Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 They will not give me any pain meds....and at night my right leg and left hand are so painful. Is this something that a paid med dr can help me with? Might it take me off the transplant list? Lots of hugs and kisses to everyone. Lyncia From: abijann <no_reply > Subject: Jan To: livercirrhosissupport Date: Friday, May 1, 2009, 10:33 PM Sure hope that pain medication starts to work for you soon. Nerve pain can be tremendous. Try to take deep slow breaths. Sometimes, breathing shallowly tightens the muscles more and causes even more pain. I hope you start to feel better soon... bless your heart. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Though I have seen some people recieve a prescription for narcotic pain meds, ( the only safe for the liver pain meds are the narcotic ones, sorry) from a GP, or PCP doctor, it is not advisable. The legal implications for the patient as well as the doctor these days is enormous, and as my pain doc says all the time, I dont look good in an orange jumpsuit. It's best to leave up to a pain medicine doctor. Not pain management, as any doctor can do pain management, but pain medicine is different. Pain is a separate disease, and the medical community is now recognizing pain as a malignant , and potentially life threatening disease, which requires a host of treatment options. Sharon has used many of them. Acupuncture is not one she has tried, but Ardis used to swear by it. Wishing you a less painful day, hun. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Saturday, May 2, 2009 7:20:56 AM Subject: Re: Lyncia They will not give me any pain meds....and at night my right leg and left hand are so painful. Is this something that a paid med dr can help me with? Might it take me off the transplant list? Lots of hugs and kisses to everyone. Lyncia From: abijann <no_reply@yahoogroup s.com> Subject: Jan To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Friday, May 1, 2009, 10:33 PM Sure hope that pain medication starts to work for you soon. Nerve pain can be tremendous. Try to take deep slow breaths. Sometimes, breathing shallowly tightens the muscles more and causes even more pain. I hope you start to feel better soon... bless your heart. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 hahhaha-Jan you are so funny! Kept me laughing each time I think of you, teling people he beat you up! You are a scream! Phyllis ________________________________ To: livercirrhosissupport Sent: Sunday, May 17, 2009 6:50:36 PM Subject: Re: Lyncia Abijann - tell everybody that he beat you up. When I leave the hospital, I am usually bruises all over. Ed won't let me take off my hospital bracelet until we get home, because I love to tell people in restaurants and stores that he beat me up. After you do it once, you make a trade off with him, you won't tell people he beats you if he doesn't give you such a bad time about falling. Jan H On Sun, May 17, 2009 at 7:27 PM, abijann <no_reply@yahoogroup s.com> wrote: > > > Sometimes quiet times can be a great blessing...it helps you > put your thoughts into perspective. When my husband left for > awhile with his brother...It seemed very strange to me. I could > hear a pin drop in the house. Turning on some nice music: opening > up the windows when it is warm outside; Bringing in some blooming > flowers and placing them in a vase (not for those who had transplants) > Making some cold ice tea; counting my blessings; writing and sending > notes to loved one just to remind them that I care about them; > taking a warm bath and using some fragrant soap I never used before.... > > You are never really alone...God is with each one of us. Plus, you > have tons of internet friends that truly care about you. > > This will make you smile. I have a real wild turkey. I call him > Tommy Twotwo. I can pet him and talk with him and he eats out of > my hand. He hurt his toe...somehow he tore off the nail...he bled > quite alot. He is doing better now. My husband gave me a high > power flashlight to go out and check on him after dark. He knew > I was worried about him, but he didn't want to do it for me. > I got half way when I fell over the pipe that is coming up out of > the ground where our old well used to be. It is capped. Fell > over it right on my face, bent my glasses all up. My husband > started howlering from the window about why his stupid wife didn't > have the high power flashlight on. It was because I didn't want > to scare the birds and get them all stirred up. I was afraid they > fly up and hurt themselves.. .instead, I was the one who got hurt. > I had tons of room all around that pipe to walk...just hit that > one spot where it happened to be. Since I have a huge red mark > on my nose now..my husband informs everyone, who sees me, what I did. