Re: Gluten after Biofilm anyone?

[Guest guest]

I have seen science here and there, but what I am going by are people reports.

With so many patients and doctors reporting improvements from removing gluten

and casein, that's enough for me to give it merit. There are also reports that

moms with celiac (most don't know they have it) are at a very high risk to

having children who develop autism. I remember reading that the protein markers

on wheat are similar to the protein markers on measles and human cells. I

remember reading that grains in general are not healthy unless they are soaked,

like they did in ancient times. Yes, the glue properties of casein and gluten

are blamed for biofilm, but I don't have the research saved on it. I read a lot

of reports of people who return to gluten, who then relapse months later. I

will not be returning to gluten, but will learn how to make breads using

alternative grains. I think one can google " abstract gluten biofilm " to find a

bunch of information in research studies. It's pretty creepy when you think of

it -- the main staples of our diet are harming us. I don't know how much of a

roll gluten plays in all of this, but it does play a significant role. For my

family, we are allergic to wheat on our testing, so the answer is easier. I get

light-headed immediately upon eating wheat; thus, it's an allergy here. They

make fancy probiotics designed to break down gluten. We tried those, and they

did make a good difference, but we had to take them all the time and lots of

them. It's easier and cheaper to avoid the wheat in the first place. After

avoiding wheat for two years, still symptoms return when my kids sneak wheat.

Symptoms that interfere with their thinking and concentrating, and cause

hyperactivity and anger, so it's just plain bad news for us.

Love and prayers,

Heidi N

>

> I'm wondering if anyone has treated biofilm and then gone back on gluten. Is

there any science pointing to biofilm as a side sensitivity or cause of the

gluey reactions to gluten?

>

> ~zeph

>

[Guest guest]

I think diets really do need to be determined on an individual basis, although I have to agree with you Heidi that the GF success stories are overwhelming.  And I second the food supply issue - the way it's harvested and grown, Monsanto (did you see the FDA post?), I can't even get started.  

I can share our experience - we have been happily GF as a family for over 9 years now, starting when my son was dx with autism at 24 months.   Going GF among other things was a cornerstone to my son's recovery.  Over the years he's gotten so much stronger and healthier due to the stuff we all do.   Gluten isn't actually a direct problem for him(no obvious reactivity),  so he can have it for social reasons like birthday parties, sports parties, or something especially appetizing at someone's house with no consequence.

As a family we all feel better and operate better off it.  If my son DOES have a lot of it, say, one gluten meal a day for several days he will get a headache or sometimes brain fog.  We can remedy it homeopathically, but we just avoid it.  We've come to enjoy eating mexican, asian, and mediterranean food as our base meals.  By year 3 we realized that " we'll always be this way " and had to move on.

Ironically, my NT daughter with chronic Lyme had always been gluten free before diagnosis over a year ago, for 7 years of her life.   From birth and while I was pregnant with her (I was 14 weeks when Leo was diagnosed), so I changed my diet right away assuming I was carrying another child with autism.  She has never presented sx from gluten, but as a health rule we keep her off it, and especially after she got very sick.  She is reactive to cane sugar though, so compliance is easy thank god.

My husband was the last to be on board and he feels 100 times better off both wheat AND dairy.  And he was a native new yorker that grew up on bagels and pizza, wasn't an easy thing.

The silver lining of going GF in my opinion is that it keeps you from eating so many other bad things by default:)

 

