Re: (unknown)

[Guest guest]

Thanks ... I was out of the country for the past 2 weeks and I

must have missed that discussion. Could you please direct me as to

how to access the archives that you are speaking of.

Thanks

Tina, PT

Indpls, IN

> Tina

> Angie wrote a wonderful and detailed article on this for

the Acute

> Care Section (APTA) journal an issue or two ago. If you are a

member of

> the Acute Care Section you may want to reference your publication

piles, if

> not you may want to join, you may also want to contact Angie

directly at

> images@t...

>

> Some of this discussion is also available in the PTManager archives

from a

> couple weeks ago or so - you may also want to check there.

>

> Good luck

>

[Guest guest]

Jan My Sweetie,

I am sooooooo sorry you are in pain baby. This is the best thing I can tell you. Go to Wal-Mart and get Aleve (Generic Naproxin Sodium) it's cheaper. Also a bottle of Ibuprofen again generic. And a couple (At Least) boxes of SALONPAS! Get in car take 3 Naproxin Sodium that is same as prescription strength. They help so good. However every 4 to 6 hours alternate. If it is 200 mg. Ibuprofen then take 4 that is same as the 800 mg. Morton from Dr.. Like I said every 4 to 6 hours alternate the Aleve & Motron. And last but far from least open your box of Salonpas and get 1 pack out they come in 2 packs. And where ever it hurts PLASTER THEM ON! So what if you look like a MUMMY as long as it helps the pain HUH?

Love & God Bless! /Wolf~President I'm diagonally parked in a parallel universe. "Therefore encourage one another and build each other up, just as in fact you are doing."

1 Thessalonians 5:11

Now as I always say this at the end of my e-mails: IF GOD BRINGS YOU TO IT. HE WILL BRING YOU THROUGH IT. This has became my philosophy.

[Guest guest]

Sherry,

I live in Alabama too. It is nice to know that someone on this list lives in

the general vicinity that I do.

Debbie

>

>

> Date: 2004/03/21 Sun PM 05:02:06 EST

> To: FIBRO GROUP <fibromyalgia_support_group >

> Subject: (unknown)

>

>

[Guest guest]

Hi Dina,

I'm sorry to hear that you've been dx'd with this horrid illness I was dx'd

when I was 31, 13 yrs ago. For me Fibro has gotten worse with time. It has taken

my mobility from me. I can walk yes, but not far, the pain is just too much. I

take Morphine for my pain. Started out on Lortab years ago, but as time goes on

our bodies get use to the meds and they have to increases the dosage and then

change meds, until you graduate up the ladder to stronger and stronger pain

meds. My advise would be to stay on one med as long as you possibly can before

changing to something else. Once to reach the top of the ladder, where I am,

there's no where else to go.

Also, I don't know about other people, but I started out with Fibro and CFS, and

today, I have about 12 diff dx's of different things. I don't know if CFS and

Fibro caused anything else that I have, but I do assume that with my body being

compromised, it's a great possibility. I don't think the pros even know what

this does to our bodies yet.

I hope I haven't scared you off, I'm just speaking from my own experience. And

one more thing. I was able to pull off working for 4 months after getting sick,

and it took me 13 months from the onset to get a dx. I pushed for those 4

months, then just flat couldn't go anymore. Couldn't function, or make a

decision even. Took a leave of absence for a couple of weeks and wound up on

short term disability, then long term, then before I knew it, I was on SS

disability.

What are they currently doing for your pain?

Best wishes,

Tommie

(unknown)

hi i was just diagnosed with fibro. yesterday. i am a

33 yr old home health aide. i am very scared of what

to expect jus about everyone i know that has it

doesnt work. does anyone have any advice for me or can

tell me what to expect i know everyone is effected

diffrently.

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Yeah..we are different and the same all at once.

Mine has gotten worse with time. A lot of times it

reaches a certain point and stays there. I've heard

from the docs that it doesn't progress. There are

Fibrocytes out there that would argue that point.

It's so weird and does different things at different

times and sometimes you feel pretty good then the next

day dump on you like nothing else....

I have fibro that is only part of the problem. The

shoulder blade problem may be part of it..like

myofacial pain syndrome that is part of fibro

sometimes. My Osteo is well advanced and the back

joints eaten out by the osteo and sitting on

nerves....and so on. It doesn't matter much with

other things involved.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

--- dina krasowsky wrote:

> hi i was just diagnosed with fibro. yesterday. i am

> a

> 33 yr old home health aide. i am very scared of what

> to expect jus about everyone i know that has it

> doesnt work. does anyone have any advice for me or

> can

> tell me what to expect i know everyone is effected

> diffrently.

