Re: in hospital

[Guest guest]

Oh ....

That is awful. I hope will be OK. Did they get him on an IV?.

Thank goodness he has you there for him. Get well soon !

((((hugs))))

Andi

[Guest guest]

{{{{}}}}}

I'm so sorry isn't feeling well but it is so good that you are there for him. We all need a strong advocate to stand up for us when we can't do it for ourselves. Does he feel better today? I'll be praying for him - please keep us updated on his progress.

Blessings,

Barby

[Guest guest]

Root him in the a_ _ for me would yah? I know what

Irish/Indian warpath looks like, hee hee, I too am

Indian, French, German and Irish!

[Guest guest]

,

Sorry to hear that you had such trouble getting to start

treating the fevers seriously. I think that an earlier rsponse

may have reduced the severity of the episode. I also know from

personal experience that denial is easy until thing get really

bad. So don't be too hard on - it may be stupid, but it's

natural to deny how serious it is.

TimR ltx 4/4/98

__________________________________________________

[Guest guest]

,

sounds just like my husband. Denial all the way. is

lucky he has you on his side. Maybe next time he won't think twice

about going to the hospital right away.

I hope he feels better soon.

Sending you a (((BIG HUG))) and prayers also for .

Please keep us posted.

[Guest guest]

kelly, good for you, sweetie, for being strong for brian! " for better, for

worse, in sickness and in health " is at times a real personal challenge...

and it's a VERY scary thing to see your loved one in SO much agony. the

last time jim had an attack of cholangitis was 12/1999, but it's forever in

my mind like it happened just yesterday -- i literally watched his skin turn

an ickky grey color and it broke my heart to watch his face contort in so

much pain. i was so scared as i helped him to bed (he couldn't walk), then

i blasted downstairs with lightning speed to call his doctors for IMMEDIATE

cipro, prior to his being seen by anyone. the cipro did the trick, thank

God. now, we ALWAYS have a full prescription on hand.

the silver lining? that 2nd attack in 2 months' time was what prompted his

doctor to PUSH for tx evaluation, which we completed late last summer (it's

a wonderful feeling to have THAT all out of the way!). now, jim's holding

his own, no more incidences of cholangitis (knock on wood), and he feels

very, very good on his doubled dose of actigall. as hard as it is to

understand, he claims he actually feels pretty healthy, but with his EXTREME

fatigue and horrible insomnia, i am presently trying VERY hard to get him to

see my logic in the benefits of telecommuting from home an additional day

each week, though. he stays home on mondays and fridays, but everyone else

in his life sees how his commuting out to work 3X week just totally sapps

him. and, out at work, our family members tell me he looks " haggard. "

this was a " superman type " who, 17 years ago, would typically work 12 hour

days, then when things got a bit tough out at work, he'd come home at 7pm,

eat, fall straight into bed, get up at 2am, and go in and work another

shift, coming home maybe at 4pm to go to bed, then get up and have some

dinner, go to bed again and get up at 2am... to go back to work, yet again.

he pushed himself to work a crazy schedule, all to the good of his family's

then-suffering printed circuit board business... BUT all to the detriment of

his health.

your brian sounds a LOT like my jim ( " no, don't call the doctor... no, i

don't need to go to the ER... i think i'll just take a nap... " ) ...more

than anything, though, what you just experienced with brian CONVINCES me

that there are just some PSCers out there (like my own sweet jim) who

NEEEEEEEED a good support person through this roller coaster... so they can

have that " voice of reason " at their side. (you asked " Has anyone every

witnessed an Irish/indian/bohunk on the war path???? " well, kelly, um,

yeah, actually i have: me. you don't want to see me when i am on my irish

warpath, lol!) perhaps our guys are the type who think hey, with a nap,

i'll wake up and this feeling will just be " gone. " well, puh-leeeze...

gimme a break!

one last thing: early this morning, before jim and i got out of bed to

" start our day, " i tried (yet again) to have the two of us talk a bit...

and, woo-hoo, this time, the non-talker actually talked! he shared some of

his health and financial concerns with me, i listened, then gave him some

feedback... and one of the things i want to share with this group is what

he's said to me several times now, and reiterated again this morning

( " maureen, i think it's great you're in that PSC group " ).

this group is AWESOME :-)

have a fabulous week, everyone... and don't forget to bless someone

unexpectedly with a random act of kindness :-)

maureen

[Guest guest]

>Brain became ill yesterday and fought me tooth and nail to go in

>yesterday. We were always told to go in if his temp was above 100. Well,

>that has happened several times and then by the next day he seems to be ok.

,

you know him better than i, so you decide if you print and hand this to him:

Hello ,

i'm a member of a couple of on-line widow-grief support groups..

we have several of wives there grieving more than they should..

because they have a HUGE mountain of guilt to climb..

they feel they should have MADE their hubby go to the doctor sooner..

do yourself a favor:

let do what she needs to do now..

it might help you now (probably will--she is UP on this stuff)..

it *will* help her later.

peace and health,

dd

[Guest guest]

On Mon, 9 Apr 2001 06:37:01 -0700 (PDT), Romlein wrote:

>that denial is easy until thing get really

>bad. So don't be too hard on - it may be stupid, but it's

>natural to deny how serious it is.

so, maybe listen to Tim and don't give him the thing i wrote to him

about LISTENING to you..

dd

[Guest guest]

,

Sorry to hear about . He is one

lucky guy to have you fighting on his side! His lab numbers were so good guess you never know. Do you know if this will affect his

CellCept study? Our group should

start a new program. We could call

it “One Hospital At A Time.”

