Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 klbates2@... wrote: > What is the yellow stuff coming from KK's g-tube. this has happened > twice. Some yellow stuff comes up with the formula. > > Do I need to call the Doctor? > Korey, What kind of tube does KK have? Is it a MIK-KEY or a foley catheter or some other type?? One thing to consider is that if the tube is a foley or the like and can migrate into the intestine by mistake it is possible to get some yellow stuff that actually could be some bile from the jejeunem. That's my only guess so far from what you have said. Did this yellow stuff just start or have you seen it before? Do you notice anything else associated with the yellow stuff?? Take good care and let us know what's up. Kendra, and Camille's Mom Portland, OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 klbates2@... wrote: > > From: klbates2@... > > What is the yellow stuff coming from KK's g-tube. this has happened > twice. Some yellow stuff comes up with the formula. > > Do I need to call the Doctor? > > Korey mom to KK > ___________________________________________________________________ > You don't need to buy Internet access to use free Internet e-mail. > Get completely free e-mail from Juno at http://www.juno.com/getjuno.html > or call Juno at (800) 654-JUNO [654-5866] > > ------------------------------------------------------------------------ >.Korey, Sounds like bile to me. Probably nothing your doc. will do about it right away but it could be important, especially if KK doesn't have a fundo. Jeanie Colp mom to MacKenzie 8mos.CHARgE, Tyler 7, & Zachary 4 Nova Scotia, Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Jeanie, KK does have a fundo, and I have read you guys talking about bile. but I don't really know what it is. Ilooked it up in the dictionary, but didn't really understand. Korey mom to Kayla ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 , KK has a MIK-Key button. About the yellow stuff. I saw it about a week ago. Then yesterday. I didn't see anything else accept the formula. It almost looked as if she had mustard come up. But she didn't eat mustard. So I don't know what to do. Korey mom to KK ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 1999 Report Share Posted February 14, 1999 klbates2@... wrote: > > From: klbates2@... > > Jeanie, > > KK does have a fundo, and I have read you guys talking about bile. but I > don't really know what it is. Ilooked it up in the dictionary, but > didn't really understand. > > Korey mom to Kayla > ___________________________________________________________________ > You don't need to buy Internet access to use free Internet e-mail. > Get completely free e-mail from Juno at http://www.juno.com/getjuno.html > or call Juno at (800) 654-JUNO [654-5866] > > ------------------------------------------------------------------------ >.Korey, If KK has a fundo at least you don't have to worry about her refluxing the bile<which is very nasty>. Bile is made by the liver and is stored in the duodenum, where it breaks down fats and aids in digestion. The duodenum is connected to the stomach by the pylorus muscle. If a child has bad enough reflux it can cause bile gastritis, which is what MacKenzie has, only she can't have a fundo so she in turn refluxes and aspirates the bile<sorry, that isn't what you wanted to know>. Problems with the pylorus muscle can also cause this to happen, as can just a bad stomach flu. I don't know how much of a problem this may be for KK, but I do know that continuous bile in the stomach can cause ulcers. It sounds like something you may want to mention to your docs. Although it sounds as if you've been having about as much luck as us when it comes to docs.*^ & ^$%.I have definately learned one thing in the past 8mos. Doctors aren't always right, especially surgeons! They have a one track mind and just want to get in there and fix everything, quick quick quick. They're also arrogant as hell, at least all of them at our hospital are.Good luck. Jeanie Colp mom to MacKenzie 8mos. CHARgE, Tyler 7, & Zachary 4 Nova Scotia, Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 1999 Report Share Posted February 14, 1999 Doctors aren't always right, > especially surgeons! They have a one track mind and just want to get in > there and fix everything, quick quick quick. They're also arrogant as > hell, at least all of them at our hospital are.Good luck. > Go get em Jeanie!!! Dr Lawlor..I say we lynch him!!! <Jeanie and I go to the same hospital in case you are wondering about this inside joke!