Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 -SCHAFER AUTISM REPORT " Healing Autism: No Finer a Cause on the Planet " ________________________________________________________________ Wednesday, December 31, 2003 Vol. 7 No. 258 ADVOCACY * Drink and Drive for Autism? Colorado Bill Would Help Autistic Kids RESEARCH * Can Strep Throat Cause Behavior Disorder? TREATMENT * New Therapy Surfaces In The Treatment Of Autism, Brain Injuries * Hi-Tech Music Based Learning Applications Developed for Very Young CARE * A Special Garden Grows in Arizona * Wisconsin Expands Special Needs Services EDUCATION * Charter Elem School for Autistic Up for Vote: 2 PA School Dists PUBLIC HEALTH * Scientists, Consumer Grps Debate Individual Disasters, General Good LETTERS * On " The Politics of Autism. Lawsuits and emotion vs. science and childhood vaccines, " WSJ December 29, 2003 * Sensory Integration, GFCF Diets and Secretin Junk * Time For The Truth ADVOCACY Drink and Drive for Autism? Colorado Bill Would Help Autistic Kids Proposal would tack surcharge on fines for drunken driving [by J. Sanko, Rocky Mountain News.] http://rockymountainnews.com/drmn/legislature/article/0,1299,DRMN_37_2539400 ,00.html Motorists caught driving drunk in Colorado could help fund programs for hundreds of autistic children. Sen. Ken Gordon, D-Denver, said Monday he intends to introduce legislation to impose a $20 surcharge on fines levied against drivers convicted of driving while drunk or impaired. That's on top of an existing $20 surcharge for the Brain Injury Trust Fund. Gordon estimates that a new surcharge would raise about $1.5 million in the first year. With matching federal Medicaid money, it could fund early treatment for autistic children, he said. Autism is a neurological disorder that occurs in as many as six of every 1,000 children, although it's four times more prevalent in boys than girls, according to the Centers for Disease Control and Prevention. The University of Colorado Health Sciences Center and its JFK Center for Developmental Disabilities estimate there are 700 children born every year in Colorado who will be diagnosed with autism by two. Autistic children often have difficulty in verbal communication, social interaction and play activities, according to the Autism Society of America. Early treatment can save millions by slashing the cost of special education for the children in schools and helping many lead productive adult lives, Gordon said. But because of the cost, which ranges between $20,000 and $60,000 a year per child, many receive little or no treatment. “It just makes sense,” said Betty Lehman, executive director of the Autism Society of Colorado. “This kind of early treatment cuts lifetime costs of care by over two-thirds. And for every $1 in early intervention, it saves $6 in special education costs. “Some legislators scream, 'Oh, no, our budget is being consumed by Medicaid,' but when you look at these figures, it's really one of the best ways to spend our money.” Recent economic cutbacks have been tough on families with autistic children. The Rocky Mountain Autism Center in Denver was forced to close in August. A bill in the 2000 session that would have started a small pilot Medicaid program for 25 autistic children was vetoed by Gov. Bill Owens because of its potential cost. Gordon, Lehman and others have been working to win the administration's support for the legislation, which will be introduced when the 2004 session starts next month. “The governor certainly will be interested in seeing what this proposal is,” said Owens' spokesman, Dan Hopkins. Despite the governor's veto of the bill in 2000, Hopkins noted that Owens has supported increased funding for all developmentally disabled, including those with autism. Colorado expects to spend about $283 million in the current fiscal year to serve more than 7,000 children with developmental disabilities, including some with autism. “The governor has clearly been concerned about developmentally disabled and has steadily increased funding to help them,” Hopkins said. “We'll look closely at what they're proposing.” Lehman said an estimated 520 children would be eligible for the proposed Medicaid waiver program in any given year. Some 130 are eligible for Medicaid because of poverty and disability. The money raised under the new program would help an estimated 120 to 150 youngsters a year get therapy, with a $25,000 annual cap. The age limit would be 8. Children would be eligible for benefits for three years, with a possible one-year extension. “The general public has not realized that autism is treatable,” said Lehman, who has a 15-year-old with autism. “Can you imagine the impact on a family to know their child has a condition that's treatable and they can't afford it? “This program is not like signing up for life. The child gets the benefit of intensive intervention at an early age and then it's over. Then a child is able to learn in school. And then school can be so much more effective.” -- > DO SOMETHING ABOUT AUTISM NOW < -- SUBSCRIBE. . . ! . . .Read, then Forward the Schafer Autism Report. (Delivered