Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Lyncia...I know how difficult it can be for some to get disability...I really think a lot has to do with the luck of the draw, especially where the judge is concerned...I was refused and went back to work for 9 months..at which time I had major esophageal bleed, and another 2 weeks later, after that I refilled for disability..again refused, but got a very good lawyer, another luck of the draw...took another year plus for my hearing, but I was approved...it was a major emotional release...so stay with it, and hopefully next time you will be approved Dave ________________________________ To: livercirrhosissupport Sent: Monday, July 20, 2009 7:58:27 PM Subject: Re: Lyncia Hi! Everyone.... ..got back from a wonderful vacation. Guess what????? I was turned down again by Social Security.... ..anyone know what I need to do to fire my attorney who has done nothing for me? Thanks. PS My little granddaughter " Hally " may get to come home on Friday at 4lbs! YEAH She is so beautiful. Thanks be to God for he creates our tomorrows Love, Lyncia From: Gloria <gadamscanyahoo (DOT) ca> Subject: Re: Lyncia To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, July 19, 2009, 4:23 PM Dave: Personally the only thing I can offer is understanding. The fatigue has been the most crippling part of this battle with the dragon. Mine has already had the profound affect on the quality of my life and was the hardest thing to swallow. It was also the hardest thing to try to explain to those around me. Add that to my realization that I was stuffing my feelings of anger and I realized that I needed some help to finally get to the acceptance level. I got that help in the form of a couple of sessions of counselling plus a couple of my meetings of AA. It was such a release to finally accept that I will not feel guilty for that that I can not control. When I was getting the help from the North Island Liver Society nurses, leading up to my first treatment, I understood that especially the shot of Interferon might cause extreme fatigue at least for a day or two. So, I chose to take that shot on a Friday night and planned not to get dressed or do anything for the weekend. What I was not truly prepared for, was that the treatment didn't work and the crippling fatigue didn't really lift very much. Now that I am doing a 2nd round of TX as a guinea pig - I never know from one weekend to the other what it will be like. However, some days during the week I can actually put in a good 4 - 6 hours work without a nap and others, the brain fog etc. is just too intense and not only can't I concentrate; but, I need to go for a nap. I just figure that my whole system has been triggered for a huge fight for it's very life so who wouldn't get tired?? Therefore, if what my system needs is for me go to bed and let it fight, then that's what I'm going to do. My husband has pretty much gotten used to this after 5 yrs now and so we definitely don't make hard and fast plans for me to go anywhere on weekends (he still could if he wanted) and we are both home bodies in the evening now anyway - so it doesn't much affect him. Gloria ____________ _________ _________ __ Does anyone know if there are any med's they can give to help with the fatigue level? It has been bad for some time now, but last couple of months are just ridiculous.. .really having a major affect on my quality of life...am going to get blood work, and an endoscope next month...and see my liver doc in Nov....guess I should reside myself to this is the way it is, and is going to be except likely worse as this beast progresses.. .just had to vent some...thanks Dave ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, July 18, 2009 9:16:30 PM Subject: Lyncia Need update on how you are doing and that wonderful grandbaby of yours. How much does she weigh now? Any pictures updates? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Ask around. I found my lawyer beacause he was recommeded to me by a friend who was on disability. Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. From: Gloria <gadamscanyahoo (DOT) ca> Subject: Re: Lyncia To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, July 19, 2009, 4:23 PM Dave: Personally the only thing I can offer is understanding. The fatigue has been the most crippling part of this battle with the dragon. Mine has already had the profound affect on the quality of my life and was the hardest thing to swallow. It was also the hardest thing to try to explain to those around me. Add that to my realization that I was stuffing my feelings of anger and I realized that I needed some help to finally get to the acceptance level. I got that help in the form of a couple of sessions of counselling plus a couple of my meetings of AA. It was such a release to finally accept that I will not feel guilty for that that I can not control. When I was getting the help from the North Island Liver Society nurses, leading up to my first treatment, I understood that especially the shot of Interferon might cause extreme fatigue at least for a day or two. So, I chose to take that shot on a Friday night and planned not to get dressed or do anything for the weekend. What I was not truly prepared for, was that the treatment didn't work and the crippling fatigue didn't really lift very much. Now that I am doing a 2nd round of TX as a guinea pig - I never know from one weekend to the other what it will be like. However, some days during the week I can actually put in a good 4 - 6 hours work without a nap and others, the brain fog etc. is just too intense and not only can't I concentrate; but, I need to go for a nap. I just figure that my whole system has been triggered for a huge fight for it's very life so who wouldn't get tired?? Therefore, if what my system needs is for me go to bed and let it fight, then that's what I'm going to do. My husband has pretty much gotten used to this after 5 yrs now and so we definitely don't make hard and fast plans for me to go anywhere on weekends (he still could if he wanted) and we are both home bodies in the evening now anyway - so it doesn't much affect him. Gloria ____________ _________ _________ __ Does anyone know if there are any med's they can give to help with the fatigue level? It has been bad for some time now, but last couple of months are just ridiculous.. .really having a major affect on my quality of life...am going to get blood work, and an endoscope next month...and see my liver doc in Nov....guess I should reside myself to this is the way it is, and is going to be except likely worse as this beast progresses.. .just had to vent some...thanks Dave ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Saturday, July 18, 2009 9:16:30 PM Subject: Lyncia Need update on how you are doing and that wonderful grandbaby of yours. How much does she weigh now? Any pictures updates? Quote Link to comment Share on other sites More sharing options...
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