Re: I wonder what these surgeons report when they remove and replace?

[Guest guest]

no, rogene, there's nothing strange about it. it's called capitalism

and that breeds greed long with ahost of other crap and it looks like

it's here to stay and will be the ruin of this country much like the

fall of the roman empire except it won't take a thousand years to

fall like it did rome. we're not even 300 yrs old yet as a country

and alreadly look at the sad state of affairs. sorry, i hate to be so

cynical but it's true. before long, we'll be able to go to our corner

grocer to get our booby traps because with the demand for them, the

manufacturers will make and sell more of them and to increase

production to keep up with the demand they have to make them faster

and cheaper so they'll be even more poorly designed and

constructed.we talk about this kind of stuff in grad school all the

time. it's a real eye opener.

>

> Mrs. Leonard,

>

> So often when we read articles about the plastic

> surgeons point of view they do not mention this! . . .

>

>

> Is there a place of the FDA's report for women whose

> doctors insisted they have their implants replaced

> when what they really wanted is for them to be

> removed?

>

> Something I can't understand. When a woman wants her

> implants out, without replacement, she can't find a

> surgeon to do it. If she'll have them replaced the

> surgeons are standing in line to do the job!!!!!!

>

> Is there something strange about this picture?

>

> Sincerely,

>

> Rogene

>

>

>

> >

>

> > Date: Thu, 8 Dec 2005 05:44:57 -0800 (PST)

> > Subject: Re: Re: Newbie

> > >

> > Thank you so much for sharing your story. I

> > thought about everything A LOT last night - and I

> > decided that I want to re-discuss with my PS as

> > well. I want to be sure that I have it done the way

> > I want - I mean I am in fact paying him to do this.

> > I felt this PS was by far the most understanding of

> > my situation, and he did not try and talk me into

> > re-implanting as every other PS did. I had so many

> > of them tell me that I should go to silicone - they

> > would be much better. These people are crazy! I have

> > not had many health problems, but my eye sight has

> > weakened in the years that I had my implants. As

> > well as my left breast has had shooting pains, which

> > has become worse. I would say in the last 3 months

> > or so I have noticed a drastic change in the

> > severity of the pain - it isn't terrible, but

> > sometimes I feel as if I am having a heart attack, a

> > sharp pain through my chest, that almost takes my

> > breath away. I have also noticed that I tend to mix

> > up numbers - as if dislexia is a factor.

> > This has never been a problem for me, until about

> > the last year or so. This stuff is very scary to me.

> > I just want these bags out of my body. Best of luck

> > with your surgery. I know I can't wait to have mine!

> >

> -----------------------------------------------

>

>

> > Hi I just read your story. I had a hard time finding

> > a doctor as

> > well. Every doctor I talked to told me I didn't need

> > to worry about

> > how they were removed. I just got a surgery date for

> > next week. The

> > doctor I went with still didn't want to do it the

> > way I felt they

> > needed to be done. So I made another appointment to

> > just talk to

> > him. I told him how I felt and also that I

> > understood where he was

> > coming from but that if I was going to have the

> > surgery I wanted it

> > done my way! It's my body and even if he doesn't

> > think my sickness

> > has anything to do with my implants he can't be 100%

> > sure either

> > way. So now we came to an understanding and he is

> > going to remove

> > the implants and capsules. The only problem I had

> > was that he also

> > wanted to cut the implant open and then remove it.

> > Come to find out

> > he is going to use a sucking tube as he opens the

> > implant, then

> > remove the capsule and put in drains for anything

> > that is left. That

> > way my body drains completely but my scar will

> > remain small. I'm

> > only 24yrs old and even though my husband is very

> > understanding I

> > still worry about all the cutting. This is not the

> > best way for

> > everyone but this is the best way for me! I have

> > been sick from

> > these implants and no matter what any doctor says I

> > know once I have

> > them removed I'll feel better. I'm not as sick as

> > most of the other

> > woman but I want them removed before I get there.

> > Don't let a doctor

> > do your surgery the way they want. When it comes

> > down to it it's

> > your body and they are getting payed to do it the

> > way you want! Good

> > luck and just be firm with what you feel is best for

> > you...

> > Best Wishes,

>

> >

>

[Guest guest]

I hope eyes are being opened. . . . So many people

don't want to engage mentally with what is going on in

the government. I pray there's a new generation of

young people who will set things straight . . . If

there's a USA left by the time they find their voice.

I've found that, after hearing a few buzz words, I

know where ones political education is coming from.

Sickening!