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 I'm sorry you are feeling lonely. I wish I lived closer to you, and I would come and spend time with you. You can always call me if you want. I hope your headaches get better too. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2009 Report Share Posted June 3, 2009 Yes, I gave them both and my transplant doctor also wrote a letter. My doctor in Florida said it was easier to get on SSDI if you told them it was mental. Isn't this disease also mental? Seems like it to me. I go to the SSDI doctor on July 2. I am okay with everyday expenses right now but worry about the medication after transplant. Thanks for your sharing......You are so great! Lots of hugs and kisses to everyone. Lyncia From: abijann <no_reply > Subject: Lyncia To: livercirrhosissupport Date: Wednesday, June 3, 2009, 2:31 PM Does Social Security know that you are on the transplant list for both a kidney and a liver transplant? A letter wrote by your doctor stating this, should get you approved for Social Security. I would give them a copy of the letter and keep the original for yourself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Sorry for reading and responding soooo late but just to comment. Lyncia u r a trip and a half LOL. You might just keep me laughing through this. Love Tannya Vacterl 71 Cirrhosis 2009 > > > Sometimes quiet times can be a great blessing...it helps you > put your thoughts into perspective. When my husband left for > awhile with his brother...It seemed very strange to me. I could > hear a pin drop in the house. Turning on some nice music: opening > up the windows when it is warm outside; Bringing in some blooming > flowers and placing them in a vase (not for those who had transplants) > Making some cold ice tea; counting my blessings; writing and sending > notes to loved one just to remind them that I care about them; > taking a warm bath and using some fragrant soap I never used before.... > > You are never really alone...God is with each one of us. Plus, you > have tons of internet friends that truly care about you. > > This will make you smile. I have a real wild turkey. I call him > Tommy Twotwo. I can pet him and talk with him and he eats out of > my hand. He hurt his toe...somehow he tore off the nail...he bled > quite alot. He is doing better now. My husband gave me a high > power flashlight to go out and check on him after dark. He knew > I was worried about him, but he didn't want to do it for me. > I got half way when I fell over the pipe that is coming up out of > the ground where our old well used to be. It is capped. Fell > over it right on my face, bent my glasses all up. My husband > started howlering from the window about why his stupid wife didn't > have the high power flashlight on. It was because I didn't want > to scare the birds and get them all stirred up. I was afraid they > fly up and hurt themselves.. .instead, I was the one who got hurt. > I had tons of room all around that pipe to walk...just hit that > one spot where it happened to be. Since I have a huge red mark > on my nose now..my husband informs everyone, who sees me, what I did. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Thanks, I love to make people laugh. I have always wanted to be a clown.....hum maybe I can be a tranplanted clown. Lots of hugs and kisses to everyone. Lyncia > > > Sometimes quiet times can be a great blessing...it helps you > put your thoughts into perspective. When my husband left for > awhile with his brother...It seemed very strange to me. I could > hear a pin drop in the house. Turning on some nice music: opening > up the windows when it is warm outside; Bringing in some blooming > flowers and placing them in a vase (not for those who had transplants) > Making some cold ice tea; counting my blessings; writing and sending > notes to loved one just to remind them that I care about them; > taking a warm bath and using some fragrant soap I never used before.... > > You are never really alone...God is with each one of us. Plus, you > have tons of internet friends that truly care about you. > > This will make you smile. I have a real wild turkey. I call him > Tommy Twotwo. I can pet him and talk with him and he eats out of > my hand. He hurt his toe...somehow he tore off the nail...he bled > quite alot. He is doing better now. My husband gave me a high > power flashlight to go out and check on him after dark. He knew > I was worried about him, but he didn't want to do it for me. > I got half way when I fell over the pipe that is coming up out of > the ground where our old well used to be. It is capped. Fell > over it right on my face, bent my glasses all up. My husband > started howlering from the window about why his stupid wife didn't > have the high power flashlight on. It was because I didn't want > to scare the birds and get them all stirred up. I was afraid they > fly up and hurt themselves.. .instead, I was the one who got hurt. > I had tons of room all around that pipe to walk...just hit that > one spot where it happened to be. Since I have a huge red mark > on my nose now..my husband informs everyone, who sees me, what I did. