just weeks before he died. I am

concerned about what this news is going to do to her.

I am not afraid of death; I know where I am going the minute I breathe my last

breath here. I will be with my Jesus and with Terry and Momma and my babies. I

cannot be sad about that. Of course, I am sad about not getting to see my niece

and nephews children grow up. However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me. The Lord answered my

prayer and gave me my heart's desire. Whatever the outcome of this is, I am

okay with it.

Dying of liver disease does however scare me spitless! I witnessed first hand

what it did to Terry. I saw how he suffered; always very quietly and never

wanting to be a burden on me. He suffered untold agony that I'm quite sure I

never knew about. He did it with dignity and died with peace and dignity. I

don't know if I have the courage to do that and that scares me. More than

anything, I want to be a blessing and not a burden to my family. I want to

bring honor and dignity to the name of the Lord with whatever I do.

This is the beginning of what I know will be a long and chaotic ride. If you

guys would allow me to come back and be a part of your group, it would mean so

much to me. I haven't been around and I don't deserve to be taken in, but I

sure am praying you will say yes! I have never forgotten about all of you and I

pray every day for all of you, even those whom I have not 'met' yet. God bless

you all!

Warm Hugs........ ...

Diane C. from TN

http://auntdisexper imentallife. blogspot. com/

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Jan,

Thanks so much for your warm greeting.  I appreciate it more than I will ever be

able to adequately express to you.  I am so thankful to this group to help me

along.  You all were such a great support system while I was taking care of

Terry.  I learned so much here; information that made it so much easier to give

him the care he needed. 

I have an appointment with my GI on Friday morning.  Let the games begin.......

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Monday, August 3, 2009 9:22:42 PM

Subject: Re: RE: Hello from a long, lost friend!

 

Diane - you don't have to ask if you will be allowed back in. You have

never left us. Just took a little vacation. I understand what you are

feeling about having this disease and what it will do to the ones left

behind. I am surprised you haven't mentioned a transplant. Have they

already ruled it out, or have you? I wouldn't wish this disease on my worst

enemy and certainly not a great person like you. It is my hope, looking at

the same things you have mentioned, that I die of something other than the

cirrhosis before the cirrhosis gets to its worst. I can't understand what

it must feel like to have just lost your husband to it and then find out you

have it yourself. Love you. Jan H

On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net>wrote:

> I'm almost ashamed to even come here and post anymore! I have been so

> negligent of all of you and there are so many newbies since I was posting

> regularly. I apologize to each of you for neglecting you. Losing Terry

> threw my life into a tail spin there for a while. Going on without him has

> been the most difficult thing I have ever had to do. However, God is good

> and faithful and has been always right by my side throughout the entire

> struggle. I will never get over loving or missing Terry, but I am learning

> to go on living without him. It is not easy, but I have learned life can be

> good again.

>

> As some of you are aware, I recently had surgery to replace my gastric

> stimulator. I went back for my 3 week follow up last Thursday. I am

> healing very nicely and the stimulator is already making such a difference

> in the way I feel and my ability to eat and keep food down. I have only had

> one day of vomiting since surgery. I still have a lot of nausea, but I have

> Zofran for that and am doing well.

>

> Since 1993, I have known that I have non alcoholic fatty liver disease

> (NAFLD). Over the years, I have had biopses every few years just to make

> sure everything is okay. I had one in Dec. of 2006 when I had my last

> stimulator replacement prior to this one. It showed some fibrosis but

> nothing of great concern. My surgeon performed another biopsy during this

> last surgery. I got the results last Thursday.

>

> In the 2 1/2 years since the last biopsy, my liver disease has advanced

> significantly. The pathology reports shows me now to have grade 2, stage

> 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> pan-zonally and inflammatory infiltration into my portal vein. The

> pathologist who did this exam thinks I have been mis-diagnosed for years and

> have actually had non alcoholic steatohepatitis (NASH). The inflammatory

> infiltrate extends into the lobular compartment with the presence of

> ballooning degeneration of hepatocytes. It is his opinion that I am

> transitioning from stage 3 to stage 4 and should have immediate follow up

> care.

>

> I cannot tell you how shocked I was to receive this report! To have just

> six months ago been through losing Terry to this very disease and now be

> receiving this report has really knocked me down. I have scheduled an

> appointment with my local GI on this coming Friday. My surgeon has

> suggested that I ask for a referral to a hepatologist ASAP. I am just

> spinning right now. I haven't told my Daddy or my MIL yet. I have had to

> have a few days just to digesst the information on my own. My sisters,

> niece and nephews know and have been so supportive and are of course

> praying. I have to talk to Daddy and my MIL before Friday. It is just so

> soon after losing Terry and I know it is going to be so hard on them.

>

> Please pray for me and for my family. Daddy has my sisters and he will do

> okay once the initial shock wears off. My MIL has no one but me; Terry was

> her only child and we have no children. My FIL died in 2002. When we first

> told her about Terry's ESLD, she was in denial for many months and really

> did not begin to accept the fact that he was terminal until just weeks

> before he died. I am concerned about what this news is going to do to her.

>

> I am not afraid of death; I know where I am going the minute I breathe my

> last breath here. I will be with my Jesus and with Terry and Momma and my

> babies. I cannot be sad about that. Of course, I am sad about not getting

> to see my niece and nephews children grow up. However, I prayed and asked

> the Lord for life and strength to care for Terry because I knew he needed

> me. The Lord answered my prayer and gave me my heart's desire. Whatever

> the outcome of this is, I am okay with it.

>

> Dying of liver disease does however scare me spitless! I witnessed first

> hand what it did to Terry. I saw how he suffered; always very quietly and

> never wanting to be a burden on me. He suffered untold agony that I'm quite

> sure I never knew about. He did it with dignity and died with peace and

> dignity. I don't know if I have the courage to do that and that scares me.

> More than anything, I want to be a blessing and not a burden to my family.

> I want to bring honor and dignity to the name of the Lord with whatever I

> do.

>

> This is the beginning of what I know will be a long and chaotic ride. If

> you guys would allow me to come back and be a part of your group, it would

> mean so much to me. I haven't been around and I don't deserve to be taken

> in, but I sure am praying you will say yes! I have never forgotten about

> all of you and I pray every day for all of you, even those whom I have not

> 'met' yet. God bless you all!

>

>

>

> Warm Hugs........ ...

>

> Diane C. from TN

> http://auntdisexper imentallife. blogspot. com/

>

>

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Posted
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Hi Gloria,

Thank you so much for your warm greeting.  I look forward to getting to know

you, although I am so very sorry that it is this horried disease that has

brought our paths to cross.  Battling this disease is so hard, on the patient

and on those we love.  I am so thankful you have your dear husband to help you

out and lead your support team.  I sure hope the CT works for you this time

around.  I think I'm just beginning the journey and will have so much to digest

over the next weeks.  I've had to start researching on the internet again in

order to refresh my memory about things.  After Terry's death, I tried so hard

to put all of that behind me and just put it out of my mind.  Now, I find myself

having to re-learn so I can know what the doctors are saying to me and so I

will have good information when making decisions.  I am so thankful to have you

all to support me and help me through this.

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Monday, August 3, 2009 9:44:06 PM

Subject: Re: RE: Hello from a long, lost friend!

 

I am one of those newcomers, Diane but no matter what - you are absolutely

welcome here.

I am already into Stage 4, early cirrhosis. However, I'm also battling back

again on a Clinical Trial with the combo. I had done treatment in 2004/2005 but

ended up being a Non-Responder.

So sorry to hear of the death of your beloved husband... That sucks! Right now I

don't know what I would do without my hubby. He's the only one that keeps me

going...

____________ _________ _________ __

I'm almost ashamed to even come here and post anymore! I have been so negligent

of all of you and there are so many newbies since I was posting regularly. I

apologize to each of you for neglecting you. Losing Terry threw my life into a

tail spin there for a while. Going on without him has been the most difficult

thing I have ever had to do. However, God is good and faithful and has been

always right by my side throughout the entire struggle. I will never get over

loving or missing Terry, but I am learning to go on living without him. It is

not easy, but I have learned life can be good again.

As some of you are aware, I recently had surgery to replace my gastric

stimulator. I went back for my 3 week follow up last Thursday. I am healing very

nicely and the stimulator is already making such a difference in the way I feel

and my ability to eat and keep food down. I have only had one day of vomiting

since surgery. I still have a lot of nausea, but I have Zofran for that and am

doing well.

Since 1993, I have known that I have non alcoholic fatty liver disease (NAFLD).

Over the years, I have had biopses every few years just to make sure everything

is okay. I had one in Dec. of 2006 when I had my last stimulator replacement

prior to this one. It showed some fibrosis but nothing of great concern. My

surgeon performed another biopsy during this last surgery. I got the results

last Thursday.

In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly. The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein. The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH). The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of hepatocytes.

It is his opinion that I am transitioning from stage 3 to stage 4 and should

have immediate follow up care.

I cannot tell you how shocked I was to receive this report! To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down. I have scheduled an appointment with my

local GI on this coming Friday. My surgeon has suggested that I ask for a

referral to a hepatologist ASAP. I am just spinning right now. I haven't told my

Daddy or my MIL yet. I have had to have a few days just to digesst the

information on my own. My sisters, niece and nephews know and have been so

supportive and are of course praying. I have to talk to Daddy and my MIL before

Friday. It is just so soon after losing Terry and I know it is going to be so

hard on them.

Please pray for me and for my family. Daddy has my sisters and he will do okay

once the initial shock wears off. My MIL has no one but me; Terry was her only

child and we have no children. My FIL died in 2002. When we first told her about

Terry's ESLD, she was in denial for many months and really did not begin to

accept the fact that he was terminal until just weeks before he died. I am

concerned about what this news is going to do to her.

I am not afraid of death; I know where I am going the minute I breathe my last

breath here. I will be with my Jesus and with Terry and Momma and my babies. I

cannot be sad about that. Of course, I am sad about not getting to see my niece

and nephews children grow up. However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me. The Lord answered my

prayer and gave me my heart's desire. Whatever the outcome of this is, I am okay

with it.

Dying of liver disease does however scare me spitless! I witnessed first hand

what it did to Terry. I saw how he suffered; always very quietly and never

wanting to be a burden on me. He suffered untold agony that I'm quite sure I

never knew about. He did it with dignity and died with peace and dignity. I

don't know if I have the courage to do that and that scares me. More than

anything, I want to be a blessing and not a burden to my family. I want to bring

honor and dignity to the name of the Lord with whatever I do.

This is the beginning of what I know will be a long and chaotic ride. If you

guys would allow me to come back and be a part of your group, it would mean so

much to me. I haven't been around and I don't deserve to be taken in, but I sure

am praying you will say yes! I have never forgotten about all of you and I pray

every day for all of you, even those whom I have not 'met' yet. God bless you

all!

Warm Hugs........ ...

Diane C. from TN

http://auntdisexper imentallife. blogspot. com/

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Posted
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Diane - you were as much an inspiration to the group as the help you got.

Just closing out my computer before I go for my angioplasty. Might be gone

until Thursday, so everybody- don't start worrying. Jan H

On Tue, Aug 4, 2009 at 1:52 AM, diane chandler wrote:

> Jan,

>

> Thanks so much for your warm greeting. I appreciate it more than I will

> ever be able to adequately express to you. I am so thankful to this group

> to help me along. You all were such a great support system while I was

> taking care of Terry. I learned so much here; information that made it so

> much easier to give him the care he needed.

>

> I have an appointment with my GI on Friday morning. Let the games

> begin.......

>

>

> Warm Hugs...........

>

> Diane

> http://auntdisexperimentallife.blogspot.com/

>

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Monday, August 3, 2009 9:22:42 PM

> Subject: Re: RE: Hello from a long, lost friend!

>

>

> Diane - you don't have to ask if you will be allowed back in. You have

> never left us. Just took a little vacation. I understand what you are

> feeling about having this disease and what it will do to the ones left

> behind. I am surprised you haven't mentioned a transplant. Have they

> already ruled it out, or have you? I wouldn't wish this disease on my worst

> enemy and certainly not a great person like you. It is my hope, looking at

> the same things you have mentioned, that I die of something other than the

> cirrhosis before the cirrhosis gets to its worst. I can't understand what

> it must feel like to have just lost your husband to it and then find out

> you

> have it yourself. Love you. Jan H

>

> On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net

> >wrote:

>

> > I'm almost ashamed to even come here and post anymore! I have been so

> > negligent of all of you and there are so many newbies since I was posting

> > regularly. I apologize to each of you for neglecting you. Losing Terry

> > threw my life into a tail spin there for a while. Going on without him

> has

> > been the most difficult thing I have ever had to do. However, God is good

> > and faithful and has been always right by my side throughout the entire

> > struggle. I will never get over loving or missing Terry, but I am

> learning

> > to go on living without him. It is not easy, but I have learned life can

> be

> > good again.

> >

> > As some of you are aware, I recently had surgery to replace my gastric

> > stimulator. I went back for my 3 week follow up last Thursday. I am

> > healing very nicely and the stimulator is already making such a

> difference

> > in the way I feel and my ability to eat and keep food down. I have only

> had

> > one day of vomiting since surgery. I still have a lot of nausea, but I

> have

> > Zofran for that and am doing well.

> >

> > Since 1993, I have known that I have non alcoholic fatty liver disease

> > (NAFLD). Over the years, I have had biopses every few years just to make

> > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > stimulator replacement prior to this one. It showed some fibrosis but

> > nothing of great concern. My surgeon performed another biopsy during this

> > last surgery. I got the results last Thursday.

> >

> > In the 2 1/2 years since the last biopsy, my liver disease has advanced

> > significantly. The pathology reports shows me now to have grade 2, stage

> > 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> > pan-zonally and inflammatory infiltration into my portal vein. The

> > pathologist who did this exam thinks I have been mis-diagnosed for years

> and

> > have actually had non alcoholic steatohepatitis (NASH). The inflammatory

> > infiltrate extends into the lobular compartment with the presence of

> > ballooning degeneration of hepatocytes. It is his opinion that I am

> > transitioning from stage 3 to stage 4 and should have immediate follow up

> > care.

