Guaifasin Treatment

[Guest guest]

Hello Everyone. I'm new to the group and would like to introduce myself.

My name is and I'm 46 yrs old. I have 2 young children, ages 9 and

5.

Recently my Fibromyaliga, which I had on and off for a few years used to be

fairly mild, has become unbearable. This happened after I finished

with a bad cold and bronchitis in December. I bought a whole bunch of

books on FMS and discovered that Guafaisin will make your symptoms a lot

worse. So that explains how come the FMS came on REAL REAL bad after

the bronchitis, since I was taking Guafasin every day for 2 weeks. I

still have really bad symptoms now though, and now I'm wondering if I

should go back on it to eventually make me feel better? I'm curious how

long that takes to feel better and if you have to stay on it...... If

anyone has dosage recommendations for beginning, middle and end, that would

be great.

I thought the freezing cold weather was making it particularly painful, and

was looking so forward to a trip to the Caribbean last week... only to

discover my pain was just as bad, if not worse?! I cried I was so

disheartened to find out that warm weather doesn't help. The hot tub

helped but only WHILE you're in it... Still a few minutes of relief is

better than nothing.... I am considering buying one for our home. It

hurts for me to pull the covers in bed, or even turning the steering wheel.

Between the arthritis in my fingers, and the FMS in my arm muscles it's so

hard to manipulate anything.

The other questions I have is how do I find a rheumatologist in my area who

specializes in FMS?

Also, how do you begin to explain to your boss what you're going through?

Between the pain and the fibro fog, he thinks I just don't try to focus.

I just don't know how much longer I can hold out (he does not know anything

yet).

Thanks for your help!

Regards,

[Guest guest]

-

Hi and welcome to our humble group!!! I'm k married 28

years and have two grown children Ty-26 and Tina 22 and a poster

here too. We live in Iowa so the cold has made things

unbarable..even if I don't go outside. Just opening the door to let

the cat out/in can set off pain!! Sitting or laying too long also

increases my pain. I would be easier to say what doesn't cause

pain...LOL

Now for your questions:

#1 Guafaisin causing increased pain....never had that problem but

when I'm sick and the fibro knocks on my door not even a triple lock

can keep it out...LOL My question? Why would you want to go back on

something that caused more pain??? I'd make sure I never took

anything that had that in it again!! I don't think taking more would

reverse the process but compound it.

#2 finding a rheumatologist....the yellow pages...call and ask if

they treat fibro before setting up an appt. I'm starting to see some

advertising that they treat fibro!!! Good luck

#3 You could sit him down and on a one-on-one tell him what is going

wrong--at the rick of him finding a reason to fire you so he's not

involved with a disability claim...which he would be anyway as SS

goes over all you past work stations. Only you know your boss but he

does need to know before things get worse and you get a 'pink' slip.

Have on hand articles that explain a little about fibro so he can

understand what you're going thru and GOOD LUCK !!!

My disability was based on severe degenerative joint and disc

disease. so the fibro when it hit only increased my disability.

Sorry this is so long winded....lol believe me I don't talk this

long.

your friend, k

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