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Re: Lactulose (Enulose) & Spiking Blood Sugar Levels

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Posted
Posted

I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose

is supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

etched in stone. If              is extremely rare, and can digest

lactulose, then he might not be able to be on it. Especially because lactulose

is supposed to be adjusted to produce two to three loose stools a day, and

elevated blood sugar is a serious complication not to be ignored.

good luck with this. love, bobby

________________________________

To: livercirrhosissupport

Sent: Friday, July 31, 2009 8:44:46 PM

Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Hi all! Just wondering... . saw his liver specialist about a week ago. Doc

put him on 30ml lactulose (enulose generic I assume) twice a day. When he takes

it as directed, 30ml 2 x a day, his blood glucose levels shoot up drastically.

We just got those under control with 20 units of insulin daily. He had really

good bg readings.... 110 to 130 or so, most any time of day. But the lactulose

is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2 x a day,

but that doesn't seem to do much at all. So now we're thinking maybe 20ml 2 x a

day? We're hoping it'll help with his cognitive abilities but if it's going to

continue to spike his glucose levels I'm not sure he can handle that. His

glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

It's understandable that it would affect his blood sugars because lactulose is

nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

Any suggestions? Anyone else have this problem with lactulose.

Thanks for any input you might have.

Twila

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Posted
Posted

Bobby,

Hi! Thanks for your insight. And I agree wholeheartedly. Lactulose should not

have upset his BG levels, but it did. saw Doc again on Tuesday. We told

him about the BG issue and he was as shocked as we were. We may never know why

it happened, but we know that when he took it, his BG readings skyrocketed. And

since he's stopped his readings are coming back down to where they were before.

So, Doc said let's try Xifaxan. It's new and it's pricey, but worth a shot.

Thankfully, he gave us a 10 day sample supply to see what happens.

I checked with Humana. They do cover it, but even then, our cost will be $65

for a 30 day supply. Not nearly as cheap as Lactulose, but oh well. We'll

probably go with a 90 day supply and get it from Humana's RightSourceRx online

system, IF they have it available that way. Cheaper that way. But we're not

ordering it at all until 's had a chance to use the freebies for a bit.

He's been taking it, 2 200mg tabs 3X/day since yesterday morning. So far his BG

levels are good. I suspect that it'll work for him. I certainly hope so.

Now we're dealing with 's foot pain. Don't know if it's related to his

cirrhosis or his diabetes but it's really causing him some severe pain.

Tingling, burning sensation but feels cold all the time, a LOT of swelling.

Neither doctor seems to be concerned about it, but I know his feet really hurt.

Even when the swelling goes down some. Any ideas here?

I've been looking at a new product called Neuragen. It's a topical oil that's

supposed to help relieve nerve pain, but OMG! It's pricey too! Cheapest I

could find has been online for $30+shipping for a 1/2 ounce bottle! Anyone have

any other ideas?

Thanks to all of you for being here! I love this group!

Twila

>

> I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose

is supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> etched in stone. If              is extremely rare, and can digest

lactulose, then he might not be able to be on it. Especially because lactulose

is supposed to be adjusted to produce two to three loose stools a day, and

elevated blood sugar is a serious complication not to be ignored.

> good luck with this. love, bobby

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Friday, July 31, 2009 8:44:46 PM

> Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

>

>  

> Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

>

> It's understandable that it would affect his blood sugars because lactulose is

nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

>

> Any suggestions? Anyone else have this problem with lactulose.

>

> Thanks for any input you might have.

>

> Twila

>

>

>

>

>

>

>

>

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Posted
Posted

Hi Twila,

I haven't 'met' you yet, but I've been a member here for, goodness, I don't even

know how long!  I've been silent for quite a while.  My husband passed away on

Jan. 26 from complications of ESLD.

Terry (my late husband) took the Lactulose and never had a problem with his BG

levels, other than going too low due to dumping syndrome, which I think Bobby

has already mentioned. I do hope the Xifaxan works for .

As for his foot pain, I am very concerned about it!  The fact that he is a

diabetic and has burning, tingling and swelling in his lower extremeties is

absolutely an issue.  Please be persistent with his doctor.  Terry almost lost

his foot due to an infection that the ER doctor foo-fooed as me 'worrying over

every little thing'!  If I hadn't pushed them, my husband might very well have

wound up with sepsis again.  You know  better than his doctors.  If it

concerns you, it should concern them.

As for something to give relief, my mother had diabetes and developed renal

failure.  As she got sicker, the neuropathy got worse and worse.  She was sent

to a clinic for treatments with this machine that provided electrical

stimulation to the legs to promote circulation.  She improved in the clinical

trials and was prescribed one of the machines to use at home.  It greatly

improved her leg and foot pain, numbness, tingling and swelling.  I will try to

look through her old records and see if I can find out what that little machine

is called and let you know.  It wasn't cheap, but it was covered by Medicare and

her supplemental insurance, which was BCBS of TN.

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Thursday, August 6, 2009 8:45:09 AM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Bobby,

Hi! Thanks for your insight. And I agree wholeheartedly. Lactulose should not

have upset his BG levels, but it did. saw Doc again on Tuesday. We told

him about the BG issue and he was as shocked as we were. We may never know why

it happened, but we know that when he took it, his BG readings skyrocketed. And

since he's stopped his readings are coming back down to where they were before.

So, Doc said let's try Xifaxan. It's new and it's pricey, but worth a shot.

Thankfully, he gave us a 10 day sample supply to see what happens.

I checked with Humana. They do cover it, but even then, our cost will be $65 for

a 30 day supply. Not nearly as cheap as Lactulose, but oh well. We'll probably

go with a 90 day supply and get it from Humana's RightSourceRx online system, IF

they have it available that way. Cheaper that way. But we're not ordering it at

all until 's had a chance to use the freebies for a bit.

He's been taking it, 2 200mg tabs 3X/day since yesterday morning. So far his BG

levels are good. I suspect that it'll work for him. I certainly hope so.

Now we're dealing with 's foot pain. Don't know if it's related to his

cirrhosis or his diabetes but it's really causing him some severe pain.

Tingling, burning sensation but feels cold all the time, a LOT of swelling.

Neither doctor seems to be concerned about it, but I know his feet really hurt.

Even when the swelling goes down some. Any ideas here?

I've been looking at a new product called Neuragen. It's a topical oil that's

supposed to help relieve nerve pain, but OMG! It's pricey too! Cheapest I could

find has been online for $30+shipping for a 1/2 ounce bottle! Anyone have any

other ideas?

Thanks to all of you for being here! I love this group!

Twila

>

> I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose

is supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> etched in stone. If              is extremely rare, and can digest

lactulose, then he might not be able to be on it. Especially because lactulose

is supposed to be adjusted to produce two to three loose stools a day, and

elevated blood sugar is a serious complication not to be ignored.

> good luck with this. love, bobby

>

>

>

> ____________ _________ _________ __

> From: tjingham <tjingham@.. .>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Friday, July 31, 2009 8:44:46 PM

> Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

>

>  

> Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

>

> It's understandable that it would affect his blood sugars because lactulose is

nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

>

> Any suggestions? Anyone else have this problem with lactulose.

>

> Thanks for any input you might have.

>

> Twila

>

>

>

>

>

>

>

>

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Posted
Posted

Twila, this is so wierd! The day you posted about his BG levels( blood glucose)

I picked up my prescription of lactulose, and it had a diabetic warning on it. I

wonder what the prevalence of this is?

Every once in a while one of us breaks all the records, and upsets science's

apple cart. Now, since he is on rifaxinim, you will hopefully see a big

difference. It has some really good research results, and supposed to be as

reliable as lactulose. I take both lactulose and rifaximin for refractory

encephalopathy. I really have no idea about his foot pain, since it is unclear

what might be causing it. I know that Ardis had a lot of leg pain, even to the

point that we had ultrasounds done to rule out blood clots. That the doctors are

not doing at least that much suggests you might get a second opinion. No one

deserves to suffer. If it was my wife, I would take her to a different doc. I

realize that times are tough, but he is suffering, or so it sounds. Good luck. I

am really happy that he was able to try the alternative to lactulose. Love,

Bobby

long life, old age, everything good-Apache prayer

________________________________

To: livercirrhosissupport

Sent: Thursday, August 6, 2009 7:45:09 AM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

Bobby,

Hi! Thanks for your insight. And I agree wholeheartedly. Lactulose should not

have upset his BG levels, but it did. saw Doc again on Tuesday. We told

him about the BG issue and he was as shocked as we were. We may never know why

it happened, but we know that when he took it, his BG readings skyrocketed. And

since he's stopped his readings are coming back down to where they were before.

So, Doc said let's try Xifaxan. It's new and it's pricey, but worth a shot.

Thankfully, he gave us a 10 day sample supply to see what happens.

I checked with Humana. They do cover it, but even then, our cost will be $65

for a 30 day supply. Not nearly as cheap as Lactulose, but oh well. We'll

probably go with a 90 day supply and get it from Humana's RightSourceRx online

system, IF they have it available that way. Cheaper that way. But we're not

ordering it at all until 's had a chance to use the freebies for a bit.

He's been taking it, 2 200mg tabs 3X/day since yesterday morning. So far his BG

levels are good. I suspect that it'll work for him. I certainly hope so.

Now we're dealing with 's foot pain. Don't know if it's related to his

cirrhosis or his diabetes but it's really causing him some severe pain.

Tingling, burning sensation but feels cold all the time, a LOT of swelling.

Neither doctor seems to be concerned about it, but I know his feet really hurt.

Even when the swelling goes down some. Any ideas here?

I've been looking at a new product called Neuragen. It's a topical oil that's

supposed to help relieve nerve pain, but OMG! It's pricey too! Cheapest I

could find has been online for $30+shipping for a 1/2 ounce bottle! Anyone have

any other ideas?

Thanks to all of you for being here! I love this group!

Twila

>

> I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> etched in stone. If is extremely rare, and can digest

lactulose, then he might not be able to be on it. Especially because lactulose

is supposed to be adjusted to produce two to three loose stools a day, and

elevated blood sugar is a serious complication not to be ignored.

> good luck with this. love, bobby

>

>

>

> ____________ _________ _________ __

> From: tjingham <tjingham@.. .>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Friday, July 31, 2009 8:44:46 PM

> Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

>

>

> Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

>

> It's understandable that it would affect his blood sugars because lactulose is

nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

>

> Any suggestions? Anyone else have this problem with lactulose.

>

> Thanks for any input you might have.

>

> Twila

>

>

>

>

>

>

>

>

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Posted
Posted

Hi Diane!

So nice to 'meet' you. I don't always 'pipe up' here, but I try to catch the

emails at least once a day. Only been a member a short time but have learned so

much. This group is loaded with great people!

We are definitely concerned about 's feet. I'm going to call our diabetes

counselor tomorrow and talk to her. Maybe she can help us get through to the

docs that there's a problem. Our worries over his foot pain are two-fold. Yes,

he's type 2 diabetic just in the last couple of years, since his cirrhosis

diagnosis. But he also only has one kidney.

His liver doc ran all the blood work and ultra sound two weeks ago. He said

that all the results were good, considering the condition of the liver. So that

was kinda' good news. Nothing unexpected. No liver cancer cells and nothing to

report on his kidney either. Basically he said that was as normal as he

could be at this time. But he made it clear that he doesn't 'dabble' in

diabetic care, so we'll be pressing onward from there.

As far as 's feet are concerned, I will keep knocking down doors until

someone pays attention. I will call his counselor tomorrow and take it from

there. Thanks for the words of encouragement and for letting us know we're not

over-reacting.