Fresh Daily to Your Emailbox) To Subscribe http://home.sprynet.com/~schafer/ Or mailto:subs@... No Cost! _______________________________________________________ * * * RESEARCH Can Strep Throat Cause Behavior Disorder? Some say more research needed, but others say problem is rare but real. [by Ann Roser for the American-Statesman.] http://www.statesman.com/metrostate/content/auto/epaper/editions/tuesday/met ro_state_f31f32b13469127b00c1.html A child gets strep throat and soon after -- overnight, in some cases -- is consumed with hand washing, checking light switches or some other repetitive behavior. Panicked parents who witness this bizarre marriage of events are left to wonder: Did the strep infection cause their once-healthy child to suddenly develop a life-changing disorder? It's the subject of intense medical research and makes some parents shudder as sore-throat season bears down. Dr. Kaplan, a pediatrician at the University of Minnesota Medical School in Minneapolis and a streptococcal infection expert, thinks that more study is needed to determine a link between strep and obsessive-compulsive disorder. “Nobody is saying no,” said Kaplan, who is involved in a national research study on the rare disorder. “What thoughtful people are trying to say is, 'We need data.' “ Others in the medical community say the evidence they've seen -- including in their own patients -- confirms the link. “There's no doubt in my mind,” said Bruce Mansbridge, director of the Austin Center for the Treatment of Obsessive-Compulsive Disorder. “Sore throats need to be taken more seriously than they are.” Austin pediatric psychiatrist Streusand said that he hasn't seen children with strep-induced obsessive-compulsive disorder in his practice but that he doesn't doubt the connection. Some of those patients could be predisposed genetically to obsessive-compulsive disorder, he suggested. “We just don't know what to make of it yet,” Streusand said. “I would predict we're going to know a lot more down the road about it.” Obsessive-compulsive disorder, by itself, is a puzzle. Those who have it are obsessed with thoughts or worries that are exaggerated or senseless. Some worry about contamination; others have nagging doubts about whether doors were locked or appliances shut off. Some fear they'll harm others. The worries lead to compulsions, or repetitive checking, rituals and other behaviors that the person feels powerless to stop, even when he believes the worries are irrational, Mansbridge said. National experts estimate that 1 percent to 3 percent of the population has obsessive-compulsive disorder. No one knows what causes it, but strep was singled out more than a decade ago by Swedo and her associates at the National Institute of Mental Health. The disorder was named PANDAS, or Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcus. No one knows how many children with strep infections will develop the strep-related disorder, Mansbridge said: “That's the $64 question.” The National Institutes of Health says that although strep is common, PANDAS is rare. It is characterized by a sudden onset of obsessive-compulsive disorder after a strep infection. The child gradually improves, and the behavior disorder fades. But with another infection, the compulsive symptoms come back. “Sometimes, the obsessive-compulsive symptoms occur several months after the initial infection,” Mansbridge said, which makes the disorder all the more puzzling. Researchers think the strep infection triggers the behavioral disorder when antibodies the body makes to attack the strep get confused. The confusion occurs because part of strep cells look like human tissue. The antibodies attack these look-alike cells deep within the brain, mistaking them for foreign strep germs and causing the disorder to emerge. Mansbridge said that regardless of the cause of the compulsive behavior, his treatment is the same. He uses cognitive behavior therapy. Sometimes, medication also is required. “With children, there's a bit more reluctance to prescribe drugs,” Mansbridge said. He urged parents to seek quick treatment for strep throat and isolate the child from other youngsters for 24 hours after starting the antibiotics. Kaplan said the parents he sees are beside themselves. “It's not uncommon for parents to show up with a pile of papers off the Internet,” he said, adding that some people have associated strep infections with autism, attention deficit disorder and eating disorders. “My approach is to sit down with the parents and explain to them in 45 minutes to an hour . . . what we know, what we don't know and what the questions are.” In some severe cases, children with the disorder have been treated with a plasma exchange to remove strep antibodies from the blood. Another treatment is intravenous immunoglobulin, which neutralizes the antibodies, Mansbridge said. As the debate over the disorder ensues, doctors recommend treating all strep infections with antibiotics and completing the prescribed course. Most of the time, Mansbridge said, strep throat is no huge deal. Once in a while, it is. * * * TREATMENT New Therapy