Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 > I am thrilled you responded to my post, sincere thanks! Im not sure if you are confusing me w/another , but no worries. I have read masses of info re: children and BI, otrosity and undoubtably crimminal! I had mine for near 5 yrs before i could get an explant due to mis-diag's etc. My ddr was adopted prior to implants so I was spared or shall I say she was spared that chapter. I also have made up-teen attempts to go public and share via the media, my forehead shows the injuries vis " brick walls " . It is thick and castle guarded but not for this soldier! I am more heavy handed w/alternative med but I must admit I have had to combine traditional as well, even still there is no quote " magic PILL or ANSWER....thus far. I would be happy to provide any info in aiding others be it info or trmnts re: my health and proaction in helping others. I have been fortunate (tho yrs in the trying) to have found a Dr, who is a strong advocate and w/out the hoopla of drama has saved my life. We are currently in the studies and testing of the Immune System here in CA, in the city Irvine, awaiting results. PLEASE feel free to pick away at what remains cognizant (lol) I am here ...always! Hugs and Prayers to you as well! > , > > Welcome back! > > I'm glad to hear you've made it through you explant. > Hopefully some of your symptoms are starting to > recede! > > As to getting the word out about breast implants, all > I can say is that we've been trying! . . . The > proimplant people appear to have unlimited funds to > proclaim the glories of breast implants, while those > of us who have been injured often can barely scrape > by. > > Quite a few women who've participated on this group > have appeared in the media, TV, radio, newspaper, etc. > Some have been out there speaking to whomever will > listen. > > What is so strange is that, if the media can, it > distorts the message! Strange? Yes, if you still > believe the world is fair. Understandable when you > find out that the media lives off advertising dollars, > and these people don't want the truth out. > > To compound that, the FDA continues to study whether > or not to approve a " new " generation of silicone gel > implants. .. . Regardless of a lack of long term > studies, obvious red flags, and the protests of those > who have been injured. Graft in the government? . . . > Who knows. Obviously that wouldn't be new! > > In addition, saline implants stay on the market with > the FDA's approval - in spite of thousands of injury > report. > > The part that infuriates me so much is what breast > implants are doing to the unborn and nursing children > born to women with implants! I started a group > for the parents of children injured by silcone > " SiliconeKids " . . . What I'm learning privately is > that the problems are much more serious than parents > will discuss on line, and that mothers are very > reluctant to go public with their childrens very > serious health problems. > > As far as I'm concerned, this entire situtation is > beyond criminal. Since there appears to be no justice > on this earth, we can only pray the God has his own > very special plans for those who blatently injure and > kill so many. > > If you have any questions about accessing the > archives, let us know. > > Please share your knowledge of alternative health > measures with us. Most of us have found more relief > through alternative means than we have through > conventional medicine. Most conventional doctors > either won't, or can't, help us. > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 > No worries! " my moments " are blamed on the 2 brain cells remiaining that repeatedly trip over one another! But I may borrow yours if you don't mind?! Because I am still so new w/naviagating this site I am uncertain w/how to join in w/the " discussionals " . I am hoping that those that read my 1st entry can let me know if any of the ailments I added are any they too experience and will reply with their exp, info and trmnt's. I have an idea thats been running thru my mind that in referrance to hype and or cost that would be(within and reasonable)for what I feel something within our already minimal collective or individual funds $$$$$$. I believe it would be taken note of, inquried about and is so common in the world of research but also fund raising today. I would like to pass it on perhaps to you but am hesitant that it would be taken off (not by you) but because I am such a novelist re:the use of this site. The monies earned could be managed towards our having financial control (money talks) and moving thru the otherwise protected Media some clout to be HEARD and reckoned with. Let me know if you or someone you feel I might speak with that the " idea " could be put into action. Again thanks more than any additonal words I might add! > , > > I guess I have confused you with another woman . . . > my apologies . . . > > We have a term for that here where we live (Hot Spring > VILLAGE) . . . It's called a Village moment! . . . > That's what my husband and I experienced when we > showed up for the Sunday church service yesterday > (Saturday) . . . > > Please feel to chime in whenever you have something to > add to the discussionl. We talk about a lot of > alternative treatments . . . It's great to have a > group to discuss things with because there's so much > hype to some programs - and they can get expensive. > > Since getting sick, and unable to get satisfactory > treatment from my doctors, I determined to try > anything that didn't hold the possiblity of making > things worse. I believe that, if we put our trust in > God to lead us, we will find what we need to recover. > Alternative or not! > > Welcome again! > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 , As far as joining in on the discussions, you're there .. . . Just send your messages to this group, and everyone can read or respond. As far as raising money . . . it's been tried with varying results. . . There are a few organizations that are set up as non-profits and do some PR work on our behalf. The one that is the most effective is headed by Zuckerman, Ph.D. . . Research for Women and Families. . . is