RE: Reply to Cheryl, I did have a neurologist write a letter.

[Guest guest]

Hello Cheryl,

I saw a neurologist (Dr. Steve Trobiani, at the NorthStar Pain Clinic

in Maple Grove, Minnesota) who totally believes my fibro pain is caused

by the implants and gladly wrote me a letter; I have submitted the

letter twice and the insurance company is only now setting up a

teleconference for November, 29th (long after my surgery on the 7th).

I also included copies of my tests from the last five years as well as

a personal statement describing my daily struggle. It seems that I

even doubt what I know to be true (that the implants are causing me

this pain), but in the face of such oppossition it is hard to have

faith. things will get better, when I am feeling better I can work and

then I'll pay off the surgery if I don't get reimbursed. But I will

not go unheard, I will use every soapbox that I can stand on to preach

mine and stories like mine. I pray each day that we all get where we

want to be...

God Bless,

Carol

[Guest guest]

Carol

You have a lot of heart. You will get those implants out, get

better, and someday all this pain will be a distant memory. Keep on

perservering. You will reap the rewards!

Hugs, kathy

--- In , " hennywin " <hennywin@y...>

wrote:

>

> Hello Cheryl,

> I saw a neurologist (Dr. Steve Trobiani, at the NorthStar Pain

Clinic

> in Maple Grove, Minnesota) who totally believes my fibro pain is

caused

> by the implants and gladly wrote me a letter; I have submitted the

> letter twice and the insurance company is only now setting up a

> teleconference for November, 29th (long after my surgery on the

7th).

> I also included copies of my tests from the last five years as

well as

> a personal statement describing my daily struggle. It seems that

I

> even doubt what I know to be true (that the implants are causing

me

> this pain), but in the face of such oppossition it is hard to have

> faith. things will get better, when I am feeling better I can

work and

> then I'll pay off the surgery if I don't get reimbursed. But I

will

> not go unheard, I will use every soapbox that I can stand on to

preach

> mine and stories like mine. I pray each day that we all get where

we

> want to be...

> God Bless,

> Carol

>

[Guest guest]

so finding a neurologist who believes in silicone sickness and will

write a letter could help get insurance $$$....i hadn't thought of

that.........but then, of ALL the doctors i have seen in the past two

years, NONE of them believe in silicone sickness......also, though

some options like CO and TX have been suggested, as there are docs

there who could help, i feel like my situation does not lend itself

to leaving AZ for treatment........is there not one woman in this

support group from AZ, who has any sort of medical support in this

cause? today the pain is so bad, i feel like i cannot fight much

longer......

> >

> > Hello Cheryl,

> > I saw a neurologist (Dr. Steve Trobiani, at the NorthStar Pain

> Clinic

> > in Maple Grove, Minnesota) who totally believes my fibro pain is

> caused

> > by the implants and gladly wrote me a letter; I have submitted

the

> > letter twice and the insurance company is only now setting up a

> > teleconference for November, 29th (long after my surgery on the

> 7th).

> > I also included copies of my tests from the last five years as

> well as

> > a personal statement describing my daily struggle. It seems that

> I

> > even doubt what I know to be true (that the implants are causing

> me

> > this pain), but in the face of such oppossition it is hard to

have

> > faith. things will get better, when I am feeling better I can

> work and

> > then I'll pay off the surgery if I don't get reimbursed. But I

> will

> > not go unheard, I will use every soapbox that I can stand on to

> preach

> > mine and stories like mine. I pray each day that we all get

where

> we

> > want to be...

> > God Bless,

> > Carol

> >

>

[Guest guest]

Kathie,

There are some things you could try even before

getting your implants out that may help. Fortunately

they are all inexpensive!

One of the best is eating raw, freshly crushed garlic.

You might have to be creative in how you get it down!

You can eat as many as 12 cloves a day. However, I'd

suggest starting slowly and building up. Garlic is a

natural antibiotic, antioxident, and antifungal. I can

tell a difference within 24 hours of eating garlic.

Also, Oil of Oregano (put drops in grapefruit or

orange juice - it's strong!) . . . is a good immune

booster and antibacterial. . . Olive Leaf extract is

good too . . . That comes in capsules, so it's easier

to take. Here again, start slow and build up. You will

probably experience some herxing. Just recognise it

for what it is and don't panic! . . . You'll quickly

learn to regulate your detoxing to keep it from being

disabling. Just don't give up when you find yourself

temporarily feeling worse!

Soaking in a tub of hot water with two cups of Espom

Salts can help draw toxins from your skin. I think

Kathy mentioned sea salt and clay baths.