Surfaces In The Treatment Of Autism, Brain Injuries 'Unlimited Potential' program offers hope [The treatment described below is chiropractic in nature. There is no mention whether the described regimen has been tested for efficacy and safety. This news clipping is presented for our readers’ information only and is not a suggestion for treatment. By Barbara Rolek for Times Online of North West Indiana.] http://www.thetimesonline.com/articles/2003/12/30/news/top_news/7fc52c35f293 5e2a86256e0c00119cbe.txt Harvey is a little preoccupied and logical to the point of irritation. A typical gifted child. In truth, the 10-year-old Munster boy has Asperger's disorder. Many cases of this syndrome go undiagnosed because it is assumed that a child with a high IQ is bound to act differently. According to the American Psychiatric Association, Asperger's is one of five disorders that fit under the umbrella of Pervasive Developmental Disorders (PDDs). Others include autistic disorder, childhood disintegrative disorder and Rett's disorder. While the association classifies Asperger's as a separate disorder from autism, many professionals still consider it to be a less severe form of autism. “People with PDDs have an imbalance in the brain; they missed a step in their development and some connections are incomplete. Through examination, we determine which side of the brain is damaged and begin to build connections between the neurons,” said Dr. Dalynn Brummett, a board-certified chiropractic neurologist who practices in Highland and Valparaiso. Brummett has introduced a new therapy to Northwest Indiana, called the Unlimited Potentials Program, for people of all ages and a spectrum of diseases, including PDDs, attention deficit hyperactivity disorder, stroke, Tourette's, multiple sclerosis, Parkinson's disease, behavioral disorders and brain trauma. “Unlimited Potentials is a drugless therapy that creates permanent change in the brain,” Brummett said. Therapy usually consists of two to three one-hour sessions that include chiropractic adjustments, light, sound and aroma stimuli, use of the Interactive Metronome -- a computer-based tool that addresses attention, learning and cognitive problems -- and musculoskeletal, balance and aerobic exercises. Harvey is one of her patients. At an early age, Harvey noticed he lacked reciprocal conversation. When he was stressed, he would spin, walk on tiptoes, tap, sing or hum. He was eccentric and spoke like a robot. “The other kids got annoyed and thought he was just weird,” she said. Harvey knew it was something else. Because her 15-year-old son also has Asperger's, she knew the signs. Her 17-year-old daughter does not have a PDD. has been on Brummett's program for the last two months and Harvey said she sees a noticeable difference. also is seeing a change. “Kids at school like me more. I'm better at volleyball and basketball, I'm sleeping better and I'm behaving better at home now,” said , who is a fifth-grader at Eads Elementary School in Munster. + Article continues: http://www.thetimesonline.com/articles/2003/12/30/news/top_news/7fc52c35f293 5e2a86256e0c00119cbe.txt <- - address ends here. * * * Hi-Tech Music Based Learning Applications to be Developed for Very Young [From a company announcement on Business Wire by Xybernaut Corp., Fairfax Binko, mbinko@....] http://www.stockhouse.com/news/news.asp?tick=XYBR & newsid=2079960 Xybernaut Corporation and Horace Hopper's Musical Adventures today announced they will collaborate to develop applications in early learning that utilize advanced computer based programs which are effective in both normal and special needs child populations. Under terms of the agreement Xybernaut and Horace Hopper will combine the mobile/wearable technologies of Xybernaut with the research driven educational software developed by Horace Hopper's Musical Adventures. Xybernaut has been involved with early education, especially with the special needs children, through their XyberKids assistive technology system. For the past year, Xybernaut and Horace Hopper have discussed ways to collaborate in developing new products in this area. Horace Hopper uses music to increase language and other cognitive skills for children from ages 2-10. The company has won five national awards and their products are used in hundreds of schools across the United States. In a study published last year by Dr. Christee Jenlink, Chair of the department of Educational Foundations and Leadership at Northeastern University in Oklahoma, there was a 48% increase in math development among four-year-old children and a 23.5% increase in verbal skills in three-year-old children when using the Horace Hopper program. A new Horace Hopper CD-ROM program using 500 MB of audio samples and graphics designed to define and strengthen the link between critical listening and verbal responsiveness is now at the end of an eight-month evaluation study in the Oklahoma City school system. It was tested among students diagnosed with autism and Aspergers disorder in one school and those with profound developmental delay caused by cerebral palsy, mental retardation, Downs