Re: Testing for Silicon Hypersensitivity

[Guest guest]

sorry to be slow on the uptake, but where is this doctor who only

charges $70.00 for this test? i would love to get one

done........thanks

kathie

>

> > SiliconeKids

> > From: " Lana Transue " <lanadearest@h...>

> > Date: Sun, 30 Oct 2005 16:40:25 -0800

> > Subject: RE: [siliconeKids] Silicone Breast Implants

> > and Injections

> >

> > I urge each and everyone of you that have not been

> > tested for silicon

> > hypersensitivity to get yourself tested and then

> > send the test results to

> > the FDA's Med-Watch program. This doctor is only

> > charging $70 dollars for

> > the test. These tests results completely changed our

> > lives and the way the

> > doctors respond to our illnesses that are related to

> > the implants. Lana

> >

> >

> > >From: Rogene S <saxony01@y...>

> > >Reply-SiliconeKids

> > > < >,

> > SiliconeKids

> > ><siliconekids >

> > >Subject: [siliconeKids] Silicone Breast Implants

> > and Injections

> > >Date: Sun, 30 Oct 2005 16:06:30 -0800 (PST)

> > >

> > >Thanks Lana!

> > >

> > >http://www.drmyhill.co.uk/article.cfm?id=86

> > >

> > >Dr. Myhill is in Great Britain . . . and outspoken

> > >against breast implants! - Rogene

> > >============================

> > >

> > >Silicone Breast Implants and Injections

> > >

> > >

> > >I have now been consulted by over 100 patients with

> > >chronic ill health following silicone breast

> > implants

> > >or injections. Silicone leaks (so called " gel

> > bleed " )

> > >out of the implant where it is picked up by the

> > >reticulo-endothelial cells and distributed widely

> > >throughout the whole body. The government body

> > >responsible for licensing silicone, the Medical

> > >Devices Agency, claims that silicone is inert and

> > does

> > >no harm despite this gel bleed. My clinical

> > experience

> > >and the scientific literature suggests otherwise.

> > >

> > >There are many problems with implants, of which the

> > >most obvious is infection at the time of insertion.

> > >However, the long term effects are far more malign.

> > >This stems from the fact that silicone cannot be

> > >broken down by any enzyme system in the body, is

> > >engulfed by macrophages, carried to distant sites

> > by

> > >embolisation and there it acts as an immune

> > adjuvant,

> > >stimulating autoimmune disorders. This means that

> > >these patients suffer from multisystem autoimmune

> > >disease. In particular, clinically one sees:

> > >

> > >mixed connective tissue disease, demyelinating

> > >conditions such as MS autoimmune endocrinopathies,

> > >vasculitis, myopathies,

> > >

> > >- all of which eventually leads to a chronic

> > fatigue

> > >syndrome often including multiple chemical

> > sensitivity

> > >My clinical impression is that the silicone

> > poisoned

> > >patients suffer more from pain than the virally or

> > OP

> > >induced CFS. I have concluded from my own

> > observations

> > >that silicone causes a new disease unique to

> > silicone

> > >but resembling other diseases.

> > >

> > >All of these cases I have reported to the MDA. None

> > of

> > >these cases were reported to the MDA by either

> > their

> > >plastic surgeon or rheumatologist or oncologist.

> > This

> > >simply reflects the level of gross under-reporting

> > of

> > >side effects.

> > >

> > >It is well recognised that the silicone bleeds out

> > of

> > >the implants very readily and is widely distributed

> > >throughout the body by the reticulo-endothelial

> > >system. Silicone leaks out as soon as the implants

> > are

> > >put in. I know this because the Medical Devices

> > >Agency, which is the government body responsible

> > for

> > >licensing these products, tells me so. However,

> > where

> > >we disagree is what happens to the silicone then.

> > The

> > >MDA maintains that it is inert, but actually

> > silicone

> > >is well recognised as being an immune adjuvant and

> > I

> > >suspect in susceptible individuals we get an

> > >inflammatory reaction against the silicone which

> > >results in multi-system disease. The Louisiana

> > ruling

> > >on 19.8.97 showed that Dow Corning was developing

> > >silicone for use as an active pharmaceutical agent

> > at

> > >the same time as when it was being declared

> > " inert " .

> > >

> > >There is no known mechanism by which silicone can

> > be

> > >excreted from the body. Silicone leakage is

> > >accelerated when implants rupture, of which 50% do

> > so

> > >by 12 years and 95% by 20 years. Most of these

> > >ruptures are spontaneous but some follow closed

> > >capsulotomy, road traffic accident or whatever. A

> > >recent Lancet paper November 1997) recommends that

> > all

> > >implants are replaced every 8 years. Silicone

> > leakage

> > >can be a problem locally whereby the body throws up

> > a

> > >scar capsule against the implant to try to prevent

> > the

> > >silicone from leaking. As this scar contracts this

> > >causes local hardening of the breast, often with

> > pain.

