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Re: Great news !!!!

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Bruce & ,

I'd like to add my thanks to that of Casey's. I wish I could find more time

to think about raising more money for the foundation. Someday when things

calm down I guess!!

Mom to Kennedy 14 mos old CHARGEr, 9, 8, and wife to Graeme

New Brunswick, Canada

Visit the " Weir's homepage " at:

http://www.geocities.com/SunsetStrip/Palms/5716

ICQ #1426476

Thanks to hard work from Bruce and Appell and

some wonderful people in the Waldorf Jaycees, the

CHARGE Syndrome Foundation got a HUGE donation

last weekend. The Jaycees have taken on CHARGE as

a project and held a dinner dance last weekend. During

the event Bruce and gave talks, Abby and

were present.. and the Jaycees gave Bruce and a

check for $10,000. They are planning to make this an

anual event raising $15,000 to $20,000 next year.

I wanted all of you to know and to thank Bruce and

again... We and our kids do thank you...

Casey

charge@...

minnow@...

Mom to Dawn 20, Ken 9 ADHD, and 7 CHARGE.

Cobb California

ICQ UIN# 728514

AIM Buddy List: ZeeCasey

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4th International CHARGE Syndrome Conference, Houston, Texas, July

23-25, 1999.

For information about the CHARGE Syndrome Foundation or to become a member

please contact marion@....

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Casey wrote:

>

>

>

> Thanks to hard work from Bruce and Appell and

> some wonderful people in the Waldorf Jaycees, the

> CHARGE Syndrome Foundation got a HUGE donation

> last weekend. The Jaycees have taken on CHARGE as

> a project and held a dinner dance last weekend. During

> the event Bruce and gave talks, Abby and

> were present.. and the Jaycees gave Bruce and a

> check for $10,000. They are planning to make this an

> anual event raising $15,000 to $20,000 next year.

>

> I wanted all of you to know and to thank Bruce and

> again... We and our kids do thank you...

>

> Casey

> charge@...

> minnow@...

>

> Mom to Dawn 20, Ken 9 ADHD, and 7 CHARGE.

> Cobb California

> ICQ UIN# 728514

> AIM Buddy List: ZeeCasey

>

Wow, hats off to the Appells. It's people like you that will make a

diffence to future generations. Thanks.

Jeanie Colp mom to MacKenzie 10mos.CHARGE

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Hi Everybody,

and I want to thank Casey and all of you for your responses to the news

about the donation from the Greater Waldorf Jaycees. We have written a quick

article for n to include in the CHARGE Accounts regarding last Saturday

night. We wish that each of you could have shared in the emotions of the

evening. The Waldorf Jaycees went out of their way to make this a very

special evening. Please know that every CHARGE family was in our thoughts

and hearts as we accepted the check for $10,000 on behalf of the CHARGE

Syndrome Foundation, Inc. Four hundred people attended this event. There are

now 400 more people who know about CHARGE. The land Jaycees are working

very hard along with and I to ensure the success of this program.

Every state Jaycee Organization throughout U.S. has been contacted about this

program. We are now concentrating our efforts on DE, PA, Michigan, Florida,

Ohio and Texas. If you are interested in working with us on this endeavor,

please let us know. For those of you who have contacted us we appreciate

your willingness to assist us. We will be in touch. I know it seems like

things are not moving very quickly but there is a lot of action going on

behind the scenes in order to get us to the point where we are ready for

families to go out and speak about CHARGE. To think this program was just

adopted by the land Jaycees in May last year and it has already been

adopted nationally by the U.S. Jaycees. The success of the CHARGE Program

would not be possible if it were not for the wonderful individuals who are

willing to give up their time to chair projects like the Big Five Event. We

are very glad to call these individuals our friends. Just recently three

land Jaycee Chapter Presidents visited the US Jaycees headquarters in

Tulsa for a Chapter President's summit. These three presidents distributed

150 copies of a letter we had written about the CHARGE Syndrome Program and

distributed a copy of the CHARGE brochure to each of the other State

Presidents that were attending. The word is spreading.

We will keep you updated on how things are going. Hopefully next year other

CHARGE families will be able to join us at the Greater Waldorf Jaycees Big

Five Event. (The Chairmen, Robin and Tommy Adkins, will hopefully be in

Houston.)

Stop by the land Jaycees CHARGE Syndrome Program table in Houston.

Bruce Appell

Member, Board of Directors

CHARGE Syndrome Foundation

Bruce@...

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Bruce and ,

Thank you guys for the great work. It seems like you have accomplished so

much. It's nice to see you actually on the list again. I have missed your

responses. I know you've been there, but quite busy on " our CHARGE families "

behalf!!!

God Bless You Both!!!!!!

Foley

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