Re: School Update + Vaccine Question

October 25, 2001

In a message dated 10/25/01 10:43:07 AM Central Daylight Time,

nospam@... writes:

> But I will fight any more " vaccines " the docs decide to think up in

> the future. And not because of Autism, but because I just feel some

> of them are just not necessary

I agree. I would rather my kids have chicken pox as kids instead of the

shot. I think they would have to get boosters, because the shot does not

provide life long immunity. Does anyone know someone who lives in my part of

Texas. I say it like I own it. lol.

le

married to Isaac

SAHM to

Marisa 6

Jordan 3

Christian 2

1-26-01 cvr 5-30-01

October 25, 2001

Well Grace -

Sounds like things are going pretty well...YIPPEE.

I'm not sure about the Orange Turtle though...EEEEW. LOL

As far as the vaccines? I wouldn't do it. Jacqui had the Hep B when

she was born and I'm not totally convinced that that was not the

catalyst to her issues.

I guess I would look at the vaccine and look at the probability of

them contracting Hep A or whatever the other one is. Then decide.

But I will fight any more " vaccines " the docs decide to think up in

the future. And not because of Autism, but because I just feel some

of them are just not necessary.

Just my 2cents.

Penny

October 26, 2001

In a message dated 10/26/01 6:49:50 AM Central Daylight Time,

smgaska@... writes:

> regressed after both of his DPT shots. I didn't put it together back

> then though. He didn't act ill after them, just started losing skills.

>

I forgot to mention this to the doctor Wednesday.

le

married to Isaac

SAHM to

Marisa 6

Jordan 3

Christian 2

1-26-01 cvr 5-30-01

October 26, 2001

Grace,

I'm way behind on mail so just a quick response. If it's law where you are

that children have to be belted or in approved child seats up to a certain

weight, then the bus HAS to provide a child seat for her. My kids have

ridden buses since they were about 2 1/2, and our spec ed buses all have car

seats and booster seat for the kids with disabilities.

Glad she's liking school!

Sue

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October 26, 2001

le,

regressed after both of his DPT shots. I didn't put it together back

then though. He didn't act ill after them, just started losing skills.

Sue

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October 26, 2001

Ask Kandie, she just went through the same thing I think!

Wife to

Mom to Ben 4.5 (aka Godzilla)

On call milk machine to Abby 15 mths (aka stinkerbell)

" Some days you are the Bug, some days you are the Windshield "

_________________________________________________________

October 27, 2001

<bomb...the sound of hitting the floor>

EEEKKK 2! The horror! Oh now you are definitely a parent! I have forbidden

my husband to ever buy one, an SUV/Van type but not a van!

At 07:41 AM 10/26/2001, you wrote:

>Grace,

>I'm way behind on mail so just a quick response. If it's law where you are

>that children have to be belted or in approved child seats up to a certain

>weight, then the bus HAS to provide a child seat for her. My kids have

>ridden buses since they were about 2 1/2, and our spec ed buses all have car

>seats and booster seat for the kids with disabilities.

>Glad she's liking school!

>Sue

Wife to

Mom to Ben 4.5 (aka Godzilla)

On call milk machine to Abby 15 mths (aka stinkerbell)

" Some days you are the Bug, some days you are the Windshield "

October 27, 2001

In a message dated 10/27/01 6:40:02 PM Central Daylight Time,

bunnytiner@... writes:

> Well, you may get some varying reactions about this from doctors and the

> like. Some will simply disbelieve you, especially if they did not see him

> before

I have been talking to my mon lately. SHe is seeming to understand what I

mean about Christian and now understands why I want him tested. Thats good,

because Isaac has no clue about it. He thinks(still) that I (we) need to

devote more time to one on one with him. Anyway, my point here, was mom and

I were talking and she has a picture of Christian with my other 3 and my

brother's 2, and it showed him looking away and not like he wanted to be

sitting with the rest of the kids. You can kinda feel something is wrong

from the picture. The picture was taken in March, before the shot. We have

been talking and think that it had happened before the shots. He has

regressed though. He seemed perfectly nt before...before what, i don't know.

Maybe it has become more noticeable lately, because this is the stage of

their lives where we notice that they don't play with older sibs and

preferred to play alone. I mean he IS only 2. It is so hard to be a parent

to a child like this and know that you can't make them better. and

his cs, can be fixed. As hard as it is to watch him to go through this, I

know in 6 months it will be a nightmare and that is it!! What do we aim for,

for our children? Where do we go? Someone recently mentioned about giving

up the dream of them getting married and such. What do we expect?

le

married to Isaac

SAHM to

Marisa 6

Jordan 3

Christian 2

1-26-01 cvr 5-30-01

October 27, 2001

>What do we aim for,

> for our children? Where do we go? Someone recently mentioned about giving

> up the dream of them getting married and such. What do we expect?

le, that is a HUGE question.