Sounds like they need to be enlightened. Wish I could be there to watch

you “enlighten” yours! When will

men ever learn? Women are right

100% of the time. Make it easy on

yourselves guys and give up.

Barb in Texas ( Son, Ken - UC 1991

PSC 8/1999 )

[Guest guest]

, I can understand 's stubbornness about going to the hospital.

I'm the same way because every time I go they want to keep me for a week. I always push it until I'm miserable. Mostly because my liver doctor won't see me and I have to go to my local ER and then they don't know what to do with me. I learned the hard way myself about waiting so I try real hard to know when it's time to go to the hospital. Hope is feeling better.

Beverly Waters NC

PSC - 93

[Guest guest]

I understand much too well. My husband gets absolutely furious with me. I

hate going to the hospital. My liver doc. just admits me, puts me on IV

antibiotics(whether I need them or not) and orders me injections of Demerol.

That is usually after an 8 hour stint in the ER, telling my full story and

symptoms 20 different times and getting incredibly frustrated. I am seen at

a teaching hospital in CT for my PSC. I have started going to my local doc

that treats my UC even for problems with my PSC. I don't think he

appreciates it all that much but the hospital is much smaller and my doc is

very nice and always listens to me. I don't know if any of you have noticed

the difference in how you get treated at a teaching hospital as opposed to a

local hospital but I can tell you that I would rather suffer (and often do)

than go to the teaching hospital. Just a quick question. I was once given

IV compazine in the ER. I had such extreme anxiety that I wanted to pull my

IV out and run. My heart started pounding at 160, I was shaking

uncontrollably. It upset me so much that know I have anxiety episodes

whenever I have to have any procedures done. (even at the dentist the other

day) I am really having trouble dealing with this. Has anyone else ever

had this experience? Any advise on how I can get over this anxiety thing?

Thanks 35, PSC97, UC99

>From: Pikapika1425@...

>Reply-To:

>To:

>Subject: Re: in hospital

>Date: Mon, 9 Apr 2001 20:25:44 EDT

>

>, I can understand 's stubbornness about going to the hospital.

>I'm the same way because every time I go they want to keep me for a week.

>I

>always push it until I'm miserable. Mostly because my liver doctor won't

>see

>me and I have to go to my local ER and then they don't know what to do with

>me. I learned the hard way myself about waiting so I try real hard to know

>when it's time to go to the hospital. Hope is feeling better.

>

>Beverly Waters NC

>PSC - 93

_________________________________________________________________

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[Guest guest]

I know exactly what you mean. Its mostly due from bad experiences in the

hospital with procedures and my doc.

Once they gave me a bone marrow biopsy with no pain medicine at ALL (they

drink a thick needle in your bone) and I started cursing and crying profusly

and the nurse was giving me a shot of somthing, which didnt work, but as

soon as the doctor was done he left, I sat up and couldnt see straight and

just started laughing at stupid things. I am assuming they gave me a shot of

some type of benzo, although it didnt help the actual procedure (although I

didnt much care afterwords.)

Last time I got the PTC tube in they werent going to give me any sedative or

pain relief at all, until I asked him. They gave me an IV and said they gave

me some medicine (I didnt feel it because of my high tolerance - I had been

on fentanyl and stuff) and then jammed that tube into my bile duct. It felt

like they were gutting me and I cried out for more and they gave me more but

it didnt help. Tears were pouring off my face as the doc got finished and

some student doc was stitching me up - and guess what the local anestitic

had already worn off so I felt the stiches too on top of the excruciating

abdomnial pain. It wasn't pleasant, I am scared now thou.

I just went to the dentist, I have to get 17 cavities filled and 1 root

canal and crown on one of my front teeth. Now I HATE DENTISTS and I didnt

goto one for years for fear of what happened last at the dentist (he was

very careless and it HURT just for a filling - bad). I have to goto an oral

surgeon at the hospital and they have to give me blood platelets, so while

the IV is in I am going to ask them for a sedative or such cause I know I

will go crazy when the dentist walks into the room.

I have always dealt with general anxiety, but never knew what that feeling

was until I found out not too many years ago. I used to have panic and

anxiety attacks and stuff and do OCD type things...I went to the doc once

and I got buspar which made me real sick, and then they gave me a low dose

of xanax which made me feel normal finally! But the horrible doctor (GI) I

goto now, when I told him about my anxiety problems, he told me to " deal

with it " . That nice isn't it? Especially with what Im going thru and

depression and the like. Xanax really helped but he wouldnt not presribe it

or anything in the like. I have been frustrated with that ever since, I only

took it " as needed " such as those times when I need to goto the dentist or

have a hospital procedure done. I panic and just feel stiff and not alive

like im in shock or somthing. But xanax taken as needed is good for that,

taking it a few times a day is presribed for people who have general anxiety

all the time (like myself, but it wasnt too bad).

Ask your doctor about xanax or valium or perhaps even a less addictive

benzo.

I think a few members are on anxiety medicines such as these.

Re: in hospital

> >Date: Mon, 9 Apr 2001 20:25:44 EDT

> >

> >, I can understand 's stubbornness about going to the hospital.

> >I'm the same way because every time I go they want to keep me for a week.

> >I

> >always push it until I'm miserable. Mostly because my liver doctor won't

> >see

> >me and I have to go to my local ER and then they don't know what to do

with

> >me. I learned the hard way myself about waiting so I try real hard to

know

> >when it's time to go to the hospital. Hope is feeling better.

> >

> >Beverly Waters NC

> >PSC - 93

>

> _________________________________________________________________

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>

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