Guest guest Posted July 29, 2011 Report Share Posted July 29, 2011 I wonder if you have tried heat on your neck and shoulders to relieve the tension and maybe the headache?I was reading someone's blog and she said she used those hot grain bags (tube sock with rice and knot at the opening, heat in the microwave) on her neck and it helps her headache. I am going to try this. I have used ice packs before but they didn't really help. I am thinking maybe the heat will. I dunno...Hope you feel better soon, although you can read/look at the computer screen so that's something. Warmest Regards,Robin Little Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2011 Report Share Posted July 29, 2011 Thank you for sharing your research. I see stars at times. Usually while I am washing my face in the shower. There are other times too. I find it so strange the different symptoms that we go through. It seems that every month my major set of symptoms are changed and I am saying to my better half that " I do not like these symptoms " . He usually says to me " didn't you say that last month " ... Blessings, Meo > >> How do you fix or prepare the Kudzu? What part of the plant is used. > >> Anyone living in the south should have a good supply. I have eaten fried > >> Kudzu leaves fried in a batter. They tasted good. somewhat the texture > >> of potato chips. > >> > >> > >> > >> > have you tried burbur or pinella and Source naturals K Mg Kg for > >> > brain fog , or lobelia chinensis (pale spike lobelia).All these ae > >> > great produces for brainfog alo taking kudzu helps wit circulation in > >> > the brain and helps headaches > >> > Jan > >> > >> " Im not trying to counsel any of you to do anything > >> really special,except to dare to think, and to dare to go with the truth > >> ,and to dare to love completely. " -R. Buckminster Fuller > >> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2011 Report Share Posted July 30, 2011 Hi , This is so strange, but at the other end of the US, I am experiencing something very similar to what you are... I seldom get headaches in the summer, now have had them daily for more than two weeks, needless to say, brain fog is greatly increased during these headaches... Weather here is hot, humid and low rainfall (for this time of the year), don't know if this has anything to do with it... My vision is okay, be me is very sluggish... Did I mention to you about two powerful antioxidants for the eyes, Zeaxanthin and Astaxanthin? Zeaxanthin is mostly for eyes, Astaxanthin is for all the body, including eyes, very powerful antioxidants and I use 1 of each daily, have been for at least 6 months, these ended the floaters I was having issues with... http://www.swansonvitamins.com/Search?keyword=Zeaxanthin & doSearch=true & ntt= & n=0 & \ ntk=Level1 http://www.swansonvitamins.com/Search?keyword=Astaxanthin & doSearch=true & ntt= & n=0\ & ntk=Level1 http://www.lef.org/abstracts/codex/zeaxanthin_index.htm?source=search & key=zeaxan\ thin http://www.lef.org/abstracts/codex/astaxanthin_index.htm Hope you get better.... Jim > > How do you fix or prepare the Kudzu? What part of the plant is used. > > Anyone living in the south should have a good supply. I have eaten fried > > Kudzu leaves fried in a batter. They tasted good. somewhat the texture > > of potato chips. > > > > > > > > > have you tried burbur or pinella and Source naturals K Mg Kg for > > > brain fog , or lobelia chinensis (pale spike lobelia).All these ae > > > great produces for brainfog alo taking kudzu helps wit circulation in > > > the brain and helps headaches > > > Jan > > > > " Im not trying to counsel any of you to do anything > > really special,except to dare to think, and to dare to go with the truth > > ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2011 Report Share Posted July 31, 2011 Hi , Everything increases with summer particularly yeast . Yeast as a bad reputation for eyes. I have been deeling for an agravation for a few month now and little by little I trouble shutt it . I was supsecting fungus to be responsable somewhat but I began to think that it is responsable a lot . Did you ever made bread? it is yeast a good one we put in the floor and with the warm water the all floer began to inflate in an hour or two. it is very fast : it is the yeast reproduction with warmes and flower. Now it is not warm it is super hot so it gives you an idea of how fast it can become a danger with summer . If you put the dought near the stov it takes just half an hour . We do not want this in our body but more likely it is there eating us . And it loves places where thare is little blood meanse little acting from the immune sytem : eyes, liquid cephalorachidien ( th eliquid in our spin), sinus, lymphatic sytem . Since it is hot when ever we go int the car I sniff , then I get more tyred and everyhting goes rong more after . We have began to sanitise the car today . We will do it with MMS several nights in a row ventialting it after ( Jim gave me the way to do .) Also the brain fog was increasing the right side of my face getting dull as my vision was decreasing on the right mo reand more and decreasing at a slower rate on the left . I had once or twice a little bit of