in D.C. . . .knows the players and has the attention of the press. She is interviewed on most implant related events. There is also Toxic Discovery headed by Kathy ly- and Command Trust headed by Sybil Goldrich. . . One of the problems that comes into play with trying to raise money is accountablity. There are so many scams going on that, unless an organization has the right accrediation, they are subject to a host of nightmares and accusations. Nevertheless, there is a lot every single one of us can do. Some women have become public speakers - speaking to women's organizations, schools, and the media. Five (I think it was five) women from this group appeared on MTV's " I Want a Famous Face " where the depicted the downside of breast implants. There are flyers available from Command Trust to place wherever one can. You can talk your doctors, medical technicians (especially mammogram techs) . . . They may not take one woman seriously, but after they've heard the same story over and over, it begins to sink in. I've often thought that the Bill and Melinda Gates foundation would fund a research or public relations program . . . But even then, one need to know how to go about requesting the funds and the expertise to deliver. I've been looking at this a throwing pebbles on the lake . . . Problem is, I'm feeling that the lake is getting full, and the message still hasn't gotten through! Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Good Morning Rogene, Thank you once again for informing me, replying and being so frank when it comes to raising money. I want to past this running theme by you anyway because IT wont let go of my ever busy mind. What came to me (seems to me) almost to simple to pass up. Here goes: EVERYONE recognizes the now infamous "Rubber Wrist Bands per illness, color and f/raising. What if we were to collectively decide on a (color) and have embedded "Breast Implant Survivor" or BIS???? People always inquire a new color (want to be in the what's what~ popularity) of them and wear them like a collection and or some sort of status...right. I know they are sold usually for a $1.00, sometimes $2 so the cost is ridiculously minuscule!! But I BELIEVE NEW makes for questions asked by MOST wanting to KNOW and too to HELP the "cause". I keep seeing Purple for 2 reasons, 1 its my fav color but also it is recognized as THE Universal "Healing" color. I sincerely feel this would take off and accomplish a great deal in all OUR efforts towards AWARENESS but also in being put out there to the masses we might not otherwise REACH. Too, it gives us the sense we ARE bonded and moving towards something to aid US in feeling we are accomplishing being SEEN & HEARD! Anyway there it is, give me your honest opinion and or additional thoughts, I respect your views, opinions and experience! Love, Rogene S <saxony01@...> wrote: , As far as joining in on the discussions, you're there . . . Just send your messages to this group, and everyone can read or respond. As far as raising money . . . it's been tried with varying results. . . There are a few organizations that are set up as non-profits and do some PR work on our behalf. The one that is the most effective is headed by Zuckerman, Ph.D. . . Research for Women and Families. . . is in D.C. . . .knows the players and has the attention of the press. She is interviewed on most implant related events. There is also Toxic Discovery headed by Kathy ly- and Command Trust headed by Sybil Goldrich. . . One of the problems that comes into play with trying to raise money is accountablity. There are so many scams going on that, unless an organization has the right accrediation, they are subject to a host of nightmares and accusations. Nevertheless, there is a lot every single one of us can do. Some women have become public speakers - speaking to women's organizations, schools, and the media. Five (I think it was five) women from this group appeared on MTV's "I Want a Famous Face" where the depicted the downside of breast implants. There are flyers available from Command Trust to place wherever one can. You can talk your doctors, medical technicians (especially mammogram techs) . . . They may not take one woman seriously, but after they've heard the same story over and over, it begins to sink in. I've often thought that the Bill and Melinda Gates foundation would fund a research or public relations program . . . But even then, one need to know how to go about requesting the funds and the expertise to deliver. I've been looking at this a throwing pebbles on the lake . . . Problem is, I'm feeling that the lake is getting full, and the message still hasn't gotten through! Hugs, Rogene __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 LOL, . . . you must be taped into the universal consconsciousness . . . Purple is the color for the implant cause! . . . It was adopted at least 12 years ago. . . Toxic Discovery does have wrist band . . . kinda a purple . . . I think they sell for $5. They aren't as direct with the implant cause as they could be (don't say " breast implants " - but the group is trying to make the public aware of the toxic effects of other things beside breast implants too. Check with Kathy ley ston <kkjohnston@...>. She can tell you better than I what she is doing. I know she's archiving a tremendous amount of information in regards to breast implants and makes it available to the public, as well as conducts other PR programs. I'm all for doing whatever possible to get the word out . . . Since there are those who have worked hard to lay the groundwork, and have recognised organizations in place, maybe the thing we need to do is to get behind these organizations with our money in return for a clear unstanding what they will do with our dollars. Keep thinking! You're doing great! Hugs and prayers, Rogene --- Pasqualini <kimmerly93@...