Syndrome, fetal alcohol syndrome and environmental deprivation in the second school. Early results show increases in verbal skills and in the ability of some children to appropriately respond to their environment. The heart of the new CD-ROM program, according to Dr. Max Fomitchev, a specialist in computer engineering and consultant to Horace Hopper Inc., is an interactive library of 430 essential words (audio samples) that are sung in the program by the computer and 860 graphic displays of the words. Children learn to sing pitches in four languages to develop critical listening. Painting with music, spelling with notes, learning rhythmic patterns are all designed to stimulate the area of the brain that performs much of the cognitive functions in language and math. Tash Manufacturing in Canada has provided a USB click switch, the 'Hopper Bopper,'that has been incorporated into the interactive design. This 5-inch diameter button is used to trigger responses in pitch recognition, tonal memory, melodic timing, spelling with musical notes, painting with music, drum sounds, and the interactive library. Lonnie Liggitt, president of Horace Hopper, states; 'With the Xybernaut team we believe we can accelerate and organize the learning patterns of the very young. We believe we can reach the hundreds of thousands of children in our schools and homes who have difficulty learning because of disease, genetic eccentricity, or physical trauma and live lives of isolation and deprivation. We use music as a delivery system because it works. It breaks through the learning filters found in these young children. One child in ten thousand has perfect pitch--one in twenty autistic children have it. We start from there. With advanced voice recognition and the right programming, we hope to build computers that will be capable of nurturing a transference relationship with the child and use music and other tools to build paths to the outside world.' About Xybernaut Xybernaut Corporation is the leading provider of wearable/mobile computing hardware, software and services, bringing communications and full-function computing power in a hands-free design to people when and where they need it. Headquartered in Fairfax, Virginia, Xybernaut has offices and subsidiaries in Europe (Germany) and Asia (Japan). Visit Xybernaut on the Web at www.xybernaut.com. More information about Horace Hopper's Musical Adventures can be found on the Internet at www.preschoolmusic.com. * * * CARE A Special Garden Grows in Arizona Landscape geared to special needs [by Anne Ryman for The Arizona Republic.] http://www.azcentral.com/arizonarepublic/local/articles/1230negarden30.html sdale - When special-needs students at Coronado High School return from winter break, they will have a new handicapped-accessible garden, thanks to the contributions of a Coronado graduate. Terry Letterly, a 1967 graduate of Coronado, has donated his landscaping skills to transform an 1,800-square-foot plot of dead grass into a usable space for students. Students will use the garden to plant flowers and vegetables. “We're thrilled, absolutely elated,” teacher Robin Keim said. Letterly, who owns Stone Creek Landscape, decided to get involved after reading on the school Web site that Coronado was looking for donations for a garden. “It just kind of blossomed from there,” said Letterly, who lives in sdale. What they were looking for, Keim said, were a few bags of soil and maybe some plants. What they will get, thank to Letterly, is a garden with stabilized granite paths that accommodate wheelchairs. Shrubs, a tree and park benches are all being installed in coming days. Five round planters are raised from the ground so students in wheelchairs can reach them easily. On Monday, a crew of six workers installed the planters. Letterly and his crew are doing the work. The project also received donations of materials from Ewing Irrigation, Phoenix Precast Products and JAH Associates. Coronado High School, near and Oak streets, is one of the oldest high schools in the sdale Unified School District. It was built in 1961. The garden site is on the northern side of the campus just outside classrooms. The garden's benefits extend beyond just making the campus nicer. Students will be exposed to job skills related to nursery work, and autistic students will benefit from the sounds and sights the garden will provide, Keim said. Students can work on their listening skills and learn to follow directions by planting flowers and seeds. “It's going to hold a lot of possibilities,” teacher Joe Schmidt said. * * * Wisconsin Expands Special Needs Services [by Madden for the Wausau Daily Herald.] http://www.wausaudailyherald.com/wdhlocal/280221059604871.shtml Parents of children with special needs might notice small changes in assistance next year, but a big change will help groups not currently covered by state programs. “There won't be noticeable changes, just additional services for parents,” said Weitz, Portage County supervisor for Developmental Disability Services. “There's waiver money for people who didn't have it in the past.” To get more