Hugs,

Rogene

[Guest guest]

speaking of what surgeons report: my original PS is the head doctor

for the mentor study in AZ....this is the study where only cancer

patients are allowed to receive silicone implants.....i have NEVER

had a follow up visit with him about the state of my health, my

implants, NOTHING! so one has to wonder: what data is he reporting

on me, as a recipient of silicone implants after mastectomy? things

that make you go " hhhmmmmm.......... "

blessings to all,

kathie

>

> I hope eyes are being opened. . . . So many people

> don't want to engage mentally with what is going on in

> the government. I pray there's a new generation of

> young people who will set things straight . . . If

> there's a USA left by the time they find their voice.

>

> I've found that, after hearing a few buzz words, I

> know where ones political education is coming from.

>

> Sickening!

>

> Hugs,

>

> Rogene

>

[Guest guest]

Kathie,

I'd report this to the FDA.

Patty

--- In , " kathie " <Kathie.Larsyn@r...>

wrote:

>

> speaking of what surgeons report: my original PS is the head

doctor

> for the mentor study in AZ....this is the study where only cancer

> patients are allowed to receive silicone implants.....i have NEVER

> had a follow up visit with him about the state of my health, my

> implants, NOTHING! so one has to wonder: what data is he

reporting

> on me, as a recipient of silicone implants after mastectomy?

things

> that make you go " hhhmmmmm.......... "

>

> blessings to all,

> kathie

>

>

>

> --- In , Rogene S <saxony01@y...>

wrote:

> >

> > I hope eyes are being opened. . . . So many people

> > don't want to engage mentally with what is going on in

> > the government. I pray there's a new generation of

> > young people who will set things straight . . . If

> > there's a USA left by the time they find their voice.

> >

> > I've found that, after hearing a few buzz words, I

> > know where ones political education is coming from.

> >

> > Sickening!

> >

> > Hugs,

> >

> > Rogene

> >

>

[Guest guest]

Kathie,

I hope you will send this to the FDA - Mrs. Leonard, I think.

They need to know these things. Sigh, not that it may make any difference - I

agree with

Rogene on her comments...

But at least you can try!

> >

> > I hope eyes are being opened. . . . So many people

> > don't want to engage mentally with what is going on in

> > the government. I pray there's a new generation of

> > young people who will set things straight . . . If

> > there's a USA left by the time they find their voice.

> >

> > I've found that, after hearing a few buzz words, I

> > know where ones political education is coming from.

> >

> > Sickening!

> >

> > Hugs,

> >

> > Rogene

> >

>

[Guest guest]

yes, i did send it to her @ the FDA.....i had her address from a few

weeks ago when we were all writing the FDA about other issues...isn't

it just AMAZING??????????????

blessings, kathie

--- In , " Molly Bloom " <mollyb54@b...>

wrote:

>

> Kathie,

> I hope you will send this to the FDA - Mrs. Leonard, I think.

> They need to know these things. Sigh, not that it may make any

difference - I agree with

> Rogene on her comments...

> But at least you can try!

>

> --- In , " kathie " <Kathie.Larsyn@r...>

wrote:

> >

> > speaking of what surgeons report: my original PS is the head

doctor

> > for the mentor study in AZ....this is the study where only cancer

> > patients are allowed to receive silicone implants.....i have

NEVER

> > had a follow up visit with him about the state of my health, my

> > implants, NOTHING! so one has to wonder: what data is he

reporting

> > on me, as a recipient of silicone implants after mastectomy?

things

> > that make you go " hhhmmmmm.......... "

> >

> > blessings to all,

> > kathie

> >

> >

> >

> > --- In , Rogene S <saxony01@y...>

wrote:

> > >

> > > I hope eyes are being opened. . . . So many people

> > > don't want to engage mentally with what is going on in

> > > the government. I pray there's a new generation of

> > > young people who will set things straight . . . If

> > > there's a USA left by the time they find their voice.

> > >

> > > I've found that, after hearing a few buzz words, I

> > > know where ones political education is coming from.

> > >

> > > Sickening!

> > >

> > > Hugs,

> > >

> > > Rogene

> > >

> >

>

[Guest guest]

Kathie,

I am amazed! . . . To think that a doctor, supposedly

charged with investigating breast implants is not

doing any follow-up is criminal! Then not to be

interested in helping you when you get sick is even

worse!

Please tell Zuckerman <dz@...>,

about your experience. She's collecting instances

where studies are supposed to be done, but are not.

Hugs and prayers,

Rogene

[Guest guest]

I recently got a copy of the pathology report because I wanted to make

sure the doctor took the capsules, and at the bottom there was a

notation stating " THIS CASE WAS REVIEWED AT THE DEPARTMENTAL

CONFERENCE. " I wonder what was said or reported in that meeting. I

told the PS about the support group and that there were many other

women sick. I guess I will never know. The good thing on the path

report is that the capsules were entirely removed.

