Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Hi Jackie and welcome to the group. I am so sorry you and your precious husband are having to go through all this. I am praying for good news at your appointment with the transplant team. It can be a long and arduous process, but so worth it if the outcome is acceptance onto the list. My own dear husband went home to be with Jesus on Jan. 26 of this year after a two and a half year battle with liver disease. His liver was poisoned when he suffered septicemia due to baterial infections of no known etiology in Feb., 2006. He survived when no doctor thought he would, but was later devastated when we learned of the liver disease. I am very familiar with the pain and confusion you are feeling at this time and all the other emotions that go along with that. I am always available if you need me. My prayers are with you. Warm Hugs........... Diane http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport Sent: Saturday, March 28, 2009 9:25:01 PM Subject: to introduce myself Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Hi, I am Lyncia. I am on the liver and kidney transplant list here in Texas. Welcome to the group. They have been such a blessing to me and they are so knowledgeable. Welcome! Lots of hugs and kisses to everyone. Lyncia Subject: to introduce myself To: livercirrhosissupport Date: Saturday, March 28, 2009, 9:25 PM Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 hi jackie ,welcome to our family ,although i wish we had met under different circumstances! i am so sorry to hear about your husband.i am the care giver for my husband bobby glenn,he has ESLD and we are praying for the best outcome daily.my husbands tumor markers just raised to 8.2, do you remember what your husband were? sorry i just had to ask.but you have found the greatest place on earth for info ,knowledge,and support,we are all here for you and i am sure you can help some of us learn also, so welcome sweety and know you are loved and being prayed for daily ,god bless barby > > > > Subject: to introduce myself > To: livercirrhosissupport > Date: Saturday, March 28, 2009, 9:25 PM > > > > > > > Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined > to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As > of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Hi: Nice to meet you too, and to know another caregiver out there. The funny thing is--my husband had the tumor marker test and it came out normal to low. We had 2 labs read the biopsy. The first report came back in the morning. We went to see the dr for the results and he said there was no cancer. That's when I asked about the tumor marker results. He told us we had nothing to worry about, then that same afternoon he called us with the results from the 2nd reading, which were positive. It was like a cruel joke. But it is what it is, and instead of becoming angry we need to focus on what can be done now. We are hoping that the tumor will respond to the treatment and he will be able to make the transplant list. He had open heart surgery in April, 2004 and has been on simvastatin since. I keep hearing on tv commercials for these statins that people with liver disease should talk to their drs about them. I asked his cardiologist, and he said it wouldn't make the cirrhosis worse but I wonder. Hmm. I gave the cardiologist a set of the pictures of his liver and I am hoping maybe now he will consider taking him off statins. I just have a gut feeling about this. I also have a feeling we will get thru this crisis. Making new friends like you and the others in the group is a blessing to us both. I will continue to keep you all in my prayers. Thanks, Jackie Subject: Re: to introduce myself To: livercirrhosissupport Date: Sunday, March 29, 2009, 9:56 AM hi jackie ,welcome to our family ,although i wish we had met under different circumstances! i am so sorry to hear about your husband.i am the care giver for my husband bobby glenn,he has ESLD and we are praying for the best outcome daily.my husbands tumor markers just raised to 8.2, do you remember what your husband were? sorry i just had to ask.but you have found the greatest place on earth for info ,knowledge,and support,we are all here for you and i am sure you can help some of us learn also, so welcome sweety and know you are loved and being prayed for daily ,god bless barby > > > From: jckellermann <jckellermann@ ...> > Subject: to introduce myself > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Saturday, March 28, 2009, 9:25 PM > > > > > > > Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report.. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined > to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As > of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 I refused statins after reading the reports about liver damage. I have had doctors and nurses argue with me that statins have their benefits which the zetia I am taking doesn't have. But I have read reports on both sides for both medications. I choose not to take statins, and my cardiologist now says under no circumstances should I be taking them. He has kept me alive and heart attack and stroke free for 7 years now by putting in stents and referring me for triple bypass. So, I will listen to him. If I had to fight more to stay off statins, I would get the word from a liver specialist to stay off of them, or that it is okay for me to take them. Jan H On Sun, Mar 29, 2009 at 11:23 AM, Jackie Ellermann wrote: > Hi: Nice to meet you too, and to know another caregiver out there. The > funny thing is--my husband had the tumor marker test and it came out normal > to low. We had 2 labs read the biopsy. The first report came back in the > morning. We went to see the dr for the results and he said there was no > cancer. That's when I asked about the tumor marker results. He told us we > had