Re: Vitamin D/ Calcium/Ovaries

April 10, 2006

hi Karin, how's everything? how's hair? no more bleeding i hope?! I find your posts soo interesting cuz i can relate to both your daughter and you I am back on a higher E at 4mg of E or 2 0.1 vivelle dot patches..still not ovulating, but at least i can now once again tolerate E after my P fiasco. Yeh, taking unopposed E again, but only for the next 2 weeks...i am getting married in 12 days, and would like to have hair for this event then the hair can go *just kidding*...but my lining was at 3 the last time i checked a few weeks ago, so my doc said 2-3 more weeks is ok..then i am going to start tapering off in order to allow my ovaries to kick in...i do have a few small cysts and a suspicion of PCOS.. Btw, i've been taking calcium for years...Calcium and vit D..but recently found out that you have to take magnesium if you're taking calcium..that's because calcium and

magnesium balance each other out..and if you take calcium without the magnesium, you're creating a dificit of magnesium..now i am taking calcium+vit D+ magnesium supplement every night before sleep... Anyways, looking forward to any updates...and good luck with your daughter...bigbird3099 wrote: Thought I would post another possible hope for a balanced endocrine system for my daughter (22). Maybe this might help someone else. She currently has PCOS and Celiac disease (can not digest wheat products).She went off the pill about over a year ago and does have acne and had hair loss. I have taken her to my endo but I kept thinking that I would like to find a DR that looks at the whole person w/all of their conditions. I previously read some things on Vit D

and thyroid and came across a study a Dr did in NYC on VIt D, calcium and PCOS and I decided to call her office.I spoke w/her receptionist and explained that I was looking for a DR that would not only look at PCOS but also the Celiac and I think I may have found her.I went w/my daughter to see her and for the first time I feel that someone gets it. She went for a bunch of blood tests and a 24hr urine. My daughter is very skeptical (she has seen all the different things I have tried) and she asked the Dr. if she ever had patients she could not help and she looked directly at us and said no.Her premise is pretty simple and hopefully I can express it well: the female ovary needs calcium to operate properly without the proper amounts of Vit D calcium can not be absorbed. For my daughter and I with the celiac disease years of malabsorbtion probably contributes to this. This Dr. is an endo and a researcher and she basically

said that in 6 mos she will have movie star skin and her hair will come back and the ovaries will be working properly. I will go w/my daughter on her next visit and will see her also. She currently has her on high Vit D and calcium (Premcal) and she will be monitoring her closely.The thing that struck me was that one of the things that elderly people are most defecient in is Vit D and also thyroid. I will let anyone interested know how things are going.I still have a very low FSH and LH and if I can get my ovaries going on their own I would gladly give up this hormone roller cost ride I have been on.Hopeful still,Karin

#define QUESTION ((bb) || !(bb)) - Shakespeare

April 10, 2006

Oh Karin, this is so exciting! I have a 24-yo daughter with PCOS. She's on the BC patch. I put her on policosonal and fish oil and her lipids normalized, but I've not come across anything else. Please let us know everything you learn.

Val

-----Original Message-----From: rhythmicliving [mailto:rhythmicliving ]On Behalf Of bigbird3099

Thought I would post another possible hope for a balanced endocrine system for my daughter (22). Maybe this might help someone else. She currently has PCOS and Celiac disease (can not digest wheat products).She went off the pill about over a year ago and does have acne and had hair loss. I have taken her to my endo but I kept thinking that I would like to find a DR that looks at the whole person w/all of their conditions. I previously read some things on Vit D and thyroid and came across a study a Dr did in NYC on VIt D, calcium and PCOS and I decided to call her office.I spoke w/her receptionist and explained that I was looking for a DR that would not only look at PCOS but also the Celiac and I think I may have found her.I went w/my daughter to see her and for the first time I feel that someone gets it. She went for a bunch of blood tests and a 24hr urine. My daughter is very skeptical (she has seen all the different things I have tried) and she asked the Dr. if she ever had patients she could not help and she looked directly at us and said no.Her premise is pretty simple and hopefully I can express it well: the female ovary needs calcium to operate properly without the proper amounts of Vit D calcium can not be absorbed. For my daughter and I with the celiac disease years of malabsorbtion probably contributes to this. This Dr. is an endo and a researcher and she basically said that in 6 mos she will have movie star skin and her hair will come back and the ovaries will be working properly. I will go w/my daughter on her next visit and will see her also. She currently has her on high Vit D and calcium (Premcal) and she will be monitoring her closely.The thing that struck me was that one of the things that elderly people are most defecient in is Vit D and also thyroid. I will let anyone interested know how things are going.I still have a very low FSH and LH and if I can get my ovaries going on their own I would gladly give up this hormone roller cost ride I have been on.Hopeful still,Karin