> wrote: > Good Morning Rogene, > Thank you once again for informing me, replying > and being so frank when it comes to raising money. > I want to past this running theme by you anyway > because IT wont let go of my ever busy mind. > > What came to me (seems to me) almost to simple to > pass up. Here goes: > EVERYONE recognizes the now infamous " Rubber Wrist > Bands per illness, color and f/raising. What if we > were to collectively decide on a (color) and have > embedded " Breast Implant Survivor " or BIS???? People > always inquire a new color (want to be in the > what's what~ popularity) of them and wear them like > a collection and or some sort of status...right. I > know they are sold usually for a $1.00, sometimes $2 > so the cost is ridiculously minuscule!! But I > BELIEVE NEW makes for questions asked by MOST > wanting to KNOW and too to HELP the " cause " . > I keep seeing Purple for 2 reasons, 1 its my fav > color but also it is recognized as THE Universal > " Healing " color. I sincerely feel this would take > off and accomplish a great deal in all OUR efforts > towards AWARENESS but also in being put out there to > the masses we might not otherwise REACH. Too, it > gives us the sense we ARE bonded and moving towards > something to aid US in feeling we are accomplishing > being SEEN & HEARD! > Anyway there it is, give me your honest opinion > and or additional thoughts, I respect your views, > opinions and experience! > Love, > > Rogene S <saxony01@...> wrote: > , > > As far as joining in on the discussions, you're > there > . . . Just send your messages to this group, and > everyone can read or respond. > > As far as raising money . . . it's been tried with > varying results. . . There are a few organizations > that are set up as non-profits and do some PR work > on > our behalf. The one that is the most effective is > headed by Zuckerman, Ph.D. . . Research for > Women and Families. . . is in D.C. . . > .knows > the players and has the attention of the press. > She is > interviewed on most implant related events. There > is > also Toxic Discovery headed by Kathy > ly- > and Command Trust headed by Sybil Goldrich. . . > > One of the problems that comes into play with > trying > to raise money is accountablity. There are so many > scams going on that, unless an organization has > the > right accrediation, they are subject to a host of > nightmares and accusations. > > Nevertheless, there is a lot every single one of > us > can do. Some women have become public speakers - > speaking to women's organizations, schools, and > the > media. Five (I think it was five) women from this > group appeared on MTV's " I Want a Famous Face " > where > the depicted the downside of breast implants. > There > are flyers available from Command Trust to place > wherever one can. You can talk your doctors, > medical > technicians (especially mammogram techs) . . . > They > may not take one woman seriously, but after > they've > heard the same story over and over, it begins to > sink > in. > > I've often thought that the Bill and Melinda Gates > foundation would fund a research or public > relations > program . . . But even then, one need to know how > to > go about requesting the funds and the expertise to > deliver. > > I've been looking at this a throwing pebbles on > the > lake . . . Problem is, I'm feeling that the lake > is > getting full, and the message still hasn't gotten > through! > > Hugs, > > Rogene > > > > > Opinions expressed are NOT meant to take the > place of advice given by licensed health care > professionals. Consult your physician or licensed > health care professional before commencing any > medical treatment. > > " Do not let either the medical authorities or the > politicians mislead you. Find out what the facts > are, and make your own decisions about how to live > a happy life and how to work for a better world. " - > Linus ing, two-time Nobel Prize Winner (1954, > Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for > access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Hi , I had been thinking the same thing, some type of symbol to build awareness. I noticed that there's another site that has a purple wrist band for implant illness - I'll see if I can find the site, but I think it was Ilena's site (if anyone knows her address). However, just because this is already being done, certainly doesn't mean there aren't other ways to raise awareness or perhaps another symbol to come up with. I totally admire the fact that you want to take action with this, . Sis , > > As far as joining in on the discussions, you're there > . . . Just send your messages to this group, and > everyone can read or respond. > > As far as raising money . . . it's been tried with > varying results. . . There are a few organizations > that are set up as non-profits and do some PR work on > our behalf. The one that is the most effective is > headed by Zuckerman, Ph.D. . . Research for > Women and Families. . . is in D.C. . . .knows > the players and has the attention of the press. She is > interviewed on most implant related events. There is > also Toxic Discovery headed by Kathy ly- > and Command Trust headed by Sybil Goldrich. . . > > One of the problems that comes into play with trying > to raise money is accountablity. There are so many > scams going on that, unless an organization has the > right accrediation, they are subject to a host of > nightmares and accusations. > > Nevertheless, there is a lot every single one of us > can do. Some women have become public speakers - > speaking to women's organizations, schools, and the > media. Five (I think it was five) women from this > group appeared on MTV's " I Want a Famous Face " where > the depicted the downside of breast implants. There > are flyers available from Command Trust to place > wherever one can. You can talk your doctors, medical > technicians (especially mammogram techs) . . . They > may not take one woman seriously, but after they've > heard the same story over and over, it begins to sink > in. > > I've often thought that the Bill and Melinda Gates > foundation would fund a research or public relations > program . . . But even then, one need to know how to > go about requesting the funds and the expertise to > deliver. > > I've been looking at this a throwing pebbles on the > lake . . . Problem is, I'm feeling that the lake is > getting full, and the message still hasn't gotten > through! > > Hugs, > > Rogene > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
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