Hope you have a great day tomorrow!

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose

is supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If              is extremely rare, and can digest

lactulose, then he might not be able to be on it. Especially because lactulose

is supposed to be adjusted to produce two to three loose stools a day, and

elevated blood sugar is a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >  

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Posted
Posted

Twila,

You're so very welcome!  We are a family here and that's what family and friends

do for each other....encourage and uplift and support.  I am always here if you

need me and I am definitely  always remembering you and your in prayer.

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Thursday, August 6, 2009 10:37:30 PM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Hi Diane!

So nice to 'meet' you. I don't always 'pipe up' here, but I try to catch the

emails at least once a day. Only been a member a short time but have learned so

much. This group is loaded with great people!

We are definitely concerned about 's feet. I'm going to call our diabetes

counselor tomorrow and talk to her. Maybe she can help us get through to the

docs that there's a problem. Our worries over his foot pain are two-fold. Yes,

he's type 2 diabetic just in the last couple of years, since his cirrhosis

diagnosis. But he also only has one kidney.

His liver doc ran all the blood work and ultra sound two weeks ago. He said that

all the results were good, considering the condition of the liver. So that was

kinda' good news. Nothing unexpected. No liver cancer cells and nothing to

report on his kidney either. Basically he said that was as normal as he

could be at this time. But he made it clear that he doesn't 'dabble' in diabetic

care, so we'll be pressing onward from there.

As far as 's feet are concerned, I will keep knocking down doors until

someone pays attention. I will call his counselor tomorrow and take it from

there. Thanks for the words of encouragement and for letting us know we're not

over-reacting.

Hope you have a great day tomorrow!

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose

is supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing

is

> > etched in stone. If              is extremely rare, and can digest

lactulose, then he might not be able to be on it. Especially because lactulose

is supposed to be adjusted to produce two to three loose stools a day, and

elevated blood sugar is a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >  

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Posted
Posted

Bobby,

I also checked the Lactulose info on the company website & several other sites.

They all indicate that there 'could' be diabetic issues but that it was rare.

Apparently not rare enough to stop them from putting the warning on the labels.

Hmmm.

4th day now for on Xifaxan and so far no bad reactions/side effects, but

it doesn't seem to be helping much either. He's got 6 days of samples left

before we have to decide whether or not to pay for the rx. So we're still

'working on that one'.

We're trying an OTC topical cream for his foot pain. Supposed to help relieve

the nerve pain. We'll see. He's skeptical, but that's just him. He's always

been a 'cup half empty' kinda' guy. Even when we first met 20+ something years

ago, he was always the pessimist. I'm just the opposite. My cup is always

'half full' and sometimes it's even overflowing! LOL

His mother used to say she never understood how the 2 of us stayed together.

Bless her heart. I sure miss her and my mom! I just kept telling her that

'opposites attract'! Apparently it's true. At least in our case. But I gotta'

say, sometimes his half empty cup 'bout does me in. It's difficult sometimes,

to try to keep his spirits up. If our house were bigger, and finished, I'd find

a corner to cry in from time to time. But it's not big enough and it's

certainly not finished, so I'm stuck. Some days I just spend a little time in

the van, either just sitting in it or out taking a country drive. Our 7 y.o.

grandson has spent the entire summer with us, and many times, he'll ask to 'just

go for a drive'. Works for me! We've also had a swimming pool to give me a bit

of respite. LOVE that pool! All of these help me to regain & retain my half

full cup! :)

Anyway, I'm way OT here, wandering mind I guess; and my sink is full of dirty

dishes & the dirty laundry is calling my name somewhere off in the distance.

's napping now, so guess I'd best get a few chores done.

Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

w/heat index about 105-110 today so the pool will be my play place later. And

the grandson went home yesterday, so the pool is finally all mine! :)

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If is extremely rare, and can digest

lactulose, then he might not be able to be on it. Especially because lactulose

is supposed to be adjusted to produce two to three loose stools a day, and

elevated blood sugar is a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Share on other sites
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Posted
Posted

Twila,

I sure hope  begins to have some relief with the new med.  Perhaps he needs

a higher dosage?  Just one thing to consider.

I so understand your need for respite, especially with the 'half empty'

partner.  Terry was much the same.  He always said he was so glad he had the

good sense to marry an optimist because he would live in depression if hadn't! 

He was a wonderful man, but he always saw the worst in every situation and never

could see the positive side without a lot of encouragement from me.  As you say,

opposites attract and it worked for us for 33+ years, until the Lord called him

home!

Enjoy that pool now!  Hot here in West TN as well, with the high humidity! 

UGH!  I will be so happy to see October!!!  :)

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Saturday, August 8, 2009 1:14:25 PM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Bobby,

I also checked the Lactulose info on the company website & several other sites.

They all indicate that there 'could' be diabetic issues but that it was rare.

Apparently not rare enough to stop them from putting the warning on the labels.

Hmmm.

4th day now for on Xifaxan and so far no bad reactions/side effects, but

it doesn't seem to be helping much either. He's got 6 days of samples left

before we have to decide whether or not to pay for the rx. So we're still

'working on that one'.

We're trying an OTC topical cream for his foot pain. Supposed to help relieve

the nerve pain. We'll see. He's skeptical, but that's just him. He's always been

a 'cup half empty' kinda' guy. Even when we first met 20+ something years ago,

he was always the pessimist. I'm just the opposite. My cup is always 'half full'

and sometimes it's even overflowing! LOL

His mother used to say she never understood how the 2 of us stayed together.

Bless her heart. I sure miss her and my mom! I just kept telling her that

'opposites attract'! Apparently it's true. At least in our case. But I gotta'

say, sometimes his half empty cup 'bout does me in. It's difficult sometimes, to

try to keep his spirits up. If our house were bigger, and finished, I'd find a

corner to cry in from time to time. But it's not big enough and it's certainly

not finished, so I'm stuck. Some days I just spend a little time in the van,

either just sitting in it or out taking a country drive. Our 7 y.o. grandson has

spent the entire summer with us, and many times, he'll ask to 'just go for a

drive'. Works for me! We've also had a swimming pool to give me a bit of

respite. LOVE that pool! All of these help me to regain & retain my half full

cup! :)

Anyway, I'm way OT here, wandering mind I guess; and my sink is full of dirty

dishes & the dirty laundry is calling my name somewhere off in the distance.

's napping now, so guess I'd best get a few chores done.

Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

w/heat index about 105-110 today so the pool will be my play place later. And

the grandson went home yesterday, so the pool is finally all mine! :)

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If is extremely rare, and can digest lactulose, then

he might not be able to be on it. Especially because lactulose is supposed to be

adjusted to produce two to three loose stools a day, and elevated blood sugar is

a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Share on other sites
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Posted
Posted

hah-my husband too is a pessimist and I thank God, I try to stay positive to

balance things.  Not always easy, thats for sure.  Some days I could clock him! 

He isn't depressed with his situation,  just never really very grateful for

much.

Regardless of what I do, I almost always have to pry out a complement from him. 

I take care of virtually everything, and I have to ask for help, it is almost

never offered.  Sometimes I don't think he beleives he should be happy. 

Ummm---it is what it is.....

But, he loves his dog and he is always playing with him and I hear the laughter,

so its all good.  He loves his family he just has a hard time expressing

emotions.

It is worst since his illness, so I try and not need so much.

I know he can't help it, he keeps alot inside so as not to worry me.  We  may

need to sell our home and I know that is weighting heavily on him.

Phyllis 

________________________________

To: livercirrhosissupport

Sent: Saturday, August 8, 2009 10:50:39 AM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

Twila,

I sure hope  begins to have some relief with the new med.  Perhaps he needs

a higher dosage?  Just one thing to consider.

I so understand your need for respite, especially with the 'half empty'

partner.  Terry was much the same.  He always said he was so glad he had the

good sense to marry an optimist because he would live in depression if hadn't! 

He was a wonderful man, but he always saw the worst in every situation and never

could see the positive side without a lot of encouragement from me.  As you say,

opposites attract and it worked for us for 33+ years, until the Lord called him

home!

Enjoy that pool now!  Hot here in West TN as well, with the high humidity! 

UGH!  I will be so happy to see October!!!  :)

 

Warm Hugs........ ...

 

Diane

http://auntdisexper imentallife. blogspot. com/

____________ _________ _________ __

From: tjingham <tjinghamgmail (DOT) com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 1:14:25 PM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Bobby,

I also checked the Lactulose info on the company website & several other sites.

They all indicate that there 'could' be diabetic issues but that it was rare.

Apparently not rare enough to stop them from putting the warning on the labels.

Hmmm.

4th day now for on Xifaxan and so far no bad reactions/side effects, but

it doesn't seem to be helping much either. He's got 6 days of samples left

before we have to decide whether or not to pay for the rx. So we're still

'working on that one'.

We're trying an OTC topical cream for his foot pain. Supposed to help relieve

the nerve pain. We'll see. He's skeptical, but that's just him. He's always been

a 'cup half empty' kinda' guy. Even when we first met 20+ something years ago,

he was always the pessimist. I'm just the opposite. My cup is always 'half full'

and sometimes it's even overflowing! LOL

His mother used to say she never understood how the 2 of us stayed together.

Bless her heart. I sure miss her and my mom! I just kept telling her that

'opposites attract'! Apparently it's true. At least in our case. But I gotta'

say, sometimes his half empty cup 'bout does me in. It's difficult sometimes, to

try to keep his spirits up. If our house were bigger, and finished, I'd find a

corner to cry in from time to time. But it's not big enough and it's certainly

not finished, so I'm stuck. Some days I just spend a little time in the van,

either just sitting in it or out taking a country drive. Our 7 y.o. grandson has

spent the entire summer with us, and many times, he'll ask to 'just go for a

drive'. Works for me! We've also had a swimming pool to give me a bit of

respite. LOVE that pool! All of these help me to regain & retain my half full

cup! :)

Anyway, I'm way OT here, wandering mind I guess; and my sink is full of dirty

dishes & the dirty laundry is calling my name somewhere off in the distance.

's napping now, so guess I'd best get a few chores done.

Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

w/heat index about 105-110 today so the pool will be my play place later. And

the grandson went home yesterday, so the pool is finally all mine! :)

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If is extremely rare, and can digest lactulose, then

he might not be able to be on it. Especially because lactulose is supposed to be

adjusted to produce two to three loose stools a day, and elevated blood sugar is

a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Share on other sites
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Posted
Posted

Phyllis, I am sorry to hear that you may have to sell your home.  I understand

the pain of that decision.  I have recently put my house on the market.  It is

hard to let go of something Terry and I built together and worked so hard on and

enjoyed for so many years.  However, it is only bricks and mortar and the land

is only dirt.  I can't take any of those things with me.  The things that are

eternal are in my heart and I am thankful no one can take those things from me. 

I will be praying for you and for your husband.  I know this illness is a horrid

partner and causes even very optimistic people to question everything about

their lives sometimes.  Just so you know, you are appreciated for all you do for

him.  I know what that takes and what it costs you in physical, mental,

emotional and spiritual sacrifices.  Thank you for giving so completely of

yourself to help him through this time in his life.

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Saturday, August 8, 2009 2:29:56 PM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

hah-my husband too is a pessimist and I thank God, I try to stay positive to

balance things.  Not always easy, thats for sure.  Some days I could clock him! 

He isn't depressed with his situation,  just never really very grateful for

much.

Regardless of what I do, I almost always have to pry out a complement from him. 

I take care of virtually everything, and I have to ask for help, it is almost

never offered.  Sometimes I don't think he beleives he should be happy. 

