Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 penny no way no shape no form no how could this be your fault!! its theirs, they write stuff so hard to disifer it would take a rocket scientist to figure it all out! i would explain in the grievance that this one said this this one said that, you just had a transplant and wasnt in any kind of shape to understand what the heck was going on....temp. insanity that would be my story and i'd stick to it teehee. i hope they get it straightened out soon for you ,you dont need that added stress!!! its great the hubbys umemplyment got exyended, thats a blessing. dont apoligize for being human honey, i am fearful everyday i hear the mail lady coming, most days i pray please dont stop at mty box, and when she doesnt i breath a sigh of relief!! nothings worse than a stack of bills sitting their taunting us! i called that laywer and they are sending me a packet to fill out. keep your fingers crossed on that one. she asked who refered me i said welllllllllll i know her as precious penny, she said excuse me i chuckled and said a friend of mine from a support group. she said oh ok. we both laughded. it was kinda funny teehee. take a day or two to get your thoughts together then tell those fools to pay the stinkin bills!!!!!! whats this world coming too??sometimes i winder. love ya chicka > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > Penny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 Penny, I'm so sorry for the screw ups at Medicare! It is obviously their fault and you definitely SHOULD file a grievance! I know you're confused right now. Just give yourself some time to calm down and collect your throughs. Then, you'll be able to write the grievance letter and explain perfectly to the idiots why it's their mess! Please know my heart and prayers are with you. > > > I'm a bit freaked out today because I got a bunch of bills yesterday from > my transplant hospital pharmacy dating back to October of last year through > April of this year of money I owe on my anti rejection drugs. My > supplemental insurance was supposed to pay what Medicare Part B doesn't. > Medicare Part B pays for the anti rejection drugs. I called my supplemental > insurance company, and they said they were all denied because the hospital > pharmacy is outside of their health system, and I needed to get a referral > for my anti rejection drugs every month before they would pay for them. A > year ago, I talked to another person at the insurance company who told me it > is automatically denied because they see it as a prescription and they don't > pay for prescriptions, and it is confusing, but it would be covered because > they would have to process it manually. That's what I thought it was about > all this time was the confusion of it being a prescription drug, but > Medicare Part B pays for it. It threw me for a loop when they told me I need > a referral from my family doctor locally under the insurance health care > system to get my anti rejection drugs paid for at the transplant hospital > pharmacy. I know I have to get a referral to go up and see my hepatologist, > but to get my anti rejection drugs paid for to? What? They said it is in > their book. It's not in their book. That's a different kind of situation > than they have explained in their book. They say I can file a grievance as > to why I think it should be paid, but now I'm so overwhelmed that I can't > think what to write in my grievance. Now I'm thinking it's all my fault and > I should have known, and I'm just all torn up about it. I'll get over it > soon, but now I'm just feeling all depressed and like I screwed up. It makes > me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, > but this just threw me for a loop. Thanks for listening. It makes me feel a > little better to get it off my chest. > > On the plus side, my husband got his unemployment extended until June of > next year. It was due to end next month. That's a big worry off of us. > > Penny > > > -- Warm Hugs.......... Di http://auntdisexperimentallife.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 Thanks, Barby. I've calmed down and will deal with it soon. That's funny that you said precious penny referred you and you both laughed about it. They probably wouldn't remember me so long ago anyway. Penny > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > Penny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 Thanks, Diane. Tomorrow I'll get it more together again. Penny > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from > > my transplant hospital pharmacy dating back to October of last year through > > April of this year of money I owe on my anti rejection drugs. My > > supplemental insurance was supposed to pay what Medicare Part B doesn't. > > Medicare Part B pays for the anti rejection drugs. I called my supplemental > > insurance company, and they said they were all denied because the hospital > > pharmacy is outside of their health system, and I needed to get a referral > > for my anti rejection drugs every month before they would pay for them. A > > year ago, I talked to another person at the insurance company who told me it > > is automatically denied because they see it as a prescription and they don't > > pay for prescriptions, and it is confusing, but it would be covered because > > they would have to process it manually. That's what I thought it was about > > all this time was the confusion of it being a prescription drug, but > > Medicare Part B pays for it. It threw me for a loop when they told me I need > > a referral from my family doctor locally under the insurance health care > > system to get my anti rejection drugs paid for at the transplant hospital > > pharmacy. I know I have to get a referral to go up and see my hepatologist, > > but to get my anti rejection drugs paid for to? What? They said it is in > > their book. It's not in their book. That's a different kind of situation > > than they have explained in their book. They say I can file a grievance as > > to why I think it should be paid, but now I'm so overwhelmed that I can't > > think what to write in my grievance. Now I'm thinking it's all my fault and > > I should have known, and I'm just all torn up about it. I'll get over it > > soon, but now I'm just feeling all depressed and like I screwed up. It makes > > me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, > > but this just threw me for a loop. Thanks for listening. It makes me feel a > > little better to get it off my chest. > > > > On the plus side, my husband got his unemployment extended until June of > > next year. It was due to end next month. That's a big worry off of us. > > > > Penny > > > > > > > > > > -- > Warm Hugs.......... > > Di > http://auntdisexperimentallife.blogspot.