Guest guest Posted April 7, 2001 Report Share Posted April 7, 2001 Aubrey, I am the one with PSC. I had the GI disease from 86 to 92. Antibiotics cleared it up to the point my doctor could even tell I had the ulcers. It's been dormant every since. I'm glad of that too. I never had the night sweats then. They started when my PSC got worse. I also notice I have them when I take prednisone for the hives and swelling. It makes me hot while I'm awake but at sleep it gets worse. Haven't had any lately though, so that's a good thing. Will they get worse as the disease progresses? Thanks for the information. Beverly Waters NC PSC - 93 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Thanks for trying to help, anyway. Beverly Waters psc - 93 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Beverly, I have no idea what your doctor was tring to tell you. You'll have to ask the source. Sorry. TimR --- Pikapika1425@... wrote: > Tim, I have a question. I don't know what my symptom code > is. I remember the doctor telling something about being at an > eight. Do you know what level this would be? __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Beverly, I'm happy that you have the support you need. I was Dxed about 6 months after Jens and I started dating -- I told him that if he didn't want to see me anymore, I would understand. He told me he wasn't going anywhere. I do all of the MD and hospital visits on my own (except when they knock me out for ERCPs and such) but we talk about it and what may or may not happen -- it's nice to have! Colleen I had just started dating my finacee' of only 5 mths. I was sure he would never stay, but he's been right by my side all the way. His mother on the other hand was a different story, she didn't want him getting involved with me. Now she's totally changed. She helps me out whenever she can. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Luanne, Sorry to read Ty had such a hard time at the doctor. Hope he's feeling better. I did go see my family doctor and he had to give another shot of Benadryl for the anxiety attack (the ER doctor called it Alcathesia). I think that is how its spelled. Can't really read it well. Don't understand why the benadryl seems to help but whatever works is good I guess. Had to go back to the ER than night because it came back. So I went before it got so bad this time. I was lucky because the same doctor was on call. I see a specialist at Chapel Hill but when I have problems they still won't see me or even return my calls. Every since I told my doctor about the coordinator not returning the calls to the two people that volunteered to try to be a donor. I've had nothing but attitude when I need to talk to someone there. Wish so much I could fine a better doctor. Don't care how long I have to drive to see him/her either. The right care is all the matters. I have enough to deal with without worrying about whether my doctor is going to help me when I go through these changes. Beverly Quote Link to comment Share on other sites More sharing options...
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