>

>

>

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

>

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

Lotacats >^.^<

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/2715248

Myspace

http://www.myspace.com/lotacats

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

I agree Mom. Fibro IS progressive. There isn't a doc around that can tell me any

different. I would tell them until they live it and feel the progression, don't

tell us it isn't progressive.

Re: (unknown)

Yeah..we are different and the same all at once.

Mine has gotten worse with time. A lot of times it

reaches a certain point and stays there. I've heard

from the docs that it doesn't progress. There are

Fibrocytes out there that would argue that point.

It's so weird and does different things at different

times and sometimes you feel pretty good then the next

day dump on you like nothing else....

I have fibro that is only part of the problem. The

shoulder blade problem may be part of it..like

myofacial pain syndrome that is part of fibro

sometimes. My Osteo is well advanced and the back

joints eaten out by the osteo and sitting on

nerves....and so on. It doesn't matter much with

other things involved.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

--- dina krasowsky wrote:

> hi i was just diagnosed with fibro. yesterday. i am

> a

> 33 yr old home health aide. i am very scared of what

> to expect jus about everyone i know that has it

> doesnt work. does anyone have any advice for me or

> can

> tell me what to expect i know everyone is effected

> diffrently.

>

>

>

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

>

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

Lotacats >^.^<

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/2715248

Myspace

http://www.myspace.com/lotacats

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

I love that. I think this is my favorite chronic pain group. I am so

blessed to have you all in my life, to have someone who ACTUALLY understands

what I am going through. ((HUGS)) Love you all.

   

Check me out on:

*Myspace

*Facebook

~*~*~*~*~*~*~*~

Check out my kitty Otis on:

Caster

~*~*~*~*~*~

" The only people you need in your life are the ones that need you in thiers "

~*~*~*~*~*~*

" There comes a point in your life, when you realize who matters, who never

did, who won't anymore, and always will. So don't worry about people from

your past, there's a reason why they didn't make it to your future. "   



 

-- (unknown)

Psalm 55:22

Friends are God's way of taking care of us.

As I am reading/typing to all in this group, I come across this e-mail

from my sis-in-law. The e-mail is quite long, but it was the very

first sentence with the scripture that spoke to me.

I just got done posting about how important this group is and how the

friendships mean so much to me, then I saw this. I just had to share.

Jodie

[Guest guest]

So true Jodie and thank you for sharing. Yes, I read your post to Lori and

totally agree about it all 100%!

Have a nice day,

Hugs

(unknown)

Psalm 55:22

Friends are God's way of taking care of us.

As I am reading/typing to all in this group, I come across this e-mail

from my sis-in-law. The e-mail is quite long, but it was the very

first sentence with the scripture that spoke to me.

I just got done posting about how important this group is and how the

friendships mean so much to me, then I saw this. I just had to share.

Jodie

[Guest guest]

Hi Kerrie, I really hear your frustration and fatigue. I know that place well.

Not so much from my engagement with my Aspie, but how I am wired has made

intimate relationships really dissapointing and hard to navigate in general.

Ive had a lot of relationships with NT men where I have felt the same

frustrations - the lopsidedness, the lack of empathy, the indifferance or the

my-way-or-the-highway mentality. I always thought if I just found the right

guy, I had so much to offer and we could live happily ever after...My experience

with my Aspie has in many ways been the grand finale of my psyche story. I

sought him out for a reason. He pushes all my wounding buttons in ways that are

SO hard, because his actions do not come from the same places that they come

from with NTs. I am left having to face myself, my wounding, my reactions, my

assumptions, my needs, and my outdated stories again and again and again. He is

not going to heal me. I have to find a way to heal myself. To be engaged with

my Aspie is growing me up in good ways. In ways I dont want to, in ways I have

huge resistance around, in ways I am resentful about. He is a gift in my life.

I am becoming a different person, a better person. Not because I have to " deal "

with him - but because I have to deal with ME. What I have found is this: He

is very challenging in many ways. I am very challenging in my own ways. I deal

with me first, he deals with himself first. We deal with each other the best we

can and often times the weight of that is not distributed equally. Sometimes he

has to deal with me in ways that are hugely problematic and painful for him.

Other times he is stuck somewhere and it takes time and patience and acceptance

to just let things be.

If youre worn out, maybe you need to end the relationship. Or maybe this is

your opportunity to learn to take care of yourself in a different way. It is

really hard to decide what is right, Im glad youre here.

> >

> > Hi Anne Welcome to the group!  You will find a lot of valuable insight

and

> > understanding here! 