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 LOL...I tried to add you to my list of freinds...I try to keep w/ 2 different sites (I have vacterl syndrome also). That's an awful lot to read on my own. Would you mind adding me. I don't have many freinds. Since I found out I had this disease I pretty much keep to myself. I don't want to have to explain to new people the " drama " in my life. TY Tannya > > > Sometimes quiet times can be a great blessing...it helps you > put your thoughts into perspective. When my husband left for > awhile with his brother...It seemed very strange to me. I could > hear a pin drop in the house. Turning on some nice music: opening > up the windows when it is warm outside; Bringing in some blooming > flowers and placing them in a vase (not for those who had transplants) > Making some cold ice tea; counting my blessings; writing and sending > notes to loved one just to remind them that I care about them; > taking a warm bath and using some fragrant soap I never used before.... > > You are never really alone...God is with each one of us. Plus, you > have tons of internet friends that truly care about you. > > This will make you smile. I have a real wild turkey. I call him > Tommy Twotwo. I can pet him and talk with him and he eats out of > my hand. He hurt his toe...somehow he tore off the nail...he bled > quite alot. He is doing better now. My husband gave me a high > power flashlight to go out and check on him after dark. He knew > I was worried about him, but he didn't want to do it for me. > I got half way when I fell over the pipe that is coming up out of > the ground where our old well used to be. It is capped. Fell > over it right on my face, bent my glasses all up. My husband > started howlering from the window about why his stupid wife didn't > have the high power flashlight on. It was because I didn't want > to scare the birds and get them all stirred up. I was afraid they > fly up and hurt themselves.. .instead, I was the one who got hurt. > I had tons of room all around that pipe to walk...just hit that > one spot where it happened to be. Since I have a huge red mark > on my nose now..my husband informs everyone, who sees me, what I did. > > > -- Jan H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Tannya - We laugh on here a lot. And, you do have lots of friends, everybody on this list becomes instant friends and family. A while back I asked for responses to people who ask you how you're doing, or say you are looking pretty good. I received a number of them . One was " I make liver disease look pretty good don't I? " Another, " I don't look too bad for having a fatal disease, do I? " There were others too, which I can't remember right now, memory is bad short term and selective long term. Tomorrow I will probably remember some others and forget the two I remembered here. Or someone else will fill you in on some others. I truly believe that laughter makes us live longer and for me it makes me feel better at the moment I am laughing. Of course, if I spend a night with friends laughing about lots of things including laughing (laughing about laughing) I am especially tired and even sore the next day. But, I can take the day off or I wouldn't schedule an evening like that. People have called me a walking miracle and I give the credit to God and to my ability to laugh at almost any time, which he probably gave me too. Please realize that I was leaning on my hand while rereading this since my typing and spelling as well as thinking skills are less than they used to be. Just composing emails like this is draining and the hand holds up my head for a short rest. Now I am going to put my body in my recliner to give it some rest. Have to do some shopping and going out to eat tonight. Jan H On Fri, Jun 5, 2009 at 9:43 AM, Toni forever wrote: > > > LOL...I tried to add you to my list of freinds...I try to keep w/ 2 > different sites (I have vacterl syndrome also). That's an awful lot to read > on my own. Would you mind adding me. I don't have many freinds. Since I > found out I had this disease I pretty much keep to myself. I don't want to > have to explain to new