XMRV in UNvaccinated/No Autism child Re: XMRV/ SAMe

[Guest guest]

Hi Limin,

Is the lead researcher in the autism study Mikovits?

I'm a CFS patient and tested negative for PCR, positive by culture. This is the

first time I've heard of any supplement, let alone SAMe, be recommended by a WPI

researcher for XMRV.

Did she explain the rationale behind it? Treatment to bridge over to the drug

cocktails they've publicly declared to be the recommended treatment approach?

Thanks for posting this!

joey

> >

> > My son's XMRV test came back POSITIVE. Surprised, right? Nah... Just one

more thing to throw on the top of the already collapsed pile of infections...

> >

> > Pramila spoke with the lead XMRV researcher and learn from her that SAMe is

the recommended treatment. I am looking into Designs by Health. SAMe oxidizes

easily. I like the fact that the Design by Health brand has individual tablet

wrapped in a blister pack. But I don't seem to be able to find the detailed

product information to confirm whether or not their SAMe contains any yucky

stuff such as magnesium stearate, stearic acid, titanium dioxide, etc. Does

anyone has the detailed info on this product? Or, is there a clean brand of

SAMe you will recommend? Thank you.

> >

> > Limin

> > www.healthbylimin.com

> > Young Living Distributor ID: 1111136

> >

>

[Guest guest]

Hi ,

I believe that the lead researcher is Mikovits. Pramilia can help to clarify or

confirm this. Pramila gave a presentation on ChARM tracker software to parents

and doctors at one of the SF bay area autism conferences last month, which Dr.

AW and Dr. KB (both DAN doctors) and the XMRV researchers also attended.

Pramila learned from that occasion that SAMe can be a helpful treatment to

individuals with XMRV and shared this information offline with a couple of us.

More information is needed to understand the reasons of this suggestion. There

has been a discussion on this subject in the group for which Pramila moderates.

She will be following up the researchers to get further information on the

possible treatments. I copy and past below one of my posts in that group. Hope

this help to clarify where we are at this moment.

Limin

www.healthbylimin.com

Young Living Distributor ID: 1111136

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Hi Pramila,

Would you also help to find out the reason why SAMe has been suggested as a

possible treatment for XMRV? I would like to understand if the researchers

thought to support methylation cycle for silencing retroviruses such as XMRV, or

if XMRV actually inhibits or interferes with the activity of MAT enzyme

(Methionine S-adenosyltransferase), which catalyses the synthesis of

S-adenosylmethionine (SAMe) from methionine and ATP. If it in deed impacts

methylation cycle by inhibiting MAT enzyme, it will be helpful to further

understand whether it is causal or opportunistic, in order to put an appropriate

treatment protocol together.

It is great that we have you as our parent ambassador. Thanks a bunch in

advance for digging further on the possible treatments.

> Hi Limin,

>

> Is the lead researcher in the autism study Mikovits?

>

> I'm a CFS patient and tested negative for PCR, positive by culture. This is

the first time I've heard of any supplement, let alone SAMe, be recommended by a

WPI researcher for XMRV.

>

> Did she explain the rationale behind it? Treatment to bridge over to the drug

cocktails they've publicly declared to be the recommended treatment approach?

>

> Thanks for posting this!

> joey

>

>

>>>

>>> My son's XMRV test came back POSITIVE. Surprised, right? Nah... Just one

more thing to throw on the top of the already collapsed pile of infections...

>>>

>>> Pramila spoke with the lead XMRV researcher and learn from her that SAMe is

the recommended treatment. I am looking into Designs by Health. SAMe oxidizes

easily. I like the fact that the Design by Health brand has individual tablet

wrapped in a blister pack. But I don't seem to be able to find the detailed

product information to confirm whether or not their SAMe contains any yucky

stuff such as magnesium stearate, stearic acid, titanium dioxide, etc. Does

anyone has the detailed info on this product? Or, is there a clean brand of

SAMe you will recommend? Thank you.

>>>

>>> Limin

>>> www.healthbylimin.com

>>> Young Living Distributor ID: 1111136

>>>

>>

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