federal money to help children with physical, developmental and emotional disabilities, the state applied for waivers under federal programs. The federal government recently approved the waivers and the state must move quickly to take advantage of the new funding that begins Thursday, said Dave Bast, Wood County Unified Services director. Some parents will notice a difference in how programs are managed in Wood County, Bast said. While the Social Services Department is managing physical and mental health programs for children, Unified Services will handle the program dealing with developmental disabilities. Although the same funding will be there for children covered under programs in the past, parents might need to go through a different office to get financial assistance, Bast said. In Portage County, all the programs are covered by the Human Services Department. Parents will deal with the same people they were working with when the funding came from the state, Weitz said. Those who will see the greatest change are parents of autistic children, Bast said. The counties will have access to additional funding for intensive services for children with forms of autism not previously covered. “There's some target groups that weren't served in the past that will be served now,” Weitz said. Children with emotional or physical disabilities will be targeted by the new waivers, Weitz said. Some types of autism cause emotional disabilities, and those were not covered in the past. Children with autism can fall into a wide spectrum of the illness. Children with autism tend to shut down and not connect with their environment, Bast said. Studies have shown that if they receive help early, they can make progress. Because the state had to move quickly to put the new programs in place, it asked counties to make a commitment to administer the programs with little notice, Bast said. The verbal commitment can be opted out of later, he said. About 80 percent of the counties in the state have notified the state they will administer the program, Bast said. In counties that did not commit, the programs will be administered by an independent agency contracted by the state. * * * EDUCATION Charter Elem. School For Autistic Up for Vote With 2 PA School Districts executive director and director of the Network for Behavior Change, a group psychological practice. The school boards are expected to vote on the charter school in February or March. The Spectrum Charter School in Allegheny County is the only school in Pennsylvania specifically for autistic students. Its students are between the ages of 13 and 21 * * * PUBLIC HEALTH Scientists, Consumer Groups Debate Individual Disasters, General Good Such considerations as mercury's problems and the risks of autism and allergies come to fore. [Public health officials increasingly find vaccine safety a matter on the public table for debate. By Kathleen O'Dell for the News-Leader.] Public health officials say the benefits of childhood vaccines outweigh the risks. During the second half of the 20th century, immunizations helped eradicate smallpox and polio and have almost eliminated tetanus, diphtheria, mumps and the congenital rubella syndrome. They have also reduced the incidence of measles, pertussis and meningitis. Consumer groups raising concerns about the risks say they are not anti-vaccine. But they want federal health officials to use what they know to make vaccines safer. Many scientists, doctors and parents believe that states' overzealous vaccination policies have contributed to dramatic increases in asthma, allergies, learning disabilities, autism, attention-deficit disorder, diabetes and other chronic neuroimmune illnesses. Their call for change in vaccines has prompted a fractious debate within medical and research communities. Here are some of the health issues: Mercury dangers The biggest debate now is whether mercury toxicity from multiple vaccines causes childhood autism. A mercury-based preservative called thimerosal is used to kill any live contaminants in childhood vaccines. It usually is added to a vaccine stored in a multidose vial. In rare instances, researchers say it causes allergic reactions. At much higher doses, mercury is a known cause of irreversible nerve and brain damage, especially before birth and in the first six months of life. The World Health Organization says there are no safe levels of mercury. In 1999, the U.S. Food and Drug Administration disclosed that the amount of mercury in vaccines exceeded EPA safety guidelines. Manufacturers were asked to remove thimerosal, although existing stocks were left on the shelves, said Sally Bernard, executive director of the consumer advocacy group Safe Minds. That and other groups say medical research links mercury toxicity to childhood autism and related disorders. In particular, pediatric neurologist Bernard writes that the increase in autism rates coincides with the addition in the early 1990s of two new thimerosal vaccines to the infant immunization schedule. Her group and others say the symptoms of mercury poisoning match the abnormalities they see in their