Ummm---it is what it is.....

But, he loves his dog and he is always playing with him and I hear the laughter,

so its all good.  He loves his family he just has a hard time expressing

emotions.

It is worst since his illness, so I try and not need so much.

I know he can't help it, he keeps alot inside so as not to worry me.  We  may

need to sell our home and I know that is weighting heavily on him.

Phyllis 

____________ _________ _________ __

From: diane chandler <dianechandler@ att.net>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 10:50:39 AM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

Twila,

I sure hope  begins to have some relief with the new med.  Perhaps he needs

a higher dosage?  Just one thing to consider.

I so understand your need for respite, especially with the 'half empty'

partner.  Terry was much the same.  He always said he was so glad he had the

good sense to marry an optimist because he would live in depression if hadn't! 

He was a wonderful man, but he always saw the worst in every situation and never

could see the positive side without a lot of encouragement from me.  As you say,

opposites attract and it worked for us for 33+ years, until the Lord called him

home!

Enjoy that pool now!  Hot here in West TN as well, with the high humidity! 

UGH!  I will be so happy to see October!!!  :)

 

Warm Hugs........ ...

 

Diane

http://auntdisexper imentallife. blogspot. com/

____________ _________ _________ __

From: tjingham <tjinghamgmail (DOT) com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 1:14:25 PM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Bobby,

I also checked the Lactulose info on the company website & several other sites.

They all indicate that there 'could' be diabetic issues but that it was rare.

Apparently not rare enough to stop them from putting the warning on the labels.

Hmmm.

4th day now for on Xifaxan and so far no bad reactions/side effects, but

it doesn't seem to be helping much either. He's got 6 days of samples left

before we have to decide whether or not to pay for the rx. So we're still

'working on that one'.

We're trying an OTC topical cream for his foot pain. Supposed to help relieve

the nerve pain. We'll see. He's skeptical, but that's just him. He's always been

a 'cup half empty' kinda' guy. Even when we first met 20+ something years ago,

he was always the pessimist. I'm just the opposite. My cup is always 'half full'

and sometimes it's even overflowing! LOL

His mother used to say she never understood how the 2 of us stayed together.

Bless her heart. I sure miss her and my mom! I just kept telling her that

'opposites attract'! Apparently it's true. At least in our case. But I gotta'

say, sometimes his half empty cup 'bout does me in. It's difficult sometimes, to

try to keep his spirits up. If our house were bigger, and finished, I'd find a

corner to cry in from time to time. But it's not big enough and it's certainly

not finished, so I'm stuck. Some days I just spend a little time in the van,

either just sitting in it or out taking a country drive. Our 7 y.o. grandson has

spent the entire summer with us, and many times, he'll ask to 'just go for a

drive'. Works for me! We've also had a swimming pool to give me a bit of

respite. LOVE that pool! All of these help me to regain & retain my half full

cup! :)

Anyway, I'm way OT here, wandering mind I guess; and my sink is full of dirty

dishes & the dirty laundry is calling my name somewhere off in the distance.

's napping now, so guess I'd best get a few chores done.

Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

w/heat index about 105-110 today so the pool will be my play place later. And

the grandson went home yesterday, so the pool is finally all mine! :)

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If is extremely rare, and can digest lactulose, then

he might not be able to be on it. Especially because lactulose is supposed to be

adjusted to produce two to three loose stools a day, and elevated blood sugar is

a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites
Guest guest

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Posted
Posted

My doctor has just recommended for me to go to a pysichiatrist...after being

hospitalized this week.  I am having anxiety attacks and can't seem to stop

them.  My son is back for a while so I really have to decide what or where to

do.  I wonder is most of us have this bad depression......showing in different

ways.  You are such a good person.

Thanks be to God for he creates our tomorrows Love, Lyncia

 

 

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

To: livercirrhosissupport

Date: Saturday, August 8, 2009, 2:29 PM

 

hah-my husband too is a pessimist and I thank God, I try to stay positive to

balance things.  Not always easy, thats for sure.  Some days I could clock him! 

He isn't depressed with his situation,  just never really very grateful for

much.

Regardless of what I do, I almost always have to pry out a complement from him. 

I take care of virtually everything, and I have to ask for help, it is almost

never offered.  Sometimes I don't think he beleives he should be happy. 

Ummm---it is what it is.....

But, he loves his dog and he is always playing with him and I hear the laughter,

so its all good.  He loves his family he just has a hard time expressing

emotions.

It is worst since his illness, so I try and not need so much.

I know he can't help it, he keeps alot inside so as not to worry me.  We  may

need to sell our home and I know that is weighting heavily on him.

Phyllis 

____________ _________ _________ __

From: diane chandler <dianechandler@ att.net>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 10:50:39 AM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

Twila,

I sure hope  begins to have some relief with the new med.  Perhaps he needs

a higher dosage?  Just one thing to consider.

I so understand your need for respite, especially with the 'half empty'

partner.  Terry was much the same.  He always said he was so glad he had the

good sense to marry an optimist because he would live in depression if hadn't! 

He was a wonderful man, but he always saw the worst in every situation and never

could see the positive side without a lot of encouragement from me.  As you say,

opposites attract and it worked for us for 33+ years, until the Lord called him

home!

Enjoy that pool now!  Hot here in West TN as well, with the high humidity! 

UGH!  I will be so happy to see October!!!  :)

 

Warm Hugs........ ...

 

Diane

http://auntdisexper imentallife. blogspot. com/

____________ _________ _________ __

From: tjingham <tjinghamgmail (DOT) com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 1:14:25 PM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Bobby,

I also checked the Lactulose info on the company website & several other sites.

They all indicate that there 'could' be diabetic issues but that it was rare.

Apparently not rare enough to stop them from putting the warning on the labels.

Hmmm.

4th day now for on Xifaxan and so far no bad reactions/side effects, but

it doesn't seem to be helping much either. He's got 6 days of samples left

before we have to decide whether or not to pay for the rx. So we're still

'working on that one'.

We're trying an OTC topical cream for his foot pain. Supposed to help relieve

the nerve pain. We'll see. He's skeptical, but that's just him. He's always been

a 'cup half empty' kinda' guy. Even when we first met 20+ something years ago,

he was always the pessimist. I'm just the opposite. My cup is always 'half full'

and sometimes it's even overflowing! LOL

His mother used to say she never understood how the 2 of us stayed together.

Bless her heart. I sure miss her and my mom! I just kept telling her that

'opposites attract'! Apparently it's true. At least in our case. But I gotta'

say, sometimes his half empty cup 'bout does me in. It's difficult sometimes, to

try to keep his spirits up. If our house were bigger, and finished, I'd find a

corner to cry in from time to time. But it's not big enough and it's certainly

not finished, so I'm stuck. Some days I just spend a little time in the van,

either just sitting in it or out taking a country drive. Our 7 y.o. grandson has

spent the entire summer with us, and many times, he'll ask to 'just go for a

drive'. Works for me! We've also had a swimming pool to give me a bit of

respite. LOVE that pool! All of these help me to regain & retain my half full

cup! :)

Anyway, I'm way OT here, wandering mind I guess; and my sink is full of dirty

dishes & the dirty laundry is calling my name somewhere off in the distance.

's napping now, so guess I'd best get a few chores done.

Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

w/heat index about 105-110 today so the pool will be my play place later. And

the grandson went home yesterday, so the pool is finally all mine! :)

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If is extremely rare, and can digest lactulose, then

he might not be able to be on it. Especially because lactulose is supposed to be

adjusted to produce two to three loose stools a day, and elevated blood sugar is

a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Posted
Posted

Hi Lyncia....I have certainly had major bouts of depression, much worse since

being diagnosed with ESLD...I think it is a common thing for people with

terminal illnesses, to have that feeling of being hopeless, and all the things

that surround chronic conditions...sounds like you have a strong faith in your

creator...I'm sure that supplies you with comfort, but it can not be enough...if

you have the ability it would likely help you to see one...I've had visits with

some in the past...some were good, and some seemed like they were falling

asleep, and in fact had one fall asleep when I was a teenager...kind of

deminished my faith in them...but, I didn't want to be there anyway at that

time...hang in there, love  Dave

________________________________

To: livercirrhosissupport

Sent: Saturday, August 8, 2009 4:08:13 PM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

My doctor has just recommended for me to go to a pysichiatrist. ..after being

hospitalized this week.  I am having anxiety attacks and can't seem to stop

them.  My son is back for a while so I really have to decide what or where to

do.  I wonder is most of us have this bad depression.. ....showing in different

ways.  You are such a good person.

Thanks be to God for he creates our tomorrows Love, Lyncia

 

 

From: Phyllis Delgado <pdelgado354@ yahoo.com>

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Saturday, August 8, 2009, 2:29 PM

 

hah-my husband too is a pessimist and I thank God, I try to stay positive to

balance things.  Not always easy, thats for sure.  Some days I could clock him! 

He isn't depressed with his situation,  just never really very grateful for

much.

Regardless of what I do, I almost always have to pry out a complement from him. 

I take care of virtually everything, and I have to ask for help, it is almost

never offered.  Sometimes I don't think he beleives he should be happy. 

Ummm---it is what it is.....

But, he loves his dog and he is always playing with him and I hear the laughter,

so its all good.  He loves his family he just has a hard time expressing

emotions.

It is worst since his illness, so I try and not need so much.

I know he can't help it, he keeps alot inside so as not to worry me.  We  may

need to sell our home and I know that is weighting heavily on him.

Phyllis 

____________ _________ _________ __

From: diane chandler <dianechandler@ att.net>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 10:50:39 AM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

Twila,

I sure hope  begins to have some relief with the new med.  Perhaps he needs

a higher dosage?  Just one thing to consider.

I so understand your need for respite, especially with the 'half empty'

partner.  Terry was much the same.  He always said he was so glad he had the

good sense to marry an optimist because he would live in depression if hadn't! 

He was a wonderful man, but he always saw the worst in every situation and never

could see the positive side without a lot of encouragement from me.  As you say,

opposites attract and it worked for us for 33+ years, until the Lord called him

home!

Enjoy that pool now!  Hot here in West TN as well, with the high humidity! 

UGH!  I will be so happy to see October!!!  :)

 

Warm Hugs........ ...

 

Diane

http://auntdisexper imentallife. blogspot. com/

____________ _________ _________ __

From: tjingham <tjinghamgmail (DOT) com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 1:14:25 PM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Bobby,

I also checked the Lactulose info on the company website & several other sites.

They all indicate that there 'could' be diabetic issues but that it was rare.

Apparently not rare enough to stop them from putting the warning on the labels.

Hmmm.

4th day now for on Xifaxan and so far no bad reactions/side effects, but

it doesn't seem to be helping much either. He's got 6 days of samples left

before we have to decide whether or not to pay for the rx. So we're still

'working on that one'.

We're trying an OTC topical cream for his foot pain. Supposed to help relieve

the nerve pain. We'll see. He's skeptical, but that's just him. He's always been

a 'cup half empty' kinda' guy. Even when we first met 20+ something years ago,

he was always the pessimist. I'm just the opposite. My cup is always 'half full'

and sometimes it's even overflowing! LOL

His mother used to say she never understood how the 2 of us stayed together.