people the " drama " in my life. > TY > Tannya > > > > > > > > > Sometimes quiet times can be a great blessing...it helps you > > put your thoughts into perspective. When my husband left for > > awhile with his brother...It seemed very strange to me. I could > > hear a pin drop in the house. Turning on some nice music: opening > > up the windows when it is warm outside; Bringing in some blooming > > flowers and placing them in a vase (not for those who had transplants) > > Making some cold ice tea; counting my blessings; writing and sending > > notes to loved one just to remind them that I care about them; > > taking a warm bath and using some fragrant soap I never used before.... > > > > You are never really alone...God is with each one of us. Plus, you > > have tons of internet friends that truly care about you. > > > > This will make you smile. I have a real wild turkey. I call him > > Tommy Twotwo. I can pet him and talk with him and he eats out of > > my hand. He hurt his toe...somehow he tore off the nail...he bled > > quite alot. He is doing better now. My husband gave me a high > > power flashlight to go out and check on him after dark. He knew > > I was worried about him, but he didn't want to do it for me. > > I got half way when I fell over the pipe that is coming up out of > > the ground where our old well used to be. It is capped. Fell > > over it right on my face, bent my glasses all up. My husband > > started howlering from the window about why his stupid wife didn't > > have the high power flashlight on. It was because I didn't want > > to scare the birds and get them all stirred up. I was afraid they > > fly up and hurt themselves.. .instead, I was the one who got hurt. > > I had tons of room all around that pipe to walk...just hit that > > one spot where it happened to be. Since I have a huge red mark > > on my nose now..my husband informs everyone, who sees me, what I did. > > > > > > > > -- > Jan H > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 I am not going to lie...this is very difficult. I've known about my disease for 2 years but not knowing how bad or what to expect has been the worst. My memory is'nt like it used to be...and I could'nt explain it. In fact I used to have a great memory. Now the running joke between my husband and I is he will ask ME to remind him of something and I just reiterate it right then and there. I have told several times I can't remember what he tells me to remind him off. I don't rememeber appointments, conversations, events....which at times really surprizes me. Especially the appointments. If I write them down I forget where I put them. Now I am to understand this may get worse??? I don't have a doctor telling me what to expect. If I don't feel right physically, I go to the emergency room. They give me pain medicine...sometimes admit me for a week at a time but I learn nothing new about my condition. When I was last in hospital I was there for 2 weeks. They kept me b/c of my ammonia level. Before then...I knew nothing about a body making ammonia and burning brain cells. Sometimes I am afraid to learn more. Tannya > > > > > > > Sometimes quiet times can be a great blessing...it helps you > > put your thoughts into perspective. When my husband left for > > awhile with his brother...It seemed very strange to me. I could > > hear a pin drop in the house. Turning on some nice music: opening > > up the windows when it is warm outside; Bringing in some blooming > > flowers and placing them in a vase (not for those who had transplants) > > Making some cold ice tea; counting my blessings; writing and sending > > notes to loved one just to remind them that I care about them; > > taking a warm bath and using some fragrant soap I never used before.... > > > > You are never really alone...God is with each one of us. Plus, you > > have tons of internet friends that truly care about you. > > > > This will make you smile. I have a real wild turkey. I call him > > Tommy Twotwo. I can pet him and talk with him and he eats out of > > my hand. He hurt his toe...somehow he tore off the nail...he bled > > quite alot. He is doing better now. My husband gave me a high > > power flashlight to go out and check on him after dark. He knew > > I was worried about him, but he didn't want to do it for me. > > I got half way when I fell over the pipe that is coming up out of > > the ground where our old well used to be. It is capped. Fell > > over it right on my face, bent my glasses all up. My husband > > started howlering from the window about why his stupid wife didn't > > have the high power flashlight on. It was because I didn't want > > to scare the birds and get them all stirred up. I was afraid they > > fly up and