Re: Getting to know me and visa versa

[Guest guest]

,

You have overcome a lot, and I am sure you will continue to improve. You

are an inspiration to others in your situation.

Lynda

At 08:56 AM 12/21/2005, you wrote:

>Hello everyone! I'm from Murrieta, CA. I am a Saline

>Implant Surv. My explant was 2 months ago, have healed and not too

>disappointed w/results. Thus far many symptoms have not quite yet

>begun to reduce but still relatively too soon.

>I want to Thank you for having this forum avail.

>I have spent 5 yrs in the throws of a list longer than my ddr's to

>Santa...of symptoms and conditions. My BA was done in 2001,

>developed a fever, withing a week the incision site to one started

>oozing there started 5 sep visits back to surg, re-suttering,

>biopsies, multitude of antibiotics. Sent to Inf. Disease Dr. put

>on " in home I.V. antibiotic " Vancomycin by the 3rd day had severe

>allergic reaction, rushed to hosp, mutitude of IV drugs to stop the

>horrific pain in my head. Resulted in total loss of hearing in L ear

> & 40% in R with Vertigo, Tinnitus and Minears Disease. Went for a

>law suit but was dropped 1 wk before trial. Put on perm disability

>then set about trying as we do to trudge forward. Slowly a host of

>new ailments, upteen Dr.'s and diagnoses, to date:

>Auto Immun Dis, SevereFibromyagia, Migranes, Acid Reflux, Carpule

>Tunnel b/hands, Anxiety, Depression, Sleep loss, restless leg syn,

>Chronic Fatigue, Cortisol levels very low, Palpations, Sev neck &

>back spasms,excessive brusing, failure to body responding to

>antibiotics, removal of colon (maj surg), infections to currently

>the loss of sev teeth due to body now rejecting previous R/canals,

>crowns and bridges. The driving from coast to coast for a surg to do

>explant, 6 month Med review before being cov'd w/Ins. final explant

>in Oct. New set of Specialist, Inf Dis & Immunologists in Irvine CA

>scheduled for a host of new tests in Jan. My husband & ddr riding

>this roller coaster of hell & the slow loss of my being the once

>wife & Mommy.

>As with us all there is too the emotional toll, dismissal, " cant

>help you " , abyss of isolation & near FULL time job in research &

>prayers to find others to not only exchange & support but too to

>inform but collectively find retribution in stopping or the medical

>accountability we DESERVE! Anyway I have myself now into near

>exhaustion and now spasming horribly.

>I apologize if I over wrote but I am in DEEP gratitude to have the

>opportunity. THANK YOU! I now need to shower and get ready to go to

>the dentist to have 2 more teeth extracted.

>I want all those here to know I am here to be a contributor, ,

>advoacate and avail with a LOT of LOVE!

>,

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>Opinions expressed are NOT meant to take the place of advice given by

>licensed health care professionals. Consult your physician or licensed

>health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

>Find out what the facts are, and make your own decisions about how to live

>a happy life and how to work for a better world. " - Linus ing,

>two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>See our photos website! Enter " implants " for access at this link:

><http://.shutterfly.com/action/>http://.shutterfly.co\

m/action/

>

>

[Guest guest]

,

I exerienced sudden hearing loss in one ear too . . .

A neurologist who spoke to our Fort Worth Support

group in about 1994 noticed that implanted women were

reporting sudden hearing loss and asked for a show of

hands if women had been experiencing hearing problems

.. . . At least 10% of the group held up their hand.

The woman sitting next to me experienced sudden

hearing loss in one ear while on the telephone.

Fortunately part of my hearing returned after a round

of steriods. Hers never returned.

Unfortunately, the New York Times tried to shatter

this doctor's reputation and, to save his career,

stopped seeing implant women. He was getting very good

results by recommending many of the same things we

recommend here . . . diet, sleep, exercise, stress and

anger management, etc. He went very easy on

medications.

I'm terribly sorry you've had so many problems! . . .

What have you been doing to get better? . . . Have you

seen our recommended detox programs? Regardless of

what diagnoses you have, you should start seeing

improvement soon.

Hugs and prayers,

Rogene

[Guest guest]

,

I just read your post and wanted to respond, especially about the

hearing loss. I also lost total hearing in my right ear from

Vancomycin, after having problems with it a few months earlier when

the docs had me on it, outpatient IV. I was put on it again in the

hospital, as a " precaution " , and that's when I lost hearing from

it. I never should've been given that drug again after having so

much trouble with it but I couldn't find a lawyer to take my case.

I guess the doctors and lawyers stick together and it's hard to

prove malpractice. That all happened in '93 but I remember it

clearly, especially the way the Vancomycin felt going into my veins,

like it was burning them up.

Just a short history of what I've been through.....I've had A LOT

(at least 30 in the past 15-20 years) of surgeries, with implants,

to reconstruct a deformed left side due to a birth defect. I've had

infections and complications, one after the other, and I'm now on SS

Disability with fibromyalgia, at the age of 45. I have almost every

one of the same diagnoses you listed and I just wanted you to know

you're not alone. So far, I haven't had any major stomach or colon

problems but I wouldn't be surprised if I end up needing a new liver

someday because of all the pain meds I have to take.

Feel free to vent anytime. We'll all listen.

Dianne in PA