Contacting the FDA

[Guest guest]

Something that we could be doing is to contact Mrs.

Leonard <nml@...>. If you want to phone

her, it's 800 638-2041, ext 141.

She is not a decision maker, but she does pass

messages along.

She need to know about how misled women are in the

pro-implant sites - How they get angry when presented

with a problem.

Also, how doctors, including plastic surgeons, refuse

to acknowledge the illnesses that present with

implants.

It may seem that our cries for help fall on deaf ears.

However, they do get documented. When I called her

recently, she knew the date of my last email to her.

They had blocked my email access to her - so I thought

she had moved on. She hadn't. My messages started

getting through again. They will have a better record

of your contact if you send an email. However, talking

to her may be more personally satisfying!

They also blocked sey who has several

children affected by her implants - one severely. I

was passing 's messages along to Mrs. Leonard

until I was blocked! From now on, any time my message

don't get through, I'm calling!

I look for them to announce the approval of the " new "

gels during the holiday season, or in the middle of a

big news event so it will get lost in the shuffle.

Let's not let them think we've fallen asleep!

Hugs to all,

Rogene

--- auntsisnj <auntsisnj@...> wrote:

> I've noticed on the pro-implant sites that people

> quite often post

> that they've suddenly got a rash, either on their

> breasts, or other

> places on their bodies. Some report itching all

> over their bodies,

> and I'm sure part of them is wondering " is it the

> implants? " , but

> another part is trying to rationalize it away.

> That's what I tried

> to do when I first got sick, and that's what

> everyone around me

> tried to do as well. I'm trying to think up a way

> of helping those

> pre-implant folks, but as someone suggested, often

> they're in the

> state of mind where they don't want to hear of

> problems like ours,

> because they've worked themselves up to the thought

> of having larger

> breasts, and that seems like a pretty powerful

> thing. I know I had

> concerns when I read the pamphlet from the doctor's

> office, saying

> that some women reported auto-immune disease but it

> was never proven

> (and now that I'm on the sick end of the whole mess

> I know why it's

> never been proven, because it's never been

> investigated correctly -

> if at all). It worried me and it delayed my implant

> surgery

> slightly, but unfortunately it didn't delay it

> forever, and I relied

> on sites like implantinfo.com to tell me if women

> were getting sick

> or not (now I know better). Actually I am going to

> be participating

> in something that hopefully will help pre-implant as

> well as post-

> implant folks, but I will give you more details

> about that in a few

> weeks.

>

> Sis

>

>

>

>

> >

> > Last month I has a punch biopsy done on both

> breast. When

> everything

> > came back it showed the fungal stain was negative

> for both breast.

> It

> > also showed no cancer cells but that there was

> some kind of

> allergic

> > reaction. With this fungal stain negative is there

> still a

> possibility

> > that some fungi may be growing inside my implant?

> From this test

> my

> > doctors have no idea what to do next. It was only

> when I found

> this

> > site that I made the appointment to have them

> removed. Up until

> then I

> > was still being told my implants would have

> nothing to do with all

> my

> > problems. I also wanted to find out about when I

> have them

> removed. I

> > had them put in through my nipple. With all the

> problems and rash

> on

> > my breast I don't think they will want to cut

> through all that. I

> also

> > want to have them done en bloc but don't think it

> will fit through

> my

> > nipple. Would under the breast be a better

> choice??? How painful

> is it

> > when it's done there? Is the scar big? I don't

> ever show my breast

> to

> > anyone but my husband and he won't care about the

> scar. I'm just a

> > litte worried! I already have a scar on my nipple

> and now punch

> biopsy

> > scars. Everyday it seems I'm learning from this

> mistake!

> > Thank you!

> >

> >

>

>

>

>

>