hurt themselves.. .instead, I was the one who got hurt. > > I had tons of room all around that pipe to walk...just hit that > > one spot where it happened to be. Since I have a huge red mark > > on my nose now..my husband informs everyone, who sees me, what I did. > > > > > > > > -- > Jan H > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Tannya - is there any way you can qualify for some type of state or county insurance? I have a very low income so I qualify and thus I am alive 5 years after I was told I would die. I too have the memory problems you mention. I live in a town where the average age is 67, and everybody tries to tell me it is just age. I am 65. But you don't change as quick as I did just because you get a year or two older. My grandson had brain surgery 3 years ago. At that time he had insurance, but he doesn't have that insurance now, it was only for people under 21. He is getting symptoms similar to what he had before the surgery so he has had to work fewer hours so he qualifies for the same low income state insurance I have. I have a friend from high school who had had a kidney transplant last year. She didn't want to go online and research the possibilities, the problems, the recovery, etc. I did a lot of research and after a while when she was waiting for her transplant, I let her know that I had found out a lot of info. So, she gradually started asking me questions. If I didn't do the research on my various diseases, I would probably be a nervous wreck. But then researching and wanting to know things, anything, is part of my personality I guess. Probably why I worked as a reporter for awhile. When I do search and find something interesting, I bookmark it and have it available in my favorites under medical. I don't expect that I will remember everything which caused me to want to keep it in the first place. Some times I print out especially interesting articles, but usually can't find them when I want to read them again. Have you ever used a planner or an organizer? I would never make a dr. appt if I didn't have mine. I write all my appointments in the calendar, with notation of who it is with, the address and telephone number and sometimes the fax if they indicate I will need that. It also makes it easier with all my dr. appts not to book two appts in two different towns at the same time. I also have all my doctors listed on a special page in my phone directory. I can't remember the meds I take to say nothing of the dosage so I have a sheet I carry with me which lists them all, dosage and how often taken. The sheet also has supplements doctors have suggested I take, and I would suggest that anyone who does this notes why they were supposed to take them. I have all my medical conditions listed, all my surgeries and procedures, my family history and all the doctors currently seeing with their phone numbers in case the doctor whose office I am in wants to consult with one of the others. This all takes about a page and 1/2, and all the staff in the doctor's office and the doctors really like it. I update it as needed. Especially for someone going to an emergency room it is really nice to have. I started mine on the advice of an ER doctor. The more you learn the more you can do to help yourself. Has anyone told you to eat a low protein diet. You mentioned high ammonia levels. That could be caused by protein. How were you diagnosed with cirrhosis? Have you had a biopsy? If so, what stage did they say you were in? What led the doctors to suspect you might have cirrhosis? You really need to get some insurance coverage and get a regular liver specialist to find out where you stand. Some of your symptoms are familiar to all of us, some to just a few and could be caused by something else if you haven't had a biopsy. Jan H On Fri, Jun 5, 2009 at 12:55 PM, Toni forever wrote: > > > I am not going to lie...this is very difficult. I've known about my disease > for 2 years but not knowing how bad or what to expect has been the worst. My > memory is'nt like it used to be...and I could'nt explain it. In fact I used > to have a great memory. Now the running joke between my husband and I is he > will ask ME to remind him of something and I just reiterate it right then > and there. I have told several times I can't remember what he tells me to > remind him off. I don't rememeber appointments, conversations, > events....which at times really surprizes me. Especially the appointments. > If I write them down I forget where I put them. Now I am to understand this > may get worse??? > I don't have a doctor telling me what to expect. If I don't feel right > physically, I go to the emergency room. They give me pain > medicine...sometimes admit me for