> >

> > I cannot tell you how shocked I was to receive this report! To have just

> > six months ago been through losing Terry to this very disease and now be

> > receiving this report has really knocked me down. I have scheduled an

> > appointment with my local GI on this coming Friday. My surgeon has

> > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > spinning right now. I haven't told my Daddy or my MIL yet. I have had to

> > have a few days just to digesst the information on my own. My sisters,

> > niece and nephews know and have been so supportive and are of course

> > praying. I have to talk to Daddy and my MIL before Friday. It is just so

> > soon after losing Terry and I know it is going to be so hard on them.

> >

> > Please pray for me and for my family. Daddy has my sisters and he will do

> > okay once the initial shock wears off. My MIL has no one but me; Terry

> was

> > her only child and we have no children. My FIL died in 2002. When we

> first

> > told her about Terry's ESLD, she was in denial for many months and really

> > did not begin to accept the fact that he was terminal until just weeks

> > before he died. I am concerned about what this news is going to do to

> her.

> >

> > I am not afraid of death; I know where I am going the minute I breathe my

> > last breath here. I will be with my Jesus and with Terry and Momma and my

> > babies. I cannot be sad about that. Of course, I am sad about not getting

> > to see my niece and nephews children grow up. However, I prayed and asked

> > the Lord for life and strength to care for Terry because I knew he needed

> > me. The Lord answered my prayer and gave me my heart's desire. Whatever

> > the outcome of this is, I am okay with it.

> >

> > Dying of liver disease does however scare me spitless! I witnessed first

> > hand what it did to Terry. I saw how he suffered; always very quietly and

> > never wanting to be a burden on me. He suffered untold agony that I'm

> quite

> > sure I never knew about. He did it with dignity and died with peace and

> > dignity. I don't know if I have the courage to do that and that scares

> me.

> > More than anything, I want to be a blessing and not a burden to my

> family.

> > I want to bring honor and dignity to the name of the Lord with whatever I

> > do.

> >

> > This is the beginning of what I know will be a long and chaotic ride. If

> > you guys would allow me to come back and be a part of your group, it

> would

> > mean so much to me. I haven't been around and I don't deserve to be taken

> > in, but I sure am praying you will say yes! I have never forgotten about

> > all of you and I pray every day for all of you, even those whom I have

> not

> > 'met' yet. God bless you all!

> >

> >

> >

> > Warm Hugs........ ...

> >

> > Diane C. from TN

> > http://auntdisexper imentallife. blogspot. com/

> >

> >

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Posted

Praying for you Jan and thanks!

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Tuesday, August 4, 2009 5:43:01 AM

Subject: Re: RE: Hello from a long, lost friend!

 

Diane - you were as much an inspiration to the group as the help you got.

Just closing out my computer before I go for my angioplasty. Might be gone

until Thursday, so everybody- don't start worrying. Jan H

On Tue, Aug 4, 2009 at 1:52 AM, diane chandler <dianechandler@ att.net>wrote:

> Jan,

>

> Thanks so much for your warm greeting. I appreciate it more than I will

> ever be able to adequately express to you. I am so thankful to this group

> to help me along. You all were such a great support system while I was

> taking care of Terry. I learned so much here; information that made it so

> much easier to give him the care he needed.

>

> I have an appointment with my GI on Friday morning. Let the games

> begin.......

>

>

> Warm Hugs........ ...

>

> Diane

> http://auntdisexper imentallife. blogspot. com/

>

>

>

>

> ____________ _________ _________ __

> From: Jan Holman <janholmangmail (DOT) com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Monday, August 3, 2009 9:22:42 PM

> Subject: Re: RE: Hello from a long, lost friend!

>

>

> Diane - you don't have to ask if you will be allowed back in. You have

> never left us. Just took a little vacation. I understand what you are

> feeling about having this disease and what it will do to the ones left

> behind. I am surprised you haven't mentioned a transplant. Have they

> already ruled it out, or have you? I wouldn't wish this disease on my worst

> enemy and certainly not a great person like you. It is my hope, looking at

> the same things you have mentioned, that I die of something other than the

> cirrhosis before the cirrhosis gets to its worst. I can't understand what

> it must feel like to have just lost your husband to it and then find out

> you

> have it yourself. Love you. Jan H

>

> On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net

> >wrote:

>

> > I'm almost ashamed to even come here and post anymore! I have been so

> > negligent of all of you and there are so many newbies since I was posting

> > regularly. I apologize to each of you for neglecting you. Losing Terry

> > threw my life into a tail spin there for a while. Going on without him

> has

> > been the most difficult thing I have ever had to do. However, God is good

> > and faithful and has been always right by my side throughout the entire

> > struggle. I will never get over loving or missing Terry, but I am

> learning

> > to go on living without him. It is not easy, but I have learned life can

> be

> > good again.

> >

> > As some of you are aware, I recently had surgery to replace my gastric

> > stimulator. I went back for my 3 week follow up last Thursday. I am

> > healing very nicely and the stimulator is already making such a

> difference

> > in the way I feel and my ability to eat and keep food down. I have only

> had

> > one day of vomiting since surgery. I still have a lot of nausea, but I

> have

> > Zofran for that and am doing well.

> >

> > Since 1993, I have known that I have non alcoholic fatty liver disease

> > (NAFLD). Over the years, I have had biopses every few years just to make

> > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > stimulator replacement prior to this one. It showed some fibrosis but

> > nothing of great concern. My surgeon performed another biopsy during this

> > last surgery. I got the results last Thursday.

> >

> > In the 2 1/2 years since the last biopsy, my liver disease has advanced

> > significantly. The pathology reports shows me now to have grade 2, stage

> > 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> > pan-zonally and inflammatory infiltration into my portal vein. The

> > pathologist who did this exam thinks I have been mis-diagnosed for years

> and

> > have actually had non alcoholic steatohepatitis (NASH). The inflammatory

> > infiltrate extends into the lobular compartment with the presence of

> > ballooning degeneration of hepatocytes. It is his opinion that I am

> > transitioning from stage 3 to stage 4 and should have immediate follow up

> > care.

> >

> > I cannot tell you how shocked I was to receive this report! To have just

> > six months ago been through losing Terry to this very disease and now be

> > receiving this report has really knocked me down. I have scheduled an

> > appointment with my local GI on this coming Friday. My surgeon has

> > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > spinning right now. I haven't told my Daddy or my MIL yet. I have had to

> > have a few days just to digesst the information on my own. My sisters,

> > niece and nephews know and have been so supportive and are of course

> > praying. I have to talk to Daddy and my MIL before Friday. It is just so

> > soon after losing Terry and I know it is going to be so hard on them.

> >

> > Please pray for me and for my family. Daddy has my sisters and he will do

> > okay once the initial shock wears off. My MIL has no one but me; Terry

> was

> > her only child and we have no children. My FIL died in 2002. When we

> first

> > told her about Terry's ESLD, she was in denial for many months and really

> > did not begin to accept the fact that he was terminal until just weeks

> > before he died. I am concerned about what this news is going to do to

> her.

> >

> > I am not afraid of death; I know where I am going the minute I breathe my

> > last breath here. I will be with my Jesus and with Terry and Momma and my

> > babies. I cannot be sad about that. Of course, I am sad about not getting

> > to see my niece and nephews children grow up. However, I prayed and asked

> > the Lord for life and strength to care for Terry because I knew he needed

> > me. The Lord answered my prayer and gave me my heart's desire. Whatever

> > the outcome of this is, I am okay with it.

> >

> > Dying of liver disease does however scare me spitless! I witnessed first

> > hand what it did to Terry. I saw how he suffered; always very quietly and

> > never wanting to be a burden on me. He suffered untold agony that I'm

> quite

> > sure I never knew about. He did it with dignity and died with peace and

> > dignity. I don't know if I have the courage to do that and that scares

> me.

> > More than anything, I want to be a blessing and not a burden to my

> family.

> > I want to bring honor and dignity to the name of the Lord with whatever I

> > do.

> >

> > This is the beginning of what I know will be a long and chaotic ride. If

> > you guys would allow me to come back and be a part of your group, it

> would

> > mean so much to me. I haven't been around and I don't deserve to be taken

> > in, but I sure am praying you will say yes! I have never forgotten about

> > all of you and I pray every day for all of you, even those whom I have

> not

> > 'met' yet. God bless you all!

> >

> >

> >

> > Warm Hugs........ ...

> >

> > Diane C. from TN

> > http://auntdisexper imentallife. blogspot. com/

> >

> >

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Posted
Posted

Oh Diane, there is no rule you must stay with us always and participate all

the time. If that were so they would have kicked me out long ago. I

dropped off my posting a long time ago. After all we are sick people aren't

we ? We get tired and don't always keep up with everything and you just

have to deal with what you can handle at the moment. So don't feel bad

about that at all! I don't think anyone is here to give out guilt trips.

As I read your post I was wondering what was the difference between NAFLD

and NASH. Sure sounded similar to me. I was diagnosed first with nash and

now cirhossis. It's not an automatic and rather immediate death sentence.

It's serious and hard but find a good doctor and just go from there, one day

at a time.

, diane chandler wrote:

>

> I'm almost ashamed to even come here and post anymore! I have been so

> negligent of all of you and there are so many newbies since I was posting

> regularly. I apologize to each of you for neglecting you.

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Posted
Posted

Diane, my dear friend, you need never feel bad about posting /not posting. This

group belongs to you, and you to it. We are a family. I cannot tell you how

heavy my heart is this morning to hear of your news about your liver. I too am

scared spitless to die from this. Please please try to give the stress to God.

The stress can make you just as sick as the liver disease, and is very very bad

for your liver. Take a deep breath, remember to try and stay calm. Easy for me

to say, but it is what I would have told me back in November 2006 when the

surgeon gave me my bad news. Remember we are all here for you. Love, and a big

hug, Bobby

long life, old age, everything good-Apache prayer

________________________________

To: Cirrhosis Support Group <livercirrhosissupport >

Sent: Monday, August 3, 2009 7:24:11 PM

Subject: RE: Hello from a long, lost friend!

I'm almost ashamed to even come here and post anymore! I have been so negligent

of all of you and there are so many newbies since I was posting regularly. I

apologize to each of you for neglecting you. Losing Terry threw my life into a

tail spin there for a while. Going on without him has been the most difficult

thing I have ever had to do. However, God is good and faithful and has been

always right by my side throughout the entire struggle. I will never get over

loving or missing Terry, but I am learning to go on living without him. It is

not easy, but I have learned life can be good again.

As some of you are aware, I recently had surgery to replace my gastric

stimulator. I went back for my 3 week follow up last Thursday. I am healing

very nicely and the stimulator is already making such a difference in the way I

feel and my ability to eat and keep food down. I have only had one day of

vomiting since surgery. I still have a lot of nausea, but I have Zofran for

that and am doing well.

Since 1993, I have known that I have non alcoholic fatty liver disease (NAFLD).

Over the years, I have had biopses every few years just to make sure everything

is okay. I had one in Dec. of 2006 when I had my last stimulator replacement

prior to this one. It showed some fibrosis but nothing of great concern. My

surgeon performed another biopsy during this last surgery. I got the results

last Thursday.

In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly. The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein. The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH). The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of hepatocytes.

It is his opinion that I am transitioning from stage 3 to stage 4 and should

have immediate follow up care.

I cannot tell you how shocked I was to receive this report! To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down. I have scheduled an appointment with my

local GI on this coming Friday. My surgeon has suggested that I ask for a

referral to a hepatologist ASAP. I am just spinning right now. I haven't told

my Daddy or my MIL yet. I have had to have a few days just to digesst the

information on my own. My sisters, niece and nephews know and have been so

supportive and are of course praying. I have to talk to Daddy and my MIL before

Friday. It is just so soon after losing Terry and I know it is going to be so

hard on them.

Please pray for me and for my family. Daddy has my sisters and he will do okay

once the initial shock wears off. My MIL has no one but me; Terry was her only

child and we have no children. My FIL died in 2002. When we first told her

about Terry's ESLD, she was in denial for many months and really did not begin

to accept the fact that he was terminal until just weeks before he died. I am

concerned about what this news is going to do to her.

I am not afraid of death; I know where I am going the minute I breathe my last

breath here. I will be with my Jesus and with Terry and Momma and my babies. I

cannot be sad about that. Of course, I am sad about not getting to see my niece

and nephews children grow up. However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me. The Lord answered my

prayer and gave me my heart's desire. Whatever the outcome of this is, I am

okay with it.

Dying of liver disease does however scare me spitless! I witnessed first hand

what it did to Terry. I saw how he suffered; always very quietly and never

wanting to be a burden on me. He suffered untold agony that I'm quite sure I

never knew about. He did it with dignity and died with peace and dignity. I

don't know if I have the courage to do that and that scares me. More than

anything, I want to be a blessing and not a burden to my family. I want to

bring honor and dignity to the name of the Lord with whatever I do.

This is the beginning of what I know will be a long and chaotic ride. If you

guys would allow me to come back and be a part of your group, it would mean so

much to me. I haven't been around and I don't deserve to be taken in, but I

sure am praying you will say yes! I have never forgotten about all of you and I

pray every day for all of you, even those whom I have not 'met' yet. God bless

you all!

Warm Hugs........ ...

Diane C. from TN

http://auntdisexper imentallife. blogspot. com/

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Posted

, did you grow a garden this year? It is really great to hear from you.

How is life on the farm? Love, Bobby

long life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Tuesday, August 4, 2009 10:52:32 AM

Subject: Re: Re: Hello from a long, lost friend!

Oh Diane, there is no rule you must stay with us always and participate all

the time. If that were so they would have kicked me out long ago. I

dropped off my posting a long time ago. After all we are sick people aren't

we ? We get tired and don't always keep up with everything and you just

have to deal with what you can handle at the moment. So don't feel bad

about that at all! I don't think anyone is here to give out guilt trips.

As I read your post I was wondering what was the difference between NAFLD

and NASH. Sure sounded similar to me. I was diagnosed first with nash and

now cirhossis. It's not an automatic and rather immediate death sentence.

It's serious and hard but find a good doctor and just go from there, one day

at a time.

@yahoogroups. com, diane chandler <dianechandler@ ...> wrote:

>

> I'm almost ashamed to even come here and post anymore! I have been so

> negligent of all of you and there are so many newbies since I was posting

> regularly. I apologize to each of you for neglecting you.

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Posted
Posted

Diane you are in my prayers-always- and you never left us. ...You just had to

take care of yourself. Do this with the same love and compassion you had for

Terry.  God is good and he will sustain you thru this difficult journey.