You can find information about any of these online.

www.curezone.com has some excellent recommendations

for detox therapies. Most of them are inexpensive and

can be done at home.

If you're having a lot of muscle pain, it's likely

fibromyalgia. Very common among implant women. The

worst thing you can do is to not keep moving. It sets

up a viscious cycle where it just keeps getting worse.

You don't have to exercise vigorously, but you do need

to keep stretching and moving about.

I think Patty posted some other plastic surgeons in

your area . . . You might check them out, and if they

don't work out, get on the phone and keep calling

until you find a doctor willing to work with you. Be

careful about putting the doctors on guard with what

you say or how you ask - that can bring a negative

response - even from a good doctor.

Hugs and prayers,

Rogene

[Guest guest]

thanks for all your ideas.......i will certainly allow for the

possibility.........your time and energy to help us all is

amazing.......blessings to all of us, and i am so gald to be

here........

kathie

>

> Kathie,

>

> There are some things you could try even before

> getting your implants out that may help. Fortunately

> they are all inexpensive!

>

> One of the best is eating raw, freshly crushed garlic.

> You might have to be creative in how you get it down!

> You can eat as many as 12 cloves a day. However, I'd

> suggest starting slowly and building up. Garlic is a

> natural antibiotic, antioxident, and antifungal. I can

> tell a difference within 24 hours of eating garlic.

>

> Also, Oil of Oregano (put drops in grapefruit or

> orange juice - it's strong!) . . . is a good immune

> booster and antibacterial. . . Olive Leaf extract is

> good too . . . That comes in capsules, so it's easier

> to take. Here again, start slow and build up. You will

> probably experience some herxing. Just recognise it

> for what it is and don't panic! . . . You'll quickly

> learn to regulate your detoxing to keep it from being

> disabling. Just don't give up when you find yourself

> temporarily feeling worse!

>

> Soaking in a tub of hot water with two cups of Espom

> Salts can help draw toxins from your skin. I think

> Kathy mentioned sea salt and clay baths.

>

> You can find information about any of these online.

> www.curezone.com has some excellent recommendations

> for detox therapies. Most of them are inexpensive and

> can be done at home.

>

> If you're having a lot of muscle pain, it's likely

> fibromyalgia. Very common among implant women. The

> worst thing you can do is to not keep moving. It sets

> up a viscious cycle where it just keeps getting worse.

> You don't have to exercise vigorously, but you do need

> to keep stretching and moving about.

>

> I think Patty posted some other plastic surgeons in

> your area . . . You might check them out, and if they

> don't work out, get on the phone and keep calling

> until you find a doctor willing to work with you. Be

> careful about putting the doctors on guard with what

> you say or how you ask - that can bring a negative

> response - even from a good doctor.

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Kathie,

I am sorry you are in such pain. I know that there have been women

from Arizona on this forum, so I hope that some of them speak up for

you. I no longer live in Arizona, but I can tell you that finding

doctors for help with silicone illness was extremely difficult and

disheartening. I did find a naturopath who believed me, and that

was a blessing, but he was in Tucson. Come to think of it, he was

on the board of a Naturopathic Educational Center in Mesa! I think

he was one of the founders. His name is Dr. Lance , if you

want to look him up and see if he can help point you in the right

direction. He may know of some doctors who can help.I have his

business card in my office, but I will have to hobble over there on

my crutches, so if you don't mind, I will try to send it in another

email!

Patty

> > >

> > > Hello Cheryl,

> > > I saw a neurologist (Dr. Steve Trobiani, at the NorthStar

Pain

> > Clinic

> > > in Maple Grove, Minnesota) who totally believes my fibro pain

is

> > caused

> > > by the implants and gladly wrote me a letter; I have submitted

> the

> > > letter twice and the insurance company is only now setting up

a

> > > teleconference for November, 29th (long after my surgery on

the

> > 7th).

> > > I also included copies of my tests from the last five years as

> > well as

> > > a personal statement describing my daily struggle. It seems

that

> > I

> > > even doubt what I know to be true (that the implants are

causing

> > me

> > > this pain), but in the face of such oppossition it is hard to

> have

> > > faith. things will get better, when I am feeling better I can

> > work and

> > > then I'll pay off the surgery if I don't get reimbursed. But

I

> > will

> > > not go unheard, I will use every soapbox that I can stand on

to

> > preach

> > > mine and stories like mine. I pray each day that we all get

> where

> > we

> > > want to be...

> > > God Bless,

> > > Carol

> > >

> >

>