> > >Surgeons treat this by crushing the breast between

> > >their hands (often with no anaesthetic!) to rupture

> > >the scar capsule (this unproven, extremely painful

> > >procedure has been sanitised by giving it a name:

> > >closed capsulotomy). The implant may also be

> > ruptured

> > >by this procedure. Once ruptured, the silicone may

> > >migrate in a lump to the axilla and brachial plexus

> > >causing pain and blockage of lymphatics, across the

> > >breast causing a mis- shapen breast (one patient

> > had

> > >to have her nipples surgically re-sited), or down

> > the

> > >chest wall.

> > >

> > >Generalised effects of silicone are caused by

> > silicone

> > >migrating via the reticulo-endothelial system to

> > the

> > >rest of the body and causing inflammatory reactions

> > >wherever silicone ends up. In the brain this causes

> > a

> > >multiple sclerosis-like syndrome, in the body it

> > can

> > >cause a range of autoimmune disorders, chronic

> > fatigue

> > >syndrome, chronic pain and multiple chemical

> > >sensitivity.

> > >

> > >Tests For Silicone Poisoning Prof Garry's

> > lab

> > >in the USA offers antibody testing. He measures the

> > >anti-polymer antibody levels. However, this is

> > >expensive and is not specific for siliconosis. So I

> > >rarely do this test nowadays. His address is Dept

> > of

> > >Microbiology and Immunology, Tulane University

> > School

> > >of Medicine, New Orleans, LA 70112 tel 001 504 587

> > >2027 fax 001 504 584 1994. I can arrange the test

> > if

> > >this is easier - I can post the kit to the patient

> > for

> > >the blood to be taken locally and make arrangements

> > to

> > >dispatch the sample to America via a courier. The

> > cost

> > >is œ150 for the test and œ20 for the

> > >transport.

> > >

> > >I have just had an extract of silicone made up for

> > >skin testing and am getting interesting results!

> > This

> > >test is designed to look at the body's immune

> > response

> > >to silicone. The extract is a very dilute solution

> > >(1:100) which is injected intradermally to bring up

> > a

> > >weal of about 7 by 7mm. Ten minutes later this is

> > >measured. A complete non-reactor would have no

> > growth

> > >and flattening of the weal. Reactors show a growth

> > in

> > >the size of the weal. A positive reaction supports

> > the

> > >idea that the body is reacting positively to

> > silicone.

> > >Again I don't know the medico-legal aspects of this

> > >test until I have done a reasonable number

> > including

> > >controls (i.e people who have never been exposed to

> > >silicone). I don't see why it should not be

> > possible

> > >to try a desensitisation technique called

> > >neutralisation from the test extract.For a list of

> > >practitioners, visit www.bsaenm.org

> > >

> > >The most sensitive test available in this country

> > to

> > >assess the reaction of white cells to silicone in

> > the

> > >body is a lymphocyte chemical sensitivity

> > (silicone)

> > >test This just involves sending a blood sample to

> > >Biolab in London. My clinical impression of tests

> > done

> > >so far is that the worst affected women have the

> > >highest levels of sensitivity.

> > >

> > >Treatment I have been in direct contact with

> > Professor

> > >Radford Shanklin from the States who has been most

> > >helpful with clinical management. We had a long

> > >meeting at the Royal Society of Medicine where I

> > could

> > >pick his brains. The priority is to have the

> > silicone

> > >removed by a surgeon skilled in explantation.

> > However,

> > >the problem with explantation is that it is thought

> > to

> > >stir up a reaction against silicone and patients

> > often

> > >see a worsening of their symptoms which may last up

> > to

> > >3 years. Prof. Shanklin tells me that reactions

> > >against silicone are medicated by T cells and

> > >interleukin 2. He has been trying Plaquenil 200mgs

> > >twice daily for 90 days before surgery and believes

> > >this damps down the T cell activity and prevents

> > this

> > >post operative flare. Plaquenil is a standard

> > >immunosuppressive drug used to treat rheumatoid

> > >arthritis and systemic lupus erythematosis. It is a

> > >fairly benign drug and it is felt that for short

> > term

> > >treatment no special monitoring is required

> > although

> > >it is probably medically prudetn to check a white

> > cell

> > >count and eye test before and during treatment.