________________________________

To: Cirrhosis Support Group <livercirrhosissupport >

Sent: Monday, August 3, 2009 5:24:11 PM

Subject: RE: Hello from a long, lost friend!

 

I'm almost ashamed to even come here and post anymore!  I have been so negligent

of all of you and there are so many newbies since I was posting regularly.  I

apologize to each of you for neglecting you.  Losing Terry threw my life into a

tail spin there for a while.  Going on without him has been the most difficult

thing I have ever had to do.  However, God is good and faithful and has been

always right by my side throughout the entire struggle.  I will never get over

loving or missing Terry, but I am learning to go on living without him.  It is

not easy, but I have learned life can be good again.

As some of you are aware, I recently had surgery to replace my gastric

stimulator.  I went back for my 3 week follow up last Thursday.  I am healing

very nicely and the stimulator is already making such a difference in the way I

feel and my ability to eat and keep food down.  I have only had one day of

vomiting since surgery.  I still have a lot of nausea, but I have Zofran for

that and am doing well.

Since 1993, I have known that I have non alcoholic fatty liver disease (NAFLD). 

Over the years, I have had biopses every few years just to make sure everything

is okay.  I had one in Dec. of 2006 when I had my last stimulator replacement

prior to this one.  It showed some fibrosis but nothing of great concern.  My

surgeon performed another biopsy during this last surgery.  I got the results

last Thursday.

In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly.  The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein.  The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH).  The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of

hepatocytes.  It is his opinion that I am transitioning from stage 3 to stage 4

and should have immediate follow up care.

I cannot tell you how shocked I was to receive this report!  To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down.  I have scheduled an appointment with my

local GI on this coming Friday.  My surgeon has suggested that I ask for a

referral to a hepatologist ASAP.  I am just spinning right now.  I haven't told

my Daddy or my MIL yet.  I have had to have a few days just to digesst the

information on my own.  My sisters, niece and nephews know and have been so

supportive and are of course praying.  I have to talk to Daddy and my MIL before

Friday.  It is just so soon after losing Terry and I know it is going to be so

hard on them.

Please pray for me and for my family.  Daddy has my sisters and he will do okay

once the initial shock wears off.  My MIL has no one but me; Terry was her only

child and we have no children.  My FIL died in 2002.  When we first told her

about Terry's ESLD, she was in denial for many months and really did not begin

to accept the fact that he was terminal until just weeks before he died.  I am

concerned about what this news is going to do to her.

I am not afraid of death; I know where I am going the minute I breathe my last

breath here.  I will be with my Jesus and with Terry and Momma and my babies.  I

cannot be sad about that.  Of course, I am sad about not getting to see my niece

and nephews children grow up.  However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me.  The Lord answered my

prayer and gave me my heart's desire.  Whatever the outcome of this is, I am

okay with it.

Dying of liver disease does however scare me spitless!  I witnessed first hand

what it did to Terry.  I saw how he suffered; always very quietly and never

wanting to be a burden on me.  He suffered untold agony that I'm quite sure I

never knew about.  He did it with dignity and died with peace and dignity.  I

don't know if I have the courage to do that and that scares me.  More than

anything, I want to be a blessing and not a burden to my family.  I want to

bring honor and dignity to the name of the Lord with whatever I do.

This is the beginning of what I know will be a long and chaotic ride.  If you

guys would allow me to come back and be a part of your group, it would mean so

much to me.  I haven't been around and I don't deserve to be taken in, but I

sure am praying you will say yes!  I have never forgotten about all of you and I

pray every day for all of you, even those whom I have not 'met' yet.  God bless

you all!

 

Warm Hugs........ ...

 

Diane C. from TN

http://auntdisexper imentallife. blogspot. com/

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Oh Bobby. I tried. The weather has been so weird here, cool for my area

except for a week or two and way more rain in the summer than normal. I'm

not complaining though, better than the terrible heat and drought of a

couple of years ago. Anyway I am ashamed to say I planted 12 tomatoe plants

and they have just sat there - never really grew much and have not totally

died. I've never had that happen before. Others that have gotten in their

tomatoes say they are a month late and small. I'm not sure if it is all the

weather or just this dirt is not the Mississippi River Delta dirt I grew up

on, but rather it is clay. Either way, I've got some adjusting to do.

The good news, the one thing I never could grow and have always wanted to is

Lavender. Well, once again I planted 3 lavender plants, fully expecting to

kill them shortly. for once I must have picked the right spot, for they are

actually growing and I got my first blooms the other day. They smell like

heaven! Most of my other herbs that I am normally successful with have

literally drowned this year.

The farm is good. I had all kinds of lambs this year - first time- and have

had so much fun with them. These sheep are docile and kind creatures, with

twins all over the place. My heifers have developed an affinity for the

sheep, especially the lambs and are functioning about like livestock

guardian dogs for them. The lambs learn real quick if they get scared to

run up under the heifers' legs and hide, where these maternal minded heifers

give them kisses and take care not to knock them over. Next year we should

get our first calves.

I get frustrated sometimes as I am not strong enough to do all I could do

once and help is hard to find. But evenso I would not trade it. I had a

big setback last fall, November and got airlifted on the helicopter. That

was an experience - some of it made me think of the phrase Bob's wild

ride! They thought I had 2 strokes, but that is debated now, as all my

functioning has come back. The really weird trip part was that I knew I was

sick and it had gone on so long before I ended up in the hospital, that my

optic nerve that is part of my brain stem or something like that swelled up

and you talk about seeing some wild and crazy stuff. Course there is always

the incompetent part too. My kids took me to the ER in hopkinsville where

they gave me two tylenol after my 3 hour wait and sent me home. 1/2 way

home I lost my ability to speak - or rather I lost my ability to speak

English. I dare say it sounded like I was speaking in tongues. My poor

son, I have teased him so much all of his life that you would expect what he

said next - Mom, if you are faking this or teasing me I am going to kill

you. LOL - I deserved that for all the pranks I have played on that child

all these years. Evenso he went on and called 911 and got me on the

helicopter. He is really an angel.

I have rambled enough but if you have any garden suggestions or such let me

know. I know your skills are way above mine.

I have a website - needs to be updated, but you can see a few things.

www.crislipfarms.com

As you can see I still read the list and see the helpfulness and kindness

you all give - just get to tired to write sometimes.

Re: Re: Hello from a long, lost friend!

> , did you grow a garden this year? It is really great to hear from

> you. How is life on the farm? Love, Bobby

>

> long life, old age, everything good-Apache prayer

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Barby thank you so much!  You are my friend as well and I do so love you and

pray for you and Bobby Glen and all of your family every day.  This has been

difficult, but it's beginning to sink in now and I'm in the 'ok, let's get

moving and see what we're gonna do' mode.  I have made lists on top of lists of

questions to ask and things that I have to do so that everything is in order in

case I get really sick. I am so ready for the appt. on Friday.  My youngest

sister has made arrangements with her job to take off so she can go with me.  I

told her it wasn't necessary, but they both think someone should be with me and

I shouldn't have to face this alone.  I've warned them that this is not a

sprint, it is a marathon and they should pace themselves because I will need

them much more badly later down the road.  They don't listen to me very well! 

Never have!  Anyway, they're set on taking care of me and so I'll let them and

when it's all closing

in on them, then I'll kindly tell them to take a step back and catch their

breath!  I've walked their road and I know they will need that from time to

time.  I sure never dreamed I would be at this place, at this time in my life;

but then life rarely gives us what we expect, does it?!  Love you my friend!!!!

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Tuesday, August 4, 2009 9:09:14 AM

Subject: Re: Hello from a long, lost friend!

 

diane it took me awhile to stop crying before i could respond to your post honey

i love you!!!!!!!! come back...YOU NEVER LEFT,you have always been right here

with us in our hearts and souls,you are sooooo loved by us all!!! what a blow,i

am so sorry for all you have had to endure and now this,life can be so cruel,but

you are so strong,much stronger than i,we are here for you always!!!! neglected

us ....PHEWY!!! ! i have never felt neglect,and i am sure i speak for us all

right guys. you belong here your are our family,i am glad you are back posting

but so sorry you have been delt the cards you have received!!! you are my friend

and i love you,stay strong ,get to that dr. and lets get a plan of action in

place.all my love and respect barby

>

> I'm almost ashamed to even come here and post anymore!  I have been so

negligent of all of you and there are so many newbies since I was posting

regularly.  I apologize to each of you for neglecting you.  Losing Terry threw

my life into a tail spin there for a while.  Going on without him has been the

most difficult thing I have ever had to do.  However, God is good and faithful

and has been always right by my side throughout the entire struggle.  I will

never get over loving or missing Terry, but I am learning to go on

living without him.  It is not easy, but I have learned life can be good again.

>

> As some of you are aware, I recently had surgery to replace my gastric

stimulator.  I went back for my 3 week follow up last Thursday.  I am healing

very nicely and the stimulator is already making such a difference in the way I

feel and my ability to eat and keep food down.  I have only had one day of

vomiting since surgery.  I still have a lot of nausea, but I have Zofran for

that and am doing well.

>

> Since 1993, I have known that I have non alcoholic fatty liver disease

(NAFLD).  Over the years, I have had biopses every few years just to make sure

everything is okay.  I had one in Dec. of 2006 when I had my last stimulator

replacement prior to this one.  It showed some fibrosis but nothing of great

concern.  My surgeon performed another biopsy during this last surgery.  I got

the results last Thursday.

>

> In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly.  The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein.  The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH).  The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of

hepatocytes.  It is his opinion that I am transitioning from stage 3 to stage 4

and should have immediate follow up care.

>

> I cannot tell you how shocked I was to receive this report!  To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down.  I have scheduled an appointment with my

local GI on this coming Friday.  My surgeon has suggested that I ask for a

referral to a hepatologist ASAP.  I am just spinning right now.  I haven't told

my Daddy or my MIL yet.  I have had to have a few days just to digesst the

information on my own.  My sisters, niece and nephews know and have been so

supportive and are of course praying.  I have to talk to Daddy and my MIL before

Friday.  It is just so soon after losing Terry and I know it is going to be so

hard on them.

>

> Please pray for me and for my family.  Daddy has my sisters and he will do

okay once the initial shock wears off.  My MIL has no one but me; Terry was her

only child and we have no children.  My FIL died in 2002.  When we first told

her about Terry's ESLD, she was in denial for many months and really did not

begin to accept the fact that he was terminal until just weeks before he died. 

I am concerned about what this news is going to do to her.

>

> I am not afraid of death; I know where I am going the minute I breathe my last

breath here.  I will be with my Jesus and with Terry and Momma and my babies.  I

cannot be sad about that.  Of course, I am sad about not getting to see my niece

and nephews children grow up.  However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me.  The Lord answered my

prayer and gave me my heart's desire.  Whatever the outcome of this is, I am

okay with it.

>

> Dying of liver disease does however scare me spitless!  I witnessed first hand

what it did to Terry.  I saw how he suffered; always very quietly and never

wanting to be a burden on me.  He suffered untold agony that I'm quite sure I

never knew about.  He did it with dignity and died with peace and dignity.  I

don't know if I have the courage to do that and that scares me.  More than

anything, I want to be a blessing and not a burden to my family.  I want to

bring honor and dignity to the name of the Lord with whatever I do.

>

> This is the beginning of what I know will be a long and chaotic ride.  If you

guys would allow me to come back and be a part of your group, it would mean so

much to me.  I haven't been around and I don't deserve to be taken in, but I

sure am praying you will say yes!  I have never forgotten about all of you and I

pray every day for all of you, even those whom I have not 'met' yet.  God bless

you all!

>

>

>  

> Warm Hugs........ ...

>  

> Diane C. from TN

> http://auntdisexper imentallife. blogspot. com/

>

>

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Posted
Posted

Thank you Debbie.  I believe you are new since I last posted regularly.  I am

happy to 'meet' you, but so sorry it had to be under these circumstances. 

Please know my prayers are with you.

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Tuesday, August 4, 2009 11:32:40 AM

Subject: Re: Hello from a long, lost friend!

 

I'm so very sorry...Debbie- -- In livercirrhosissuppo rtyahoogroups (DOT) com, diane

chandler <dianechandler@ ...> wrote:

>

> I'm almost ashamed to even come here and post anymore!  I have been so

negligent of all of you and there are so many newbies since I was posting

regularly.  I apologize to each of you for neglecting you.  Losing Terry threw

my life into a tail spin there for a while.  Going on without him has been the

most difficult thing I have ever had to do.  However, God is good and faithful

and has been always right by my side throughout the entire struggle.  I will

never get over loving or missing Terry, but I am learning to go on

living without him.  It is not easy, but I have learned life can be good again.

>

> As some of you are aware, I recently had surgery to replace my gastric

stimulator.  I went back for my 3 week follow up last Thursday.  I am healing

very nicely and the stimulator is already making such a difference in the way I

feel and my ability to eat and keep food down.  I have only had one day of

vomiting since surgery.  I still have a lot of nausea, but I have Zofran for

that and am doing well.

>

> Since 1993, I have known that I have non alcoholic fatty liver disease

(NAFLD).  Over the years, I have had biopses every few years just to make sure

everything is okay.  I had one in Dec. of 2006 when I had my last stimulator

replacement prior to this one.  It showed some fibrosis but nothing of great

concern.  My surgeon performed another biopsy during this last surgery.  I got

the results last Thursday.

>

> In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly.  The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein.  The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH).  The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of

hepatocytes.  It is his opinion that I am transitioning from stage 3 to stage 4

and should have immediate follow up care.

>

> I cannot tell you how shocked I was to receive this report!  To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down.  I have scheduled an appointment with my

local GI on this coming Friday.  My surgeon has suggested that I ask for a

referral to a hepatologist ASAP.  I am just spinning right now.  I haven't told

my Daddy or my MIL yet.  I have had to have a few days just to digesst the

information on my own.  My sisters, niece and nephews know and have been so

supportive and are of course praying.  I have to talk to Daddy and my MIL before

Friday.  It is just so soon after losing Terry and I know it is going to be so

hard on them.

>

> Please pray for me and for my family.  Daddy has my sisters and he will do

okay once the initial shock wears off.  My MIL has no one but me; Terry was her

only child and we have no children.  My FIL died in 2002.  When we first told

her about Terry's ESLD, she was in denial for many months and really did not

begin to accept the fact that he was terminal until just weeks before he died. 