a week at a time but I learn nothing new > about my condition. When I was last in hospital I was there for 2 weeks. > They kept me b/c of my ammonia level. Before then...I knew nothing about a > body making ammonia and burning brain cells. > Sometimes I am afraid to learn more. > Tannya > > > > > > > > > > > > > > Sometimes quiet times can be a great blessing...it helps you > > > put your thoughts into perspective. When my husband left for > > > awhile with his brother...It seemed very strange to me. I could > > > hear a pin drop in the house. Turning on some nice music: opening > > > up the windows when it is warm outside; Bringing in some blooming > > > flowers and placing them in a vase (not for those who had transplants) > > > Making some cold ice tea; counting my blessings; writing and sending > > > notes to loved one just to remind them that I care about them; > > > taking a warm bath and using some fragrant soap I never used before.... > > > > > > You are never really alone...God is with each one of us. Plus, you > > > have tons of internet friends that truly care about you. > > > > > > This will make you smile. I have a real wild turkey. I call him > > > Tommy Twotwo. I can pet him and talk with him and he eats out of > > > my hand. He hurt his toe...somehow he tore off the nail...he bled > > > quite alot. He is doing better now. My husband gave me a high > > > power flashlight to go out and check on him after dark. He knew > > > I was worried about him, but he didn't want to do it for me. > > > I got half way when I fell over the pipe that is coming up out of > > > the ground where our old well used to be. It is capped. Fell > > > over it right on my face, bent my glasses all up. My husband > > > started howlering from the window about why his stupid wife didn't > > > have the high power flashlight on. It was because I didn't want > > > to scare the birds and get them all stirred up. I was afraid they > > > fly up and hurt themselves.. .instead, I was the one who got hurt. > > > I had tons of room all around that pipe to walk...just hit that > > > one spot where it happened to be. Since I have a huge red mark > > > on my nose now..my husband informs everyone, who sees me, what I did. > > > > > > > > > > > > > -- > > Jan H > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Do you take Kristalose or lactilose? They helps to move the toxins out of your body and it has really helped my memory. Lots of hugs and kisses to everyone. Lyncia > > > > > > > Sometimes quiet times can be a great blessing...it helps you > > put your thoughts into perspective. When my husband left for > > awhile with his brother...It seemed very strange to me. I could > > hear a pin drop in the house. Turning on some nice music: opening > > up the windows when it is warm outside; Bringing in some blooming > > flowers and placing them in a vase (not for those who had transplants) > > Making some cold ice tea; counting my blessings; writing and sending > > notes to loved one just to remind them that I care about them; > > taking a warm bath and using some fragrant soap I never used before.... > > > > You are never really alone...God is with each one of us. Plus, you > > have tons of internet friends that truly care about you. > > > > This will make you smile. I have a real wild turkey. I call him > > Tommy Twotwo. I can pet him and talk with him and he eats out of > > my hand. He hurt his toe...somehow he tore off the nail...he bled > > quite alot. He is doing better now. My husband gave me a high > > power flashlight to go out and check on him after dark. He knew > > I was worried about him, but he didn't want to do it for me. > > I got half way when I fell over the pipe that is coming up out of > > the ground where our old well used to be. It is capped. Fell > > over it right on my face, bent my glasses all up. My husband > > started howlering from the window about why his stupid wife didn't > > have the high power flashlight on. It was because I didn't want > > to scare the birds and get them all stirred up. I was afraid they > > fly up and hurt themselves.. .instead, I was the one who got hurt. > > I had tons of room all around that pipe to walk...just hit that > > one spot where it happened to be. Since I have a huge red mark > > on my nose now..my husband informs everyone, who sees me, what I did. > > > > > > > > -- > Jan H > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 I have a new granddaughter today. She is 2lbs 3 oz...........please say a prayer for my Hallie Hall. Lots of hugs and kisses to everyone. Lyncia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 She has my prayers. Many babies smaller than that make it today, so don't give up. How far along