My philosophy? Expect the best -- and be prepared for the worst. There's

really no other way to survive this thing.

Jacquie

October 27, 2001

He seemed perfectly nt before...before what, i don't know.

Dani:

Putter seemed perfectly NT to me too before two, although when I look back

there were some little oddities. Like the day he said " Thank you " to me

about fifteen times and never again said it until he was past four. Now

THAT is strange. And I recall telling my husband that it was odd, most

babies like to gaze into their mother's eyes as they are falling asleep but

Putter preferred to look away. And he could be soothed by ceiling fans and

he had a terrible time starting solids. But all those hints were very

subtle.

> Maybe it has become more noticeable lately, because this is the stage of

> their lives where we notice that they don't play with older sibs and

> preferred to play alone. I mean he IS only 2. It is so hard to be a

parent

> to a child like this and know that you can't make them better.

There is a LOT that you can do. I mean, a LOT. But there are no magic

cures and there are many things that work for one child but don't work for

another so you have to keep an open mind.

and

> his cs, can be fixed. As hard as it is to watch him to go through this, I

> know in 6 months it will be a nightmare and that is it!! What do we aim

for,

> for our children? Where do we go? Someone recently mentioned about

giving

> up the dream of them getting married and such. What do we expect?

le. You aim for a normal life, marriage and college included. You

aim for those things, but you steel your heart to not break over him if he

doesn't meet those goals. For one thing, he may not care about those goals.

People with autism DO marry; they do have difficulties with it as well and

they cause trouble in their families sometimes, well, probably rather often,

because they don't get people. I think my husband has Asperger Syndrome,

just as Enrique does, and he basically smashed his marriage and seriously

hurt his family and he simply has no clue of any of it except that I should

not have had him arrested. It is very sad.

But you expect the best possible outcome, which means losing the diagnosis,

and you prepare for the worst possible outcome. By the way, I do not

believe that losing the diagnosis really means you are no longer autistic; I

just think that the autistic person who loses the diagnosis is like a very

successful foreigner, hardly any accent remains and they know the ways of

their new land quite well. Most people don't notice anything, but they are

strangers in a strange land, pretending, as Lianne Holiday Willey, who wrote

a book about what it is like to have Asperger Syndrome, to be normal. Some

of them do it well.

There is a lot of hope for Puff and the earlier you get things figured out

for him the better. Always hope, always love, always believe; it is an

exhausting trip and much more exhausting because of all the uncertainty.

Don't look too far ahead, just take it one day at a time, in fact, fifteen

minutes at a time if that is the best you can do and on our bad days that is

about the best we can do.

You don't even know for sure that autism is what affects Puff; his scores

would indicate certainly that something is going on with him, but Jordan

talked at three? I remember you were concerned about him last summer,

although I remember some things you said about him pretty much allayed my

concerns. I think it was that he played? And you gave him the ATEC was it

and he got a very low, very NT sort of score. Perhaps there is some apraxia

in your family, just as an articulation problem exists in mine, and that is

the real issue. Sometimes kids with apraxia look a bit autistic because

they find speech so difficult that they have tuned out. Obviously he needs

to be investigated properly by someone who really knows autism.

There is a ton of hope. Never give up on it.

Salli

October 27, 2001

> >What do we aim for,

> > for our children? Where do we go? Someone recently mentioned about

giving

> > up the dream of them getting married and such. What do we expect?

>

> le, that is a HUGE question.

>

> My philosophy? Expect the best -- and be prepared for the worst. There's

really no other way to survive this thing.

Ha, ha, just what I said but naturally I took many more words. Love the

succinctness, Jacquie.

Salli

October 29, 2001

In a message dated 10/27/01 11:32:00 PM Central Standard Time,

bunnytiner@... writes:

> Putter seemed perfectly NT to me too before two, although when I look back

> there were some little oddities

In thinking back more, maybe some things that I thought were cute at the

time, now seem sorta odd. Like before he learned how to walk, he used to

love to push arund a huge truck. He owuld be happy pushing it through the

kitchen and back in to the living room, to the playroom back to the kitchen.

It was a huge circle that he would go at it forever. He was always my happy

baby. I do seem to remember him making eye contact with me as a small child,

but then he makes eye contact with me now. There were a few other things I

was thinking about last night that I can't seem to recall right now. This is

all kinda draining. DH says that his mother is bipolar (which I don't find

it hard to believe) and so is my dad. This is hereditary, in some cases,

right? I have my doubts as to Isaac's younger brother being bipolar as well.