Cherie

>

> I hope eyes are being opened. . . . So many people

> don't want to engage mentally with what is going on in

> the government. I pray there's a new generation of

> young people who will set things straight . . . If

> there's a USA left by the time they find their voice.

>

> I've found that, after hearing a few buzz words, I

> know where ones political education is coming from.

>

> Sickening!

>

> Hugs,

>

> Rogene

>

[Guest guest]

Cherie,

The Departmental Conference remark is really

interesting. Do you suppose your doctor would tell you

what the review was about? Please contact him when you

feel well and let him know that removing your implants

was the key to your getting better!

I wish more doctors would sit up and take notice

instead of sticking their heads in the sand!

Hugs,

Rogene

[Guest guest]

Rogene -

I will - and can't wait to be able to tell him how much better I am -

when I am that is! He really seems to be doing just what you said,

kind of taking notice, not denying that they could be making me sick,

but agreeing that they could be, and that I was doing the right thing

by getting them out. I'm hoping he will be a good addition to the list

of docs. Not only is he a good PS, but he is not in it for the money,

believe it or not, he seems to be showing kindness - I don't think just

to me, because everyone on his staff love him too. He kept his price

VERY low for me - $2,400. But, he doesn't have the explant experience

the other doctors have, in that he doesn't have a vitamin protocol,

etc. Three years ago I went to him and asked if they could be causing

my sickness, and he said absolutely not, maybe you have Lyme's

disease. He really is a different person since that meeting. Do you

think I should add him to our list?

Cherie

>

> Cherie,

>

> The Departmental Conference remark is really

> interesting. Do you suppose your doctor would tell you

> what the review was about? Please contact him when you

> feel well and let him know that removing your implants

> was the key to your getting better!

>

> I wish more doctors would sit up and take notice

> instead of sticking their heads in the sand!

>

> Hugs,

>

> Rogene

>

[Guest guest]

Cherie,

Before adding him to our list, I would talk to him. .

.. Tell him that you would like to add him to our list.

He may or may not like the attention he gets! I

understand there is considerable pressure put on some

of the explanting surgeons.

It's highly unlikely he will be able to do everyone's

explant for what he charged you. He was being kind!

The anesthesia, lab and surgical room would normally

cost more than that alone!

Actually, very few doctors have a supplement protocol.

Dr. Kolb takes the lead in that. Dr. Feng is

recommending some supplements. Maybe other doctors

are, but they certainly aren't known for that!

Hugs and prayers,

Rogene

[Guest guest]

Rogene,

Is this letter to Leonard at the FDA? I couldn't believe it

when I read what you wrote " Something I can't understand. When a

woman wants her implants out, without replacement, she can't find a

surgeon to do it. If she'll have them replaced the surgeons are

standing in line to do the job!!!!!! "

This is so true!!! I actually talked to Mrs. Leonard myself, on the

day when we were asked to bombard the FDA with phone calls. She

listened to me tell her about this exact same situation! I can't

find a plastic surgeon to take my implants out!! I've been sick for

a few years now, diagnosed with fibro, and I just became eligible

for Medicare in November. Now that I have national coverage,

instead of just Pennsylvania Medicaid, maybe I can find a doctor who

will take them out. I WANT to have Dr. Kolb or Dr. Feng do the

surgery but I have to figure out how to get there and stay there a

few days, and find someone to go with me...that's not easy to do.

I haven't had a chance to catch up on all the posts but please let

me know if you got any response from her (Mrs. Leonard) about this?

I could give the FDA the names of several plastic surgeons who

wouldn't remove them and I'm sure there's nothing in their records

showing that's what I requested. Even if there is any mention of

it, their reasons for not doing it are because they think I can't

emotionally handle going back to the deformity I was born with! How

loud do I have to scream to make myself heard?? I'm sick!! I don't

care if I have boobs or not!

I'm getting all worked up and aggravating my pain levels just

thinking about it. I need to calm down for now, but believe me, I

WILL find a doctor to take them out, if I have to drive to Georgia

or Ohio all by myself.

Thanks for the letter to Mrs. Leonard. It made my day.

Dianne in PA

>

> Mrs. Leonard,

>

> So often when we read articles about the plastic

> surgeons point of view they do not mention this! . . .

>

>

> Is there a place of the FDA's report for women whose

> doctors insisted they have their implants replaced

> when what they really wanted is for them to be

> removed?

>

> Something I can't understand. When a woman wants her

> implants out, without replacement, she can't find a

> surgeon to do it. If she'll have them replaced the

> surgeons are standing in line to do the job!!!!!!

