Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Hi, Barbara, Welcome to the group and thanks for joining us. We're very new. Ellen can tell you exactly how new. A week or two? The invitation to all ADA list members just went out this afternoon. Consider yourself a Charter Member! Once non-ADA members become aware of RD-USA, more might join since they have no other communication group that I'm aware of. If you know of RDs who have dropped their ADA membership, please invite them to join us. Not too many emails yet. I'm sure it will pick up. Tell us what your speciality is and why you chose Dietetics as a career. Marti , MA, RD, LD, who is swamped with other Yahoo group emails but not this one's yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Hi all, I just saw the notice on dietetics-l and was very pleased to see it going! I know it was discussed, but didn't realize it had started on the 1st! Barbara, you can read all about the list and when it started, as well as previous posts, by going onto the Yahoogroups website. I imagine once the word gets out, this could become quite an active list.. I'll have to compare once it gets going to decide whether or not to stay with dietetics-l, also. I can tell there will be overlap. There are times I have a hard time getting through all the reading, and that's even with deleting subjects I don't have any current interest in. I gather we should all include our salary info on the database? I just glimpsed at it; do we just open it and add? Anyway, glad to know this list is up and running! Margie -- Marjorie Geiser, RD, NSCA-CPT MEG Fitness Registered Dietitian ACE and NSCA certified personal trainer Southern California megfit@... Barbara wrote: Sweets Hi all: I have just signed up for this listserv, I noticed there are 8 members. I am still trying to decide if I want to remain a member of ADA and their listserv, just to have more resources. I am curious how long all of you have been on this listserv and the average number of emails you get? Sincerely, Barbara M. , MS, RD, LD Clinical Nutrition Manager Fort Walton Beach, FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Just started. I will maintain Dietetics-L, simply because it will always be large. I joined this group to take a look at the salary table. W. Rowell, RD, LNMontana State HospitalWarm Springs, MT QUESTIONS Hi all:I have just signed up for this listserv, I noticed there are 8 members. I am still trying to decide if I want to remain a member of ADA and their listserv, just to have more resources. I am curious how long all of you have been on this listserv and the average number of emails you get? Sincerely, Barbara M. , MS, RD, LDClinical Nutrition Manager Fort Walton Beach, FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Good morning: I could not sleep. I slept good all night, but woke up very early. Jan- Right there with you on the hospital thing. I actually keep a bag packed and ready to go with everything I would need or want. Reading material, wet wipes(no laughing), clean clothes, and things of that nature. Last time I was in the hospital, I as admitted and had to rely on my boyfriend to bring me essentials. I was in a hospital gown, you all know, the ones with no back so your bum hangs out. I did not have clean underwear. The hospital was kind enough to supply me with a pair of fish net underwear. Yeah.............not such a good look. My boyfriend, Vinnie, brought me clothes. However, he went to Target and bought cotton panties that were so big, they came up to my boobs. Still better than fishnet. This is why I keep a bag ready. I always try to maintain some dignity, even if I don't know what day of the week it is. My questions is about transplants. I love to read from the group regarding transplants and the success. I'm in the process now of going through the evaluation and meeting with the transplant team. I read posts of people that are waiting or have not had one. I really don't understand. Nobody should be made to suffer waiting. Why can't we all be helped. I so new to this I'm hoping you could shed some light on this. As always, you are in my thoughts and prayers, each and everyone of you!!!! Carlin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Carlin - When I had my pancreatitis attach over two years ago, I was lucky enough to not be at home, I was told later that if I had been, I probably wouldn't have made it. But, I was 75 miles away, just happened to have an eye doctor's appt that day. Afterwards we went to WalMart to buy a new TV. While we were waiting for them to bring down the one we had settled on, I started getting sick, thought maybe just slight upset stomach since I hadn't eaten anything. Got a box of 100 calorie mild cookies, but couldn't eat them either. Pain started and got worse, Ed rushed me to the er, they couldn't find a bp by the time I got there, I had a bag with me with a book, purse, cell phone, etc. They decided to helicopter me to Las Vegas and the crew wouldn't take my bag on the helicopter. I didn't know that because I was knocked out because of the pain. Got to the hospital, woke up up hours later, had nothing. Also had no care, nurses were terrible. I was supposed to get pain meds every four