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I got this whole insurance thing worked out this morning. The lady I talked to yesterday from the insurance company wouldn't explain anything to me or answer any of my questions. She just said the claims were denied and I could file a grievance. That's why I was so upset because I was so confused and didn't understand what was going on. This morning I talked to another lady at the insurance company who explained it all to me and told me I can have my doctor send in a retro referral which will cover the past claims for the anti rejection drugs that they denied. Then I have to have my doctor send in an ongoing referral so they will be covered in the future. I called my coordinator and explained it all to her, and she thought it was just ridiculous to get a referral to get my anti rejection drugs because the transplant pharmacy is outside of my supplemental insurance's health system because I have to take the anti rejection meds for the rest of my life. The first 9 months after my transplant, the anti rejection drugs were paid because there were referrals in place having to do with the transplant, so they were covered then. It was a relief to have things explained to me and told that I can go back and fix those old claims without filing a grievance. I should file a grievance on the lady I talked to yesterday who wouldn't tell me anything, and left me more confused than I was going in. Penny > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > Penny > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 I'm so glad it worked out, but you sure have to jump through some hoops!  Crazy,huh?                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, October 30, 2009 12:03:15 PM Subject: Re: Insurance  I got this whole insurance thing worked out this morning. The lady I talked to yesterday from the insurance company wouldn't explain anything to me or answer any of my questions. She just said the claims were denied and I could file a grievance. That's why I was so upset because I was so confused and didn't understand what was going on. This morning I talked to another lady at the insurance company who explained it all to me and told me I can have my doctor send in a retro referral which will cover the past claims for the anti rejection drugs that they denied. Then I have to have my doctor send in an ongoing referral so they will be covered in the future. I called my coordinator and explained it all to her, and she thought it was just ridiculous to get a referral to get my anti rejection drugs because the transplant pharmacy is outside of my supplemental insurance's health system because I have to take the anti rejection meds for the rest of my life. The first 9 months after my transplant, the anti rejection drugs were paid because there were referrals in place having to do with the transplant, so they were covered then. It was a relief to have things explained to me and told that I can go back and fix those old claims without filing a grievance. I should file a grievance on the lady I talked to yesterday who wouldn't tell me anything, and left me more confused than I was going in. Penny > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > Penny > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 It is sad how crazy everyone makes it so hard to understand, and make it sound so hard to even get evaluated let alone, put on a list,then transplant. Now to go through that,almost makes you feel super human with bionic emotions.After all that I would file a grievance about that woman,hell,I'd call back be real nice,and get her name!! (people like that just irritate the heck out of me!) Hugs, Subject: Re: Re: Insurance To: livercirrhosissupport Date: Friday, October 30, 2009, 12:34 PM I'm so glad it worked out, but you sure have to jump through some hoops!  Crazy,huh?                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Fri, October 30, 2009 12:03:15 PM Subject: Re: Insurance  I got this whole insurance thing worked out this morning. The lady I talked to yesterday from the insurance company wouldn't explain anything to me or answer any of my questions. She just said the claims were denied and I could file a grievance. That's why I was so upset because I was so confused and didn't understand what was going on. This morning I talked to another lady at the insurance company who explained it all to me and told me I can have my doctor send in a retro referral which will cover the past claims for the anti rejection drugs that they denied. Then I have to have my doctor send in an ongoing referral so they will be covered in the future. I called my coordinator and explained it all to her, and she thought it was just ridiculous to get a referral to get my anti rejection drugs because the transplant pharmacy is outside of my supplemental insurance's health system because I have to take the anti rejection meds for the rest of my life. The first 9 months after my transplant, the anti rejection drugs were paid because there were referrals in place having to do with the transplant, so they were covered then. It was a relief to have things explained to me and told that I can go back and fix those old claims without filing a grievance. I should file a grievance on the lady I talked to yesterday who wouldn't tell me anything, and left me more confused than I was going in. Penny > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > Penny > > > > > >    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 Thanks, Jill. I think I'll get a new supplemental so I can go anywhere without a referral. Penny > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but > Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me > feel a little better to get it off my chest. > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > Penny > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 The anti rejection drugs are so the body doesn't reject the new organ. The new liver is foreign to the body, and it's natural response is to try and fight it off and destroy it like it would with a virus. The number of how much he would have to take depends on his body. Everybody needs a different amount, and the dosage gets changed a lot. The transplant hospital measures the amount of anti rejection drugs in your blood on Mondays, or mine does. It has to be a 12 hour level. On Sunday nights, I take them at 8:30 p.m. and have to have blood drawn at 8:30 a.m. on Monday so they get a good 12 