I am concerned about what this news is going to do to her.

>

> I am not afraid of death; I know where I am going the minute I breathe my last

breath here.  I will be with my Jesus and with Terry and Momma and my babies.  I

cannot be sad about that.  Of course, I am sad about not getting to see my niece

and nephews children grow up.  However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me.  The Lord answered my

prayer and gave me my heart's desire.  Whatever the outcome of this is, I am

okay with it.

>

> Dying of liver disease does however scare me spitless!  I witnessed first hand

what it did to Terry.  I saw how he suffered; always very quietly and never

wanting to be a burden on me.  He suffered untold agony that I'm quite sure I

never knew about.  He did it with dignity and died with peace and dignity.  I

don't know if I have the courage to do that and that scares me.  More than

anything, I want to be a blessing and not a burden to my family.  I want to

bring honor and dignity to the name of the Lord with whatever I do.

>

> This is the beginning of what I know will be a long and chaotic ride.  If you

guys would allow me to come back and be a part of your group, it would mean so

much to me.  I haven't been around and I don't deserve to be taken in, but I

sure am praying you will say yes!  I have never forgotten about all of you and I

pray every day for all of you, even those whom I have not 'met' yet.  God bless

you all!

>

>

>  

> Warm Hugs........ ...

>  

> Diane C. from TN

> http://auntdisexper imentallife. blogspot. com/

>

>

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Posted
Posted

As I understand it, NAFLD doesn't affect the cellular makeup the way NASH does

(re: ballooning lypocytes, etc.) and doesn't produce the inflammatory process as

aggreassively as does the NASH.  There's a lot I don't understand yet, but I am

prepared to ask a lot of questions when I see my GI on Friday.

Having taken care of my husband during his battle with liver disease, I once

knew much of this information, but have just forgotten it.  After he died in

January, I just wanted to forget all of that and pretty much just wiped it from

my mind.  Now, I'm having to re-learn everything in order to make the best

decisions for myself.

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Tuesday, August 4, 2009 11:52:32 AM

Subject: Re: Re: Hello from a long, lost friend!

 

Oh Diane, there is no rule you must stay with us always and participate all

the time. If that were so they would have kicked me out long ago. I

dropped off my posting a long time ago. After all we are sick people aren't

we ? We get tired and don't always keep up with everything and you just

have to deal with what you can handle at the moment. So don't feel bad

about that at all! I don't think anyone is here to give out guilt trips.

As I read your post I was wondering what was the difference between NAFLD

and NASH. Sure sounded similar to me. I was diagnosed first with nash and

now cirhossis. It's not an automatic and rather immediate death sentence.

It's serious and hard but find a good doctor and just go from there, one day

at a time.

@yahoogroups. com, diane chandler <dianechandler@ ...> wrote:

>

> I'm almost ashamed to even come here and post anymore! I have been so

> negligent of all of you and there are so many newbies since I was posting

> regularly. I apologize to each of you for neglecting you.

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Posted
Posted

Bobby,

Thank you.  I know how you have suffered and continue to do so and that you have

stood beside Ardis through her dying and that Sharon is so very sick herself. 

You are such a tower of strength to all of us!  I am in a really good place

emotionally with this.  The first couple of days were rough, but once I got

through that initial shock, I am good.  Just ready to get the process going and

find out exactly where I stand and how we're going to proceed from here.  I am

so thankful to have you for my friend and hero!

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Tuesday, August 4, 2009 1:16:35 PM

Subject: Re: RE: Hello from a long, lost friend!

 

Diane, my dear friend, you need never feel bad about posting /not posting. This

group belongs to you, and you to it. We are a family. I cannot tell you how

heavy my heart is this morning to hear of your news about your liver. I too am

scared spitless to die from this. Please please try to give the stress to God.

The stress can make you just as sick as the liver disease, and is very very bad

for your liver. Take a deep breath, remember to try and stay calm. Easy for me

to say, but it is what I would have told me back in November 2006 when the

surgeon gave me my bad news. Remember we are all here for you. Love, and a big

hug, Bobby

long life, old age, everything good-Apache prayer

____________ _________ _________ __

From: diane chandler <dianechandler@ att.net>

To: Cirrhosis Support Group <livercirrhosissuppo rtyahoogroups (DOT) com>

Sent: Monday, August 3, 2009 7:24:11 PM

Subject: RE: Hello from a long, lost friend!

I'm almost ashamed to even come here and post anymore! I have been so negligent

of all of you and there are so many newbies since I was posting regularly. I

apologize to each of you for neglecting you. Losing Terry threw my life into a

tail spin there for a while. Going on without him has been the most difficult

thing I have ever had to do. However, God is good and faithful and has been

always right by my side throughout the entire struggle. I will never get over

loving or missing Terry, but I am learning to go on living without him. It is

not easy, but I have learned life can be good again.

As some of you are aware, I recently had surgery to replace my gastric

stimulator. I went back for my 3 week follow up last Thursday. I am healing very

nicely and the stimulator is already making such a difference in the way I feel

and my ability to eat and keep food down. I have only had one day of vomiting

since surgery. I still have a lot of nausea, but I have Zofran for that and am

doing well.

Since 1993, I have known that I have non alcoholic fatty liver disease (NAFLD).

Over the years, I have had biopses every few years just to make sure everything

is okay. I had one in Dec. of 2006 when I had my last stimulator replacement

prior to this one. It showed some fibrosis but nothing of great concern. My

surgeon performed another biopsy during this last surgery. I got the results

last Thursday.

In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly. The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein. The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH). The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of hepatocytes.

It is his opinion that I am transitioning from stage 3 to stage 4 and should

have immediate follow up care.

I cannot tell you how shocked I was to receive this report! To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down. I have scheduled an appointment with my

local GI on this coming Friday. My surgeon has suggested that I ask for a

referral to a hepatologist ASAP. I am just spinning right now. I haven't told my

Daddy or my MIL yet. I have had to have a few days just to digesst the

information on my own. My sisters, niece and nephews know and have been so

supportive and are of course praying. I have to talk to Daddy and my MIL before

Friday. It is just so soon after losing Terry and I know it is going to be so

hard on them.

Please pray for me and for my family. Daddy has my sisters and he will do okay

once the initial shock wears off. My MIL has no one but me; Terry was her only

child and we have no children. My FIL died in 2002. When we first told her about

Terry's ESLD, she was in denial for many months and really did not begin to

accept the fact that he was terminal until just weeks before he died. I am

concerned about what this news is going to do to her.

I am not afraid of death; I know where I am going the minute I breathe my last

breath here. I will be with my Jesus and with Terry and Momma and my babies. I

cannot be sad about that. Of course, I am sad about not getting to see my niece

and nephews children grow up. However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me. The Lord answered my

prayer and gave me my heart's desire. Whatever the outcome of this is, I am okay

with it.

Dying of liver disease does however scare me spitless! I witnessed first hand

what it did to Terry. I saw how he suffered; always very quietly and never

wanting to be a burden on me. He suffered untold agony that I'm quite sure I

never knew about. He did it with dignity and died with peace and dignity. I

don't know if I have the courage to do that and that scares me. More than

anything, I want to be a blessing and not a burden to my family. I want to bring

honor and dignity to the name of the Lord with whatever I do.

This is the beginning of what I know will be a long and chaotic ride. If you

guys would allow me to come back and be a part of your group, it would mean so

much to me. I haven't been around and I don't deserve to be taken in, but I sure

am praying you will say yes! I have never forgotten about all of you and I pray

every day for all of you, even those whom I have not 'met' yet. God bless you

all!

Warm Hugs........ ...

Diane C. from TN

http://auntdisexper imentallife. blogspot. com/

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Posted
Posted

Thank you Phyllis.  I will be every bit as pro-active for myself as I was for

Terry.  I want to be able to take care of myself and to do that, I have to make

sure I'm doing everything I can to take care of this liver!  The Lord has never

let me down and I know for a fact He won't this time either!!!!  Thank you so

much for the encouraging words!

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Tuesday, August 4, 2009 2:48:39 PM

Subject: Re: RE: Hello from a long, lost friend!

 

Diane you are in my prayers-always- and you never left us. ...You just had to

take care of yourself. Do this with the same love and compassion you had for

Terry.  God is good and he will sustain you thru this difficult journey.

____________ _________ _________ __

From: diane chandler <dianechandler@ att.net>

To: Cirrhosis Support Group <livercirrhosissuppo rtyahoogroups (DOT) com>

Sent: Monday, August 3, 2009 5:24:11 PM

Subject: RE: Hello from a long, lost friend!

 

I'm almost ashamed to even come here and post anymore!  I have been so negligent

of all of you and there are so many newbies since I was posting regularly.  I

apologize to each of you for neglecting you.  Losing Terry threw my life into a

tail spin there for a while.  Going on without him has been the most difficult

thing I have ever had to do.  However, God is good and faithful and has been

always right by my side throughout the entire struggle.  I will never get over

loving or missing Terry, but I am learning to go on living without him.  It is

not easy, but I have learned life can be good again.

As some of you are aware, I recently had surgery to replace my gastric

stimulator.  I went back for my 3 week follow up last Thursday.  I am healing

very nicely and the stimulator is already making such a difference in the way I

feel and my ability to eat and keep food down.  I have only had one day of

vomiting since surgery.  I still have a lot of nausea, but I have Zofran for

that and am doing well.

Since 1993, I have known that I have non alcoholic fatty liver disease (NAFLD). 

Over the years, I have had biopses every few years just to make sure everything

is okay.  I had one in Dec. of 2006 when I had my last stimulator replacement

prior to this one.  It showed some fibrosis but nothing of great concern.  My

surgeon performed another biopsy during this last surgery.  I got the results

last Thursday.

In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly.  The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein.  The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH).  The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of

hepatocytes.  It is his opinion that I am transitioning from stage 3 to stage 4

and should have immediate follow up care.

I cannot tell you how shocked I was to receive this report!  To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down.  I have scheduled an appointment with my

local GI on this coming Friday.  My surgeon has suggested that I ask for a

referral to a hepatologist ASAP.  I am just spinning right now.  I haven't told

my Daddy or my MIL yet.  I have had to have a few days just to digesst the

information on my own.  My sisters, niece and nephews know and have been so

supportive and are of course praying.  I have to talk to Daddy and my MIL before

Friday.  It is just so soon after losing Terry and I know it is going to be so

hard on them.

Please pray for me and for my family.  Daddy has my sisters and he will do okay

once the initial shock wears off.  My MIL has no one but me; Terry was her only

child and we have no children.  My FIL died in 2002.  When we first told her

about Terry's ESLD, she was in denial for many months and really did not begin

to accept the fact that he was terminal until just weeks before he died.  I am

concerned about what this news is going to do to her.

I am not afraid of death; I know where I am going the minute I breathe my last

breath here.  I will be with my Jesus and with Terry and Momma and my babies.  I

cannot be sad about that.  Of course, I am sad about not getting to see my niece

and nephews children grow up.  However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me.  The Lord answered my

prayer and gave me my heart's desire.  Whatever the outcome of this is, I am

okay with it.

Dying of liver disease does however scare me spitless!  I witnessed first hand

what it did to Terry.  I saw how he suffered; always very quietly and never

wanting to be a burden on me.  He suffered untold agony that I'm quite sure I

never knew about.  He did it with dignity and died with peace and dignity.  I

don't know if I have the courage to do that and that scares me.  More than

anything, I want to be a blessing and not a burden to my family.  I want to

bring honor and dignity to the name of the Lord with whatever I do.

This is the beginning of what I know will be a long and chaotic ride.  If you

guys would allow me to come back and be a part of your group, it would mean so

much to me.  I haven't been around and I don't deserve to be taken in, but I

sure am praying you will say yes!  I have never forgotten about all of you and I

pray every day for all of you, even those whom I have not 'met' yet.  God bless

you all!

 

Warm Hugs........ ...

 

Diane C. from TN

http://auntdisexper imentallife. blogspot. com/

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Posted
Posted

Penny, thank you so much.  I am so thankful to have all of you because I know

you understand what I'm going through and what I've already been through.  That

makes so much difference when you know someone REALLY understands!

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Tuesday, August 4, 2009 5:54:07 PM

Subject: Re: Hello from a long, lost friend!

 

Hi Diane,

Welcome back, but sad it's under these circumstances. With all you were going

through with your husband, you still helped and supported all of us. You are a

very strong, faithful woman. We are all here for you.

Penny

>

> I'm almost ashamed to even come here and post anymore!  I have been so

negligent of all of you and there are so many newbies since I was posting

regularly.  I apologize to each of you for neglecting you.  Losing Terry threw

my life into a tail spin there for a while.  Going on without him has been the

most difficult thing I have ever had to do.  However, God is good and faithful

and has been always right by my side throughout the entire struggle.  I will

never get over loving or missing Terry, but I am learning to go on

living without him.  It is not easy, but I have learned life can be good again.

>

> As some of you are aware, I recently had surgery to replace my gastric

stimulator.  I went back for my 3 week follow up last Thursday.  I am healing

very nicely and the stimulator is already making such a difference in the way I

feel and my ability to eat and keep food down.  I have only had one day of

vomiting since surgery.  I still have a lot of nausea, but I have Zofran for

that and am doing well.

>

> Since 1993, I have known that I have non alcoholic fatty liver disease

(NAFLD).  Over the years, I have had biopses every few years just to make sure

everything is okay.  I had one in Dec. of 2006 when I had my last stimulator

replacement prior to this one.  It showed some fibrosis but nothing of great

concern.  My surgeon performed another biopsy during this last surgery.  I got

the results last Thursday.

>

> In the 2 1/2 years since the last biopsy, my liver disease has advanced

significantly.  The pathology reports shows me now to have grade 2, stage 3-4

liver disease by Brunt criteria, with significant bridging fibrosis pan-zonally

and inflammatory infiltration into my portal vein.  The pathologist who did this

exam thinks I have been mis-diagnosed for years and have actually had non

alcoholic steatohepatitis (NASH).  The inflammatory infiltrate extends into the

lobular compartment with the presence of ballooning degeneration of

hepatocytes.  It is his opinion that I am transitioning from stage 3 to stage 4

and should have immediate follow up care.