hours by iv, when I rang the bell after waiting until the four hours were up, it took them an hour to answer, then another hour to bring the meds. This started on Thursday about noon. By Saturday, I had had it, knew I didn't want surgery in that hospital, Sunrise by the way, stay away from it, So, I was lucky enough to borrow a cell phone from my roommates sister and call Ed. I asked him how long it would take to drive from home to Las Vegas. He said about 4 hours. I told him he had 5 to get there. All the time I was there, when I wasn't sedated to the point I didn't know what was going on, I too was just in a gown, no undies, no books to read, no way to call anyone since you can't call cell phones collect. And, when I did try to make an authorized call to a friend so she could send them my list of meds, etc which of course I didn't have with me the phone in my room didn't work. The other times when I have gone by helicopter, they have been very good about taking whatever I want to take with me. They even have a place in the helicopter to put small bags. I don't always have a bag packed if I am not expecting to go, but I sure know what to put in there in a hurry. I just bought another cd holder to put the cd and dvds that I want to carry with me so I won't have to go through them. Jan H On Thu, May 28, 2009 at 3:45 AM, Carlin Winkelman wrote: > > > Good morning: > > I could not sleep. I slept good all night, but woke up very early. > > Jan- Right there with you on the hospital thing. I actually keep a bag > packed and ready to go with everything I would need or want. Reading > material, wet wipes(no laughing), clean clothes, and things of that nature. > Last time I was in the hospital, I as admitted and had to rely on my > boyfriend to bring me essentials. I was in a hospital gown, you all know, > the ones with no back so your bum hangs out. I did not have clean > underwear. The hospital was kind enough to supply me with a pair of fish > net underwear. Yeah.............not such a good look. My boyfriend, > Vinnie, brought me clothes. However, he went to Target and bought cotton > panties that were so big, they came up to my boobs. Still better than > fishnet. This is why I keep a bag ready. I always try to maintain some > dignity, even if I don't know what day of the week it is. > > My questions is about transplants. I love to read from the group regarding > transplants and the success. I'm in the process now of going through the > evaluation and meeting with the transplant team. I read posts of people > that are waiting or have not had one. I really don't understand. Nobody > should be made to suffer waiting. Why can't we all be helped. I so new to > this I'm hoping you could shed some light on this. > > As always, you are in my thoughts and prayers, each and everyone of you!!!! > > Carlin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Hi I am awaiting a kidney/liver transplant and have a MELD score of 11. The higher your MELD is the higher the chance to get a transplant. I know someone else can explain it better and I can. The transplant process took us over four months here in Texas. Lots of hugs and kisses to everyone. Lyncia Subject: questions To: " support group " <livercirrhosissupport > Date: Thursday, May 28, 2009, 5:45 AM Good morning: I could not sleep. I slept good all night, but woke up very early. Jan- Right there with you on the hospital thing. I actually keep a bag packed and ready to go with everything I would need or want. Reading material, wet wipes(no laughing), clean clothes, and things of that nature. Last time I was in the hospital, I as admitted and had to rely on my boyfriend to bring me essentials. I was in a hospital gown, you all know, the ones with no back so your bum hangs out. I did not have clean underwear. The hospital was kind enough to supply me with a pair of fish net underwear. Yeah........ .....not such a good look. My boyfriend, Vinnie, brought me clothes. However, he went to Target and bought cotton panties that were so big, they came up to my boobs. Still better than fishnet. This is why I keep a bag ready. I always try to maintain some dignity, even if I don't know what day of the week it is. My questions is about transplants. I love to read from the group regarding transplants and the success. I'm in the process now of going through the evaluation and meeting with the transplant team. I read posts of people that are waiting or have not had one. I really don't understand. Nobody should be made to suffer waiting. Why can't we all be helped. I so new to this I'm hoping you could shed some light on this. As always, you are in my thoughts and prayers, each and everyone of you!!!! Carlin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Carlin, Hi! My husband is on the transplant list for the Phila area. He flew through the process within a matter of a few weeks. They co-ordinated all the testing to be done within a 2 day process. Then the following week we had 2 seperate meetings one day, first meeting with the transplant anesthologist and the second with the entire transplant team. the second meeting took around 5 hours, we had to watch a film, meet the transplant nurse and then we met with 2 different transplant