> Mom to Kennedy 1 yo CHARGEr, 9, 7, and wife to Graeme New Brunswick, Canada -- Graeme & Weir gweir@... http://www.geocities.com/SunsetStrip/Palms/5716 *ICQ* UIN:1426476 *AOL Buddy* - Kawfolks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 1999 Report Share Posted February 15, 1999 Jeanie, At first we thought she only had the Acid Reflux, but on her last PH Study we found out that she also had Alkiline Reflux also. That was the breaking point of wheather or not to do the surgery. After her levels were so high on the Alkiline we said ok to the surgeries. And the nurse tht was suppose to come here today, I guess didn't realize it was a holiday, so it won't be until Wed. when she comes. But I will ask her GI clinic or her nurse. Korey mom to KK ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 1999 Report Share Posted February 15, 1999 Hartshorne wrote: > > From: 3zlrtdh@... ( Hartshorne) > > >From: klbates2@... > > > >What is the yellow stuff coming from KK's g-tube. this has happened > >twice. Some yellow stuff comes up with the formula. > > > >Do I need to call the Doctor? > > Korey, it can't hurt to have it checked, but gets yellow stomach acid > from his tube a lot. It looks just like what comes up if he vomits. All I > know is that any stomach acid or contents that come up I am supposed to not > dump out, but put back in with the feeding so the electrolytes will stay in > balance. Does it just look like stomach acid to you? I thought bile was > green. But What do I know? , mom to (9) ChArGE > > S. Hartshorne > .Hartshorne@... > > ------------------------------------------------------------------------ , Bile can be dark green to light yellow, believe me we've seen lots of it in the past months. Jeanie Colp mom to MacKenzie 8mos.CHARgE, Tyler 7, & Zachary 4 Nova Scotia, Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 1999 Report Share Posted March 16, 1999 MAY181998@... wrote: > > From: MAY181998@... > > I was curious to find out if any mother of a CHARGEr was diagnosed with > cervical dysplasia before they got pregnant with their CHARGEr? If this is > too personal just say so. I'm just curious because I was told I had pre- > cancer of the cervix after Devin was born and was told that I'd never have > anymore children and more than likely have to have a hysterectomy (at 18 years > old). Surprise.... That fortunately never happened I changed doctors, but my > other docs did tell me my chances of ever becoming pregnant were very slim > because of all the treatments and scar tissue. > > I guess I'm just picking my brain and was curious about this... I'm not sure > if this is something appropriate to send to the list but I figured I'd throw > it out there. > > Thanks > > Kim > mom to Devin 8 yrs. and Saleah 10 mo. (CHARGE) > Kim, I'm not responding to your question, but to your comment on asking an inappropraite question, I really don't think there is such a thing here. Everyone has been through such similar experiences that I think we can talk about anything. Last week I asked some questions about marriage and got some wonderful, personal replies. Jeanie Colp mom to MacKenzie 10mos.CHARGE P.S. When is Saleahs' birthday? I've just realized that she and MacKenzie are the same age. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Kim, I was reading through the list, and I ran across yours asking about the cervical pre- cancer stuff. I actually had a colposcopy done while pregnant with Tyler, but it didn't show anything(however my doctor also ignored all of my symptoms of having a high-risk pregnancy. That's a story for another day). However, I am going through the same stuff again. I just had a portion of my cervix removed in a LEEP procedure. I didn't have anything abnormal until right before I got pregnant, during and now. I had only an abnormal pap here and there before I had my daughter. I don't know if this helps any, but I just thought I would share. Kim Menne, mother of Tyler, 15 mos Charge, and Raychel, 2 1/2, and wife to Craig Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 1999 Report Share Posted March 20, 1999 Kim, I had the same stuff done. I went to a specialty clinic for about 4 years (up until about a year and a half before I got pregnant with Saleah). I also had the LEEP done (not a fun experience). Thanks for responding to me - so far you're the only one I've heard from on this. I was just curious if there was anyone else that had gone through this before having their CHARGEr or if I was the only one. Kim mom to Devin 8 yrs. and Saleah 10 mo. (CHARGE) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 1999 Report Share Posted March 21, 1999 CRAIGM22@... wrote: > > From: CRAIGM22@... > > Kim, > I was reading through the list, and I ran across yours asking about the > cervical pre- cancer stuff. I actually had a colposcopy done while pregnant > with Tyler, but it didn't show anything(however my doctor also ignored all of > my symptoms of having a high-risk pregnancy. That's a story for another day). > However, I am going through the same stuff again. I just had a portion of my > cervix removed in a LEEP procedure. I didn't have anything abnormal until > right before I got pregnant, during and now. I had only an abnormal pap here > and there before I had my daughter. I don't know if this helps any, but I > just thought I would share. > > Kim Menne, mother