> > >

> > >Explantation needs to be done by a skilled surgeon

> > >aware of the need not to rupture the capsule

> > >inadvertently. Furthermore, the scar capsule also

> > >needs removing because it will be impregnated with

> > >silicone. Insist on being given the implant after

> > >surgery and don't allow the surgeon to make up an

> > >excuse. I had one patient who was told the implant

> > was

> > >removed intact, but it was " scrubbed " to make it

> > look

> > >better and ruptured in that process, therefore it

> > was

> > >not available to be seen! Let's face it - you've

> > paid

> > >for it - it belongs to ysu!

> > >

> > >The CFS side of things I treat in exactly the same

> > way

> > >as I treat all my other CFS patients with fatigue

> > >caused by viral infection or pesticide poisoning or

> > >whatever. Namely rest, nutritional supplements,

> > >elimination dieting, magnesium injections where

> > >appropriate (blood test needed), B12 injections,

> > >avoiding chemicals, etc.

> > >

> > >Second Generation Effects There is every reason to

> > >expect silicone to cross the placenta into the

> > unborn

> > >child. The effects of this are uncertain. Prof

> > >Shanklin has looked at a group of 190 women who had

> > >babies before and after their implant. There were

> > 127

> > >pre-implant children of which 100 were in good

> > health,

> > >27 in fair health (minor transient problems) and

> > none

> > >sick. This compares to 252 post-implant children,

> > of

> > >which 78 were in good health 81 in fair health with

> > 93

> > >WHO WERE MORE SERIOUSLY ILL (compares to none in

> > the

> > >pre-implant group!). This experience certainly

> > accords

> > >with what I am seeing in my patients. However, I

> > would

> > >like to repeat this research in all my patients and

> > >hope to attract some modest funds to allow me to do

> > >this. I would do it myself if I had the time, but I

> > >don't. I would need to employ somebody short term

> > to

> > >contact women. Any volunteers?

> > >

> > >See also: Neutralisation in FOOD ALLERGY section

> > >

> > >

> > >

> >

> >

> >

> >

> >

[Guest guest]

She's in Great Britain. . .

You can contact her through her website:

http://www.drmyhill.co.uk/article.cfm?id=86

Lana, who started this thread found that both her

children overcame their chronic health problems once

they were diagnosed with silicone hypersensitivity and

all forms of silicone were eliminated from their diet.

The doctor who diagnosed them suddenly dropped them

(and all the other implant related patients) as

patients and moved into his new office - refusing to

speak of silicone hypersensitivity problems again. Do

you find that curious? I do!

Hugs,

Rogene

[Guest guest]

soooooo, does that mean there is no way to get a test for this, or

even, would a test like this help me convince my insurance to pay for

explants??? thanks.............oh, and i am not surprised, given

what i have been learning, that she never spoke of this

again........everyone has lied to me about my mastectomy, my

implants, my being sick, and now.......well, now what?

kathie

>

> She's in Great Britain. . .

>

> You can contact her through her website:

> http://www.drmyhill.co.uk/article.cfm?id=86

>

> Lana, who started this thread found that both her

> children overcame their chronic health problems once

> they were diagnosed with silicone hypersensitivity and

> all forms of silicone were eliminated from their diet.

>

> The doctor who diagnosed them suddenly dropped them

> (and all the other implant related patients) as

> patients and moved into his new office - refusing to

> speak of silicone hypersensitivity problems again. Do

> you find that curious? I do!

>

> Hugs,

>

> Rogene

>

[Guest guest]

Kathie,

Dr. Myhill in Great Britain tests for silicone

hypersensitivty . . . Click on her link below.

Whether or not your insurance will pay, I don't know.

It's certainly worth checking out! . . .

Regardless, if you are hypersensitive to silicone, it

would be good to know so you can avoid products

containing silicone.

I think it costs about $70.00.

Rogene

--- kathie <Kathie.Larsyn@...> wrote:

> soooooo, does that mean there is no way to get a

> test for this, or

> even, would a test like this help me convince my

> insurance to pay for

> explants??? thanks.............oh, and i am not

> surprised, given

> what i have been learning, that she never spoke of

> this

> again........everyone has lied to me about my

> mastectomy, my

> implants, my being sick, and now.......well, now

> what?

>

> kathie

>

>

> >

> > She's in Great Britain. . .

> >

> > You can contact her through her website:

> > http://www.drmyhill.co.uk/article.cfm?id=86

> >

> > Lana, who started this thread found that both her

> > children overcame their chronic health problems

> once

> > they were diagnosed with silicone hypersensitivity

> and

> > all forms of silicone were eliminated from their

> diet.

> >

> > The doctor who diagnosed them suddenly dropped

> them

> > (and all the other implant related patients) as

> > patients and moved into his new office - refusing

> to

> > speak of silicone hypersensitivity problems again.

> Do

> > you find that curious? I do!

> >

> > Hugs,

> >

> > Rogene

> >

>

>

>

>

>

>