surgeons. We started the process the beginning of December and were notified by the middle of the month that he was listed. At that time his MELD score was a 16. His lastest test showed that he was a 18. He had a blood test last week and goes to the doctors on Monday so we will find out if the number has risen. Right now we are also in the process of getting him dually listed with another hospital in new jersey. (I have the group to thank for this because we did not know that was possible). So far everything if going pretty smoothe with the process. Hopefully this will give Rex a better chance of getting a transplant before he gets so sick. (not that he is not sick now) I do know that the facilities and all the tranplant teams do remarkable work. One of the facilities in our region did 14 different transplants over memorial day weekend but only 1 was a liver. maureen > > Good morning: > > I could not sleep. I slept good all night, but woke up very early. > > Jan- Right there with you on the hospital thing. I actually keep a bag packed and ready to go with everything I would need or want. Reading material, wet wipes(no laughing), clean clothes, and things of that nature. Last time I was in the hospital, I as admitted and had to rely on my boyfriend to bring me essentials. I was in a hospital gown, you all know, the ones with no back so your bum hangs out. I did not have clean underwear. The hospital was kind enough to supply me with a pair of fish net underwear. Yeah.............not such a good look. My boyfriend, Vinnie, brought me clothes. However, he went to Target and bought cotton panties that were so big, they came up to my boobs. Still better than fishnet. This is why I keep a bag ready. I always try to maintain some dignity, even if I don't know what day of the week it is. > > My questions is about transplants. I love to read from the group regarding transplants and the success. I'm in the process now of going through the evaluation and meeting with the transplant team. I read posts of people that are waiting or have not had one. I really don't understand. Nobody should be made to suffer waiting. Why can't we all be helped. I so new to this I'm hoping you could shed some light on this. > > As always, you are in my thoughts and prayers, each and everyone of you!!!! > > Carlin > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 What's a MELD score. I've read that here before. I don't see anything like that on my labs. Not to be dumb, but knowledge is power over this. Thanks!!!!!!!! Carlin ________________________________ To: livercirrhosissupport Sent: Thursday, May 28, 2009 2:57:17 PM Subject: Re: questions Hi I am awaiting a kidney/liver transplant and have a MELD score of 11. The higher your MELD is the higher the chance to get a transplant. I know someone else can explain it better and I can. The transplant process took us over four months here in Texas. Lots of hugs and kisses to everyone. Lyncia From: Carlin Winkelman <cmpaddockymail (DOT) com> Subject: questions To: " support group " <livercirrhosissuppo rtyahoogroups (DOT) com> Date: Thursday, May 28, 2009, 5:45 AM Good morning: I could not sleep. I slept good all night, but woke up very early. Jan- Right there with you on the hospital thing. I actually keep a bag packed and ready to go with everything I would need or want. Reading material, wet wipes(no laughing), clean clothes, and things of that nature. Last time I was in the hospital, I as admitted and had to rely on my boyfriend to bring me essentials. I was in a hospital gown, you all know, the ones with no back so your bum hangs out. I did not have clean underwear. The hospital was kind enough to supply me with a pair of fish net underwear. Yeah........ .....not such a good look. My boyfriend, Vinnie, brought me clothes. However, he went to Target and bought cotton panties that were so big, they came up to my boobs. Still better than fishnet. This is why I keep a bag ready. I always try to maintain some dignity, even if I don't know what day of the week it is. My questions is about transplants. I love to read from the group regarding transplants and the success. I'm in the process now of going through the evaluation and meeting with the transplant team. I read posts of people that are waiting or have not had one. I really don't understand. Nobody should be made to suffer waiting. Why can't we all be helped. I so new to this I'm hoping you could shed some light on this. As always, you are in my thoughts and prayers, each and everyone of you!!!! Carlin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 What is MELD? How will it be used? The Model for End-Stage Liver Disease (MELD) system was implemented February 27, 2002 to prioritize patients waiting for a liver transplant. MELD is a numerical scale used for adult liver transplant candidates. The range is from 6 (less ill) to 40 (gravely ill). The individual score determines how urgently a patient needs a liver transplant within the next three months. The number is calculated using the most recent laboratory tests. Lab values used in the MELD calculation: Bilirubin, which measures how effectively the liver excretes bile; INR (formally known as the prothrombin time), measures the