April 10, 2006

bigbird3099 wrote: She currently has her on high Vit D and calcium (Premcal) and she will be monitoring her closely. How high is the vit D - vit D is also protective against breast cancer! Madeleen

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April 11, 2006

Karin, can i re-post this to our 'growhair' group? i think ladies on their could benefit from this info?! -bigbird3099 wrote: Thought I would post another possible hope for a balanced endocrine system for my daughter (22). Maybe this might help someone else. She currently has PCOS and Celiac disease (can not digest wheat products).She went off the pill about over a year ago and does have acne and had hair loss. I have taken her to my endo but I kept thinking that I would like to find a DR that looks at the whole person w/all of their conditions. I previously read some things on Vit D and thyroid and came across a study a Dr did in NYC on VIt D, calcium and PCOS and I decided to call her office.I spoke w/her receptionist and

explained that I was looking for a DR that would not only look at PCOS but also the Celiac and I think I may have found her.I went w/my daughter to see her and for the first time I feel that someone gets it. She went for a bunch of blood tests and a 24hr urine. My daughter is very skeptical (she has seen all the different things I have tried) and she asked the Dr. if she ever had patients she could not help and she looked directly at us and said no.Her premise is pretty simple and hopefully I can express it well: the female ovary needs calcium to operate properly without the proper amounts of Vit D calcium can not be absorbed. For my daughter and I with the celiac disease years of malabsorbtion probably contributes to this. This Dr. is an endo and a researcher and she basically said that in 6 mos she will have movie star skin and her hair will come back and the ovaries will be working properly. I will go w/my

daughter on her next visit and will see her also. She currently has her on high Vit D and calcium (Premcal) and she will be monitoring her closely.The thing that struck me was that one of the things that elderly people are most defecient in is Vit D and also thyroid. I will let anyone interested know how things are going.I still have a very low FSH and LH and if I can get my ovaries going on their own I would gladly give up this hormone roller cost ride I have been on.Hopeful still,Karin

#define QUESTION ((bb) || !(bb)) - Shakespeare

April 12, 2006

Saw palmetto and spiro only compensate or mask the symptoms of too much free T

they

do not address why there is too much and how to possibly get the body or the

ovaries to

work properly. I have done the same in taking too much E, when you take a lot it

brings

down your available T but it really is just a compensation and than it

negatively effects

other things(like uncontrolable bleeding).

Karin

> My future daughter in law (25 yrs old), C, is being tested right now for

PCOS and her

gyno has prescribed 5HTP for munchies at PMS time starting after day 14, low

dose

estrogen patch during the week around day 21 (she has terrible PMS - wants to

kill) and

spironolactone to block excess free testosterone and improve hair loss. Said it

would take

3 months before she would see improvement in hair loss. When C takes a shower

she

smears her black hair all over the wall to prevent it from going down the drain.

One day

she forgot to clean it up and I screamed when I saw the hair on the wall - it

looked like

murder...LOL

>

> Madeleen

>

April 13, 2006

The E really helped but I had to take larger amounts of it and that caused some

other

issues. I guess what I have been looking for for the last 25 yrs is the answer

to why my

body did not operate like it should have w/my menstrual cycles (acne). I think

part of the

answer was the underlying thyroid/celiac disease. Maybe there is some genetic

componant

to it all and maybe it is the celiac that did not allow me to absorb the proper

nutrients for

the endochrine system to function well. I think that is why this Dr. who does

treat women

for malabsorbtion issues makes sense for me and my daughters right now.

I have tried the other so called routes:BC pill, avanda met, avandia,

spironolactone and

finally BHRT (which so far has been the best but very difficult to understand).