Bless her heart. I sure miss her and my mom! I just kept telling her that

'opposites attract'! Apparently it's true. At least in our case. But I gotta'

say, sometimes his half empty cup 'bout does me in. It's difficult sometimes, to

try to keep his spirits up. If our house were bigger, and finished, I'd find a

corner to cry in from time to time. But it's not big enough and it's certainly

not finished, so I'm stuck. Some days I just spend a little time in the van,

either just sitting in it or out taking a country drive. Our 7 y.o. grandson has

spent the entire summer with us, and many times, he'll ask to 'just go for a

drive'. Works for me! We've also had a swimming pool to give me a bit of

respite. LOVE that pool! All of these help me to regain & retain my half full

cup! :)

Anyway, I'm way OT here, wandering mind I guess; and my sink is full of dirty

dishes & the dirty laundry is calling my name somewhere off in the distance.

's napping now, so guess I'd best get a few chores done.

Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

w/heat index about 105-110 today so the pool will be my play place later. And

the grandson went home yesterday, so the pool is finally all mine! :)

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If is extremely rare, and can digest lactulose, then

he might not be able to be on it. Especially because lactulose is supposed to be

adjusted to produce two to three loose stools a day, and elevated blood sugar is

a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Share on other sites
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Posted
Posted

Lyncia, I can only share what Terry experienced and he most certainly battled

depression his diagnosis and more so as time went by.  I think your doctor's

recommendation makes perfect sense and most likely will help you feel much

better emotionally.  I am praying for you and, for what it's worth, I think you

shoud take your doctor's advice.

 

Warm Hugs...........

 

Di

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Saturday, August 8, 2009 4:08:13 PM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

My doctor has just recommended for me to go to a pysichiatrist. ..after being

hospitalized this week.  I am having anxiety attacks and can't seem to stop

them.  My son is back for a while so I really have to decide what or where to

do.  I wonder is most of us have this bad depression.. ....showing in different

ways.  You are such a good person.

Thanks be to God for he creates our tomorrows Love, Lyncia

 

 

From: Phyllis Delgado <pdelgado354@ yahoo.com>

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Saturday, August 8, 2009, 2:29 PM

 

hah-my husband too is a pessimist and I thank God, I try to stay positive to

balance things.  Not always easy, thats for sure.  Some days I could clock him! 

He isn't depressed with his situation,  just never really very grateful for

much.

Regardless of what I do, I almost always have to pry out a complement from him. 

I take care of virtually everything, and I have to ask for help, it is almost

never offered.  Sometimes I don't think he beleives he should be happy. 

Ummm---it is what it is.....

But, he loves his dog and he is always playing with him and I hear the laughter,

so its all good.  He loves his family he just has a hard time expressing

emotions.

It is worst since his illness, so I try and not need so much.

I know he can't help it, he keeps alot inside so as not to worry me.  We  may

need to sell our home and I know that is weighting heavily on him.

Phyllis 

____________ _________ _________ __

From: diane chandler <dianechandler@ att.net>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 10:50:39 AM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

Twila,

I sure hope  begins to have some relief with the new med.  Perhaps he needs

a higher dosage?  Just one thing to consider.

I so understand your need for respite, especially with the 'half empty'

partner.  Terry was much the same.  He always said he was so glad he had the

good sense to marry an optimist because he would live in depression if hadn't! 

He was a wonderful man, but he always saw the worst in every situation and never

could see the positive side without a lot of encouragement from me.  As you say,

opposites attract and it worked for us for 33+ years, until the Lord called him

home!

Enjoy that pool now!  Hot here in West TN as well, with the high humidity! 

UGH!  I will be so happy to see October!!!  :)

 

Warm Hugs........ ...

 

Diane

http://auntdisexper imentallife. blogspot. com/

____________ _________ _________ __

From: tjingham <tjinghamgmail (DOT) com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 1:14:25 PM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Bobby,

I also checked the Lactulose info on the company website & several other sites.

They all indicate that there 'could' be diabetic issues but that it was rare.

Apparently not rare enough to stop them from putting the warning on the labels.

Hmmm.

4th day now for on Xifaxan and so far no bad reactions/side effects, but

it doesn't seem to be helping much either. He's got 6 days of samples left

before we have to decide whether or not to pay for the rx. So we're still

'working on that one'.

We're trying an OTC topical cream for his foot pain. Supposed to help relieve

the nerve pain. We'll see. He's skeptical, but that's just him. He's always been

a 'cup half empty' kinda' guy. Even when we first met 20+ something years ago,

he was always the pessimist. I'm just the opposite. My cup is always 'half full'

and sometimes it's even overflowing! LOL

His mother used to say she never understood how the 2 of us stayed together.

Bless her heart. I sure miss her and my mom! I just kept telling her that

'opposites attract'! Apparently it's true. At least in our case. But I gotta'

say, sometimes his half empty cup 'bout does me in. It's difficult sometimes, to

try to keep his spirits up. If our house were bigger, and finished, I'd find a

corner to cry in from time to time. But it's not big enough and it's certainly

not finished, so I'm stuck. Some days I just spend a little time in the van,

either just sitting in it or out taking a country drive. Our 7 y.o. grandson has

spent the entire summer with us, and many times, he'll ask to 'just go for a

drive'. Works for me! We've also had a swimming pool to give me a bit of

respite. LOVE that pool! All of these help me to regain & retain my half full

cup! :)

Anyway, I'm way OT here, wandering mind I guess; and my sink is full of dirty

dishes & the dirty laundry is calling my name somewhere off in the distance.

's napping now, so guess I'd best get a few chores done.

Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

w/heat index about 105-110 today so the pool will be my play place later. And

the grandson went home yesterday, so the pool is finally all mine! :)

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If is extremely rare, and can digest lactulose, then

he might not be able to be on it. Especially because lactulose is supposed to be

adjusted to produce two to three loose stools a day, and elevated blood sugar is

a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Posted
Posted

lyncia,i believe everyone at some point in their lives needs alittle

assistance,esp. when we are facing alot of medicial issues. it cant hurt to try

and get some relief, awhile back i needed alittle assistance,and it did help me

out,i will be praying you find some relief honey.sometimes talking it out

helps,i am here for you if you need me,much love barby

> > >

> > > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > > etched in stone. If is extremely rare, and can digest lactulose,

then he might not be able to be on it. Especially because lactulose is supposed

to be adjusted to produce two to three loose stools a day, and elevated blood

sugar is a serious complication not to be ignored.

> > > good luck with this. love, bobby

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: tjingham <tjingham@ .>

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Sent: Friday, July 31, 2009 8:44:46 PM

> > > Subject: Lactulose (Enulose) & Spiking Blood

Sugar Levels

> > >

> > >

> > > Hi all! Just wondering... . saw his liver specialist about a week

ago. Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When

he takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> > >

> > > It's understandable that it would affect his blood sugars because

lactulose is nothing more than a synthetic sugar in the first place. I just

don't see that it'll help because of the higher glucose levels that

result.

> > >

> > > Any suggestions? Anyone else have this problem with lactulose.

> > >

> > > Thanks for any input you might have.

> > >

> > > Twila

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Share on other sites
Guest guest

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Posted
Posted

I am sure we will have to seek help in the future, just don't want to do it just

yet.  We have too much to do...have to decide what to sell and try to get rid of

years of accumulation of " stuff " one way or another. We will all survive the

latest challenges in our lives, God willing

Peace to all

Phyllis

________________________________

To: livercirrhosissupport

Sent: Saturday, August 8, 2009 1:08:13 PM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

My doctor has just recommended for me to go to a pysichiatrist. ..after being

hospitalized this week.  I am having anxiety attacks and can't seem to stop

them.  My son is back for a while so I really have to decide what or where to

do.  I wonder is most of us have this bad depression.. ....showing in different

ways.  You are such a good person.

Thanks be to God for he creates our tomorrows Love, Lyncia

 

 

From: Phyllis Delgado <pdelgado354@ yahoo.com>

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Saturday, August 8, 2009, 2:29 PM

 

hah-my husband too is a pessimist and I thank God, I try to stay positive to

balance things.  Not always easy, thats for sure.  Some days I could clock him! 

He isn't depressed with his situation,  just never really very grateful for

much.

Regardless of what I do, I almost always have to pry out a complement from him. 

I take care of virtually everything, and I have to ask for help, it is almost

never offered.  Sometimes I don't think he beleives he should be happy. 

Ummm---it is what it is.....

But, he loves his dog and he is always playing with him and I hear the laughter,

so its all good.  He loves his family he just has a hard time expressing

emotions.

It is worst since his illness, so I try and not need so much.

I know he can't help it, he keeps alot inside so as not to worry me.  We  may

need to sell our home and I know that is weighting heavily on him.

Phyllis 

____________ _________ _________ __

From: diane chandler <dianechandler@ att.net>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 10:50:39 AM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

Twila,

I sure hope  begins to have some relief with the new med.  Perhaps he needs

a higher dosage?  Just one thing to consider.

I so understand your need for respite, especially with the 'half empty'

partner.  Terry was much the same.  He always said he was so glad he had the

good sense to marry an optimist because he would live in depression if hadn't! 

He was a wonderful man, but he always saw the worst in every situation and never

could see the positive side without a lot of encouragement from me.  As you say,

opposites attract and it worked for us for 33+ years, until the Lord called him

home!

Enjoy that pool now!  Hot here in West TN as well, with the high humidity! 

UGH!  I will be so happy to see October!!!  :)

 

Warm Hugs........ ...

 

Diane

http://auntdisexper imentallife. blogspot. com/

____________ _________ _________ __

From: tjingham <tjinghamgmail (DOT) com>

To: livercirrhosissuppo rtyahoogroups (DOT) com

Sent: Saturday, August 8, 2009 1:14:25 PM

Subject: Re: Lactulose (Enulose) & Spiking Blood Sugar

Levels

 

Bobby,

I also checked the Lactulose info on the company website & several other sites.

They all indicate that there 'could' be diabetic issues but that it was rare.

Apparently not rare enough to stop them from putting the warning on the labels.

Hmmm.

4th day now for on Xifaxan and so far no bad reactions/side effects, but

it doesn't seem to be helping much either. He's got 6 days of samples left

before we have to decide whether or not to pay for the rx. So we're still

'working on that one'.

We're trying an OTC topical cream for his foot pain. Supposed to help relieve

the nerve pain. We'll see. He's skeptical, but that's just him. He's always been

a 'cup half empty' kinda' guy. Even when we first met 20+ something years ago,

he was always the pessimist. I'm just the opposite. My cup is always 'half full'

and sometimes it's even overflowing! LOL

His mother used to say she never understood how the 2 of us stayed together.

Bless her heart. I sure miss her and my mom! I just kept telling her that

'opposites attract'! Apparently it's true. At least in our case. But I gotta'

say, sometimes his half empty cup 'bout does me in. It's difficult sometimes, to

try to keep his spirits up. If our house were bigger, and finished, I'd find a

corner to cry in from time to time. But it's not big enough and it's certainly

not finished, so I'm stuck. Some days I just spend a little time in the van,

either just sitting in it or out taking a country drive. Our 7 y.o. grandson has

spent the entire summer with us, and many times, he'll ask to 'just go for a

drive'. Works for me! We've also had a swimming pool to give me a bit of

respite. LOVE that pool! All of these help me to regain & retain my half full

cup! :)

Anyway, I'm way OT here, wandering mind I guess; and my sink is full of dirty

dishes & the dirty laundry is calling my name somewhere off in the distance.

's napping now, so guess I'd best get a few chores done.

Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

w/heat index about 105-110 today so the pool will be my play place later. And

the grandson went home yesterday, so the pool is finally all mine! :)

Twila

> >

> > I am very suprised that he is getting sugar in to his blood stream from a

supposedly non digestable sugar. One big red flag that goes up for me is that it

may be something other than the lactulose, or it may be that the lactulose is

causing dumping syndrome. I sometimes get dumping when I take lactulose. This is

similar to what people who have had gastric bypass get when they erroneously eat

sugar, which they know they are not supposed to, and it causes premature

emptying of the stomach in to the douodeum, and food that is not really ready

for that part of the digestive tract ends up in there. The symptoms are flushed

face, feeling hot, extreme nausea, and thern the mother of all diahrea. My

daughter gets this because she cheats and eats things she shouldnt. Lactulose is

supposed be an undigestable for of sugar. You need to contact the doctor

immediatly. We always use words like " usually " because we learn the hard way

over and over that nothing is

> > etched in stone. If is extremely rare, and can digest lactulose, then

he might not be able to be on it. Especially because lactulose is supposed to be

adjusted to produce two to three loose stools a day, and elevated blood sugar is

a serious complication not to be ignored.

> > good luck with this. love, bobby

> >

> >

> >

> > ____________ _________ _________ __

> > From: tjingham <tjingham@ .>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Friday, July 31, 2009 8:44:46 PM

> > Subject: Lactulose (Enulose) & Spiking Blood Sugar

Levels

> >

> >

> > Hi all! Just wondering... . saw his liver specialist about a week ago.

Doc put him on 30ml lactulose (enulose generic I assume) twice a day. When he

takes it as directed, 30ml 2 x a day, his blood glucose levels shoot up

drastically. We just got those under control with 20 units of insulin daily. He

had really good bg readings.... 110 to 130 or so, most any time of day. But the

lactulose is wreaking havoc. He tried cutting the lactulose from 30ml to 15ml 2

x a day, but that doesn't seem to do much at all. So now we're thinking maybe

20ml 2 x a day? We're hoping it'll help with his cognitive abilities but if it's

going to continue to spike his glucose levels I'm not sure he can handle that.

His glucose readings are more than 100 points higher than what they usually are,

just within 10-20 minutes of taking the lactulose. Yes, his glucose levels do

come down, but he feels worse than ever while he's waiting for that to happen.

> >

> > It's understandable that it would affect his blood sugars because lactulose

is nothing more than a synthetic sugar in the first place. I just don't see that

it'll help because of the higher glucose levels that result.

> >

> > Any suggestions? Anyone else have this problem with lactulose.

> >

> > Thanks for any input you might have.

> >

> > Twila

> >

> >

> >

> >

> >

> >

> >

> >

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Posted
Posted

Hi,

I am new to this group and haven't posted yet. Reading all the posts helps

me to understand more about how LD is affecting our lives. My husband is

taking the lactulose but his ammonia levels have increased to the high

ninetys. He is also a pessimist, depressed (like myself) and won't go for

help, and we had to sell our home as well. It seems that LD just tears every

part of your life away from you. Since my husband won't go for helpand his

docs haven't been real supportive...........I thought maybe I could learn

more from you all. My husband has become confused, irrational and sometimes

enraged and violent over the last two years. It breaks my heart and I don't

know how to help him and keep myself and kids safe. You all seem so caring

and supportive, I will keep you in my prayers and any advice or info would

be greatly appreciated.

On Sun, Aug 9, 2009 at 10:24 AM, Phyllis Delgado wrote:

>

>

> I am sure we will have to seek help in the future, just don't want to do it

> just yet. We have too much to do...have to decide what to sell and try to

> get rid of years of accumulation of " stuff " one way or another. We will all

> survive the latest challenges in our lives, God willing

> Peace to all

> Phyllis

>

> ________________________________

> From: Lyncia <lmlangdon@... <lmlangdon%40yahoo.com>>

> To:

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> Sent: Saturday, August 8, 2009 1:08:13 PM

> Subject: Re: Re: Lactulose (Enulose) & Spiking

> Blood Sugar Levels

>

>

> My doctor has just recommended for me to go to a pysichiatrist. ..after

> being hospitalized this week. I am having anxiety attacks and can't seem to

> stop them. My son is back for a while so I really have to decide what or

> where to do. I wonder is most of us have this bad depression.. ....showing

> in different ways. You are such a good person.

>

> Thanks be to God for he creates our tomorrows Love, Lyncia

>

>

>

>

>

> From: Phyllis Delgado <pdelgado354@ yahoo.com>

> Subject: Re: Re: Lactulose (Enulose) & Spiking

> Blood Sugar Levels

> To: livercirrhosissuppo rtyahoogroups (DOT) com

>

> Date: Saturday, August 8, 2009, 2:29 PM

>

>

>

> hah-my husband too is a pessimist and I thank God, I try to stay positive

> to balance things. Not always easy, thats for sure. Some days I could

> clock him! He isn't depressed with his situation, just never really very

> grateful for much.

> Regardless of what I do, I almost always have to pry out a complement from

> him. I take care of virtually everything, and I have to ask for help, it is

> almost never offered. Sometimes I don't think he beleives he should be

> happy. Ummm---it is what it is.....

>

> But, he loves his dog and he is always playing with him and I hear the

> laughter, so its all good. He loves his family he just has a hard time

> expressing emotions.

> It is worst since his illness, so I try and not need so much.

> I know he can't help it, he keeps alot inside so as not to worry me. We

> may need to sell our home and I know that is weighting heavily on him.

> Phyllis

>

> ____________ _________ _________ __

> From: diane chandler <dianechandler@ att.net>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Saturday, August 8, 2009 10:50:39 AM

> Subject: Re: Re: Lactulose (Enulose) & Spiking

> Blood Sugar Levels

>

>

> Twila,

>

> I sure hope begins to have some relief with the new med. Perhaps he

> needs a higher dosage? Just one thing to consider.

>

> I so understand your need for respite, especially with the 'half empty'

> partner. Terry was much the same. He always said he was so glad he had the

> good sense to marry an optimist because he would live in depression if

> hadn't! He was a wonderful man, but he always saw the worst in every

> situation and never could see the positive side without a lot of

> encouragement from me. As you say, opposites attract and it worked for us

> for 33+ years, until the Lord called him home!

>

> Enjoy that pool now! Hot here in West TN as well, with the high humidity!

> UGH! I will be so happy to see October!!! :)

>

> Warm Hugs........ ...

>

> Diane

> http://auntdisexper imentallife. blogspot. com/

>

> ____________ _________ _________ __

> From: tjingham <tjinghamgmail (DOT) com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Saturday, August 8, 2009 1:14:25 PM

> Subject: Re: Lactulose (Enulose) & Spiking Blood

> Sugar Levels

>

>

> Bobby,

> I also checked the Lactulose info on the company website & several other

> sites. They all indicate that there 'could' be diabetic issues but that it

> was rare. Apparently not rare enough to stop them from putting the warning

> on the labels. Hmmm.

>

> 4th day now for on Xifaxan and so far no bad reactions/side effects,

> but it doesn't seem to be helping much either. He's got 6 days of samples

> left before we have to decide whether or not to pay for the rx. So we're

> still 'working on that one'.

>

> We're trying an OTC topical cream for his foot pain. Supposed to help

> relieve the nerve pain. We'll see. He's skeptical, but that's just him. He's

> always been a 'cup half empty' kinda' guy. Even when we first met 20+

> something years ago, he was always the pessimist. I'm just the opposite. My

> cup is always 'half full' and sometimes it's even overflowing! LOL

>

> His mother used to say she never understood how the 2 of us stayed

> together. Bless her heart. I sure miss her and my mom! I just kept telling

> her that 'opposites attract'! Apparently it's true. At least in our case.

> But I gotta' say, sometimes his half empty cup 'bout does me in. It's

> difficult sometimes, to try to keep his spirits up. If our house were

> bigger, and finished, I'd find a corner to cry in from time to time. But

> it's not big enough and it's certainly not finished, so I'm stuck. Some days

> I just spend a little time in the van, either just sitting in it or out

> taking a country drive. Our 7 y.o. grandson has spent the entire summer with

> us, and many times, he'll ask to 'just go for a drive'. Works for me! We've

> also had a swimming pool to give me a bit of respite. LOVE that pool! All of

> these help me to regain & retain my half full cup! :)

>

> Anyway, I'm way OT here, wandering mind I guess; and my sink is full of

> dirty dishes & the dirty laundry is calling my name somewhere off in the

> distance. 's napping now, so guess I'd best get a few chores done.

>

> Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

> w/heat index about 105-110 today so the pool will be my play place later.

> And the grandson went home yesterday, so the pool is finally all mine! :)

>

> Twila

>

>

> > >

> > > I am very suprised that he is getting sugar in to his blood stream from

> a supposedly non digestable sugar. One big red flag that goes up for me is

> that it may be something other than the lactulose, or it may be that the

> lactulose is causing dumping syndrome. I sometimes get dumping when I take

> lactulose. This is similar to what people who have had gastric bypass get

> when they erroneously eat sugar, which they know they are not supposed to,

> and it causes premature emptying of the stomach in to the douodeum, and food

> that is not really ready for that part of the digestive tract ends up in

> there. The symptoms are flushed face, feeling hot, extreme nausea, and thern

> the mother of all diahrea. My daughter gets this because she cheats and eats

> things she shouldnt. Lactulose is supposed be an undigestable for of sugar.

> You need to contact the doctor immediatly. We always use words like

> " usually " because we learn the hard way over and over that nothing is

> > > etched in stone. If is extremely rare, and can digest lactulose,

> then he might not be able to be on it. Especially because lactulose is

> supposed to be adjusted to produce two to three loose stools a day, and

> elevated blood sugar is a serious complication not to be ignored.

> > > good luck with this. love, bobby

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: tjingham <tjingham@ .>

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Sent: Friday, July 31, 2009 8:44:46 PM

> > > Subject: Lactulose (Enulose) & Spiking Blood

> Sugar Levels

> > >

> > >

> > > Hi all! Just wondering... . saw his liver specialist about a week

> ago. Doc put him on 30ml lactulose (enulose generic I assume) twice a day.

> When he takes it as directed, 30ml 2 x a day, his blood glucose levels shoot

> up drastically. We just got those under control with 20 units of insulin

> daily. He had really good bg readings.... 110 to 130 or so, most any time of

> day. But the lactulose is wreaking havoc. He tried cutting the lactulose

> from 30ml to 15ml 2 x a day, but that doesn't seem to do much at all. So now

> we're thinking maybe 20ml 2 x a day? We're hoping it'll help with his

> cognitive abilities but if it's going to continue to spike his glucose

> levels I'm not sure he can handle that. His glucose readings are more than

> 100 points higher than what they usually are, just within 10-20 minutes of

> taking the lactulose. Yes, his glucose levels do come down, but he feels

> worse than ever while he's waiting for that to happen.

> > >

> > > It's understandable that it would affect his blood sugars because

> lactulose is nothing more than a synthetic sugar in the first place. I just

> don't see that it'll help because of the higher glucose levels that

> result.

> > >

> > > Any suggestions? Anyone else have this problem with lactulose.

> > >

> > > Thanks for any input you might have.

> > >

> > > Twila

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

welcome linda,i am barby ,the nut of the bunch teehee.you have come to the right

place for knowledge and support.my husband has esld as well,i know it can be

scary,and the fear of the unknown is the worst. feel free to ask whatever you

need too,one of us usually has the answer you seek. we arent drs. we are just

normal people,riding in the same boat,some days we just drift ,others we bail

water faster than we can think,but we ride the waves together,welcome to the

family,sorry its under these curcumstances,god bless you are in my prayers,much

love barby

> > > >

> > > > I am very suprised that he is getting sugar in to his blood stream from

> > a supposedly non digestable sugar. One big red flag that goes up for me is

> > that it may be something other than the lactulose, or it may be that the

> > lactulose is causing dumping syndrome. I sometimes get dumping when I take

> > lactulose. This is similar to what people who have had gastric bypass get

> > when they erroneously eat sugar, which they know they are not supposed to,

> > and it causes premature emptying of the stomach in to the douodeum, and food

> > that is not really ready for that part of the digestive tract ends up in

> > there. The symptoms are flushed face, feeling hot, extreme nausea, and thern

> > the mother of all diahrea. My daughter gets this because she cheats and eats

> > things she shouldnt. Lactulose is supposed be an undigestable for of sugar.