hour level. By that, they can tell if your dosage needs to be changed. I have my levels drawn every two weeks now. I take a small amount of anti rejection drugs now compared to how much I took after the transplant, and when I'm done with this treatment, I will probably take less. Right after the transplant, I had to take about 25 pills a day for the first few months which included other drugs too. The anti rejection pills have to be taken forever to prevent rejection. Penny > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > Penny > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 thanks penny, i will keep this little info between us right now the 25 pill part, when its time they can tell him lol. i had to cry last night to get him to take the ribo. i really need to stop that dont i??? it just makes him so sick feeling i wont use the words he used ,hes something else right now.he just went to sleep at 430 or so. i think i will call the dr. and see if maybe the dose is to high or something. hes not liking this at all. and i am scared hes gonna just stop all together if they cant get him feeling better. its sad to watch him go thru this, but i know if he just hangs in there we can slay this damn dragon and get him a liver. if he could just push through it, dr. riccio was right when he said it would be brutal.i wonder if its harder on some than others, was your brutal pennny?? > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 The treatment does react differently on different people. I think it has been pretty easy on me. The hardest thing for me was the vomiting, but it only lasted a day or so after starting. I've vomited off and on a few times since then, out of the blue, but no big deal. Otherwise, the fatigue has been the worst. Because I'm so tired, I don't have any problems sleeping. It's caused depression with me and thyroid problems, but I take meds for those. I don't take 6 pills a day for the treatment, though, like he does. I only take 2 pills a day because it makes my blood counts drop too low, so they had to reduce my dosage. Even with taking Aranesp to bring the red blood cell counts up, the blood counts still dropped at 5, 4, and 3 pills, so I just have to take 2, but I will still be taking them for a while when I'm done with the injection part of treatment. I would call the doctor and tell him how he's feeling. The doctor can give him something for some of his side effects. Is he drinking enough water? That helps with the side effects a LOT! I feel like crap if I don't drink enough water every day. Is he eating when he takes the pills? If you don't eat when taking the pills, that makes you feel like crap too. When will they be doing lab tests on him? They need to watch those closely too because his red and white blood cell counts can drop. I hope he gets to feeling a little better. Penny > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 Barby, I hope things have gotten easier. The treatment can truly be a living nightmare and the RIBA RAGE is very common. There are some who are able to work and do ok on tx and then there are some who's health is irreversably damaged by the tx. You probably know Cole had to have a kidney transplant after doing tx. Like every other aspect of Hep C there just seems to be very few things that you can count on. I think the tx like the disease itself is like a crapshoot. You just never know how it's going to turn out. Drinking LOTS OF WATER is something though that is always stressed. Hang in there...Best wishes~~~Debbie > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 morning penny, the dr. gave him nerotin for the side effects, he thinks it doesnt help him,i will be calling today! he goes for his blood work on the 16th, we are a week behind cause the ins, comp. fought us for a week, we order them thru the mail on the 9th, then blood work the 16 then dr. the 23rd. and did you know the dr. charges a fee for pre autherization as does the mail order comp. what the **** silliness!!! i have him drinking about 6 bottles of water a day and several glasses of unsweet tea yuck, he will tell me momma if i drink anymore i will puke. i feed him peanut butter and crackers or a sandwhich before the pills. he hates those pills penny. i am gonna tell ya this amd dont tell him hahahahaha, sorry this is not funny ,it hurt me so bad, i have been with this man 25 yrs. i can count the nuber of times i have see him cry on one hand, he cried twice yesterday...well man cried ..teared up lip quivering ,and voice breaking, he said he cant explain it ,but i can......DR. ALITTLE HELP HERE!!! i wonder whast the head aches are from the pills or the shot, cause its shot day and hes not happy about any of this. penny i feel quilty .... hes told every dr. the only reason hes doing any of this is for me, so he doesnt leave me here alone....at this point that quilt while watching him suffer so is getting really heavy to carry .sorry just ramblin love you girl you are a great friend!!! > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 SERIOUSLY DEBBIE what do you mean????irreversably damaged????? nat king coles daughter omg gotta google this!!!!!!!!!!11 > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Barby, please don't let it scare you. It's just wise to know all the angles. I know one guy who is barely able to walk now. He didn't clear the virus and the tx damaged his bones. BUT there are many, many success stories as well. A person just has to make an informed decision. From the very first time I read about Hep C & treatment after being diagnosed I KNEW it was not for me. I already have major depression and have tried every anti-depressant known and since the tx normally causes severe depression I know I couldn't handle that. I also have psoriasis which is an auto-immune disease which makes me not a very good candidate. I've always said I admire those who are willing and able to try tx, I'm just not one of those. I hope things get easier as I'm sure they will...Best wishes~~~Debbie > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Barby, I know this is for Penny BUT you might want to rethink the peanut butter. People with liver disease should not eat even 1 peanut because of a fungus that they sometimes have...just a thought...Debbie > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Barby, I know this post was meant for Penny and I don't want to butt in. I just want you to know that my heart is just absolutely breaking both for you and for Bobby Glen. One of the hardest things I've ever done is accept Terry's decision not to try for a transplant. I know you're hurting now but don't let the guilt eat at