> >

> >

> > I think the first thing I would like to share is how difficult it is to

navigate

> > an online relationship (of any sort) because of the lack of body cues.  My

Aspie

> > and I struggled with this for quite some time because we spent a good

bit of

> > time chatting throughout the day and night as we were working, etc.  So

much of

> > our " drama " was misunderstanding.  He struggles to read context correctly

when

> > he has verbal, facial, body cues - text is often impossible.  So, what we

have

> > learned is that online chatting is for keeping it light and if there is

> > something " real " to discuss, it should be at the very least, a phone

> > conversation so we can hear each others voices.  Second, I had to learn to

> > communicate in a very different way to be successful with my Aspie.  And he

has

> > had to learn to communicate differently as well.  I have learned to make a

very

> > concise and clear request when I want or dont want something.  I have

learned

> > that rapid-firing a bunch of requests and issues at him is a recipe for

> > disaster. I have learned that anything with emotional content (positive or

> > negative) creates HUGE anxiety within him, and he becomes overwhelmed and

needs

> > to retreat to regroup.  Intense emotion short-curcuits his wiring.  I have

> > learned to honor this as a need, and not see it as a punishment or an

> > abandonment.  Third, Im guessing if you examine your friendship there is a

clear

> > rhythm to it.  Im guessing he has written a rule (conscious or unconscious)

> > about where you fit in his universe.  When you ask for this rule to change

-

> > when you ask for any change - this is going to create anxiety and resistance

and

> > fear within him.  You may perceive coming for a visit to finally meet an

> > exciting thing.  Im guessing for him this is a HUGE source of anxiety - for

my

> > Aspie just having me within his personal space is really, really difficult

> > sometimes.  For my Aspie, change of his routines creates an anxiety so big

that

> > he sometimes just becomes frozen.  Tiny steps work, sometimes.  Once a

rule has

> > been written, even if it isnt a great rule it is the way it is and anything

> > different is difficult.  I have learned not to take this personal, its not

about

> > me. Its not about his feelings for or lack of feelings for me.  I have

learned

> > that the more I want or need from my Aspie, the more he feels pushed and

this

> > creates resistance and he doesnt enjoy interacting with me.  It has helped

us to

> > ask a lot of questions.  For example what you mentioned about saying hello

every

> > day when you see him online and he says he feels smothered...Im guessing

that

> > your intention may be just to say hello, because you see him there online

and

> > that is as far as the gesture goes.  In his mind perhaps he is feeling that

if

> > he says hello then you are going to want to engage him in an extended way

and he

> > will ot be able to disengage, or you will become upset...and the anxiety

> > begins.  To create a clear expectation helps.  " I like to say hello when I

see

> > you online but I dont expect to have a conversation. "   Or even in the

moment to

> > say, " just a quick hello, hope your day is going well. "   My Aspie used to

say,

> > " Hi, I can only talk to you for 5 minutes " and then start rattling off his

To-Do

> > list.  I always felt insulted by that - like he felt he had to manage me -

until

> > I understood that this was his way of navigating my expectatations so I

wouldnt

> > become disappointed or upset with him.  He learned that the way he was

> > navigating my expectations WAS upseting me so he stopped doing that.  I

learned

> > to phrase my expectation in my hello so he knew where I was coming from. 

I

> > always ask what things mean now, because what he does always makes sense

when he

> > has explained himself.  I absolutely cannot assume that I know what

ANYTHING

> > means based upon my experience in the NT universe.  It is not the same, it

will

> > never be the same.  There is a huge learning curve to learn to speak each

others

> > language, to find understanding to respect each others differences and even

> > embrace each others differences.  My Aspie and I bounced off of each other

for a

> > long time, it has gotten easier as we come to understand each other and

> > ourselves better.  It is not an easy journey, but it is a good one.

> >

>

[Guest guest]

Thanks, . Your insight is appreciated. I'm not sure what will happen, but I know he will always be my friend becasue he is such a beautiful person. He is a gift. I'm just not sure a romantic relationship is the answer for us.