>

> I cannot tell you how shocked I was to receive this report!  To have just six

months ago been through losing Terry to this very disease and now be receiving

this report has really knocked me down.  I have scheduled an appointment with my

local GI on this coming Friday.  My surgeon has suggested that I ask for a

referral to a hepatologist ASAP.  I am just spinning right now.  I haven't told

my Daddy or my MIL yet.  I have had to have a few days just to digesst the

information on my own.  My sisters, niece and nephews know and have been so

supportive and are of course praying.  I have to talk to Daddy and my MIL before

Friday.  It is just so soon after losing Terry and I know it is going to be so

hard on them.

>

> Please pray for me and for my family.  Daddy has my sisters and he will do

okay once the initial shock wears off.  My MIL has no one but me; Terry was her

only child and we have no children.  My FIL died in 2002.  When we first told

her about Terry's ESLD, she was in denial for many months and really did not

begin to accept the fact that he was terminal until just weeks before he died. 

I am concerned about what this news is going to do to her.

>

> I am not afraid of death; I know where I am going the minute I breathe my last

breath here.  I will be with my Jesus and with Terry and Momma and my babies.  I

cannot be sad about that.  Of course, I am sad about not getting to see my niece

and nephews children grow up.  However, I prayed and asked the Lord for life and

strength to care for Terry because I knew he needed me.  The Lord answered my

prayer and gave me my heart's desire.  Whatever the outcome of this is, I am

okay with it.

>

> Dying of liver disease does however scare me spitless!  I witnessed first hand

what it did to Terry.  I saw how he suffered; always very quietly and never

wanting to be a burden on me.  He suffered untold agony that I'm quite sure I

never knew about.  He did it with dignity and died with peace and dignity.  I

don't know if I have the courage to do that and that scares me.  More than

anything, I want to be a blessing and not a burden to my family.  I want to

bring honor and dignity to the name of the Lord with whatever I do.

>

> This is the beginning of what I know will be a long and chaotic ride.  If you

guys would allow me to come back and be a part of your group, it would mean so

much to me.  I haven't been around and I don't deserve to be taken in, but I

sure am praying you will say yes!  I have never forgotten about all of you and I

pray every day for all of you, even those whom I have not 'met' yet.  God bless

you all!

>

>

>  

> Warm Hugs........ ...

>  

> Diane C. from TN

> http://auntdisexper imentallife. blogspot. com/

>

>

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Posted
Posted

I am back, they found they only had to do one angioplasty, other wasn't that

blocked, not expected to grow any more. Stayed in the hospital last night,

just got home a couple of hours ago. Going out to eat to save my energy.

Jan H

On Tue, Aug 4, 2009 at 5:25 AM, diane chandler wrote:

> Praying for you Jan and thanks!

>

> Warm Hugs...........

>

> Diane

> http://auntdisexperimentallife.blogspot.com/

>

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Tuesday, August 4, 2009 5:43:01 AM

> Subject: Re: RE: Hello from a long, lost friend!

>

>

> Diane - you were as much an inspiration to the group as the help you got.

> Just closing out my computer before I go for my angioplasty. Might be gone

> until Thursday, so everybody- don't start worrying. Jan H

>

> On Tue, Aug 4, 2009 at 1:52 AM, diane chandler <dianechandler@ att.net

> >wrote:

>

> > Jan,

> >

> > Thanks so much for your warm greeting. I appreciate it more than I will

> > ever be able to adequately express to you. I am so thankful to this group

> > to help me along. You all were such a great support system while I was

> > taking care of Terry. I learned so much here; information that made it so

> > much easier to give him the care he needed.

> >

> > I have an appointment with my GI on Friday morning. Let the games

> > begin.......

> >

> >

> > Warm Hugs........ ...

> >

> > Diane

> > http://auntdisexper imentallife. blogspot. com/

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Jan Holman <janholmangmail (DOT) com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Monday, August 3, 2009 9:22:42 PM

> > Subject: Re: RE: Hello from a long, lost

> friend!

> >

> >

> > Diane - you don't have to ask if you will be allowed back in. You have

> > never left us. Just took a little vacation. I understand what you are

> > feeling about having this disease and what it will do to the ones left

> > behind. I am surprised you haven't mentioned a transplant. Have they

> > already ruled it out, or have you? I wouldn't wish this disease on my

> worst

> > enemy and certainly not a great person like you. It is my hope, looking

> at

> > the same things you have mentioned, that I die of something other than

> the

> > cirrhosis before the cirrhosis gets to its worst. I can't understand what

> > it must feel like to have just lost your husband to it and then find out

> > you

> > have it yourself. Love you. Jan H

> >

> > On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net

> > >wrote:

> >

> > > I'm almost ashamed to even come here and post anymore! I have been so

> > > negligent of all of you and there are so many newbies since I was

> posting

> > > regularly. I apologize to each of you for neglecting you. Losing Terry

> > > threw my life into a tail spin there for a while. Going on without him

> > has

> > > been the most difficult thing I have ever had to do. However, God is

> good

> > > and faithful and has been always right by my side throughout the entire

> > > struggle. I will never get over loving or missing Terry, but I am

> > learning

> > > to go on living without him. It is not easy, but I have learned life

> can

> > be

> > > good again.

> > >

> > > As some of you are aware, I recently had surgery to replace my gastric

> > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > healing very nicely and the stimulator is already making such a

> > difference

> > > in the way I feel and my ability to eat and keep food down. I have only

> > had

> > > one day of vomiting since surgery. I still have a lot of nausea, but I

> > have

> > > Zofran for that and am doing well.

> > >

> > > Since 1993, I have known that I have non alcoholic fatty liver disease

> > > (NAFLD). Over the years, I have had biopses every few years just to

> make

> > > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > > stimulator replacement prior to this one. It showed some fibrosis but

> > > nothing of great concern. My surgeon performed another biopsy during

> this

> > > last surgery. I got the results last Thursday.

> > >

> > > In the 2 1/2 years since the last biopsy, my liver disease has advanced

> > > significantly. The pathology reports shows me now to have grade 2,

> stage

> > > 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > pathologist who did this exam thinks I have been mis-diagnosed for

> years

> > and

> > > have actually had non alcoholic steatohepatitis (NASH). The

> inflammatory

> > > infiltrate extends into the lobular compartment with the presence of

> > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > transitioning from stage 3 to stage 4 and should have immediate follow

> up

> > > care.

> > >

> > > I cannot tell you how shocked I was to receive this report! To have

> just

> > > six months ago been through losing Terry to this very disease and now

> be

> > > receiving this report has really knocked me down. I have scheduled an

> > > appointment with my local GI on this coming Friday. My surgeon has

> > > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > > spinning right now. I haven't told my Daddy or my MIL yet. I have had

> to

> > > have a few days just to digesst the information on my own. My sisters,

> > > niece and nephews know and have been so supportive and are of course

> > > praying. I have to talk to Daddy and my MIL before Friday. It is just

> so

> > > soon after losing Terry and I know it is going to be so hard on them.

> > >

> > > Please pray for me and for my family. Daddy has my sisters and he will

> do

> > > okay once the initial shock wears off. My MIL has no one but me; Terry

> > was

> > > her only child and we have no children. My FIL died in 2002. When we

> > first

> > > told her about Terry's ESLD, she was in denial for many months and

> really

> > > did not begin to accept the fact that he was terminal until just weeks

> > > before he died. I am concerned about what this news is going to do to

> > her.

> > >

> > > I am not afraid of death; I know where I am going the minute I breathe

> my

> > > last breath here. I will be with my Jesus and with Terry and Momma and

> my

> > > babies. I cannot be sad about that. Of course, I am sad about not

> getting

> > > to see my niece and nephews children grow up. However, I prayed and

> asked

> > > the Lord for life and strength to care for Terry because I knew he

> needed

> > > me. The Lord answered my prayer and gave me my heart's desire. Whatever

> > > the outcome of this is, I am okay with it.

> > >

> > > Dying of liver disease does however scare me spitless! I witnessed

> first

> > > hand what it did to Terry. I saw how he suffered; always very quietly

> and

> > > never wanting to be a burden on me. He suffered untold agony that I'm

> > quite

> > > sure I never knew about. He did it with dignity and died with peace and

> > > dignity. I don't know if I have the courage to do that and that scares

> > me.

> > > More than anything, I want to be a blessing and not a burden to my

> > family.

> > > I want to bring honor and dignity to the name of the Lord with whatever

> I

> > > do.

> > >

> > > This is the beginning of what I know will be a long and chaotic ride.

> If

> > > you guys would allow me to come back and be a part of your group, it

> > would

> > > mean so much to me. I haven't been around and I don't deserve to be

> taken

> > > in, but I sure am praying you will say yes! I have never forgotten

> about

> > > all of you and I pray every day for all of you, even those whom I have

> > not

> > > 'met' yet. God bless you all!

> > >

> > >

> > >

> > > Warm Hugs........ ...

> > >

> > > Diane C. from TN

> > > http://auntdisexper imentallife. blogspot. com/

> > >

> > >

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Posted
Posted

glad you are home and it wasnt as bad as they expected GOD is good rest honey

and recover ,much love barby

> > >

> > > > I'm almost ashamed to even come here and post anymore! I have been so

> > > > negligent of all of you and there are so many newbies since I was

> > posting

> > > > regularly. I apologize to each of you for neglecting you. Losing Terry

> > > > threw my life into a tail spin there for a while. Going on without him

> > > has

> > > > been the most difficult thing I have ever had to do. However, God is

> > good

> > > > and faithful and has been always right by my side throughout the entire

> > > > struggle. I will never get over loving or missing Terry, but I am

> > > learning

> > > > to go on living without him. It is not easy, but I have learned life

> > can

> > > be

> > > > good again.

> > > >

> > > > As some of you are aware, I recently had surgery to replace my gastric

> > > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > > healing very nicely and the stimulator is already making such a

> > > difference

> > > > in the way I feel and my ability to eat and keep food down. I have only

> > > had

> > > > one day of vomiting since surgery. I still have a lot of nausea, but I

> > > have

> > > > Zofran for that and am doing well.

> > > >

> > > > Since 1993, I have known that I have non alcoholic fatty liver disease

> > > > (NAFLD). Over the years, I have had biopses every few years just to

> > make

> > > > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > > > stimulator replacement prior to this one. It showed some fibrosis but

> > > > nothing of great concern. My surgeon performed another biopsy during

> > this

> > > > last surgery. I got the results last Thursday.

> > > >

> > > > In the 2 1/2 years since the last biopsy, my liver disease has advanced

> > > > significantly. The pathology reports shows me now to have grade 2,

> > stage

> > > > 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> > > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > > pathologist who did this exam thinks I have been mis-diagnosed for

> > years

> > > and

> > > > have actually had non alcoholic steatohepatitis (NASH). The

> > inflammatory

> > > > infiltrate extends into the lobular compartment with the presence of

> > > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > > transitioning from stage 3 to stage 4 and should have immediate follow

> > up

> > > > care.

> > > >

> > > > I cannot tell you how shocked I was to receive this report! To have

> > just

> > > > six months ago been through losing Terry to this very disease and now

> > be

> > > > receiving this report has really knocked me down. I have scheduled an

> > > > appointment with my local GI on this coming Friday. My surgeon has

> > > > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > > > spinning right now. I haven't told my Daddy or my MIL yet. I have had

> > to

> > > > have a few days just to digesst the information on my own. My sisters,

> > > > niece and nephews know and have been so supportive and are of course

> > > > praying. I have to talk to Daddy and my MIL before Friday. It is just

> > so

> > > > soon after losing Terry and I know it is going to be so hard on them.

> > > >

> > > > Please pray for me and for my family. Daddy has my sisters and he will

> > do

> > > > okay once the initial shock wears off. My MIL has no one but me; Terry

> > > was

> > > > her only child and we have no children. My FIL died in 2002. When we

> > > first

> > > > told her about Terry's ESLD, she was in denial for many months and

> > really

> > > > did not begin to accept the fact that he was terminal until just weeks

> > > > before he died. I am concerned about what this news is going to do to

> > > her.

> > > >

> > > > I am not afraid of death; I know where I am going the minute I breathe

> > my

> > > > last breath here. I will be with my Jesus and with Terry and Momma and

> > my

> > > > babies. I cannot be sad about that. Of course, I am sad about not

> > getting

> > > > to see my niece and nephews children grow up. However, I prayed and

> > asked

> > > > the Lord for life and strength to care for Terry because I knew he

> > needed

> > > > me. The Lord answered my prayer and gave me my heart's desire. Whatever

> > > > the outcome of this is, I am okay with it.

> > > >

> > > > Dying of liver disease does however scare me spitless! I witnessed

> > first

> > > > hand what it did to Terry. I saw how he suffered; always very quietly

> > and

> > > > never wanting to be a burden on me. He suffered untold agony that I'm

> > > quite

> > > > sure I never knew about. He did it with dignity and died with peace and

> > > > dignity. I don't know if I have the courage to do that and that scares

> > > me.

> > > > More than anything, I want to be a blessing and not a burden to my

> > > family.

> > > > I want to bring honor and dignity to the name of the Lord with whatever

> > I

> > > > do.

> > > >

> > > > This is the beginning of what I know will be a long and chaotic ride.

> > If

> > > > you guys would allow me to come back and be a part of your group, it

> > > would

> > > > mean so much to me. I haven't been around and I don't deserve to be

> > taken

> > > > in, but I sure am praying you will say yes! I have never forgotten

> > about

> > > > all of you and I pray every day for all of you, even those whom I have

> > > not

> > > > 'met' yet. God bless you all!

> > > >

> > > >

> > > >

> > > > Warm Hugs........ ...

> > > >

> > > > Diane C. from TN

> > > > http://auntdisexper imentallife. blogspot. com/

> > > >

> > > >

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Posted
Posted

Thanks Barby and everyone else for all your prayers. Jan H

On Wed, Aug 5, 2009 at 5:07 PM, pinkmeetsblue wrote:

> glad you are home and it wasnt as bad as they expected GOD is good rest

> honey and recover ,much love barby

> > > >

> > > > > I'm almost ashamed to even come here and post anymore! I have been

> so

> > > > > negligent of all of you and there are so many newbies since I was

> > > posting

> > > > > regularly. I apologize to each of you for neglecting you. Losing

> Terry

> > > > > threw my life into a tail spin there for a while. Going on without

> him

> > > > has

> > > > > been the most difficult thing I have ever had to do. However, God

> is

> > > good

> > > > > and faithful and has been always right by my side throughout the

> entire

> > > > > struggle. I will never get over loving or missing Terry, but I am

> > > > learning

> > > > > to go on living without him. It is not easy, but I have learned

> life

> > > can

> > > > be

> > > > > good again.