you. In the end, Bobby Glen would tell you if he just could not go forward with this. I know in his heart he wants to stay with you and the kids, it's just the treatment he's fighting against because it is making him so sick. When and if the time comes that he just can't go on with it, I know you will be just as supportive of him in that as you have been in every other situation in your life together. Guilt eats at us no matter what decisions we make during times like this. I've always wondered " Should I have pushed Terry harder to try to get listed? " There are no right and wrong answers here. We all just do the best we can from day to day and pray the Lord will give us the strength we need to face the uncertain future. I've said all that to say that I love you and I'm praying for you. I know the pain of watching the person you love more than your own life suffer; of watching him break down and cry because he's so sick and trying so hard. Every time you witness that, a little piece of your heart is torn from you.Yet you pull yourself together and steel yourself for the next battle. That's how it is when the other half of you is suffering. I love you Barby, my heart and my prayers are with you. On Mon, Nov 2, 2009 at 6:22 AM, pinkmeetsblue wrote: > > > morning penny, the dr. gave him nerotin for the side effects, he thinks it > doesnt help him,i will be calling today! he goes for his blood work on the > 16th, we are a week behind cause the ins, comp. fought us for a week, we > order them thru the mail on the 9th, then blood work the 16 then dr. the > 23rd. and did you know the dr. charges a fee for pre autherization as does > the mail order comp. what the **** silliness!!! i have him drinking about 6 > bottles of water a day and several glasses of unsweet tea yuck, he will tell > me momma if i drink anymore i will puke. i feed him peanut butter and > crackers or a sandwhich before the pills. he hates those pills penny. i am > gonna tell ya this amd dont tell him hahahahaha, sorry this is not funny ,it > hurt me so bad, i have been with this man 25 yrs. i can count the nuber of > times i have see him cry on one hand, he cried twice yesterday...well man > cried ..teared up lip quivering ,and voice breaking, he said he cant explain > it ,but i can......DR. ALITTLE HELP HERE!!! i wonder whast the head aches > are from the pills or the shot, cause its shot day and hes not happy about > any of this. penny i feel quilty .... hes told every dr. the only reason hes > doing any of this is for me, so he doesnt leave me here alone....at this > point that quilt while watching him suffer so is getting really heavy to > carry .sorry just ramblin love you girl you are a great friend!!! > > > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills > yesterday from my transplant hospital pharmacy dating back to October of > last year through April of this year of money I owe on my anti rejection > drugs. My supplemental insurance was supposed to pay what Medicare Part B > doesn't. Medicare Part B pays for the anti rejection drugs. I called my > supplemental insurance company, and they said they were all denied because > the hospital pharmacy is outside of their health system, and I needed to get > a referral for my anti rejection drugs every month before they would pay for > them. A year ago, I talked to another person at the insurance company who > told me it is automatically denied because they see it as a prescription and > they don't pay for prescriptions, and it is confusing, but it would be > covered because they would have to process it manually. That's what I > thought it was about all this time was the confusion of it being a > prescription drug, but Medicare Part B pays for it. It threw me for a loop > when they told me I need a referral from my family doctor locally under the > insurance health care system to get my anti rejection drugs paid for at the > transplant hospital pharmacy. I know I have to get a referral to go up and > see my hepatologist, but to get my anti rejection drugs paid for to? What? > They said it is in their book. It's not in their book. That's a different > kind of situation than they have explained in their book. They say I can > file a grievance as to why I think it should be paid, but now I'm so > overwhelmed that I can't think what to write in my grievance. Now I'm > thinking it's all my fault and I should have known, and I'm just all torn up > about it. I'll get over it soon, but now I'm just feeling all depressed and > like I screwed up. It makes me want to cry. Sorry for all this. I'm usually > pretty strong and a fighter, but this just threw me for a loop. Thanks for > listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended > until June of next year. It was due to end next month. That's a big worry > off of us. > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- Warm Hugs.......... Di http://auntdisexperimentallife.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Ed loves peanut butter!...please explain,Debbie. I think I need to know this.                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Mon, November 2, 2009 7:54:36 AM Subject: Re: Insurance  Barby, I know this is for Penny BUT you might want to rethink the peanut butter. People with liver disease should not eat even 1 peanut because of a fungus that they sometimes have...just a thought...Debbie > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 ohhhhhhhhh my dear dear friend you are not butting in lol. my post are kinda like come one come all lol, i need all the help i can get, i am tired girl wore out but have to stand stong in order to help him. i am glad you understand thaat and know just what to say to pick my feeling sorry for myself butt up off the floor!! and i will understand if he chooses not to cont. this brutal attack on his body and mind. i read it seems to be harder on men i guess cause us woman are used to pain lol.