<<<And he could be soothed by ceiling fans and

he had a terrible time starting solids. But all those hints were very

subtle.

Oh Christian had a rough time starting solids as well. was ready soon

after 6 months. CHristian had some at 7 months, nope didn't want it. Tried

again at 8 mo, nope again. At 9 months he finally started them, but didn't

want them everyday. At 10.5 months he finally started them on a regular day

to day basis. Oh and I remember what I was thinking about last night. The

time change, 2 years ago. I used to work way back then and Christian HAD to

be asleep EVERY NIGHT AT 7pm!! Not one minute later, not one earlier. I had

the roughest time with him after the time change. He wanted to go to sleep

at the old 7pm. He never had a regular bedtime after that. I would be lucky

to get him to sleep at a decent hour most nights. I think I will get out old

video that I took of him at the time and see if anything else strikes me as

odd now. So much to think about...

le

married to Isaac

SAHM to

Marisa 6

Jordan 3

Christian 2

1-26-01 cvr 5-30-01

October 29, 2001

In a message dated 10/27/01 11:32:00 PM Central Standard Time,

bunnytiner@... writes:

> You don't even know for sure that autism is what affects Puff; his scores

> would indicate certainly that something is going on with him, but Jordan

> talked at three? I remember you were concerned about him last summer,

> although I remember some things you said about him pretty much allayed my

> concerns. I think it was that he played? And you gave him the ATEC was it

> and he got a very low, very NT sort of score. Perhaps there is some apraxia

> in your family,

You are right. It may not be. Jordan didn't talk until a few months ago.

Now he talks in complete sentences. Of course he says Baf, instead of bath,

but he will outgrow it. Was it last summer? Yes, I was concerned that he

didn't talk, but he played with others. Right now, Marisa, Jordan and

are in the bedroom playing and Christian is walking around the living room.

What is apraxia?

le

married to Isaac

SAHM to

Marisa 6

Jordan 3

Christian 2

1-26-01 cvr 5-30-01

October 29, 2001

This is

> all kinda draining. DH says that his mother is bipolar (which I don't

find

> it hard to believe) and so is my dad. This is hereditary, in some cases,

> right? I have my doubts as to Isaac's younger brother being bipolar as

well.

Yes, and I think the incidence of autism is higher among families with

bipolar. But Jacquie or would know better than I would.

I used to work way back then and Christian HAD to

> be asleep EVERY NIGHT AT 7pm!! Not one minute later, not one earlier. I

had

> the roughest time with him after the time change. He wanted to go to

sleep

> at the old 7pm. He never had a regular bedtime after that. I would be

lucky

> to get him to sleep at a decent hour most nights. I think I will get out

old

> video that I took of him at the time and see if anything else strikes me

as

> odd now. So much to think about...

In very small children these things ARE subtle. Especially if you are the

kind of person who thinks a child should be allowed to be a bit odd. Like

me. After all, I had had Enrique and he was very odd and there was nothing

wrong with him. Gasp, splutter, choking on my morning coffee here for some

reason.

Oh, well.

Salli

October 29, 2001

> all kinda draining. DH says that his mother is bipolar (which I don't find

> it hard to believe) and so is my dad. This is hereditary, in some cases,

> right? I have my doubts as to Isaac's younger brother being bipolar as well.

Yes, there is a genetic link between bipolar and autism. It's found on a gene

called reelin, which has been found in both autistic people and bipolar people

to be irregular.

All the info about it available to date is VERY scientific, not really

layman-oriented, but I'll be glad to find some of the reports I accessed for you

if you want. They don't say much more than I just said, unfortunately.

Why do I know? I'm bipolar, my son is autistic. Of course I researched this!

:-)

Jacquie

October 29, 2001

> Yes, there is a genetic link between bipolar and autism. It's found on a

gene called reelin, which has been found in both autistic people and bipolar

people to be irregular.

>

> All the info about it available to date is VERY scientific, not really

layman-oriented, but I'll be glad to find some of the reports I accessed for

you if you want. They don't say much more than I just said, unfortunately.

>

> Why do I know? I'm bipolar, my son is autistic. Of course I researched

this! :-)

>

I knew Fearless Leader would know this!

Salli

October 29, 2001

le,

was like that. We could not get any solids into him until he was 14 or 15

months. It was hard. We had to plug his nose and hold his hands and put the food

in and them hold our hand over his mouth so that he could not spit it back out.

This lasted over 2 years. The doc wanted us o tube feed him and I said no he

would learn to eat like a normal child. While he is 9 and I like to think it

paid off, me making him eat.

Loir

Re: Re: School Update + Vaccine Question