>

> Is there something strange about this picture?

>

> Sincerely,

>

> Rogene

>

>

>

[Guest guest]

Hi Dianne,

Where in PA are you? I'm in Northwest NJ, and I used Dr. Feng. I

stayed at the Hampton Inn, I had a beautiful suite which cost less

than what I paid for a regular room at the Hilton a few weeks

earlier. Good luck in your quest to have your implants removed,

I'll pray that it all works out so you can start recovering.

Sis

--- In , " dianne " <dreesvogt@y...>

wrote:

>

> Rogene,

>

> Is this letter to Leonard at the FDA? I couldn't believe it

> when I read what you wrote " Something I can't understand. When a

> woman wants her implants out, without replacement, she can't find

a

> surgeon to do it. If she'll have them replaced the surgeons are

> standing in line to do the job!!!!!! "

>

> This is so true!!! I actually talked to Mrs. Leonard myself, on

the

> day when we were asked to bombard the FDA with phone calls. She

> listened to me tell her about this exact same situation! I can't

> find a plastic surgeon to take my implants out!! I've been sick

for

> a few years now, diagnosed with fibro, and I just became eligible

> for Medicare in November. Now that I have national coverage,

> instead of just Pennsylvania Medicaid, maybe I can find a doctor

who

> will take them out. I WANT to have Dr. Kolb or Dr. Feng do the

> surgery but I have to figure out how to get there and stay there a

> few days, and find someone to go with me...that's not easy to do.

>

> I haven't had a chance to catch up on all the posts but please let

> me know if you got any response from her (Mrs. Leonard) about

this?

> I could give the FDA the names of several plastic surgeons who

> wouldn't remove them and I'm sure there's nothing in their records

> showing that's what I requested. Even if there is any mention of

> it, their reasons for not doing it are because they think I can't

> emotionally handle going back to the deformity I was born with!

How

> loud do I have to scream to make myself heard?? I'm sick!! I

don't

> care if I have boobs or not!

>

> I'm getting all worked up and aggravating my pain levels just

> thinking about it. I need to calm down for now, but believe me, I

> WILL find a doctor to take them out, if I have to drive to Georgia

> or Ohio all by myself.

>

> Thanks for the letter to Mrs. Leonard. It made my day.

>

> Dianne in PA

>

>

> --- In , Rogene S <saxony01@y...>

wrote:

> >

> > Mrs. Leonard,

> >

> > So often when we read articles about the plastic

> > surgeons point of view they do not mention this! . . .

> >

> >

> > Is there a place of the FDA's report for women whose

> > doctors insisted they have their implants replaced

> > when what they really wanted is for them to be

> > removed?

> >

> > Something I can't understand. When a woman wants her

> > implants out, without replacement, she can't find a

> > surgeon to do it. If she'll have them replaced the

> > surgeons are standing in line to do the job!!!!!!

> >

> > Is there something strange about this picture?

> >

> > Sincerely,

> >

> > Rogene

> >

> >

> >

>

[Guest guest]

Dianne,

It's been a while now, but if I remember Mrs.

Leonard's response, she said, in two responses that

one could report the plastic surgeons to the medical

board and that abusive surgeons could be reported to

the plastic surgeon association.

Doesn't solve a thing for those sick and in need of

expert explant surgery! . . .

Please do keep writing or calling Leonard. I've

noticed that she fowards a number of my messages to

other departments! Personally, she can't do anything.

But, she can pass the word up the line . . . Maybe one

day someone with integrity will be in charge!

Meanwhile we still have the Medwatch report we can

submit . . . even without a doctors signature! A new

MedWatch report can be submitted for each diagnosis!

I pray your surgery goes well and you have a speedy

recovery!

Hugs and prayers,

Rogene

[Guest guest]

Hi Diane

I am in PA too, Aston - not too far from Philadelphia. I had my

implants removed right here (2 miled from home). If you would like

more info, please let me know.

Cherie

> > >

> > > Mrs. Leonard,

> > >

> > > So often when we read articles about the plastic

> > > surgeons point of view they do not mention this! . . .

> > >

> > >

> > > Is there a place of the FDA's report for women whose

> > > doctors insisted they have their implants replaced

> > > when what they really wanted is for them to be

> > > removed?

> > >

> > > Something I can't understand. When a woman wants her

> > > implants out, without replacement, she can't find a

> > > surgeon to do it. If she'll have them replaced the

> > > surgeons are standing in line to do the job!!!!!!

> > >

> > > Is there something strange about this picture?

> > >

> > > Sincerely,

> > >

> > > Rogene

> > >

> > >

> > >

> >

>