Re: piggy-back on the advice for newbie.......

[Guest guest]

Kathie,

I don't know if I welcomed you to the group . . . If

not, please know that we're glad you found us. We've

got an incredible group here and we'll see to it you

find a doctor and get through this!

Where do you live? . . . Maybe we can recommend a

doctor you can count on who is near you!

How you will look after surgery isn't as important now

as getting those implants out so you can regain your

health. Since you don't have any breast tissue left

from your mastectomy, you won't have any breast left .

.. . but it's likely your body will fill in any voids

more than you anticipate.

I'm going to send your message (without your name or

address) to the FDA's implant spokeswoman,

Leonard. The FDA needs to know that women are left

high and dry by the plastic surgeons who contend that

women need reconstruction following cancer for the

sake of their self esteem! . . . WRONG!

Also, you can fill out a MedWatch report to tell the

government that your implants have caused you health

problems. Since your doctor agrees, he shouldn't mind

completing the form. . . You should have received a

link when you joined the group, but if not, let me

know.

Please hang in there while we get things sorted out.

You will get better - it make take time and patience,

but we've seen it happen over and over and over! . . .

Hugs and prayers,

Rogene

[Guest guest]

Kathie - I am so sorry for all your pain and suffering. The women

here are very experienced with implant sickness and in finding a PS

who will take care of you. I had my explant six weeks ago, and I

live near Philadelphia. Where do you live? Please just know that

you are not alone and that not only do the women here at this site

care and want to help, but God loves you and wants to help you too.

I will pray for you that you find the support you need and can get

those things out of you as soon as possible so that you can begin

your journey back to health.

Cherie

--- In , " kathie " <Kathie.Larsyn@r...>

wrote:

>

> hi...i was reading the advice about having a PS with skill and the

> caring to do an explant correctly...and i need to tell the story

of

> what is going on with me, and ask, again, if anyone has specific

> information, or can direct me.....my PCP finally agress, since i

have

> neuropathy and pain 24/7, which is increasing, that yes, the

implants

> from my reconstruction, not augmentation, should come out....i

have

> called 25 PSs listed on my aetna plan.....half no longer take

> insurance, one quarter won't see me as they don't do explants, and

> the from others, i have not received return calls.....given this

> reality, i am just totally discouraged....yesterday, i asked the

PA @

> my PCPs office to make calls, hoping that one doctor will respond

to

> another perhaps...........i get confused about the specifics you

all

> talk about, if i should ever find a PS to do this

surgery.....there

> was NO flesh left after the mastectomy....from what i can

determine,

> the implants are being held up by almost nothing, as i am

extremely

> thin...they are migrating, which is why i believe my symtoms are

> increasing....so, is there still a capsule? will i still need

> drains? and who can i complain to if NO doctor will take me on as

a

> patient? my insurance is supposed to cover this, as it is cancer

> related....at least, that is the opinion of my PCP, and most of

the

> individuals at Aetna.......i am really depressed....even using the

> mouse/keyboard this long to write this post has set off even more

> numbness and tingling....and i can no longer wash my own

> hair...raising my arms at all also increases all my pain...and the

> one implant feels as though it is under my arm, in the way when i

> drive, and i swear it is swollen.....although my doctor's office

is

> helping, i also feel that they treat me like i am still slightly

> nuts, and imagining all this........thanks for anyone who read

this

> far......i need so much to have someone listen...i have isolated

the

> last couple of years, as my health has deteriorated......thanks

again

>

> kathie

>