head ach tha ti ssomething I seldon have , and I had again the muscle pain in th eneck , my muscle being so tighten like a rock . I ask to my sweety to help and I help my self a little bit . I have been increasing my intake of lugol iodine little by little over a perionde of 2 month and half . I am now at 8 drops 3 times a day . I had to this one teaspoon or two mixed with prune juice in the morning and if the herx is no ttoo bad th eevening just before going to bed. The hungry fongus eat the sweet juice and get killed by the bicarbonate. I did the cream of tatar but I had to stopp with an other thing as I had a proble I did not know where it was coming from : one of theses two . I have been taking also welchol and cholestyramine. Some time one sometime the other since this week . As dct Shoe maker recommand it for the fungus neurotoxines. I thought if I do it a small time one month the aspartam will not be a big deal. Fo rthe time of finishing utp the fungus. Being at the sixed day of the effective dosing. I have had since two days an amazing imrpovement . I have been able to do many hting during these two days and I am at he 3 day after the coil . So I cannot be sure yes it is for good but it may . My eyes are not getting worse anymore . my toes does not itch anymore , th escalp still itch but not too much . I know I still have abbondantly fungus my tongue being withe. Still ther eis sign that there is less. I have been able to think . I was searching in my brain something I wanted to remember but I could not and I found it generally I fail to find something i have forgotten . it is like what di dI want to rememeber that was important ... then nothing . this time I remembered. it is not ok yet it took me time but I made it ther eis some improvement . I do not have the sinuses and the eyes dull anymore . no improvement in my sight but at least no more agravation . So I am thinking that there may be a lot in the fungus story for us lymees. A detail also . having not any money to pay a dct . i have found by myself that I had fungus. itching at the toes where I had 30 years ago fungus treated . itching in my scalp and I had fungus treated also . all this by dermatologists . having a white tongue . And getting better eache time I do the ozone injection both foot and scalp . Looks like I have the fungus all inside . Thsi is just my own experience I thought may be it is usefull to share it ? Kindly Marie To: Lyme_and_Rife Sent: Saturday, July 30, 2011 12:42 PMSubject: Re: headache & sudden increase in brain fog Hi ,This is so strange, but at the other end of the US, I am experiencing somethingvery similar to what you are... I seldom get headaches in the summer, now havehad them daily for more than two weeks, needless to say, brain fog is greatly increasedduring these headaches... Weather here is hot, humid and low rainfall (for this time of the year), don't knowif this has anything to do with it... My vision is okay, be me is very sluggish... Did I mention to you about two powerful antioxidants for the eyes, Zeaxanthin andAstaxanthin? Zeaxanthin is mostly for eyes, Astaxanthin is for all the body, includingeyes, very powerful antioxidants and I use 1 of each daily, have been for at least 6 months,these ended the floaters I was having issues with... http://www.swansonvitamins.com/Search?keyword=Zeaxanthin & doSearch=true & ntt= & n=0 & ntk=Level1http://www.swansonvitamins.com/Search?keyword=Astaxanthin & doSearch=true & ntt= & n=0 & ntk=Level1http://www.lef.org/abstracts/codex/zeaxanthin_index.htm?source=search & key=zeaxanthinhttp://www.lef.org/abstracts/codex/astaxanthin_index.htmHope you get better....Jim> > How do you fix or prepare the Kudzu? What part of the plant is used.> > Anyone living in the south should have a good supply. I have eaten fried> > Kudzu leaves fried in a batter. They tasted good. somewhat the texture> > of potato chips.> >> >> >> > > have you tried burbur or pinella and Source naturals K Mg Kg for> > > brain fog , or lobelia chinensis (pale spike lobelia).All these ae> > > great produces for brainfog alo taking kudzu helps wit circulation in> > > the brain and helps headaches> > > Jan> >> > "Im not trying to counsel any of you to do anything> > really special,except to dare to think, and to dare to go with the truth> > ,and to dare to love completely." -R. Buckminster Fuller> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 Thanks all!It really has been interesting lately. High highs, low lows. I am hoping that my body is trying to make a break through to the next level of health. Actually, I've had some bursts of energy - of course followed by fatigue. Usually when I wake up, I just lay there feeling like I've been run over by a bus and hoping that the feeling will pass before I have to get out of bed. It doesn't, and like all of you, I can't believe I'm living this nightmare. Well, this morning, I actually felt good for a bit. I would even say 85% for about 2 hours! :-) Then I crashed, but I had my 120 minutes. Out of all my symptoms, brain fog is the worst, fatigue second. I am thankful that my list is getting short. I haven't killed any bugs in 5 days, so any herxes are completely cleared. It's good to re-establish a baseline. Tomorrow it's back to killing bugs. It sounds like several of us are doing better, with need of tweaking. One thing that this whole bladder thing has taught me is that our bodies don't remain constant. I've never had a problem with nightshade foods, but developed the problem in the last year. We need to remember that just because something worked or didn't work in the past, doesn't mean we shouldn't address it again. I guess I learned this with iodine as well as MMS. Jim, I hope you figure out your headaches. Marie, I am so glad you are making progress.Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 Jim,Didn't Mercola do a big article on Astaxanthin recently? I almost ordered some, but I've really been trying not to spend money on supps. It just seems we spend so much on so many things that don't help. I guess I'm gun shy on new supps. I might reconsider. I really think my vision would clear up if the brain fog will lift. Actually, it does clear up when my brain fog lifts for a moment or two throughout the day.Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 This sounds familiar to me. I would crash every day about 10 am and then again in mid-afternoon where I would have to lie down for 30 min to 2 hours. Since I recently returned here, I don't know if you have ever had your thyroid and adrenals checked. This was the root cause of my fatigue. Since getting those under control, I have seen a 90% improvement in energy levels. deb > > Thanks all! > It really has been interesting lately. High highs, low lows. I am hoping > that my body is trying to make a break through to the next level of health. > Actually, I've had some bursts of energy - of course followed by fatigue. > > Usually when I wake up, I just lay there feeling like I've been run over by > a bus and hoping that the feeling will pass before I have to get out of bed. > It doesn't, and like all of you, I can't believe I'm living this nightmare. > Well, this morning, I actually felt good for a bit. I would even say 85% for > about 2 hours! :-) Then I crashed, but I had my 120 minutes. > > Out of all my symptoms, brain fog is the worst, fatigue second. I am > thankful that my list is getting short. > > I haven't killed any bugs in 5 days, so any herxes are completely cleared. > It's good to re-establish a baseline. Tomorrow it's back to killing bugs. > > It sounds like several of us are doing better, with need of tweaking. > > One thing that this whole bladder thing has taught me is that our bodies > don't remain constant. I've never had a problem with nightshade foods, but > developed the problem in the last year. We need to remember that just > because something worked or didn't work in the past, doesn't mean we > shouldn't address it again. I guess I learned this with iodine as well as > MMS. > > Jim, I hope you figure out your headaches. Marie, I am so glad you are > making progress. > > Best, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 Hi ,I'm so glad to hear your news. We all need to remember that gains are made and that the more discouraging patterns of this disease can gradually raise to better levels. I think this has been a particularly tough summer for everyone, but throughout my life, I've noticed that a period of breaking down often precedes a period of break-through. Sounds like this is happening for you. Thanks for keeping us posted. As always, you bring light.Be well,Léna Thanks all!It really has been interesting lately. High highs, low lows. I am hoping that my body is trying to make a break through to the next level of health. Actually, I've had some bursts of energy - of course followed by fatigue. Usually when I wake up, I just lay there feeling like I've been run over by a bus and hoping that the feeling will pass before I have to get out of bed. It doesn't, and like all of you, I can't believe I'm living this nightmare. Well, this morning, I actually felt good for a bit. I would even say 85% for about 2 hours! :-) Then I crashed, but I had my 120 minutes. Out of all my symptoms, brain fog is the worst, fatigue second. I am thankful that my list is getting short. I haven't killed any bugs in 5 days, so any herxes are completely cleared. It's good to re-establish a baseline. Tomorrow it's back to killing bugs. It sounds like several of us are doing better, with need of tweaking. One thing that this whole bladder thing has taught me is that our bodies don't remain constant. I've never had a problem with nightshade foods, but developed the problem in the last year. We need to remember that just because something worked or didn't work in the past, doesn't mean we shouldn't address it again. I guess I learned this with iodine as well as MMS. Jim, I hope you figure out your headaches. Marie, I am so glad you are making progress.Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2011 Report Share Posted August 1, 2011 Deb,A resounding 'yes' on the thyroid adrenal front. Â I spent years on stopthethyroidmadness before ever being dx with Lyme.I've been down to 10mg of cortisol, but today I increased to 15 to see if it would help with the brain fog. I know my thyroid is good. I will get lab results on Thursday.Best,LInda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 , this brings to mind what was being strongly stated on a thyroid group I was on for awhile, that iodine can make hashimoto's really flare. Are you sure that your thyroid is stable and okay on the iodine? Sherry > > Thanks all! > It really has been interesting lately. High highs, low lows. I am hoping > that my body is trying to make a break through to the next level of health. > Actually, I've had some bursts of energy - of course followed by fatigue. > > Usually when I wake up, I just lay there feeling like I've been run over by > a bus and hoping that the feeling will pass before I have to get out of bed. > It doesn't, and like all of you, I can't believe I'm living this nightmare. > Well, this morning, I actually felt good for a bit. I would even say 85% for > about 2 hours! :-) Then I crashed, but I had my 120 minutes. > > Out of all my symptoms, brain fog is the worst, fatigue second. I am > thankful that my list is getting short. > > I haven't killed any bugs in 5 days, so any herxes are completely cleared. > It's good to re-establish a baseline. Tomorrow it's back to killing bugs. > > It sounds like several of us are doing better, with need of tweaking. > > One thing that this whole bladder thing has taught me is that our bodies > don't remain constant. I've never had a problem with nightshade foods, but > developed the problem in the last year. We need to remember that just > because something worked or didn't work in the past, doesn't mean we > shouldn't address it again. I guess I learned this with iodine as well as > MMS. > > Jim, I hope you figure out your headaches. Marie, I am so glad you are > making progress. > > Best, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Well, I'll get labs on Thurs.  (I hope my doc ran a complete thyroid panel in the 17 tubes they took!)But I don't have Hashi's, my husband does. I do have thyroid issues, no autoimmune, and am on thyroid meds, This headache, brain fog, feels similar to when I get too much T4 and I produce too much RT3. However, I am not taking any T4 meds, just T3.I am telling you, I am feeling a break through. My body continues today to fight for wellness. It's quite an interesting feeling. Like trying to break through!  My list of symptoms used to be so long, now I'm down to two: brain fog and fatigue.  I should half count sleep because I am still on sleep meds, albeit less than half than a year ago. I feel iodine is partly responsible for my dramatic improvement the last 3 months. That and MMS. We shall see.I'm thinking that the CCSVI procedure that Thane had would be very helplful, but considering he has relapsed, I wouldn't go through the time, expense or risk. I'm kind of down to two thoughts: brain inflammation or thick bloodThanks for the thoughts Sherry, I do appreciate your thoughts and will check into it. Ya never know with this crazy illness. Best,  , this brings to mind what was being strongly stated on a thyroid group I was on for awhile, that iodine can make hashimoto's really flare. Are you sure that your thyroid is stable and okay on the iodine? Sherry > > Thanks all! > It really has been interesting lately. High highs, low lows. I am hoping > that my body is trying to make a break through to the next level of health. > Actually, I've had some bursts of energy - of course followed by fatigue. > > Usually when I wake up, I just lay there feeling like I've been run over by > a bus and hoping that the feeling will pass before I have to get out of bed. > It doesn't, and like all of you, I can't believe I'm living this nightmare. > Well, this morning, I actually felt good for a bit. I would even say 85% for > about 2 hours! :-) Then I crashed, but I had my 120 minutes. > > Out of all my symptoms, brain fog is the worst, fatigue second. I am > thankful that my list is getting short. > > I haven't killed any bugs in 5 days, so any herxes are completely cleared. > It's good to re-establish a baseline. Tomorrow it's back to killing bugs. > > It sounds like several of us are doing better, with need of tweaking. > > One thing that this whole bladder thing has taught me is that our bodies > don't remain constant. I've never had a problem with nightshade foods, but > developed the problem in the last year. We need to remember that just > because something worked or didn't work in the past, doesn't mean we > shouldn't address it again. I guess I learned this with iodine as well as > MMS. > > Jim, I hope you figure out your headaches. Marie, I am so glad you are > making progress. > > Best, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Hi ,If you suspect thick blood, there are some CAFL frx for 'sitckyblood' and grounding helps thin the blood, too.I don't like discussing others' situations, but was troubled to hear Thane had relapsed. When was this? How's he doing? Thane, you out there to reassure your fans that you're OK? Be well,Léna Well, I'll get labs on Thurs. (I hope my doc ran a complete thyroid panel in the 17 tubes they took!)But I don't have Hashi's, my husband does. I do have thyroid issues, no autoimmune, and am on thyroid meds, This headache, brain fog, feels similar to when I get too much T4 and I produce too much