was the mother? Jan H > > > I have a new granddaughter today. She is 2lbs 3 oz...........please say a > prayer for my Hallie Hall. > > > Lots of hugs and kisses to everyone. > Lyncia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 29 ir 30 weeks along. Thank you. Lots of hugs and kisses to everyone. Lyncia > > > I have a new granddaughter today. She is 2lbs 3 oz.......... .please say a > prayer for my Hallie Hall. > > > Lots of hugs and kisses to everyone. > Lyncia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 Its done the prayer is sent .....my friend had a baby only 20 somthing weeks 1lb 12 oz ...the baby is home now with mom and dad doing well. sandra ________________________________ To: livercirrhosissupport Sent: Monday, June 8, 2009 9:38:13 PM Subject: Re: Lyncia 29 ir 30 weeks along. Thank you. Lots of hugs and kisses to everyone. Lyncia > > > I have a new granddaughter today. She is 2lbs 3 oz.......... .please say a > prayer for my Hallie Hall. > > > Lots of hugs and kisses to everyone. > Lyncia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 I have sitting in my spare bedroom my 21 year old grandson who is now about 6 ft, and a healthy weight. He was born a month premature, weighed 4 pounds 13 ounces when he was born, gained two ounces before he left the hospital, Was so short we could put his head in our hands and his butt and legs at the elbow. My daughter was working when he was born, so I went to school in the morning. came home on the bus, she got on and handed me the baby. Sometimes I took him shopping when I had to pick up some things, and the amazing thing is that it was the older men who would pull on their wives arms and tell them they had to come over and see this tiny little baby. Less than 5 pounds 21 years ago was very serious, but he just didn't let anybody stop him ( he was a preemie because he kicked his foot through into the birth canal), and he had caught up before he was 6 months old. Now they know a lot more than they knew then to help these little ones. Jan H > > > Its done the prayer is sent .....my friend had a baby only 20 somthing > weeks 1lb 12 oz ...the baby is home now with mom and dad doing well. sandra > > ________________________________ > > From: Lyncia <lmlangdon@... <lmlangdon%40yahoo.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Monday, June 8, 2009 9:38:13 PM > Subject: Re: Lyncia > > 29 ir 30 weeks along. Thank you. > > Lots of hugs and kisses to everyone. > Lyncia > > > > > > > > > > > I have a new granddaughter today. She is 2lbs 3 oz.......... .please say > a > > prayer for my Hallie Hall. > > > > > > Lots of hugs and kisses to everyone. > > Lyncia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Congratulations!!! MaC Subject: Re: Lyncia To: livercirrhosissupport Date: Monday, June 8, 2009, 5:43 PM I have a new granddaughter today. She is 2lbs 3 oz.......... .please say a prayer for my Hallie Hall. Lots of hugs and kisses to everyone. Lyncia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 oh yes.... i am sorry i forgot to say this...Congratulations Grandma!!! ________________________________ To: livercirrhosissupport Sent: Monday, June 8, 2009 11:14:15 PM Subject: Re: Lyncia Its done the prayer is sent .....my friend had a baby only 20 somthing weeks 1lb 12 oz ...the baby is home now with mom and dad doing well. sandra ____________ _________ _________ __ From: Lyncia <lmlangdonyahoo (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Monday, June 8, 2009 9:38:13 PM Subject: Re: Lyncia 29 ir 30 weeks along. Thank you. Lots of hugs and kisses to everyone. Lyncia > > > I have a new granddaughter today. She is 2lbs 3 oz.......... .please say a > prayer for my Hallie Hall. > > > Lots of hugs and kisses to everyone. > Lyncia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 ohhh lyncia so excited for you a new gandbay to love. now she is being lifted up,prayers and faith. let me share with you about preemies,Harlie was born at 27 weeks erica was toxic and they were both dying,she had to be delivered.she weighded 1 lb. 8 oz. ,she had no apgar score,no anything, they saved her not once but 3 times,she stayed at the nicu at vanderbuilt for 3 months, she came home on my birthday...what a great present huh?!i remember the first time i saw her i gasped i could see thru her ,she was soooo tiny ,wires everywhere,i was scared ,i thought how can this tiny thing live....GOD thats how,HE watches over them and us. there is a picture of Harlie and me in my photo album, take a look, shes my heart i love her dearly,maybe because of her rough start maybe cause shes so angelic but mostly shes just her ...my miracle grandbaby. it did take her awhile to catch up, she was neg. 3 months