I have seen science here and there, but what I am going by are people reports. With so many patients and doctors reporting improvements from removing gluten and casein, that's enough for me to give it merit. There are also reports that moms with celiac (most don't know they have it) are at a very high risk to having children who develop autism. I remember reading that the protein markers on wheat are similar to the protein markers on measles and human cells. I remember reading that grains in general are not healthy unless they are soaked, like they did in ancient times. Yes, the glue properties of casein and gluten are blamed for biofilm, but I don't have the research saved on it. I read a lot of reports of people who return to gluten, who then relapse months later. I will not be returning to gluten, but will learn how to make breads using alternative grains. I think one can google " abstract gluten biofilm " to find a bunch of information in research studies. It's pretty creepy when you think of it -- the main staples of our diet are harming us. I don't know how much of a roll gluten plays in all of this, but it does play a significant role. For my family, we are allergic to wheat on our testing, so the answer is easier. I get light-headed immediately upon eating wheat; thus, it's an allergy here. They make fancy probiotics designed to break down gluten. We tried those, and they did make a good difference, but we had to take them all the time and lots of them. It's easier and cheaper to avoid the wheat in the first place. After avoiding wheat for two years, still symptoms return when my kids sneak wheat. Symptoms that interfere with their thinking and concentrating, and cause hyperactivity and anger, so it's just plain bad news for us.

Love and prayers,

Heidi N

>

> I'm wondering if anyone has treated biofilm and then gone back on gluten. Is there any science pointing to biofilm as a side sensitivity or cause of the gluey reactions to gluten?

>

> ~zeph

>

[Guest guest]

I have been using sprouted organic spelt flour from Shiloh farm to make

pancakes/qraps for my two boys for a few months now and to our delight they have

not reacted to it in any way or form, so I continue ordering the flour from

America even when the postage is more expensive than the cost of the flour I

feel that is it worth it as is giving them the oportunity to try different foods

and also to see how their body cope cope with it. They were sick of having

sprouted quinoa, almonds,pecans, macadamia and other nuts in their

pancakes/wraps, so now they feel that spelt is much better.

I have not done the Biofilm protocol but I have been giving them custom

probiotics for a long time as well as Sacch. boul. Culturelle and continue doing

so, plus they have a lot of fermented foods with every meal.

The boys have also been having goat yogurt lately and it has not affected their

behaviour either.

This wasn't the case early last year as if I gave them any of this two products

they would go crazy immediately and would start screaming, craying and all sort

of silly behaviour would appear, but not this time.

Recently I tested them for KPU and didn't take supplements for a full week and

they never showed any distress sign or misbehaviour.

I feel that Nutramedix herbs have helped them a lot and perhaps the introduction

of an organic diet, removal of carpet, freshly cooked meal all the time, epsom

salt and clay bath, zeolite, liver life and constantly exposing them to interact

with the outside world.

My almost 9 years old has started learning year 8 algebra sums/problems as he

read about it in a math book and asked my husband to teach him and he is solving

them quite well.

My 10 years old also is showing very good understanding of road rules and taking

care of his belonging.

He goes for bike rides with my husband from our home to the shopping

centre(about 1 hour ride) and has demonstrated so far that he has to look for

cars when approaching driveways, roads exit/entry, stop at traffic light went

red etc.

and now he is telling us that when he is 16 he wants to drive a car.

This is a boy that was diagnosed as severly autistic when he was 2.

So this only shows that there is hope for recovery and that the more we do for

our kids the more we will get out of them.

My older son is not recovered yet but is on his way sooner that what we spected.

Olga-- In BorreliaMultipleInfectionsAndAutism , " Zeph "

wrote:

>

> I'm wondering if anyone has treated biofilm and then gone back on gluten. Is

there any science pointing to biofilm as a side sensitivity or cause of the

gluey reactions to gluten?

>

> ~zeph

>

[Guest guest]

Zeph,

Dr. Alessio Fassano's talk about celiac genes perhaps can help you to make a

decision whether to maintain gluten-free or not.

http://www.youtube.com/watch?v=HQAhs07h0oM

Kids in the ASD spectrum have a higher risk to these genes. Here is his

presentation at DAN conference in Dallas:

http://autism.com/danwebcast/pro_videomp4.asp?mp4=dallas_2009_21_fasano & h=480 & w=\

640 & VID=24

He has an interesting argument in the needs to avoid gluten. The Nature did not

plant gluten. Human moved with seasonal fruits, nuts, and vegetables as well as

the migration of animals to gather food and hunt for food. Gluten was only

introduced when agriculture was conceived to create settlements. The bottom

line is that our body is not built to deal with gluten.