autistic children. Allergic reactions The 2000 Report of the Committee on Infectious Diseases said allergic reactions to vaccine ingredients are rare. The most common difficulties tend to happen in people with hypersensitivities to chicken or eggs, mercury, certain antibiotics or gelatin. Diabetes link Some consumer groups believe, based on medical research, that the effect of a vaccine on insulin-dependent diabetes may exceed the effect of a vaccine on an infectious complication. One research study appearing on various Internet sites shows that even a small rise in insulin-dependent diabetes after immunization — such as 200 cases per 100,000 individuals — can result in a large number of children developing diabetes. For parents, confidence in their doctor is one of the best tools when facing vaccination decisions. Springfield attorney Stacie Bil-yeu and her husband, Jody, have had their son , 4, and daughter Ruby, 2, immunized. She changed doctors because the first pediatrician was impatient with her questions. “It's day and night when you trust your doctor,” Bilyeu says. “You read about the problems, but when you read about what happens if they get polio or something, that's bad, too.” Her bottom line: “The odds of them having some sort of reaction to the vaccine is much less than the dangers of not having it.” Most parents in Springfield pediatrician 's practice opt for the vaccinations. “I sit down with them at each visit when I'm giving the vaccines and say what they'll get and what side effects there might be and why they're important,” says. She's confident in the recommendations of the Centers for Disease Control and the American Academy of Pediatrics. Adverse events Between 12,000 and 14,000 hospitalizations, injuries and deaths after vaccinations are reported to the federal Vaccine Adverse Event Reporting System each year. But those are just self-reported incidents and don't necessarily mean that many adverse reactions are caused by vaccines. The system is a national vaccine safety surveillance program co-sponsored by the FDA and the CDC. VAERS accepts all reports of adverse effects; not all are caused by vaccines. Some events may occur coincidentally. A variety of factors are considered by the program to determine whether the adverse reaction is related to a vaccination. Among those other factors: medical history and other medications given near the time of the vaccination. _______________________________________________________ LOOKING FOR SOMETHING - ANYTHING - ABOUT AUTISM? Search The Most Complete Autism News & Info Database The Schafer Autism Report -- Updated Fresh Daily . . .OR ASK A NEIGHBOR: Free Readers' Posts ________________________________________________________ * * * LETTERS On " The Politics of Autism. Lawsuits and emotion vs. science and childhood vaccines, " WSJ December 29, 2003. WSJ editor Gigot minimizes the manifestations of autism. Autism has greater negative physiological consequences than impeding social interaction. Children with [profound] autism: cannot talk; cannot learn as other children; have immune system damage; have damage to multiple bodily systems, which can cause organ damage; experience daily pain such as to the head and gastrointestinal system; cannot play productively; cannot eat as other children; cannot communicate needs or pain effectively; are trapped in a private maze of multiple sensory deficits, anomalies, confusion and fear; lack liberty, independence, self-empowerment, and decision-making capabilities; are prey to institutionalization and sexual abuse, etc. Parents neither want nor need a scapegoat for what has befallen their children -- parents need Reality -- a greater reality than that which was provided them in the offices of pediatricians who had gross misinformation trickled down to them. A greater reality than that which the current Republican administration is willing to provide. A reality that will admit to the true root of the condition, and, therefore, foster legitimate and effective treatments to alleviate their children's pervasive suffering. Representive Dick Armey and Senator Frist conspired to surreptitiously insert legislation into the Homeland Security Bill a year ago that protected wealthy pharmaceutical interests, which make large political campaign contributions. They slipped in the rider at the " 11th hour, " when other legislators voting on the Homeland Security Bill would not have time to read the full legislation on which they were voting. And so, that is why an agreement was made to take it out until a full airing of the issue could be accomplished. Senators Snowe, , and Chaffee courageously protected American children and the integrity of the judicial system by their taking a stand against a stealthy legislative move motivated by self-interest. One need look no farther than the Bush Administration to see how many members have had ties with Eli Lilly, the pharmaceutical manufacturer that held the patent for Thimerosal -- even Bush, Senior. Perhaps this is a reason why the Administration does not take a stand to protect American children. Perhaps large campaign contributions