> > > > >

> > > > > As some of you are aware, I recently had surgery to replace my

> gastric

> > > > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > > > healing very nicely and the stimulator is already making such a

> > > > difference

> > > > > in the way I feel and my ability to eat and keep food down. I have

> only

> > > > had

> > > > > one day of vomiting since surgery. I still have a lot of nausea,

> but I

> > > > have

> > > > > Zofran for that and am doing well.

> > > > >

> > > > > Since 1993, I have known that I have non alcoholic fatty liver

> disease

> > > > > (NAFLD). Over the years, I have had biopses every few years just to

> > > make

> > > > > sure everything is okay. I had one in Dec. of 2006 when I had my

> last

> > > > > stimulator replacement prior to this one. It showed some fibrosis

> but

> > > > > nothing of great concern. My surgeon performed another biopsy

> during

> > > this

> > > > > last surgery. I got the results last Thursday.

> > > > >

> > > > > In the 2 1/2 years since the last biopsy, my liver disease has

> advanced

> > > > > significantly. The pathology reports shows me now to have grade 2,

> > > stage

> > > > > 3-4 liver disease by Brunt criteria, with significant bridging

> fibrosis

> > > > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > > > pathologist who did this exam thinks I have been mis-diagnosed for

> > > years

> > > > and

> > > > > have actually had non alcoholic steatohepatitis (NASH). The

> > > inflammatory

> > > > > infiltrate extends into the lobular compartment with the presence

> of

> > > > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > > > transitioning from stage 3 to stage 4 and should have immediate

> follow

> > > up

> > > > > care.

> > > > >

> > > > > I cannot tell you how shocked I was to receive this report! To have

> > > just

> > > > > six months ago been through losing Terry to this very disease and

> now

> > > be

> > > > > receiving this report has really knocked me down. I have scheduled

> an

> > > > > appointment with my local GI on this coming Friday. My surgeon has

> > > > > suggested that I ask for a referral to a hepatologist ASAP. I am

> just

> > > > > spinning right now. I haven't told my Daddy or my MIL yet. I have

> had

> > > to

> > > > > have a few days just to digesst the information on my own. My

> sisters,

> > > > > niece and nephews know and have been so supportive and are of

> course

> > > > > praying. I have to talk to Daddy and my MIL before Friday. It is

> just

> > > so

> > > > > soon after losing Terry and I know it is going to be so hard on

> them.

> > > > >

> > > > > Please pray for me and for my family. Daddy has my sisters and he

> will

> > > do

> > > > > okay once the initial shock wears off. My MIL has no one but me;

> Terry

> > > > was

> > > > > her only child and we have no children. My FIL died in 2002. When

> we

> > > > first

> > > > > told her about Terry's ESLD, she was in denial for many months and

> > > really

> > > > > did not begin to accept the fact that he was terminal until just

> weeks

> > > > > before he died. I am concerned about what this news is going to do

> to

> > > > her.

> > > > >

> > > > > I am not afraid of death; I know where I am going the minute I

> breathe

> > > my

> > > > > last breath here. I will be with my Jesus and with Terry and Momma

> and

> > > my

> > > > > babies. I cannot be sad about that. Of course, I am sad about not

> > > getting

> > > > > to see my niece and nephews children grow up. However, I prayed and

> > > asked

> > > > > the Lord for life and strength to care for Terry because I knew he

> > > needed

> > > > > me. The Lord answered my prayer and gave me my heart's desire.

> Whatever

> > > > > the outcome of this is, I am okay with it.

> > > > >

> > > > > Dying of liver disease does however scare me spitless! I witnessed

> > > first

> > > > > hand what it did to Terry. I saw how he suffered; always very

> quietly

> > > and

> > > > > never wanting to be a burden on me. He suffered untold agony that

> I'm

> > > > quite

> > > > > sure I never knew about. He did it with dignity and died with peace

> and

> > > > > dignity. I don't know if I have the courage to do that and that

> scares

> > > > me.

> > > > > More than anything, I want to be a blessing and not a burden to my

> > > > family.

> > > > > I want to bring honor and dignity to the name of the Lord with

> whatever

> > > I

> > > > > do.

> > > > >

> > > > > This is the beginning of what I know will be a long and chaotic

> ride.

> > > If

> > > > > you guys would allow me to come back and be a part of your group,

> it

> > > > would

> > > > > mean so much to me. I haven't been around and I don't deserve to be

> > > taken

> > > > > in, but I sure am praying you will say yes! I have never forgotten

> > > about

> > > > > all of you and I pray every day for all of you, even those whom I

> have

> > > > not

> > > > > 'met' yet. God bless you all!

> > > > >

> > > > >

> > > > >

> > > > > Warm Hugs........ ...

> > > > >

> > > > > Diane C. from TN

> > > > > http://auntdisexper imentallife. blogspot. com/

> > > > >

> > > > >

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Posted
Posted

Jan, I am so thankful you are home and doing well!  That is good news that

they only had to do one angioplasty.  I had to get a stent with two angios in

the fall of 2007 and still have one block in the branch of an artery.  Can't

angio cause it's too closed off and can't stent cause it's in the branch. Just

hanging on and praying we won't have to do surgery for a long time to come!  So

happy you got good news.  Continuing to pray for you!

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Wednesday, August 5, 2009 6:45:39 PM

Subject: Re: RE: Hello from a long, lost friend!

 

I am back, they found they only had to do one angioplasty, other wasn't that

blocked, not expected to grow any more. Stayed in the hospital last night,

just got home a couple of hours ago. Going out to eat to save my energy.

Jan H

On Tue, Aug 4, 2009 at 5:25 AM, diane chandler <dianechandler@ att.net>wrote:

> Praying for you Jan and thanks!

>

> Warm Hugs........ ...

>

> Diane

> http://auntdisexper imentallife. blogspot. com/

>

>

>

>

> ____________ _________ _________ __

> From: Jan Holman <janholmangmail (DOT) com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Tuesday, August 4, 2009 5:43:01 AM

> Subject: Re: RE: Hello from a long, lost friend!

>

>

> Diane - you were as much an inspiration to the group as the help you got.

> Just closing out my computer before I go for my angioplasty. Might be gone

> until Thursday, so everybody- don't start worrying. Jan H

>

> On Tue, Aug 4, 2009 at 1:52 AM, diane chandler <dianechandler@ att.net

> >wrote:

>

> > Jan,

> >

> > Thanks so much for your warm greeting. I appreciate it more than I will

> > ever be able to adequately express to you. I am so thankful to this group

> > to help me along. You all were such a great support system while I was

> > taking care of Terry. I learned so much here; information that made it so

> > much easier to give him the care he needed.

> >

> > I have an appointment with my GI on Friday morning. Let the games

> > begin.......

> >

> >

> > Warm Hugs........ ...

> >

> > Diane

> > http://auntdisexper imentallife. blogspot. com/

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Jan Holman <janholmangmail (DOT) com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Monday, August 3, 2009 9:22:42 PM

> > Subject: Re: RE: Hello from a long, lost

> friend!

> >

> >

> > Diane - you don't have to ask if you will be allowed back in. You have

> > never left us. Just took a little vacation. I understand what you are

> > feeling about having this disease and what it will do to the ones left

> > behind. I am surprised you haven't mentioned a transplant. Have they

> > already ruled it out, or have you? I wouldn't wish this disease on my

> worst

> > enemy and certainly not a great person like you. It is my hope, looking

> at

> > the same things you have mentioned, that I die of something other than

> the

> > cirrhosis before the cirrhosis gets to its worst. I can't understand what

> > it must feel like to have just lost your husband to it and then find out

> > you

> > have it yourself. Love you. Jan H

> >

> > On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net

> > >wrote:

> >

> > > I'm almost ashamed to even come here and post anymore! I have been so

> > > negligent of all of you and there are so many newbies since I was

> posting

> > > regularly. I apologize to each of you for neglecting you. Losing Terry

> > > threw my life into a tail spin there for a while. Going on without him

> > has

> > > been the most difficult thing I have ever had to do. However, God is

> good

> > > and faithful and has been always right by my side throughout the entire

> > > struggle. I will never get over loving or missing Terry, but I am

> > learning

> > > to go on living without him. It is not easy, but I have learned life

> can

> > be

> > > good again.

> > >

> > > As some of you are aware, I recently had surgery to replace my gastric

> > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > healing very nicely and the stimulator is already making such a

> > difference

> > > in the way I feel and my ability to eat and keep food down. I have only

> > had

> > > one day of vomiting since surgery. I still have a lot of nausea, but I

> > have

> > > Zofran for that and am doing well.

> > >

> > > Since 1993, I have known that I have non alcoholic fatty liver disease

> > > (NAFLD). Over the years, I have had biopses every few years just to

> make

> > > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > > stimulator replacement prior to this one. It showed some fibrosis but

> > > nothing of great concern. My surgeon performed another biopsy during

> this

> > > last surgery. I got the results last Thursday.

> > >

> > > In the 2 1/2 years since the last biopsy, my liver disease has advanced

> > > significantly. The pathology reports shows me now to have grade 2,

> stage

> > > 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > pathologist who did this exam thinks I have been mis-diagnosed for

> years

> > and

> > > have actually had non alcoholic steatohepatitis (NASH). The

> inflammatory

> > > infiltrate extends into the lobular compartment with the presence of

> > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > transitioning from stage 3 to stage 4 and should have immediate follow

> up

> > > care.

> > >

> > > I cannot tell you how shocked I was to receive this report! To have

> just

> > > six months ago been through losing Terry to this very disease and now

> be

> > > receiving this report has really knocked me down. I have scheduled an

> > > appointment with my local GI on this coming Friday. My surgeon has

> > > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > > spinning right now. I haven't told my Daddy or my MIL yet. I have had

> to

> > > have a few days just to digesst the information on my own. My sisters,

> > > niece and nephews know and have been so supportive and are of course

> > > praying. I have to talk to Daddy and my MIL before Friday. It is just

> so

> > > soon after losing Terry and I know it is going to be so hard on them.

> > >

> > > Please pray for me and for my family. Daddy has my sisters and he will

> do

> > > okay once the initial shock wears off. My MIL has no one but me; Terry

> > was

> > > her only child and we have no children. My FIL died in 2002. When we

> > first

> > > told her about Terry's ESLD, she was in denial for many months and

> really

> > > did not begin to accept the fact that he was terminal until just weeks

> > > before he died. I am concerned about what this news is going to do to

> > her.

> > >

> > > I am not afraid of death; I know where I am going the minute I breathe

> my

> > > last breath here. I will be with my Jesus and with Terry and Momma and

> my

> > > babies. I cannot be sad about that. Of course, I am sad about not

> getting

> > > to see my niece and nephews children grow up. However, I prayed and

> asked

> > > the Lord for life and strength to care for Terry because I knew he

> needed

> > > me. The Lord answered my prayer and gave me my heart's desire. Whatever

> > > the outcome of this is, I am okay with it.

> > >

> > > Dying of liver disease does however scare me spitless! I witnessed

> first

> > > hand what it did to Terry. I saw how he suffered; always very quietly

> and

> > > never wanting to be a burden on me. He suffered untold agony that I'm

> > quite

> > > sure I never knew about. He did it with dignity and died with peace and

> > > dignity. I don't know if I have the courage to do that and that scares

> > me.

> > > More than anything, I want to be a blessing and not a burden to my

> > family.

> > > I want to bring honor and dignity to the name of the Lord with whatever

> I

> > > do.

> > >

> > > This is the beginning of what I know will be a long and chaotic ride.

> If

> > > you guys would allow me to come back and be a part of your group, it

> > would

> > > mean so much to me. I haven't been around and I don't deserve to be

> taken

> > > in, but I sure am praying you will say yes! I have never forgotten

> about

> > > all of you and I pray every day for all of you, even those whom I have

> > not

> > > 'met' yet. God bless you all!

> > >

> > >

> > >

> > > Warm Hugs........ ...

> > >

> > > Diane C. from TN

> > > http://auntdisexper imentallife. blogspot. com/

> > >

> > >

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Posted
Posted

Diane - I am not exactly sure what you mean by branched, etc, but I have a

stent in right iliac artery which crosses over the aorta. So, I have no

access to my heart from the left groin area. I didn't aske him how this

last stent was placed. He came to my room this morning when I was half

sleepint, talked for a litte and then he said I should go home and come back

to see him in a month. Will have to make a list of questions to ask him

then.

Jan H

On Wed, Aug 5, 2009 at 5:38 PM, diane chandler wrote:

> Jan, I am so thankful you are home and doing well! That is good news that

> they only had to do one angioplasty. I had to get a stent with two angios

> in the fall of 2007 and still have one block in the branch of an artery.

> Can't angio cause it's too closed off and can't stent cause it's in the

> branch. Just hanging on and praying we won't have to do surgery for a long

> time to come! So happy you got good news. Continuing to pray for you!

>

> Warm Hugs...........

>

> Diane

> http://auntdisexperimentallife.blogspot.com/

>

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Wednesday, August 5, 2009 6:45:39 PM

> Subject: Re: RE: Hello from a long, lost friend!

>

>

> I am back, they found they only had to do one angioplasty, other wasn't

> that

> blocked, not expected to grow any more. Stayed in the hospital last night,

> just got home a couple of hours ago. Going out to eat to save my energy.

> Jan H

>

> On Tue, Aug 4, 2009 at 5:25 AM, diane chandler <dianechandler@ att.net

> >wrote:

>

> > Praying for you Jan and thanks!

> >

> > Warm Hugs........ ...

> >

> > Diane

> > http://auntdisexper imentallife. blogspot. com/

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Jan Holman <janholmangmail (DOT) com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Tuesday, August 4, 2009 5:43:01 AM

> > Subject: Re: RE: Hello from a long, lost

> friend!

> >

> >

> > Diane - you were as much an inspiration to the group as the help you got.