in age for several yrs,and we enrolled her in a program called FIRST STEPS. they would come to my house and teach her to sign cause she wouldnt talk ,they said she had autism,then said no maybe shes just on the wheel somewhere. well let me tell you,she proved all those drs. wrong, at 5 yrs. old shes smart as a whip, and her last IEP from school says she right on her targeted age group. so as one of her nurses told us at vandy most preemies will outgrow their preemiturity by 6 yrs old and she has.i praise GOD everyday for his mercy and love.now she does have chronic lung disease from under devoploped lungs but she gets her meds. daily and had 2 inhalers and will be re-evaluated soon to see if she needs all these meds. still. Now i tell you all this ,because sometimes drs. can scare the hell out of us and not knowing is even scarier, i wanted you to know that it is possably to be born early and be a normal happy healthy thriving child. Hallie is in good hands GODS and these wonderful nicu drs.!! she will be in my thoughts and prayers constantly please keep me posted...i love her already,much love barby--- In livercirrhosissupport , Lyncia wrote: > > I have a new granddaughter today. She is 2lbs 3 oz...........please say a prayer for my Hallie Hall. > > > Lots of hugs and kisses to everyone. > Lyncia > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 oh i forgot to ask, are you close to the hosp. shes in??? clothes will be hard to find but there is a lady here that makes tiny clothes, we bought doll clothes for harlie till we found her, if you need help with anything for that sweet little miracle please let me know what i can do!!!tell her mommy and daddy to have Faith and we are all praying for them.please please keep us posted ..a daily update would be good teehee. much love and concern barby > > > > I have a new granddaughter today. She is 2lbs 3 oz...........please say a prayer for my Hallie Hall. > > > > > > Lots of hugs and kisses to everyone. > > Lyncia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Congratulations on your new granddaughter. In April my niece gave birth to twins that were 3 lbs each. They are now doing wonderful and keeping her very busy. Will keep Hallie in my prayers. Maureen > > I have a new granddaughter today. She is 2lbs 3 oz...........please say a prayer for my Hallie Hall. > > > Lots of hugs and kisses to everyone. > Lyncia > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Hi Lyncia, Congrats on your new grandbaby. I hope all goes well. Penny > > > > I have a new granddaughter today. She is 2lbs 3 oz...........please say a prayer for my Hallie Hall. > > > > > > Lots of hugs and kisses to everyone. > > Lyncia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 And, when she is ready to come home, you can get tiny little diapers from medical supply. or used a bunch of kleenix, look about the same. lol Jan H On Tue, Jun 9, 2009 at 7:17 AM, pinkmeetsblue wrote: > > > oh i forgot to ask, are you close to the hosp. shes in??? clothes will be > hard to find but there is a lady here that makes tiny clothes, we bought > doll clothes for harlie till we found her, if you need help with anything > for that sweet little miracle please let me know what i can do!!!tell her > mommy and daddy to have Faith and we are all praying for them.please please > keep us posted ..a daily update would be good teehee. much love and concern > barby > > > > > > I have a new granddaughter today. She is 2lbs 3 oz...........please > say a prayer for my Hallie Hall. > > > > > > > > > Lots of hugs and kisses to everyone. > > > Lyncia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Thanks.......no update on Hally. My son has stayed with his wife and he won't talk about the baby yet....only that the doctors are taking care of her.....In the " Olden " days, I would have been there to visit. My other son is taking off on Friday to take me to see the baby. Lots of hugs and kisses to everyone. Lyncia > > > oh i forgot to ask, are you close to the hosp. shes in??? clothes will be > hard to find but there is a lady here that makes tiny clothes, we bought > doll clothes for harlie till we found her, if you need help with anything > for that sweet little miracle please let me know what i can do!!!tell her > mommy and daddy to have Faith and we are all praying for them.please please > keep us posted ..a daily update would be good teehee. much love and concern > barby > > > > > > I have a new granddaughter today. She is 2lbs 3 oz.......... .please > say a prayer for my Hallie Hall. > > > > > > > > > Lots of hugs and kisses to everyone. > > > Lyncia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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