from the pharmaceutical industry is another reason that the Republican administration does not take a stand. The science implicating Thimerosal stands. There are approximately 5000 articles in the National Library of Medicine raising red flags with regard to the use of mercury products. There are current studies published in peer-reviewed journals. Warnings, which also were raised with the patent holder of the vaccine preservative, go back decades - prior to the autism epidemic. Better diagnosis has been ruled out. There has been a true autism epidemic. And there has NEVER been a recorded genetic epidemic. When additional vaccines were added to the childhood vaccine schedule, care was NOT taken to ensure that FDA guidelines for mercury were followed. Consequently, alarming excesses of mercury were injected into immunologically and neurologically vulnerable infants - an environmental trigger bypassing the normal defenses of the body - causing neurological harm and a set-up for further immunological harm. If mercury were not culpable with regard to the autism epidemic, then children would not experience recovery attributable to removing the mercury from their bodies. That just makes sense. If mercury were not a health hazard, then legislators and others would not warn the public about power plant emissions and consuming fish. That just makes sense. Maybe Frist and his wealthy corporate cronies should try to make sense while they're trying to take dollars. As for the parents of children with autism, they would gladly give up all of the dollars, lawyers, and lawsuits in the world just to have a healthy child. - Mrs. Teri Small Sensory Integration, GFCF Diets and Secretin Junk [The WSJ editorial] is a very straightforward opinion piece bolstered by references to real science. The National Autism Association’s response [is] both internally and externally inconsistent. Positions taken contradict themselves in one article ('rebuttal') and contradict other materials. To be convincing, it is important to have a clear, viable position. NAA has none such, only " There is something terribly wrong with my child and someone must be responsible for it. " I suggest working with your children directly, using the best available science (applied behavior analysis) and rejecting junk such as sensory integration, GFCF diets, secretin, and at least 100 other examples of flat out foolishness. The time spent pursuing vaccines or thimerosal as a cause, editorializing, testifying, communicating/commiserating with each other, publishing newsletters, etc. would be much better spent directly helping children and adults. That's what we do. - J Marone, PhD., San Francisco [Editor’s response: “That’s what we do.” - except when you’re writing one of dozens of letters to this newsletter.] Time For The Truth Just this year there have been three epidemiological studies published in peer-reviewed technical journals assessing the relationship of thimerosal in vaccines to autism in American children. The correlation is clear, more mercury in childhood vaccines means more childhood neurological disorders, including autism. Instead of citing these independent analysis of American children, the WSJ editor chooses to cite a Danish study written by an employee of the largest Danish vaccine manufacturer. You also cite the " Rochester study " -a study which conjectures wildly from a small, mostly irrelevant, data set. The Rochester Study's author, Pichichero also has clear ties with the vaccine industry. Yes, I am the father of a child with autism. No, I am not a driveling, emotional simpleton looking for someone to blame. Nor do I have a lawsuit filed against the vaccine manufacturers. On the contrary, I have long supported vaccine programs thinking they were best for our children. But, since my first allegiance is to the safety of my children, I can not accept the fact that this issue is not being dealt with directly. Thimerosal is clearly a risk which has never been proven safe. Not even close. And the Wall Street Journal runs opinion pieces which read like PR releases for the pharmaceutical industry. These are dark days for public health. Our overly-aggressive vaccination policy may have caused more damage to American families than Saddam Hussein and Osama Bin Ladin combined. It is time to find out the truth. - Ben Price, Lawrence, Kansas More letters and responses, next edition. -Editor. _______________________________________________________ PROMOTE YOUR MEETINGS, CHAPTER OR CONFERENCE No Cost to List In the Largest, Widest Read " The Autism Calendar " tm NOTE CALENDAR DEADLINE JAN 24 FOR FEBRUARY UPDATE _______________________________________________________ _________________________________________________________________ Lenny Schafer, Editor mailto:edit@... Decelie Debbie Hosseini Miles Ron Sleith Kay Stammers _______________________________________________ SAReport mailing list SAReport@... You can unsubscribe at: mailto:unsubscribe@... You can change your options at: Quote Link to comment Share on other sites More sharing options...
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