Subject: Re: (unknown)To: aspires-relationships Date: Thursday, July 8, 2010, 3:48 PM

Hi Kerrie, I really hear your frustration and fatigue. I know that place well. Not so much from my engagement with my Aspie, but how I am wired has made intimate relationships really dissapointing and hard to navigate in general. Ive had a lot of relationships with NT men where I have felt the same frustrations - the lopsidedness, the lack of empathy, the indifferance or the my-way-or-the-highway mentality. I always thought if I just found the right guy, I had so much to offer and we could live happily ever after...My experience with my Aspie has in many ways been the grand finale of my psyche story. I sought him out for a reason. He pushes all my wounding buttons in ways that are SO hard, because his actions do not come from the same places that they come from with NTs. I am left having to face myself, my wounding, my reactions, my assumptions, my needs, and my outdated stories again and again and again. He is not going to heal me. I have to find a

way to heal myself. To be engaged with my Aspie is growing me up in good ways. In ways I dont want to, in ways I have huge resistance around, in ways I am resentful about. He is a gift in my life. I am becoming a different person, a better person. Not because I have to "deal" with him - but because I have to deal with ME. What I have found is this: He is very challenging in many ways. I am very challenging in my own ways. I deal with me first, he deals with himself first. We deal with each other the best we can and often times the weight of that is not distributed equally. Sometimes he has to deal with me in ways that are hugely problematic and painful for him. Other times he is stuck somewhere and it takes time and patience and acceptance to just let things be.If youre worn out, maybe you need to end the relationship. Or maybe this is your opportunity to learn to take care of yourself in a different way. It is really hard to decide what is

right, Im glad youre here. > >> > Hi Anne Welcome to the group! You will find a lot of valuable insight and > > understanding here! > > > > > > I think the first thing I would like to share is how difficult it is to navigate > > an online relationship (of any sort) because of the lack of body cues. My Aspie > > and I struggled with this for quite some time because we spent a good

bit of > > time chatting throughout the day and night as we were working, etc. So much of > > our "drama" was misunderstanding. He struggles to read context correctly when > > he has verbal, facial, body cues - text is often impossible. So, what we have > > learned is that online chatting is for keeping it light and if there is > > something "real" to discuss, it should be at the very least, a phone > > conversation so we can hear each others voices. Second, I had to learn to > > communicate in a very different way to be successful with my Aspie. And he has > > had to learn to communicate differently as well. I have learned to make a very > > concise and clear request when I want or dont want something. I have learned > > that rapid-firing a bunch of requests and issues at him is a

recipe for > > disaster. I have learned that anything with emotional content (positive or > > negative) creates HUGE anxiety within him, and he becomes overwhelmed and needs > > to retreat to regroup. Intense emotion short-curcuits his wiring. I have > > learned to honor this as a need, and not see it as a punishment or an > > abandonment. Third, Im guessing if you examine your friendship there is a clear > > rhythm to it. Im guessing he has written a rule (conscious or unconscious) > > about where you fit in his universe. When you ask for this rule to change - > > when you ask for any change - this is going to create anxiety and resistance and > > fear within him. You may perceive coming for a visit to finally meet an > > exciting thing. Im guessing for him this is a HUGE source of

anxiety - for my > > Aspie just having me within his personal space is really, really difficult > > sometimes. For my Aspie, change of his routines creates an anxiety so big that > > he sometimes just becomes frozen. Tiny steps work, sometimes. Once a rule has > > been written, even if it isnt a great rule it is the way it is and anything > > different is difficult. I have learned not to take this personal, its not about > > me. Its not about his feelings for or lack of feelings for me. I have learned > > that the more I want or need from my Aspie, the more he feels pushed and this > > creates resistance and he doesnt enjoy interacting with me. It has helped us to > > ask a lot of questions. For example what you mentioned about saying hello every > > day when you see him online and he says he feels

smothered...Im guessing that > > your intention may be just to say hello, because you see him there online and > > that is as far as the gesture goes. In his mind perhaps he is feeling that if > > he says hello then you are going to want to engage him in an extended way and he > > will ot be able to disengage, or you will become upset...and the anxiety > > begins. To create a clear expectation helps. "I like to say hello when I see > > you online but I dont expect to have a conversation." Or even in the moment to > > say, "just a quick hello, hope your day is going well." My Aspie used to say, > > "Hi, I can only talk to you for 5 minutes" and then start rattling off his To-Do > > list. I always felt insulted by that - like he felt he had to manage me - until > > I understood that this was his way

of navigating my expectatations so I wouldnt > > become disappointed or upset with him. He learned that the way he was > > navigating my expectations WAS upseting me so he stopped doing that. I learned > > to phrase my expectation in my hello so he knew where I was coming from. I > > always ask what things mean now, because what he does always makes sense when he > > has explained himself. I absolutely cannot assume that I know what ANYTHING > > means based upon my experience in the NT universe. It is not the same, it will > > never be the same. There is a huge learning curve to learn to speak each others > > language, to find understanding to respect each others differences and even > > embrace each others differences. My Aspie and I bounced off of each other for a > > long time, it

has gotten easier as we come to understand each other and > > ourselves better. It is not an easy journey, but it is a good one.> >>