nothing to worry about, then that same afternoon he called us with the > results from the 2nd reading, which were positive. It was like a cruel > joke. But it is what it is, and instead of becoming angry we need to focus > on what can be done now. We are hoping that the tumor will respond to the > treatment and he will be able to make the transplant list. He had open > heart surgery in April, 2004 and has been on simvastatin since. I keep > hearing on tv commercials for these statins that people with liver disease > should talk to their drs about them. I asked his cardiologist, > and he said it wouldn't make the cirrhosis worse but I wonder. Hmm. I > gave the cardiologist a set of the pictures of his liver and I am hoping > maybe now he will consider taking him off statins. I just have a gut > feeling about this. I also have a feeling we will get thru this crisis. > Making new friends like you and the others in the group is a blessing to us > both. I will continue to keep you all in my prayers. Thanks, Jackie > > > > From: pinkmeetsblue <pinkmeetsblue@... <pinkmeetsblue%40yahoo.com>> > Subject: Re: to introduce myself > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Date: Sunday, March 29, 2009, 9:56 AM > > hi jackie ,welcome to our family ,although i wish we had met under > different circumstances! i am so sorry to hear about your husband.i am the > care giver for my husband bobby glenn,he has ESLD and we are praying for the > best outcome daily.my husbands tumor markers just raised to 8.2, do you > remember what your husband were? sorry i just had to ask.but you have found > the greatest place on earth for info ,knowledge,and support,we are all here > for you and i am sure you can help some of us learn also, so welcome sweety > and know you are loved and being prayed for daily ,god bless barby > > > > > > From: jckellermann <jckellermann@ ...> > > Subject: to introduce myself > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Saturday, March 28, 2009, 9:25 PM > > > > > > > > > > > > > > Hi: My name is Jackie and I am caring for my husband. He has been an > insulin dependant diabetic since 1995 and for some years now has had an > enlarged liver and spleen. He has had many tests and they diagnosed him with > fatty liver. He was having liver function blood tests every 6 months. His > test results indicate good liver function. In July, 2007 he was rushed to > the hospital with esophageal varices. He almost died during the banding > proceedure, but came thru ok. Since then he is periodically checked for new > veins growing in the esophagus. He went for a EGD on Jan. 15th and got a > good report.. No new veins growing. The dr. said he wanted him to have an > ultrasound of his liver because he hadn't had one in awhile, so he had the > ultrasound and it came back showing some gray areas. From there he had an > mri which showed 3 lesions on the right lobe of his liver. A biopsy > confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The > cancer is confined > > to the liver. On Feb. 27th we checked him into the hospital with the > intention of having a radiofrequency ablation proceedure to " microwave " the > tumors. When the surgeon saw his liver he discovered that his cirrhosis is > too advanced for that proceedure. It would cause too much collateral damage > to the liver itself. The surgeon immediately got in touch with the radiation > group and the transplant team at University Hospital in Phila, PA. He also > took pictures of the liver, which I have a copy of to show the transplant > team. He had a treatment this past Wed. where they injected a > alcohol/chemical solution into the 2 small tumors, which dried them up. Then > they injected radioactive seeds into the blood supply of the larger tumor in > attempt to shrink it. We are hoping this works. We have an appointment on > April 20th to meet with the transplant team for an evaluation for him to be > placed on the list. He is 64 years old and in pretty good shape otherwise. > As > > of now he is symptom free and his liver is functioning normally. It is > interesting to hear your stories and compare notes. I hope to hear from you. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Welcome Jackie, My name is Pamela, I was caregiver to my mom who died 2/08 of NAFLD and complications due to cirrhosis. It sounds like your dh is getting good care. Will pray for you both! There are lots of great folks here with tons of knowledge and wonderful support for one another. Pamela Subject: to introduce myself To: livercirrhosissupport Date: Saturday, March 28, 2009, 6:25 PM Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Pam - when you say there are tons of people here, are you implying that at least some of us are really fat? I know I am overweight, but didn't know that was a requirement for membership on the list. Working on cutting down my hips. [?] Hope the rest of me will follow suit. Just thought we needed some levity here, haven't had any good jokes for awhile. Jan H On Sun, Mar 29, 2009 at 4:17 PM, Pamela on wrote: > Welcome Jackie, > > My name is Pamela, I was caregiver to my mom who died 2/08 of NAFLD and > complications due to cirrhosis. > > It sounds like your dh is getting good care. Will pray for you both! > There are lots of great folks here with tons of knowledge and wonderful > support for one another. > > Pamela > > > > From: jckellermann <jckellermann@... <jckellermann%40yahoo.com>> > Subject: to introduce myself > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Date: Saturday, March 28, 2009, 6:25 PM > > Hi: My name is Jackie and I am caring for my husband. He has been an > insulin dependant diabetic since 1995 and for some years now has had an > enlarged liver and spleen. He has had many tests and they diagnosed him with > fatty liver. He was having liver function blood tests every 6 months. His > test results indicate