He then further explains that one key function of intestinal, digestive tract is

to keep bad guys (gut bugs and foods that harm us including casein and gluten)

at bay. The gut absorption of large molecules such as gluten and casein is

impossible. However, if one has the gene mutation that leads to upregulation of

Zonulin, a protein that modulates intestinal permeability (a " gatekeeper " of the

tight unctions between cells of the wall of the digestive tract.), it will

damages the gut barrier integrity. Interesting enough, for the individuals who

have the gene mutation, exposure to gluten can further triggers the production

of Zonulin to cause leaky gut. When this occurs, the macromolecules such as

gluten and casein have a chance to go into the bloodstream via leaky gut wall.

Zeph, I suspect that one round of biofilm protocol might be able clean up some

pathogenic mucoid structure in the gut at its best. But it will take some time

to rebuild healthy mucus in the gut and time to heal leaky gut. I personally

think that it might be safer and beneficial to stay gluten-free for sometime

after a successful implementation of biofilm protocol.

There have been studies showing that zinc and L-carnosine appears to block the

initiation of leaky gut syndrome. This might be the reason that my son

responded very well to the higher zinc required by KPU protocol. He was also

simultaneously taking L-carnosine to help correcting his zinc/copper ratio. He

was previously non-verbal and started talking a few months after our

implementation of KPU protocol. He is 7 and overall very delayed in language

and communication. I think that gluten-free diet is necessary for him, until

his secretary IgA can be in a good range to show signs of improvement in gut

inflammation and immune system.

Limin

www.healthbylimin.com

Young Living Distributor # 1111136

> I'm wondering if anyone has treated biofilm and then gone back on gluten. Is

there any science pointing to biofilm as a side sensitivity or cause of the

gluey reactions to gluten?

>

> ~zeph

>

>

>

> ------------------------------------

>

>

[Guest guest]

the folks at Enzymedica told me karen DeFelice had found that some gluten

intolerant people (NON-celiacs) were able to add gluten back into their diets

after avoiding it for a time using the Enzymedica product Glutenease and that

they felt better with the reintroduction of an additional food group. YMMV.

I'm not ready for that particular experiment just yet.

>

> > I'm wondering if anyone has treated biofilm and then gone back on gluten. Is

there any science pointing to biofilm as a side sensitivity or cause of the

gluey reactions to gluten?

> >

> > ~zeph

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

We just came back from our ski trip in Tahoe. We celebrated our NT child's

turing 5 with the other family whom we shared a 3-bedroom cabin together there.

For the occasion I allowed my ASD child to have a very small slice of tiramisu

instead of the CFGF cupcake I prepared for him. He only had a few bites of

tiramisu, and I also gave him one capsule of GCF made by Theramedix. Theramedix

and Enzymedica are of sister companies established by the same founder. GCF and

GlutenEase are similar products; GCF designed is for the professional line, and

GlutenEase, the general public. Anyway, my ASD child developed diarrhea and

indigestion after just a few bites of tiramisu with one capsule of GCF. Staying

away from gluten and casein is necessary for him, even though he has never

tested positive to gluten sensitivity. We have done multiple rounds of biofilm

protocol (Dr. U's version) and taking breaks in between each round.

Limin

www.healthbylimin.com

Young Living Distributor # 1111136

> the folks at Enzymedica told me karen DeFelice had found that some gluten

intolerant people (NON-celiacs) were able to add gluten back into their diets

after avoiding it for a time using the Enzymedica product Glutenease and that

they felt better with the reintroduction of an additional food group. YMMV.

I'm not ready for that particular experiment just yet.

>

>

>>

>>> I'm wondering if anyone has treated biofilm and then gone back on gluten. Is

there any science pointing to biofilm as a side sensitivity or cause of the

gluey reactions to gluten?

>>>

>>> ~zeph

>>>

>>>

>>>

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