(sorry to all my man friends) hes miserable but hes my miserable love soulmate and best friend, i will do what ever it takes,and i am so thankful to you and all my family here for being right by my side ,when i feel like i just wanna run and hide. i love you diane!!!!!!!barby > > > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills > > yesterday from my transplant hospital pharmacy dating back to October of > > last year through April of this year of money I owe on my anti rejection > > drugs. My supplemental insurance was supposed to pay what Medicare Part B > > doesn't. Medicare Part B pays for the anti rejection drugs. I called my > > supplemental insurance company, and they said they were all denied because > > the hospital pharmacy is outside of their health system, and I needed to get > > a referral for my anti rejection drugs every month before they would pay for > > them. A year ago, I talked to another person at the insurance company who > > told me it is automatically denied because they see it as a prescription and > > they don't pay for prescriptions, and it is confusing, but it would be > > covered because they would have to process it manually. That's what I > > thought it was about all this time was the confusion of it being a > > prescription drug, but Medicare Part B pays for it. It threw me for a loop > > when they told me I need a referral from my family doctor locally under the > > insurance health care system to get my anti rejection drugs paid for at the > > transplant hospital pharmacy. I know I have to get a referral to go up and > > see my hepatologist, but to get my anti rejection drugs paid for to? What? > > They said it is in their book. It's not in their book. That's a different > > kind of situation than they have explained in their book. They say I can > > file a grievance as to why I think it should be paid, but now I'm so > > overwhelmed that I can't think what to write in my grievance. Now I'm > > thinking it's all my fault and I should have known, and I'm just all torn up > > about it. I'll get over it soon, but now I'm just feeling all depressed and > > like I screwed up. It makes me want to cry. Sorry for all this. I'm usually > > pretty strong and a fighter, but this just threw me for a loop. Thanks for > > listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended > > until June of next year. It was due to end next month. That's a big worry > > off of us. > > > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > Warm Hugs.......... > > Di > http://auntdisexperimentallife.blogspot.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Barby, My heart is breaking for you and Bobby also. You both are facing such tough decisions. I just wanted you to know that I'm reading your posts and thinking how hard that must be for both of you and wondering what I would do in that situation. You are handling it with such strength and grace and it shows how much you love this man in your posts. Roni > Barby, I know this post was meant for Penny and I don't want to butt > in. I > just want you to know that my heart is just absolutely breaking both > for you > and for Bobby Glen. One of the hardest things I've ever done is accept > Terry's decision not to try for a transplant. I know you're hurting > now but > don't let the guilt eat at you. In the end, Bobby Glen would tell > you if he > just could not go forward with this. I know in his heart he wants to > stay > with you and the kids, it's just the treatment he's fighting against > because > it is making him so sick. When and if the time comes that he just > can't go > on with it, I know you will be just as supportive of him in that as > you have > been in every other situation in your life together. Guilt eats at > us no > matter what decisions we make during times like this. I've always > wondered > " Should I have pushed Terry harder to try to get listed? " There are no > right and wrong answers here. We all just do the best we can from > day to > day and pray the Lord will give us the strength we need to face the > uncertain future. I've said all that to say that I love you and I'm > praying > for you. I know the pain of watching the person you love more than > your own > life suffer; of watching him break down and cry because he's so sick > and > trying so hard. Every time you witness that, a little piece of your > heart > is torn from you.Yet you pull yourself together and steel yourself > for the > next battle. That's how it is when the other half of you is > suffering. I > love you Barby, my heart and my prayers are with you. > > On Mon, Nov 2, 2009 at 6:22 AM, pinkmeetsblue > wrote: > > > > > > > morning penny, the dr. gave him nerotin for the side effects, he > thinks it > > doesnt help him,i will be calling today! he goes for his blood > work on the > > 16th, we are a week behind cause the ins, comp. fought us for a > week, we > > order them thru the mail on the 9th, then blood work the 16 then > dr. the > > 23rd. and did you know the dr. charges a fee for pre autherization > as does > > the mail order comp. what the **** silliness!!! i have him > drinking about 6 > > bottles of water a day and several glasses of unsweet tea yuck, he > will tell > > me momma if i drink anymore i will puke. i feed him peanut butter > and > > crackers or a sandwhich before the pills. he hates those pills > penny. i am > > gonna tell ya this amd dont tell him hahahahaha, sorry this is not > funny ,it > > hurt me so bad, i have been with this man 25 yrs. i can count the > nuber of > > times i have see him cry on one hand, he cried twice > yesterday...well man > > cried ..teared up lip quivering ,and voice breaking, he said he > cant explain > > it ,but i can......DR. ALITTLE HELP HERE!!! i wonder whast the > head aches > > are from the pills or the shot, cause its shot day and hes not > happy about > > any of this. penny i feel quilty .... hes told every dr. the only > reason hes > > doing any of this is for me, so he doesnt leave me here > alone....at this > > point that quilt while watching him suffer so is getting really > heavy to > > carry .sorry just ramblin love you girl you are a great friend!!! > > > > > > > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch > of bills > > yesterday from my transplant hospital pharmacy dating back to > October of > > last year through April of this year of money I owe on my anti > rejection > > drugs. My supplemental insurance was supposed to pay what Medicare > Part B > > doesn't. Medicare Part B pays for the anti rejection drugs. I > called my > > supplemental insurance company, and they said they were all denied > because > > the hospital pharmacy is outside of their health system, and I > needed to get > > a referral for my anti rejection drugs every month before they > would pay for > > them. A year ago, I talked to another person at the insurance > company who > > told me it is automatically denied because they see it as a > prescription and > > they don't pay for prescriptions, and it is confusing, but it > would be > > covered because they would have to process it manually. That's > what I > > thought it was about all this time was the confusion of it being a > > prescription drug, but Medicare Part B pays for it. It threw me > for a loop > > when they told me I need a referral from my family doctor locally > under the > > insurance health