good liver function. In July, 2007 he was rushed to > the hospital with esophageal varices. He almost died during the banding > proceedure, but came thru ok. Since then he is periodically checked for new > veins growing in the esophagus. He went for a EGD on Jan. 15th and got a > good report. No new veins growing. The dr. said he wanted him to have an > ultrasound of his liver because he hadn't had one in awhile, so he had the > ultrasound and it came back showing some gray areas. From there he had an > mri which showed 3 lesions on the right lobe of his liver. A biopsy > confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The > cancer is confined > to the liver. On Feb. 27th we checked him into the hospital with the > intention of having a radiofrequency ablation proceedure to " microwave " the > tumors. When the surgeon saw his liver he discovered that his cirrhosis is > too advanced for that proceedure. It would cause too much collateral damage > to the liver itself. The surgeon immediately got in touch with the radiation > group and the transplant team at University Hospital in Phila, PA. He also > took pictures of the liver, which I have a copy of to show the transplant > team. He had a treatment this past Wed. where they injected a > alcohol/chemical solution into the 2 small tumors, which dried them up. Then > they injected radioactive seeds into the blood supply of the larger tumor in > attempt to shrink it. We are hoping this works. We have an appointment on > April 20th to meet with the transplant team for an evaluation for him to be > placed on the list. He is 64 years old and in pretty good shape otherwise. > As > of now he is symptom free and his liver is functioning normally. It is > interesting to hear your stories and compare notes. I hope to hear from you. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 I don't know whether to laugh, or cry!!!!!! Luv ya, Jan!!!! Warm Hugs........... Diane http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport Sent: Sunday, March 29, 2009 7:05:01 PM Subject: Re: to introduce myself Pam - when you say there are tons of people here, are you implying that at least some of us are really fat? I know I am overweight, but didn't know that was a requirement for membership on the list. Working on cutting down my hips. [?] Hope the rest of me will follow suit. Just thought we needed some levity here, haven't had any good jokes for awhile. Jan H On Sun, Mar 29, 2009 at 4:17 PM, Pamela on <ohanafiveyahoo (DOT) com>wrote: > Welcome Jackie, > > My name is Pamela, I was caregiver to my mom who died 2/08 of NAFLD and > complications due to cirrhosis. > > It sounds like your dh is getting good care. Will pray for you both! > There are lots of great folks here with tons of knowledge and wonderful > support for one another. > > Pamela > > > > From: jckellermann <jckellermann@ yahoo.com <jckellermann% 40yahoo.com> > > Subject: to introduce myself > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup s.com> > Date: Saturday, March 28, 2009, 6:25 PM > > Hi: My name is Jackie and I am caring for my husband. He has been an > insulin dependant diabetic since 1995 and for some years now has had an > enlarged liver and spleen. He has had many tests and they diagnosed him with > fatty liver. He was having liver function blood tests every 6 months. His > test results indicate good liver function. In July, 2007 he was rushed to > the hospital with esophageal varices. He almost died during the banding > proceedure, but came thru ok. Since then he is periodically checked for new > veins growing in the esophagus. He went for a EGD on Jan. 15th and got a > good report. No new veins growing. The dr. said he wanted him to have an > ultrasound of his liver because he hadn't had one in awhile, so he had the > ultrasound and it came back showing some gray areas. From there he had an > mri which showed 3 lesions on the right lobe of his liver. A biopsy > confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The > cancer is confined > to the liver. On Feb. 27th we checked him into the hospital with the > intention of having a radiofrequency ablation proceedure to " microwave " the > tumors. When the surgeon saw his liver he discovered that his cirrhosis is > too advanced for that proceedure. It would cause too much collateral damage > to the liver itself. The surgeon immediately got in touch with the radiation > group and the transplant team at University Hospital in Phila, PA. He also > took pictures of the liver, which I have a copy of to show the transplant > team. He had a treatment this past Wed. where they injected a > alcohol/chemical solution into the 2 small tumors, which dried them up. Then > they injected radioactive seeds into the blood supply of the larger tumor in > attempt to shrink it. We are hoping this works. We have an appointment on > April 20th to meet with the transplant team for an evaluation for him to be > placed on the list. He is 64 years old and in pretty good shape otherwise. > As > of now he is symptom free and his liver is functioning normally. It is > interesting to hear your stories and compare notes. I hope to hear from you. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Oh dang, I had the cute little emoticons and they didn't show up! Dang it!!!! Warm Hugs........... Diane http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport Sent: Sunday, March 29, 2009 7:52:16 PM Subject: Re: to introduce myself I don't know whether to laugh, or cry!!!!!! Luv ya, Jan!!!! Warm Hugs........ ... Diane http://auntdisexper imentallife. blogspot. com/ ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, March 29, 2009 7:05:01 PM Subject: Re: to introduce myself Pam - when you say there are tons of people here, are you implying that at least some of us are really fat? I know I am overweight, but didn't know that was a requirement for membership on the list. Working on cutting down my hips. [?] Hope the rest of me will follow suit. Just thought we needed some levity here, haven't had any good jokes for awhile. Jan H On Sun, Mar 29, 2009 at 4:17 PM, Pamela on <ohanafiveyahoo (DOT) com>wrote: > Welcome Jackie, > > My name is Pamela, I was caregiver to my mom who died 2/08 of NAFLD and > complications due to cirrhosis. > > It sounds like your dh is getting good care. Will pray for you both! > There are lots of great folks here with tons of knowledge and wonderful > support for one another. > > Pamela > > > > From: jckellermann <jckellermann@ yahoo.com <jckellermann% 40yahoo.com> > > Subject: to introduce myself > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Date: Saturday, March 28, 2009, 6:25 PM > > Hi: My name is Jackie and I am caring for my husband. He has been an > insulin dependant diabetic since 1995 and for some years now has had an > enlarged liver and spleen. He has had many tests and they diagnosed him with > fatty liver. He was having liver function blood tests every 6 months. His > test results indicate good liver function. In July, 2007 he was rushed to > the hospital with esophageal varices. He almost died during the banding > proceedure, but came thru ok. Since then he is periodically checked for new > veins growing in the esophagus. He went for a EGD on Jan. 15th and got a > good report. No new veins growing. The dr. said he wanted him to have an > ultrasound of his liver because he hadn't had one in awhile, so he had the > ultrasound and it came back showing some gray areas. From there he had an > mri which showed 3 lesions on the right lobe of his liver. A biopsy > confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The > cancer is confined > to the liver. On Feb. 27th we checked him into the hospital with the > intention of having a radiofrequency ablation proceedure to " microwave " the > tumors. When the surgeon saw his liver he discovered that his cirrhosis is > too advanced for that proceedure. It would cause too much collateral damage > to the liver itself. The surgeon immediately got in touch with the radiation > group and the transplant team at University Hospital in Phila, PA. He also > took pictures of the liver, which I have a copy of to show the transplant > team. He had a treatment this past Wed. where they injected a > alcohol/chemical solution into the 2 small tumors, which dried them up. Then > they injected radioactive seeds into the blood supply of the larger tumor in > attempt to shrink it. We are hoping this works. We have an appointment on > April 20th to meet with the transplant team for an evaluation for him to be > placed on the list. He is 64 years old and in pretty good shape otherwise. > As > of now he is symptom free and his liver is functioning normally. It is > interesting to hear your stories and compare notes. I hope to hear from you. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Hi, Jan! Verrrry funny! Hehe. I hope you had a nice Sunday, and church was good too. Is it getting hotter there yet? Sent via BlackBerry from T-Mobile to introduce myself > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Date: Saturday, March 28, 2009, 6:25 PM > > Hi: My name is Jackie and I am caring for my husband. He has been an > insulin dependant diabetic since 1995 and for some years now has had an > enlarged liver and spleen. He has had many tests and they diagnosed him with > fatty liver. He was having liver function blood tests every 6 months. His > test results indicate good liver function. In July, 2007 he was rushed to > the hospital with esophageal varices. He almost died during the banding > proceedure, but came thru ok. Since then he is periodically checked for new > veins growing in the esophagus. He went for a EGD on Jan. 15th and got a > good report. No new veins growing. The dr. said he wanted him to have an > ultrasound of his liver because he hadn't had one in awhile, so he had the > ultrasound and it came back showing some gray areas. From there he had an > mri which showed 3 lesions on the right lobe of his liver. A biopsy > confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The > cancer is confined > to the liver. On Feb. 27th we checked him into the hospital with the > intention of having a radiofrequency ablation proceedure to " microwave " the > tumors. When the surgeon saw his liver he discovered that his cirrhosis is > too advanced for that proceedure. It would cause too much collateral damage > to the liver itself. The surgeon immediately got in touch with the radiation > group and the transplant team at University Hospital in Phila, PA. He also > took pictures of the liver, which I have a copy of to show the transplant > team. He had a treatment this past Wed. where they injected a > alcohol/chemical solution into the 2 small tumors, which dried them up. Then > they injected radioactive seeds into the blood supply of the larger tumor in > attempt to shrink it. We are hoping this works. We have an appointment on > April 20th to meet with the transplant team for an evaluation for him to be > placed on the list. He is 64 years old and in pretty good shape otherwise. > As > of now he is symptom free and his liver is functioning normally. It is > interesting to hear your stories and compare notes. I hope to hear from you. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 it does seem like a cruel joke jackie i am very sorry, but sometimes all we have is hope and our faith, i am praying for yas babe!!!! much love barby > > > > > > From: jckellermann <jckellermann@ ...> > > Subject: to introduce myself > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Saturday, March 28, 2009, 9:25 PM > > > > > > > > > > > > > > Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report.. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined > > to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As > > of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Thanks! I am looking forward to getting to know you all. Jackie From: jckellermann <jckellermann@ yahoo.com> Subject: to introduce myself To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, March 28, 2009, 6:25 PM Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Thanks for your encouragement. He is doing real well as of now and has a positive attitude. I know we are gonna beat this. We take things one step at a time. Looking forward to getting to know everyone in the group. Jackie Subject: Re: to introduce myself To: livercirrhosissupport Date: Sunday, March 29, 2009, 9:36 PM it does seem like a cruel joke jackie i am very sorry, but sometimes all we have is hope and our faith, i am praying for yas babe!!!! much love barby > > > > > > From: jckellermann <jckellermann@ ...> > > Subject: to introduce myself > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > Date: Saturday, March 28, 2009, 9:25 PM > > > > > > > > > > > > > > Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report.. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined > > to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As > > of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you.. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Diane, laugh until you cry. Jan H On Sun, Mar 29, 2009 at 5:52 PM, diane chandler wrote: > I don't know whether to laugh, or cry!!!!!! > > Luv ya, Jan!!!! > > > Warm Hugs........... > > Diane > http://auntdisexperimentallife.blogspot.com/ > > ________________________________ > From: Jan Holman <janholman@... <janholman%40gmail.com>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Sunday, March 29, 2009 7:05:01 PM > Subject: Re: to introduce myself > > Pam - when you say there are tons of people here, are you implying that at > least some of us are really fat? I know I am overweight, but didn't know > that was a requirement for membership on the list. Working on cutting down > my hips. [?] Hope the rest of me will follow suit. Just thought we needed > some levity here, haven't had any good jokes for awhile. Jan H > > On Sun, Mar 29, 2009 at 4:17 PM, Pamela on wrote: > > > Welcome Jackie, > > > > My name is Pamela, I was caregiver to my mom who died 2/08 of NAFLD and > > complications due to cirrhosis. > > > > It sounds like your dh is getting good care. Will pray for you both! > > There are lots of great folks here with tons of knowledge and wonderful > > support for one another. > > > > Pamela > > > > > > > > From: jckellermann <jckellermann@ yahoo.com <jckellermann% 40yahoo.com> > > > > Subject: to introduce myself > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp > ort%40yahoogroup s.com> > > > Date: Saturday, March 28, 2009, 6:25 PM > > > > Hi: My name is Jackie and I am caring for my husband. He has been an > > insulin dependant diabetic since 1995 and for some years now has had an > > enlarged liver and spleen. He has had many tests and they diagnosed him > with > > fatty liver. He was having liver function blood tests every 6 months. His > > test results indicate good liver function. In July, 2007 he was rushed to > > the hospital with esophageal varices. He almost died during the banding > > proceedure, but came thru ok. Since then he is periodically checked for > new > > veins growing in the esophagus. He went for a EGD on Jan. 15th and got a > > good report. No new veins growing. The dr. said he wanted him to have an > > ultrasound of his liver because he hadn't had one in awhile, so he had > the > > ultrasound and it came back showing some gray areas. From there he had an > > mri which showed 3 lesions on the right lobe of his liver. A biopsy > > confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The > > cancer is confined > > to the liver. On Feb. 27th we checked him into the hospital with the > > intention of having a radiofrequency ablation proceedure to " microwave " > the > > tumors. When the surgeon saw his liver he discovered that his cirrhosis > is > > too advanced for that proceedure. It would cause too much collateral > damage > > to the liver itself. The surgeon immediately got in touch with the > radiation > > group and the transplant team at University Hospital in Phila, PA. He > also > > took pictures of the liver, which I have a copy of to show the transplant > > team. He had a treatment this past Wed. where they injected a > > alcohol/chemical solution into the 2 small tumors, which dried them up. > Then > > they injected radioactive seeds into the blood supply of the larger tumor > in > > attempt to shrink it. We are hoping this works. We have an appointment on > > April 20th to meet with the transplant team for an evaluation for him to > be > > placed on the list. He is 64 years old and in pretty good shape > otherwise. > > As > > of now he is symptom free and his liver is functioning normally. It is > > interesting to hear your stories and compare notes. I hope to hear from > you. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Church was very good. I didn't make any glaring errors, just didn't play a few notes. I have found a lovely help to playing the piano and organ. It is called white out. White out a bunch of notes and it is easier to play the rest. My motto is, if they aren't going to sing it, I don't have to play it, except for the chords which go with the melody of course, but I cut those way down too. So, now I call myself a music arranger. [?] I am trying to figure out if I am going crazy or just a sucker for punishment. The grandson I had here 2 years ago has a court date tomorrow to finally settle the trouble he got into while here then. His mother couldn't bring him over tomorrow because it is her daughter's birthday and my daughter also wants to go to court to protest a traffic ticket she received. So, I said if he could get over here, I would take him to court tomorrow. Now, I have both of my oldest grandsons here, the one who has been here for about a years since he came to stay with me after my bypass last April, and this one, his younger brother. So, I have to get one to work, and one to court, and the court one can't be out of my sight or that of his brother while he is with me. Actually, he seems to be making some progress into turning into an honest person. But, he walked in here last night, dropped down on the couch and started complaining how much he hurt from the work he had been doing, and then sitting in the car with his obnoxious step father who dropped him off after three hours to get here. Since I have been running around for about 3 or four weeks with no real break between doctor's appts, practicing to play for church, was all sweaty from just finishing the vacuuming for the first time in two weeks, I didn't take to that statement very well, and told him I didn't want to hear it. He was wondering why I was mad at him so quickly, told him I wasn't mad at all, just very tired myself, a lot older, a lot sicker, and he at 19 should be able to do what he was complaining about without complaining. He didn't get it. Then I had to wash his pants for church this morning and court tomorrow, and wet down his dress shirt and put it in the dryer to " iron " it. Which am I, crazy as a loon, or a sucker for punishment? [?] Jan H > Hi, Jan! Verrrry funny! Hehe. I hope you had a nice Sunday, and church > was good too. Is it getting hotter there yet? > Sent via BlackBerry from T-Mobile > > to introduce myself > > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > <livercirrhosissupport%40yahoogroups.com> > > Date: Saturday, March 28, 2009, 6:25 PM > > > > Hi: My name is Jackie and I am caring for my husband. He has been an > > insulin dependant diabetic since 1995 and for some years now has had an > > enlarged liver and spleen. He has had many tests and they diagnosed him > with > > fatty liver. He was having liver function blood tests every 6 months. His > > > test results indicate good liver function. In July, 2007 he was rushed to > > > the hospital with esophageal varices. He almost died during the banding > > proceedure, but came thru ok. Since then he is periodically checked for > new > > veins growing in the esophagus. He went for a EGD on Jan. 15th and got a > > good report. No new veins growing. The dr. said he wanted him to have an > > ultrasound of his liver because he hadn't had one in awhile, so he had > the > > ultrasound and it came back showing some gray areas. From there he had an > > > mri which showed 3 lesions on the right lobe of his liver. A biopsy > > confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The > > cancer is confined > > to the liver. On Feb. 27th we checked him into the hospital with the > > intention of having a radiofrequency ablation proceedure to " microwave " > the > > tumors. When the surgeon saw his liver he discovered that his cirrhosis > is > > too advanced for that proceedure. It would cause too much collateral > damage > > to the liver itself. The surgeon immediately got in touch with the > radiation > > group and the transplant team at University Hospital in Phila, PA. He > also > > took pictures of the liver, which I have a copy of to show the transplant > > > team. He had a treatment this past Wed. where they injected a > > alcohol/chemical solution into the 2 small tumors, which dried them up. > Then > > they injected radioactive seeds into the blood supply of the larger tumor > in > > attempt to shrink it. We are hoping this works. We have an appointment on > > > April 20th to meet with the transplant team for an evaluation for him to > be > > placed on the list. He is 64 years old and in pretty good shape > otherwise. > > As > > of now he is symptom free and his liver is functioning normally. It is > > interesting to hear your stories and compare notes. I hope to hear from > you. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Jan, Love the piano tips. DD plays/sings at church and we are often blessed by the fewer heavy chords and enjoy the light melodies of single notes. You are doing GREAT!! I think you might be a glutton for punishment! LOL! 19yr old needs a reality check! You hang in there and maybe a little tough love (wearing dirty pants and wrinkled shirt) would be good for him! Unless of course you signed up to be his maid? They should be there helping YOU dearest!!! Okay..enough of the lecture!!! BIG hugs!!! Pamela ps I am a hyocrite, as my 20 yr old has NOT even had her shower yet and needs to go to work, but hasn't done her chores here yet. Hmmm need to take a spoonful of my own advice! Subject: Re: to introduce myself To: livercirrhosissupport Date: Sunday, March 29, 2009, 6:10 PM Church was very good. I didn't make any glaring errors, just didn't play a few notes. I have found a lovely help to playing the piano and organ. It is called white out. White out a bunch of notes and it is easier to play the rest. My motto is, if they aren't going to sing it, I don't have to play it, except for the chords which go with the melody of course, but I cut those way down too. So, now I call myself a music arranger. [?] I am trying to figure out if I am going crazy or just a sucker for punishment. The grandson I had here 2 years ago has a court date tomorrow to finally settle the trouble he got into while here then. His mother couldn't bring him over tomorrow because it is her daughter's birthday and my daughter also wants to go to court to protest a traffic ticket she received. So, I said if he could get over here, I would take him to court tomorrow. Now, I have both of my oldest grandsons here, the one who has been here for about a years since he came to stay with me after my bypass last April, and this one, his younger brother. So, I have to