I have seen so many young women with hormonal issues you kind of have to assume

it is

something environmental or maybe it is the foods and the depleted nutrients in

the soil

that don't offer us what we need.

I have also tried the vitamin route but did it mainly on my own without blood

tests so

maybe that was just a hit or miss.

Before I was diagnosed w/Celiac I was on thyroid meds and had numerous goiters

because

I did not absorb the meds well. Being on a wheat free diet I have not had one

episode and

my thyroid seems very stable. I will see if in 6mos whether Vit D/calcium will

help my

daughter and keep you all in the loop.

Karin

> > My future daughter in law (25 yrs old), C, is being tested right now

for PCOS and

her

> gyno has prescribed 5HTP for munchies at PMS time starting after day 14, low

dose

> estrogen patch during the week around day 21 (she has terrible PMS - wants to

kill) and

> spironolactone to block excess free testosterone and improve hair loss. Said

it would

take

> 3 months before she would see improvement in hair loss. When C takes a shower

she

> smears her black hair all over the wall to prevent it from going down the

drain. One day

> she forgot to clean it up and I screamed when I saw the hair on the wall - it

looked like

> murder...LOL

> >

> > Madeleen

> >

>

> click here for our webpage http://rhythmicliving.com/

>

> **The group conversation is informational in nature and is not intended as

medical

advice.**

>

April 13, 2006

I agree that if you can alleviate the problem nutritionally that is the way to

go, but where

do you find the answers that are scientific in their approach backed by studies

and some

research? And on the herbal side I feel you have to be careful in what you may

take

because some herbs act as pharmaceutical drugs do. I don't have the answers but

will

continue to search for what works best for my particular issues. I guess

everyone has a

slightly different route in getting the answers they are looking for.

Thanks for the feedback.

Karin

> > My future daughter in law (25 yrs old), C, is being tested right now

for PCOS and

her

> gyno has prescribed 5HTP for munchies at PMS time starting after day 14, low

dose

> estrogen patch during the week around day 21 (she has terrible PMS - wants

to kill)

and

> spironolactone to block excess free testosterone and improve hair loss.

Said it would

take

> 3 months before she would see improvement in hair loss. When C takes a

shower she

> smears her black hair all over the wall to prevent it from going down the

drain. One

day

> she forgot to clean it up and I screamed when I saw the hair on the wall -

it looked like

> murder...LOL

> >

> > Madeleen

> >

>

> click here for our webpage http://rhythmicliving.com/

>

> **The group conversation is informational in nature and is not intended as

medical

advice.**

>

April 17, 2006

Interesting. One of my doctors wants me to see a Chinese herbalist

to get " unblocked " because my body has produces very aggressive

giant cell tumors. Now I'm wondering where the heck she is going to

send me.

>

> I have been in the thick of the Chinese medical world now for

about ten years, and unfortunately there are just too many

practitioners out there who don't know as much as they should. Here

is what my conclusions are at this point in time, based on that

experience:

>

> 1. acupuncture alone isn't going to do much for female hormone

balance, the best practitioners I have been around will tell you

that in China, the medicine is 20% acupuncture and 80% herbs

>

> 2. finding someone who really knows their Chinese herbs is hard --

Pacifica college of Chinese medicine in San Diego, and the

International Institute of Chinese Medicine in Santa Fe, where my

hubbie went, were considered the best schools for herbology training

in the U.S., at least in the 1990s, for IICM closed a few years ago,

due to bad management and the founders of it, MDs from China, are

really old now, so to my knowledge, Pacifica is the school for herbs

these days, and if someone didn't go to one of those schools and

also really focus on the herb track at those schools, you may not

get good care

>

> 3. even with a really good herbal knowledge, a practitioner may

not know that much about women's health, especially someone like you

with breast cancer twice, I am so sorry! Dagmar Ehling, whom I have

mentioned before, who now practices in the Raleigh-Durham area, is a

specialist in women's issues and I would refer anyone to her who is

trying to find a decent practitioner in their area -- she grew up in

Germany, the daughter of an MD and qualified for medical school in

Germany, which I am told is VERY rigorous, but chose to go to

Chinese medical school instead, and has studied as much as she can

worldwide, and taught and spoken worldwide in the area of herbs and

women's health, so she is a world specialist in this field and a

really neat woman!

