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No support at home

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,

Thanks for the offer of letting your husband talk to mine. But, my husband has too much pride. He would never let anyone talk to him about my disease. I have ran him off information online for him to read. After he reads it he still wants me to do things that hurt me around here. Do you know that there are 2 and another basket of clothes I am working on that need to be put up. But, they are sitting in the dinning room for the past 2 weeks. He will not carry them back to his room and unload them. He said I could drag it or pull it back to the bedroom. He has really made me to the point that my love for him is dying. It has been for the last several years but it is worst now. I know that there is someone out there that will love me with the disease and take care of me. It is even more hard on me since I don't work. I know I can't anymore until my hip is completely better. I just need to find the right doctor to heal me. So, I just feel helpless and really depressed cause I use to be so independent. But, now I can't with this. He makes me feel worst toward myself. I do see a pshyochogist. Sorry so long. I just need someone that does understand. Some of my friends don't understand what I am going through. That makes it really hard also and I feel so alone. Maybe we can talk through email about this. Please let me know. my email address is cyr524@...

NC

You sound almost exactly like me. I have clothes that need to be put up and I can say that I'm having real pain and my husband just seems to come up with more things that I need to be doing. I also have boxes that my husband will just throw stuff he considers mine into so I can go through them. Sometimes he can be all right, but other times he is such a jerk! S.

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,

I can identify with you there. This illness cost me a marriage and a great job before I knew about it, and another marriage and several more jobs after. I consider myself so very, VERY lucky to have found my current hubby, who not only believes in FMS, but has read more about it than me and allows me my "off" days where I don't even get out of bed until late afternoon. And he's a trained Massage Therapist.

Before, I was told I was lazy, crazy, bitchy and forgetful by choice and so on. Afterwards, I had my disabled parking dangler torn up by a cop who didn’t think I looked disabled.

I still try to do too much and end up frustrated and angry.

Does your hubby email? Maybe my hubby can email yours and get a bit of conversation started. Let me know, because mine has an email address, but never uses it.

As for your dr -- FIND ANOTHER ASAP!!!

<><><><><>

Re: New member saying "Hello"

I have been sick with this also for about 4 years, but it could be longer. I have not seeked a doctor yet just my chiropractor who diagnoised me with this disease. My regular doctor does not believe in fibro. He thinks it is in your head. I have also tried to let my husband read up on this and he still no support. He says I need to quit making myself feel bad by talking about it. Now that is tough when you have no support at home. He said that today. Well, you will find others here with the same as you. See we have a little in common. Good luck!

NC

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Maybe we can find someone who feels good to just kick 'em in the rear end? LOL! I know this is a real problem, I'm not trying to make light of it. Steve is very good usually, but he has his days too when I'd like to stick his head in a snowbank.

Mindi

Re: No support at home

,

Thanks for the offer of letting your husband talk to mine. But, my husband has too much pride. He would never let anyone talk to him about my disease. I have ran him off information online for him to read. After he reads it he still wants me to do things that hurt me around here. Do you know that there are 2 and another basket of clothes I am working on that need to be put up. But, they are sitting in the dinning room for the past 2 weeks. He will not carry them back to his room and unload them. He said I could drag it or pull it back to the bedroom. He has really made me to the point that my love for him is dying. It has been for the last several years but it is worst now. I know that there is someone out there that will love me with the disease and take care of me. It is even more hard on me since I don't work. I know I can't anymore until my hip is completely better. I just need to find the right doctor to heal me. So, I just feel helpless and really depressed cause I use to be so independent. But, now I can't with this. He makes me feel worst toward myself. I do see a pshyochogist. Sorry so long. I just need someone that does understand. Some of my friends don't understand what I am going through. That makes it really hard also and I feel so alone. Maybe we can talk through email about this. Please let me know. my email address is cyr524@...

NC

You sound almost exactly like me. I have clothes that need to be put up and I can say that I'm having real pain and my husband just seems to come up with more things that I need to be doing. I also have boxes that my husband will just throw stuff he considers mine into so I can go through them. Sometimes he can be all right, but other times he is such a jerk! S.

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