Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 In a message dated 4/10/01 7:55:13 AM Central Daylight Time, nordgren1@... writes: Barby, I see my hep doctor twice a year. I would possibly see him more often but its an 8 hour drive for me.I see my primary doctor here in between and he confers back to my hep doctor. Bob psc dx 96 living in Arkansas << For those of you who aren't listed how often does your hep doctor want to see you? Mine wants me to come in 4 times a year which seems like a bit much. What about all of you? >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Unless I have problems, once a year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 My doc wanted to see me twice a year until this last year, when he said come back in a year. I think that might be a little too long. Eileen s dx PSC -1996, UC - 1978 appointments For those of you who aren't listed how often does your hep doctor want to see you? Mine wants me to come in 4 times a year which seems like a bit much. What about all of you? Barby married 21 years, mom of 5 sons- KS UC - dx in 1965 (11yo), total proctocolectomy with ileoostomy 1972, BCIR (continent ileoostomy)1994 PSC- dx in 1999 nordgren1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 I go to the GI clinic in Chapel Hill every three months, but I'm planning on changing that. It's such a long drive just for the doctor to just do blood work and push on my liver. My GI doctor has my GP handling my meds, so why can't I just go to him for the blood work and have it faxed to doctor in Chapel Hill. That is as long as I'm not having any problems. Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 My GI doctor has my GP handling my meds, so why can't I just go to him for the blood work and have it faxed to doctor in Chapel Hill. That is what I would like to do - maybe I can ask if maybe I could go every 6 months or each year and just have the lab sent to them. My hep doc is doing the meds but all they usually do is look at me (like you) so hopefully we can work that out. Thanks to everyone who has responded - looks like I see my doc a whole more often than most patients. Doesn't make much sense since the doctor is usually overbooked - they are in the process of trying to find another hepatologist which would help lots. Maybe they just want to see my pretty face in their clinic. lol Hope you all have a great evening Blessings, Barby PS - Maureen, I did my random act of kindness today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 .... For those of you who aren't listed how often does your hep doctor want to see you? Barby - I started every three months ( " liver guy " GI), then went to 6. I'll see what he says in May, though. Arne 49 - UC 1977 - PSC 2000 Alive and (mostly) well in Minnesota Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Beverly said, " It's such a long drive just for the doctor to just do blood work and push on my liver. " Is there something wrong with the medical care I am getting? No doctor has tried to feel my liver in over two years. When I see my GI doctor, he never touches me at all. I assume he touched my abdomen during my one and only ERCP when he diagnosed me with PSC two years ago. If not, no doctor has tried to feel my liver in over 3 years. Margie in MO PSC DX 3/29/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 margie, if i were you (stubborn, proactive irish woman that i am!), then at your next doctor appointment, i would ASK him WHY in 3 years' time he has not once palpated your liver. fighting words? not necessarily. as the patient, you are entitled to an answer if you have a question, n'est-ce pas? i'm as curious as HECK to learn his answer to THAT question! all the best, maureen p.s. " I guess he feels simply reviewing my blood test results, looking at me in general, and listening to me talk are adequate " ....what about answering your questions?????? Quote Link to comment Share on other sites More sharing options...
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