> > Just closing out my computer before I go for my angioplasty. Might be

> gone

> > until Thursday, so everybody- don't start worrying. Jan H

> >

> > On Tue, Aug 4, 2009 at 1:52 AM, diane chandler <dianechandler@ att.net

> > >wrote:

> >

> > > Jan,

> > >

> > > Thanks so much for your warm greeting. I appreciate it more than I will

> > > ever be able to adequately express to you. I am so thankful to this

> group

> > > to help me along. You all were such a great support system while I was

> > > taking care of Terry. I learned so much here; information that made it

> so

> > > much easier to give him the care he needed.

> > >

> > > I have an appointment with my GI on Friday morning. Let the games

> > > begin.......

> > >

> > >

> > > Warm Hugs........ ...

> > >

> > > Diane

> > > http://auntdisexper imentallife. blogspot. com/

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Jan Holman <janholmangmail (DOT) com>

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Sent: Monday, August 3, 2009 9:22:42 PM

> > > Subject: Re: RE: Hello from a long, lost

> > friend!

> > >

> > >

> > > Diane - you don't have to ask if you will be allowed back in. You have

> > > never left us. Just took a little vacation. I understand what you are

> > > feeling about having this disease and what it will do to the ones left

> > > behind. I am surprised you haven't mentioned a transplant. Have they

> > > already ruled it out, or have you? I wouldn't wish this disease on my

> > worst

> > > enemy and certainly not a great person like you. It is my hope, looking

> > at

> > > the same things you have mentioned, that I die of something other than

> > the

> > > cirrhosis before the cirrhosis gets to its worst. I can't understand

> what

> > > it must feel like to have just lost your husband to it and then find

> out

> > > you

> > > have it yourself. Love you. Jan H

> > >

> > > On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net

> > > >wrote:

> > >

> > > > I'm almost ashamed to even come here and post anymore! I have been so

> > > > negligent of all of you and there are so many newbies since I was

> > posting

> > > > regularly. I apologize to each of you for neglecting you. Losing

> Terry

> > > > threw my life into a tail spin there for a while. Going on without

> him

> > > has

> > > > been the most difficult thing I have ever had to do. However, God is

> > good

> > > > and faithful and has been always right by my side throughout the

> entire

> > > > struggle. I will never get over loving or missing Terry, but I am

> > > learning

> > > > to go on living without him. It is not easy, but I have learned life

> > can

> > > be

> > > > good again.

> > > >

> > > > As some of you are aware, I recently had surgery to replace my

> gastric

> > > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > > healing very nicely and the stimulator is already making such a

> > > difference

> > > > in the way I feel and my ability to eat and keep food down. I have

> only

> > > had

> > > > one day of vomiting since surgery. I still have a lot of nausea, but

> I

> > > have

> > > > Zofran for that and am doing well.

> > > >

> > > > Since 1993, I have known that I have non alcoholic fatty liver

> disease

> > > > (NAFLD). Over the years, I have had biopses every few years just to

> > make

> > > > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > > > stimulator replacement prior to this one. It showed some fibrosis but

> > > > nothing of great concern. My surgeon performed another biopsy during

> > this

> > > > last surgery. I got the results last Thursday.

> > > >

> > > > In the 2 1/2 years since the last biopsy, my liver disease has

> advanced

> > > > significantly. The pathology reports shows me now to have grade 2,

> > stage

> > > > 3-4 liver disease by Brunt criteria, with significant bridging

> fibrosis

> > > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > > pathologist who did this exam thinks I have been mis-diagnosed for

> > years

> > > and

> > > > have actually had non alcoholic steatohepatitis (NASH). The

> > inflammatory

> > > > infiltrate extends into the lobular compartment with the presence of

> > > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > > transitioning from stage 3 to stage 4 and should have immediate

> follow

> > up

> > > > care.

> > > >

> > > > I cannot tell you how shocked I was to receive this report! To have

> > just

> > > > six months ago been through losing Terry to this very disease and now

> > be

> > > > receiving this report has really knocked me down. I have scheduled an

> > > > appointment with my local GI on this coming Friday. My surgeon has

> > > > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > > > spinning right now. I haven't told my Daddy or my MIL yet. I have had

> > to

> > > > have a few days just to digesst the information on my own. My

> sisters,

> > > > niece and nephews know and have been so supportive and are of course

> > > > praying. I have to talk to Daddy and my MIL before Friday. It is just

> > so

> > > > soon after losing Terry and I know it is going to be so hard on them.

> > > >

> > > > Please pray for me and for my family. Daddy has my sisters and he

> will

> > do

> > > > okay once the initial shock wears off. My MIL has no one but me;

> Terry

> > > was

> > > > her only child and we have no children. My FIL died in 2002. When we

> > > first

> > > > told her about Terry's ESLD, she was in denial for many months and

> > really

> > > > did not begin to accept the fact that he was terminal until just

> weeks

> > > > before he died. I am concerned about what this news is going to do to

> > > her.

> > > >

> > > > I am not afraid of death; I know where I am going the minute I

> breathe

> > my

> > > > last breath here. I will be with my Jesus and with Terry and Momma

> and

> > my

> > > > babies. I cannot be sad about that. Of course, I am sad about not

> > getting

> > > > to see my niece and nephews children grow up. However, I prayed and

> > asked

> > > > the Lord for life and strength to care for Terry because I knew he

> > needed

> > > > me. The Lord answered my prayer and gave me my heart's desire.

> Whatever

> > > > the outcome of this is, I am okay with it.

> > > >

> > > > Dying of liver disease does however scare me spitless! I witnessed

> > first

> > > > hand what it did to Terry. I saw how he suffered; always very quietly

> > and

> > > > never wanting to be a burden on me. He suffered untold agony that I'm

> > > quite

> > > > sure I never knew about. He did it with dignity and died with peace

> and

> > > > dignity. I don't know if I have the courage to do that and that

> scares

> > > me.

> > > > More than anything, I want to be a blessing and not a burden to my

> > > family.

> > > > I want to bring honor and dignity to the name of the Lord with

> whatever

> > I

> > > > do.

> > > >

> > > > This is the beginning of what I know will be a long and chaotic ride.

> > If

> > > > you guys would allow me to come back and be a part of your group, it

> > > would

> > > > mean so much to me. I haven't been around and I don't deserve to be

> > taken

> > > > in, but I sure am praying you will say yes! I have never forgotten

> > about

> > > > all of you and I pray every day for all of you, even those whom I

> have

> > > not

> > > > 'met' yet. God bless you all!

> > > >

> > > >

> > > >

> > > > Warm Hugs........ ...

> > > >

> > > > Diane C. from TN

> > > > http://auntdisexper imentallife. blogspot. com/

> > > >

> > > >

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Posted
Posted

My stent is in my left anterior descending artery, as was the angios performed

at the same time.  The blockage remaining is in an area where the LAD branches

off into another smaller artery. Because the blockage is actually in the branch

and is so tight, they won't take the risk of stenting since it was too tight to

angio.  Even the smallest balloon wouldn't go through.  I take nitroglycerin for

the angina it produces and my doctor keeps a close watch on it. I will

eventually have to have surgery.  The trick is waiting as long as I possibly can

without the surgery, but not waiting too long!  As long as the angina is as well

controlled as it is now, I'll keep waiting for a bit longer.  Glad they got

yours stented and pray you are feeling much better.

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Wednesday, August 5, 2009 9:23:35 PM

Subject: Re: RE: Hello from a long, lost friend!

 

Diane - I am not exactly sure what you mean by branched, etc, but I have a

stent in right iliac artery which crosses over the aorta. So, I have no

access to my heart from the left groin area. I didn't aske him how this

last stent was placed. He came to my room this morning when I was half

sleepint, talked for a litte and then he said I should go home and come back

to see him in a month. Will have to make a list of questions to ask him

then.

Jan H

On Wed, Aug 5, 2009 at 5:38 PM, diane chandler <dianechandler@ att.net>wrote:

> Jan, I am so thankful you are home and doing well! That is good news that

> they only had to do one angioplasty. I had to get a stent with two angios

> in the fall of 2007 and still have one block in the branch of an artery.

> Can't angio cause it's too closed off and can't stent cause it's in the

> branch. Just hanging on and praying we won't have to do surgery for a long

> time to come! So happy you got good news. Continuing to pray for you!

>

> Warm Hugs........ ...

>

> Diane

> http://auntdisexper imentallife. blogspot. com/

>

>

>

>

> ____________ _________ _________ __

> From: Jan Holman <janholmangmail (DOT) com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Wednesday, August 5, 2009 6:45:39 PM

> Subject: Re: RE: Hello from a long, lost friend!

>

>

> I am back, they found they only had to do one angioplasty, other wasn't

> that

> blocked, not expected to grow any more. Stayed in the hospital last night,

> just got home a couple of hours ago. Going out to eat to save my energy.

> Jan H

>

> On Tue, Aug 4, 2009 at 5:25 AM, diane chandler <dianechandler@ att.net

> >wrote:

>

> > Praying for you Jan and thanks!

> >

> > Warm Hugs........ ...

> >

> > Diane

> > http://auntdisexper imentallife. blogspot. com/

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Jan Holman <janholmangmail (DOT) com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Tuesday, August 4, 2009 5:43:01 AM

> > Subject: Re: RE: Hello from a long, lost

> friend!

> >

> >

> > Diane - you were as much an inspiration to the group as the help you got.

> > Just closing out my computer before I go for my angioplasty. Might be

> gone

> > until Thursday, so everybody- don't start worrying. Jan H

> >

> > On Tue, Aug 4, 2009 at 1:52 AM, diane chandler <dianechandler@ att.net

> > >wrote:

> >

> > > Jan,

> > >

> > > Thanks so much for your warm greeting. I appreciate it more than I will

> > > ever be able to adequately express to you. I am so thankful to this

> group

> > > to help me along. You all were such a great support system while I was

> > > taking care of Terry. I learned so much here; information that made it

> so

> > > much easier to give him the care he needed.

> > >

> > > I have an appointment with my GI on Friday morning. Let the games

> > > begin.......

> > >

> > >

> > > Warm Hugs........ ...

> > >

> > > Diane

> > > http://auntdisexper imentallife. blogspot. com/

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Jan Holman <janholmangmail (DOT) com>

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Sent: Monday, August 3, 2009 9:22:42 PM

> > > Subject: Re: RE: Hello from a long, lost

> > friend!

> > >

> > >

> > > Diane - you don't have to ask if you will be allowed back in. You have

> > > never left us. Just took a little vacation. I understand what you are

> > > feeling about having this disease and what it will do to the ones left

> > > behind. I am surprised you haven't mentioned a transplant. Have they

> > > already ruled it out, or have you? I wouldn't wish this disease on my

> > worst

> > > enemy and certainly not a great person like you. It is my hope, looking

> > at

> > > the same things you have mentioned, that I die of something other than

> > the

> > > cirrhosis before the cirrhosis gets to its worst. I can't understand

> what

> > > it must feel like to have just lost your husband to it and then find

> out

> > > you

> > > have it yourself. Love you. Jan H

> > >

> > > On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net

> > > >wrote:

> > >

> > > > I'm almost ashamed to even come here and post anymore! I have been so

> > > > negligent of all of you and there are so many newbies since I was

> > posting

> > > > regularly. I apologize to each of you for neglecting you. Losing

> Terry

> > > > threw my life into a tail spin there for a while. Going on without

> him

> > > has

> > > > been the most difficult thing I have ever had to do. However, God is

> > good

> > > > and faithful and has been always right by my side throughout the

> entire

> > > > struggle. I will never get over loving or missing Terry, but I am

> > > learning

> > > > to go on living without him. It is not easy, but I have learned life

> > can

> > > be

> > > > good again.

> > > >

> > > > As some of you are aware, I recently had surgery to replace my

> gastric

> > > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > > healing very nicely and the stimulator is already making such a

> > > difference

> > > > in the way I feel and my ability to eat and keep food down. I have

> only

> > > had

> > > > one day of vomiting since surgery. I still have a lot of nausea, but

> I

> > > have

> > > > Zofran for that and am doing well.

> > > >

> > > > Since 1993, I have known that I have non alcoholic fatty liver

> disease

> > > > (NAFLD). Over the years, I have had biopses every few years just to

> > make

> > > > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > > > stimulator replacement prior to this one. It showed some fibrosis but

> > > > nothing of great concern. My surgeon performed another biopsy during

> > this

> > > > last surgery. I got the results last Thursday.

> > > >

> > > > In the 2 1/2 years since the last biopsy, my liver disease has

> advanced

> > > > significantly. The pathology reports shows me now to have grade 2,

> > stage

> > > > 3-4 liver disease by Brunt criteria, with significant bridging

> fibrosis

> > > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > > pathologist who did this exam thinks I have been mis-diagnosed for

> > years

> > > and

> > > > have actually had non alcoholic steatohepatitis (NASH). The

> > inflammatory

> > > > infiltrate extends into the lobular compartment with the presence of

> > > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > > transitioning from stage 3 to stage 4 and should have immediate

> follow

> > up

> > > > care.

> > > >

> > > > I cannot tell you how shocked I was to receive this report! To have

> > just

> > > > six months ago been through losing Terry to this very disease and now

> > be

> > > > receiving this report has really knocked me down. I have scheduled an

> > > > appointment with my local GI on this coming Friday. My surgeon has

> > > > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > > > spinning right now. I haven't told my Daddy or my MIL yet. I have had

> > to

> > > > have a few days just to digesst the information on my own. My

> sisters,

> > > > niece and nephews know and have been so supportive and are of course

> > > > praying. I have to talk to Daddy and my MIL before Friday. It is just

> > so

> > > > soon after losing Terry and I know it is going to be so hard on them.

> > > >

> > > > Please pray for me and for my family. Daddy has my sisters and he

> will

> > do

> > > > okay once the initial shock wears off. My MIL has no one but me;

> Terry

> > > was

> > > > her only child and we have no children. My FIL died in 2002. When we

> > > first

> > > > told her about Terry's ESLD, she was in denial for many months and

> > really

> > > > did not begin to accept the fact that he was terminal until just

> weeks

> > > > before he died. I am concerned about what this news is going to do to

> > > her.

> > > >

> > > > I am not afraid of death; I know where I am going the minute I

> breathe

> > my

> > > > last breath here. I will be with my Jesus and with Terry and Momma

> and

> > my

> > > > babies. I cannot be sad about that. Of course, I am sad about not

> > getting

> > > > to see my niece and nephews children grow up. However, I prayed and

> > asked

> > > > the Lord for life and strength to care for Terry because I knew he

> > needed

> > > > me. The Lord answered my prayer and gave me my heart's desire.