care system to get my anti rejection drugs paid > for at the > > transplant hospital pharmacy. I know I have to get a referral to > go up and > > see my hepatologist, but to get my anti rejection drugs paid for > to? What? > > They said it is in their book. It's not in their book. That's a > different > > kind of situation than they have explained in their book. They say > I can > > file a grievance as to why I think it should be paid, but now I'm so > > overwhelmed that I can't think what to write in my grievance. Now > I'm > > thinking it's all my fault and I should have known, and I'm just > all torn up > > about it. I'll get over it soon, but now I'm just feeling all > depressed and > > like I screwed up. It makes me want to cry. Sorry for all this. > I'm usually > > pretty strong and a fighter, but this just threw me for a loop. > Thanks for > > listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment > extended > > until June of next year. It was due to end next month. That's a > big worry > > off of us. > > > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > Warm Hugs.......... > > Di > http://auntdisexperimentallife.blogspot.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Barby, I want a love soulmate just like him! You lucky girl. I have to share what is going on with my " ex boyfriend " . We broke up months ago and he is still living here. He hasn't worked in 2-1/2 years while I carried the whole load financially. I haven't received a dime for rent, heat, or water. Occasionally he gives me 20 for groceries. About once a month. He is perfectly healthy man and is quite capable of working. Now his car broke down and he wants to borrow mine. He complains constantly about my dog barking and I walk on tip toes to accomadate him. I've asked him to remove repeatedly because it's like hitting yourself in the head with a hammer everyday. He keeps saying.....I'm leaving this date, I'm leaving that date, leaving before winter.....etc. Any yesterday my dog nipped at him and he threatened to kill him and was going after him with a rake. He is constantly screaming at the dog and I dont really blame him for nipping at him. He was defending himself. I told him to back off and leave my dog alone! Called the cops because I fear for my pets safety. They said I can't file a restraining order until he actually does something. They took one look at the dog, patted his head and just rolled their eyes. He had described him as a vicious animal who puts people in danger. This is a sweet little dog. I mean Little! He's a terrier. It scares me because at one time I was going to marry this guy. Tommorrow, I'm going to the city to start eviction proceedings because you just can't kick someone out who lives with you. I will never.......and I mean never! live with anyone again. Sorry, just wanted to vent. Those of you who have found love are really the lucky ones. Much love, Roni > > ohhhhhhhhh my dear dear friend you are not butting in lol. my post > are kinda like come one come all lol, i need all the help i can get, > i am tired girl wore out but have to stand stong in order to help > him. i am glad you understand thaat and know just what to say to > pick my feeling sorry for myself butt up off the floor!! and i will > understand if he chooses not to cont. this brutal attack on his body > and mind. i read it seems to be harder on men i guess cause us woman > are used to pain lol.(sorry to all my man friends) hes miserable but > hes my miserable love soulmate and best friend, i will do what ever > it takes,and i am so thankful to you and all my family here for > being right by my side ,when i feel like i just wanna run and hide. > i love you diane!!!!!!!barby > > > > > > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a > bunch of bills > > > yesterday from my transplant hospital pharmacy dating back to > October of > > > last year through April of this year of money I owe on my anti > rejection > > > drugs. My supplemental insurance was supposed to pay what > Medicare Part B > > > doesn't. Medicare Part B pays for the anti rejection drugs. I > called my > > > supplemental insurance company, and they said they were all > denied because > > > the hospital pharmacy is outside of their health system, and I > needed to get > > > a referral for my anti rejection drugs every month before they > would pay for > > > them. A year ago, I talked to another person at the insurance > company who > > > told me it is automatically denied because they see it as a > prescription and > > > they don't pay for prescriptions, and it is confusing, but it > would be > > > covered because they would have to process it manually. That's > what I > > > thought it was about all this time was the confusion of it being a > > > prescription drug, but Medicare Part B pays for it. It threw me > for a loop > > > when they told me I need a referral from my family doctor > locally under the > > > insurance health care system to get my anti rejection drugs paid > for at the > > > transplant hospital pharmacy. I know I have to get a referral to > go up and > > > see my hepatologist, but to get my anti rejection drugs paid for > to? What? > > > They said it is in their book. It's not in their book. That's a > different > > > kind of situation than they have explained in their book. They > say I can > > > file a grievance as to why I think it should be paid, but now > I'm so > > > overwhelmed that I can't think what to write in my grievance. > Now I'm > > > thinking it's all my fault and I should have known, and I'm just > all torn up > > > about it. I'll get over it soon, but now I'm just feeling all > depressed and > > > like I screwed up. It makes me want to cry. Sorry for all this. > I'm usually > > > pretty strong and a fighter, but this just threw me for a loop. > Thanks for > > > listening. It makes me feel a little better to get it off my > chest. > > > > > > > > > > > > > > > > > > > > > > On the plus side, my husband got his > unemployment extended > > > until June of next year. It was due to end next month. That's a > big worry > > > off of us. > > > > > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > Warm Hugs.......... > > > > Di > > http://auntdisexperimentallife.blogspot.