RT3. However, I am not taking any T4 meds, just T3.I am telling you, I am feeling a break through. My body continues today to fight for wellness. It's quite an interesting feeling. Like trying to break through! My list of symptoms used to be so long, now I'm down to two: brain fog and fatigue. I should half count sleep because I am still on sleep meds, albeit less than half than a year ago. I feel iodine is partly responsible for my dramatic improvement the last 3 months. That and MMS. We shall see.I'm thinking that the CCSVI procedure that Thane had would be very helplful, but considering he has relapsed, I wouldn't go through the time, expense or risk. I'm kind of down to two thoughts: brain inflammation or thick bloodThanks for the thoughts Sherry, I do appreciate your thoughts and will check into it. Ya never know with this crazy illness. Best, , this brings to mind what was being strongly stated on a thyroid group I was on for awhile, that iodine can make hashimoto's really flare. Are you sure that your thyroid is stable and okay on the iodine? Sherry > > Thanks all! > It really has been interesting lately. High highs, low lows. I am hoping > that my body is trying to make a break through to the next level of health. > Actually, I've had some bursts of energy - of course followed by fatigue. > > Usually when I wake up, I just lay there feeling like I've been run over by > a bus and hoping that the feeling will pass before I have to get out of bed. > It doesn't, and like all of you, I can't believe I'm living this nightmare. > Well, this morning, I actually felt good for a bit. I would even say 85% for > about 2 hours! :-) Then I crashed, but I had my 120 minutes. > > Out of all my symptoms, brain fog is the worst, fatigue second. I am > thankful that my list is getting short. > > I haven't killed any bugs in 5 days, so any herxes are completely cleared. > It's good to re-establish a baseline. Tomorrow it's back to killing bugs. > > It sounds like several of us are doing better, with need of tweaking. > > One thing that this whole bladder thing has taught me is that our bodies > don't remain constant. I've never had a problem with nightshade foods, but > developed the problem in the last year. We need to remember that just > because something worked or didn't work in the past, doesn't mean we > shouldn't address it again. I guess I learned this with iodine as well as > MMS. > > Jim, I hope you figure out your headaches. Marie, I am so glad you are > making progress. > > Best, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 It's on one of his videos, posted a little over a month ago.I'm sorry too. He was doing very well. I haven't personally spoken with him in a while. It would be great to have an update. thick blood is on my list, but I'm more inclined to believe inflammation or CCSVIL  Hi ,If you suspect thick blood, there are some CAFL frx for 'sitckyblood' and grounding helps thin the blood, too.I don't like discussing others' situations, but was troubled to hear Thane had relapsed. When was this? How's he doing? Thane, you out there to reassure your fans that you're OK? Be well,Léna  Well, I'll get labs on Thurs.  (I hope my doc ran a complete thyroid panel in the 17 tubes they took!)But I don't have Hashi's, my husband does. I do have thyroid issues, no autoimmune, and am on thyroid meds, This headache, brain fog, feels similar to when I get too much T4 and I produce too much RT3. However, I am not taking any T4 meds, just T3.I am telling you, I am feeling a break through. My body continues today to fight for wellness. It's quite an interesting feeling. Like trying to break through!  My list of symptoms used to be so long, now I'm down to two: brain fog and fatigue.  I should half count sleep because I am still on sleep meds, albeit less than half than a year ago. I feel iodine is partly responsible for my dramatic improvement the last 3 months. That and MMS. We shall see.I'm thinking that the CCSVI procedure that Thane had would be very helplful, but considering he has relapsed, I wouldn't go through the time, expense or risk. I'm kind of down to two thoughts: brain inflammation or thick bloodThanks for the thoughts Sherry, I do appreciate your thoughts and will check into it. Ya never know with this crazy illness. Best,  , this brings to mind what was being strongly stated on a thyroid group I was on for awhile, that iodine can make hashimoto's really flare. Are you sure that your thyroid is stable and okay on the iodine? Sherry > > Thanks all! > It really has been interesting lately. High highs, low lows. I am hoping > that my body is trying to make a break through to the next level of health. > Actually, I've had some bursts of energy - of course followed by fatigue. > > Usually when I wake up, I just lay there feeling like I've been run over by > a bus and hoping that the feeling will pass before I have to get out of bed. > It doesn't, and like all of you, I can't believe I'm living this nightmare. > Well, this morning, I actually felt good for a bit. I would even say 85% for > about 2 hours! :-) Then I crashed, but I had my 120 minutes. > > Out of all my symptoms, brain fog is the worst, fatigue second. I am > thankful that