> Whatever

> > > > the outcome of this is, I am okay with it.

> > > >

> > > > Dying of liver disease does however scare me spitless! I witnessed

> > first

> > > > hand what it did to Terry. I saw how he suffered; always very quietly

> > and

> > > > never wanting to be a burden on me. He suffered untold agony that I'm

> > > quite

> > > > sure I never knew about. He did it with dignity and died with peace

> and

> > > > dignity. I don't know if I have the courage to do that and that

> scares

> > > me.

> > > > More than anything, I want to be a blessing and not a burden to my

> > > family.

> > > > I want to bring honor and dignity to the name of the Lord with

> whatever

> > I

> > > > do.

> > > >

> > > > This is the beginning of what I know will be a long and chaotic ride.

> > If

> > > > you guys would allow me to come back and be a part of your group, it

> > > would

> > > > mean so much to me. I haven't been around and I don't deserve to be

> > taken

> > > > in, but I sure am praying you will say yes! I have never forgotten

> > about

> > > > all of you and I pray every day for all of you, even those whom I

> have

> > > not

> > > > 'met' yet. God bless you all!

> > > >

> > > >

> > > >

> > > > Warm Hugs........ ...

> > > >

> > > > Diane C. from TN

> > > > http://auntdisexper imentallife. blogspot. com/

> > > >

> > > >

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Posted
Posted

Jan, I am so happy that all went well! And I know you were much braver than me.

Best wishes~~~Debbie

> > >

> > > > I'm almost ashamed to even come here and post anymore! I have been so

> > > > negligent of all of you and there are so many newbies since I was

> > posting

> > > > regularly. I apologize to each of you for neglecting you. Losing Terry

> > > > threw my life into a tail spin there for a while. Going on without him

> > > has

> > > > been the most difficult thing I have ever had to do. However, God is

> > good

> > > > and faithful and has been always right by my side throughout the entire

> > > > struggle. I will never get over loving or missing Terry, but I am

> > > learning

> > > > to go on living without him. It is not easy, but I have learned life

> > can

> > > be

> > > > good again.

> > > >

> > > > As some of you are aware, I recently had surgery to replace my gastric

> > > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > > healing very nicely and the stimulator is already making such a

> > > difference

> > > > in the way I feel and my ability to eat and keep food down. I have only

> > > had

> > > > one day of vomiting since surgery. I still have a lot of nausea, but I

> > > have

> > > > Zofran for that and am doing well.

> > > >

> > > > Since 1993, I have known that I have non alcoholic fatty liver disease

> > > > (NAFLD). Over the years, I have had biopses every few years just to

> > make

> > > > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > > > stimulator replacement prior to this one. It showed some fibrosis but

> > > > nothing of great concern. My surgeon performed another biopsy during

> > this

> > > > last surgery. I got the results last Thursday.

> > > >

> > > > In the 2 1/2 years since the last biopsy, my liver disease has advanced

> > > > significantly. The pathology reports shows me now to have grade 2,

> > stage

> > > > 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> > > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > > pathologist who did this exam thinks I have been mis-diagnosed for

> > years

> > > and

> > > > have actually had non alcoholic steatohepatitis (NASH). The

> > inflammatory

> > > > infiltrate extends into the lobular compartment with the presence of

> > > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > > transitioning from stage 3 to stage 4 and should have immediate follow

> > up

> > > > care.

> > > >

> > > > I cannot tell you how shocked I was to receive this report! To have

> > just

> > > > six months ago been through losing Terry to this very disease and now

> > be

> > > > receiving this report has really knocked me down. I have scheduled an

> > > > appointment with my local GI on this coming Friday. My surgeon has

> > > > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > > > spinning right now. I haven't told my Daddy or my MIL yet. I have had

> > to

> > > > have a few days just to digesst the information on my own. My sisters,

> > > > niece and nephews know and have been so supportive and are of course

> > > > praying. I have to talk to Daddy and my MIL before Friday. It is just

> > so

> > > > soon after losing Terry and I know it is going to be so hard on them.

> > > >

> > > > Please pray for me and for my family. Daddy has my sisters and he will

> > do

> > > > okay once the initial shock wears off. My MIL has no one but me; Terry

> > > was

> > > > her only child and we have no children. My FIL died in 2002. When we

> > > first

> > > > told her about Terry's ESLD, she was in denial for many months and

> > really

> > > > did not begin to accept the fact that he was terminal until just weeks

> > > > before he died. I am concerned about what this news is going to do to

> > > her.

> > > >

> > > > I am not afraid of death; I know where I am going the minute I breathe

> > my

> > > > last breath here. I will be with my Jesus and with Terry and Momma and

> > my

> > > > babies. I cannot be sad about that. Of course, I am sad about not

> > getting

> > > > to see my niece and nephews children grow up. However, I prayed and

> > asked

> > > > the Lord for life and strength to care for Terry because I knew he

> > needed

> > > > me. The Lord answered my prayer and gave me my heart's desire. Whatever

> > > > the outcome of this is, I am okay with it.

> > > >

> > > > Dying of liver disease does however scare me spitless! I witnessed

> > first

> > > > hand what it did to Terry. I saw how he suffered; always very quietly

> > and

> > > > never wanting to be a burden on me. He suffered untold agony that I'm

> > > quite

> > > > sure I never knew about. He did it with dignity and died with peace and

> > > > dignity. I don't know if I have the courage to do that and that scares

> > > me.

> > > > More than anything, I want to be a blessing and not a burden to my

> > > family.

> > > > I want to bring honor and dignity to the name of the Lord with whatever

> > I

> > > > do.

> > > >

> > > > This is the beginning of what I know will be a long and chaotic ride.

> > If

> > > > you guys would allow me to come back and be a part of your group, it

> > > would

> > > > mean so much to me. I haven't been around and I don't deserve to be

> > taken

> > > > in, but I sure am praying you will say yes! I have never forgotten

> > about

> > > > all of you and I pray every day for all of you, even those whom I have

> > > not

> > > > 'met' yet. God bless you all!

> > > >

> > > >

> > > >

> > > > Warm Hugs........ ...

> > > >

> > > > Diane C. from TN

> > > > http://auntdisexper imentallife. blogspot. com/

> > > >

> > > >

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Posted
Posted

great news jan

________________________________

To: livercirrhosissupport

Sent: Wednesday, August 5, 2009 7:56:41 PM

Subject: Re: RE: Hello from a long, lost friend!

 

Jan, I am so happy that all went well! And I know you were much braver than me.

Best wishes~~~Debbie- -- In livercirrhosissuppo rtyahoogroups (DOT) com, Jan Holman

<janholman@. ..> wrote:

>

> I am back, they found they only had to do one angioplasty, other wasn't that

> blocked, not expected to grow any more. Stayed in the hospital last night,

> just got home a couple of hours ago. Going out to eat to save my energy.

> Jan H

>

> On Tue, Aug 4, 2009 at 5:25 AM, diane chandler <dianechandler@ ...>wrote:

>

> > Praying for you Jan and thanks!

> >

> > Warm Hugs........ ...

> >

> > Diane

> > http://auntdisexper imentallife. blogspot. com/

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Jan Holman <janholman@. ..>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Tuesday, August 4, 2009 5:43:01 AM

> > Subject: Re: RE: Hello from a long, lost friend!

> >

> >

> > Diane - you were as much an inspiration to the group as the help you got.

> > Just closing out my computer before I go for my angioplasty. Might be gone

> > until Thursday, so everybody- don't start worrying. Jan H

> >

> > On Tue, Aug 4, 2009 at 1:52 AM, diane chandler <dianechandler@ att.net

> > >wrote:

> >

> > > Jan,

> > >

> > > Thanks so much for your warm greeting. I appreciate it more than I will

> > > ever be able to adequately express to you. I am so thankful to this group

> > > to help me along. You all were such a great support system while I was

> > > taking care of Terry. I learned so much here; information that made it so

> > > much easier to give him the care he needed.

> > >

> > > I have an appointment with my GI on Friday morning. Let the games

> > > begin.......

> > >

> > >

> > > Warm Hugs........ ...

> > >

> > > Diane

> > > http://auntdisexper imentallife. blogspot. com/

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Jan Holman <janholmangmail (DOT) com>

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Sent: Monday, August 3, 2009 9:22:42 PM

> > > Subject: Re: RE: Hello from a long, lost

> > friend!

> > >

> > >

> > > Diane - you don't have to ask if you will be allowed back in. You have

> > > never left us. Just took a little vacation. I understand what you are

> > > feeling about having this disease and what it will do to the ones left

> > > behind. I am surprised you haven't mentioned a transplant. Have they

> > > already ruled it out, or have you? I wouldn't wish this disease on my

> > worst

> > > enemy and certainly not a great person like you. It is my hope, looking

> > at

> > > the same things you have mentioned, that I die of something other than

> > the

> > > cirrhosis before the cirrhosis gets to its worst. I can't understand what

> > > it must feel like to have just lost your husband to it and then find out

> > > you

> > > have it yourself. Love you. Jan H

> > >

> > > On Mon, Aug 3, 2009 at 6:24 PM, diane chandler <dianechandler@ att.net

> > > >wrote:

> > >

> > > > I'm almost ashamed to even come here and post anymore! I have been so

> > > > negligent of all of you and there are so many newbies since I was

> > posting

> > > > regularly. I apologize to each of you for neglecting you. Losing Terry

> > > > threw my life into a tail spin there for a while. Going on without him

> > > has

> > > > been the most difficult thing I have ever had to do. However, God is

> > good

> > > > and faithful and has been always right by my side throughout the entire

> > > > struggle. I will never get over loving or missing Terry, but I am

> > > learning

> > > > to go on living without him. It is not easy, but I have learned life

> > can

> > > be

> > > > good again.

> > > >

> > > > As some of you are aware, I recently had surgery to replace my gastric

> > > > stimulator. I went back for my 3 week follow up last Thursday. I am

> > > > healing very nicely and the stimulator is already making such a

> > > difference

> > > > in the way I feel and my ability to eat and keep food down. I have only

> > > had

> > > > one day of vomiting since surgery. I still have a lot of nausea, but I

> > > have

> > > > Zofran for that and am doing well.

> > > >

> > > > Since 1993, I have known that I have non alcoholic fatty liver disease

> > > > (NAFLD). Over the years, I have had biopses every few years just to

> > make

> > > > sure everything is okay. I had one in Dec. of 2006 when I had my last

> > > > stimulator replacement prior to this one. It showed some fibrosis but

> > > > nothing of great concern. My surgeon performed another biopsy during

> > this

> > > > last surgery. I got the results last Thursday.

> > > >

> > > > In the 2 1/2 years since the last biopsy, my liver disease has advanced

> > > > significantly. The pathology reports shows me now to have grade 2,

> > stage

> > > > 3-4 liver disease by Brunt criteria, with significant bridging fibrosis

> > > > pan-zonally and inflammatory infiltration into my portal vein. The

> > > > pathologist who did this exam thinks I have been mis-diagnosed for

> > years

> > > and

> > > > have actually had non alcoholic steatohepatitis (NASH). The

> > inflammatory

> > > > infiltrate extends into the lobular compartment with the presence of

> > > > ballooning degeneration of hepatocytes. It is his opinion that I am

> > > > transitioning from stage 3 to stage 4 and should have immediate follow

> > up

> > > > care.

> > > >

> > > > I cannot tell you how shocked I was to receive this report! To have

> > just

> > > > six months ago been through losing Terry to this very disease and now

> > be

> > > > receiving this report has really knocked me down. I have scheduled an

> > > > appointment with my local GI on this coming Friday. My surgeon has

> > > > suggested that I ask for a referral to a hepatologist ASAP. I am just

> > > > spinning right now. I haven't told my Daddy or my MIL yet. I have had

> > to

> > > > have a few days just to digesst the information on my own. My sisters,

> > > > niece and nephews know and have been so supportive and are of course

> > > > praying. I have to talk to Daddy and my MIL before Friday. It is just

> > so

> > > > soon after losing Terry and I know it is going to be so hard on them.

> > > >

> > > > Please pray for me and for my family. Daddy has my sisters and he will

> > do

> > > > okay once the initial shock wears off. My MIL has no one but me; Terry

> > > was

> > > > her only child and we have no children. My FIL died in 2002. When we

> > > first

> > > > told her about Terry's ESLD, she was in denial for many months and

> > really

> > > > did not begin to accept the fact that he was terminal until just weeks

> > > > before he died. I am concerned about what this news is going to do to

> > > her.

> > > >

> > > > I am not afraid of death; I know where I am going the minute I breathe

> > my

> > > > last breath here. I will be with my Jesus and with Terry and Momma and

> > my

> > > > babies. I cannot be sad about that. Of course, I am sad about not

> > getting

> > > > to see my niece and nephews children grow up. However, I prayed and

> > asked

> > > > the Lord for life and strength to care for Terry because I knew he

> > needed

> > > > me. The Lord answered my prayer and gave me my heart's desire. Whatever

> > > > the outcome of this is, I am okay with it.

> > > >

> > > > Dying of liver disease does however scare me spitless! I witnessed

> > first

> > > > hand what it did to Terry. I saw how he suffered; always very quietly

> > and

> > > > never wanting to be a burden on me. He suffered untold agony that I'm

> > > quite

> > > > sure I never knew about. He did it with dignity and died with peace and

> > > > dignity. I don't know if I have the courage to do that and that scares

> > > me.

> > > > More than anything, I want to be a blessing and not a burden to my

> > > family.

> > > > I want to bring honor and dignity to the name of the Lord with whatever

> > I

> > > > do.

> > > >

> > > > This is the beginning of what I know will be a long and chaotic ride.

> > If

> > > > you guys would allow me to come back and be a part of your group, it

> > > would

> > > > mean so much to me. I haven't been around and I don't deserve to be

> > taken

> > > > in, but I sure am praying you will say yes! I have never forgotten

> > about

> > > > all of you and I pray every day for all of you, even those whom I have

> > > not

> > > > 'met' yet. God bless you all!

> > > >

> > > >

> > > >

> > > > Warm Hugs........ ...

> > > >

> > > > Diane C. from TN

> > > > http://auntdisexper imentallife. blogspot. com/

> > > >

> > > >

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