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Roni, I am so glad to hear you are starting eviction proceedings on this person! If he's too lazy to work, then I guess he'll have to live on the street! Please be careful of him, he sounds like a nutcase! Let us know how it goes. OH, and BTW, vent here about anything, anytime. That's what friends are for!!!! Love ya sweetie! > > > Barby, > > I want a love soulmate just like him! You lucky girl. I have to > share what is going on with my " ex boyfriend " . We broke up months ago > and he is still living here. He hasn't worked in 2-1/2 years while I > carried the whole load financially. I haven't received a dime for > rent, heat, or water. Occasionally he gives me 20 for groceries. > About once a month. He is perfectly healthy man and is quite capable > of working. Now his car broke down and he wants to borrow mine. He > complains constantly about my dog barking and I walk on tip toes to > accomadate him. I've asked him to remove repeatedly because it's like > hitting yourself in the head with a hammer everyday. He keeps > saying.....I'm leaving this date, I'm leaving that date, leaving > before winter.....etc. Any yesterday my dog nipped at him and he > threatened to kill him and was going after him with a rake. He is > constantly screaming at the dog and I dont really blame him for > nipping at him. He was defending himself. I told him to back off > and leave my dog alone! Called the cops because I fear for my pets > safety. They said I can't file a restraining order until he actually > does something. They took one look at the dog, patted his head and > just rolled their eyes. He had described him as a vicious animal who > puts people in danger. This is a sweet little dog. I mean Little! > He's a terrier. It scares me because at one time I was going to marry > this guy. Tommorrow, I'm going to the city to start eviction > proceedings because you just can't kick someone out who lives with > you. I will never.......and I mean never! live with anyone again. > Sorry, just wanted to vent. Those of you who have found love are > really the lucky ones. > > Much love, > Roni > > > > > > > ohhhhhhhhh my dear dear friend you are not butting in lol. my post > > are kinda like come one come all lol, i need all the help i can get, > > i am tired girl wore out but have to stand stong in order to help > > him. i am glad you understand thaat and know just what to say to > > pick my feeling sorry for myself butt up off the floor!! and i will > > understand if he chooses not to cont. this brutal attack on his body > > and mind. i read it seems to be harder on men i guess cause us woman > > are used to pain lol.(sorry to all my man friends) hes miserable but > > hes my miserable love soulmate and best friend, i will do what ever > > it takes,and i am so thankful to you and all my family here for > > being right by my side ,when i feel like i just wanna run and hide. > > i love you diane!!!!!!!barby > > > > > > > > > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a > > bunch of bills > > > > yesterday from my transplant hospital pharmacy dating back to > > October of > > > > last year through April of this year of money I owe on my anti > > rejection > > > > drugs. My supplemental insurance was supposed to pay what > > Medicare Part B > > > > doesn't. Medicare Part B pays for the anti rejection drugs. I > > called my > > > > supplemental insurance company, and they said they were all > > denied because > > > > the hospital pharmacy is outside of their health system, and I > > needed to get > > > > a referral for my anti rejection drugs every month before they > > would pay for > > > > them. A year ago, I talked to another person at the insurance > > company who > > > > told me it is automatically denied because they see it as a > > prescription and > > > > they don't pay for prescriptions, and it is confusing, but it > > would be > > > > covered because they would have to process it manually. That's > > what I > > > > thought it was about all this time was the confusion of it being a > > > > prescription drug, but Medicare Part B pays for it. It threw me > > for a loop > > > > when they told me I need a referral from my family doctor > > locally under the > > > > insurance health care system to get my anti rejection drugs paid > > for at the > > > > transplant hospital pharmacy. I know I have to get a referral to > > go up and > > > > see my hepatologist, but to get my anti rejection drugs paid for > > to? What? > > > > They said it is in their book. It's not in their book. That's a > > different > > > > kind of situation than they have explained in their book. They > > say I can > > > > file a grievance as to why I think it should be paid, but now > > I'm so > > > > overwhelmed that I can't think what to write in my grievance. > > Now I'm > > > > thinking it's all my fault and I should have known, and I'm just > > all torn up > > > > about it. I'll get over it soon, but now I'm just feeling all > > depressed and > > > > like I screwed up. It makes me want to cry. Sorry for all this. > > I'm usually > > > > pretty strong and a fighter, but this just threw me for a loop. > > Thanks for > > > > listening. It makes me feel a little better to get it off my > > chest. > > > > > > > > > > > > > > > > > > > > > > > > On the plus side, my husband got his > > unemployment extended > > > > until June of next year. It was due to end next month. That's a > > big worry > > > > off of us. > > > > > > > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > > Warm Hugs.......... > > > > > > Di > > > http://auntdisexperimentallife.blogspot.com > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Hi Barby, I'm sorry he's having such a hard time with this treatment. It almost made me cry to hear that he feels so bad he tears up. The fear of the side effects is the reason I never did the treatment years ago before I got cirrhosis. I didn't want to be that sick, but I've been pretty lucky with it since it's not that bad for me. It's too bad a person has to go through treatment to make them feel rotton in order to get better. Unbelievable about being charged for pre authorization. That's crazy! Penny > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Yeah, Cole did the treatment and had a hard time with it, and did have a kidney transplant later, which they THINK may have been caused from the treatment, but her doctors can't be certain of that. The treatment for Hep C can cause permanent damage in the body, but it's not that common. We only hear about the horror stories. That's why treatment is so scarey. You hardly ever hear about when it goes well and everything's fine. That's boring. Just like the news...you hardly ever hear anything good on the news, mostly bad things. Chemo can do the same thing, so it's not just the Hep C treatment. My friend who did chemo for her cancer now has fibromyalgia from the chemo, and chemo is a lot stronger than this treatment. The interferon shots with the treatment is just a man made form of a natural