my list is getting short. > > I haven't killed any bugs in 5 days, so any herxes are completely cleared. > It's good to re-establish a baseline. Tomorrow it's back to killing bugs. > > It sounds like several of us are doing better, with need of tweaking. > > One thing that this whole bladder thing has taught me is that our bodies > don't remain constant. I've never had a problem with nightshade foods, but > developed the problem in the last year. We need to remember that just > because something worked or didn't work in the past, doesn't mean we > shouldn't address it again. I guess I learned this with iodine as well as > MMS. > > Jim, I hope you figure out your headaches. Marie, I am so glad you are > making progress. > > Best, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Thanks ,I just viewed his most recent youtube. He's still so much better than a couple years ago, but I realize the CCSVI issue is a challenge. Apparently, even after balloon angioplasty, re-stenosis can occur. Like everything else in Lyme, recovery and understanding of recovery is a work in progress. sigh. He's a real trooper, sharing his process with the world.Be well,Léna It's on one of his videos, posted a little over a month ago.I'm sorry too. He was doing very well. I haven't personally spoken with him in a while. It would be great to have an update. thick blood is on my list, but I'm more inclined to believe inflammation or CCSVIL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Yeah, I was hoping since he has been detoxing and lowering his pathogen load for so long, that he wouldn't experience re-stenosis.L  Thanks ,I just viewed his most recent youtube. He's still so much better than a couple years ago, but I realize the CCSVI issue is a challenge. Apparently, even after balloon angioplasty, re-stenosis can occur. Like everything else in Lyme, recovery and understanding of recovery is a work in progress. sigh. He's a real trooper, sharing his process with the world. Be well,Léna  It's on one of his videos, posted a little over a month ago.I'm sorry too. He was doing very well. I haven't personally spoken with him in a while. It would be great to have an update. thick blood is on my list, but I'm more inclined to believe inflammation or CCSVIL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 I'm not sure I understand the mechanism of re-stenosis. Long ago, when I had an MRI for my cervical vertebrae which were a train-wreck (not yet dxed at the time) docs noted that one of my jugulars was extra LARGE in diameter. They scratched their heads but didn't seem to think it signified. I'm very cut off from the medical establishment these days, so am not about to get another film, but it makes me wonder what that's all about.Be well,Léna Yeah, I was hoping since he has been detoxing and lowering his pathogen load for so long, that he wouldn't experience re-stenosis.L Thanks ,I just viewed his most recent youtube. He's still so much better than a couple years ago, but I realize the CCSVI issue is a challenge. Apparently, even after balloon angioplasty, re-stenosis can occur. Like everything else in Lyme, recovery and understanding of recovery is a work in progress. sigh. He's a real trooper, sharing his process with the world. Be well,Léna It's on one of his videos, posted a little over a month ago.I'm sorry too. He was doing very well. I haven't personally spoken with him in a while. It would be great to have an update. thick blood is on my list, but I'm more inclined to believe inflammation or CCSVIL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Thank you , Marie To: Lyme_and_Rife Sent: Monday, August 1, 2011 8:14 PMSubject: Re: headache & sudden increase in brain fog , this brings to mind what was being strongly stated on a thyroid group I was on for awhile, that iodine can make hashimoto's really flare. Are you sure that your thyroid is stable and okay on the iodine?Sherry>> Thanks all!> It really has been interesting lately. High highs, low lows. I am hoping> that my body is trying to make a break through to the next level of health.> Actually, I've had some bursts of energy - of course followed by fatigue.> > Usually when I wake up, I just lay there feeling like I've been run over by> a bus and hoping that the feeling will pass before I have to get out of bed.> It doesn't, and like all of you, I can't believe I'm living this nightmare.> Well, this morning, I actually felt good for a bit. I would even say 85% for> about 2 hours! :-) Then I crashed, but I had my 120 minutes.> > Out of all my symptoms, brain fog is the worst, fatigue second. I am> thankful that my list is getting short.> > I haven't killed any bugs in 5 days, so any herxes are completely cleared.> It's good to re-establish a baseline. Tomorrow it's back to killing bugs.> > It sounds like several of us are doing better, with need of tweaking.> > One thing that this whole bladder thing has taught me is that our bodies> don't remain constant. I've never had a problem with nightshade foods, but> developed the problem in the last year. We need to remember that just> because something worked or didn't work in the past, doesn't mean we> shouldn't address it again. I guess I learned this with iodine as well as> MMS.