get one to work, and one to court, and the court one can't be out of my sight or that of his brother while he is with me. Actually, he seems to be making some progress into turning into an honest person. But, he walked in here last night, dropped down on the couch and started complaining how much he hurt from the work he had been doing, and then sitting in the car with his obnoxious step father who dropped him off after three hours to get here. Since I have been running around for about 3 or four weeks with no real break between doctor's appts, practicing to play for church, was all sweaty from just finishing the vacuuming for the first time in two weeks, I didn't take to that statement very well, and told him I didn't want to hear it. He was wondering why I was mad at him so quickly, told him I wasn't mad at all, just very tired myself, a lot older, a lot sicker, and he at 19 should be able to do what he was complaining about without complaining. He didn't get it. Then I had to wash his pants for church this morning and court tomorrow, and wet down his dress shirt and put it in the dryer to " iron " it. Which am I, crazy as a loon, or a sucker for punishment? [?] Jan H > > Recent Activity 4 New MembersVisit Your Group Give Back Yahoo! for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Yahoo! Groups Start a group in 3 easy steps. Connect with others. ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Pamela - believe me, if it were for something other than church and today court, he could wear dirty wrinkled clothes, go shoeless and sockless. But I want him to look his best at court or they may rethink his plea bargain sentence. And, his mother will be here late tonight to take him back home, so I will be down to just one grandson in residence. When he is here alone, I sometimes forget he is here, except when I have to coordinate his washing his clothes, Ed washing his work clothes, and me trying to get the other ones washed, and when I have to take him to work. Hopefully he will have his driver's license in no more than a month, sold him the 03 car when we recently bought an 07 and then I won't have to take him to work and sometimes pick him up. Right now, I am switching back and forth between the two cars, both Chevy Malibu, about the same color have to have them parked next to each other to tell the difference. I have to stop to think which key to use, how to open the door, how to move the seat, and make sure I am not racing down the road in the 07 since it has a lot more pick up and go than the 03. Here in Arizona, there are no restrictions on the darkness of the film on rear and back seat windows. Can't see out of these even at night, hard to see headlights behind you. So, I am having to learn to use the side mirrors more. I was hoping the tint was illegal so we could take it back to the dealership and tell them they couldn't sell the car that way, would have to replace the rear window, but state law only restricts the windshield and front seat windows. Isn't life an education. Jan H On Mon, Mar 30, 2009 at 1:10 PM, Pamela on wrote: > Jan, > > Love the piano tips. DD plays/sings at church and we are often blessed by > the fewer heavy chords and enjoy the light melodies of single notes. You are > doing GREAT!! > > I think you might be a glutton for punishment! LOL! 19yr old needs a > reality check! You hang in there and maybe a little tough love (wearing > dirty pants and wrinkled shirt) would be good for him! Unless of course you > signed up to be his maid? They should be there helping YOU dearest!!! > Okay..enough of the lecture!!! > > BIG hugs!!! > Pamela > ps I am a hyocrite, as my 20 yr old has NOT even had her shower yet and > needs to go to work, but hasn't done her chores here yet. Hmmm need to take > a spoonful of my own advice! > > > > From: Jan Holman <janholman@... <janholman%40gmail.com>> > Subject: Re: to introduce myself > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Date: Sunday, March 29, 2009, 6:10 PM > > Church was very good. I didn't make any glaring errors, just didn't play a > few notes. I have found a lovely help to playing the piano and organ. It > is called white out. White out a bunch of notes and it is easier to play > the rest. My motto is, if they aren't going to sing it, I don't have to > play it, except for the chords which go with the melody of course, but I > cut > those way down too. So, now I call myself a music arranger. [?] I am trying > to figure out if I am going crazy or just a sucker for punishment. The > grandson I had here 2 years ago has a court date tomorrow to finally settle > the trouble he got into while here then. His mother couldn't bring him over > > tomorrow because it is her daughter's birthday and my daughter also wants > to > go to court to protest a traffic ticket she received. So, I said if he > could get over here, I would take him to court tomorrow. Now, I have both > of my oldest grandsons here, the one who has been here for about a years > since he came to stay with me after my bypass last April, and this one, his > younger brother. So, I have to get one to work, and one to court, and the > court one can't be out of my sight or that of his brother while he is with > me. Actually, he seems to be making some progress into turning into an > honest person. But, he walked in here last night, dropped down on the couch > and started complaining how much he hurt from the work he had been doing, > and then sitting in the car with his obnoxious step father who dropped him > off after three hours to get here. Since I have been running around for > about 3 or four weeks with no real break between doctor's appts, practicing > to play for church, was all sweaty from just finishing the vacuuming for > the > first time in two weeks, I didn't take to that statement very well, and > told > him I didn't want to hear it. He was wondering why I was mad at him > so quickly, told him I wasn't mad at all, just very tired myself, a lot > older, a lot sicker, and he at 19 should be able to do what he was > complaining about without complaining. He didn't get it. Then I had > to wash his pants for church this morning and court tomorrow, and wet down > his dress shirt and put it in the dryer to " iron " it. Which am I, crazy as > a loon, or a sucker for punishment? [?] Jan H > > > > > > Recent Activity > > 4 > New MembersVisit Your Group > > Give Back > Yahoo! for Good > Get inspired > by a good cause. > > Y! Toolbar > Get it Free! > easy 1-click access > to your groups. > > Yahoo! Groups > Start a group > in 3 easy steps. > Connect with others. > .. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Hi Jackie, Welcome to our group. This is a great place with lots of caring, knowledgeable people. My name is Penny. I have Hepatitis C which caused cirrhosis. I had a liver transplant on January 6, 2008. My new liver is doing very well. I am now in the middle of doing treatment for the Hepatitis C. I will be finished with the treatment in December of this year. I have been undetectable of the virus since six days after starting treatment. I hope things go well with your husband and he gets on the list for a new liver. Penny > > Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Welcome to the group Jackie. I am fairly new here but can tell you it is a supportive, caring group. I have Hep B & C but am doing fairly well. I wish the best for your husband and yourself. You will find much comfort from the folks here.~~~Debbie > > Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Thanks so much. Nice to meet you, and I'm glad to hear you're doing well.. My husband is doing well too. To look at him you wouldn't even know he's sick. He had treatment on Wed. to shrink the liver tumor and we are hoping it will work. We are looking forward to the transplant evaluation on April 20th. I will keep everyone in the group in my prayers. Regards, Jackie > > Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report.. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Nice to meet you,Jackie. I'm Jill and my husband has stage 4 cirrhosis,with portal hypertension,esophageal varices,enlarged liver and spleen,Portal hypertensive gastropathy and nodules on his liver.. He does have sustained liver function and is doing pretty welll for the time being. We are always grateful for that!! I haven't been psoting real often due to some pain problems I've been having...but we're working on that! So I'll be here more often. You'll love our family here! We're all very special to each other and support each other so much. We are an awesome group!! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. Subject: to introduce myself To: livercirrhosissupport Date: Saturday, March 28, 2009, 10:25 PM Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Hi Jill: Nice to hear from you. Your husband's situation sounds alot like my husband's. He will be evaluated by a liver transplant team on the 20th of this month. We are hoping for the best. I'm glad I found this support group online. You all have been very helpful so far. Regards, Jackie From: jckellermann <jckellermann@ yahoo.com> Subject: to introduce myself To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, March 28, 2009, 10:25 PM Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 I'll be saying prayers for you both when you see the transplant team! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. From: jckellermann <jckellermann@ yahoo.com> Subject: to introduce myself To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, March 28, 2009, 10:25 PM Hi: My name is Jackie and I am caring for my husband. He has been an insulin dependant diabetic since 1995 and for some years now has had an enlarged liver and spleen. He has had many tests and they diagnosed him with fatty liver. He was having liver function blood tests every 6 months. His test results indicate good liver function. In July, 2007 he was rushed to the hospital with esophageal varices. He almost died during the banding proceedure, but came thru ok. Since then he is periodically checked for new veins growing in the esophagus. He went for a EGD on Jan. 15th and got a good report. No new veins growing. The dr. said he wanted him to have an ultrasound of his liver because he hadn't had one in awhile, so he had the ultrasound and it came back showing some gray areas. From there he had an mri which showed 3 lesions on the right lobe of his liver. A biopsy confirmed hepatocellular carcinoma. 3 tumors--one 5cm and 2 1.5cm. The cancer is confined to the liver. On Feb. 27th we checked him into the hospital with the intention of having a radiofrequency ablation proceedure to " microwave " the tumors. When the surgeon saw his liver he discovered that his cirrhosis is too advanced for that proceedure. It would cause too much collateral damage to the liver itself. The surgeon immediately got in touch with the radiation group and the transplant team at University Hospital in Phila, PA. He also took pictures of the liver, which I have a copy of to show the transplant team. He had a treatment this past Wed. where they injected a alcohol/chemical solution into the 2 small tumors, which dried them up. Then they injected radioactive seeds into the blood supply of the larger tumor in attempt to shrink it. We are hoping this works. We have an appointment on April 20th to meet with the transplant team for an evaluation for him to be placed on the list. He is 64 years old and in pretty good shape otherwise. As of now he is symptom free and his liver is functioning normally. It is interesting to hear your stories and compare notes. I hope to hear from you. Quote Link to comment Share on other sites More sharing options...
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