liver's ability to make blood clotting factors; Creatinine, which measures kidney function. Impaired kidney function is often associated with severe liver disease. Within the MELD continuous disease severity scale, there are four levels. As the MELD score increases, and the patient moves up to a new level, a new waiting time clock starts. Waiting time is carried backwards but not forward. If a patient moves to a lower MELD score, the waiting time accumulated at the higher score remains. When a patient moves to a higher MELD score, the waiting time at the lower level is not carried to the new level. The clock at the new level starts at 0. (Example: Patient has a MELD score of 15 and has been at level 11-18 for 100 days. With new laboratory tests, the patient's MELD score is 22. The patient moves to a new MELD level of 19-24. The patient's waiting time at this new level starts at 0 days). Waiting time is only used as a tie-breaker when patients have the same MELD score. The four MELD levels are: greater than or equal to 25 24-19 18-11 less than or equal to 10 > > From: Carlin Winkelman <cmpaddockymail (DOT) com> > Subject: questions > To: " support group " <livercirrhosissuppo rtyahoogroups (DOT) com> > Date: Thursday, May 28, 2009, 5:45 AM > > Good morning: > > I could not sleep. I slept good all night, but woke up very early. > > Jan- Right there with you on the hospital thing. I actually keep a bag packed and ready to go with everything I would need or want. Reading material, wet wipes(no laughing), clean clothes, and things of that nature. Last time I was in the hospital, I as admitted and had to rely on my boyfriend to bring me essentials. I was in a hospital gown, you all know, the ones with no back so your bum hangs out. I did not have clean underwear. The hospital was kind enough to supply me with a pair of fish net underwear. Yeah........ .....not such a good look. My boyfriend, Vinnie, brought me clothes. However, he went to Target and bought cotton panties that were so big, they came up to my boobs. Still better than fishnet. This is why I keep a bag ready. I always try to maintain some dignity, even if I don't know what day of the week it is. > > My questions is about transplants. I love to read from the group regarding transplants and the success. I'm in the process now of going through the evaluation and meeting with the transplant team. I read posts of people that are waiting or have not had one. I really don't understand. Nobody should be made to suffer waiting. Why can't we all be helped. I so new to this I'm hoping you could shed some light on this. > > As always, you are in my thoughts and prayers, each and everyone of you!!!! > > Carlin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 I am so glad that Rex is on track to get a transplant. Of the three moderators, two of us were caretakers for patients whom were never properly informed or counseled about transplant options. Because of that fact, I am pretty adamant that a liver disease sufferer needs one of two paths to choose from and definitively take one. Hospice, or transplant. My loved one was not properly sent down either one until late late in the game, and then I even had two separate advanced directives signed and notarized for her, one stating full curative measures, and the other a DNR-do not recusitate. Our hopes and prayers are with you and Rex, and all of those here weather you or your loved one are on either path, or even both. Love, Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Thursday, May 28, 2009 1:32:24 PM Subject: Re: questions Carlin, Hi! My husband is on the transplant list for the Phila area. He flew through the process within a matter of a few weeks. They co-ordinated all the testing to be done within a 2 day process. Then the following week we had 2 seperate meetings one day, first meeting with the transplant anesthologist and the second with the entire transplant team. the second meeting took around 5 hours, we had to watch a film, meet the transplant nurse and then we met with 2 different transplant surgeons. We started the process the beginning of December and were notified by the middle of the month that he was listed. At that time his MELD score was a 16. His lastest test showed that he was a 18. He had a blood test last week and goes to the doctors on Monday so we will find out if the number has risen. Right now we are also in the process of getting him dually listed with another hospital in new jersey. (I have the group to thank for this because we did not know that was possible). So far everything if going pretty smoothe with the process. Hopefully this will give Rex a better chance of getting a transplant before he gets so sick. (not that he is not sick now) I do know that the facilities and all the tranplant teams do remarkable work. One of the facilities in our region did 14 different transplants over memorial day weekend but only 1 was a liver. maureen > > Good morning: > > I could not sleep. I slept good all night, but woke up very early. > > Jan- Right there with you on the hospital thing. I actually keep a bag packed and ready to go with everything I would need or want. Reading material, wet wipes(no laughing), clean clothes, and things of that nature. Last time I was in the hospital, I as admitted and had to rely on my boyfriend to bring me essentials. I was in a hospital gown, you all know, the ones with no back so your bum hangs out. I did not have clean underwear. The hospital was kind enough to supply me with a pair of fish net underwear. Yeah........ .....not such a good look. My boyfriend, Vinnie, brought me clothes. However, he went to Target and bought cotton panties that were so big, they came up to my boobs. Still better than fishnet. This is why I keep a bag ready. I always try to maintain some dignity, even if I don't know what day of the week it is. > > My questions is about transplants. I love to read from the group regarding transplants and the success. I'm in the process now of going through the evaluation and meeting with the transplant team. I read posts of people that are waiting or have not had one. I really don't understand. Nobody should be made to suffer waiting. Why can't we all be helped. I so new to this I'm hoping you could shed some light on this. > > As always, you are in my thoughts and prayers, each and everyone of you!!!! > > Carlin > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 I agree with you Bobby! Extra hugs for you and Sharon. Lots of hugs and kisses to everyone. Lyncia Subject: Re: Re: questions To: livercirrhosissupport Date: Thursday, May 28, 2009, 3:34 PM I am so glad that Rex is on track to get a transplant. Of the three moderators, two of us were caretakers for patients whom were never properly informed or counseled about transplant options. Because of that fact, I am pretty adamant that a liver disease sufferer needs one of two paths to choose from and definitively take one. Hospice, or transplant. My loved one was not properly sent down either one until late late in the game, and then I even had two separate advanced directives signed and notarized for her, one stating full curative measures, and the other a DNR-do not recusitate. Our hopes and prayers are with you and Rex, and all of those here weather you or your loved one are on either path, or even both. Love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: movickers802 <movickers802@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Thursday, May 28, 2009 1:32:24 PM Subject: Re: questions Carlin, Hi! My husband is on the transplant list for the Phila area. He flew through the process within a matter of a few weeks. They co-ordinated all the testing to be done within a 2 day process. Then the following week we had 2 seperate meetings one day, first meeting with the transplant anesthologist and the second with the entire transplant team. the second meeting took around 5 hours, we had to watch a film, meet the transplant nurse and then we met with 2 different transplant surgeons. We started the process the beginning of December and were notified by the middle of the month that he was listed. At that time his MELD score was a 16. His lastest test showed that he was a 18. He had a blood test last week and goes to the doctors on Monday so we will find out if the number has risen. Right now we are also in the process of getting him dually listed with another hospital in new jersey. (I have the group to thank for this because we did not know that was possible). So far everything if going pretty smoothe with the process. Hopefully this will give Rex a better chance of getting a transplant before he gets so sick. (not that he is not sick now) I do know that the facilities and all the tranplant teams do remarkable work. One of the facilities in our region did 14 different transplants over memorial day weekend but only 1 was a liver. maureen > > Good morning: > > I could not sleep. I slept good all night, but woke up very early. > > Jan- Right there with you on the hospital thing. I actually keep a bag packed and ready to go with everything I would need or want. Reading material, wet wipes(no laughing), clean clothes, and things of that nature. Last time I was in the hospital, I as admitted and had to rely on my boyfriend to bring me essentials. I was in a hospital gown, you all know, the ones with no back so your bum hangs out. I did not have clean underwear. The hospital was kind enough to supply me with a pair of fish net underwear. Yeah........ .....not such a good look. My boyfriend, Vinnie, brought me clothes. However, he went to Target and bought cotton panties that were so big, they came up to my boobs. Still better than fishnet. This is why I keep a bag ready. I always try to maintain some dignity, even if I don't know what day of the week it is. > > My questions is about transplants. I love to read from the group regarding transplants and the success. I'm in the process now of going through the evaluation and meeting with the transplant team. I read posts of people that are waiting or have not had one. I really don't understand. Nobody should be made to suffer waiting. Why can't we all be helped. I so new to this I'm hoping you could shed some light on this. > > As always, you are in my thoughts and prayers, each and everyone of you!!!! > > Carlin > > > > > Quote Link to comment Share on other sites More sharing options...
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