>

> 4. you sound like you are a really special case, with difficult

health issues, you deserve and probably need the best, whether it be

MDs or practitioners of Chinese medicine or whatever, I wish you the

best in your continuing journey, for didn't you tell us recently on

this list (or it was new info for me at least) that you are

recovering from a hysterectomy right now? -- obviously you are quite

a survivor, you go girl!

>

> 5. the earlier life problems you describe, clotting and bleeding,

unable to get pregnant, are fairly easy to solve with good nutrition

programs, but they cost a lot and are complex, you take a lot of

pills every time you eat, and cannot just randomly go buy things,

but must work with someone who understands these things, although my

own experience was done through just reading and trial and error

with products, for there wasn't anyone around in 'my day' when I was

trying to pursue this path, who knew anything, not in my life

anyway, LOL - but I am living proof myself of curing problems you

describe, through nutritional supplements, and know of many others

who have done the same -- we talk about these things all the time on

the LiveRight list -- as for cancer, there is still so much we just

don't know! Many people make claims that the organic foods and

intense food supplement programs prevent cancer, but I have seen

enough of it around me in my life to conclude we just don't know for

sure! We may be able to feel great and function well through

nutrition, herbs, etc., but then one day, we die of cancer. Adelle

died of cancer in her 60s, and yet her nutrition information

that she gave us 50-60 years ago still is so valid in so many

respects, especially about women's health and hormone issues and

what supplements can work wonders, and they can for they did for me!

>

> Re: Re: Vitamin D/ Calcium/Ovaries

>

> I eat well, 90% organic and watch my diet carefully since I

have had breast cancer twice. I have done Chinese herbs and

acupuncture sessions which did not really change my hormonal

issues.

>

> Madeleen

>

April 17, 2006

Well let me get one thing straight. I'm not talking about cancerous

tumors. All of mine have been benign. What I want to figure out is

why I'm prone to them. I've gotten lots of theories. I'm tired of

all the surgeries I have to have to get rid of them! By the way, I

lie in New York City.

>

> The doctors from China who trained my husband -- one was head of

cardiology at a hospital in one of the big cities in China, for

example, so they were MDs as well as knowledgeable in Traditional

Chinese Medicine (TCM) -- taught him that TCM doesn't know a lot

about cancer. Apparently it wasn't a major problem over the 5,000

years or so that body of knowledge and experience developed. The

balancing TCM does for the body, since that is what TCM is all

about, balancing the body, supposedly helps prevent cancer, but of

course we have no proof of that.

>

> My husband says TCM is EXCELLENT for people going through Western

medical treatments for cancer and after the treatments. Helps make

them feel better and recover faster.

>

> On the other hand, one of my husband's mentors, who makes his own

specially tweaked versions of traditional Chinese herbal formulas,

is now helping people all over the world with cancer. But I think it

has more to do with cancer recovery, am not positive about that.

>

> Dr. Zhao is from a family in China that has been 'in herbs' for at

least 500 years. His products are easy to use because they are pills

and liquids, so you don't have to brew up those stinky teas. He is

in Santa Fe. His phone is 1-. East Tao Herb Pharmacy and

Clinic. His appointments for acupuncture and herbal consultation are

only about $40. I sent a friend of mine who lives in CT and had

leukemia a few years ago there when she was visiting and he didn't

even charge her for an herbal consultation, which took a few

minutes, for he is so good, it doesn't take him long to read pulses

and tongue, hear the patient's symptoms and make his diagnosis. He

also is one of the happiest people I think I ever have known. He

must be close to 60 or beyond, but looks like he is in his 20s or

30s.

>

> Re: Vitamin D/ Calcium/Ovaries

>

> Interesting. One of my doctors wants me to see a Chinese

herbalist

> to get " unblocked " because my body has produces very aggressive

> giant cell tumors. Now I'm wondering where the heck she is

going to

> send me.

>

> -------------------------------------------------------------------

-----------

>

April 17, 2006

Do you know of anyone here in New York? Thanks