of Tyler, 15 mos Charge, and Raychel, 2 1/2, and wife to > Craig My sister had the exact same thing done about 6 months ago. She has one boy, but he has no problems, other than he is taking a really long time to talk< he's six>. Jeanie Colp mom to MacKenzie 10mos.CHARGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 1999 Report Share Posted March 27, 1999 Hi Merry, I am a nurse who is also a diabetic. The blood glucose checks measure your current status. If you are in good control, there is no need to check your urine. For sugar to spill over into the urine, your blood glucose needs to be fairly high for a period of time. So when you check your urine, you are checking what happened prior, rather than the current. In the old days, before we had the accurate meters we have now, you had to check your urine and guess. Thank goodness for the new and improved! (You can always ask your MD whether he thinks you need urine checks.) Take care, Dottie in Virginia Om8421@... wrote: > From: Om8421@... > > I have read on the list that many people are test their urine as well as > their GB. What are U checking for? Should I be doing this too? > Thanks, Merry > > ------------------------------------------------------------------------ > You can now easily share photos and documents with your fellow list members > http://www.ONElist.com > Check out our homepage for details on how to use our new shared files feature! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 1999 Report Share Posted April 3, 1999 In a message dated 99-04-02 19:23:21 EST, you write: << Is their any Doctor or Clinic that specializes in CHARGE, any where in the United States? >> Amy, To answer that the best I can. No.... But Meg is a geneticist here on the list and she's as specialized as you're going to get. If you ever have any serious questions that you just can't get the answers, she has probably studied CHARGE more than anyone else. (Am I right Meg?) As you know, CHARGE is a " collection " of anomalies, and not ONE person is going to " specialize for all the anomalies, that's why you have so many doctors, but as far as CHARGE facts in general, Meg's your woman. Whenever I need a specific question answered, I just e-mail her personally. There are different types of geneticists and my personal geneticist, Dr. Rosenbaum, does NOT belong to the Foundation, but in my area, he knows more about it than anyone else if I need a referal to a doc in my particular area. He has alot of CHARGE patients that he follows on a regular basis, but I don't know how much he's into just that because he deals with Downs, and any other genetic problems. I hope this helps. Foley Mom to 3 1/2, , My CHARGE guy in heaven, and Jillian 1 w/cHaRgE in Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 1999 Report Share Posted April 9, 1999 Hi Merry, If you use a meter to check your bg - blood test and if you measure it to be under the max-border 10mmol/l, then the level of sugar in the urine should neither be to high. The problem is when the bg gets over the 10mmol/l ( x 18 = 180 - us measure) border. That's a sign that the bg is not sufficiently absorbed (diab. II - don't know with diab. I's). I have not been a diabetic for so long, but doesn't it sound as logic? The level of bg can be measured in both urine and blood - but more precise in a blod test. - There may be some other reasons to measure sugar in the urine, but I don't know for what reasons. I hasn't been a diabetic for so long and has not experienced so many complications to it. Best regards Question > From: Om8421@... > > I have read on the list that many people are test their urine as well as > their GB. What are U checking for? Should I be doing this too? > Thanks, Merry > > ------------------------------------------------------------------------ > You can now easily share photos and documents with your fellow list members > http://www.ONElist.com > Check out our homepage for details on how to use our new shared files feature! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 1999 Report Share Posted April 10, 1999 Keytones. See http://diabetes.cbyc.com/topics/ketones.html You should ask your doctor when to check, but I've heard if your BG is over 240 mg for a few days in a row, then you should test. Question >From: Om8421@... > >I have read on the list that many people are test their urine as well as >their GB. What are U checking for? Should I be doing this too? >Thanks, Merry > >------------------------------------------------------------------------ >You can now easily share photos and documents with your fellow list members >http://www.ONElist.com >Check out our homepage for details on how to use our new shared files feature! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 1999 Report Share Posted April 11, 1999 Merry asks: << I have read on the list that many people are test their urine as well as their GB. What are U checking for? Should I be doing this too? >> Merry, I had suggested that only to folks who sometimes just can't stand the thought of yet another finger-stick. Urine testing is better than nothing - but finger-sticks give more accurate, timely info. Glucose doesn't spill over into the urine until you hit your " renal threshhold, " which for many folks is around 180 on your bg's. So it would be helpful only for folks whose control isn't real good ... after a big meal, etc. There are several brands, but they are sometimes hard to find. I used to use the Keto-Diastix, which showed both urine glucose levels and ketones, when I first lowered my carbohydrate intake. They are expensive, and I had to order a whole case from WalMart to get them. But you can get KetoStix or DiaStix, or other urine strips/tapes, from various pharmacists. We can have ketones in our urine both from having extremely high glucose levels (unhealthy diabetic ketoacidosis) and from really bearing down on our carbohydrate intake (benign ketosis). Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 In a message dated 4/16/99 5:56:22 AM US Eastern Standard Time, gduffett@... writes: << When I send a message to the type 2 list, does it also go to diabetes@ one list? Gail >> I was not aware that there is a type 11 list how do I find it? Merry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 When I send a message to the type 2 list, does it also go to diabetes@ one list? Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Merry Just go to the internet and type in www. typetwoonelist and become a member. Gail Duffett wrote: > > > When I send a message to the type 2 list, does it also go to diabetes@ > one list? > > Gail > > ------------------------------------------------------------------------ > You can now easily share photos and documents with your fellow list members > http://www.ONElist.com > Check out our homepage for details on how to use our new shared files feature! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 http://www.onelist.com/viewarchive.cgi?listname=Type2diabetes http://www.onelist.com/viewarchive.cgi?listname=TypeTwo Re: Question >From: Om8421@... > >In a message dated 4/16/99 5:56:22 AM US Eastern Standard Time, >gduffett@... writes: > ><< > > When I send a message to the type 2 list, does it also go to diabetes@ > one list? > > Gail > >> > I was not aware that there is a type 11 list how do I find it? >Merry > >------------------------------------------------------------------------ >Are you hogging all the fun? >http://www.ONElist.com >Friends tell friends about ONElist! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 Don, this sounds pretty high carb to me. Checking my Netzer book, corn flakes has 26 carbs; orange juice 1/4 cup has about 15, two pieces toast must be 40+. (Do you mean wheat bread? Whole wheat?). Vicki In a message dated 99-06-07 22:35:05 EDT, you write: << , I have 1cup corn flakes or cheerios, 8oz. skim milk, 4oz. orange juice or cranberry juice, Sweet n'Low sweetener, 2 slices of brownbread toast, and a cup or two of coffee. Then I start my day. Don and Penguinie who has kippers snacks O- >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 Hi Susie, With astute carb counting and knowing my ins./carb ratio (1u:6 carbs) and how much each unit brings down the grams 1u dropping 28 grams, I am able to remain pretty stable. I have a light lunch of 2 slices brown bread, low fat cheese,l nofat mine meat and 8oz. skim milk and if I am going to exercise I have a half cup of chicken noodle soup, even thaen I fiand I need a snack after nine holes of golf before completing the second nine. Don and Penguinie the pumper penguin O- /'()\ diabetic penguins are not good caddies unless you have cod or shrimp along. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 Susie is a blessing,if she doesn't know the info she finds it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 writes: << So far my brother has only spoken to the staff ,,, of course the staff has yet to call us on anything,had we not called he still would know nothing. I considered suggesting he call his primary or his ins co. >> I would demand to speak to the doctor personally. I have worked in several doctors' offices and seen them run both professionally and with almost no oversight. You should not have to wait this long. << The light info was very helpful,I will pass it on to him, we had not seen that as an alternative but we had not began to look yet. >> If you grab a good search engine such as http://www.altavista.com and do a search by typing in in quotation marks " Barrett's esophagus " you will be pleased with the many helpful sites. Just a year ago, Harvard was looking for subjects to test this new procedure. There is an email address. Who knows? Maybe he could get into one of these tests! They were doing research in Knoxville and Boston too. Susie Quote Link to comment Share on other sites More sharing options...
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