> > You need to contact the doctor immediatly. We always use words like

> > " usually " because we learn the hard way over and over that nothing is

> > > > etched in stone. If is extremely rare, and can digest lactulose,

> > then he might not be able to be on it. Especially because lactulose is

> > supposed to be adjusted to produce two to three loose stools a day, and

> > elevated blood sugar is a serious complication not to be ignored.

> > > > good luck with this. love, bobby

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: tjingham <tjingham@ .>

> > > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > > Sent: Friday, July 31, 2009 8:44:46 PM

> > > > Subject: Lactulose (Enulose) & Spiking Blood

> > Sugar Levels

> > > >

> > > >

> > > > Hi all! Just wondering... . saw his liver specialist about a week

> > ago. Doc put him on 30ml lactulose (enulose generic I assume) twice a day.

> > When he takes it as directed, 30ml 2 x a day, his blood glucose levels shoot

> > up drastically. We just got those under control with 20 units of insulin

> > daily. He had really good bg readings.... 110 to 130 or so, most any time of

> > day. But the lactulose is wreaking havoc. He tried cutting the lactulose

> > from 30ml to 15ml 2 x a day, but that doesn't seem to do much at all. So now

> > we're thinking maybe 20ml 2 x a day? We're hoping it'll help with his

> > cognitive abilities but if it's going to continue to spike his glucose

> > levels I'm not sure he can handle that. His glucose readings are more than

> > 100 points higher than what they usually are, just within 10-20 minutes of

> > taking the lactulose. Yes, his glucose levels do come down, but he feels

> > worse than ever while he's waiting for that to happen.

> > > >

> > > > It's understandable that it would affect his blood sugars because

> > lactulose is nothing more than a synthetic sugar in the first place. I just

> > don't see that it'll help because of the higher glucose levels that

> > result.

> > > >

> > > > Any suggestions? Anyone else have this problem with lactulose.

> > > >

> > > > Thanks for any input you might have.

> > > >

> > > > Twila

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Thanks Barby. I am so grateful to findthis group. My husband hadhis

bloodwork done the other day and they asked me if he had been confused and

all that. I said isn't there anything else we could be doing for him, and

she said no just have him take the lactulose. He's already been onthat for

three monthsand ammonialevel went from 68 to 96 . She said that there are 2

other meds he could try but they cause hearing loss and renalfailure. But

I would think they should do something. He goes to the center for LD

inPittsburgh and they are just so busy that they don't monitor him at all.

And he's not one to ask for help or even share symptoms w/docs.

He has no energy and falls asleep anywhere. He says he has anal bleeding and

hisstomache is hard. But thishas been going on for awhile. He just wonders

from mine, mothers, and kids houses like he's lost and gets enraged at

anyone who trys to help..

On Sun, Aug 9, 2009 at 11:44 AM, pinkmeetsblue wrote:

>

>

> welcome linda,i am barby ,the nut of the bunch teehee.you have come to the

> right place for knowledge and support.my husband has esld as well,i know it

> can be scary,and the fear of the unknown is the worst. feel free to ask

> whatever you need too,one of us usually has the answer you seek. we arent

> drs. we are just normal people,riding in the same boat,some days we just

> drift ,others we bail water faster than we can think,but we ride the waves

> together,welcome to the family,sorry its under these curcumstances,god bless

> you are in my prayers,much love barby

> > > > >

> > > > > I am very suprised that he is getting sugar in to his blood stream

> from

> > > a supposedly non digestable sugar. One big red flag that goes up for me

> is

> > > that it may be something other than the lactulose, or it may be that

> the

> > > lactulose is causing dumping syndrome. I sometimes get dumping when I

> take

> > > lactulose. This is similar to what people who have had gastric bypass

> get

> > > when they erroneously eat sugar, which they know they are not supposed

> to,

> > > and it causes premature emptying of the stomach in to the douodeum, and

> food

> > > that is not really ready for that part of the digestive tract ends up

> in

> > > there. The symptoms are flushed face, feeling hot, extreme nausea, and

> thern

> > > the mother of all diahrea. My daughter gets this because she cheats and

> eats

> > > things she shouldnt. Lactulose is supposed be an undigestable for of

> sugar.

> > > You need to contact the doctor immediatly. We always use words like

> > > " usually " because we learn the hard way over and over that nothing is

> > > > > etched in stone. If is extremely rare, and can digest

> lactulose,

> > > then he might not be able to be on it. Especially because lactulose is

> > > supposed to be adjusted to produce two to three loose stools a day, and

> > > elevated blood sugar is a serious complication not to be ignored.

> > > > > good luck with this. love, bobby

> > > > >

> > > > >

> > > > >

> > > > > ____________ _________ _________ __

> > > > > From: tjingham <tjingham@ .>

> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > > > Sent: Friday, July 31, 2009 8:44:46 PM

> > > > > Subject: Lactulose (Enulose) & Spiking

> Blood

> > > Sugar Levels

> > > > >

> > > > >

> > > > > Hi all! Just wondering... . saw his liver specialist about a

> week

> > > ago. Doc put him on 30ml lactulose (enulose generic I assume) twice a

> day.

> > > When he takes it as directed, 30ml 2 x a day, his blood glucose levels

> shoot

> > > up drastically. We just got those under control with 20 units of

> insulin

> > > daily. He had really good bg readings.... 110 to 130 or so, most any

> time of

> > > day. But the lactulose is wreaking havoc. He tried cutting the

> lactulose

> > > from 30ml to 15ml 2 x a day, but that doesn't seem to do much at all.

> So now

> > > we're thinking maybe 20ml 2 x a day? We're hoping it'll help with his

> > > cognitive abilities but if it's going to continue to spike his glucose

> > > levels I'm not sure he can handle that. His glucose readings are more

> than

> > > 100 points higher than what they usually are, just within 10-20 minutes

> of

> > > taking the lactulose. Yes, his glucose levels do come down, but he

> feels

> > > worse than ever while he's waiting for that to happen.

> > > > >

> > > > > It's understandable that it would affect his blood sugars because

> > > lactulose is nothing more than a synthetic sugar in the first place. I

> just

> > > don't see that it'll help because of the higher glucose levels

> that

> > > result.

> > > > >

> > > > > Any suggestions? Anyone else have this problem with lactulose.

> > > > >

> > > > > Thanks for any input you might have.

> > > > >

> > > > > Twila

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Posted
Posted

HI ,  I am so sorry for all you are going through.  I have witnessed what

you are describing.  ESLD changes otherwise wonderful people into strange

monsters we sometimes barely recognize, much less understand.

The first thing I would say is, get another doctor.  Your husband's doctor is

not supplying you or your husband the care and support you need.  Dealing with

this disease and it's complications is hard enough when you have a good doctor. 

It is darn near impossible if you have a bad doctor.

The fact that your husband's ammonia levels are ranging so high consistently is

of concern to me.  His doctor should be doing something to help lower that

level.  Perhaps he needs to increase his lactulose or perhaps something else. 

With the symptoms he is continually exhibiting, I just believe more needs to be

done.

My husband wasn't a violent man, but he did have episodic violent tendencies

when the ammonia levels were creeping up.  He never tried to hit me or attack me

physically, he was much too sick for that, but he did get verbally abusive at

times.  When it first started to happen, my heart was too broken and I was too

ashamed to say anything to his doctor or anyone else. I had never dealt with

anything like that before.  Then, it happened while we were in the hospital ER

and the nurse witnessed it.  She called me aside and asked me how often that

happened.  In tears, I told her about the few times it had happened.  She

comforted me and explained that it was the disease and that the doctor could do

something to help him.  I felt like a fool for not having already said something

to his doctor!  It was at that time Terry was started on the enulose and his

paxil dosage was increased steadily until he was more like the Terry I knew and

loved.

He never remembered the incidents, of that I am sure.  He was a gentle man who

always was eaten up with guilt if he did anything to hurt my feelings and would

apologize over and over.  He never once apologized for these episodes.  That is

when I knew he could not help what was happening and he could not remember the

ugliness once his ammonia levels returned to normal.

I am always here if you need support .  Please know you, your husband and

your family are in prayers.  God bless you.

 

Warm Hugs...........

 

Diane

http://auntdisexperimentallife.blogspot.com/

________________________________

To: livercirrhosissupport

Sent: Sunday, August 9, 2009 10:37:02 AM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

Hi,

I am new to this group and haven't posted yet. Reading all the posts helps

me to understand more about how LD is affecting our lives. My husband is

taking the lactulose but his ammonia levels have increased to the high

ninetys. He is also a pessimist, depressed (like myself) and won't go for

help, and we had to sell our home as well. It seems that LD just tears every

part of your life away from you. Since my husband won't go for helpand his

docs haven't been real supportive.. ......... I thought maybe I could learn

more from you all. My husband has become confused, irrational and sometimes

enraged and violent over the last two years. It breaks my heart and I don't

know how to help him and keep myself and kids safe. You all seem so caring

and supportive, I will keep you in my prayers and any advice or info would

be greatly appreciated.

On Sun, Aug 9, 2009 at 10:24 AM, Phyllis Delgado <pdelgado354@ yahoo.com>wrote:

>

>

> I am sure we will have to seek help in the future, just don't want to do it

> just yet. We have too much to do...have to decide what to sell and try to

> get rid of years of accumulation of " stuff " one way or another. We will all

> survive the latest challenges in our lives, God willing

> Peace to all

> Phyllis

>

> ____________ _________ _________ __

> From: Lyncia <lmlangdonyahoo (DOT) com <lmlangdon%40yahoo. com>>

> To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp

ort%40yahoogroup s.com>

> Sent: Saturday, August 8, 2009 1:08:13 PM

> Subject: Re: Re: Lactulose (Enulose) & Spiking

> Blood Sugar Levels

>

>

> My doctor has just recommended for me to go to a pysichiatrist. ..after

> being hospitalized this week. I am having anxiety attacks and can't seem to

> stop them. My son is back for a while so I really have to decide what or

> where to do. I wonder is most of us have this bad depression.. ....showing

> in different ways. You are such a good person.

>

> Thanks be to God for he creates our tomorrows Love, Lyncia

>

>

>

>

>

> From: Phyllis Delgado <pdelgado354@ yahoo.com>

> Subject: Re: Re: Lactulose (Enulose) & Spiking

> Blood Sugar Levels

> To: livercirrhosissuppo rtyahoogroups (DOT) com

>

> Date: Saturday, August 8, 2009, 2:29 PM

>

>

>

> hah-my husband too is a pessimist and I thank God, I try to stay positive

> to balance things. Not always easy, thats for sure. Some days I could

> clock him! He isn't depressed with his situation, just never really very

> grateful for much.

> Regardless of what I do, I almost always have to pry out a complement from

> him. I take care of virtually everything, and I have to ask for help, it is

> almost never offered. Sometimes I don't think he beleives he should be

> happy. Ummm---it is what it is.....

>

> But, he loves his dog and he is always playing with him and I hear the

> laughter, so its all good. He loves his family he just has a hard time

> expressing emotions.