> > Jim, I hope you figure out your headaches. Marie, I am so glad you are> making progress.> > Best,> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Hi some do th ecoil only every two weeks , it works too no rush remeber the slower the faster results in this desease so not to bgo backward, kindly Marie To: Lyme_and_Rife Sent: Monday, August 1, 2011 9:23 PMSubject: Re: Re: headache & sudden increase in brain fog It's on one of his videos, posted a little over a month ago. I'm sorry too. He was doing very well. I haven't personally spoken with him in a while. It would be great to have an update. thick blood is on my list, but I'm more inclined to believe inflammation or CCSVI L Hi , If you suspect thick blood, there are some CAFL frx for 'sitckyblood' and grounding helps thin the blood, too. I don't like discussing others' situations, but was troubled to hear Thane had relapsed. When was this? How's he doing? Thane, you out there to reassure your fans that you're OK? Be well, Léna Well, I'll get labs on Thurs. (I hope my doc ran a complete thyroid panel in the 17 tubes they took!) But I don't have Hashi's, my husband does. I do have thyroid issues, no autoimmune, and am on thyroid meds, This headache, brain fog, feels similar to when I get too much T4 and I produce too much RT3. However, I am not taking any T4 meds, just T3. I am telling you, I am feeling a break through. My body continues today to fight for wellness. It's quite an interesting feeling. Like trying to break through! My list of symptoms used to be so long, now I'm down to two: brain fog and fatigue. I should half count sleep because I am still on sleep meds, albeit less than half than a year ago. I feel iodine is partly responsible for my dramatic improvement the last 3 months. That and MMS. We shall see. I'm thinking that the CCSVI procedure that Thane had would be very helplful, but considering he has relapsed, I wouldn't go through the time, expense or risk. I'm kind of down to two thoughts: brain inflammation or thick blood Thanks for the thoughts Sherry, I do appreciate your thoughts and will check into it. Ya never know with this crazy illness. Best, , this brings to mind what was being strongly stated on a thyroid group I was on for awhile, that iodine can make hashimoto's really flare. Are you sure that your thyroid is stable and okay on the iodine?Sherry > > Thanks all!> It really has been interesting lately. High highs, low lows. I am hoping> that my body is trying to make a break through to the next level of health.> Actually, I've had some bursts of energy - of course followed by fatigue.> > Usually when I wake up, I just lay there feeling like I've been run over by> a bus and hoping that the feeling will pass before I have to get out of bed.> It doesn't, and like all of you, I can't believe I'm living this nightmare.> Well, this morning, I actually felt good for a bit. I would even say 85% for> about 2 hours! :-) Then I crashed, but I had my 120 minutes.> > Out of all my symptoms, brain fog is the worst, fatigue second. I am> thankful that my list is getting short.> > I haven't killed any bugs in 5 days, so any herxes are completely cleared.> It's good to re-establish a baseline. Tomorrow it's back to killing bugs.> > It sounds like several of us are doing better, with need of tweaking.> > One thing that this whole bladder thing has taught me is that our bodies> don't remain constant. I've never had a problem with nightshade foods, but> developed the problem in the last year. We need to remember that just> because something worked or didn't work in the past, doesn't mean we> shouldn't address it again. I guess I learned this with iodine as well as> MMS.> > Jim, I hope you figure out your headaches. Marie, I am so glad you are> making progress.> > Best,> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Good to hear Deb, Kinldy Marie To: Lyme_and_Rife Sent: Monday, August 1, 2011 8:55 AMSubject: Re: headache & sudden increase in brain fog This sounds familiar to me. I would crash every day about 10 am and then again in mid-afternoon where I would have to lie down for 30 min to 2 hours.Since I recently returned here, I don't know if you have ever had your thyroid and adrenals checked. This was the root cause of my fatigue. Since getting those under control, I have seen a 90% improvement in energy levels.deb>> Thanks all!> It really has been interesting lately. High highs, low lows. I am hoping> that my body is trying to make a break through to the next level of health.> Actually, I've had some bursts of energy - of course followed by fatigue.> > Usually when I wake up, I just lay there feeling like I've been run over by> a bus and hoping that the feeling will pass before I have to get out of bed.> It doesn't, and like all of you, I can't believe I'm living this nightmare.> Well, this morning, I actually felt good for a bit. I would even say 85% for> about 2 hours! :-) Then I crashed, but I had my 120 minutes.> > Out of all my symptoms, brain fog is the worst, fatigue second. I am> thankful that my list is getting short.> > I haven't killed any bugs in 5 days, so any herxes are completely cleared.> It's good to re-establish a baseline. Tomorrow it's back to killing bugs.