substance in our immune systems. We all have interferon in our bodies that is sent out by the immune system to fight off infections, etc. If we just concentrate on the " what ifs " , we'll never do anything. There's a risk for everything we do. You could walk out your door and get hit by a bus. What are you going to do...never step outside of your house? Life is a gamble to begin with. There are no guarantees in life. If there' a chance you can make your life better and live longer, than taking the chance is worth it. Penny > > > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of bills yesterday from my transplant hospital pharmacy dating back to October of last year through April of this year of money I owe on my anti rejection drugs. My supplemental insurance was supposed to pay what Medicare Part B doesn't. Medicare Part B pays for the anti rejection drugs. I called my supplemental insurance company, and they said they were all denied because the hospital pharmacy is outside of their health system, and I needed to get a referral for my anti rejection drugs every month before they would pay for them. A year ago, I talked to another person at the insurance company who told me it is automatically denied because they see it as a prescription and they don't pay for prescriptions, and it is confusing, but it would be covered because they would have to process it manually. That's what I thought it was about all this time was the confusion of it being a prescription drug, but Medicare Part B pays for it. It threw me for a loop when they told me I need a referral from my family doctor locally under the insurance health care system to get my anti rejection drugs paid for at the transplant hospital pharmacy. I know I have to get a referral to go up and see my hepatologist, but to get my anti rejection drugs paid for to? What? They said it is in their book. It's not in their book. That's a different kind of situation than they have explained in their book. They say I can file a grievance as to why I think it should be paid, but now I'm so overwhelmed that I can't think what to write in my grievance. Now I'm thinking it's all my fault and I should have known, and I'm just all torn up about it. I'll get over it soon, but now I'm just feeling all depressed and like I screwed up. It makes me want to cry. Sorry for all this. I'm usually pretty strong and a fighter, but this just threw me for a loop. Thanks for listening. It makes me feel a little better to get it off my chest. > > > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment extended until June of next year. It was due to end next month. That's a big worry off of us. > > > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Lots of weird things happen once you start on this road of conditions. I am waiting to get my hematocrit down low enough that they can give me shots to bring it and my hemooglobin up to a reasonable level so I am not so tired all the time. The doctor told me to make sure I drink lots of water before my blood test to dilute my blood. I think the only reason it hasn't reached that low lever yet is because I have been slightly dehydrated. Yet, my feet keep swelling up with fluid. dehydrated with feet and legs full of fluid. doesn't seem to make sense does it. I have decided not to try to make sense of lots of things or it would just bring my frustration level up. It was frustrating not knowing what caused my cirrhosis, but reading about those who have to go through hepc treatment, reduces some of that frustration. At least I don't have to do that. Jan H > Hi Barby, > > I'm sorry he's having such a hard time with this treatment. It almost made > me cry to hear that he feels so bad he tears up. The fear of the side > effects is the reason I never did the treatment years ago before I got > cirrhosis. I didn't want to be that sick, but I've been pretty lucky with > it since it's not that bad for me. It's too bad a person has to go through > treatment to make them feel rotton in order to get better. > > Unbelievable about being charged for pre authorization. That's crazy! > > Penny > > > > > > > > > > > > > > > > > > > > > > I'm a bit freaked out today because I got a bunch of > bills yesterday from my transplant hospital pharmacy dating back to October > of last year through April of this year of money I owe on my anti rejection > drugs. My supplemental insurance was supposed to pay what Medicare Part B > doesn't. Medicare Part B pays for the anti rejection drugs. I called my > supplemental insurance company, and they said they were all denied because > the hospital pharmacy is outside of their health system, and I needed to get > a referral for my anti rejection drugs every month before they would pay for > them. A year ago, I talked to another person at the insurance company who > told me it is automatically denied because they see it as a prescription and > they don't pay for prescriptions, and it is confusing, but it would be > covered because they would have to process it manually. That's what I > thought it was about all this time was the confusion of it being a > prescription drug, but Medicare Part B pays for it. It threw me for a loop > when they told me I need a referral from my family doctor locally under the > insurance health care system to get my anti rejection drugs paid for at the > transplant hospital pharmacy. I know I have to get a referral to go up and > see my hepatologist, but to get my anti rejection drugs paid for to? What? > They said it is in their book. It's not in their book. That's a different > kind of situation than they have explained in their book. They say I can > file a grievance as to why I think it should be paid, but now I'm so > overwhelmed that I can't think what to write in my grievance. Now I'm > thinking it's all my fault and I should have known, and I'm just all torn up > about it. I'll get over it soon, but now I'm just feeling all depressed and > like I screwed up. It makes me want to cry. Sorry for all this. I'm > usually pretty strong and a fighter, but this just threw me for a loop. > Thanks for listening. It makes me feel a little better to get it off my > chest. > > > > > > > > > > > > > > > > > > > > On the plus side, my husband got his unemployment > extended until June of next year. It was due to end next month. That's a > big worry off of us. > > > > > > > > > > > > > > > > > > > > Penny > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > Group Email: livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > Quote Link to comment Share on other sites More sharing options...
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