> It is worst since his illness, so I try and not need so much.

> I know he can't help it, he keeps alot inside so as not to worry me. We

> may need to sell our home and I know that is weighting heavily on him.

> Phyllis

>

> ____________ _________ _________ __

> From: diane chandler <dianechandler@ att.net>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Saturday, August 8, 2009 10:50:39 AM

> Subject: Re: Re: Lactulose (Enulose) & Spiking

> Blood Sugar Levels

>

>

> Twila,

>

> I sure hope begins to have some relief with the new med. Perhaps he

> needs a higher dosage? Just one thing to consider.

>

> I so understand your need for respite, especially with the 'half empty'

> partner. Terry was much the same. He always said he was so glad he had the

> good sense to marry an optimist because he would live in depression if

> hadn't! He was a wonderful man, but he always saw the worst in every

> situation and never could see the positive side without a lot of

> encouragement from me. As you say, opposites attract and it worked for us

> for 33+ years, until the Lord called him home!

>

> Enjoy that pool now! Hot here in West TN as well, with the high humidity!

> UGH! I will be so happy to see October!!! :)

>

> Warm Hugs........ ...

>

> Diane

> http://auntdisexper imentallife. blogspot. com/

>

> ____________ _________ _________ __

> From: tjingham <tjinghamgmail (DOT) com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Saturday, August 8, 2009 1:14:25 PM

> Subject: Re: Lactulose (Enulose) & Spiking Blood

> Sugar Levels

>

>

> Bobby,

> I also checked the Lactulose info on the company website & several other

> sites. They all indicate that there 'could' be diabetic issues but that it

> was rare. Apparently not rare enough to stop them from putting the warning

> on the labels. Hmmm.

>

> 4th day now for on Xifaxan and so far no bad reactions/side effects,

> but it doesn't seem to be helping much either. He's got 6 days of samples

> left before we have to decide whether or not to pay for the rx. So we're

> still 'working on that one'.

>

> We're trying an OTC topical cream for his foot pain. Supposed to help

> relieve the nerve pain. We'll see. He's skeptical, but that's just him. He's

> always been a 'cup half empty' kinda' guy. Even when we first met 20+

> something years ago, he was always the pessimist. I'm just the opposite. My

> cup is always 'half full' and sometimes it's even overflowing! LOL

>

> His mother used to say she never understood how the 2 of us stayed

> together. Bless her heart. I sure miss her and my mom! I just kept telling

> her that 'opposites attract'! Apparently it's true. At least in our case.

> But I gotta' say, sometimes his half empty cup 'bout does me in. It's

> difficult sometimes, to try to keep his spirits up. If our house were

> bigger, and finished, I'd find a corner to cry in from time to time. But

> it's not big enough and it's certainly not finished, so I'm stuck. Some days

> I just spend a little time in the van, either just sitting in it or out

> taking a country drive. Our 7 y.o. grandson has spent the entire summer with

> us, and many times, he'll ask to 'just go for a drive'. Works for me! We've

> also had a swimming pool to give me a bit of respite. LOVE that pool! All of

> these help me to regain & retain my half full cup! :)

>

> Anyway, I'm way OT here, wandering mind I guess; and my sink is full of

> dirty dishes & the dirty laundry is calling my name somewhere off in the

> distance. 's napping now, so guess I'd best get a few chores done.

>

> Hope everyone has a wonderful weekend! See you in the pool later! Upper 90s

> w/heat index about 105-110 today so the pool will be my play place later.

> And the grandson went home yesterday, so the pool is finally all mine! :)

>

> Twila

>

>

> > >

> > > I am very suprised that he is getting sugar in to his blood stream from

> a supposedly non digestable sugar. One big red flag that goes up for me is

> that it may be something other than the lactulose, or it may be that the

> lactulose is causing dumping syndrome. I sometimes get dumping when I take

> lactulose. This is similar to what people who have had gastric bypass get

> when they erroneously eat sugar, which they know they are not supposed to,

> and it causes premature emptying of the stomach in to the douodeum, and food

> that is not really ready for that part of the digestive tract ends up in

> there. The symptoms are flushed face, feeling hot, extreme nausea, and thern

> the mother of all diahrea. My daughter gets this because she cheats and eats

> things she shouldnt. Lactulose is supposed be an undigestable for of sugar.

> You need to contact the doctor immediatly. We always use words like

> " usually " because we learn the hard way over and over that nothing is

> > > etched in stone. If is extremely rare, and can digest lactulose,

> then he might not be able to be on it. Especially because lactulose is

> supposed to be adjusted to produce two to three loose stools a day, and

> elevated blood sugar is a serious complication not to be ignored.

> > > good luck with this. love, bobby

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: tjingham <tjingham@ .>

> > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > Sent: Friday, July 31, 2009 8:44:46 PM

> > > Subject: Lactulose (Enulose) & Spiking Blood

> Sugar Levels

> > >

> > >

> > > Hi all! Just wondering... . saw his liver specialist about a week

> ago. Doc put him on 30ml lactulose (enulose generic I assume) twice a day.

> When he takes it as directed, 30ml 2 x a day, his blood glucose levels shoot

> up drastically. We just got those under control with 20 units of insulin

> daily. He had really good bg readings.... 110 to 130 or so, most any time of

> day. But the lactulose is wreaking havoc. He tried cutting the lactulose

> from 30ml to 15ml 2 x a day, but that doesn't seem to do much at all. So now

> we're thinking maybe 20ml 2 x a day? We're hoping it'll help with his

> cognitive abilities but if it's going to continue to spike his glucose

> levels I'm not sure he can handle that. His glucose readings are more than

> 100 points higher than what they usually are, just within 10-20 minutes of

> taking the lactulose. Yes, his glucose levels do come down, but he feels

> worse than ever while he's waiting for that to happen.

> > >

> > > It's understandable that it would affect his blood sugars because

> lactulose is nothing more than a synthetic sugar in the first place. I just

> don't see that it'll help because of the higher glucose levels that

> result.

> > >

> > > Any suggestions? Anyone else have this problem with lactulose.

> > >

> > > Thanks for any input you might have.

> > >

> > > Twila

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

has he been on a protein restricted diet? That is the first thing

they did we me to try to hold off the encephalopathy. Worked wonders. I

haven't had to take the lactulose yet. He is probably beyond that point,

but it should help. Jan H

On Sun, Aug 9, 2009 at 8:56 AM, Paustenbaugh

wrote:

> Thanks Barby. I am so grateful to findthis group. My husband hadhis

> bloodwork done the other day and they asked me if he had been confused and

> all that. I said isn't there anything else we could be doing for him, and

> she said no just have him take the lactulose. He's already been onthat for

> three monthsand ammonialevel went from 68 to 96 . She said that there are 2

> other meds he could try but they cause hearing loss and renalfailure. But

> I would think they should do something. He goes to the center for LD

> inPittsburgh and they are just so busy that they don't monitor him at all.

> And he's not one to ask for help or even share symptoms w/docs.

>

> He has no energy and falls asleep anywhere. He says he has anal bleeding

> and

> hisstomache is hard. But thishas been going on for awhile. He just wonders

> from mine, mothers, and kids houses like he's lost and gets enraged at

> anyone who trys to help..

> On Sun, Aug 9, 2009 at 11:44 AM, pinkmeetsblue <pinkmeetsblue@...

> >wrote:

>

> >

> >

> > welcome linda,i am barby ,the nut of the bunch teehee.you have come to

> the

> > right place for knowledge and support.my husband has esld as well,i know

> it

> > can be scary,and the fear of the unknown is the worst. feel free to ask

> > whatever you need too,one of us usually has the answer you seek. we arent

> > drs. we are just normal people,riding in the same boat,some days we just

> > drift ,others we bail water faster than we can think,but we ride the

> waves

> > together,welcome to the family,sorry its under these curcumstances,god

> bless

> > you are in my prayers,much love barby

> > > > > >

> > > > > > I am very suprised that he is getting sugar in to his blood

> stream

> > from

> > > > a supposedly non digestable sugar. One big red flag that goes up for

> me

> > is

> > > > that it may be something other than the lactulose, or it may be that

> > the

> > > > lactulose is causing dumping syndrome. I sometimes get dumping when I

> > take

> > > > lactulose. This is similar to what people who have had gastric bypass

> > get

> > > > when they erroneously eat sugar, which they know they are not

> supposed

> > to,

> > > > and it causes premature emptying of the stomach in to the douodeum,

> and

> > food

> > > > that is not really ready for that part of the digestive tract ends up

> > in

> > > > there. The symptoms are flushed face, feeling hot, extreme nausea,

> and

> > thern

> > > > the mother of all diahrea. My daughter gets this because she cheats

> and

> > eats

> > > > things she shouldnt. Lactulose is supposed be an undigestable for of

> > sugar.

> > > > You need to contact the doctor immediatly. We always use words like

> > > > " usually " because we learn the hard way over and over that nothing is

> > > > > > etched in stone. If is extremely rare, and can digest

> > lactulose,

> > > > then he might not be able to be on it. Especially because lactulose

> is

> > > > supposed to be adjusted to produce two to three loose stools a day,

> and

> > > > elevated blood sugar is a serious complication not to be ignored.

> > > > > > good luck with this. love, bobby

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: tjingham <tjingham@ .>

> > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > > > > Sent: Friday, July 31, 2009 8:44:46 PM

> > > > > > Subject: Lactulose (Enulose) & Spiking

> > Blood

> > > > Sugar Levels

> > > > > >

> > > > > >

> > > > > > Hi all! Just wondering... . saw his liver specialist about a

> > week

> > > > ago. Doc put him on 30ml lactulose (enulose generic I assume) twice a

> > day.

> > > > When he takes it as directed, 30ml 2 x a day, his blood glucose

> levels

> > shoot

> > > > up drastically. We just got those under control with 20 units of

> > insulin

> > > > daily. He had really good bg readings.... 110 to 130 or so, most any

> > time of

> > > > day. But the lactulose is wreaking havoc. He tried cutting the

> > lactulose

> > > > from 30ml to 15ml 2 x a day, but that doesn't seem to do much at all.

> > So now

> > > > we're thinking maybe 20ml 2 x a day? We're hoping it'll help with his

> > > > cognitive abilities but if it's going to continue to spike his

> glucose

> > > > levels I'm not sure he can handle that. His glucose readings are more

> > than

> > > > 100 points higher than what they usually are, just within 10-20

> minutes

> > of

> > > > taking the lactulose. Yes, his glucose levels do come down, but he

> > feels

> > > > worse than ever while he's waiting for that to happen.

> > > > > >

> > > > > > It's understandable that it would affect his blood sugars because

> > > > lactulose is nothing more than a synthetic sugar in the first place.

> I

> > just

> > > > don't see that it'll help because of the higher glucose levels

> > that

> > > > result.

> > > > > >

> > > > > > Any suggestions? Anyone else have this problem with lactulose.

> > > > > >

> > > > > > Thanks for any input you might have.

> > > > > >

> > > > > > Twila

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Posted
Posted

welcome , my name is Phyllis and I am caregiver.

My husband has ESLD and I have learned from this group that if he is bleeding,

he should go to the er.  They have done more for us there than anywhere else. 

As a result the PCP now has us with a GI and Hemotologist as my husband was

losing blood and has iron overload.  His amonia was high last month and he is

now on lactulose as well.  He was going to the hosp for blood transfusions

almost monthly at the begining of the year.  No one was ordering transfusions,

we got that thru the er.  After the third er visit, they were forced to be

sensitive to his condition. They started to check his blood levels monthly and

then started scheduling transfusions.  He now has infusions to remove excess

iron and he hasn't had a blood transfusion since April.  Thank God for this

group.  You will learn alot and then you will be able to help your spouse get

the care he needs and deserves.  I have found that no one will offer it, you

pretty much have to be aware

of what is available and then firmly press your doctors.  I beleive my PCP was

just going to sit there look at us and say there was nothing they could do. 