> > It sounds like several of us are doing better, with need of tweaking.> > One thing that this whole bladder thing has taught me is that our bodies> don't remain constant. I've never had a problem with nightshade foods, but> developed the problem in the last year. We need to remember that just> because something worked or didn't work in the past, doesn't mean we> shouldn't address it again. I guess I learned this with iodine as well as> MMS.> > Jim, I hope you figure out your headaches. Marie, I am so glad you are> making progress.> > Best,> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 I've been really wondering since reading about cpn, if this is a cause of the stenosis. It likes the blood vessels and is already identified as a cause of plaque in the vessels. It would not surprise me at all if tons of lymies also have this infection. Sherry > > > It's on one of his videos, posted a little over a month ago. > > I'm sorry too. He was doing very well. I haven't personally spoken > with him in a while. It would be great to have an update. > > thick blood is on my list, but I'm more inclined to believe > inflammation or CCSVI > > L > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 I was wondering if anyone has researched the role of Vitamin K2 and vascular calcification. Is the stenosis many here experience caused by calcification? I just had this thought yesterday and will try to research it but was hoping others might know something. deb > > > It's on one of his videos, posted a little over a month ago. > > I'm sorry too. He was doing very well. I haven't personally spoken > with him in a while. It would be great to have an update. > > thick blood is on my list, but I'm more inclined to believe > inflammation or CCSVI > > L > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 CPN? Â Brain fog is that bad - LOLL Â I was wondering if anyone has researched the role of Vitamin K2 and vascular calcification. Is the stenosis many here experience caused by calcification? I just had this thought yesterday and will try to research it but was hoping others might know something. deb > > > It's on one of his videos, posted a little over a month ago. > > I'm sorry too. He was doing very well. I haven't personally spoken > with him in a while. It would be great to have an update. > > thick blood is on my list, but I'm more inclined to believe > inflammation or CCSVI > > L > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 My Lyme Dr recommended K2. You have to research and get the correct mk. It cleans the vascular system and redeposits the calcium in the bones. Research the people of Holland, They eat a large amount of the correct cheese and have much less vascular problems. You can get the same cheese from Mississippi State if you can not find it in your area. It is much less expensive to purchase it in pill form. > > > > > > It's on one of his videos, posted a little over a month ago. > > > > I'm sorry too. He was doing very well. I haven't personally spoken > > with him in a while. It would be great to have an update. > > > > thick blood is on my list, but I'm more inclined to believe > > inflammation or CCSVI > > > > L > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 I've read that plaque in the vascular system is the body's way of trying to patch weak spots. Vitamin C can maintain vascular health so this isn't necessary. Léna My Lyme Dr recommended K2. You have to research and get the correct mk. It cleans the vascular system and redeposits the calcium in the bones. Research the people of Holland, They eat a large amount of the correct cheese and have much less vascular problems. You can get the same cheese from Mississippi State if you can not find it in your area. It is much less expensive to purchase it in pill form. > > > > > > It's on one of his videos, posted a little over a month ago. > > > > I'm sorry too. He was doing very well. I haven't personally spoken > > with him in a while. It would be great to have an update. > > > > thick blood is on my list, but I'm more inclined to believe > > inflammation or CCSVI > > > > L > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 In more recent reading, I have seen articles stating that the causing of venous insufficiency is high iron, not calcium. I originally asked the question below because I have calcium deposits in tissues of my body, at least I have seen them on mammograms (at one facility I used to go to annually, the radiologist would have you come in and view the films or digital output together and he would compare current with previous side by side). That's when he pointed out the calcifiations. That's why I was wondering if calcium could cause venous stenosis. deb > > > > > > > > > It's on one of his videos, posted a little over a month ago. > > > > > > I'm sorry too. He was doing very well. I haven't personally spoken > > > with him in a while. It would be great to have an update. > > > > > > thick blood is on my list, but I'm more inclined to believe > > > inflammation or CCSVI > > > > > > L > > > > > > Quote Link to comment Share on other sites More sharing options...
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