Everytime I suggested this medication or this treatment, he would ask where I

heard of this.  I never told him about the group, I just told him I learned this

in ER or merck manual/wickipedia.  Anyway, what I am trying to say is learn as

much as you can, as fast as you can, if your memory isn't any good, due to

stress, print out the advise given here, so you will be better prepared when you

see the doctors involved with your husbands care.  Good Luck and we are all hear

to listen and help. 

I wish you Peace 

________________________________

To: livercirrhosissupport

Sent: Sunday, August 9, 2009 7:56:14 AM

Subject: Re: Re: Lactulose (Enulose) & Spiking Blood

Sugar Levels

 

Thanks Barby. I am so grateful to findthis group. My husband hadhis

bloodwork done the other day and they asked me if he had been confused and

all that. I said isn't there anything else we could be doing for him, and

she said no just have him take the lactulose. He's already been onthat for

three monthsand ammonialevel went from 68 to 96 . She said that there are 2

other meds he could try but they cause hearing loss and renalfailure. But

I would think they should do something. He goes to the center for LD

inPittsburgh and they are just so busy that they don't monitor him at all.

And he's not one to ask for help or even share symptoms w/docs.

He has no energy and falls asleep anywhere. He says he has anal bleeding and

hisstomache is hard. But thishas been going on for awhile. He just wonders

from mine, mothers, and kids houses like he's lost and gets enraged at

anyone who trys to help..

On Sun, Aug 9, 2009 at 11:44 AM, pinkmeetsblue <pinkmeetsblue@ yahoo.com>wrote:

>

>

> welcome linda,i am barby ,the nut of the bunch teehee.you have come to the

> right place for knowledge and support.my husband has esld as well,i know it

> can be scary,and the fear of the unknown is the worst. feel free to ask

> whatever you need too,one of us usually has the answer you seek. we arent

> drs. we are just normal people,riding in the same boat,some days we just

> drift ,others we bail water faster than we can think,but we ride the waves

> together,welcome to the family,sorry its under these curcumstances, god bless

> you are in my prayers,much love barby

> > > > >

> > > > > I am very suprised that he is getting sugar in to his blood stream

> from

> > > a supposedly non digestable sugar. One big red flag that goes up for me

> is

> > > that it may be something other than the lactulose, or it may be that

> the

> > > lactulose is causing dumping syndrome. I sometimes get dumping when I

> take

> > > lactulose. This is similar to what people who have had gastric bypass

> get

> > > when they erroneously eat sugar, which they know they are not supposed

> to,

> > > and it causes premature emptying of the stomach in to the douodeum, and

> food

> > > that is not really ready for that part of the digestive tract ends up

> in

> > > there. The symptoms are flushed face, feeling hot, extreme nausea, and

> thern

> > > the mother of all diahrea. My daughter gets this because she cheats and

> eats

> > > things she shouldnt. Lactulose is supposed be an undigestable for of

> sugar.

> > > You need to contact the doctor immediatly. We always use words like

> > > " usually " because we learn the hard way over and over that nothing is

> > > > > etched in stone. If is extremely rare, and can digest

> lactulose,

> > > then he might not be able to be on it. Especially because lactulose is

> > > supposed to be adjusted to produce two to three loose stools a day, and

> > > elevated blood sugar is a serious complication not to be ignored.

> > > > > good luck with this. love, bobby

> > > > >

> > > > >

> > > > >

> > > > > ____________ _________ _________ __

> > > > > From: tjingham <tjingham@ .>

> > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > > > Sent: Friday, July 31, 2009 8:44:46 PM

> > > > > Subject: Lactulose (Enulose) & Spiking

> Blood

> > > Sugar Levels

> > > > >

> > > > >

> > > > > Hi all! Just wondering... . saw his liver specialist about a

> week

> > > ago. Doc put him on 30ml lactulose (enulose generic I assume) twice a

> day.

> > > When he takes it as directed, 30ml 2 x a day, his blood glucose levels

> shoot

> > > up drastically. We just got those under control with 20 units of

> insulin

> > > daily. He had really good bg readings.... 110 to 130 or so, most any

> time of

> > > day. But the lactulose is wreaking havoc. He tried cutting the

> lactulose

> > > from 30ml to 15ml 2 x a day, but that doesn't seem to do much at all.

> So now

> > > we're thinking maybe 20ml 2 x a day? We're hoping it'll help with his

> > > cognitive abilities but if it's going to continue to spike his glucose

> > > levels I'm not sure he can handle that. His glucose readings are more

> than

> > > 100 points higher than what they usually are, just within 10-20 minutes

> of

> > > taking the lactulose. Yes, his glucose levels do come down, but he

> feels

> > > worse than ever while he's waiting for that to happen.

> > > > >

> > > > > It's understandable that it would affect his blood sugars because

> > > lactulose is nothing more than a synthetic sugar in the first place. I

> just

> > > don't see that it'll help because of the higher glucose levels

> that

> > > result.

> > > > >

> > > > > Any suggestions? Anyone else have this problem with lactulose.

> > > > >

> > > > > Thanks for any input you might have.

> > > > >

> > > > > Twila

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Posted
Posted

Wow, you guys are great. Diane thanks for sharing your experiences with me.

I'm sure my H doesn't remember either, which is so scary. He's already

called me up and said have no contact with my family or he'd kill me and a

couple of hours later call me up like nothing happened and ask me to take

his Mom shopping. It is embarassing and hard to share the things he says

w/others.He is a mess. Jan, they put him on a protein restricted diet I want

to say like three years ago. He didn't follow through w/it, and they never

follow up w/anything.As far as I know, The Center for Liver Disease in Pgh

are the only liver specialists in the area but I will check into it. I can't

even imagine having a good doctor to help me deal w/this. Thanks girls.

>

>

> has he been on a protein restricted diet? That is the first thing

> they did we me to try to hold off the encephalopathy. Worked wonders. I

> haven't had to take the lactulose yet. He is probably beyond that point,

> but it should help. Jan H

>

> On Sun, Aug 9, 2009 at 8:56 AM, Paustenbaugh

> <lpaustenbaugh@... <lpaustenbaugh%40gmail.com>>wrote:

>

>

> > Thanks Barby. I am so grateful to findthis group. My husband hadhis

> > bloodwork done the other day and they asked me if he had been confused

> and

> > all that. I said isn't there anything else we could be doing for him, and

> > she said no just have him take the lactulose. He's already been onthat

> for

> > three monthsand ammonialevel went from 68 to 96 . She said that there are

> 2

> > other meds he could try but they cause hearing loss and renalfailure. But

> > I would think they should do something. He goes to the center for LD

> > inPittsburgh and they are just so busy that they don't monitor him at

> all.

> > And he's not one to ask for help or even share symptoms w/docs.

> >

> > He has no energy and falls asleep anywhere. He says he has anal bleeding

> > and

> > hisstomache is hard. But thishas been going on for awhile. He just

> wonders

> > from mine, mothers, and kids houses like he's lost and gets enraged at

> > anyone who trys to help..

> > On Sun, Aug 9, 2009 at 11:44 AM, pinkmeetsblue

<pinkmeetsblue@...<pinkmeetsblue%40yahoo.com>

> > >wrote:

> >

> > >

> > >

> > > welcome linda,i am barby ,the nut of the bunch teehee.you have come to

> > the

> > > right place for knowledge and support.my husband has esld as well,i

> know

> > it

> > > can be scary,and the fear of the unknown is the worst. feel free to ask

> > > whatever you need too,one of us usually has the answer you seek. we

> arent

> > > drs. we are just normal people,riding in the same boat,some days we

> just

> > > drift ,others we bail water faster than we can think,but we ride the

> > waves

> > > together,welcome to the family,sorry its under these curcumstances,god

> > bless

> > > you are in my prayers,much love barby

> > > > > > >

> > > > > > > I am very suprised that he is getting sugar in to his blood

> > stream

> > > from

> > > > > a supposedly non digestable sugar. One big red flag that goes up

> for

> > me

> > > is

> > > > > that it may be something other than the lactulose, or it may be

> that

> > > the

> > > > > lactulose is causing dumping syndrome. I sometimes get dumping when

> I

> > > take

> > > > > lactulose. This is similar to what people who have had gastric

> bypass

> > > get

> > > > > when they erroneously eat sugar, which they know they are not

> > supposed

> > > to,

> > > > > and it causes premature emptying of the stomach in to the douodeum,

> > and

> > > food

> > > > > that is not really ready for that part of the digestive tract ends

> up

> > > in

> > > > > there. The symptoms are flushed face, feeling hot, extreme nausea,

> > and

> > > thern

> > > > > the mother of all diahrea. My daughter gets this because she cheats

> > and

> > > eats

> > > > > things she shouldnt. Lactulose is supposed be an undigestable for

> of

> > > sugar.

> > > > > You need to contact the doctor immediatly. We always use words like

> > > > > " usually " because we learn the hard way over and over that nothing

> is

> > > > > > > etched in stone. If is extremely rare, and can digest

> > > lactulose,

> > > > > then he might not be able to be on it. Especially because lactulose

> > is

> > > > > supposed to be adjusted to produce two to three loose stools a day,

> > and

> > > > > elevated blood sugar is a serious complication not to be ignored.

> > > > > > > good luck with this. love, bobby

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > ____________ _________ _________ __

> > > > > > > From: tjingham <tjingham@ .>

> > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > > > > > > Sent: Friday, July 31, 2009 8:44:46 PM

> > > > > > > Subject: Lactulose (Enulose) &

> Spiking

> > > Blood

> > > > > Sugar Levels

> > > > > > >

> > > > > > >

> > > > > > > Hi all! Just wondering... . saw his liver specialist about

> a

> > > week

> > > > > ago. Doc put him on 30ml lactulose (enulose generic I assume) twice

> a

> > > day.

> > > > > When he takes it as directed, 30ml 2 x a day, his blood glucose

> > levels

> > > shoot

> > > > > up drastically. We just got those under control with 20 units of

> > > insulin

> > > > > daily. He had really good bg readings.... 110 to 130 or so, most

> any

> > > time of

> > > > > day. But the lactulose is wreaking havoc. He tried cutting the

> > > lactulose

> > > > > from 30ml to 15ml 2 x a day, but that doesn't seem to do much at

> all.

> > > So now

> > > > > we're thinking maybe 20ml 2 x a day? We're hoping it'll help with

> his

> > > > > cognitive abilities but if it's going to continue to spike his

> > glucose

> > > > > levels I'm not sure he can handle that. His glucose readings are

> more

> > > than

> > > > > 100 points higher than what they usually are, just within 10-20

> > minutes

> > > of

> > > > > taking the lactulose. Yes, his glucose levels do come down, but he

> > > feels

> > > > > worse than ever while he's waiting for that to happen.

> > > > > > >

> > > > > > > It's understandable that it would affect his blood sugars

> because

> > > > > lactulose is nothing more than a synthetic sugar in the first

> place.

> > I

> > > just

> > > > > don't see that it'll help because of the higher glucose

> levels

> > > that

> > > > > result.

> > > > > > >

> > > > > > > Any suggestions? Anyone else have this problem with lactulose.

> > > > > > >

> > > > > > > Thanks for any input you might have.

> > > > > > >

> > > > > > > Twila

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

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